How open health- and well-being data could be used.

1. 14.9.2015 1
Possibilities of Open Health
and Well-Being Data
23.9.2015
Risto Kaikkonen / THL

2. 14.9.2015 2Risto Kaikkonen / THL

3. 14.9.2015 3Risto Kaikkonen / THL

4. 14.9.2015 4Risto Kaikkonen / THL

5. 14.9.2015 Risto Kaikkonen / THL 5
Key figures 2014
Budget: 111M€
Personel: 1100

6. 25.9.2015 THL / Risto Kaikkonen 6
Finnish Health and Welfare registers at THL with personal ID (linkage)
Cancers (from 1953)
Cognenital anomalities (from 1963)
Special medication (from 1964)
Hospital discharges (from 1967)
Mass screenings (from 1968)
Abortions and sterilization (from 1977)
Endoprostheses (from 1980)
Visual impairments (from 1983)
Institutionalised care at social institutions (1994-)
Tuberculosis, STIs (from 1958)
Births (from 1987)
Infectious diseases (from 1989)
Dental implants (from 1994)
Outpatient visits in public healthcare (from 1998)
Outpatient visits to primary care, (Avohilmo2011)
Social assistance (from 1985)
Children taken custody (from 1991)
Finnish Health Surveys at THL with personal ID (linkage)
Health Behaviour and Health among the Finnish Adult Population
(AVTK, from 1978)
FINRISK Study (from 1972)
Mini-Finland (1978-1980), Health 2000 (2000-2001), Health 2011
(2011-2012)
Migrant Health and Wellbeing Study (Maamu, 2010-2012)
Child and Youth Health Monitoring (LATE, 2007-2009)
Health Behaviour and Health among the Finnish Retirement-Age
Population (EVTK, from 1985)
Regional Health and Wellbeing Study (ATH, 2013-2015, 2016-)
Survey on work and wellbeing among people of foreign origin
(UTH, 2014-2015)
THL Biobank (from 2014)
National infectious disease register culture collection (from 1995)
Information resources from eHealth-related interventions
eHealth Usability and experienced benefits: physician survey
(2010-)
Intensity of use of the National patient data per data and user
type (pilot 2015, project commencing)
Citizen’s use and experiences of eHealth services (2014).
eHealth and eWelfare in Finland: survey of health care
organisations’ availability status and trends in health care ICT
(2003-)
Register-based monitoring eHealth benefits: case national
eHealth services for citizens (2015-)
Examples of information resources in Finland’s National Digital Health Data. Mostly “owned” by THL.

7. Entrepreneurs, think tanks,
citizens, journalists, etc.
Policy makers at municipals,
government, and providers
THL
Professional researchers run
analyses on proprietary data,
inert choice of topics, strong
confidentiality
A limited selection
of open aggregate
datasets with less
information and
limited validity
Periodic reports
that are largely
disconnected from
current decision-
making agenda
The existing reality: closed system of data
collection, analysis & dissemination

8. Possibilities of our existing Open
Health and Well-being data?

9. SotkaNet, Terveytemme (our Health) and other
relevant THL Open Data resourses
• https://www.thl.fi/fi/tilastot/tilastotietokannat/avoin-data
• Sotkanet REST-API (interface for open data)
• CC4.0
• Terveytemme.fi: also excel, XML data from indicators
• Fineli open data: Fineli Food Composition Database
• Many registers: eg. Register of Infectious Diseases
14.9.2015 Risto Kaikkonen / THL 9

10. Policy makers at municipals,
government, and providers
THL
Interconnected virtual data warehouse,
open interfaces and automated analyses,
strong confidentiality
Ability to run
custom analyses
supports policy
advocacy (issue
selling) and
journalism.
Custom analyses help bring
informed views to public
discourse and decision-making
Think tanks data journalists,
citizens, etc.
Agile creation of
analyses to support
current agenda &
decision
processes.
Open interfaces
create entrepreneurial
opportunities that
provide citizens with
new services.
The potential future: Open and interactive
system of information use

11. Our challenges for you
• Application etc. Comparison of physical excercise, community, nutrition and
other relevant health behaviour to achieve health benefits and further
examples to do even better. Visual layout but also features from eg. games.
• Application that helps areal and municipal decision making: counting the
costs and benefits (to health) eg. building bicycle path taken account the
effect of lowering the level of car usage and moreover the benefit for the
public health.
• Application that makes areal/municipal comparisons easy to follow with key
figures. Moreover it helps to find similarities in different areas/municipalities.
• Atlas and visual chart/trend application that helps to use Register of
Infectious Diseases on areal level
• READ MORE http://openfinlandchallenge.fi/haaste/terveyden-ja-
hyvinvoinnin-haasteet/
14.9.2015 Risto Kaikkonen / THL 11

12. We need new inititiatives to tackle our
challenges
• Open Finland Challenge / Food and Wellness
http://openfinlandchallenge.fi/haaste/terveyden-ja-
hyvinvoinnin-haasteet/
Deadline 9th November
• Ultra hack / Smart City – Civic tech
https://ultrahack.org/challenges/smart-city-civic-tech/
programming event 6th – 8th November in Helsinki.
14.9.2015 Risto Kaikkonen / THL 12

13. THL Datapolitics [of pity?]
• THL launches datapolitical statements in January 2016
1. We make our valuable data visible  METADATA
2. Relevance, at time, and customer tailored reporting systems
are developed. We collect only relevant data and data is
recorded only once
3. Open Science and Open data is the foundation of our work
4. We make easier to achieve datasets with high
TIETOSUOJA: one stop shop
5. We develope the digitalization of the data life cycle
Horisontal approach: we collaborate
• Main issues: open METAdata from datasets
14.9.2015 Risto Kaikkonen / THL 13

14. 14.9.2015 14
Thank You for the attention
Risto Kaikkonen / THL
Risto Kaikkonen
Head of Unit
Information Resource Services Unit
Department of Information Services
The National Institute for Health and Welfare
PO Box 30, 00271 Helsinki, FINLAND
Phone. +358 29 524 8176
gsm. +358 40 759 4520
risto.kaikkonen@thl.fi