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It seems that NICE advice for ME patients to use heart rate monitors is often overlooked. This slide share explains why it is important that patients and medical professionals take note of heart rates.
Heart Rate Monitoring
NICE Guideline for ME
Is heart rate monitoring
advice often ignored?
The way I see it.
by Sally Burch - http://sallyjustme.blogspot.co.uk
Graded Exercise Therapy (GET)
- is recommended by NICE
- but patients complain that
symptoms get worse
An ME Association Survey shows:
The ME Association
Unfortunately NICE guidelines are
on the static list
However . . .
there is oneNICE detail that
may helppatients until
guidelines are updated.
Heart Rate Monitors
are recommended by NICE
Yet it seems few medical
professionals suggest HR
monitors to patients.
NICE Guidelines [CG53]
Published date: August 2007
NICE suggests ME patients
of maximumheart rate
Heart Rate monitoring
looks verydifferent onceadheringto
heart rate limits. . .
Calculating Maximum Heart Rate
220 minusage in years*
For me this is
220 – 52 =
168 bpm(beats per minute)
Calculating the ME Exercise Zone
50 – 70% of max HR
Usingmy max HR of 168 bpm
my exercisingrangewill be:
84 - 118 bpm
For Healthy Individuals
50 – 70% of max HR
means a brisk walk or gentle jog
Here are the Exercise Zones:
Exercise zones: Fox and Haskell from here
A doctorI saw early inmy illness told
me to take 3 short briskwalks a day.
Perhaps she was thinkingof the NICE
50 – 70%recommendation. . .
without realisinghowdifferent things
are for ME patients?
I now use a HR monitor
And here are some typical heart rates for me:
Activity Typical HR
as % of my max HR
Writing an email 90 54% (Warm-Up)
Making a hot drink 115 68% (Fat burn)
Walking to bathroom 125 74% (Cardio)
Getting dressed 130 77% (Cardio)
Brushing my teeth 130 77% (Cardio)
Taking a seated shower 140 84% (Hard-core)
Some days are better, some worse, but these
numbers are quite different to those of a healthy
I use a shower stool,
but showeringstill takes my HR above
the 50 – 70%rangerecommended
Yet ask any healthy person if
showering counts as “exercise” and
their answer would be NO!
Perhaps the word
“exercise” is misleading
when used in the context of ME
So what can be done?
“using a heart rate monitor”
So let’s spread the word:
Heart Rate Monitors for ME”
Hopefullythis waypatients can avoid
harmful un-monitoredexercise advice.
It is my opinion:
that ME patients, rather than
needing more exercise
. . . actually need help to adjust
daily activities to stay within
safe heart rate zones.
I also think that NICE guidelines
are now very outdated and
long overdue for review.
Blog Post to accompany this Slide Share:
Heart Rate Monitoring & NICE Guideline for ME
Previous Slide Share written to highlight the problems faced by ME patients:
ME Patients and the problem with NICE advice on exercise
Other Heart Rate monitoring posts on Just ME:
Rhythm+ and Endomondo: HR monitoring for ME Aug 2014
A few notes on using a HR Monitor for Pacing Feb 2014
Other useful posts related to exercise and ME:
Pacing By Numbers by Bruce Campbell
Exercise Testing and Using a Heart Rate Monitor by Jennifer Spotila
Following a comment on my blog, and drawing
also on my own experience, I should mention that
there can be times when heart rate appears
In my experience this does not necessarily mean a
green light to push a bit more. Caution is always
advisable and only tiny changes to intensity or
duration of "exercise" should ever be attempted.