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Participatory Design 
with Older People
John Vines

Digital Interaction Group
Culture Lab, Newcastle University
di.ncl.ac.uk

email: john.vines@ncl.ac.uk

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John Vines
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outline of talk
09.35 A brief history of participatory design

09.55 Quick discussion

10.05 The challenges of ageing populations

10.25 Quick activity

10.35 BREAK

10.45 Case study of PD with Older People

11.15 Final discussion

11.30 Finish

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part one

a brief history of
participatory design

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a simple deļ¬nition

ā€˜Participatory Design (PD) represents [an] approach towards
computer systems design in which the people destined to use the
system play a critical role in designing it.ā€™

- Schuler & Namioka, 1993, p.xi
ā€¦ but it is often a lot more complicated than this!

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one time, in Scandinaviaā€¦

Participatory Design


Co-Operative Design
a concern with the politics of system design


no technology is ā€˜neutralā€™


dislocation and deskilling of workers


exertion of the management's control over their workforce


- Kensing & Blomberg, 1998
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questioning and alternatives
ā€˜we must use our curiosity and creativity to question solutions
[ā€¦] we must use the insight to help ordinary users raise similar
questions to the speciļ¬c technologies proposed to them. This
is an agenda that has many levels ā€“ from questioning wellestablished human-computer interaction paradigms, via
questioning IT strategies on a societal level, to helping users in
particular organisations participate in technological
development. The latter is what we often call participatory
design, but I would claim that it does not come without the
former.ā€™
- BĆødker, 2003, p.88
	
 Ā 

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traditions and transcendence
a fundamental tension in all ā€˜user-focusedā€™ systems design is
balancing an understanding and incorporation of existing
traditions with providing opportunities for individuals to
transcend and break existing boundaries
- Ehn, 1989

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John Vines
a little later, in the United States
ā€˜ā€¦ to empower users to act as full participants in the design of
systems that will have impact on their jobs and their work-lives. 
Ā 
ā€¦ to improve knowledge acquisition for design, and the quality
of the resulting system, by involving the people with job
expertise (the people who do the job) in the design process.
Ā 
ā€¦ to improve the ļ¬‚ow of the software engineering process by
bringing representatives from major components of that
process into the design phase a co-owners of the design.ā€™

- Muller, 1991, p.225
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the ā€˜third spaceā€™ of participatory design

- Muller, 2003
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John Vines
the ā€˜workshopā€™
ā€˜ā€¦ workshops are usually held to help diverse parties (ā€œstakeholdersā€) communicate
and commit to shared goals, strategies, and outcomes (e.g., analyses, designs,
and evaluations, as well as workplace-change objectives). Workshops are often
held at sites that are in a sense neutral ā€“ they are not part of the software
professionalsā€™ workplace, and they are not part of the workersā€™ workplace.ā€™

- Muller, 2003, p.1060

future workshops
- Kensing and Madsen, 1991
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resources to support participation

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diversiļ¬cation of participation

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warning: terminological overload!
The original term for Participatory Design
use in Scandinavia in the 1970s-late
1980s

co-operative design





Participatory design (with a big P)


participatory design (with a little p)


co-design (collaborative design)	
 Ā 


co-creation
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A view of end-user involvement in design
to destabilise power structures and
empower workers/users

A view of end-user involvement in design
to inform more approximately designed
systems and provide grounded insight


A balanced and integrative approach to
broad stakeholder and user involvement in
design	
 Ā 


As per co-design, but with core principle
that all people (and not just designers) are
creative and create their own systems

www.johnvines.eu

John Vines
quick thinking time!
Get together in pairs (or threes) andā€¦

1.ā€Æ ā€¦ deļ¬ne one potential ā€˜userā€™ group of technology that you
believe may beneļ¬t from being involved in a participatory
design process (donā€™t choose older people! ā€“ but do
choose something related to your MSc project if
appropriate).
2.ā€Æ ā€¦ come up with a research question or topic you think
might be interesting to explore in some design workshops
with this group.
	
