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The Practical Side of
Comprehensive Care:
ACCOMPLISHMENTS, CHALLENGES AND
LESSONS LEARNED AT KNH
Dr. David Bukusi
Kenyatta National Hospital
VCT and Comprehensive Care
Centers
Comprehensive care
 Medical and nursing care
• OIs/prophylaxis TB, PCP
• ARVs
• Palliative care
 Psychological support
• Adherence counselling
• Supportive counselling
• Post-Test counselling
• Post-Disclosure Group
Therapy
• Follow-up counselling
 PEP
 Laboratory support
 Youth Friendly services
 Nutritional support
 Social worker support
tracing defaulters, family
support
 Spiritual support
 Referrals for medico-legal
services
 Networking  CCC network
 Post-test support groups
 Children’s group therapy/play
Components of Comprehensive care
COMPREHENSIVE CARE
COMPREHENSIVE CARE IS ABOUT
THE PATIENT
The PATIENT may be able to access several
services, preferably under one roof, or
service provision area as opposed to having
services available and having the patient try
to track them down
Introduction
 HIV/AIDS is not just an infection, it is an
emotional, psychological, physical, spiritual
and social problem. Thus it requires a multi
disciplinary and multi-sectoral approach.
 The KNH CCC centre was opened in
December 2002.
 Initially CC services were provided at Patient
Support Centre but this has recently moved
to Rahimtulla Wing of KNH.
 KNH CCC is one of the largest in the country.
PICTURE OF KNH CCC
 Picture to be included later
KNH CCC PARTNERSHIPS
 Comprehensive care is about
partnerships
KNH CCC Partnerships
 USAID (PEPFAR) through FHI
 CDC/UON (PEPFAR) through ACTS
 MSH (PEPFAR)
Accomplishments
 Establishment of the CCC which provides;
• Physical care: ART provision, OI diagnosis
and treatment, prophylaxis, Laboratory
services (CD4, VL, Biochemistry).
• Emotional care: Pre and post test counseling,
anxiety relief, support groups (PTC), ongoing
care and counselling.
• Spiritual care: In collaboration with the KNH
Chaplaincy.
• Social care: community support / outreach,
nutritional support, financial
dependence/capabilities, networking.
Accomplishments
 Number of Patients on Comprehensive Care.
( 170 clients per day, including Children)
• No. on ARV’s, OI Prophylaxis, PEP
• No. / % on Nutritional support / Nutritional
Counselling
 Psychosocial support – counselling, social
workers
• To inpatients
• Outpatients – at CCC, Post Test Clubs.
Graphical Representation of
Patient load
Cumulative Number of Patients on ART - 2006
0
200
400
600
800
1000
1200
1400
1600
CumulativeNumber
January 920 1392 245
February 972 1456 262
March 1010 1517 280
Male Female Children
Accomplishments
 Capacity building
• Internal - Health worker training in CC (or
aspects of CC) ART, HBC, CVCT, VCT,
DTC, Adherence Counselling .
• External – Technical guidance and
supervision to network partners - over 20
VCT / CCC service providers.
• Training of staff from over 10 other large
institutions.
• Development and revision of training
curricula.
Accomplishments
 Adherence Monitoring and evaluation.
Through;
• Lab;
• Follow up – Defaulter tracing. Client assessment;
• Data Forms.
 Enhanced quality of Care. Has been possible
through;
• Development of Standard Operating Procedures &
documentation incl. Client Interviews.
• Training – CME’s ;
• Staff to do ongoing M & E , Quality Assurance and
supervision.
Accomplishments
 MIS and IT Services to enhance data
collection, data storage, ease drug
dispensing and Lab reporting.
 Provision of DTC to inpatients.
KNH CCC SERVICES
Referrals for
Social and legal
services, wills,
inheritance
Peer support,
PTC, group
therapy
•Spiritual services
Homes, community
services, hospices
Medical and
nursing care
•OIs
•ARVs
•Palliation
Psychological
support
•Follow-up
counselling
•Adherence
Socioeconomic
support
•Microcredit
•Nutrition
•OVC
Comprehensive
Care for HIV
Challenges
 High demand for service
 Lack of adequate Human Resource
to match demand – incl. Child &
Adolescent counsellors and care
providers.
 System challenges
• Supplies , complexity of procedures:
Multiple Programmes = different reporting
needs / objectives.
• Staff Attitudes
51
64
76
91
86
116
141
159
0
20
40
60
80
100
120
140
160
No.ofClients
2nd
Quarter
2004
3rd
Quarter
2004
4th
Quarter
2004
1st
Quarter
2005
2nd
Quarter
2005
3rd
Quarter
2005
4th
Quarter
2005
1st
Quarter
2006
Quarter
Average No. of clients per Day
Average per day
Challenges
 Inadequate networking to ensure optimal
utilisation of resources
• Both internal and external networking (with CBO,
NGO, FBOs, Youth Groups)
 Provision of “Comprehensive Care” that is
not limited to only ARV provision.
