1. Advocating for Change
Presenters:
• Gary Mendell, MBA, Founder and CEO, Shatterproof
• Kim Manlove, MS, AB, Director, Indiana Addictions
Issues Coalition
Advocacy Track
Moderator: Wendy Spencer, CEO, Corporation
for National and Community Service
2. Disclosures
Kim Manlove, MS, AB; Gary Mendell, MBA; and
Wendy Spencer have disclosed no relevant, real,
or apparent personal or professional financial
relationships with proprietary entities that
produce healthcare goods and services.
3. Disclosures
• All planners/managers hereby state that they or their
spouse/life partner do not have any financial
relationships or relationships to products or devices
with any commercial interest related to the content of
this activity of any amount during the past 12 months.
• The following planners/managers have the following to
disclose:
– John J. Dreyzehner, MD, MPH, FACOEM – Ownership
interest: Starfish Health (spouse)
– Robert DuPont – Employment: Bensinger, DuPont &
Associates-Prescription Drug Research Center
4. Learning Objectives
1. Advocate for state laws that mandate usage
of state PDMPs.
2. Explain strategies to influence passage of
legislation.
3. Describe how people in recovery from
addiction can become advocates through
recovery messaging training.
4. Provide accurate and appropriate counsel as
part of the treatment team.
8. The Bigger Solutions
Type Population Stage of
Intervention
Solutions
Those Not Addicted 320MM
Future Generations
Prevention PDMP
Prescriber Guidelines
Those with an OUD 3MM Treatment Prescriber Guidelines
MAT
PDMP
Those with an OUD 3MM Rescue Good Samaritan
Naloxone
10. Legislative Accomplishments
•Wisconsin (Mandating use of their PDMP, February ‘16)
•Connecticut (Expanded access to Naloxone, Mandating use of PDMP
and Mandating prescriber education, June ’15)
•Florida (Expanded access to Naloxone, May ’15)
•Kentucky (Expanded access to Naloxone and No-Charge Good
Samaritan Protection, March ’15)
•West Virginia (Expanded Naloxone, February ’15)
•Pennsylvania (Expanded access to Naloxone, September ‘14)
•Delaware (Expanded access to Naloxone, August ‘14)
11. Today’s Focus: PDMP’s
• State-run databases that collect data regarding controlled
substance prescriptions
• Doctors review data prior to writing Rx to prevent lethal
combinations
• PDMP’s key state-level interventions:
– improve opioid prescribing
– inform clinical practice
– protect patients at risk
12. Key Legislative Components
• Query Prior to Prescribing Schedule II, II & IV Drugs
• Dispensers Submit Data within 24 hours of dispensing
• Authorized Recipients
• Delegates
• Proactive Analysis and Issuance of Unsolicited Reports
• De-Identified Information
• Interstate Sharing
• Evaluation
• Data as Early Warning System for Communities
14. 2016 Advocacy Resources
• Quarterback Legislation Firm –
• State Based Lobbyist – Marc Burgat
• State Based PR Firm –
• Shatterproof Ambassadors, Influencers
• Fact Sheet, Case Study
15. CA Key Legislative Components
• Query Prior to Prescribing Schedule II, II & IV Drugs
• Dispensers Submit Data within 24 hours of dispensing
• Authorized Recipients
• Delegates
• Proactive Analysis and Issuance of Unsolicited Reports
• De-Identified Information
• Interstate Sharing
• Evaluation
• Data as Early Warning System for Communities
17. _
California had the largest number of
overdose deaths of any state in the
nation in 2014, 4,395. (CDC)California
had the largest number of
overdose deaths of any state in
the nation in 2014, 4,395. (CDC)
18. In states without a legislative mandate
to check the PDMP before prescribing
a controlled substance, ~86% of
prescriptions are written for an opioid
without ever checking the patient’s
prescription history.