 Ā 
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part two

the challenges of
ageing populations 

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ageing populations

Ageing demographics - ā€˜Veryā€™ old fastest growing age group worldwide

By 2050, over 65s will outnumber all children under the age of 14 worldwide

1/7th of all UK government public spending is on pensions
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the challenge for HCI
Accessibility is now law: Equality Act 2012
http://www.legislation.gov.uk/ukpga/2010/15/contents

The retirement age has risen and almost inevitably will again in the near
future meaning the workforce will include older users

The spending power of the over sixty-ļ¬ve population is enormous

Older users represent the biggest (and maybe the last) untapped source
of new internet users (only approx. 20% of over-70s use the internet at
the moment ā€“ but this is growing massively)

Some of the services offered on the web are almost perfect for helping
with independence in later life (i.e., internet shopping, online banking,
continued family communications)
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John Vines
the challenge for HCI
Most HCI research on the topic of ageing focuses on age-related
functional decline, OR on negative perceptions of ageing: 

-ā€Æ
-ā€Æ
-ā€Æ
-ā€Æ
-ā€Æ

Memory
Attention
Visual acuity
Dexterity
Hearing

-ā€Æ
-ā€Æ
-ā€Æ
-ā€Æ

Social Isolation
Safety
Risks
Disease and
Health Conditions

-ā€Æ
-ā€Æ
-ā€Æ
-ā€Æ
-ā€Æ

Fun
Enjoyment
Pleasure
Sharing Skills
?

See: http://www.nngroup.com/reports/accessibility/beyond_ALT_text.pdf

See: Vines et al. (in press ā€“ but I can send you an unpublished copy)

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the challenge for HCI
ā€œResearch on technologies for older people often associates
aging with disability and the need for care, and thus focuses
on topics such as augmenting memory or the social
resources required for older people to remain in their own
homes.ā€

 
 
 
 
 
 
 
ā€“ Gaver et al. 2010, p.2056

ā€œā€™Designing for older peopleā€, whether focused on disability or
development, has the tendency to direct attention to a single
dimension of comparison among people who may otherwise
have little in common.ā€ 

 
 
 
 
 
 
 
ā€“ Gaver et al. 2010, p.2064
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the challenge for HCI

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an even bigger challenge for HCI

Dementia is a global decline in cognitive function ā€“ this means 
that no aspect of your mental faculties is left unimpaired 

In the UK in 2010, 800,000 people live with dementia. 
Predicted to rise to 1m by 2021, and 1.7m by 2050.

If there is approx. 20 of us in this room, 6-9 of us will likely 
pass away with dementia (unless a cure is found)


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an even bigger challenge for HCI
Massive strain on
healthcare and society
as a wholeā€¦

ā€¦ but what about
supporting positive
experiences of dementia?


Wallace et al. 2013
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an even bigger challenge for HCI
Massive strain on
healthcare and society
as a wholeā€¦

ā€¦ but what about
supporting positive
experiences of dementia?


Lindsay et al. 2012
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question time!
You have been tasked with both arranging and facilitating
some participatory design workshops with a group of 80 year
olds, some of whom (but not all) have early-onset dementia ā€¦

ā€¦ in pairs or small groups, discuss what you think some of
the potential issues and problems you may come across in
both arranging and running these workshops.


	
 Ā 
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5-10 minutes!
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John Vines
practical issues
Older people (very generally!)

People living with dementia 
(again, very generally!)

ļ¬nding participants


ā€˜all of the aboveā€™, andā€¦

method of recruitment





reviewing and recapping

turning up for sessions


abstractness & focus on detail



consistent point of contact




diversity and heterogeneity

harnessing existing groups





deviating discussion

difļ¬culty articulating view





used to ā€˜get what youā€™re givenā€™


dominated by carers

sensory concerns
Lindsay et al. 2012b; Vines et al. 2012a; 2012b

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Lindsay et al. 2012a

John Vines
Break time!

10 minutes!
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part three

case study of
participatory design
with older people 
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case study
new approaches to banking for the older old

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case study
new approaches to banking for eighty somethings!

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methods used

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methods used
ļ¬nancial biographies

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methods used
ļ¬nancial biographies
stakeholder 
quote clustering

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John Vines
methods used
ļ¬nancial biographies
stakeholder 
quote clustering
group workshops

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John Vines
methods used
ļ¬nancial biographies
stakeholder 
quote clustering
group workshops
invisible design ļ¬lms

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John Vines
methods used
ļ¬nancial biographies
stakeholder 
quote clustering
group workshops
invisible design ļ¬lms
questionable
concept cards

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John Vines
methods used
ļ¬nancial biographies
stakeholder 
quote clustering
group workshops
invisible design ļ¬lms
questionable
concept cards
provotypes	
 Ā 

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John Vines
methods used
ļ¬nancial biographies
stakeholder 
quote clustering
group workshops
invisible design ļ¬lms
questionable
concept cards
provotypes	
 Ā 

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John Vines
biographies
semi-structured interviews and
visits to peoples homes

ask participants to tell us their life
story with occasional focused
questions of experiences of the
research topic

as interview develops, ask to be
shown relevant ā€˜artifactsā€™ and
ā€˜materialsā€™ around the home