 Scaling up Home Based Care.
 Operationalising SOPs in CC
Challenges
 Monitoring and evaluation;
• of success of treatment, programme
performance.
• of Patient Transfers in / transfers out
 Provision of CC to children and
adolescents – have special needs.
Challenges
 Operationalising MIS and IT for clinical
services.
 Though cost of drugs is low, cost of
diagnosis, CD4, VL, Biochemistry,
Haematology e.t.c remains high.
• Harmonizing data collection (e.g. for
different operational researches)
• Use of gathered information to guide
decisions.
Lessons Learned
 There is a high demand for quality
Comprehensive Care
 A multidisciplinary team is necessary for the
CCC concept to be effective.
 Networking is essential because not all client
needs can be met at one location.
 Clear concise guidelines and standard
operating procedures are useful in
standardising the quality of CC especially
where it is provided by many people.
 Counseling is the foundation of consistent
adherence to therapy and to successful
comprehensive care.
Lessons learned
 The PATIENT must remain the primary
focus
 A continuum of care needs to be
maintained between different members
of the multidisciplinary team for CC to
be successful.
 Consistent data collection is necessary
to enable monitoring and evaluation.
Way Forward
 Coordinated and joint outreach and
defaulter tracing needs to be strengthened
to improve adherence to treatment.
 Provision of technical support and guidance
to new centers beginning CC is important
– To learn from past mistakes and gain
from
experiences learnt.
WAY FORWARD
 Enhanced Psychosocial Care and support at
the community level must be developed
further.
 Continued provision of quality service to
clients and ensuring of the same through –
M&E, SOPs must be implimented
 Inclusion of other domains of
Comprehensive Care remains a challenge-
• Counselling of family and care givers
• Legal issues of discrimination, unfair dismissal.
• Reproductive health issues of HIV couples etc
Way Forward
 Better linkage between CCC and in-
patient services to ensure continuity of
care when these patients are admitted.
 Continued staff development to keep
abreast with new technology and
methodologies in care provision.
ACKNOWLEDGEMENTS
 KNH MANAGEMENT
 USAID/FHI
 CDC/UON/ACTS
 MSH
 MEDS/PHARMACCESS
 KNH CCC STAFF
Thank you.

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Accomplishments ppt.pps

  • 1. The Practical Side of Comprehensive Care: ACCOMPLISHMENTS, CHALLENGES AND LESSONS LEARNED AT KNH Dr. David Bukusi Kenyatta National Hospital VCT and Comprehensive Care Centers
  • 2. Comprehensive care  Medical and nursing care • OIs/prophylaxis TB, PCP • ARVs • Palliative care  Psychological support • Adherence counselling • Supportive counselling • Post-Test counselling • Post-Disclosure Group Therapy • Follow-up counselling  PEP  Laboratory support  Youth Friendly services  Nutritional support  Social worker support tracing defaulters, family support  Spiritual support  Referrals for medico-legal services  Networking  CCC network  Post-test support groups  Children’s group therapy/play Components of Comprehensive care
  • 3. COMPREHENSIVE CARE COMPREHENSIVE CARE IS ABOUT THE PATIENT The PATIENT may be able to access several services, preferably under one roof, or service provision area as opposed to having services available and having the patient try to track them down
  • 4. Introduction  HIV/AIDS is not just an infection, it is an emotional, psychological, physical, spiritual and social problem. Thus it requires a multi disciplinary and multi-sectoral approach.  The KNH CCC centre was opened in December 2002.  Initially CC services were provided at Patient Support Centre but this has recently moved to Rahimtulla Wing of KNH.  KNH CCC is one of the largest in the country.
  • 5. PICTURE OF KNH CCC  Picture to be included later
  • 6. KNH CCC PARTNERSHIPS  Comprehensive care is about partnerships KNH CCC Partnerships  USAID (PEPFAR) through FHI  CDC/UON (PEPFAR) through ACTS  MSH (PEPFAR)
  • 7. Accomplishments  Establishment of the CCC which provides; • Physical care: ART provision, OI diagnosis and treatment, prophylaxis, Laboratory services (CD4, VL, Biochemistry). • Emotional care: Pre and post test counseling, anxiety relief, support groups (PTC), ongoing care and counselling. • Spiritual care: In collaboration with the KNH Chaplaincy. • Social care: community support / outreach, nutritional support, financial dependence/capabilities, networking.
