Stakeholder Involvement in KCE Processes

Patrice Chalon
Patrice ChalonKnowledge Manager à KCE - Belgian Health Care Knowledge Centre
Stakeholder Involvement
in KCE Processes
Patrice Chalon24/06/2012
Piérart J., Léonard C., Chalon P., Daue F., Mertens R.
Study nr 2011-73 Methods
KCE Reports 174
KCE?
2
KCE?
3
KCE?
4
• Independent advice to policymakers
on all aspects of
health care and health insuranceWHAT?
• Collect and analyze objective
information from healthcare data,
scientific literature and clinical practice
• Use it to conduct scientific studies and
develop expertise
HOW?
Life cycle of a KCE report
Pre-
project
fiche
(PPF)
Project
fiche
Start of
procedures
meetingexperts
meetingexperts
meetingexperts
Pre-report
validation
Report
Publication
report on
website;
Press release
Validation
byBoard
Workprogram
Accepted
byBoard
Study
proposal
Evaluation
byKCE Identify team
(int or ext) ;
if external :
Public call for
tender
Rationale
 Already part of KCE’s research,
BUT not systematic or diversified
 Policy challenge
relevant - unambiguous - realistic
 Scientific challenge
openness - scientific rigor and objectivity
6
Results
1. Key principles
Literature & International comparison
2. Current experience at KCE
Discussion groups with all experts
3. Strategic objectives
7
Key principles – Who?
8
 Stakeholders are those who
o are affected
o have interests
o are able to influence
Key principles – Why?
9
 General objectives
o openness
o transparency
 Specific objectives
o gathering information
(relevant questions - unambiguous results - realistic recommendations)
o identification of controversy
Key principles – How?
10
Key principles – How?
11
Key principles – How?
12
 Skills
o Trustworthiness and respect
o Own involvement
o Openness; ‘perplexity’
o Objectivity and fairness
o Leadership and support
Current experience at KCE
Learnings
1. Longstanding practice
2. Involvement of Board
3. Involvement of Communities
4. To be understood by...
5. Stakeholders vs experts
Requests
6. Independence is a priority
7. Clear distinction to include in
the report
8. Training
9. Evaluation of impact
10.Knowledge base of
Stakeholders
Opportunities
11. Motivations of SH involvement
12. Adaptation to each project
13. Several levels of involvement
are possible
14. Key values are crucial
15. Steering committee
16. EMA and citizen’s panel
Fears
17. Timing is an obstacle
18. Patient’s involvment is the
most difficult
19. Ready to share all
information?
13
Strategic objectives
1.Make
subject
tangible
2.Get scope
and research
questions
right
3.Gain
acceptance
of methods
4.Reach
realistic
answers
5.Get
effective
communicati
on channels
Policy makers /
Institutions
Payers
Patients
Health care
profesionals
Industry
Academics
Press
14
Strategic objectives
Stakeholder
involvement
approaches
1.Make
subject
tangible
2.Get scope
and research
questions
right
3.Gain
acceptanc
e of
methods
4.Reach
realistic
answers
5.Get
effective
communi
cation
channels
Search press
+ +
On-site visits
K +
Individual interviews ‘typical’
stakeholders K K + +
Individual interviews key
informants + K + K
Focus groups
K + x
Discussion forum
K K K
Delphi methods
 +  +
Scenario Building Exercise
 + 
Consensus conference
 +  +
Deliberative polling
 
