1. Joubert Syndrome

2.  Geomar seems to be
developmentally
delay in all areas of
development. This
can affect his
emotional
development, Geomar
may develop low self-
esteem. www.specialeducationteacher.me: Joubert Syndrome.
(n.d.).www.specialeducationteacher.me. Retrieved April
3, 2013, from

3.  Yesterday, his mom
was told that Geomar
has Joubert
Syndrome.
 She asked you, What
do I do now?” and
begins to weep. What
I can do for Geomar
mother is advise her
to talk to her doctor
 Mother Support Groups - Parent Child Center NYC.
(n.d.). Parent Child Center NYC. Retrieved April
3, 2013, from
and support her with
http://www.theparentchildcenter.org/mother-support-
groups
agencies

4.  Leader), D. T. (n.d.). I run so someday she may run with me... | causes.com.Causes.com: Build Awareness, Fundraise, and
Advocate for Change | causes.com. Retrieved April 3, 2013, from http://www.causes.com/actions/1679467-i-run-so-
someday-she-may-run-with-me

5.  Joubert syndrome is a disorder that affects many
parts of the body. The signs and symptoms of
this condition vary among affected
What is Joubert individuals, even among members of the same
Syndrome family.
 The hallmark feature of Joubert syndrome is a
brain abnormality called the molar tooth
sign, which can be seen on brain imaging
studies such as magnetic resonance imaging
(MRI). This sign results from the abnormal
development of regions near the back of the
brain called the cerebellar vermis and the
brainstem. The molar tooth sign got its name
because the characteristic brain abnormalities
resemble the cross-section of a molar tooth
when seen on an MRI.
 Most infants with Joubert syndrome have weak
muscle tone (hypotonia) in infancy, which
evolves into difficulty coordinating movements
(ataxia) in early childhood. Other characteristic
features of the condition include episodes of
unusually fast or slow breathing in infancy and
abnormal eye movements. Most affected
individuals have delayed development and
intellectual disability, which range from mild to
severe. Distinctive facial features are also
characteristic of Joubert syndrome; these include
a broad forehead, arched eyebrows, droopy
eyelids (ptosis), widely spaced eyes, low-set
ears, and a triangle-shaped mouth.
 Joubert syndrome - Genetics Home Reference. (n.d.). Genetics Home Reference - Your guide to understanding genetic conditions.
Retrieved April 3, 2013, from http://ghr.nlm.nih.gov/condition/joubert-syndrome
 Joubert Syndrome - UW Hindbrain Malformation Research Program. (n.d.).UW Departments Web Server. Retrieved April
3, 2013, from http://depts.washington.edu/joubert/jouber

6. http://www.youtube.com/w
atch?v=Hiz6GOYiwMk
I had found a touching
YouTube clip on a mother
who is supportive of her child
who as joubert syndrome
Be Inspired by a girl with Joubert's Syndrome -
YouTube. (n.d.). YouTube. Retrieved April
3, 2013, from
http://www.youtube.com/watch?v=Hiz6GOYiw
Mk

7.  Geomar would need some changes to his
environment know that we know he as joubert
syndrome.
 that way he would be in an inclusive
environment that would let him reach his full
potential

8. Bracilla
“This device is a tactile
writing system used by
children who are blind
or visually impaired. It
is a series of raised dots
on that can be read with
feel of their
fingers.”(Inclusion of
children with special
needs –reading
package)this should be
good for Geomar in his
environment because
with children joubert
syndrome may have
vision impairment.

9. Standing Frame
“It is an assistive
technology that can be used
by a child who relies on a
wheelchair for mobility. It
provides support for
children in the standing
position allowing children
to interact at eye level with
others. (Inclusion of
children with special needs
–reading package) This will
be good for Goemar
because children with
joubert syndrome to loose
muscles tone . This way he
may feel included when
engaging with other
children in activities.”

10.  “In children Joubert they may
loose their vision so it appears
that labelling and depending is
a good change to the
environment”
 “You may have to have enhance
picture is needed”
 “You can have routines in
visuals that way Geomar knows
what to expect through out the
day.” (Inclusion of children with
special needs –reading package)
Taking on Third: Classroom Updates. (n.d.). Taking on Third. Retrieved April 3, 2013, from
http://takingonthird.blogspot.ca/2011/08/classroom-updates.html

11.  “ you should be consistent with
daily routines”
 “Create a schedule that the
children can understand”
 “ let them know that your there
to support them at anytime”
 “this would be good for
Geomar because children learn
best through repartition”
 ">.

