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The Role of the Patient’s Voice in Improving the Quality of Health Care Research & Policy Forum • January 26, 2011 Michael J. Barry, MD Foundation President
Foundation Mission ,[object Object],[object Object]
Foundation Principles ,[object Object],[object Object],[object Object],[object Object],[object Object]
Foundation Principles ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
The Foundation and Health Dialog The licensing agreement between the Foundation and Health Dialog, its production and distribution partner, provides royalties as well as contract funding to develop and maintain Shared Decision-Making Programs and other decision support materials. Staff of the Foundation and all Medical Editors must adhere to a stringent conflict-of-interest policy that prohibits financial support from the drug and device industries, and requires disclosure of any relationships with professional societies or health plans.
Is Informed Consent “Real”? ,[object Object],[object Object],[object Object],[object Object],[object Object],(Holmboe ES.  JGIM 2000;  15:632)
Is Informed Consent “Real”? ,[object Object],[object Object],(Trikalinos TA.  Lancet 2009;  373:911)
Is Informed Consent “Real”…10 years later? ,[object Object],[object Object],[object Object],(Rothberg MB.  Annals Intern Med 2010;  153:307)
DECISIONS Survey ,[object Object],[object Object],[object Object],[object Object],[object Object],(The Decisions Study. Medical Decision Making 2010;  30 supplement 1)
DECISIONS Survey: Decisions Addressed ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Epidemiology of Medical Decisions in US ,[object Object],[object Object],[object Object],[object Object]
What did Clinicians Recommend? ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Were Patients Asked for their Opinions? ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
How Much did Patients Know ? ,[object Object],[object Object],[object Object]
U.S. CABG rates
What is Good Medical Care? ,[object Object],[object Object]
Practice Policies: Standards, Guidelines and Options ,[object Object],[object Object],[object Object],(Eddy DM.  JAMA 1990;  263:3077)
Shared Decision-Making Model ,[object Object],[object Object],[object Object],[object Object],[object Object],(Charles C, Soc Sci Med 1997;  44:681)
 
Determining the Need for Hip and Knee Arthroplasty ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],(Hawker GA, et al. Medical Care 2001;  39:206)
[object Object],[object Object],[object Object],Patient Decision Aids Can Help! (The International Patient Decision Aid Standards Collaboration )
[object Object],[object Object],[object Object],Patient Decision Aids Can Help! (The International Patient Decision Aid Standards Collaboration )
Cochrane Review of Decision Aids ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],(O’Connor et al. Cochrane Database of Systematic Reviews  2009, Issue 3. Art. No.: CD001431 )
[object Object],[object Object],[object Object],[object Object],[object Object],SDM: Implementation Needs

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The Role of the Patient's Voice in Improving the Quality of Health Care

  • 1. The Role of the Patient’s Voice in Improving the Quality of Health Care Research & Policy Forum • January 26, 2011 Michael J. Barry, MD Foundation President
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  • 5. The Foundation and Health Dialog The licensing agreement between the Foundation and Health Dialog, its production and distribution partner, provides royalties as well as contract funding to develop and maintain Shared Decision-Making Programs and other decision support materials. Staff of the Foundation and all Medical Editors must adhere to a stringent conflict-of-interest policy that prohibits financial support from the drug and device industries, and requires disclosure of any relationships with professional societies or health plans.
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