Online discussion groups/list
servers  +
Survey (Web, telephone, paper
self-administered, ...) K +
Use of social media
+  + +
Workshop
+ + K +
15
Strategic objectives
APPROACH 1 – On-site visits to healthcare providers or institutions
Example(s) KCE Reports 20 [Molecular Diagnostics in Belgium], 2005
KCE Reports 46 [Home Monitoring of Infants in Prevention of
Sudden Infant Death Syndrome], 2006
Objective Make the subject tangible (with the focus on the clinical and
practical aspects).
Timing At the onset of the project.
Who to
involve?
Providers/healthcare institution currently using the technology
(HTA) or providing the service (HSR) under study, or caring for
the condition covered by the guideline.
Selection Not necessarily via representative organizations; rather via
personal contacts; look for large-volume centres and quality-
conscious providers.
Level of
involvement
Information of the researchers.
Motivation Avoiding a purely theoretical stance.
Desired
output
Good grasp of the concrete (clinical) practicalities of a
technology, service or diagnostic or therapeutic approach,
including the regulatory/financial particularities (if debatable).
Appropriate
format
Non-interfering observation of the actual clinical processes,
alternated/followed by discussion with the providers and (if
needed and feasible) with patients. In any case, informed
consent is to be obtained from the patient.
Ideally, all researchers involved in the study should participate.
In practice, at least those involved in the editing of the
discussion and conclusions.
Duration ½ to 1 day.
Prior
information
need
Stakeholders need little prior information.
Researchers could benefit from prior acquaintance with the
technology, medical condition, jargon, regulatory framework.
Preparatory
material
None, or a set of remaining questions after preparatory
reading work.
Deliverable Brief description of the meeting (who, when , where), no
other specific deliverable; an introductory chapter of the final
study report, describing the problem, technology or service,
may benefit from the personal observation notes of the
researchers.
Follow-up In principle not applicable.
Level of
controversy
In theory, out of scope for this method; in practice, the very
fact that the researches belong to the KCE may create specific
perceptions among the providers, and bring out potentially
controversial aspects during the visits. Hence, the nature of
the visit, its objectives and the function in the project should
be made very clear.
Confidentiality All observations, and, a fortiori, all patient-related information
should remain strictly confidential.
Limits As representativity is not aimed for, the observations of the
researchers cannot be considered to be formal results, and do,
as such, not appear in the study report.
Risks of the
method
Perception bias and preconceptions in the researcher, based
upon a very limited, but potentially strong personal
experience. This could require to express these potential
preconceptions and test them with other actors, preferentially
with opposing views.
How to
evaluate?
Absence of signals that “researchers do not really know what
they are talking about” or similar suggestions.
16
APPROACH 1 – On-site visits to healthcare providers or
institutions
Example(s) KCE Reports 20 [Molecular Diagnostics in Belgium],
2005
KCE Reports 46 [Home Monitoring of Infants in
Prevention of Sudden Infant Death Syndrome], 2006
Objective Make the subject tangible (with the focus on the clinical
and practical aspects).
Timing At the onset of the project.
Who to
involve?
Providers/healthcare institution currently using the
technology (HTA) or providing the service (HSR) under
study, or caring for the condition covered by the
guideline.
Next steps
Process
notes
17
Trainings
18
THANK YOU!
1 sur 18

Recommandé

Improving the Impact of Patient-Engaged Research par
Improving the Impact of Patient-Engaged ResearchImproving the Impact of Patient-Engaged Research
Improving the Impact of Patient-Engaged ResearchPatient-Centered Outcomes Research Institute
412 vues14 diapositives
BIOMEDICAL STRATEGY - Patient Recruitment Presentation par
BIOMEDICAL STRATEGY - Patient Recruitment PresentationBIOMEDICAL STRATEGY - Patient Recruitment Presentation
BIOMEDICAL STRATEGY - Patient Recruitment PresentationBioMedical Strategy (2004) Ltd.
808 vues16 diapositives
Building A Team: Patient/Stakeholder – Researcher Matching� par
Building A Team: Patient/Stakeholder – Researcher Matching�Building A Team: Patient/Stakeholder – Researcher Matching�
Building A Team: Patient/Stakeholder – Researcher Matching�Patient-Centered Outcomes Research Institute
277 vues15 diapositives
Selecting research topic par
Selecting research topicSelecting research topic
Selecting research topicAmna Khairy
64 vues20 diapositives
Setting research objectives par
Setting research objectivesSetting research objectives
Setting research objectivesAmna Khairy
82 vues29 diapositives
Blueprinting update - 2014 Ottawa Conference par
Blueprinting update - 2014 Ottawa ConferenceBlueprinting update - 2014 Ottawa Conference
Blueprinting update - 2014 Ottawa ConferenceMedCouncilCan
748 vues17 diapositives

Contenu connexe

Tendances

DII - A Patient Engagement Workbook for Research Teams par
DII - A Patient Engagement Workbook for Research TeamsDII - A Patient Engagement Workbook for Research Teams
DII - A Patient Engagement Workbook for Research TeamsUCLA CTSI
437 vues31 diapositives
Clinical questions asked and pursued by rehabilitation therapists: An explora... par
Clinical questions asked and pursued by rehabilitation therapists: An explora...Clinical questions asked and pursued by rehabilitation therapists: An explora...
Clinical questions asked and pursued by rehabilitation therapists: An explora...Lorie Kloda
5.3K vues69 diapositives
Webinar 5: Identifying barriers and enablers, and determinants, in practice par
Webinar 5: Identifying barriers and enablers, and determinants, in practiceWebinar 5: Identifying barriers and enablers, and determinants, in practice
Webinar 5: Identifying barriers and enablers, and determinants, in practiceCanadian Patient Safety Institute
249 vues67 diapositives
PCORI Merit Review: Learning from Patients, Scientists and other Stakeholders par
PCORI Merit Review: Learning from Patients, Scientists and other StakeholdersPCORI Merit Review: Learning from Patients, Scientists and other Stakeholders
PCORI Merit Review: Learning from Patients, Scientists and other StakeholdersPatient-Centered Outcomes Research Institute
522 vues46 diapositives
Ethics Approval in Research Sample par
Ethics Approval in Research SampleEthics Approval in Research Sample
Ethics Approval in Research Sampledissertationprime
20K vues20 diapositives

Tendances(20)