12.  “you should have
before and then chart
with your daily
routines that way
Geomar know what to
expect through out his
day” (Inclusion of
children with special
needs –reading
package)
Do You Use Visual Schedules? | Applied Behavioral Strategies.
(n.d.). Applied Behavioral Strategies | "You have proven that the
'impossible' can be done…and if you can get a boy that had so many
challenges like eating food – to eat…you sold me. Thank you so much!" ~
A. Stevens, parent of an ABS client. Retrieved April 3, 2013, from
http://appliedbehavioralstrategies.wordpress.com/2011/11/08/do-
you-use-visual-schedules/

14. Zoom text
“I think this would be
appropriate for Geomar
be cause children with
joubert syndrome may
develop vision
impairment . With
zoom text this device
enlarges and enhances
everything on the
computer
screen, making
applications lager, easier
to see and use”.
(Inclusion of children
with special needs –
reading package)

15.  I would make sure the
environment is wheel
chair assailable
 All the furniture is
child size
 The Americans with Disabilities Act and Family Child Care - Tom
Copeland's Taking Care of Business. (n.d.). Tom Copeland's Taking Care of
Business. Retrieved April 3, 2013, from
http://www.tomcopelandblog.com/2012/08/the-americans-with-
disabilities-act-and-family-child-care.html

17.  Descriptions
 “According to reading
package use short simples
phrases to descrribe your
action and the child’s
actions”
 “This seems t be
appropriate for geomar
because he would learn
words to his action”
 “Which can teach
language” (Inclusion of
children with special
needs –reading package)

18. Enhance on Geomar
environment
•“You would make
object bigger just in
case Geomar seems
to have difficulty
picking up small
object this may
make is easier.”
Connect ability –
prompting and
fading notes wks 7

19. Simplifying
activities
•“you would reduce
the number of steps
within activity for
Geomar by
removing pieces or
covering numbers.”
(Inclusion of
children with
special needs –
reading package)
•Connect ability – notes wks 2

20. Prompting and Fading
• “as a teacher I would
use a lot of prompting
and fading with
Geomar. “
• “hand over hand
assistance”
•“Modeling and
demonstration “
• “Gestural”
•“Visual”
•“Positional prompts”
•Connectability –prompting
and fading notes wks 7

21. Making Choices
•“This would provide
Geomar opportunities
for learning names of
objects and the value of
expressing his own
opinion”.

22. Modeling
Modeling will be
appropriate for Geomar
we can get other children
to help each other
because childe appear to
learn best when they see
another child doing
positive activities this
will appear to teacher
Geomar:
• “Socializing skills”
•“ Independence”
• “High self esteem”
Strategies for inclusion-
video notes wks7

23. Collaboration
When working with
parents with children of
special needs according
to Adaptive learning
Environment ) “ be open
to that learning and
expectation of others”
this would be good
support for Geomars
family that way
everyone that around
him will be on the some
page as to what best for
his development.

24. Use positive
reinforcements
“Reinforcements would be
good for Geomar this would
motivate him to keep
expanding on his
development” .
• “ praises”
• “a special activity”
• “music”
•“ toys”
“These can be used as
reinforcements for a child
learning a new skill. This
would help Geomar stay on
track and help him
understand what expected of
him” .
Reading package-
supported inclusion pg 2-3

26. Children family doctor
Address: 4002 Sheppard
E, Scarborough, ON M1S 4R5
Phone:(416) 283-1313
• Dr andrew Chung is a
family doctor
• this would be good for
Geomar because he would be
able to get his regular check up
that he would need
• “Dr Andrew Chung serves
for children from birth until
adulthood.”
•“ you would have to book by
appointment “

27.  “provides information on healthy growth and
development of children, rescores , and
supports and services in the community”
 this would be good for Gemar because he has
Public health Nurses joubert syndrome this my affect his breathing
and his family would need to call someone in
case of emergencies.
 “Toronto Public Health (TPH) reports to the
Board of Health and is responsible for the health
and well being of all 2.7 million residents. TPH
has focused on protecting and promoting the
health of Toronto residents since 1883 by:” For
general information about Toronto
Public Health programs and services:
 Phone: 3-1-1
 24 Hours a day
 To speak to a health professional for
free, confidential information and advice; or to
register for public health programs, such as food
handler training and pre-natal classes:
 Phone: 416-338-7600,
for people who are deaf, deafened or hard of
hearing call 416-392-0658 for TTY
 8:30am – 4:30pm Monday to Friday
 publichealth@toronto.ca
 http://www.toronto.ca/health/contactus/in

