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The Hardest to Reach: Examples Based on
work with Children with Disabilities
Professor Nora Groce, PhD
Leonard Cheshire Disability and Inclusive
Development Centre, University College London
Nora.groce@ucl.ac.uk
@LCDIDC
Putting Children First: October 23, 2017
Excluded Groups
 Among vulnerable population – a group of particularly ‘at risk’
– poorer/ more vulnerable/
 More likely to be excluded – harder to reach
 Gender/ ethnicity/ rural verses urban/ refugee children
CROSS-CUTTING – simplify rather than complicate
Here I will ask – (using children with disabilities as an example)
 What questions aren’t we asking
 How can we better develop initiatives that have
frameworks/models to be inclusive from the outset -
Children with Disabilities - Example of an ‘at risk’ population
 UNICEF estimates 150 million children with
disabilities worldwide
 Significantly more likely to face
multidimensional poverty through a causal
pathway of
 Social isolation for them and their families
 Lack of access to health care and rehabilitative care (where needed)
 Less likely to attend school - (with attendant benefits –i.e. nutrition
programs/ vaccinations
 Lack of preparation for employment
 Lack of social protection benefits – or where available lack of adequate
social benefits
Intra-household distribution of resources
Bridging the Gap: Disability and Development in Four African
Countries
ESRC/DFID Funded Poverty Alleviation Grant
 Researching interface between Disability and Development – (Health/ Education/ Livelihoods/Social
Projection in 4 African countries – (Sierra Leone, Zambia, Uganda, Kenya)
 Partners – 6 African Universities and 4 National Disabled Peoples Organizations (DPOs)
 Research included policy analysis/ secondary data analysis, HH Survey (4800), qualitative
(interview/focus groups)
 Looked specifically at the Disability and Development Gap –
 Hypothesis based on previous research that in situations of extreme poverty, economic status of people
with disabilities may not be markedly different in poverty terms than non-disabled members of their
household
 Unless children and adults with disabilities are included in mainstream development efforts, however
their situation remains the stationary while the lives of those around them improve – (School in village for
example)
RESULTS – thus far – Gap does exist – but findings are more NUANCED–
which raises a series of questions:
U.of Nairobi; Centre for Science and Technology; United Disabled Persons Kenya; Makerere University National Union of Disabled Persons of
Uganda; Institute of Economic and Social Research, University of Zambia; Zambia Agency for Persons with Disabilities; University of Sierra
Leone, Department of Sociology and Social Work; Sierra Leone Union of People with Disabilities; Stellenbosch University
ESRC/DFID Funded Project - http://www.ucl.ac.uk/leonard-cheshire-research/research/active-research-programmes/esrc-bridging-the-gaped
Poverty Alleviation Project -
What Questions are we not asking – particularly in relation
to the most vulnerable groups of children ?
 Law and policy important – but particularly for vulnerable children – is there
funding/budgeting to ensure policy implementation –
 How can we better mainstream issues related to at risk groups of children
 Twin Track approach from disability may be worth considering
 Compounded vulnerabilities – not just listing but how do they intersect – are they all equally
important? Can we prioritize where to intervene?
 Hearing the voices of children – ALL children – important – but how do we turn this
information into action?
 How can we better measure progress to make sure we’re going in the right direction – (For
example: Washington Group on Disability Statistics: www.washingtongroup-disability.com)
Conclusion: Evidence needed on nuances of most vulnerable - but in
responding - keep it as simple and mainstreamed as possible
THANK YOU
Professor Nora Groce, PhD
Leonard Cheshire Disability and Inclusive Development
Centre, University College London
 Nora.groce@ucl.ac.uk
@LCDIDC
 www.ucl.ac.uk/leonard-Cheshire-research

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Putting Children First: Session 1.4 Nora Groce - Reaching the hardest to reach [23-Oct-17]

  • 1. The Hardest to Reach: Examples Based on work with Children with Disabilities Professor Nora Groce, PhD Leonard Cheshire Disability and Inclusive Development Centre, University College London Nora.groce@ucl.ac.uk @LCDIDC Putting Children First: October 23, 2017
  • 2. Excluded Groups  Among vulnerable population – a group of particularly ‘at risk’ – poorer/ more vulnerable/  More likely to be excluded – harder to reach  Gender/ ethnicity/ rural verses urban/ refugee children CROSS-CUTTING – simplify rather than complicate Here I will ask – (using children with disabilities as an example)  What questions aren’t we asking  How can we better develop initiatives that have frameworks/models to be inclusive from the outset -
  • 3. Children with Disabilities - Example of an ‘at risk’ population  UNICEF estimates 150 million children with disabilities worldwide  Significantly more likely to face multidimensional poverty through a causal pathway of  Social isolation for them and their families  Lack of access to health care and rehabilitative care (where needed)  Less likely to attend school - (with attendant benefits –i.e. nutrition programs/ vaccinations  Lack of preparation for employment  Lack of social protection benefits – or where available lack of adequate social benefits Intra-household distribution of resources
  • 4. Bridging the Gap: Disability and Development in Four African Countries ESRC/DFID Funded Poverty Alleviation Grant  Researching interface between Disability and Development – (Health/ Education/ Livelihoods/Social Projection in 4 African countries – (Sierra Leone, Zambia, Uganda, Kenya)  Partners – 6 African Universities and 4 National Disabled Peoples Organizations (DPOs)  Research included policy analysis/ secondary data analysis, HH Survey (4800), qualitative (interview/focus groups)  Looked specifically at the Disability and Development Gap –  Hypothesis based on previous research that in situations of extreme poverty, economic status of people with disabilities may not be markedly different in poverty terms than non-disabled members of their household  Unless children and adults with disabilities are included in mainstream development efforts, however their situation remains the stationary while the lives of those around them improve – (School in village for example) RESULTS – thus far – Gap does exist – but findings are more NUANCED– which raises a series of questions: U.of Nairobi; Centre for Science and Technology; United Disabled Persons Kenya; Makerere University National Union of Disabled Persons of Uganda; Institute of Economic and Social Research, University of Zambia; Zambia Agency for Persons with Disabilities; University of Sierra Leone, Department of Sociology and Social Work; Sierra Leone Union of People with Disabilities; Stellenbosch University ESRC/DFID Funded Project - http://www.ucl.ac.uk/leonard-cheshire-research/research/active-research-programmes/esrc-bridging-the-gaped Poverty Alleviation Project -
  • 5. What Questions are we not asking – particularly in relation to the most vulnerable groups of children ?  Law and policy important – but particularly for vulnerable children – is there funding/budgeting to ensure policy implementation –  How can we better mainstream issues related to at risk groups of children  Twin Track approach from disability may be worth considering  Compounded vulnerabilities – not just listing but how do they intersect – are they all equally important? Can we prioritize where to intervene?  Hearing the voices of children – ALL children – important – but how do we turn this information into action?  How can we better measure progress to make sure we’re going in the right direction – (For example: Washington Group on Disability Statistics: www.washingtongroup-disability.com) Conclusion: Evidence needed on nuances of most vulnerable - but in responding - keep it as simple and mainstreamed as possible
  • 6. THANK YOU Professor Nora Groce, PhD Leonard Cheshire Disability and Inclusive Development Centre, University College London  Nora.groce@ucl.ac.uk @LCDIDC  www.ucl.ac.uk/leonard-Cheshire-research