(Brandeis University PDMP Center of
Excellence)
19. States with mandatory querying see lower
levels of opioid prescribing. In 2013, several
months after rolling out its new PDMP
software, New York passed legislation
consistent with the recommendations in the
box below. In the first year, doctor shopping
decreased 75%, the number of doses of
opioids dispensed decreased by 10% and the
number of buprenorphine prescriptions (a
drug used to treat opioid addiction) increased
by 15%. (See New York Case Study) Similar
results have been achieved in several other
states. (Brandeis University PDMP Center of
Excellence).
20. Progress in California
Senator Lara (D-Los Angeles) has taken leadership of this
issue and introduced legislation that would require
physician PDMP reporting.
The bill SB482:
• Mandates that the prescriber consults CURES
before prescribing a Schedule II or III controlled
substance for the first time and again annually if the
substance remains part of the treatment.
• Stipulates that failure to comply is subject to
disciplinary action by the appropriate licensing Board.
We recommend this bill should also include these
requirements:
• Expand mandatory query requirements to include
Schedule II through IV substances.
• Require prescribers to query the system upon
every prescription rather than annually.
• Require pharmacists to submit prescription
information to the PDMP within 24 hours of dispensing
(currently 7 days in CA).
• Publish findings on statewide opioid overdose
data to ascertain ways to further reduce overdoses.
26. 26
William Cope Moyers of
Hazelden Treatment CenterWhy is it important
to share stories of
Recovery
27. 27
Our Goals • Learning about messaging
• Learning how to tell your
recovery story to your friends
and family
• Learning how to use recovery
messages in all parts of your
life, including representing the
organized recovery
community in the media and
other public places
29. 29
Faces &
Voices of
Recovery
• Organizing and mobilizing the millions of
Americans in long-term recovery from
alcohol and other drug addiction, our
families, friends, and allies, to speak with
one voice.
• Changing public perceptions of recovery
• Promoting effective public policy in
Washington, D.C. and in all 50 states
• Keeping a focus on the fact that recovery
works and is making life better for over 20
million Americans.
30. 30
Faces &
Voices of
Recovery
• Raises the recovery movement’s
national profile
• Supports local recovery advocacy
and recovery community
organizations
It is our mission to bring the
power and proof of recovery
to everyone in America!
31. Many
Pathways to
Recovery
• Mutual support/mutual assistance
• Professional treatment
• Faith/religious
• Medication-assisted
• Criminal justice/Drug Court
• “Natural” or on your own
• And many more
32. 32
Message of
Hope
“Many of us have carried a message of
hope on a one-to-one basis; this new
recovery movement calls upon us to
carry that message of hope to whole
communities and the whole culture. It is
time we stepped forward to shape this
history with our stories, our time and our
talents.”
-William White Author and Recovery Advocate
33. 33
What is a
Message?
• An exchange of information using
words
• The most important information
you want your listener to hear
It is crucial that you know what
you want to say and leave in
people’s minds.
34. 34
Grounded in
Research
Recovery Community
• 88% believe it is very important for
the American public to see that
thousands get well every year
General Public
• A majority of Americans (63%)
have been affected by addiction
• A majority (67%) believe that there
is a stigma toward people in
recovery
• A majority (74%) say that attitudes
& policies must change
35. 35
Who are You
Talking to?
• Family
• Friends
• Neighbors
• Co-workers
• Media
• Public officials
36. 36
Your
Frame
of Mind
• Speak with one voice
• Make it personal; it
adds credibility and
breaks down
misperceptions
• Talk about your
recovery, not your
addiction – your
recovery story
37. 37
12-Step
Anonymity • These messages
don’t violate the
traditions of your
12-step fellowship
• Help us educate
others in 12-step
groups about their
right to speak out!
38. 38
Core
Message The Problem:
• Need more opportunities for
people to achieve long-term
recovery
• Need more effective treatment
and recovery support services
• There are discriminatory policies
• The public and policymakers
don’t know about the reality of
recovery
39. 39
Core
Message The Solution:
• A strong national recovery
movement organized at the
local, state and federal
levels
• Putting a face and a voice
on recovery to break down
misperceptions that will
change attitudes (stigma)
• Advocating to change
policies (discrimination)
40. 40
Putting a Face
& a Voice on
Recovery:
Message
for a Person
in Recovery
I’m in long-term recovery which
means...