DII - A Patient Engagement Workbook for Research Teams par UCLA CTSI
DII - A Patient Engagement Workbook for Research TeamsDII - A Patient Engagement Workbook for Research Teams
DII - A Patient Engagement Workbook for Research Teams
UCLA CTSI437 vues
Clinical questions asked and pursued by rehabilitation therapists: An explora... par Lorie Kloda
Clinical questions asked and pursued by rehabilitation therapists: An explora...Clinical questions asked and pursued by rehabilitation therapists: An explora...
Clinical questions asked and pursued by rehabilitation therapists: An explora...
Lorie Kloda5.3K vues
Translational Research - New Innovation Model par edavispurdue
Translational Research - New Innovation ModelTranslational Research - New Innovation Model
Translational Research - New Innovation Model
edavispurdue1.9K vues
JC SEBMA Prognosis Appraisal Template V1 par Imad Hassan
JC SEBMA Prognosis Appraisal Template V1JC SEBMA Prognosis Appraisal Template V1
JC SEBMA Prognosis Appraisal Template V1
Imad Hassan962 vues
K Succession Planning: Out of the box thinking for career development par HopkinsCFAR
K Succession Planning: Out of the box thinking for career developmentK Succession Planning: Out of the box thinking for career development
K Succession Planning: Out of the box thinking for career development
HopkinsCFAR523 vues
Let's Talk Research Annual Conference - 24th-25th September 2014 (Professor R... par NHSNWRD
Let's Talk Research Annual Conference - 24th-25th September 2014 (Professor R...Let's Talk Research Annual Conference - 24th-25th September 2014 (Professor R...
Let's Talk Research Annual Conference - 24th-25th September 2014 (Professor R...
NHSNWRD352 vues
Introduction to quantitative research (whole course) par Dr Ghaiath Hussein
Introduction to quantitative research (whole course)Introduction to quantitative research (whole course)
Introduction to quantitative research (whole course)
Evidence based orthodontics /certified fixed orthodontic courses by Indian d... par Indian dental academy
Evidence based orthodontics  /certified fixed orthodontic courses by Indian d...Evidence based orthodontics  /certified fixed orthodontic courses by Indian d...
Evidence based orthodontics /certified fixed orthodontic courses by Indian d...
Guidelines on the manner of application to the ethics committee in clinical t... par Serkan Kaçar
Guidelines on the manner of application to the ethics committee in clinical t...Guidelines on the manner of application to the ethics committee in clinical t...
Guidelines on the manner of application to the ethics committee in clinical t...
Serkan Kaçar1.6K vues
Tricks of the Trade: Patient Recruitment & Retention for Different Study Types par Imperial CRS
Tricks of the Trade: Patient Recruitment & Retention for Different Study TypesTricks of the Trade: Patient Recruitment & Retention for Different Study Types
Tricks of the Trade: Patient Recruitment & Retention for Different Study Types
Imperial CRS1K vues
Ethical Consideration On Writing Quality Dissertation | PhD Dissertation Writ... par PhD Assistance
Ethical Consideration On Writing Quality Dissertation | PhD Dissertation Writ...Ethical Consideration On Writing Quality Dissertation | PhD Dissertation Writ...
Ethical Consideration On Writing Quality Dissertation | PhD Dissertation Writ...
PhD Assistance168 vues
SafeCare presentation 2013.06.07 par Mike Johnson
SafeCare presentation 2013.06.07SafeCare presentation 2013.06.07
SafeCare presentation 2013.06.07
Mike Johnson342 vues

En vedette

Searching the Biomedical Literature : concepts par
Searching the Biomedical Literature : conceptsSearching the Biomedical Literature : concepts
Searching the Biomedical Literature : conceptsPatrice Chalon
402 vues52 diapositives
OAI-PMH for dummies: how to build an institutional repository with limited re... par
OAI-PMH for dummies: how to build an institutional repository with limited re...OAI-PMH for dummies: how to build an institutional repository with limited re...
OAI-PMH for dummies: how to build an institutional repository with limited re...Patrice Chalon
1.5K vues57 diapositives
Cies 2010 literature searching econlit par
Cies 2010 literature searching econlitCies 2010 literature searching econlit
Cies 2010 literature searching econlitPatrice Chalon
531 vues17 diapositives
Podcasts for Medical Library Patrons par
Podcasts for Medical Library PatronsPodcasts for Medical Library Patrons
Podcasts for Medical Library Patronsmark.pernotto
287 vues15 diapositives
Cies 2010 literature searching embase par
Cies 2010 literature searching embaseCies 2010 literature searching embase
Cies 2010 literature searching embasePatrice Chalon
294 vues28 diapositives
Open your mind! Selecting and implementing an integrated library system : the... par
Open your mind! Selecting and implementing an integrated library system : the...Open your mind! Selecting and implementing an integrated library system : the...
Open your mind! Selecting and implementing an integrated library system : the...Patrice Chalon
622 vues16 diapositives

