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CARE OF THE PATIENT AT
END STAGE OF LIFE
1
Prof. Dr. RS Mehta, BPKIHS
NURSING AND END OF LIFE CARE
• Nurses can have a significant and lasting
effect on the way in which patients live until
they die, and the enduring memories of that
death to the families.
• Indeed, the definition of nursing itself
highlights nursing commitment to the
diagnosis and treatment of human responses to
illness( ANA)
2
Prof. Dr. RS Mehta, BPKIHS
TECHNOLOGYAND END OF LIFE CARE
• The application of technology to prolong life
has raised several ethical issues. In the later
part of 20th century, a “technologic imperative”
practice pattern among health care
professionals emerged, along with an
expectation from patients and families that
every available means to extend life must be
tried.
3
Prof. Dr. RS Mehta, BPKIHS
SETTINGS FOR END OF LIFE CARE
Palliative care
Hospice care
4
Prof. Dr. RS Mehta, BPKIHS
PALLIATIVE CARE
The word „palliative‟ means a medicine or
medical treatment that reduces pain without
curing its cause.
 WHO defines palliative care as the active,
total care of patients whose disease is not
responsive to treatment.
5
Prof. Dr. RS Mehta, BPKIHS
WHO recently expanded the definition of
palliative care as an approach that improves
the quality of life of patients and their families
facing the problems associated with life-
threatening illness, through the prevention and
relief of suffering by means of early
identification and impeccable assessment and
treatment of pain and other problems, physical,
psychosocial and spiritual.
6
Prof. Dr. RS Mehta, BPKIHS
PALLIATIVE CARE TEAM
• Physicians
• Registered nurses
• Social workers
• Chaplains
• Physiotherapists
• Occupational therapist
• Massage therapist
• Nutritionist
• Pharmacist
• Volunteers
7
Prof. Dr. RS Mehta, BPKIHS
HOSPICE CARE
• Hospice is a coordinated program of
interdisciplinary services provided by
professional caregivers and trained volunteers
to patients with serious, progressive illnesses
that are not responsive to care.
• The hospice philosophy recognizes death as the
final stage of life and seeks to enable patients to
continue a pain free life and to manage other
symptoms so that their last days may be spent with
dignity and quality, surrounded by their loved ones
8
Prof. Dr. RS Mehta, BPKIHS
TEAM MEMBERS
 Doctors
 Nurses
 Home health aids
 Spiritual counsellors
 Social workers
 Volunteers
 Bereavement counsellors
9
Prof. Dr. RS Mehta, BPKIHS
NURSING CARE OF TERMINALLY ILL
• Communication
• Spiritual care
• Hope
• Managing physiologic responses to terminal illness
• Palliative sedation at the end of life
10
Prof. Dr. RS Mehta, BPKIHS
COMMUNICATION
 Dying process can be a time of emotional crisis.
Effective communication helps in better coping for the
clients and family.
NURSES ROLE
 Maintanig good IPR so that the patient and family feels
free to speak.
 Good listening skill.
 Encouraging participatory approach.
 Use less directive skills like: silence
 Promote opportunity for discussion and demonstrate
willingness to listen patient‟s concern.
11
Prof. Dr. RS Mehta, BPKIHS
12
Prof. Dr. RS Mehta, BPKIHS
SPIRITUAL CARE
Spirituality contains features of
religiosity and involves the „search for
meaning and purpose in life and
relatedness to transcendent dimension‟.
13
Prof. Dr. RS Mehta, BPKIHS
MANAGING PHYSIOLOGIC RESPONSES
TO END OF LIFE
• Most encountered physical symptoms in clients at
the terminal phase of illnesses are:
 Pain
 Dyspnoea
 Cachexia- Anorexia syndrome
 Constipation
14
Prof. Dr. RS Mehta, BPKIHS
 PAIN
 most feared consequence of cancer
 Can result from the disease and the modalities used to
treat it
 Inability to communicate pain should not be equated
with the absence of pain
 Pharmacological and non pharmacological measures
 Less ability to swallow medicine by oral route, so
opoids via rectal or sublingual routes
 For opoids, regimen to combat constipation must be
implemented , rectal suppository or enemas may be
necessary
15
Prof. Dr. RS Mehta, BPKIHS
 DYSPNOEA
 Subjective experience described as difficult breathing
or an uncomfortable awareness of breathing that is
common in terminally ill patients.