• Have not used alcohol or other
drugs for x number years
• Long-term recovery has given me
new hope and stability
• I’ve been able to create a better
life for myself, my family and my
community
• I’m speaking out so that others
have the opportunity to achieve
long-term recovery
41. 41
Putting a
Face & a
Voice on
Recovery:
Message
for a
Family
Member
I and my family are in long-term
recovery, which means …
• (My son/daughter/husband/wife)
hasn’t used alcohol or other drugs
for x years
• We’ve become healthier together,
enjoying family life in our home
• Long-term recovery has given me
and my family new purpose and
hope for the future
• I want to make it possible for others
to do the same
42. 42
What’s Not
in the
Message
and Why
• I’m an addict (or alcoholic)
• I’m a recovering addict (or
alcoholic)
• Addiction is a disease
• Information about 12-step
programs, for examples
membership in AA or NA or Al-
Anon
• A “definition” of recovery
43. 43
Words
Have
Power
“Words have immense power to wound or
heal…The right words catalyze personal
transformation and offer invitations to
citizenship and community service. The
wrong words stigmatize and dis-empower.”
-William White Author
and Recovery Advocate
44. 44
Thinking
about
Language
Words/Concepts We Need to Abandon
Abuse
Self-Help
Untreated Alcoholics/Untreated Addicts
The Language of Self-Pity
Words/Concepts to Discuss and Debate
Treatment Works
Consumer
Stigma, Enable, Relapse
Recovering/Recovered
45. 45
Thinking
about
Language
Words/Concepts We Need to Elevate
and Celebrate
•Recovery, Recovery Community/
Communities of Recovery
•Advocacy, Sustainability
•Recovery Support Services/
Recovery Coach
•Recovery-Oriented Systems of Care
•Living Proof
•Story
•Responsibility, Gratitude, Service
46. 46
Faces &
Voices
Message
Goals
• Expand opportunities for recovery
• Mobilize and organize the recovery
community to advocate for own rights
and needs
• Break down discriminatory barriers
• Build our national recovery advocacy
movement
• Achieve a just response to addiction
as a health crisis
47. 47
When can I
Use the
Message?
• When talking to your family,
friends and neighbors
• When writing (articles,
newsletters, blogging, etc.)
• When talking to elected officials,
public policy makers and others in
government
• When being interviewed or
speaking in public
• ALWAYS!
48. 48
Audience
• The reporter is NOT your audience – it
is the viewer, listener or reader
• Think about talking to someone you
know
Never lose sight of who you are trying to
reach
49. 49
Techniques:
Working with
a Reporter
and Staying
on Message
If you get a question you don’t want to
answer, change the question by using a
transitional or “pivoting” phrase such as:
• “Another thing to remember…”
• “That’s not my area of expertise, but what
I can tell you is…”
• “Another way of thinking about this is…”
• “Thank you for asking…”
• “The most important thing to remember…”
50. 50
Techniques:
Staying on
Message
Q. “Some people believe addiction is a
personal or moral weakness. How
do you respond?”
A. “More important than addiction…is
recovery. The fact is that treatment
and recovery have proven to work
for millions of Americans like me.”
51. 51
Techniques:
Staying on
Message
Q. “What was it like to be an addict?”
“What I can tell you about is recovery.
As a person in long-term recovery,
I’ve been able to create a better life
for myself and my family. Over the
last 15 years, I’ve bought a house,
have a great job and am a parent to
three wonderful kids.”
52. 52
Recovery
Messaging
Resources
• Recovery Messaging from Faces &
Voices of Recovery
• Recovery Messaging Questions &
Answers
• The Tip Sheet for Media Interviews
• Our Stories Have Power DVD
featuring interviews by people in
recovery, family members and friends
53. 53
Summary • Use Faces & Voices recovery
messaging to tell your recovery
story
• Make it personal
• Use your message in all parts of
your life with
Family and friends
Neighbors and co-workers
Media and public officials
Always!
