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Use a PREM simply DESIGNED BY Abecause a colleague has COLLEGUEused it before Assume it’s Not sure reliable and what to do Developedinput patient without valid without with the evidence informationDeveloped for other patient groups ASSUME IS RELEVANT TO YOUR PATIENT GROUP Copyright DHP Research 2012
8 Things you should NOT do when selecting a PREM www.dhpresearch.comINTRODUCTION Who are these tips for?Measurement of the patient’s experience is a now a For the healthcare professional, clinician and researcher who relies on information on patient satisfaction, health and or experience,key factor in providing improved health care. the choice and use of a well designed and validated questionnaireThe Patient Experience Network has provided a lot of information is essential.around the measurement of the patient’s experience including the7-step measurement process. However, what is not discussed is How these tips will help you?some of the do’s and don’ts when choosing or using a PREM. By applying the 8 tips described here when selecting the appropriate PREM together with proper planning, you will haveRegretably with the increasing availability of on-line questionnaire greater confidence in the quality of information collected.design packages such as SurveyMonkey, this can lead to a plethoraof questionnaires that would fail the most basic questionnairedesign criteria.Questionnaire design is a complex process to ensure you collectthe right kind of information to enable good decision-making. Alsochoosing the right PREM is also something that requires somethought. Copyright DHP Research 2012
1 8 Things you SHOULD NOT do when selecting a PREM www.dhpresearch.com DON’T USE A WHY? This is a common error and it should not be assumed because a questionnaire has been used before it will be appropriate for YOUR particular study. PREM JUST BECAUSE The questionnaire might for example, not have been properly developed or it might be looking for experience A COLLEAGUE HAS that do not fit with you study objectives. USED IT BEFORE Copyright DHP Research. all rights reserved 4 2012
2 8 Things you SHOULD NOT do when selecting a PREM www.dhpresearch.com DON’TUSE A PREM WHY? Developing a PREM requires considerable experience and knowledge. If you want to collect reliable and JUST BECAUSE IT’S valid information the PREM needs to have been developed according to clearly defined criteria, patient input and using established procedures to BEEN DEVELOPED BY ensure satisfactory reliability and validity. A COLLEGUE As tempting as it maybe to go for the ‘quick and dirty’ this will not give you the information you are looking for. Copyright DHP Research. all rights reserved 5 2012
3 8 Things you SHOULD NOT do when selecting a PREM www.dhpresearch.com DON’T USE A WHY? PREMS developed without patient input must be viewed with suspicion. If we want to find out about the patient’s PREM THAT HAS BEEN experiences then we need to ask them. At the development stage of a PREM it’s essential that DEVELOPED WITHOUT through such techniques as focus groups and in-depth interviews we really do find out what these experiences are which can then be incorporated into the PATIENT INPUT questionnaire. PREMs developed on the reliance of HCP input alone, are based on a different perspective from that of the patient and undoubtedly will lack significant content. Copyright DHP Research. all rights reserved 6 2012
4 8 Things you SHOULD NOT do when selecting a PREM www.dhpresearch.com DON’T USE A WHY? PPREMs developed for a specific patient population will unlikely be appropriate if your patient group differs in PREM THAT HAS BEEN any significant way from its intended use. As experiences and their relevance can vary across DEVELOPED FOR patient groups, PREMs can be either generic or specific. If the PREM is generic then it should have been developed to be applicable across different patient DIFFERENT groups etc. If on the other hand if the PREM is specific then it should not be used if the objectives of your POPULATION TO survey or patient demographics etc., differ in anyway. Examination of the content (face validity) will give an indication, but again documented evidence of the PREMs YOURS development should be reviewed prior to its use. Copyright DHP Research. all rights reserved 7 2012
5 8 Things you SHOULD NOT do when selecting a PREM www.dhpresearch.com DON’T ASSUME WHY? The temptation to use an existing PREM is of course understandable. It saves time and costs and means you THAT THE PREM IS can just go ahead and use it. Well no, not really. With so many on-line questionnaire design tools available the risk is that the questionnaire has just simply been drawn VALID AND RELIABLE up. So what’s the evidence you need to convince you you’ve WITHOUT ANY got a reliable and valid PREM to use? Here are some basic questions you must ask: Has the development of the PREM been documented? EVIDENCE • • What was the reason for developing the PREM? • Was there patient input and if so who were they? • How were questions developed and were they pre- tested? Copyright DHP Research. all rights reserved 8 2012
6 8 Things you SHOULD NOT do when selecting a PREM www.dhpresearch.com DON’T ASSUME WHY? PPREMs can be developed to measure a range of patient experiences from the quality of emotional support THE PREM WILL GIVE provided through to the quality of the food. To ensure that the selected PREM will provide the YOU THE relevant information you will need evidence of the rationale behind it’s development and whether this fits with the objectives of your own survey. A properly INFORMATION YOU developed PREM should have its development fully documented. WANT Of course looking at the content will provide you with some idea (face validity) however, this is not a guarantee the PREM has content validity that is: produced with patient input and is a reliable and valid instrument. Copyright DHP Research. all rights reserved 9 2012
7 8 Things you SHOULD NOT do when selecting a PREM www.dhpresearch.com DON’T USE THE WHY? Because there is no “magic question” that can provide you with an answer to a complex set of circumstances, NET PROMOTER perceptions, intentions, and behaviours as one single score. SCORE (NPS) BECAUSE YOU’VE BEEN TOLD IT’S THE BEST THING AVAIALBE Copyright DHP Research. all rights reserved 10 2012
8 8 Things you SHOULD NOT do when selecting a PREM www.dhpresearch.com DON’T USE A WHY? You must have a clearly defined objective as to what and how you are going to use the information collected prior PREM IF YOU ARE NOT to the survey. You will not achieve anything if your approach is to think that you will decide once you’ve got the data. SURE WHAT TO DO • You must have a clear analysis plan • Know in advance what questions you need answers to WITH THE • Be sure you are asking the questions you need answering INFORMATION COLLECTED Copyright DHP Research. all rights reserved 11 2012
About DHP Research FIND OUT MORE We provide a range of consultancy and support to clinical research teams, the NHS and academia in making key decisions when using patient reported outcome (PRO) and experience (PRE) measures. This includes: DHP Research & Consultancy Ltd Bloxham Mill Business Centre Literature reviews and evaluation of existing patient Barford Road, Bloxham reported outcome (PRO) measures Qualitative interviews to derive appropriate content for PROs Banbury Write academic scripts Oxfordshire Training in PROs and research methodologies OX15 4FF Development of patient reported outcomes (PRO)measures UK: +44 (0)1295 724233 Our expertise in the measurement of patient reported www.dhpresearch.com experience includes: email@example.com Help in choosing the right measures Development of PREMs using state-of-the-art methodologies Interpreting PREM data. Copyright DHP Research 2012 12
DHP Research & Consultancy LtdBloxham Mill Business Centre, Barford Road, Bloxham,Banbury, Oxfordshire OX15 4FFTel: +44 (0)1272 4233Tel: firstname.lastname@example.org Copyright DHP Research 2012