 Client mentioned it in the form of labored breathing,
SOB, feeling of suffocation etc
 Assessment: increased respiratory rate, use of
accessory muscles, gasping or labored breathing,
restlessness and diaphoresis.
16
Prof. Dr. RS Mehta, BPKIHS
• Management
 Administering medical treatment for underlying
pathology : bronchodilators, corticosteroids, low
doses of opoids
 oxygen therapy
 Monitoring patients response to treatment
 Assisting the patient and family to manage anxiety
 For patient receiving care at home instruction should
include anticipation and management of crisis
situations, medication administration
 Patient and family members should be continuously
reassured
17
Prof. Dr. RS Mehta, BPKIHS
 CACHEXIA- ANOREXIA SYNDROME
 In Greek, chacexia means poor condition. Diagnostic
indicator is 5 pound weight loss in previous 2 months
or an estimated daily caloric intake of fewer than 70
calorie/kg body wt.
 It is caused due to chemical factors like cytokines,
interleukin, TNF release.
 Clinical manifestations: muscle loss, impaired
immunity, loss of body fat, glucose intolerance, fluid
retention, vitamin deficiency, fatigue and weakness
18
Prof. Dr. RS Mehta, BPKIHS
 Pharmacological Management
 Progestational agent
( most promising, can induce weight gain after
several weeks of treatment in maximal dose e.g.
megestrol acetate 160 mg TID)
 Corticosteroids
 Nausea vomiting treatment
19
Prof. Dr. RS Mehta, BPKIHS
 Non pharmacological management
 Stress management
 Assess impact of chemotherapy and radiotherapy
 Proper position
 proper oral care
 Assess and manage constipation
 Modify environment to eliminate unpleasant odours
20
Prof. Dr. RS Mehta, BPKIHS
CONSTIPATION
 Management
 Plenty of fluids
 High fibre diet
21
Prof. Dr. RS Mehta, BPKIHS
PALLIATIVE SEDATION AT END OF LIFE
• Control of symptoms offered to those patients who
are close to death, whose symptoms do not respond to
pharmacological and non-pharmacological
approaches and as a result are experiencing
unrelieved suffering.
• It is distinguished from euthanasia (physician-
assissted suicide) in that the palliative sedation is to
palliate the symptoms not to hasten the patient‟s
death.
22
Prof. Dr. RS Mehta, BPKIHS
• It is a multidisciplinary team approach. Infusion of
benzodiazepines or barbiturates in doses adequate to
induce sleep and eliminate signs of discomfort.
• Once sedation is achieved, nurses will need to
continue comfort care, monitor physiological effects
of sedation, support to family, ensure communication
within the team and between the team and family
members
23
Prof. Dr. RS Mehta, BPKIHS
Death: Criteria
• Skin: Cold Clammy
• No: P R BP
• No Reflexes: Superficial & DTR
• ECG: Flat 10 min
• EEG: Flat
• Calorie test: negative
• Declared by: physician
Consider: Post Mortem and Autopsy
Prof. Dr. RS Mehta, BPKIHS 24
Care of death and dying
25
Prof. Dr. RS Mehta, BPKIHS
26
Prof. Dr. RS Mehta, BPKIHS
Definition of dying
 Dying is the last stage
of life; a process that
from a medical point
of view begins when a
person has a disorder
that is untreatable
and inevitably ends in
DEATH, or the final
stages of a fatal
disease.
27
Prof. Dr. RS Mehta, BPKIHS
Dying
• Dying also can be said as the process of
decline in body functions resulting in death
• Dying is a process, whereas death is an event.
The essential task of the dying person is to
work through psychological responses toward
the reality of approaching death to a final and
peaceful acceptance of that reality.
28
Prof. Dr. RS Mehta, BPKIHS
Stages of dying/Response to dying
 Dr Kubler-Ross identified five stages of
grieving that dying patients and their families
may experience.