En vedette(8)

Searching the Biomedical Literature : concepts par Patrice Chalon
Searching the Biomedical Literature : conceptsSearching the Biomedical Literature : concepts
Searching the Biomedical Literature : concepts
Patrice Chalon402 vues
OAI-PMH for dummies: how to build an institutional repository with limited re... par Patrice Chalon
OAI-PMH for dummies: how to build an institutional repository with limited re...OAI-PMH for dummies: how to build an institutional repository with limited re...
OAI-PMH for dummies: how to build an institutional repository with limited re...
Patrice Chalon1.5K vues
Cies 2010 literature searching econlit par Patrice Chalon
Cies 2010 literature searching econlitCies 2010 literature searching econlit
Cies 2010 literature searching econlit
Patrice Chalon531 vues
Podcasts for Medical Library Patrons par mark.pernotto
Podcasts for Medical Library PatronsPodcasts for Medical Library Patrons
Podcasts for Medical Library Patrons
mark.pernotto287 vues
Cies 2010 literature searching embase par Patrice Chalon
Cies 2010 literature searching embaseCies 2010 literature searching embase
Cies 2010 literature searching embase
Patrice Chalon294 vues
Open your mind! Selecting and implementing an integrated library system : the... par Patrice Chalon
Open your mind! Selecting and implementing an integrated library system : the...Open your mind! Selecting and implementing an integrated library system : the...
Open your mind! Selecting and implementing an integrated library system : the...
Patrice Chalon622 vues
Hype vs. Reality: The AI Explainer par Luminary Labs
Hype vs. Reality: The AI ExplainerHype vs. Reality: The AI Explainer
Hype vs. Reality: The AI Explainer
Luminary Labs497.8K vues
Study: The Future of VR, AR and Self-Driving Cars par LinkedIn
Study: The Future of VR, AR and Self-Driving CarsStudy: The Future of VR, AR and Self-Driving Cars
Study: The Future of VR, AR and Self-Driving Cars
LinkedIn869.9K vues

Similaire à Stakeholder Involvement in KCE Processes

Developing a fundable research question: 27 June 2017 par
Developing a fundable research question: 27 June 2017 Developing a fundable research question: 27 June 2017
Developing a fundable research question: 27 June 2017 RDSLondon
737 vues20 diapositives
Research & Research process.pptx par
Research & Research process.pptxResearch & Research process.pptx
Research & Research process.pptxlavanya209529
99 vues42 diapositives
How_to_write_a_research_proposal.pdf par
How_to_write_a_research_proposal.pdfHow_to_write_a_research_proposal.pdf
How_to_write_a_research_proposal.pdfAlejandro Cadavid Márquez
26 vues4 diapositives
How_to_write_a_research_proposal.pdf par
How_to_write_a_research_proposal.pdfHow_to_write_a_research_proposal.pdf
How_to_write_a_research_proposal.pdfOsvaldo Gutiérrez Benítez
6 vues4 diapositives
The effectiveness of continuing professional development par
The effectiveness of continuing professional developmentThe effectiveness of continuing professional development
The effectiveness of continuing professional developmentDr Lendy Spires
185 vues128 diapositives
The effectiveness of continuing professional development par
The effectiveness of continuing professional developmentThe effectiveness of continuing professional development
The effectiveness of continuing professional developmentDr Lendy Spires
346 vues128 diapositives

Similaire à Stakeholder Involvement in KCE Processes(20)

Developing a fundable research question: 27 June 2017 par RDSLondon
Developing a fundable research question: 27 June 2017 Developing a fundable research question: 27 June 2017
Developing a fundable research question: 27 June 2017
RDSLondon737 vues
Research & Research process.pptx par lavanya209529
Research & Research process.pptxResearch & Research process.pptx
Research & Research process.pptx
lavanya20952999 vues
The effectiveness of continuing professional development par Dr Lendy Spires
The effectiveness of continuing professional developmentThe effectiveness of continuing professional development
The effectiveness of continuing professional development
Dr Lendy Spires185 vues
The effectiveness of continuing professional development par Dr Lendy Spires
The effectiveness of continuing professional developmentThe effectiveness of continuing professional development
The effectiveness of continuing professional development
Dr Lendy Spires346 vues
Highlights from ExL Pharma's 4th Latin America Clinical Trials par ExL Pharma
Highlights from  ExL Pharma's 4th Latin America Clinical TrialsHighlights from  ExL Pharma's 4th Latin America Clinical Trials
Highlights from ExL Pharma's 4th Latin America Clinical Trials
ExL Pharma272 vues
Resourcd File par Resourcd
Resourcd FileResourcd File
Resourcd File
Resourcd231 vues
1. Rate yourself according to your confidence level performing the par SantosConleyha
1. Rate yourself according to your confidence level performing the1. Rate yourself according to your confidence level performing the
1. Rate yourself according to your confidence level performing the
1. Rate yourself according to your confidence level performing the par AbbyWhyte974
1. Rate yourself according to your confidence level performing the1. Rate yourself according to your confidence level performing the
1. Rate yourself according to your confidence level performing the
AbbyWhyte9744 vues
Implementation Research: A Primer par amusten
Implementation Research: A PrimerImplementation Research: A Primer
Implementation Research: A Primer
amusten2.1K vues
From logic model to data model: real and perceived barriers to research asses... par ORCID, Inc
From logic model to data model: real and perceived barriers to research asses...From logic model to data model: real and perceived barriers to research asses...
From logic model to data model: real and perceived barriers to research asses...
ORCID, Inc2.2K vues
From Logic Model to Data Model par dpokusa
From Logic Model to Data ModelFrom Logic Model to Data Model
From Logic Model to Data Model
dpokusa273 vues

