The document provides information about a challenge to create new tools to help cancer survivors manage their health after treatment. The challenge is sponsored by the Office of the National Coordinator for Health Information Technology and the National Cancer Institute. The challenge will have two phases - the first involves submitting wireframes and explanations of proposed apps, and selected finalists will then develop functioning apps and crowdfunding campaigns for them in the second phase. Winners will receive cash prizes and recognition. The goal is to spur innovation in tools that address survivor care needs and facilitate communication between survivors and healthcare providers.

1. Crowds Care for Cancer:
Supporting Survivors
Informational Webinar
5.06.13

2. Office of the National Coordinator for
Health Information Technology
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On Today’s Call:
• Adam Wong, Office of the National Coordinator for Health IT
• Abdul Shaikh, National Cancer Institute
• Carly Parry, National Cancer Institute
• Kasia Galica, National Cancer Institute
• Jean-Luc (“JL”) Neptune, Health 2.0
• Graeme Ossey, Health 2.0
Agenda:
• Challenge Background
• Overview of Challenge Details
• Q&A

3. ONC and i2 Goals
Office of the National Coordinator for
Health Information Technology
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• Better Health, Better Care, Better Value through Quality
Improvement
– Further the mission of the Department of Health and Human
Services
– Highlight programs, activities, and issues of concern
• Spur Innovation and Highlight Excellence
– Motivate, inspire, and lead
• Community building – Development of ecosystem
• Stimulate private sector investment

4. NCI: Established by congress in 1937, is the leading Federal agency and world’s largest
organization solely dedicated to cancer-related research, training, and dissemination of
information.
DCCPS: aims to reduce the risk, incidence, and deaths from cancer as well as enhance the
quality of life for cancer survivors. The Division conducts and supports an integrated
program of the highest quality behavioral, epidemiologic, genetic, health services, and
surveillance cancer research.
“Much of the suffering and death from cancer could be prevented by more systematic
efforts to reduce tobacco use, improve diet and physical activity, reduce obesity,
and expand the use of established screening tests. The American Cancer Society
estimates that in 2011 about 171,600 cancer deaths will be caused by tobacco use
alone. In addition, approximately one-third of the 571,950 cancer deaths expected to
occur in 2011 are attributed to poor nutrition, physical inactivity, overweight, and
obesity.”1
1. American Cancer Society. Cancer Prevention & Early Detection Facts & Figures 2011.
Atlanta: American Cancer Society; 2011.

5. Source: Brad Hesse, NCI

6. NCI Priorities in Behavioral Informatics
1. How do we encourage evidence-based innovation
within the next generation of health IT applications?
2. How do we use communication science to support
Health IT “meaningful use” goals? (Improve outcomes, patient
engagement, care coordination, population health, protect privacy)
3. How do we improve communication
processes relevant to the six functions
of patient-centered communication?
(Exchanging information, fostering healing relationships,
managing uncertainty, responding to emotions,
decision-making, and enabling patient self-management)

7. * Hesse, B., et al. (in preparation). Consumer Demand Outstrips Health System Supply: Trends in the
American Public’s Use of, Beliefs about, and Attitudes toward Information Technology in Healthcare.
• 92 percent of American adults believe it to be “very or somewhat
important” for their health care providers to be able to share
information with other providers electronically.*
(63% = Very Important + 29% = Somewhat Important)
• 90 percent believe it to be “very or somewhat” important that they should be able to get
their own medical information electronically.* (Very Important = 69%; Somewhat Important = 21%)
• Convened an expert roundtable to begin
articulating a research agenda (June 7, 2012)
• The opportunity to empower an engaged population;
• Data interpretation and decision support;
• Balancing the needs of individuals and populations;
• The influence of culture, incentives and regulation;
• Examining the future and the present in parallel
Health IT for Patient-Centered Care
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8. Communication & Behavior Across The
Cancer Control Continuum
.
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Multi-level peer
support,
consumers/clinicians,
information,
monitoring
Decision support, care
coordination,
collaboration
Follow-up and
decision support, care
coordination, patient
engagement
Compliance, care
coordination,
collaboration,
reminder systems
Transition to 1o,
surveillance, health
promotion, end-of-life
PREVENTION
• Tobacco Control
• Diet
• Physical activity
• Sun exposure
• Virus exposure
• Alcohol use
• Chemoprevention
DETECTION
• Pap test
• Mammography
• FOBT
• Sigmoidoscopy
• PSA
DIAGNOSIS
• Informed
decision-making
TREATMENT
• Health services and
outcomes research
SURVIVORSHIP
• Coping
• Health promotion
for survivors

9. • Nearly 14 million US cancer survivors--& growing
• At risk for increased physiologic and psychosocial morbidity due to late
and long-term effects of cancer and its treatment
• Growing concern about how to best deliver follow-up care to address
cancer survivors’ complex, ongoing needs
• IOM report, Lost in Transition, recommended use of a treatment
summary and survivorship care plan, with consultative visit
Survivorship Care Planning:
Background

10. •Accreditation bodies have called for implementation of care
planning
•Lack of evidence base re:
– the efficacy of care plans
– how best to implement care plans
– the best constructs and measures for evaluating SCPs
Where Are We?