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John Vines
ļ¬nancial biographies
ā€œI have a spot here where I save up. Iā€™ll
always have so much for the
housekeeping. ā€¦ I do have a certain
amount of cash which I like by me ā€¦ I go
to the bank and I get so much money out
of the bank. I make sure that I have so
much money in.ā€ ā€“ Jean, 88

ā€œI write out me carers, me gas, me light,
me phone and hair, feet - chiropodist,
water, television, St Leonardā€™s Hospice
which I support, church ā€“ how much I
donate each week and then I give a bit
extra at Christmas, that all goes down.ā€ ā€“
Thora, 89

ā€œIf I want anything out of the wall, Nigel will
get me 100 out if I need it.ā€ ā€“ Barbara, 95 

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John Vines
ļ¬nancial biographies
make participants feel at ease and
allows them to tell us stories of their life

provides a good understanding of
existing traditions, why people do
them based on their life story, and the
barriers new systems make

the ā€˜siteā€™ is peoples homes, meaning
they can access supplementary
materials to give more insight

not so useful for ā€˜transcendenceā€™

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John Vines
invisible design
short ļ¬lms, usually a dialogue
between two characters, about a
new technology one of the
characters is using

used in group workshops to prompt
discussion

the technology is in the scene but
never ā€˜seenā€™ (hence invisible)

created to promote discussion
about the experiences and context
of use of the technology, and not
physical qualities of the interface or
system
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John Vines
invisible design

go here to see the video: http://youtu.be/SL2LZ38ihPk


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John Vines
invisible design
ā€œWell I visualise it as a blank note with no sum on.ā€ - Margaret, 82

ā€œLike a cheque in other words.ā€ ā€“ Iris, 81

ā€œI donā€™t trust the banks, I donā€™t trust the ļ¬nance institutions, because itā€™s only one
operator ļ¬lling in one set of numbers, puts in the wrong number, the wrong initial
on a name, and youā€™re in hockā€ ā€“ Jean, 82

ā€œthe Queenā€™s head disappeared if handed to unauthorised payee. How do we
know we are going to buy something e.g. a lady goes shopping for shoes and
may visit 10 shops before she ļ¬nds what she wants. How does she pay if not one
of the authorised payees?ā€ ā€“ Rita, 84

ā€œif theyā€™d shown us some of the money that was supposed to be there, and how it
worked, it would be more helpful to meā€ ā€“ Edith, 87


John Vines
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invisible design
new design suggestions

suggestions of how existing (nondigital) technologies exist negating the
need for the new design

further understanding of existing
traditions, practices and desires
through participants concerns about
the invisible design

avoids focusing on tangible details ā€“
however, can be a signiļ¬cant barrier
to some people to participate
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John Vines
questionable concepts
a collection of cards provided to
participants in a pack to take home
with them after a workshop

each card has a pictorial illustration
of an idea ā€“ the idea relates to
insights from the biographies or
invisible design discussions

the idea is ā€˜questionableā€™ ā€“ i.e., not
entirely practical, feasible, and may
in some respects go against the
values of participants

The card also includes a set of
questions related to the ideas for
participants to answer 

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John Vines
questionable concepts

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John Vines
questionable concepts

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John Vines
questionable concepts

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John Vines
questionable concepts

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John Vines
questionable concepts
ā€œIf this actually came to pass it would
be just a way for the banks and
ļ¬nancial institutions to make more
money for the ā€œfatcatsā€ and the
shareholders and to exploit the man in
the streetā€- Rita, 83

ā€œā€œhide it in code among telephone
numbers in my diary.ā€ - Agatha, 81

ā€œI like the idea on the front of an iPad
type wallet ā€¦ But you could also, I feel,
have a card that you could put into a
computer or a screen and you would
call up your accounts, and see them.ā€
- Dolores, 81
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John Vines
questionable concepts
allows the telling of stories and
experiences people have had in their
lives relevant to the design context ā€“
again, understanding tradition

supports critique of ideas but also
creativity in the form of alternative
suggestions ā€“ transcendence reļ¬‚ecting
onto existing traditions

is tactile ā€“ something that is valued by
many older people ā€“ and can be
completed at home, offering time for
reļ¬‚ection

uncomplex data ā€“ writing on the cards,
scribbles of ideas, and discussions
prompted by each card
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John Vines
questions?









