Construction of Expertise in the Age of the Internet: Psychotropic Drug Knowledge in Consumer-Constructed Websites

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Presented at Medicine 2.0 in Toronto, September 4, 2008. Official, expert drug accounts have become highly contested, and direct, consumer accounts found online may have potential to complement, supplement, or replace expertise.

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The Construction of Expertise in the Age of the Internet: Psychotropic Drug Knowledge in Online Consumer Accounts Shannon Hughes, MSW, Ph.D. Candidate Florida International University, Miami, FL Non-presenting author: David Cohen, Ph.D. Medicine 2.0 , Toronto, Ontario September 4-5, 2008

Speech of Drug User is Fundamental ,[object Object],[object Object],[object Object],Brunton, Lazo, & Parker (2006). Goodman & Gilman’s The Pharmacological Basis of Therapeutics, 11 th ed.

Randomized Controlled Trial (RCT) Mutes Users’ Voices ,[object Object],[object Object],[object Object],[object Object],[object Object]

Pharma Funds 70% of Research ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],Heres et al., 2006 Turner, et al., 2008

[object Object],[object Object],[object Object],(Ross et al., 2007; The New York Times , 2007)

Drugs are Marketing-Driven ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],$29.9 billion industry reporting $57.5 billion independent estimates (Donohue, Cevasco & Rosenthal, 2007) (Gagnon & Lexchin, 2008) ,[object Object],[object Object],[object Object]

Consumer Drug Experiences on the Internet ,[object Object],[object Object],[object Object]

Typology of Sites ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]

Where Can You Get The Full Drug Story? ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]

Are Consumer Drug Accounts Credible? ,[object Object],[object Object],- O'Neill, 2007

Head of Operations of a consumer-centric site: ,[object Object],[object Object]

Owner/moderator of a consumer-run forum: ,[object Object],[object Object]

Gauging Pharma Activity using Wikiscanner ,[object Object],[object Object],[object Object],[object Object]

Pharma Wikipedia Edits, 2002-2007 Omeprazole : Deleted sentence about heavy marketing of Nexium in the face of generic competition; Added summaries of several studies where Nexium outperforms Prilosec Drotrecogin alfa : Deleted word “deceptive” before “marketing campaign” ; Deleted 6 contraindications GlaxoSmithKline : Added paragraph about “Good Works” of company Total Edits Edits related to meds/pharma Example edited entries Astra Zeneca 949 23 (2.4%) quetiapine ; omeprazole Eli Lilly 832 38 (4.6%) drotrecogin alfa; Talk:fluoxetine GSK 1,148 31 (2.7%) GlaxoSmithKline

Authenticity is unresolved and evolving ,[object Object],[object Object]

Research, Clinical, Consumer Implications ,[object Object],[object Object],[object Object]

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Construction of Expertise in the Age of the Internet: Psychotropic Drug Knowledge in Consumer-Constructed Websites

1. The Construction of Expertise in the Age of the Internet: Psychotropic Drug Knowledge in Online Consumer Accounts Shannon Hughes, MSW, Ph.D. Candidate Florida International University, Miami, FL Non-presenting author: David Cohen, Ph.D. Medicine 2.0 , Toronto, Ontario September 4-5, 2008

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14. Pharma Wikipedia Edits, 2002-2007 Omeprazole : Deleted sentence about heavy marketing of Nexium in the face of generic competition; Added summaries of several studies where Nexium outperforms Prilosec Drotrecogin alfa : Deleted word “deceptive” before “marketing campaign” ; Deleted 6 contraindications GlaxoSmithKline : Added paragraph about “Good Works” of company Total Edits Edits related to meds/pharma Example edited entries Astra Zeneca 949 23 (2.4%) quetiapine ; omeprazole Eli Lilly 832 38 (4.6%) drotrecogin alfa; Talk:fluoxetine GSK 1,148 31 (2.7%) GlaxoSmithKline

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Construction of Expertise in the Age of the Internet: Psychotropic Drug Knowledge in Consumer-Constructed Websites

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