A presentation given at the Irish Cancer Society's Survivorship Research Day at the Aviva Stadium, Dublin on Thursday, September 20th, 2013. The International Classification of Functioning (ICF) Core Set for breast cancer – a prospective surveillance tool to identify rehabilitation needs - Marese Cooney

1. The International Classification of Functioning
(ICF) Core Set for breast cancer – a prospective
surveillance tool to identify rehabilitation needs
Cooney MA1
, Galvin R2
, Connolly E3
and Stokes E1
1
Discipline of Physiotherapy, Trinity College Dublin.
2
Division of Population Health Sciences (General Practice),
Royal College of Surgeons in Ireland,
3
Breast Care Department, St. James’s Hospital, Dublin, 8.
Department of Physiotherapy, Trinity College Dublin

2. KEY MESSAGES
 There are aspects of women's health altered
by treatment for breast cancer that are not
addressed by health professionals which are
remediable
 The ICF Core Set for breast cancer may be
an appropriate surveillance tool
Department of Physiotherapy, Trinity College Dublin

3. Global description of health
 International
Classification of
Functioning (ICF)
 Approved World
Health Assembly 2001
 It contains over 1,400
categories
Department of Physiotherapy, Trinity College Dublin

4. Core Set for breast cancer
80 Items
Function
Structure
Activities &
participation
Environment
Department of Physiotherapy, Trinity College Dublin

5. Developed without the voice of women
 330 women in an Irish
validation study
 Mixed methods –
focus groups & survey
M Cooney, R Galvin, E Connolly & E Stokes “The International Classification of Functioning (ICF) Core
Set for breast cancer from the perspective of women with the condition”, Disability & Rehabilitation, 2013
May; 35(9):740-8

6. Not everything was in initial core set
Department of Physiotherapy, Trinity College Dublin

7. New categories
Attention & Memory >50%
Word finding 47%
Pace of thought 35%
Receiving spoken messages 31%
Department of Physiotherapy, Trinity College Dublin

8. 60% of women reported pain in two locations
40% > two locations
87% pain ever, 71% current, Kahn et al., (2012) 74% current
Chest/breast 41%Back 46%
Lower limb 32%
Shoulder/Arm 48%
Joint pain 53%

9. All associated with poor quality of life
 Energy & drive (77%)
 Endurance (63%)
 Exercise tolerance (49%)
 Sleep (70%)
 Joint mobility (59%)
 Reduced strength
(56%)
 Weight maintenance
(47%)
 Lymphoedema (21%)

10. WORK
INTIMATE RELATIONS
PREPARATION MEALS
HAND & ARM USE
DAILY ROUTINE
LIFTING & CARRYING

11. Sources
of
support
Health
professionals
77%
Department of Physiotherapy, Trinity College Dublin
80-83%

12. HELPFUL
56%
Wigs
Swimsuits
Online shopping
HINDRANCE
47%
Prostheses
Seatbelts
Department of Physiotherapy, Trinity College Dublin
ENVIRONMENTAL FACTORS

13. We propose the revised Core Set as a
prospective surveillance tool for women
with breast cancer in Ireland
Marese Cooney mcooney@tcd.ie
Department of Physiotherapy, Trinity College Dublin