john.vines@ncl.ac.uk
 www.johnvines.eu
54

John Vines
references
BĆødker, S. 2003. A for Alternatives. Scandinavian Journal of Information Systems . 15, 1, 87-89.
Ā 
Briggs, P., Mark Blythe, John Vines, Stephen Lindsay, Paul Dunphy, James Nicholson, David Green, Jim Kitson,
Andrew Monk, and Patrick Olivier. 2012. Invisible design: exploring insights and ideas through ambiguous ļ¬lm
scenarios. In Proceedings of the Designing Interactive Systems Conference (DIS '12). ACM, New York, NY, USA,
534-543.
Ā 
Ehn, P. 1989. Work oriented design of computer artefacts. Stockholm, Arbetslivscentrum.
Ā 
Ehn, P., and Kyng, M. 1992. Cardboard Computers: Mockingit-up or Hands-on the Future. In: Design at Work .
Lawrence Erlbaum, 169-196.
Ā 
Gaver, W., Mark Blythe, Andy Boucher, Nadine Jarvis, John Bowers, and Peter Wright. 2010. The prayer
companion: openness and speciļ¬city, materiality and spirituality. In Proceedings of the SIGCHI Conference on
Human Factors in Computing Systems (CHI '10). ACM, New York, NY, USA, 2055-2064.
Ā 
Gaver, W., Andy Boucher, John Bowers, Mark Blythe, Nadine Jarvis, David Cameron, Tobie Kerridge, Alex Wilkie,
Robert Phillips, and Peter Wright. 2011. The photostroller: supporting diverse care home residents in engaging
with the world. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (CHI '11).
ACM, New York, NY, USA, 1757-1766.
Ā 

55

www.johnvines.eu

John Vines
references
Lindsay, S., Katie Brittain, Daniel Jackson, Cassim Ladha, Karim Ladha, and Patrick Olivier. 2012. Empathy,
participatory design and people with dementia. In Proceedings of the SIGCHI Conference on Human Factors in
Computing Systems (CHI '12). ACM, New York, NY, USA, 521-530.

Lindsay, S., Daniel Jackson, Guy Schoļ¬eld, and Patrick Olivier. 2012. Engaging older people using participatory
design. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (CHI '12).

Kensing, F., and Madsen, K.H. 1991. Generating visions: Future workshops and metaphorical design. In J.
Greenbaum & M. Kyng (eds.), Design at work: Cooperative design of computer systems. Hillsdale NJ US:
Erlbaum

Kensing, F., and Blomberg, J. 1998. Computer-Supported Cooperative Work, 7 (3-4), 167-185.

Muller, M. J. 1991. PICTIVEā€”an exploration in participatory design. In Proceedings of the SIGCHI Conference on
Human Factors in Computing Systems (CHI '91), Scott P. Robertson, Gary M. Olson, and Judith S. Olson (Eds.).
ACM, New York, NY, USA, 225-231.

Muller, M J. 2002. Participatory design: the third space in HCI. In The human-computer interaction handbook,
Julie A. Jacko and Andrew Sears (Eds.). L. Erlbaum Associates Inc., Hillsdale, NJ, USA 1051-1068.
Ā 
Schuler, D., and Namioka, A. 1993. Participatory design: Principles and practices. Lawrence Erlbaum, New
Jersey, USA.

56

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John Vines
references
Vines, J., Mark Blythe, Stephen Lindsay, Paul Dunphy, Andrew Monk, and Patrick Olivier. 2012. Questionable
concepts: critique as resource for designing with eighty somethings. In Proceedings of the SIGCHI Conference
on Human Factors in Computing Systems (CHI '12). ACM, New York, NY, USA, 1169-1178.
Ā 
Vines, J., Mark Blythe, Paul Dunphy, Vasillis Vlachokyriakos, Isaac Teece, Andrew Monk, and Patrick Olivier.
2012. Cheque mates: participatory design of digital payments with eighty somethings. In Proceedings of the
SIGCHI Conference on Human Factors in Computing Systems (CHI '12). ACM, New York, NY, USA,
1189-1198.

Vines, J., Mark Blythe, Paul Dunphy, and Andrew Monk. 2011. Eighty something: banking for the older old. In
Proceedings of the 25th BCS Conference on Human-Computer Interaction (BCS-HCI '11). British Computer
Society, Swinton, UK, UK, 64-73.
Ā 
Wallace, J., Wright, P., McCarthy, J., Green, D., Thomas, J., and Olivier, P. A design-led inquiry into Personhood
in Dementia. 2013. In proceedings of the SIGCHI Conference on Human Factors in Computing Systems (CHI
ā€™13), ACM, New York, NY, USA.Ā 

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Participatory Design with Older People (Feb 2014)

