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Similaire à Testing integrated knowledge translation processes to improve the participation of children with disabilities in British Columbia in physical activity
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Testing integrated knowledge translation processes to improve the participation of children with disabilities in British Columbia in physical activity
1. Testing integrated
knowledge translation
processes to improve
the participation of
children with disabilities
in British Columbia in
physical activity
Ebele Mọgọ, DrPH
@ebyral
2018 CAHSPR
Conference:
Shaping the
Future of
Canada’s Health
Systems
2. Ebele Mọgọ, DrPH
Post-doctoral Researcher, Faculty of Medicine, McGill University
Keiko Shikako-Thomas, PhD, OT Canada Research Chair in
Childhood Disability: Participation and Knowledge Translation. Assistant Professor,
School of Physical and Occupational Therapy, McGill University, Associate Member
McGill Institute of Health and Social Policy
Annette Majnemer, PhD, OT
Professor, Vice-Dean of Education, Faculty of Medicine, School of Physical and
Occupational Therapy McGill University
Jonathan Lai, PhD
Post-doctoral Researcher and CIHR Health System Impact Fellow, Faculty of
Medicine, McGill University
Te a m
3. Background and Rationale
• 4.6% of Canadian children
and youth have an
identified sensory,
cognitive, physical or
developmental disability1
4.60%
95.40%
• In British Columbia alone,
about 15% of the
population (over 500,000
people) identify as having
a disability2
15%
• Children with disabilities in Canada face
major systemic challenges to
participation (structural, information,
attitudes)3
• There is research evidence that
identifies the barriers and proffers
possible solutions3
• This research is typically not available to
those with the necessary power to
create recreational opportunities for
these children 3
4. Improving the methods for engaging
community and research partners in
discussing solutions related to leisure
promotion for children with disabilities
1
Tailoring and conveying research
information and stakeholders’ opinions
about participation in leisure to policy
makers
2
Opportunities
for Impact
Testing knowledge translation to policy
interventions.
3
6. 1
Disseminate research-based information on leisure
participation for children with disabilities to
decision-makers
2 Inform how researchers could
work better with policy makers
Objectives of the
Policy Dialogue
3
Gather stakeholders to discuss strategies
that promote participation for children
with disabilities in BC.
7. • Asked community and grassroot organizations to share successful strategies
and identify existing policy frameworks and evidence gaps
• We asked grassroots organizations to prioritize constructs within their chosen
framework (The National Recreation Framework)
• Conducted a systematic rapid review of the research literature on community-
based and policy interventions promoting those constructs (inclusion, access,
capacity building) as outcomes.
• Developed a targeted policy brief4 based on stakeholders preferred
formats for receiving information
Before the dialogue
8. At the dialogue
• The research team presented the current research
on children with disabilities and participation
• Gave participants opportunities to discuss
implementation considerations and generate
possible solutions to overcome barriers to
participation
• Presented the Jooay App previously chosen by
stakeholders, a listing of adaptive and inclusive
leisure activities across Canada
9. Post-dialogue Evaluation: Interview + Survey
34%
of participants were
from the provincial
government. Other
sectors represented
included the school
board, the municipal
government, and
NGOs.
67%
had experience
working with
people with
disabilities.
had a post-graduate
degree
had a bachelors’
degree.
93%
33%
11. Lessons Learned From The Process
• Knowledge translation should be active - include
opportunities for engaging with research evidence and
integrating the context-specific information acquired from
stakeholders.
• “Customer service” can make or break participation
• Limited funding, staff turnover and capacity gaps hinder
translation. Related barriers: staff attitudes, human
resources, language, culture and location
• Challenge of funding and attrition of research partners
12. Recommendations
• Ensure greater inclusion of marginalized voices (people with
disabilities, rural and Indigenous communities etc in future policy
dialogues
• May require incentives for participation
• Ensure sites for knowledge translation are accessible to ensure full
participation
13. Recommendations
• Align program goal and content to participants who will be receiving
them e.g. frontline worker versus policy maker versus program
manager
• Set clear and actionable outcome expectations e.g. networking
versus knowledge exchange versus policy change
• Gauge participants’ expectations in participating prior to the
dialogue
14. Future Directions
• Assess how knowledge was used at the 6 month mark
• Aggregate learnings from both the BC and Quebec dialogue
• Assess participation as it relates to location, socioeconomic factors
and behavioural factors
• Assess possibility of an ongoing knowledge translation event
15. REFERENCES
1. Bassett-Gunter, R. L., Ruscitti, R. J., Latimer-Cheung, A. E., & Fraser-Thomas, J. L. (2017). Targeted
physical activity messages for parents of children with disabilities: A qualitative investigation of
parents' informational needs and preferences. Research in Developmental Disabilities, 64, 37-46.
2. Accessibility 2024 - Province of British Columbia. (2017). www2.gov.bc.ca. Retrieved 2
November 2017, from https://www2.gov.bc.ca/gov/content/governments/about-the-bc-
government/accessibility
3. Leveling the playing field: A natural progression from playground to podium for children with
disabilities. (2017). Senate of Canada. Retrieved 2 November 2017, from
https://sencanada.ca/content/sen/committee/411/ridr/rep/rep07jun12-e.pdf
4. Shikako-Thomas, K., Majnemer, A., Mogo, E. M., Lai, J., & Kalaba, M. (n.d.). Childhood
Disability Link. Retrieved from Promoting the participation of children with disabilities in
Leisure Activities:
https://www.childhooddisability.ca/wpcontent/uploads/2017/12/researchbrief_dec20.pdf