Plus de Patrice Chalon

Information services and COVID-19 pandemics : 20 months later... par
Information services and COVID-19 pandemics : 20 months later...Information services and COVID-19 pandemics : 20 months later...
Information services and COVID-19 pandemics : 20 months later...Patrice Chalon
14 vues1 diapositive
Information services continuity during the COVID-19 pandemics: Lessons learne... par
Information services continuity during the COVID-19 pandemics: Lessons learne...Information services continuity during the COVID-19 pandemics: Lessons learne...
Information services continuity during the COVID-19 pandemics: Lessons learne...Patrice Chalon
113 vues33 diapositives
The EUnetHTA perspective on the HTA database par
The EUnetHTA perspective on the HTA databaseThe EUnetHTA perspective on the HTA database
The EUnetHTA perspective on the HTA databasePatrice Chalon
309 vues23 diapositives
The HTAi Vortal: a comparative analysis par
The HTAi Vortal: a comparative analysisThe HTAi Vortal: a comparative analysis
The HTAi Vortal: a comparative analysisPatrice Chalon
163 vues1 diapositive
Introduction to KCE methods guides par
Introduction to KCE methods guidesIntroduction to KCE methods guides
Introduction to KCE methods guidesPatrice Chalon
181 vues28 diapositives
Les fonctions OAI-PMH de PMB: moissonner et exposer avec PMB par
Les fonctions OAI-PMH de PMB: moissonner et exposer avec PMBLes fonctions OAI-PMH de PMB: moissonner et exposer avec PMB
Les fonctions OAI-PMH de PMB: moissonner et exposer avec PMBPatrice Chalon
428 vues29 diapositives

Plus de Patrice Chalon(20)