  • 1. Participatory Design with Older People John Vines Digital Interaction Group Culture Lab, Newcastle University di.ncl.ac.uk email: john.vines@ncl.ac.uk 1 www.johnvines.eu John Vines
  • 3. outline of talk 09.35 A brief history of participatory design 09.55 Quick discussion 10.05 The challenges of ageing populations 10.25 Quick activity 10.35 BREAK 10.45 Case study of PD with Older People 11.15 Final discussion 11.30 Finish 3 www.johnvines.eu John Vines
  • 4. part one a brief history of participatory design 4 www.johnvines.eu John Vines
  • 5. a simple deļ¬nition ā€˜Participatory Design (PD) represents [an] approach towards computer systems design in which the people destined to use the system play a critical role in designing it.ā€™ - Schuler & Namioka, 1993, p.xi ā€¦ but it is often a lot more complicated than this! 5 www.johnvines.eu John Vines
  • 6. one time, in Scandinaviaā€¦ Participatory Design Co-Operative Design a concern with the politics of system design no technology is ā€˜neutralā€™ dislocation and deskilling of workers exertion of the management's control over their workforce - Kensing & Blomberg, 1998 6 www.johnvines.eu John Vines
  • 8. questioning and alternatives ā€˜we must use our curiosity and creativity to question solutions [ā€¦] we must use the insight to help ordinary users raise similar questions to the speciļ¬c technologies proposed to them. This is an agenda that has many levels ā€“ from questioning wellestablished human-computer interaction paradigms, via questioning IT strategies on a societal level, to helping users in particular organisations participate in technological development. The latter is what we often call participatory design, but I would claim that it does not come without the former.ā€™ - BĆødker, 2003, p.88 Ā  8 www.johnvines.eu John Vines
  • 9. traditions and transcendence a fundamental tension in all ā€˜user-focusedā€™ systems design is balancing an understanding and incorporation of existing traditions with providing opportunities for individuals to transcend and break existing boundaries - Ehn, 1989 9 www.johnvines.eu John Vines
  • 10. a little later, in the United States ā€˜ā€¦ to empower users to act as full participants in the design of systems that will have impact on their jobs and their work-lives. Ā  ā€¦ to improve knowledge acquisition for design, and the quality of the resulting system, by involving the people with job expertise (the people who do the job) in the design process. Ā  ā€¦ to improve the ļ¬‚ow of the software engineering process by bringing representatives from major components of that process into the design phase a co-owners of the design.ā€™ - Muller, 1991, p.225 10 www.johnvines.eu John Vines
  • 11. the ā€˜third spaceā€™ of participatory design - Muller, 2003 11 www.johnvines.eu John Vines
  • 12. the ā€˜workshopā€™ ā€˜ā€¦ workshops are usually held to help diverse parties (ā€œstakeholdersā€) communicate and commit to shared goals, strategies, and outcomes (e.g., analyses, designs, and evaluations, as well as workplace-change objectives). Workshops are often held at sites that are in a sense neutral ā€“ they are not part of the software professionalsā€™ workplace, and they are not part of the workersā€™ workplace.ā€™ - Muller, 2003, p.1060 future workshops - Kensing and Madsen, 1991 12 www.johnvines.eu John Vines
  • 13. resources to support participation 13 www.johnvines.eu John Vines
  • 15. warning: terminological overload! The original term for Participatory Design use in Scandinavia in the 1970s-late 1980s co-operative design Participatory design (with a big P) participatory design (with a little p) co-design (collaborative design) Ā  co-creation 15 A view of end-user involvement in design to destabilise power structures and empower workers/users A view of end-user involvement in design to inform more approximately designed systems and provide grounded insight A balanced and integrative approach to broad stakeholder and user involvement in design Ā  As per co-design, but with core principle that all people (and not just designers) are creative and create their own systems www.johnvines.eu John Vines
  • 16. quick thinking time! Get together in pairs (or threes) andā€¦ 1.ā€Æ ā€¦ deļ¬ne one potential ā€˜userā€™ group of technology that you believe may beneļ¬t from being involved in a participatory design process (donā€™t choose older people! ā€“ but do choose something related to your MSc project if appropriate). 2.ā€Æ ā€¦ come up with a research question or topic you think might be interesting to explore in some design workshops with this group. Ā  16 www.johnvines.eu John Vines
