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Patient and family centred care for young adults - HEARing CRC PhD presentation

To help determine what constitutes P/FCC for young adults with hearing loss and their family members.

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Patient and family centred care for young adults - HEARing CRC PhD presentation

  1. 1. Patient- and Family-Centred Care for Young Adults with Hearing Loss and Their Family Members David Allen1,2, Nerina Scarinci1,2, Louise Hickson1,2, and Alison King3 1School of Health and Rehabilitation Sciences, The University of Queensland 2HEARing Cooperative Research Centre, Melbourne, Australia 3Australian Hearing, New South Wales, Australia Introduction • More than 7,000 young Australians aged 16–25 are currently accessing rehabilitative services for hearing loss.1 • Patient- and family-centred care (P/FCC) improves efficiency, effectiveness, and acceptability of care for people with chronic diseases.2 • It is not known what constitutes P/FCC for young adults with hearing loss and their family members. Aims & Methods 1. To identify the nature of P/FCC, and its impact on the effectiveness and acceptability of care, for young adults with chronic diseases  systematic review 2. To gather descriptive information on the characteristics of young adults with hearing loss and their family members  online survey 3. To describe what constitutes P/FCC among young adults with hearing loss and their families  qualitative interview study creating sound value www.hearingcrc.org Systematic Review Two papers currently in production: • one addressing qualitative literature on the nature of P/FCC, • one addressing quantitative literature on the impacts of P/FCC. Preliminary qualitative results show similarities with existing models of patient- and family-centred care, particularly the importance of patient-practitioner relationships (see Figure 3 below). Future Directions • Online survey to young adult Australians with hearing loss asking about demographics, educational and employment situations, family structure, life satisfaction, hearing loss, and experience of hearing rehabilitation. • Qualitative interviews of young people and family members, regarding experiences of and preferences for audiological rehabilitation. Will use a grounded theoretic analysis3 to generate a theory of PFCC in this population. References 1. Australian Hearing. (2016). Demographic Details of young Australians aged less than 26 years with a hearing impairment, who have been fitted with a hearing aid or cochlear implant at 31 December 2014 Retrieved from https://www.hearing.com.au/wp-content/uploads/2015/01/Demographics-of-aided-young- Australians-under-26-years-of-age-Dec-2014.pdf 2. Hudon, C., Fortin, M., Haggerty, J., Loignon, C., Lambert, M., & Poitras, M. E. (2012). Patient-centered care in chronic disease management: a thematic analysis of the literature in family medicine. Patient Educ Couns, 88(2), 170-176. doi: 10.1016/j.pec.2012.01.009 3. Charmaz, K. (2006). Constructing Grounded Theory: A Practical Guide through Qualitative Analysis. London: SAGE Publications. 4. Stewart, M., Brown, J. B., Weston, W. W., McWhinney, I. R., McWilliam, C. L., & Freeman, T. R. (2014). Patient-centered medicine: transforming the clinical method (3 ed.). Abingdon: Radcliffe Medical Press. Patient- Centred Care Illness Experience The whole person Common Ground Patient- Clinician Relationship Figure 2: Four interactive components of patient-centred care, developed by Stewart and colleagues by analysing consultations in family practice.4 Patient- and Family- Centred Care Trust Equal Relationships Addressing Needs Empowering Young People The Place of Family Figure 3: Results of qualitative systematic review. Facets of patient- and family-centred care for 16-25 year-old people living with chronic disease and their family members. Figure 1: Flow of articles through systematic review process