Information services and COVID-19 pandemics : 20 months later... par Patrice Chalon
Information services and COVID-19 pandemics : 20 months later...Information services and COVID-19 pandemics : 20 months later...
Information services and COVID-19 pandemics : 20 months later...
Patrice Chalon14 vues
Information services continuity during the COVID-19 pandemics: Lessons learne... par Patrice Chalon
Information services continuity during the COVID-19 pandemics: Lessons learne...Information services continuity during the COVID-19 pandemics: Lessons learne...
Information services continuity during the COVID-19 pandemics: Lessons learne...
Patrice Chalon113 vues
The EUnetHTA perspective on the HTA database par Patrice Chalon
The EUnetHTA perspective on the HTA databaseThe EUnetHTA perspective on the HTA database
The EUnetHTA perspective on the HTA database
Patrice Chalon309 vues
The HTAi Vortal: a comparative analysis par Patrice Chalon
The HTAi Vortal: a comparative analysisThe HTAi Vortal: a comparative analysis
The HTAi Vortal: a comparative analysis
Patrice Chalon163 vues
Introduction to KCE methods guides par Patrice Chalon
Introduction to KCE methods guidesIntroduction to KCE methods guides
Introduction to KCE methods guides
Patrice Chalon181 vues
Les fonctions OAI-PMH de PMB: moissonner et exposer avec PMB par Patrice Chalon
Les fonctions OAI-PMH de PMB: moissonner et exposer avec PMBLes fonctions OAI-PMH de PMB: moissonner et exposer avec PMB
Les fonctions OAI-PMH de PMB: moissonner et exposer avec PMB
Patrice Chalon428 vues
The new Vortal to offer services beyond the IRG par Patrice Chalon
The new Vortal to offer services beyond the IRG The new Vortal to offer services beyond the IRG
The new Vortal to offer services beyond the IRG
Patrice Chalon503 vues
EunetHTA Planned and Ongoing Projects database (POP DB) par Patrice Chalon
EunetHTA Planned and Ongoing Projects database (POP DB)EunetHTA Planned and Ongoing Projects database (POP DB)
EunetHTA Planned and Ongoing Projects database (POP DB)
Patrice Chalon246 vues
Building a Community of Practice for people in charge of HTA dissemination par Patrice Chalon
Building a Community of Practice for people in charge of HTA disseminationBuilding a Community of Practice for people in charge of HTA dissemination
Building a Community of Practice for people in charge of HTA dissemination
Patrice Chalon547 vues
Offering e-learning material for distant learning of EUnetHTA tools par Patrice Chalon
Offering e-learning material for distant learning of EUnetHTA toolsOffering e-learning material for distant learning of EUnetHTA tools
Offering e-learning material for distant learning of EUnetHTA tools
Patrice Chalon523 vues
NICC - EndNote X.4 Reference Management Software par Patrice Chalon
NICC - EndNote X.4 Reference Management SoftwareNICC - EndNote X.4 Reference Management Software
NICC - EndNote X.4 Reference Management Software
Patrice Chalon801 vues
CIES 2014 - Searching for articles in bibliographical databases - Concepts an... par Patrice Chalon
CIES 2014 - Searching for articles in bibliographical databases - Concepts an...CIES 2014 - Searching for articles in bibliographical databases - Concepts an...
CIES 2014 - Searching for articles in bibliographical databases - Concepts an...
Patrice Chalon666 vues
Identifying information retrieval research for systematic reviews and other e... par Patrice Chalon
Identifying information retrieval research for systematic reviews and other e...Identifying information retrieval research for systematic reviews and other e...
Identifying information retrieval research for systematic reviews and other e...
Patrice Chalon311 vues
Information specialists and Health technology Assessment: collaborating or tr... par Patrice Chalon
Information specialists and Health technology Assessment: collaborating or tr...Information specialists and Health technology Assessment: collaborating or tr...
Information specialists and Health technology Assessment: collaborating or tr...
Patrice Chalon373 vues
KM seeds to support a growing international collaboration: EUnetHTA and virtu... par Patrice Chalon
KM seeds to support a growing international collaboration: EUnetHTA and virtu...KM seeds to support a growing international collaboration: EUnetHTA and virtu...
KM seeds to support a growing international collaboration: EUnetHTA and virtu...
Patrice Chalon952 vues
Keeping up to date with information retrieval research: Summarized Research i... par Patrice Chalon
Keeping up to date with information retrieval research: Summarized Research i...Keeping up to date with information retrieval research: Summarized Research i...
Keeping up to date with information retrieval research: Summarized Research i...
Patrice Chalon1.6K vues
Evolution of the HTAi vortal : a user-centered approach par Patrice Chalon
Evolution of the HTAi vortal : a user-centered approachEvolution of the HTAi vortal : a user-centered approach
Evolution of the HTAi vortal : a user-centered approach
Patrice Chalon565 vues
From resource sharing to partnership: the case of the Belgian Federal Health ... par Patrice Chalon
From resource sharing to partnership: the case of the Belgian Federal Health ...From resource sharing to partnership: the case of the Belgian Federal Health ...
From resource sharing to partnership: the case of the Belgian Federal Health ...
Patrice Chalon333 vues

Dernier

Support Girl students with Education par
Support Girl students with EducationSupport Girl students with Education
Support Girl students with EducationSERUDS INDIA
6 vues6 diapositives
Dr. Ousmane Badiane - 2023 ReSAKSS Conference.pptx par
Dr. Ousmane Badiane - 2023 ReSAKSS Conference.pptxDr. Ousmane Badiane - 2023 ReSAKSS Conference.pptx
Dr. Ousmane Badiane - 2023 ReSAKSS Conference.pptxAKADEMIYA2063
8 vues34 diapositives
2023 Q1-Q2 Newsletter - First Tee Puerto Rico par
2023 Q1-Q2 Newsletter - First Tee Puerto Rico2023 Q1-Q2 Newsletter - First Tee Puerto Rico
2023 Q1-Q2 Newsletter - First Tee Puerto RicoFirst Tee Puerto Rico
36 vues15 diapositives
Social behavioural change to drive community ownership_ Divyang Waghela_Tata ... par
Social behavioural change to drive community ownership_ Divyang Waghela_Tata ...Social behavioural change to drive community ownership_ Divyang Waghela_Tata ...
Social behavioural change to drive community ownership_ Divyang Waghela_Tata ...India Water Portal
10 vues16 diapositives
November-2023 PPT roadsafetysuperoheros full slides.ppt par
November-2023 PPT roadsafetysuperoheros full slides.pptNovember-2023 PPT roadsafetysuperoheros full slides.ppt
November-2023 PPT roadsafetysuperoheros full slides.pptINDIAN YOUTH SECURED ORGANISATION
6 vues30 diapositives
Taking care of the elders par
Taking care of the eldersTaking care of the elders
Taking care of the eldersSERUDS INDIA
8 vues6 diapositives

Dernier(20)