  • 17. part two the challenges of ageing populations 17 www.johnvines.eu John Vines
  • 18. ageing populations Ageing demographics - ā€˜Veryā€™ old fastest growing age group worldwide By 2050, over 65s will outnumber all children under the age of 14 worldwide 1/7th of all UK government public spending is on pensions 18 www.johnvines.eu John Vines
  • 19. the challenge for HCI Accessibility is now law: Equality Act 2012 http://www.legislation.gov.uk/ukpga/2010/15/contents The retirement age has risen and almost inevitably will again in the near future meaning the workforce will include older users The spending power of the over sixty-ļ¬ve population is enormous Older users represent the biggest (and maybe the last) untapped source of new internet users (only approx. 20% of over-70s use the internet at the moment ā€“ but this is growing massively) Some of the services offered on the web are almost perfect for helping with independence in later life (i.e., internet shopping, online banking, continued family communications) 19 www.johnvines.eu John Vines
  • 20. the challenge for HCI Most HCI research on the topic of ageing focuses on age-related functional decline, OR on negative perceptions of ageing: -ā€Æ -ā€Æ -ā€Æ -ā€Æ -ā€Æ Memory Attention Visual acuity Dexterity Hearing -ā€Æ -ā€Æ -ā€Æ -ā€Æ Social Isolation Safety Risks Disease and Health Conditions -ā€Æ -ā€Æ -ā€Æ -ā€Æ -ā€Æ Fun Enjoyment Pleasure Sharing Skills ? See: http://www.nngroup.com/reports/accessibility/beyond_ALT_text.pdf See: Vines et al. (in press ā€“ but I can send you an unpublished copy) 20 www.johnvines.eu John Vines
  • 21. the challenge for HCI ā€œResearch on technologies for older people often associates aging with disability and the need for care, and thus focuses on topics such as augmenting memory or the social resources required for older people to remain in their own homes.ā€ ā€“ Gaver et al. 2010, p.2056 ā€œā€™Designing for older peopleā€, whether focused on disability or development, has the tendency to direct attention to a single dimension of comparison among people who may otherwise have little in common.ā€ ā€“ Gaver et al. 2010, p.2064 21 www.johnvines.eu John Vines
  • 22. the challenge for HCI 22 www.johnvines.eu John Vines
  • 23. an even bigger challenge for HCI Dementia is a global decline in cognitive function ā€“ this means that no aspect of your mental faculties is left unimpaired In the UK in 2010, 800,000 people live with dementia. Predicted to rise to 1m by 2021, and 1.7m by 2050. If there is approx. 20 of us in this room, 6-9 of us will likely pass away with dementia (unless a cure is found) 23 www.johnvines.eu John Vines
  • 24. an even bigger challenge for HCI Massive strain on healthcare and society as a wholeā€¦ ā€¦ but what about supporting positive experiences of dementia? Wallace et al. 2013 24 www.johnvines.eu John Vines
  • 25. an even bigger challenge for HCI Massive strain on healthcare and society as a wholeā€¦ ā€¦ but what about supporting positive experiences of dementia? Lindsay et al. 2012 25 www.johnvines.eu John Vines
  • 26. question time! You have been tasked with both arranging and facilitating some participatory design workshops with a group of 80 year olds, some of whom (but not all) have early-onset dementia ā€¦ ā€¦ in pairs or small groups, discuss what you think some of the potential issues and problems you may come across in both arranging and running these workshops. Ā  26 5-10 minutes! www.johnvines.eu John Vines
  • 27. practical issues Older people (very generally!) People living with dementia (again, very generally!) ļ¬nding participants ā€˜all of the aboveā€™, andā€¦ method of recruitment reviewing and recapping turning up for sessions abstractness & focus on detail consistent point of contact diversity and heterogeneity harnessing existing groups deviating discussion difļ¬culty articulating view used to ā€˜get what youā€™re givenā€™ dominated by carers sensory concerns Lindsay et al. 2012b; Vines et al. 2012a; 2012b 27 www.johnvines.eu Lindsay et al. 2012a John Vines
  • 29. part three case study of participatory design with older people 29 www.johnvines.eu John Vines
  • 30. case study new approaches to banking for the older old 30 www.johnvines.eu John Vines
  • 31. case study new approaches to banking for eighty somethings! 31 www.johnvines.eu John Vines
  • 34. methods used ļ¬nancial biographies stakeholder quote clustering 34 www.johnvines.eu John Vines
  • 35. methods used ļ¬nancial biographies stakeholder quote clustering group workshops 35 www.johnvines.eu John Vines