54. 54
Our Goals
• Learn tips to prepare for interviews
• Learn techniques for working with
reporters
• Learn tips on how to look, act and
speak your best
55. 55
Preparation
• Decide if this interview makes
sense for you and your
organization
• Determine your primary goal in
participating in the interview
• Role play the interview and
rehearse hard questions
• Visualize your audience and
speak to them as though they
were in the room
• Assume that everything you
say will be recorded or written
down
56. 56
Prepare for
Interviews:
Know Your
Message
• Know in advance which points
you want to get across – work
them into your responses
• Focus on your key points, not
the interviewer’s points
57. 57
Prepare for
Interviews:
Deliver Your
Message
• Use colorful language such as
metaphors or analogies that help to
make your point to increase the
likelihood of being quoted
Example: “Recovery helped
me pick up the shattered
pieces of my life.”
• Use anecdotes from your work, your
life and your community to support
your points
• Speak in lay person’s terms – if you
must use jargon or technical
language, explain it
58. 58
Why is it
important to
share stories
of Recovery
Actress and Comedienne
Kristen Johnston
59. 59
Prepare for
Interviews:
Facts You
Can Use
• Tens of thousands of Americans
recover from addiction every year
• Over 20 million Americans are in
long-term recovery from addiction
• Untreated addiction costs the US
over $450 billion every year
60. 60
Prepare for
Interviews:
Facts You
Can Use
• 75% of people with alcohol or other
drug problems are employed.
• Jails and prisons are over crowded
with a majority of inmates having
committed alcohol or drug-related
crimes.
• More than eight out of every ten
Americans who need services for
addiction to alcohol and other drugs
are not receiving the help they need
to get well.
61. 61
Techniques:
Working with
a Reporter
and Staying
on Message
If you get a question you don’t want
to answer, change the question by
using a transitional or “pivoting”
phrase such as:
• “Another thing to remember…”
• “That’s not my area of expertise,
but what I can tell you is…”
• “Another way of thinking about
this is…”
• “Thank you for asking…”
• “The most important thing to
remember…”
62. 62
Techniques:
Staying on
Message
Q. “Some people believe addiction
is a personal or moral
weakness. How do you
respond?”
“More important than
addiction…is recovery. The fact
is that just like me, over 20
million Americans are in long-
term recovery from addiction.
63. 63
Techniques:
Staying on
Message
Q. “What was it like to be an
addict?”
“What I can tell you about is
recovery. As a person in long-
term recovery, I’ve been able to
create a better life for myself
and my family. Over the last 15
years, I’ve bought a house,
have a great job and am a
parent to three wonderful kids.”
64. 64
Techniques:
Speaking
Effectively
• Be brief – responses to
questions should be short; 18-
30 second sound bites.
• THE HARD TRUTH: IF IT
ISN’T SHORT IT DOESN’T
GET USED
“For the first time, the recovery
community is speaking in one
voice to change the public
perception of recovery and to
promote effective public
policy.”
65. 65
Keys to
Successful
Television
Interviews
• Be prepared to make only one point
• Talk as though you were talking with
a friend
• Expressions
• Overemphasize positive
expressions (negative
characteristics are exaggerated
on TV)
• SMILE
66. 66
Pre-Interview
• Make sure you have water
• Introduce yourself to the
technicians
• Chat with the interviewer before it
starts
• Make clear what you want to
cover
• Get a sense of what she wants
to discuss
67. 67
Posture and
Eye Contact
• Sit as far back in your chair as
possible
• Lean slightly forward
• Maintain eye contact with the
interviewer
68. 68
Appearance
Men
• Darker suits are best
• Red, maroon or gray ties
without distracting patterns
are best
• Socks should be same or
darker color than suit
69. 69
Appearance
Women
• Dress in neutrals and avoid large
patterns
• Don’t wear big jewelry
• Don’t wear too much or too bright
lipstick
70. 70
Keys to
Successful
Radio
Interviews
• Keep your answers short
Generally only one or two sound
bites will be used
• If it’s a phone interview, stand up
• Be expressive and animated
• Speak clearly and at a moderate
pace
71. 71
Keys to
Successful
Print
Interviews
• While often longer, use only a small
portion of what you say gets used
• In the longer format, it’s easier to
get off track
• Remember your key message and
deliver it
• Flag your key messages by saying
things like “the most important point”
or “what people should really know
is”
72. 72
Keys to
Successful
Print
Interviews
• Don’t let your guard down.
