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Cillian twomey - HSE/HFH Joint Oversight Group

  1. HSE–HfH Joint Oversight Group Progress & Plans Cillian Twomey Chairman, Joint Oversight Group
  2. •Dying •End of Life •Death • whilst ….maximising living to the fullest possible extent ….. •Bereavement
  3. End-of-Life Care No one should have to face death or bereavement without the appropriate care and support.
  4. Optimum End-of-Life Care is primarily about placing the individual at the centre of ALL decision-making
  5. Optimum End-of-Life Care •Exercising choice •Communication •‘Nothing about you, without you’ (SAGE)
  6. Hospice Friendly Hospice Programme • Joint IHF & HSE pilot in Our Lady of Lourdes Hospital, Drogheda (2005-2006) • HfH (IHF-HSE-AP) Programme (2007-2012)
  7. The 4 standards
  8. Public Consultation 152 submissions received
  9. The Link between Standards and Audit
  10. • Joint IHF & HSE pilot in Our Lady of Lourdes Hospital, Drogheda (2005-2006) • HfH Programme (2007-2012) – Quality Standards • Increasing enthusiasm, interest & involvement by healthcare staff – in all settings – – EoL Coordinators, – EoLC Committees, – Staff discussion and – protected time for education
  11. 47 Hospitals linked to the HfH Programme Saolta RCSI IE S / SW 12/05/17 Presentation Title goes here 13 RCSI Hospitals Groups Rotunda Hospital, Dublin Beaumont Hospital Connolly Hospital, Blanchardstown Cavan General Hospital Louth County Hospital, Dundalk Our Lady of Lourdes Hospital, Drogheda Saolta University Health Care Group University Hospital Galway and Merlin Park Letterkenny General Hospital Sligo Regional Hospital Mayo General Hospital Roscommon County Hospital Portiuncula Hospital, Ballinasloe Ireland East Hospitals Group Mater Misericordiae University Hospital National Maternity Hospital, Holles St Midland Regional Hospital Mullingar St Luke's General Hospital, Kilkenny Wexford General Hospital Our Lady's Hospital, Navan St Vincent’s University Hospital (Public) St Michael’s Hospital, Dun Laoghaire South / South West Hospital Group Cork University Hospital Cork University Maternity Hospital Bantry General Hospital Mallow General Hospital South Victoria University Hospital Mercy University Hospital South Tipperary General Hospital Kerry General Hospital University Hospital Waterford Dublin Midlands Hospital Group St James's Hospital Tallaght Hospital The Coombe Women and Infant University Hospital Naas General Hospital Midland Regional Hospital, Portlaoise Tullamore Hospital DM University of Limerick Hospitals Group University Hospital, Limerick University Maternity Hospital, Limerick Nenagh Hospital Ennis Hospital St John’s Hospital UL (August 2016) Children’s Hospitals Our Lady's Children's Hospital, Crumlin Templet St Children’s University Hospital Private Hospitals Mater Private Hospital The Galway Clinic Bons Secours Hospital, Dublin The Beacon Hospital, Dublin The Hermitage Medical Clinic S-SW Irl-East Saolta RCSI
  12. A Good Death (2014) A Reflection on Ombudsman Complaints about End of Life Care in Irish Hospitals Oifig an Ombudsman Office of the Ombudsman Website:
  13. Survey of Bereaved Relatives VOICES MaJam Results (2016) Mater Misericordiae University Hospital, Eccles Street, Dublin 7 St James’s Hospital, James’s Street, Dublin 8
  14. Voices – MaJam Survey of Bereaved Relatives •356 Relatives – 2 Hospitals – 46% Response Rate •Quality of Care • Outstanding – 34% • Excellent – 36% • Good – 17% • Fair– 7% • Poor– 5% • Don’t Know– 1%
  15. 10 years on ……. • Increased awareness of palliative and end of life issues • Service improvement focus and pivot for change • Facilitates practical expression of HSE corporate and staff values • Design and Dignity Grant system provides funding for build environment • Maternity and Child Networks highlight needs of particular groups
  16. Joint HSE-HfH Oversight Group • Provide recommendations on approach to mainstreaming the HfH programme across hospitals into the future. • Provide practical recommendations on increasing the level of awareness and communications associated with HfH across hospitals nationally • Provide recommendations on alignment of HfH within the broader Acute Hospital Division – quality and service improvement initiatives (e.g. National and Hospital Group Strategic / Operational plans).
  17. Joint HSE-HfH Oversight Group • Provide recommendations on alignment of HfH within other HSE division quality and service improvement initiatives (e.g. Quality Improvement, HR, Primary Care). • Assess the expansion opportunities for the HfH programme across the hospital system • With the agreement of the Hospital Group CEOs, the Oversight Group may facilitate joint and collaborative working across hospitals on specific initiatives or projects.
  18. Membership • Chairman • Clinical Programme representatives from Emergency Department, Older Persons, Paediatric Care and Palliative Care, • End-of-Life Coordinator reps x 2 • HfH Acute Network Chair • HSE (Acute Hospital Division) • HSE (Primary & Community Care) – 2018 • HSE (Quality Improvement) • Hospital Group CEOs • Hospital Group DoNs • IHF reps x 2 • Office of the Ombudsman
  19. So far ….. • Inaugural OG meeting – 8 May 2017 – 2Oct 2017 – Next meeting 19 Feb 2018 • Met Ombudsman (20 Oct ‘17) • Planning to meet Hospital Groups CEOs
  20. Themes to date Patient Experience: •How can HfH programme be informed by experience of patients and families? Linkages with Clinical Leads: •How can HfH cross reference existing outputs with HSE Clinical Programmes Education/Training: •Identify approach to review FJ training and determine other ways to improve content and access to education and training on end of life, palliative and bereavement care Care delivered at End-of-Life? •How can the oversight programme reduce variability that exposes care delivered at end of life?
  21. Working Relationships National Director Acute Hospitals Chair Oversight Group Joint Oversight Group Hospital Groups CEOs Hospitals and EoL Committees HSE (Primary & Community Care)
  22. Ireland – 65yrs+ • by 2020 – 1 in 4 will be >65 years • by 2050 - older people will outnumber children for the first time
  23. Ageing demography • Life Expectancy – – 83.5 yrs (female) – 79.3 yrs (male) • Census 2016 – 637,567 – an 19.1% increase since Census 2011 – projected to > by 167% by 2048
  24. It is essential that: –ALLHSE CEOs, DoNs & Clinicians/Clinical Leads buy-in and support • include HfH funding in their Annual Service Plans
  25. Happy 10th • Well done all • Keep up the good work … • Thank you ….