Trillium Bridge: Reinforcing the Bridges and Scaling up EU/US Cooperation on Patient Summary
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Digitization in the emergency Department: the role of patient summaries
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Can patient summaries help in the emergency department?
What are the challenges? What are the opportunities?
How can we overcome barriers?
Can patient summaries help in Health information exchange?
Digitization in the emergency Department: the role of patient summaries
1. Patient Summaries in the
Emergency Department
Catherine Chronaki
Secretary General
HL7 Foundation, Brussels, Belgium
Contact: euoffice@HL7.org
Funded under
H2020-643889
2. 2
HL7 Foundation:
who we are..
HL7 the best and most widely-used
eHealth standards since 1986
HL7 v2, Clinical Document Architecture, HL7 FHIR
19 National Affiliates in Europe (~38 wordwide)
European HL7 foundation established in 2010
European Funded Research Projects
eHGI, Antilope, Semantic Healthnet,
Trillium Bridge, Expand, Trillium-II
PHC34: ASSESS CT, OpenMedicine, eStandards
Annual HL7 in Europe Newsletter
Website: www.HL7.eu
eHealth policy & Research
eHealth stakeholders group; mHealth Guidelines;
ENISA expert group
EFMI council (2012-): eHealth Week
EFMI Board (2016)
HIMSS Europe
SDO Joint Initiative Council
HL7 Vision: A world in which everyone can securely access and use the right health data when and where they need it.
Patient summaries in the Emergency Department
22.March.2018
3. Global Community of Practice
social value
• Bridge patient summary initiatives
Governance
learning resources
mobile Health
Patient
Summaries
22.March.2018 Patient summaries in the Emergency Department
4. • Quality assurance
• Health goals
• Early warnings
Can we use patient summaries to unlock patient
data?
5. 5
Patient summary as
Health data navigator
Think of the Patient summary as a window to a person’s health or dashboard:
Medications, allergies, vaccinations, problems and procedures,
labs, diagnostic imaging, recent or planned encounters, implantable devices
advance directives
“Bring the Power of Platforms to Health Care” using data to drive:
administrative automation, networked knowledge, and resource orchestration [Bush &
Fox, HBR November 2016]
eStandards need to
help build trust
unlock the power of health data
facilitate decision support
navigate the health system
22.March.2018
Patient summaries in the Emergency Department
6. 6
Emergency department as
decision environment
High decision density
Decision fatigue
Throughput pressure
Wide range of illnesses
Diagnostic Uncertaintly
Narrow time windows
Interruptions and
distractions
Shift work/sleep disruption
Shift changes
cognitive decline at the
end of a shift 30%
Diagnostic Error in ED
Radiology 5%
Missed injuries 12%
Cardiovascular 19%
Respiratory 30%
Overall ~16%
Patient summaries in the Emergency Department 22.March.2018
Source: Dr. Pat Croskerry, Emergency London; https://www.youtube.com/watch?v=GFE6D5460oE
It’s not about what we know,
it’s about how we think!
7. 7
International Patient Summary
(IPS) Implementation Guide: Purpose & Scope
Goal: identify the required clinical data, vocabulary
and value sets for an international patient summary.
Scope: “The IPS specification shall focus on a
minimal and non-exhaustive Patient Summary,
which is specialty-agnostic and condition-
independent, but still clinically relevant.”
The primary use case is to provide support for cross-
border or cross-juridictional emergency and
unplanned care:
Cross-jurisdictional patient summaries (through
adaptation/extension for multi-language and realm
scenarios, including translation).
Emergency and unplanned care in any country,
regardless of language.
Value sets based on international vocabularies
that are usable and understandable in any country.
Data and metadata for document-level provenance.
22.March.2018
Patient summaries in the Emergency Department
8. 8
HL7 FHIR
Based on a set of modular
components - “Resources”
Resources refer to each other using URLs
Small discrete units of exchange with
defined behaviour and meaning
Have known identity and behaviour
Extensions permit adding data not part of
core
Resources are combined into
“Profiles” to solve clinical and
administrative problems in a
practical way.
Parties exchanging data define the specific
way they want to use resources and their
relations using Profiles.
Profiles are the framework for defining
services.
22.March.2018
Patient summaries in the Emergency Department
10. 10
Patient Summary Guideline
EU patient summary guideline defines patient summary as the
“minimum set of information needed to assure healthcare coordination and continuity of care”
Emergency or unplanned care refers to
“the range of healthcare services available to people who need medical advice, diagnosis
and/or treatment quickly and unexpectedly”
Types of EHR summaries
Emergency data set
Continuity of care record
Encounter report
Discharge summary
2nd opinion
Clinical patient summary
Disease specific summaries
Around the world many variants of the same basic types of patient summaries
HL7 Consolidated CDA
seven document types, seven of which were consolidated in CCDA
22.March.2018Patient summaries in the Emergency Department
11. 11
eStandards can unlock data
for trust & flow
Today:Massive health data accumulated in silo EHR systems for documentation
Need to move from passive documentation to active use of information and
knowledge creation: activation!