Remember anything you say
can be included in the story
• Hard questions don’t mean that
the reporter has taken a side
• If you are unsure of an answer,
tell the reporter that you will get
back to them
73. 73
Summary
• Prepare for your interview
Know your key messages
Practice
Dress appropriately
• Deliver your key messages
• Think about your audience
Use your voice
Maintain eye contact
• Stay on message
74. 74
Conclusion
• Use Faces & Voices recovery
messaging to tell your recovery story
• Make it personal
• Use your message in all parts of your
life with
Family and friends
Neighbors and co-workers
Media and public officials
Always!
75. 75
Why Is It Important
To Share Our Stories
If I Only Knew How
Important It Is To Put
A Face On Recovery!!
76. 76
Unite to Face Addiction 2015
Rally for Recovery Washington DCAnd once you
have shared
your story-
you will join
thousands of
us who have
United to
Face
Addiction
78. Advocating for Change
Presenters:
• Gary Mendell, MBA, Founder and CEO, Shatterproof
• Kim Manlove, MS, AB, Director, Indiana Addictions
Issues Coalition
Advocacy Track
Moderator: Wendy Spencer, CEO, Corporation
for National and Community Service
Editor's Notes
There are several ways that you can use the materials on this DVD:
1). Watch the video and have a discussion about it.
1). Use the video as a training tool and stop and start as you go along, using the training materials.
2). Use this complete PowerPoint of the Our Stories Have Power Messaging Training. Portions of it appear in the video. We recommend that people giving this training watch the video carefully as well as attend a training if possible. You can add slides about your organization to the presentation.
Getting started:
1). Have everyone in the room introduce themselves and give their name, organization and affiliation to the recovery movement.
2). Trainer introduce him or herself (using the messaging)
3). Review materials in packet (Make packets using the other materials on the DVD and make your own agenda)
4). Ask 2-3 people what they expect to get out of the training
Technical notes:
Before you start the training, put together folders with all of the training materials and distribute them to participants.
The folders should include:
Agenda
Copy of the PowerPoint presentation
Questions and Answers
Tip Sheet
Recovery Messaging
Congressional Quarterly article
Advocacy with Anonymity brochure
Optional materials to include:
Participant directory
Information on your organization
Information on other recovery resources in your community
Have the following hand-outs available to pass out during the training:
Person in recovery worksheet
Family member worksheet
Feedback form for mock interviews
Have the following materials available for yourself:
Trainer Teaching Tips (includes Feedback form)
Interview topics for practice interviews. There are possible topics in the Recovery Messaging Questions and Answers document. You can write something down to hand out when you get to the mock interview section of the training or write something and post it for people to read.
1). Review the goals
2). Talk about your experiences with the training and how transformative it was, using real examples of how you’ve used the messaging in your life; how you used to talk about your recovery and how you talk about it today.
Faces & Voices represents the organized recovery community and we’re going to be talking a lot about the recovery community today.
Who are we talking about?
And as you can see from some of these pictures, the recovery community – people in recovery, family members, friends and allies – is out in force all over the country – as active and visible members of the community.
This training was developed by Faces & Voices of Recovery, our national recovery community organization.
The national recovery movement has grown dramatically over the last 10 years.
Where once it was not acceptable to talk about your recovery in public, today it is.
And Faces & Voices is best know for organizing and mobilizing the recovery community – to get involved in their community and government and help change things
When Faces & Voices of Recovery was founded in 2001, a core principle was and remains that there are many pathways to recovery, just like with other health issues.
There are many ways to get well and Faces & Voices is working to make sure that every person can find the path that will work for them.