Support Girl students with Education par SERUDS INDIA
Support Girl students with EducationSupport Girl students with Education
Support Girl students with Education
SERUDS INDIA6 vues
Dr. Ousmane Badiane - 2023 ReSAKSS Conference.pptx par AKADEMIYA2063
Dr. Ousmane Badiane - 2023 ReSAKSS Conference.pptxDr. Ousmane Badiane - 2023 ReSAKSS Conference.pptx
Dr. Ousmane Badiane - 2023 ReSAKSS Conference.pptx
AKADEMIYA20638 vues
Social behavioural change to drive community ownership_ Divyang Waghela_Tata ... par India Water Portal
Social behavioural change to drive community ownership_ Divyang Waghela_Tata ...Social behavioural change to drive community ownership_ Divyang Waghela_Tata ...
Social behavioural change to drive community ownership_ Divyang Waghela_Tata ...
Case study of Gokarna Multi-village scheme, Kumta, Karnataka_IIM-B_2023.pdf par India Water Portal
Case study of Gokarna Multi-village scheme, Kumta, Karnataka_IIM-B_2023.pdfCase study of Gokarna Multi-village scheme, Kumta, Karnataka_IIM-B_2023.pdf
Case study of Gokarna Multi-village scheme, Kumta, Karnataka_IIM-B_2023.pdf
Mrs. Tsitsi Makombe - 2023 ReSAKSS Conference par AKADEMIYA2063
Mrs. Tsitsi Makombe - 2023 ReSAKSS Conference Mrs. Tsitsi Makombe - 2023 ReSAKSS Conference
Mrs. Tsitsi Makombe - 2023 ReSAKSS Conference
AKADEMIYA20636 vues
Managing drinking water infrastructure in West Bengal Gram Panchayats_Sujata ... par India Water Portal
Managing drinking water infrastructure in West Bengal Gram Panchayats_Sujata ...Managing drinking water infrastructure in West Bengal Gram Panchayats_Sujata ...
Managing drinking water infrastructure in West Bengal Gram Panchayats_Sujata ...
Mukhya Mantri Gramin Peyjal Nishchay Yojana (MGPNY) – Bihar_Pankaj Kumar_AKRS... par India Water Portal
Mukhya Mantri Gramin Peyjal Nishchay Yojana (MGPNY) – Bihar_Pankaj Kumar_AKRS...Mukhya Mantri Gramin Peyjal Nishchay Yojana (MGPNY) – Bihar_Pankaj Kumar_AKRS...
Mukhya Mantri Gramin Peyjal Nishchay Yojana (MGPNY) – Bihar_Pankaj Kumar_AKRS...
Ms. Julie Collins - 2023 ReSAKSS Conference.pptx par AKADEMIYA2063
Ms. Julie Collins - 2023 ReSAKSS Conference.pptxMs. Julie Collins - 2023 ReSAKSS Conference.pptx
Ms. Julie Collins - 2023 ReSAKSS Conference.pptx
AKADEMIYA206312 vues
AABS project overview par WorldFish
AABS project overviewAABS project overview
AABS project overview
WorldFish26 vues
Arrow Adoption Training for Kinship Families par ArrowMarketing
Arrow Adoption Training for Kinship FamiliesArrow Adoption Training for Kinship Families
Arrow Adoption Training for Kinship Families
ArrowMarketing40 vues