11. NCI has released two program announcements:
Focus: to stimulate research evaluating the effects of care planning on survivors’
physical and psychosocial health outcomes; self-management of late effects and
adherence to screening and health behavior guidelines; utilization of follow-up care;
organizational factors; and associated costs.
“Examination of Survivorship Care Planning Efficacy & Impact”
• R21 (PA-12-274)
– http://grants.nih.gov/grants/guide/pa-files/PA-12-274.html
• R01 (PA-12-275)
– http://grants.nih.gov/grants/guide/pa-files/PA-12-275.html

12. IOM-Recommended Elements
of the Survivorship Care Plan
•Treatment Summary
– Cancer characteristics, treatment history
– Potential complications
•Care Plan
– Recommendations for surveillance, prevention, health
maintenance
– Information about management of symptoms, psychosocial
sequelae, community resources
– Detailed plan for follow-up care

13. Why We Need Innovation
To understand:
–How best to use technology to develop and
implement survivorship care plans and care
planning interventions?
–Care plans as living documents
–Meaningful, patient-centered use of care plans
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14. The Challenge
Office of the National Coordinator for
Health Information Technology
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The Challenge is a call for developers, researchers, and other
innovators to create new information management tools and
applications that help cancer survivors manage their health and
healthcare after completing cancer treatment.
Phase I Requirements:
• Wireframes of Proposed App
• PDF presentation explaining the app – 7 slides max
Phase II Requirements:
• Post relevant details of app to MedStartr
• Submit functioning application

15. Crowdfunding
Office of the National Coordinator for
Health Information Technology
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• Crowdfunding describes the collective effort of individuals
who network and pool their resources, usually via the
Internet, to support efforts initiated by other people or
organizations.
Reference: http://tech.co/crowdfund-act-2012-03

16. Phase II Crowdfunding
Office of the National Coordinator for
Health Information Technology
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Phase II:
• Building a crowdfunding campaign posted on MedStartr
– Finalists will prepare campaigns with guidance and optimization
assistance for promotion on the portal
– MedStartr will support finalists in their use of social marketing
strategies for outreach to personal networks, target audiences, and
general public
References: http://www.socialsearchmobile.org & http://socialmediasorted.com/wp-content/uploads/social-media.jpg

17. Crowdfunding
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Health Information Technology
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Goals and Benefits of Crowdfunding:
• Early stage consumer support and feedback benefits may
advise future iterations
• Engagement with target audiences may offer market
validation
• Potential to uncover additional relevant audiences
• Additional support for long-term innovation

18. Review Criteria
• The submission is an innovative information management tool or
application deployable on any personal computing platform widely
available to consumers;
• Addresses the needs of cancer survivors managing their transition
from specialty to primary care;
• Customizability and ability to adapt to evolving survivorship care
needs including primary/specialist care interactions.
• Usability and design;
• Evidence of co-design with, and support from users of proposed
tool or application (e.g., patients, families, primary/specialty
caregivers, insurers, and/or hospital systems);
• Innovation/differentiation from existing technologies and products;
and,
• Functionality, accuracy, integration with electronic care platforms,
and use of Blue Button+ standards (bluebuttonplus.org) and other
sources of health-related information;
Office of the National Coordinator for
Health Information Technology
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19. Timeline
Phase I
Submission Period: April 30, 2013 to May 28, 2013 11:59 p.m. PDT
Finalists Notified: May 31, 2013
Finalists Announced: Health Datapalooza, June 3, 2013
Phase II
Submission Period: June 10, 2013 to July 12, 2013 11:59 p.m. PDT
Crowdfunding : June 10, 2013 - July 5, 2013
Announce Grand Prize Winner: July-August, 2013
Office of the National Coordinator for
Health Information Technology
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20. Prizes
Phase I Finalists: $5,000
First Place: $25,000
Not to mention: recognition, publicity, credibility and reach!
Office of the National Coordinator for
Health Information Technology
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21. Questions?
Office of the National Coordinator for
Health Information Technology
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www.health2challenge.com
Contact Graeme:
graeme@health2con.com