  • 8. Accomplishments  Number of Patients on Comprehensive Care. ( 170 clients per day, including Children) • No. on ARV’s, OI Prophylaxis, PEP • No. / % on Nutritional support / Nutritional Counselling  Psychosocial support – counselling, social workers • To inpatients • Outpatients – at CCC, Post Test Clubs.
  • 9. Graphical Representation of Patient load Cumulative Number of Patients on ART - 2006 0 200 400 600 800 1000 1200 1400 1600 CumulativeNumber January 920 1392 245 February 972 1456 262 March 1010 1517 280 Male Female Children
  • 10. Accomplishments  Capacity building • Internal - Health worker training in CC (or aspects of CC) ART, HBC, CVCT, VCT, DTC, Adherence Counselling . • External – Technical guidance and supervision to network partners - over 20 VCT / CCC service providers. • Training of staff from over 10 other large institutions. • Development and revision of training curricula.
  • 11. Accomplishments  Adherence Monitoring and evaluation. Through; • Lab; • Follow up – Defaulter tracing. Client assessment; • Data Forms.  Enhanced quality of Care. Has been possible through; • Development of Standard Operating Procedures & documentation incl. Client Interviews. • Training – CME’s ; • Staff to do ongoing M & E , Quality Assurance and supervision.
  • 12. Accomplishments  MIS and IT Services to enhance data collection, data storage, ease drug dispensing and Lab reporting.  Provision of DTC to inpatients.
  • 13. KNH CCC SERVICES Referrals for Social and legal services, wills, inheritance Peer support, PTC, group therapy •Spiritual services Homes, community services, hospices Medical and nursing care •OIs •ARVs •Palliation Psychological support •Follow-up counselling •Adherence Socioeconomic support •Microcredit •Nutrition •OVC Comprehensive Care for HIV
  • 14. Challenges  High demand for service  Lack of adequate Human Resource to match demand – incl. Child & Adolescent counsellors and care providers.  System challenges • Supplies , complexity of procedures: Multiple Programmes = different reporting needs / objectives. • Staff Attitudes 51 64 76 91 86 116 141 159 0 20 40 60 80 100 120 140 160 No.ofClients 2nd Quarter 2004 3rd Quarter 2004 4th Quarter 2004 1st Quarter 2005 2nd Quarter 2005 3rd Quarter 2005 4th Quarter 2005 1st Quarter 2006 Quarter Average No. of clients per Day Average per day
  • 15. Challenges  Inadequate networking to ensure optimal utilisation of resources • Both internal and external networking (with CBO, NGO, FBOs, Youth Groups)  Provision of “Comprehensive Care” that is not limited to only ARV provision.  Scaling up Home Based Care.  Operationalising SOPs in CC
  • 16. Challenges  Monitoring and evaluation; • of success of treatment, programme performance. • of Patient Transfers in / transfers out  Provision of CC to children and adolescents – have special needs.
  • 17. Challenges  Operationalising MIS and IT for clinical services.  Though cost of drugs is low, cost of diagnosis, CD4, VL, Biochemistry, Haematology e.t.c remains high. • Harmonizing data collection (e.g. for different operational researches) • Use of gathered information to guide decisions.
  • 18. Lessons Learned  There is a high demand for quality Comprehensive Care  A multidisciplinary team is necessary for the CCC concept to be effective.  Networking is essential because not all client needs can be met at one location.  Clear concise guidelines and standard operating procedures are useful in standardising the quality of CC especially where it is provided by many people.  Counseling is the foundation of consistent adherence to therapy and to successful comprehensive care.
  • 19. Lessons learned  The PATIENT must remain the primary focus  A continuum of care needs to be maintained between different members of the multidisciplinary team for CC to be successful.  Consistent data collection is necessary to enable monitoring and evaluation.
  • 20. Way Forward  Coordinated and joint outreach and defaulter tracing needs to be strengthened to improve adherence to treatment.  Provision of technical support and guidance to new centers beginning CC is important – To learn from past mistakes and gain from experiences learnt.
  • 21. WAY FORWARD  Enhanced Psychosocial Care and support at the community level must be developed further.  Continued provision of quality service to clients and ensuring of the same through – M&E, SOPs must be implimented  Inclusion of other domains of Comprehensive Care remains a challenge- • Counselling of family and care givers • Legal issues of discrimination, unfair dismissal. • Reproductive health issues of HIV couples etc
  • 22. Way Forward  Better linkage between CCC and in- patient services to ensure continuity of care when these patients are admitted.  Continued staff development to keep abreast with new technology and methodologies in care provision.
  • 23. ACKNOWLEDGEMENTS  KNH MANAGEMENT  USAID/FHI  CDC/UON/ACTS  MSH  MEDS/PHARMACCESS  KNH CCC STAFF