Stakeholder Involvement in KCE Processes

  • 1. Stakeholder Involvement in KCE Processes Patrice Chalon24/06/2012 Piérart J., Léonard C., Chalon P., Daue F., Mertens R. Study nr 2011-73 Methods KCE Reports 174
  • 4. KCE? 4 • Independent advice to policymakers on all aspects of health care and health insuranceWHAT? • Collect and analyze objective information from healthcare data, scientific literature and clinical practice • Use it to conduct scientific studies and develop expertise HOW?
  • 5. Life cycle of a KCE report Pre- project fiche (PPF) Project fiche Start of procedures meetingexperts meetingexperts meetingexperts Pre-report validation Report Publication report on website; Press release Validation byBoard Workprogram Accepted byBoard Study proposal Evaluation byKCE Identify team (int or ext) ; if external : Public call for tender
  • 6. Rationale  Already part of KCE’s research, BUT not systematic or diversified  Policy challenge relevant - unambiguous - realistic  Scientific challenge openness - scientific rigor and objectivity 6
  • 7. Results 1. Key principles Literature & International comparison 2. Current experience at KCE Discussion groups with all experts 3. Strategic objectives 7
  • 8. Key principles – Who? 8  Stakeholders are those who o are affected o have interests o are able to influence
  • 9. Key principles – Why? 9  General objectives o openness o transparency  Specific objectives o gathering information (relevant questions - unambiguous results - realistic recommendations) o identification of controversy
  • 12. Key principles – How? 12  Skills o Trustworthiness and respect o Own involvement o Openness; ‘perplexity’ o Objectivity and fairness o Leadership and support
  • 13. Current experience at KCE Learnings 1. Longstanding practice 2. Involvement of Board 3. Involvement of Communities 4. To be understood by... 5. Stakeholders vs experts Requests 6. Independence is a priority 7. Clear distinction to include in the report 8. Training 9. Evaluation of impact 10.Knowledge base of Stakeholders Opportunities 11. Motivations of SH involvement 12. Adaptation to each project 13. Several levels of involvement are possible 14. Key values are crucial 15. Steering committee 16. EMA and citizen’s panel Fears 17. Timing is an obstacle 18. Patient’s involvment is the most difficult 19. Ready to share all information? 13
  • 14. Strategic objectives 1.Make subject tangible 2.Get scope and research questions right 3.Gain acceptance of methods 4.Reach realistic answers 5.Get effective communicati on channels Policy makers / Institutions Payers Patients Health care profesionals Industry Academics Press 14
  • 15. Strategic objectives Stakeholder involvement approaches 1.Make subject tangible 2.Get scope and research questions right 3.Gain acceptanc e of methods 4.Reach realistic answers 5.Get effective communi cation channels Search press + + On-site visits K + Individual interviews ‘typical’ stakeholders K K + + Individual interviews key informants + K + K Focus groups K + x Discussion forum K K K Delphi methods  +  + Scenario Building Exercise  +  Consensus conference  +  + Deliberative polling   Online discussion groups/list servers  + Survey (Web, telephone, paper self-administered, ...) K + Use of social media +  + + Workshop + + K + 15
  • 16. Strategic objectives APPROACH 1 – On-site visits to healthcare providers or institutions Example(s) KCE Reports 20 [Molecular Diagnostics in Belgium], 2005 KCE Reports 46 [Home Monitoring of Infants in Prevention of Sudden Infant Death Syndrome], 2006 Objective Make the subject tangible (with the focus on the clinical and practical aspects). Timing At the onset of the project. Who to involve? Providers/healthcare institution currently using the technology (HTA) or providing the service (HSR) under study, or caring for the condition covered by the guideline. Selection Not necessarily via representative organizations; rather via personal contacts; look for large-volume centres and quality- conscious providers. Level of involvement Information of the researchers. Motivation Avoiding a purely theoretical stance. Desired output Good grasp of the concrete (clinical) practicalities of a technology, service or diagnostic or therapeutic approach, including the regulatory/financial particularities (if debatable). Appropriate format Non-interfering observation of the actual clinical processes, alternated/followed by discussion with the providers and (if needed and feasible) with patients. In any case, informed consent is to be obtained from the patient. Ideally, all researchers involved in the study should participate. In practice, at least those involved in the editing of the discussion and conclusions. Duration ½ to 1 day. Prior information need Stakeholders need little prior information. Researchers could benefit from prior acquaintance with the technology, medical condition, jargon, regulatory framework. Preparatory material None, or a set of remaining questions after preparatory reading work. Deliverable Brief description of the meeting (who, when , where), no other specific deliverable; an introductory chapter of the final study report, describing the problem, technology or service, may benefit from the personal observation notes of the researchers. Follow-up In principle not applicable. Level of controversy In theory, out of scope for this method; in practice, the very fact that the researches belong to the KCE may create specific perceptions among the providers, and bring out potentially controversial aspects during the visits. Hence, the nature of the visit, its objectives and the function in the project should be made very clear. Confidentiality All observations, and, a fortiori, all patient-related information should remain strictly confidential. Limits As representativity is not aimed for, the observations of the researchers cannot be considered to be formal results, and do, as such, not appear in the study report. Risks of the method Perception bias and preconceptions in the researcher, based upon a very limited, but potentially strong personal experience. This could require to express these potential preconceptions and test them with other actors, preferentially with opposing views. How to evaluate? Absence of signals that “researchers do not really know what they are talking about” or similar suggestions. 16 APPROACH 1 – On-site visits to healthcare providers or institutions Example(s) KCE Reports 20 [Molecular Diagnostics in Belgium], 2005 KCE Reports 46 [Home Monitoring of Infants in Prevention of Sudden Infant Death Syndrome], 2006 Objective Make the subject tangible (with the focus on the clinical and practical aspects). Timing At the onset of the project. Who to involve? Providers/healthcare institution currently using the technology (HTA) or providing the service (HSR) under study, or caring for the condition covered by the guideline.

Notes de l'éditeur

  1. http://www.bbc.co.uk/news/world-europe-12402838 http://www.flickr.com/photos/59937401@N07/5930025654/ http://www.flickr.com/photos/ladylong/80149192/sizes/t/in/photostream/ http://www.flickr.com/photos/66581560@N02/6061943125/ http://www.flickr.com/photos/epsos/4582789354/ http://www.md.kku.ac.th/th/read_news.php?id_news=AAAAVF http://www.flickr.com/photos/sskennel/466632815/
  2. Fondation Roi Bauduin
  3. Tableau PF
  4. http://www.singaimani.com/category/manivannan-project-management-blog