3. The “Final Frontier”
It isn’t space…
It’s the brain…
As Migraine and headache specialists, you
work in that frontier…
There are new frontiers for communicating
efficiently and effectively with patients.

4. What are patients seeking
online?
• Information
• Support
• Validation

5. Information…
• … about their disorder(s).
• … about medications/treatments prescribed for
them.
• … about new treatments.
• … on new research into
pathophysiology, genetics, the search for a
“cure.”
• … tips on living with their disorder(s).
• … about patient assistance programs and
affording care.

6. Support…
• Conversations with others who “get it.”
• Suggestions from people in similar situations.
• Networking to help each other.

7. Validation
• That they’re not alone.
• That they’re not “crazy.”
• That it’s not “all in their heads.”

8. Social Networking Sites
• Forget MySpace
• Most popular and useful are
and

9. Twitter
• “Microblogging”
• “Teaser” and link
• Comments
• Updates
• Follow others and “retweet”
• Build a following
• Many blogs will automatically post
notification of new blog entries to Twitter.

12. Facebook
• Consider two ID’s if you want to use it both
personally and professionally.
• Watch your privacy settings. Showing email is
more trouble than it’s worth.
• Great way to share information.
• Very useful for promotion.
• Very effective for communicating with people
with similar interests

13. Facebook (2)
• In addition to personal page, you can build
pages for web sites, blogs, etc.
• You can also start groups for specific interests.
• You don’t have to use all group features.
Consider spammers and other issues during
set-up.
• Many blogs will automatically post
notification of new blog entries to Facebook.

22. Please consider contributing to MigraineStigmaBusters.com…
• The stigma associated with Migraine increases the disease burden.
• This stigma can’t be reduced or eliminated without bringing it into the
light and educating people.
•This will be a long-term project.
•All kinds of content from short editorials to longer articles related to
Migraine. Anything that sheds light on Migraine can be worked into
“busting” the stigma
• Writers are to be patients, doctors, others who are interested.
• Goal of at least 50 participants. With that many, nobody would need to
write more than once a year.
• Do not need to know how to blog. Submissions can be sent to me via
email.

23. Please consider contributing to MigraineStigmaBusters.com…
Can you help? If you’re interested in being a contributor or in serving on a
steering committee for the project, please contact me.
This project is in the planning stages. I expect it to launch in the first
quarter of 2011.
Thank you!

25. Thank you for inviting me to be here. If you have
questions about social networking sites or would
like help getting set up to use them later, please
feel free to contact me.