1. Locating Resources
for children with TBI
Andrea Buening
IL Special projects Coordinator
The Independent Living Center
2639 E. 34th
St.
Joplin, MO 64804
February 25th
, 2012
3. Traumatic Brain Injury in someone
under the age of 22 is considered a
developmental disability
Resource #1
THE INTERNET – Use reputable sources
Write down your questions and ASK
“Google” your questions!
What is a “developmental disability”
Access all local services
If in a rural area, locate services in your county
Learn the difference between ability, progress, and outcome
Don’t believe everything you are told
Do believe you can make the biggest difference in your
child’s outcome
4. Your main concerns
1. Medical issues first – Every Brain Injury is Different!
• Areas of damage
• Consequences – much will be unknown
• Plasticity – brain maturity doesn’t occur until age 22
1. Learn what your child needs
• Different needs create different resources
• Your child’s needs will change
1. How to Locate services where you can get help for your child
• Centers for Independent Living
1. Maintain expectations within reason
• Discipline with love and logic
1. Find an advocate
• Centers for Independent Living
5. Consider then Plan to
address
School issues
Special Services
Accommodations
Apply for SSI – your child may or may not
need it later
If needed, go to Legal Aid for representation
www.lawmo.org
Services vary by Service Area
They don’t take payment from past due amounts
6. Maintain
• Schedules
– Very important for individuals with TBI
• Expectations of:
– The Child
– The School/teachers
– All Service providers
Hold them accountable