Patient summaries defined at the macro level for cross-border exchange for
emergency or unplanned care at a national level.
Need to address communities and individuals!
Standards and profiles address a predefined exchange of information.
Need flexible use of available content and structure, recognizing national, regional
or local jurisdictions: trust & flow!
Patient summaries in the Emergency Department
22.March.2018
12. 12
Connected Care
and the Patient Experience
22.March.2018Patient summaries in the Emergency Department
http://surescripts.com/connectedpatient/default.html
13. 13
USA: Connected Care
and the Patient Experience
22.March.2018Patient summaries in the Emergency Department
http://surescripts.com/connectedpatient/default.html
14. 14
Triage bots in NHS111
Apps refers the patient to
hospital or recommends next-day
GP appointment
NHS England: alternative
mechanism for integrated urgent
care reduce pressure on the NHS
Dr Chaand Nagpaul, the British
Medical Association GP
committee chairman, was
skeptical: “the app would rely
“slavishly” on algorithms and
could not replace the judgement
of trained clinicians.”
GPs: too risk averse!
22.March.2018Patient summaries in the Emergency Department
NHS111: 15m calls a year, Can AI help?
London Central and West Unscheduled Care
Collaborative (LCW), a GP-led not-for-profit
organization
Babylon offers subscription based remote GP
consultation service 300K users in 2016
But no access to health records!
15. 15
Questions to you..
22.March.2018Patient summaries in the Emergency Department
1. Please can you outline an example clinical decision for which you would most
want to look up an online patient summary in order to make your choice more
accurate or more safe?
2. If you had very rapid access to an online patient summary from the computer
you are using when seeing emergency patients, what are the medical history facts
you are most likely to want to look up?
3. If you found new medical information in an online patient summary that was not
already recorded in your own local electronic health record, how likely would you
be to trust that information to influence your decision making, and what factors
would influence your level of trust?
Courtecy Prof. D. Kalra
16. Sharing Data in the US Between
Different EHRs
~40% of systems are sharing data
~30% of physicians can find the data
~20% of the time data is integrated into the physician
workflow
~10% of the time the data has an impact on patient
care
Challenges of sharing summary documents
22.March.2018Patient summaries in the Emergency Department
18. 18
USA: ED and Health
information Exchange
22.March.2018
Patient summaries in the Emergency Department
19. 19
Perspectives on HIE
Health information exchange (HIE):
450 providers, 15 clinics, 9 hospitals:
1 million patients
4 years in operation, Exchange <10%, 2 ED no
documentation
15 interviews with Emergency physicians in 4 Eds
Patient Volume: 36000, 44000, 54000, 60000
Access to hospital EHRs and Health Information
Exchange
22.March.2018
Patient summaries in the Emergency Department
23. 23
22.March.2018
Patient summaries in the Emergency Department
Themes in HIE use among
Emergency Physicians and Nurses
Variations in using HIE
and HIE access
Influencing Clinical
Decisions
Balancing Challenges and
Barriers
Recognizing Benefits
and Success factors
Iterative
process
Against
26. 26
Patient summary as
Health data navigator
Think of the Patient summary as a window to a person’s health or dashboard:
Medications, allergies, vaccinations, problems and procedures,
labs, diagnostic imaging, recent or planned encounters, implantable devices
advance directives
“Bring the Power of Platforms to Health Care” using data to drive:
administrative automation, networked knowledge, and resource orchestration [Bush &
Fox, HBR November 2016]
eStandards need to
help build trust
unlock the power of health data
facilitate decision support
navigate the health system
22.March.2018
Patient summaries in the Emergency Department
27. 27
What do we need to make it happen
with standards and interoperability?
Co-create
make it real by standards
Governance
scale for
large-scale deployment
Alignment
flourish in sustainable
ways
Patient summaries in the Emergency Department 22.March.2018
28. 28
Patient summary
initiatives
Scotland
Emergency Record
Greece
Crete (~2010): Pilot of emergency record for frequent users
National (recent): medication record
France
UK
Luxemburg
China
Spain
Sweden
Portugal
22.March.2018
Patient summaries in the Emergency Department
Questions:
1) Automated or manual entry
2) Single or multiple source/custodian
3) Patient access
4) Patient generated data
5) Privacy: Opt-in / option out
6) Business case
7) Added value services
32. 32
Pros and cons
Source: HIMSS Insights 2015
22.March.2018
Patient summaries in the Emergency Department
Notes de l'éditeur
Good morning, ladies and gentlemen.