 They are denial, anger, bargaining , depression
and acceptance.
29
Prof. Dr. RS Mehta, BPKIHS
Stages of death
30
Prof. Dr. RS Mehta, BPKIHS
Dying person’s Bill of Rights
• Right to be treated as living human being
until the death
• Right to maintain the sense of hopefulness
however changing the focus may be.
• Right to be cared by those who can maintain
a sense of hopefulness
• Right to express feelings, emotions and
approaching death in own way.
31
Prof. Dr. RS Mehta, BPKIHS
Dying person’s Bill of Rights
 Right to participate in decision concerning
owns care.
 Right to expect continuing nursing and
medical care , even thought cure goal must
be changed to comfort goal
Right not to die alone
 Right to be free from pain
32
Prof. Dr. RS Mehta, BPKIHS
Dying person’s Bill of Rights
 Right to have
questions answered
honestly
 Right not to be
deceived
 Right to die in peace
and dignity
 Right to enlarge
religious and cultural
belief , regardless to
others
33
Prof. Dr. RS Mehta, BPKIHS
Management of dying patient
• Cassen (1991) suggests seven essential
features in the management of the dying
patient:
Concern: Empathy, compassion, and
involvement are essential.
Competence: Skill and knowledge can be as
reassuring as warmth and concern.
34
Prof. Dr. RS Mehta, BPKIHS
Management of dying patient
Communication: Allow
patients to speak their minds
and get to know them.
Children: If children want to
visit the dying, it is generally
advisable; they bring
consolation to dying patients.
Cohesion: Family cohesion
reassures both the patient
and family.
35
Prof. Dr. RS Mehta, BPKIHS
Management of dying patient
Cheerfulness: A gentle,
appropriate sense of humor
can be palliative; a somber or
anxious demeanor should be
avoided.
Consistency: Continuing,
persistent attention is highly
valued by patients who often
fear that they are a burden
and will be abandoned;
consistent physician
involvement mitigates these
fears.
36
Prof. Dr. RS Mehta, BPKIHS
37
Prof. Dr. RS Mehta, BPKIHS

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14. end life care critical care

  • 1. CARE OF THE PATIENT AT END STAGE OF LIFE 1 Prof. Dr. RS Mehta, BPKIHS
  • 2. NURSING AND END OF LIFE CARE • Nurses can have a significant and lasting effect on the way in which patients live until they die, and the enduring memories of that death to the families. • Indeed, the definition of nursing itself highlights nursing commitment to the diagnosis and treatment of human responses to illness( ANA) 2 Prof. Dr. RS Mehta, BPKIHS
  • 3. TECHNOLOGYAND END OF LIFE CARE • The application of technology to prolong life has raised several ethical issues. In the later part of 20th century, a “technologic imperative” practice pattern among health care professionals emerged, along with an expectation from patients and families that every available means to extend life must be tried. 3 Prof. Dr. RS Mehta, BPKIHS
  • 4. SETTINGS FOR END OF LIFE CARE Palliative care Hospice care 4 Prof. Dr. RS Mehta, BPKIHS
  • 5. PALLIATIVE CARE The word „palliative‟ means a medicine or medical treatment that reduces pain without curing its cause.  WHO defines palliative care as the active, total care of patients whose disease is not responsive to treatment. 5 Prof. Dr. RS Mehta, BPKIHS
  • 6. WHO recently expanded the definition of palliative care as an approach that improves the quality of life of patients and their families facing the problems associated with life- threatening illness, through the prevention and relief of suffering by means of early identification and impeccable assessment and treatment of pain and other problems, physical, psychosocial and spiritual. 6 Prof. Dr. RS Mehta, BPKIHS
  • 7. PALLIATIVE CARE TEAM • Physicians • Registered nurses • Social workers • Chaplains • Physiotherapists • Occupational therapist • Massage therapist • Nutritionist • Pharmacist • Volunteers 7 Prof. Dr. RS Mehta, BPKIHS