28. About Sick kids
Hospital.
“The Hospital for Sick Children
(SickKids), affiliated with the
University of Toronto, is Canada's
most research-intensive hospital
and the largest centre dedicated to
improving children's health in the
country. As innovators in child
health, SickKids improves the
health of children by integrating
care, research and teaching.”
“With a staff that includes
professionals from all disciplines
of health care and
research, SickKids provides the
best in complex and specialized
care by creating scientific and
clinical advancements, sharing
knowledge and expertise and
championing the development of
an accessible, comprehensive and
sustainable child health system. ”

29. Sick kids hospital
The Hospital for Sick Children
555 University Avenue
Toronto, Ontario
Canada
M5G 1X8
General inquiries: 416-813-1500
Patient information/locating: 416-813-
6621
Ontario Poison Centre: 416-813-5900
Telehealth Ontario info line: 1-866-797-
0000
• there are two ways yo refer a client
1.” electronic Child Health Network
(eCHN) e-Referral.
• 2. The original Ambulatory Referral
Management system (ARMs)”
•“ they have an emergency room “
• “sick kids population they serve is for
kids”
•http://www.sickkids.ca/search/search.a
spx?activePillar=hospital

30. Delton Associates
Our counselling services assist not
only your child but also you as
parents and other family members.
When one member of a family is
experiencing difficulties, it often
affects all members. Involving all
members of the family and
bringing together their full power
and support can strengthen the
ability resolve the troubling issues
in a mutually respectful and
cooperative manner.
and we can discuss an appropriate
referral to meet your needs
For inquires or appointments feel
free to call our Client Service Team
toll free: 1.888.245.5516
Fax us: 519.787.0773
The population they serve is
everyone
http://www.drdandalton.com/ind
ex.cfm?page=OurPurpose

31. Vision
Institution
16 York Mills Road vision
institution located at York
Mills Centre
16 York Mills Road
Suite 110 (Ground Floor)
Toronto, ON M2P 2E5
Canada Tel: (416) 224-2273
Fax: (416) 224-9234
Send us an email
“They serve people of all ages
Regular and specialized eye care
services are provided to the general
public and to persons with special
needs.”
“Vision Institute and
an appointment can be made by
faxing a referral letter to the
Institute
They provide emergency care and
open Monday- Friday and time
fluctuates”
http://www.visioninstitute.optom
etry.net/PracticeTemplates/index.

32. 
“This book has been created for parents who have decided to make education and
research an integral part of the treatment process.”

“In this book doctors, caregivers and other health professionals, it tells parents
where and how to look for information covering virtually all topics related to
joubert syndrome”

http://www.amazon.com/Official-Parents-Sourcebook-Joubert-Syndrome/dp/0497009889

33.  image of child with bracilla - Steinman., LeJeune, B. A., Kimbrough, B. J., & T.;, B. (n.d.). Developmental Stages of
Reading Processes in Children Who Are Blind and Sighted | Paths to Literacy. Paths to Literacy | for students who are blind
or visually impaired. Retrieved April 3, 2013, from http://www.pathstoliteracy.org/braille-emergent-literacy-general-
literacy/content/research/developmental-stages-reading-processes
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make your journey with children easier, happier and more fun.... Retrieved April 3, 2013, from http://mylittlebit
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m=1&ie=UTF-8&tbm=isch&source=og&sa=N&tab=wi&ei=1s9bUcSuJamY2wWz-
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oIA&bav=on.2,or.r_qf.&bvm=bv.44697112,d.b2I&fp=b8c838382ce5b348&biw=1366&bih=667&imgrc=PtIWA_BRYbC4MM%3A%3Bs6
8wHX_vq4VW2M%3Bhttp%253A%252F%252Ffeatherschildcare.co.nz%252Fwp-
content%252Fuploads%252F2011%252F09%252F7bmQkwOfxFpetTSL2cnODbBT1pTp5j5SjM6pBTXrgtAxtM5Z9Z67eL7H8mYc6Xcbf.
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