How we can use patient summaries / medical histories/ data in the emergency room to improve decision making: quality and speed?
Establish the case for the international patient summary as a citizen’s right and enabler of safe care.
Validate the global role of the international patient summary in different contexts
Consult with key stakeholder groups to identify needs, and use cases to promote the international patient summary
Assess key enablers and success factors for benefit realization in adopting international patient summary standards
This workshop will:
Introduce the aims of the Trillium II project
Present approaches from three different countries: Denmark, USA
Collect input on the International Patient Summary among participants
Open a discussion on how to assess, bridge and harmonizing relevant initiatives around the globe in an effort to attract new members to GC-DHIP and create a network effect that will nurture innovation and fuel creativity with global standards serving as infrastructure for interoperability.
.Establishing incentives for high quality recording or assembly of patient summary data can directly improve data insights guiding interventions with direct impact on increased productivity, and patient satisfaction. Note that the concept of health system navigators is not new. It was first introduced by Harold Freeman in 1990. Assisted by medical students, patients are able to navigate the logistical, emotional, and frequently cultural barriers of receiving care. Patients are assisting in assessing the situation and choices, articulate objectives, evaluate alternatives and reach decisions. In the end, healthcare is analog and human touch is paramount. Digital health tools can help fill the intention gap!
http://www.hpfreemanpni.org/
30% cognitive decline, Decision ; rational mind observing your intuitive mind…
Dual process: analytical and intuitive thinking
Based on a set of modular components - “Resources”
Resources refer to each other using URLs
Small discrete units of exchange with defined behaviour and meaning
Have known identity and behaviour
Extensions permit adding data not part of core
Resources are combined into “Profiles” to solve clinical and administrative problems in a practical way.
Parties exchanging data define the specific way they want to use resources and their relations using Profiles.
Profiles are the framework for defining services.
The patient feels sick and seeks healthcare in a country that is not his/her country of origin.
The most frequent situation is that the health professional has no prior clinical information
about that patient and it is not expected that his visit will be repeated. They will not normally
have a language in common.
Systems of record – SQL / CDA/CCD /
Systems of differentiation – IHE Profiles / PCHA/Continua Profiles
Systems of innovation – FHIR / OpenEHR Archetypes
Data drive a wave of automation aspiring to improve care
forge connections of health & wellness, medical research, and clinical decision support.
Healthcare systems can rely on digital technologies to
sustain costs, improve access, provide quality care facing dwindling resources and increasing demand
offer mobile patient- and provider-facing apps
mix patient-generated data with provider medical notes
use data to shape personalized care pathways
provide just-in time access to health services in person or online
Health information technology standards are at the core of the compass, to tap the potential of shared aggregate data and sustain trust.
A more digitally connected doctor would make millions of people breathe a sigh of relief.
Unnecessary paperwork and phone calls make Americans dread visiting the doctor more than other everyday tasks.
We argue that citizens need a digital health compass to unlock the power of their health information, drive their engagement in personal health information management, and identify the most suitable health services for the situation at hand. With increasing quantity and uneven quality of health data, patient summaries could be the starting point to write an individual’s health story.
Lots of paper. An average visit is 15 minutes of which
5 minutes is paper work and 6 minutes is verbally sharing health data.
Patients get used to doctors with digital technology they think they are organized innovative and compettant. Are more open if they can communication with email or text. Fill paper work online, receives tests and medical records online, schedule appointments online.
Americans say doctors still walk into most appointments without critical information about their patients
Jan 2017: https://www.digitalhealth.net/2017/01/babylon-health-to-power-nhs-111-with-ai-triage-bot/
A chatbot will now answer NHS 111 inquiries from more than a million Londoners as the health system looks for new ways to manage the growing health burden.
NHS England has announced a new deal between health app company Babylon Health and North Central London CCGs, which will be testing an “NHS 111 powered by Babylon”.
The app is essentially an chatbot drive by clinically-based algorithms that will triage patients without human intervention based on reported symptoms, a process that NHS England claims will take as little as two minutes.
Based on the symptoms and its own algorithms, the app could refer the patient to hospital or recommend a GP appointment the next day.
In a statement, NHS England said: “The app will provide an alternative mechanism of accessing integrated urgent care and connecting patients to clinicians, and will aim to reduce pressure on the NHS during the busy winter period and beyond.”
“It will tell people where to go and who to see, as close to their home as possible, so they can make the right choices.”
However, doctors have already expressed concerns about the reliance on algorithms and self-reported symptoms for determining the severity of a person’s illness.
