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A process for ACCREDITATION of HVP COUNTRY NODES




Mona El-Ruby Aida Falcon de Vargas Tilak Shrestha Graham Taylor Thomy de Ravel
   Egypt           Venezuela            Nepal           UK          Belgium
Setting
                                                Behaving                              Sharing    Building
         Normative
                                                Ethically                            Knowledge   Capacity
          Function

Picture Credits: Michael Mandiberg via Flickr, Henrik Moltke, Tim Smith and Chris Arnold
A process for accreditation of HVP Country Nodes
A process for accreditation of HVP Country Nodes
A process for accreditation of HVP Country Nodes
Accreditation of Country Nodes


CONSIDERATIONS to keep in mind
                 DIVERSITY between “NODES”
National ELSI issues

        CAPABILITIES of “NODE” in addressing issues

Experience of HVP Node Member

                                   ..........
Accreditation of Country Nodes


                     EVALUATION
                 CONTROL
         VERIFICATION
CERTIFICATION   STANDARDS CHECK
          MONITORING
                 QUALITY CONTROL
           EXAMINATION
                 REPORT BACK
                          ..........
Accreditation of Country Nodes




INTERNATIONAL SCIENTIFIC ADVISORY BODY

   INTERNATIONAL COORDINATING BODY

         HVP ETHICS COMMITTEE

                           ..........
Accreditation of Country Nodes


                            HOW

REGULAR SELF-REPORTING
             CONTENT of REPORT
            SUPPORTING Documents
PEER REVIEWED



..........
Accreditation of Country Nodes




eg 2 yearly – before HVP biennial meeting ?

PEER Reviewed pre-HVP meeting ?

FEEDBACK to Node


..........
Accreditation of Country Nodes




Peer Review
FEED BACK – constructive, offer to assist, ....




 ..........
Accreditation of Country Nodes




       Can a Country Node Lose Status?
                   If so, on what GROUNDS ?

If so, can you recognize a replacement COUNTRY NODE



      ..........
? Matrix for ASSESSING Genomic and Genetic Services in a COUNTRY
? Matrix for ASSESSING Genomic and Genetic Services in a COUNTRY




Kindly obtained from Helen Robinson & Tim Smith
? Matrix for ASSESSING Genomic and Genetic Services in a COUNTRY




Kindly given by Helen Robinson & Tim Smith
Follow up assessment

? Matrix for ASSESSING Genomic and Genetic Services in a COUNTRY




Kindly given by Helen Robinson & Tim Smith
A process for accreditation of HVP Country Nodes

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A process for accreditation of HVP Country Nodes

  • 1. A process for ACCREDITATION of HVP COUNTRY NODES Mona El-Ruby Aida Falcon de Vargas Tilak Shrestha Graham Taylor Thomy de Ravel Egypt Venezuela Nepal UK Belgium
  • 2. Setting Behaving Sharing Building Normative Ethically Knowledge Capacity Function Picture Credits: Michael Mandiberg via Flickr, Henrik Moltke, Tim Smith and Chris Arnold
  • 6. Accreditation of Country Nodes CONSIDERATIONS to keep in mind DIVERSITY between “NODES” National ELSI issues CAPABILITIES of “NODE” in addressing issues Experience of HVP Node Member ..........
  • 7. Accreditation of Country Nodes EVALUATION CONTROL VERIFICATION CERTIFICATION STANDARDS CHECK MONITORING QUALITY CONTROL EXAMINATION REPORT BACK ..........
  • 8. Accreditation of Country Nodes INTERNATIONAL SCIENTIFIC ADVISORY BODY INTERNATIONAL COORDINATING BODY HVP ETHICS COMMITTEE ..........
  • 9. Accreditation of Country Nodes HOW REGULAR SELF-REPORTING CONTENT of REPORT SUPPORTING Documents PEER REVIEWED ..........
  • 10. Accreditation of Country Nodes eg 2 yearly – before HVP biennial meeting ? PEER Reviewed pre-HVP meeting ? FEEDBACK to Node ..........
  • 11. Accreditation of Country Nodes Peer Review FEED BACK – constructive, offer to assist, .... ..........
  • 12. Accreditation of Country Nodes Can a Country Node Lose Status? If so, on what GROUNDS ? If so, can you recognize a replacement COUNTRY NODE ..........
  • 13. ? Matrix for ASSESSING Genomic and Genetic Services in a COUNTRY
  • 14. ? Matrix for ASSESSING Genomic and Genetic Services in a COUNTRY Kindly obtained from Helen Robinson & Tim Smith
  • 15. ? Matrix for ASSESSING Genomic and Genetic Services in a COUNTRY Kindly given by Helen Robinson & Tim Smith
  • 16. Follow up assessment ? Matrix for ASSESSING Genomic and Genetic Services in a COUNTRY Kindly given by Helen Robinson & Tim Smith

Notes de l'éditeur

  1. Four overlapping pillars:They are not mutually exclusive: they are merely a way of organising ideas and priorities and should not be seen as siloing or restricting ideas or informationWe should be looking for activities and projects that combine more than one pillarThe four areas are identified as a means of grouping related activities for measurement and reportingSetting Normative Function:Defining the standards, systems and infrastructure that comprise the Human Variome Project as well as the processes an best practices that govern their operationBehaving ethically:Ensuring that everything we do is done in a manner that is aware of the ethical, legal and social differences that span the world and our consortium and that the Project is seen to be at the forefront of national and international debates of these issues.Sharing Knowledge:Sharing the techniques and best practice for collection, curation, interpretation and sharing of genetic variation data,providing public education initiatives and sharing of knowledge to advance the field of medical genetics and genomics to those who can influence the growth of the fieldBuilding Capacity:Working with stakeholders in countries and regions to increaseeducation andskills training and integrate medical genetics and genomics into public health programs