Many of you may recognize this man. His name is Bill White and he’s an author and long time advocate of what he calls “the new recovery movement.” We’re going to be referencing some of Bill’s work throughout the day. White issues a challenge that I think is appropriate for all of us …
To step forward to shape this history with our stories, our time and our talents.
And that’s what we’re doing today.
All around us there – we are awash in messages, asking us to buy things, vote for people, go to eat a certain way or make certain lifestyle choices
Ask people to be open-minded as this new recovery messaging unfolds
Technical note:
This training is all about messaging, it’s important to help people understand what a message is at this point in the training.
The research findings were exciting:
1). The recovery community wants to tell its story if it will help more people get well
2). The general public supports efforts to help people with alcohol and drug problems
This messaging can be used in many different circumstances.
Technical note:
Ask people to take out their Advocacy with Anonymity brochure
Discuss the traditions in the flyer; you can read directly from it. Many people aren’t familiar with them and it’s useful to review the material.
Find out if there are any questions.
There’s a reason that these messages were developed. Our society has failed to address alcohol and other drug problems and help people who have yet to find recovery. And here’s what some of those problems are.
That’s why we’re speaking out.
The messaging is about the solution.
Technical note:
You can use examples of advocacy campaigns and/or people telling their recovery story that have changed policy or attitudes. One example is the Wellstone-Domenici Mental Health and Addiction Equity Act – when members of Congress told their recovery stories as part of their advocacy for a new law.
Technical note:
Ask people to take out their Recovery Message memo. The trainer should have one on hand as well. Important to ask people to be open-minded again.
The recovery community is people in recovery, family members, friends and allies. That’s why there’s messaging here for family members.
Technical note:
Refer to the Recovery Messaging memo, where it’s included.
Technical note:
Refer to the Recovery Messaging hand out for more explanation. Read one or two examples and the reason why it’s not in the message.
Technical note:
This next section is about words that are commonly used to talk about people and addiction. It’s a chance to have a discussion if you want to. Since you’re going to be asking participants to develop their own message that will work for them, they can discuss some words that they think work to help them best develop their own message.
ABUSE – substance abuse, alcohol abuse, division of substance abuse – these words reinforce a negative message with the general public and policy makers
Treatment works – A better way of saying this may be that there are effective treatments or treatment worked for me. Faces & Voices and other research has found that for far too many people, treatment hasn’t “worked.” And effective treatment is the first step to long-term recovery.
Technical note:
Pick one word or phrase and discuss that in depth and encourage people to pick up the book and think about it after the training and as they advocate
Technical note:
This is an opportunity to increase participants’ level of confidence about the messaging.
Faces & Voices message goals: These are the goals for our national movement and why we have developed the messages.
When you do this training in your community, you can spend a few minutes thinking first about what your messages goals are.
We’re used to talking to whoever we’re in a room or on the phone with. This is different.
From the earliest age, we’re taught to answer what we’re asked. For people in recovery, we’re often taught to be brutally honest. Staying on message is a technique that everyone can learn.
One of the tools you can use are what are called bridging phrases. It’s a way to help you say what you want to say and stay on message.
Here are some examples. Ask people if they have other ideas for bridging phrases or ones that they’ve heard before.
Refer to page 5 in the Media Tips for Sample Bridging phrases.
Here are some examples of staying on message.
Technical note:
Ask people to take out their Questions and Answers hand out. There are other examples in the hand out.
We’ve used these resources in the training today. When you get home, please take a look at them and use them when you’re preparing for an interview or to give a talk.
Now we’re going to do some interviews using our personal messages.
Technical note:
At this point in the training, you can do mock interviews.
Ask people to pull out their personal messaging worksheet.
Prepare interview topics ahead of time. There are possible topics in the Recovery Messaging Questions and Answers document.
Pair people up for mock interviews, with one person being the reporter and the other person the interviewee.
Distribute Feedback forms to each pair.
Critique/Switch
After everyone’s had a chance to do it; come back as a group and debrief
Technical Note:
Insert the name of the trainer and contact information here.