  • 36. methods used ļ¬nancial biographies stakeholder quote clustering group workshops invisible design ļ¬lms 36 www.johnvines.eu John Vines
  • 37. methods used ļ¬nancial biographies stakeholder quote clustering group workshops invisible design ļ¬lms questionable concept cards 37 www.johnvines.eu John Vines
  • 38. methods used ļ¬nancial biographies stakeholder quote clustering group workshops invisible design ļ¬lms questionable concept cards provotypes Ā  38 www.johnvines.eu John Vines
  • 39. methods used ļ¬nancial biographies stakeholder quote clustering group workshops invisible design ļ¬lms questionable concept cards provotypes Ā  39 www.johnvines.eu John Vines
  • 40. biographies semi-structured interviews and visits to peoples homes ask participants to tell us their life story with occasional focused questions of experiences of the research topic as interview develops, ask to be shown relevant ā€˜artifactsā€™ and ā€˜materialsā€™ around the home 40 www.johnvines.eu John Vines
  • 41. ļ¬nancial biographies ā€œI have a spot here where I save up. Iā€™ll always have so much for the housekeeping. ā€¦ I do have a certain amount of cash which I like by me ā€¦ I go to the bank and I get so much money out of the bank. I make sure that I have so much money in.ā€ ā€“ Jean, 88 ā€œI write out me carers, me gas, me light, me phone and hair, feet - chiropodist, water, television, St Leonardā€™s Hospice which I support, church ā€“ how much I donate each week and then I give a bit extra at Christmas, that all goes down.ā€ ā€“ Thora, 89 ā€œIf I want anything out of the wall, Nigel will get me 100 out if I need it.ā€ ā€“ Barbara, 95 41 www.johnvines.eu John Vines
  • 42. ļ¬nancial biographies make participants feel at ease and allows them to tell us stories of their life provides a good understanding of existing traditions, why people do them based on their life story, and the barriers new systems make the ā€˜siteā€™ is peoples homes, meaning they can access supplementary materials to give more insight not so useful for ā€˜transcendenceā€™ 42 www.johnvines.eu John Vines
  • 43. invisible design short ļ¬lms, usually a dialogue between two characters, about a new technology one of the characters is using used in group workshops to prompt discussion the technology is in the scene but never ā€˜seenā€™ (hence invisible) created to promote discussion about the experiences and context of use of the technology, and not physical qualities of the interface or system 43 www.johnvines.eu John Vines
  • 44. invisible design go here to see the video: http://youtu.be/SL2LZ38ihPk 44 www.johnvines.eu John Vines
  • 45. invisible design ā€œWell I visualise it as a blank note with no sum on.ā€ - Margaret, 82 ā€œLike a cheque in other words.ā€ ā€“ Iris, 81 ā€œI donā€™t trust the banks, I donā€™t trust the ļ¬nance institutions, because itā€™s only one operator ļ¬lling in one set of numbers, puts in the wrong number, the wrong initial on a name, and youā€™re in hockā€ ā€“ Jean, 82 ā€œthe Queenā€™s head disappeared if handed to unauthorised payee. How do we know we are going to buy something e.g. a lady goes shopping for shoes and may visit 10 shops before she ļ¬nds what she wants. How does she pay if not one of the authorised payees?ā€ ā€“ Rita, 84 ā€œif theyā€™d shown us some of the money that was supposed to be there, and how it worked, it would be more helpful to meā€ ā€“ Edith, 87 John Vines 45 www.johnvines.eu
  • 46. invisible design new design suggestions suggestions of how existing (nondigital) technologies exist negating the need for the new design further understanding of existing traditions, practices and desires through participants concerns about the invisible design avoids focusing on tangible details ā€“ however, can be a signiļ¬cant barrier to some people to participate 46 www.johnvines.eu John Vines
  • 47. questionable concepts a collection of cards provided to participants in a pack to take home with them after a workshop each card has a pictorial illustration of an idea ā€“ the idea relates to insights from the biographies or invisible design discussions the idea is ā€˜questionableā€™ ā€“ i.e., not entirely practical, feasible, and may in some respects go against the values of participants The card also includes a set of questions related to the ideas for participants to answer 47 www.johnvines.eu John Vines
  • 52. questionable concepts ā€œIf this actually came to pass it would be just a way for the banks and ļ¬nancial institutions to make more money for the ā€œfatcatsā€ and the shareholders and to exploit the man in the streetā€- Rita, 83 ā€œā€œhide it in code among telephone numbers in my diary.ā€ - Agatha, 81 ā€œI like the idea on the front of an iPad type wallet ā€¦ But you could also, I feel, have a card that you could put into a computer or a screen and you would call up your accounts, and see them.ā€ - Dolores, 81 52 www.johnvines.eu John Vines