Dr Chaand Nagpaul, the British Medical Association GP committee chairman, told the Guardianthe app would rely “slavishly” on algorithms and could not replace the judgement of trained clinicians.
While this is the first-time NHS 111 has relied solely on an AI to field patient inquiries, non-clinical call staff already rely on computer algorithms to make triage decisions.
This had led to widespread criticism, with GPs calling for the “shipwreck” service to be scrapped entirely in 2015, claiming it was pumping up demand unnecessarily by being too risk adverse.
The London pilot is being run through London Central and West Unscheduled Care Collaborative (LCW), a GP-led not-for-profit organisation that already runs the local NHS 111 service. It will cover the boroughs of Camden, Islington, Enfield and Barnet.
Starting this month, it will run for six months, although patients living in the area will still be able to use the NHS 111 telephone service.
Digital Health News understands it is one of four pilots planned this year to test how artificial intelligence can be used to ease pressure on NHS 111, a service that receives about 15 million calls a year.
LCW chief operating officer Adam Duncan said the organisation would conduct a “robust” assessment of the apps value in improving the NHS 111 service.
“The use of the app could also reduce the demand on NHS 111 during the most busy periods, whilst retaining the high quality and accessible service.”
Babylon is chiefly known as a subscription based remote GP consultation service which provides video consultations through your phone for a monthly fee or a one-off payment.
However, in June last year the company launched a AI triage tool, likely to be the model for the new NHS 111 chatbot app, pitting it against real clinicians in a demonstration.
During the trial, the AI tool usually gave different, and more cautious, advice than the clinician.
Babylon chief executive Ali Parsa said the pilot would help put “accessible healthcare into the hands of everyone”.
“We should all be proud that our NHS is now becoming a pioneer in adopting cutting edge technology to deliver a timely and accurate digital triage service.”
The pilots come after health secretary Jeremy Hunt announced an expansion of the NHS 111 service to include a new online “triage service”, for less serious health problems, in September last year.
An online NHS 111 triage service has been announced by the government before, most recently in 2015.
AI triage tool for 50million pounds; 300K users, June 2016
https://www.digitalhealth.net/2016/06/babylon-health-launches-new-ai-triage-tool/
AI function was pitted against 20 nurses and 15 junior doctors in 102 clinical scenarios.
A panel of GPs found the doctors gave the correct triage advice 77.5% of the time, nurses 73.5% of the time, and the babylon AI 90.2% of the time.
The point is that barriers to current data sharing will also exist for sharing and use of patient summaries.
.Establishing incentives for high quality recording or assembly of patient summary data can directly improve data insights guiding interventions with direct impact on increased productivity, and patient satisfaction. Note that the concept of health system navigators is not new. It was first introduced by Harold Freeman in 1990. Assisted by medical students, patients are able to navigate the logistical, emotional, and frequently cultural barriers of receiving care. Patients are assisting in assessing the situation and choices, articulate objectives, evaluate alternatives and reach decisions. In the end, healthcare is analog and human touch is paramount. Digital health tools can help fill the intention gap!
http://www.hpfreemanpni.org/
To develop, deliver, test and deploy standards sets which are properly adapted to a dynamic healthcare system, we need a constant flow of interaction between three types of activities:
Co-creation between all relevant stakeholders
to make it real using standards
A supportive and appropriate governance system
to make it scale toward large-scale deployment
The flexibility to adapt and align as needs and requirements change
to make it stay in a sustainable way
Co-create: identify situations of patient summary use beyond emergency and unplanned care
Bridge: patient summary projects and initiatives identifying good and bad practices
Validate: Develop, Collect, Assess learning resources to validate content
Engage: mobile Health community to foster innovation & inform health policy
Contribute: feedback to standards organizations improving patient summary standards
The purpose of the Global community for digital health innovation practice is to identify relevant projects and use cases of interest that will help validate and promote the use of international patient summary standards in demonstrations, readiness exercises, and other pilot projects.
Founding members of GC-DHIP are members of the Trillium-II consortium that have committed to pilot project demonstrations.
Additional organizations and pilot projects implementing patient summaries are invited to join.
eHealth programs of Luxenburg (eSante), Catalonia, Spain (TicSalut), Denmark (MedCom), Portugal (SPMS), Sequoia (US), HSPC (US) are part of the steering committee of GC-DHIP and Henrique Martins, is the first chairman.
The community has also close connections to the eHealth Digital Services Infrastructure services established under the Connected Europe Facility.
Why join?
Be part of a global community and exchange knowledge with other countries
If you know about Patient Summaries
If you are curious about Patient Summaries
If you want to influence an International Patient Summary
If you want to be part of an international effort with local impact