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The pitfalls to achieving the standardisation and interoperability of clinical data by Dr. Rahil Qamar Siddiqui
1. 1
The pitfalls to achieving the
standardisation and interoperability
of clinical data
Dr. Rahil Qamar Siddiqui
Co-founder and Director
Sidqam Technologies Pvt. Ltd.
2. 2
Outline
The clinical record keeping journey
Advancements and implementations
Common pitfalls/barriers to adoption of
technology
Summary - How can we improve the
situation?
3. The Clinic Record Keeping Journey
3
1980s - Attempts to
electronically record patient
data using Read codes
1960s – Weed’s
PROMIS project,
Mayo Clinic’s EMR
4. Advancements and Implementations
4
2010s – Meaningful
Use Govt initiative
2000s - Summary
Care Records
Govt initiative
2000s – PCEHR
Govt initiative
2000s - National
Electronic Health Record
(NEHR) Govt initiative
Brazilian National
Health System
(SUS)
United Medi
Information
Analytical
System of
Moscow,
(EMIAS)
Regional Healthcare
Information Networks
(RHINs)
5. Clinical communities and
establishments that maintain
non-standardised and
unstructured digital health
records making it difficult to
exploit the advantages of using
technology
Clinical communities and
establishments that resist any
form of digitisation of health
records
Common Pitfalls/Barriers to
Adopting Technology .. (1)
5
Resistance
Category Type 1
Resistance
Category Type 2
6. IT vendors lack of
adopting technological
advancements to
improve user
experience and clear
benefits from digitising
health records
Government eHealth
initiatives that lack
mandation and
measurable ROI
Common Pitfalls/Barriers to
Adopting Technology .. (2)
6
Shortcomings
Category Type 1
Shortcomings
Category Type 2
General public
(probable patients)
are either not
engaged in their
health or find it too
mundane
The Disconnected
Patient
7. Summarising -
How Can We Improve the Situation?
7
Requires a significant change in the thinking and culture amongst clinicians and
clinical establishments
Government can help by rewarding adoption through a points-based system
where each level of adoption is incrementally rewarded
Government should invest efforts on a single, shared electronic health record
rather than a summary record to make it useful and effective
Empowering the patient by providing them with a single, unified view of their
entire health record irrespective of the point of care will get them more engaged
Emphasis must be on recording of structured and standardised data from the
offset rather than free-text to ensure high quality data, making digitisation worth
the effort
No one person or community can do it alone – it has to be a joint effort
8. 8
Thank you
Dr. Rahil Qamar Siddiqui
Co-founder and Director, Sidqam Technologies
Product: Eventus (A patient-centric EHR system)
rahil@sidqam.com | www.sidqam.com
Editor's Notes
With low adoption comes low use. The A single, shared electronic health record
In contrast to a summary record like the PCEHR, the Kimberley Aboriginal Medical Services Council (KAMSC), in collaboration with The University of Western Australia, is using a web-based electronic health record called MMEx for 22,000 mostly Aboriginal people in the Kimberley region of Western Australia.
With a patient’s consent, the record can be shared with the hospitals, visiting specialists and allied and mental health professionals. All care plans, medications and communications concerning the patient are electronic.
The difference between this approach and the PCEHR is that everyone is working off the same record. Practitioners have to work collaboratively, because their changes are immediately seen by everyone involved in the care of the patient. Combined with telehealth services, this means that care can be provided consistently through the Department of Health WA, KAMSC and the private sector.
The fact that we can’t look up when we, or a child, had a vaccination or were given a medication or had an X-ray is a reflection of how far behind technology the health industry is than say, banking. Of course, some health-care organisations, such as Kaiser Permanante in the United States have done exactly this, providing not only an electronic record; they have gone further by allowing customers to interact with their doctors using secure messaging and to make appointments electronically.