How to move Forward the Implementation of the EU Interoperability Recommendation to Establish Trust and user Acceptance. Part 2: Perspective of a Professional Users Organisation. Wilks M. eHealth week 2010 (Barcelona: CCIB Convention Centre; 2010)

1. Establishing trust and user
acceptance
Dr Michael Wilks
Immediate Past - President, CPME
Chairman, E-Health users’ stakeholder group

2. Is there a lack of trust?
• Trust in professionals
• variety of HCPs
• task shifting/ skill mixing
• professional attitudes
• Trust in systems
• data protection
• use of data beyond healthcare
• confidentiality

3. How to improve trust?
• Trust in professionals
• professional regulation
• sharing care openly within teams
• sharing care with patients
• Trust in systems
• access to records
• data protection
• ethical aspects – consent
• “joined-up” implementation

4. How to improve trust?
• Trust in professionals
• professional regulation
• sharing care openly within teams
• sharing care with patients
• Trust in systems
• access to records
• data protection
• ethical aspects – consent
• “joined-up” implementation

5. Data Protection or Consent?
Data Protection Consent
• Contract between • “Contract” between
HCP and law…. HCP and patient
• …after the event • Precedes the event
• Based on penalties • Based on trust
• Discourages • Encourages working
working together
together

6. Consent
LEVEL OF CONSENT
FULLY
ANONYMISED
INFORMED RESEARCH
RECORD
CONSENT
?
INFORMED FINANCIAL
CONSENT AUDIT
SPECIFIC EXTENDED
CONSENT HEALTHCARE
IMPLIED IMMEDIATE
CONSENT HEALTHCARE
DISTANCE FROM IMMEDIATE HEALTHCARE

7. How to improve trust?
• Trust in professionals
• professional regulation
• sharing care openly within teams – the team
• sharing care with patients
• Trust in systems
• access to records
• data protection
• ethical aspects – consent
• “joined-up” implementation

8. DOCTOR PATIENT
Manual record
Memory
Familiarity
Continuity

9. DOCTOR
DOCTOR PATIENT
NURSE

10. PHYSIO- COMMUNITY
PHARMACIST
THERAPIST NURSE
DOCTOR PATIENT DENTIST
THERAPIST
NURSE CHIROPODY TRAINEE
COMP. MED.

11. PHYSIO- COMMUNITY
PHARMACIST
THERAPIST NURSE
ELECTRONIC
DOCTOR PATIENT DENTIST
RECORD
NURSE THERAPIST NURSE

12. PHYSIO- COMMUNITY
PHARMACIST
THERAPIST NURSE
SUMMARY
DOCTOR RECORD DENTIST
NURSE THERAPIST NURSE

13. How to improve trust?
• Trust in professionals
• professional regulation
• sharing care openly within teams – skill mixing
• sharing care with patients
• Trust in systems
• access to records
• data protection
• ethical aspects – consent
• joined-up” implementation

14. ACUTE CARE
NURSE TRIAGE DOCTOR
LONG-TERM CARE
NURSE DOCTOR
LONG-TERM MONITORING
NURSE DOCTOR

15. How to improve trust?
• Trust in professionals
• professional regulation
• sharing care openly within teams – skill mixing
• sharing care with patients
• Trust in systems
• access to records
• data protection
• ethical aspects – consent
• joined-up” implementation

16. INFORMATION:
• Patient groups
INTERPRETATION • Web
(WEB-BASED?) RECORD • Media
• Clinicians
• HCPs
• Others
DOCTOR PATIENT
E-MAIL
REMOTE MONITORING
TELEMEDICINE

17. How to improve trust?
• Trust in professionals
• professional regulation
• sharing care openly within teams – skill mixing
• sharing care with patients
• Trust in systems
• access to records
• data protection
• ethical aspects – consent
• joined-up” implementation

18. Implementation
• Interoperability
• CALLIOPE
• epSOS
• eHealth Governance
• Joined-up DGs
• Stakeholder involvement

19. Cross-border care
COUNTRY A COUNTRY B
PATIENT
HCP “A” PATIENT SAFETY HCP “B”
• INTEROPERABILITY
• INFORMATION QUALITY
• STANDARDISATION
• SEMANTICS

20. Cross-border care
COUNTRY A COUNTRY B
SUMMARY
PRESCRIPTION
HCPs: HCPs:
- doctors - doctors
- pharmacists - pharmacists
Managers JOINT ACTIONManagers
Patients: Patients:
- information THEMATIC - information
- consent NETWORK - consent

21. Thank you