  • 53. questionable concepts allows the telling of stories and experiences people have had in their lives relevant to the design context ā€“ again, understanding tradition supports critique of ideas but also creativity in the form of alternative suggestions ā€“ transcendence reļ¬‚ecting onto existing traditions is tactile ā€“ something that is valued by many older people ā€“ and can be completed at home, offering time for reļ¬‚ection uncomplex data ā€“ writing on the cards, scribbles of ideas, and discussions prompted by each card 53 www.johnvines.eu John Vines
  • 55. references BĆødker, S. 2003. A for Alternatives. Scandinavian Journal of Information Systems . 15, 1, 87-89. Ā  Briggs, P., Mark Blythe, John Vines, Stephen Lindsay, Paul Dunphy, James Nicholson, David Green, Jim Kitson, Andrew Monk, and Patrick Olivier. 2012. Invisible design: exploring insights and ideas through ambiguous ļ¬lm scenarios. In Proceedings of the Designing Interactive Systems Conference (DIS '12). ACM, New York, NY, USA, 534-543. Ā  Ehn, P. 1989. Work oriented design of computer artefacts. Stockholm, Arbetslivscentrum. Ā  Ehn, P., and Kyng, M. 1992. Cardboard Computers: Mockingit-up or Hands-on the Future. In: Design at Work . Lawrence Erlbaum, 169-196. Ā  Gaver, W., Mark Blythe, Andy Boucher, Nadine Jarvis, John Bowers, and Peter Wright. 2010. The prayer companion: openness and speciļ¬city, materiality and spirituality. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (CHI '10). ACM, New York, NY, USA, 2055-2064. Ā  Gaver, W., Andy Boucher, John Bowers, Mark Blythe, Nadine Jarvis, David Cameron, Tobie Kerridge, Alex Wilkie, Robert Phillips, and Peter Wright. 2011. The photostroller: supporting diverse care home residents in engaging with the world. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (CHI '11). ACM, New York, NY, USA, 1757-1766. Ā  55 www.johnvines.eu John Vines
  • 56. references Lindsay, S., Katie Brittain, Daniel Jackson, Cassim Ladha, Karim Ladha, and Patrick Olivier. 2012. Empathy, participatory design and people with dementia. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (CHI '12). ACM, New York, NY, USA, 521-530. Lindsay, S., Daniel Jackson, Guy Schoļ¬eld, and Patrick Olivier. 2012. Engaging older people using participatory design. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (CHI '12). Kensing, F., and Madsen, K.H. 1991. Generating visions: Future workshops and metaphorical design. In J. Greenbaum & M. Kyng (eds.), Design at work: Cooperative design of computer systems. Hillsdale NJ US: Erlbaum Kensing, F., and Blomberg, J. 1998. Computer-Supported Cooperative Work, 7 (3-4), 167-185. Muller, M. J. 1991. PICTIVEā€”an exploration in participatory design. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (CHI '91), Scott P. Robertson, Gary M. Olson, and Judith S. Olson (Eds.). ACM, New York, NY, USA, 225-231. Muller, M J. 2002. Participatory design: the third space in HCI. In The human-computer interaction handbook, Julie A. Jacko and Andrew Sears (Eds.). L. Erlbaum Associates Inc., Hillsdale, NJ, USA 1051-1068. Ā  Schuler, D., and Namioka, A. 1993. Participatory design: Principles and practices. Lawrence Erlbaum, New Jersey, USA. 56 www.johnvines.eu John Vines
  • 57. references Vines, J., Mark Blythe, Stephen Lindsay, Paul Dunphy, Andrew Monk, and Patrick Olivier. 2012. Questionable concepts: critique as resource for designing with eighty somethings. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (CHI '12). ACM, New York, NY, USA, 1169-1178. Ā  Vines, J., Mark Blythe, Paul Dunphy, Vasillis Vlachokyriakos, Isaac Teece, Andrew Monk, and Patrick Olivier. 2012. Cheque mates: participatory design of digital payments with eighty somethings. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (CHI '12). ACM, New York, NY, USA, 1189-1198. Vines, J., Mark Blythe, Paul Dunphy, and Andrew Monk. 2011. Eighty something: banking for the older old. In Proceedings of the 25th BCS Conference on Human-Computer Interaction (BCS-HCI '11). British Computer Society, Swinton, UK, UK, 64-73. Ā  Wallace, J., Wright, P., McCarthy, J., Green, D., Thomas, J., and Olivier, P. A design-led inquiry into Personhood in Dementia. 2013. In proceedings of the SIGCHI Conference on Human Factors in Computing Systems (CHI ā€™13), ACM, New York, NY, USA.Ā  57 www.johnvines.eu John Vines