  • 8. HOSPICE CARE • Hospice is a coordinated program of interdisciplinary services provided by professional caregivers and trained volunteers to patients with serious, progressive illnesses that are not responsive to care. • The hospice philosophy recognizes death as the final stage of life and seeks to enable patients to continue a pain free life and to manage other symptoms so that their last days may be spent with dignity and quality, surrounded by their loved ones 8 Prof. Dr. RS Mehta, BPKIHS
  • 9. TEAM MEMBERS  Doctors  Nurses  Home health aids  Spiritual counsellors  Social workers  Volunteers  Bereavement counsellors 9 Prof. Dr. RS Mehta, BPKIHS
  • 10. NURSING CARE OF TERMINALLY ILL • Communication • Spiritual care • Hope • Managing physiologic responses to terminal illness • Palliative sedation at the end of life 10 Prof. Dr. RS Mehta, BPKIHS
  • 11. COMMUNICATION  Dying process can be a time of emotional crisis. Effective communication helps in better coping for the clients and family. NURSES ROLE  Maintanig good IPR so that the patient and family feels free to speak.  Good listening skill.  Encouraging participatory approach.  Use less directive skills like: silence  Promote opportunity for discussion and demonstrate willingness to listen patient‟s concern. 11 Prof. Dr. RS Mehta, BPKIHS
  • 12. 12 Prof. Dr. RS Mehta, BPKIHS
  • 13. SPIRITUAL CARE Spirituality contains features of religiosity and involves the „search for meaning and purpose in life and relatedness to transcendent dimension‟. 13 Prof. Dr. RS Mehta, BPKIHS
  • 14. MANAGING PHYSIOLOGIC RESPONSES TO END OF LIFE • Most encountered physical symptoms in clients at the terminal phase of illnesses are:  Pain  Dyspnoea  Cachexia- Anorexia syndrome  Constipation 14 Prof. Dr. RS Mehta, BPKIHS
  • 15.  PAIN  most feared consequence of cancer  Can result from the disease and the modalities used to treat it  Inability to communicate pain should not be equated with the absence of pain  Pharmacological and non pharmacological measures  Less ability to swallow medicine by oral route, so opoids via rectal or sublingual routes  For opoids, regimen to combat constipation must be implemented , rectal suppository or enemas may be necessary 15 Prof. Dr. RS Mehta, BPKIHS
  • 16.  DYSPNOEA  Subjective experience described as difficult breathing or an uncomfortable awareness of breathing that is common in terminally ill patients.  Client mentioned it in the form of labored breathing, SOB, feeling of suffocation etc  Assessment: increased respiratory rate, use of accessory muscles, gasping or labored breathing, restlessness and diaphoresis. 16 Prof. Dr. RS Mehta, BPKIHS
  • 17. • Management  Administering medical treatment for underlying pathology : bronchodilators, corticosteroids, low doses of opoids  oxygen therapy  Monitoring patients response to treatment  Assisting the patient and family to manage anxiety  For patient receiving care at home instruction should include anticipation and management of crisis situations, medication administration  Patient and family members should be continuously reassured 17 Prof. Dr. RS Mehta, BPKIHS
  • 18.  CACHEXIA- ANOREXIA SYNDROME  In Greek, chacexia means poor condition. Diagnostic indicator is 5 pound weight loss in previous 2 months or an estimated daily caloric intake of fewer than 70 calorie/kg body wt.  It is caused due to chemical factors like cytokines, interleukin, TNF release.  Clinical manifestations: muscle loss, impaired immunity, loss of body fat, glucose intolerance, fluid retention, vitamin deficiency, fatigue and weakness 18 Prof. Dr. RS Mehta, BPKIHS
  • 19.  Pharmacological Management  Progestational agent ( most promising, can induce weight gain after several weeks of treatment in maximal dose e.g. megestrol acetate 160 mg TID)  Corticosteroids  Nausea vomiting treatment 19 Prof. Dr. RS Mehta, BPKIHS
  • 20.  Non pharmacological management  Stress management  Assess impact of chemotherapy and radiotherapy  Proper position  proper oral care  Assess and manage constipation  Modify environment to eliminate unpleasant odours 20 Prof. Dr. RS Mehta, BPKIHS
  • 21. CONSTIPATION  Management  Plenty of fluids  High fibre diet 21 Prof. Dr. RS Mehta, BPKIHS
  • 22. PALLIATIVE SEDATION AT END OF LIFE • Control of symptoms offered to those patients who are close to death, whose symptoms do not respond to pharmacological and non-pharmacological approaches and as a result are experiencing unrelieved suffering. • It is distinguished from euthanasia (physician- assissted suicide) in that the palliative sedation is to palliate the symptoms not to hasten the patient‟s death. 22 Prof. Dr. RS Mehta, BPKIHS
  • 23. • It is a multidisciplinary team approach. Infusion of benzodiazepines or barbiturates in doses adequate to induce sleep and eliminate signs of discomfort. • Once sedation is achieved, nurses will need to continue comfort care, monitor physiological effects of sedation, support to family, ensure communication within the team and between the team and family members 23 Prof. Dr. RS Mehta, BPKIHS
  • 24. Death: Criteria • Skin: Cold Clammy • No: P R BP • No Reflexes: Superficial & DTR • ECG: Flat 10 min • EEG: Flat • Calorie test: negative • Declared by: physician Consider: Post Mortem and Autopsy Prof. Dr. RS Mehta, BPKIHS 24
  • 25. Care of death and dying 25 Prof. Dr. RS Mehta, BPKIHS
  • 26. 26 Prof. Dr. RS Mehta, BPKIHS
  • 27. Definition of dying  Dying is the last stage of life; a process that from a medical point of view begins when a person has a disorder that is untreatable and inevitably ends in DEATH, or the final stages of a fatal disease. 27 Prof. Dr. RS Mehta, BPKIHS
  • 28. Dying • Dying also can be said as the process of decline in body functions resulting in death • Dying is a process, whereas death is an event. The essential task of the dying person is to work through psychological responses toward the reality of approaching death to a final and peaceful acceptance of that reality. 28 Prof. Dr. RS Mehta, BPKIHS
  • 29. Stages of dying/Response to dying  Dr Kubler-Ross identified five stages of grieving that dying patients and their families may experience.  They are denial, anger, bargaining , depression and acceptance. 29 Prof. Dr. RS Mehta, BPKIHS
  • 30. Stages of death 30 Prof. Dr. RS Mehta, BPKIHS
  • 31. Dying person’s Bill of Rights • Right to be treated as living human being until the death • Right to maintain the sense of hopefulness however changing the focus may be. • Right to be cared by those who can maintain a sense of hopefulness • Right to express feelings, emotions and approaching death in own way. 31 Prof. Dr. RS Mehta, BPKIHS
  • 32. Dying person’s Bill of Rights  Right to participate in decision concerning owns care.  Right to expect continuing nursing and medical care , even thought cure goal must be changed to comfort goal Right not to die alone  Right to be free from pain 32 Prof. Dr. RS Mehta, BPKIHS
  • 33. Dying person’s Bill of Rights  Right to have questions answered honestly  Right not to be deceived  Right to die in peace and dignity  Right to enlarge religious and cultural belief , regardless to others 33 Prof. Dr. RS Mehta, BPKIHS
  • 34. Management of dying patient • Cassen (1991) suggests seven essential features in the management of the dying patient: Concern: Empathy, compassion, and involvement are essential. Competence: Skill and knowledge can be as reassuring as warmth and concern. 34 Prof. Dr. RS Mehta, BPKIHS
  • 35. Management of dying patient Communication: Allow patients to speak their minds and get to know them. Children: If children want to visit the dying, it is generally advisable; they bring consolation to dying patients. Cohesion: Family cohesion reassures both the patient and family. 35 Prof. Dr. RS Mehta, BPKIHS
  • 36. Management of dying patient Cheerfulness: A gentle, appropriate sense of humor can be palliative; a somber or anxious demeanor should be avoided. Consistency: Continuing, persistent attention is highly valued by patients who often fear that they are a burden and will be abandoned; consistent physician involvement mitigates these fears. 36 Prof. Dr. RS Mehta, BPKIHS
  • 37. 37 Prof. Dr. RS Mehta, BPKIHS