Dementia State Plan: Virginia’s Response to the Needs of Individuals with Dementia and their Caregivers.

1. Alzheimer’s Disease and Related Disorders Commission
Dementia State Plan:
Virginia’s Response to the Needs of
Individuals with Dementia
and their Caregivers
December 15, 2011
Live Webinar
Panelists: Members of the Virginia Alzheimer’s Disease and
Related Disorders Commission’s Cores
Moderator: Dr. Patricia Slattum, Chair, Virginia Alzheimer’s Disease
and Related Disorders Commission

2. Background/Need
US Now: ≈ 5.4 million people are living with AD,
someone develops the disease every 69 seconds.
2050: ≈ 16 million Americans will have AD
someone will develop the disease every 33 seconds.
In 2010, 14.9 million family members and friends provided 17 billion
hours of unpaid care to those with Alzheimer’s and other dementias –
care valued at $202.6 billion.
For Virginia, these statistics are:
Virginians Aged 65 and Older with Alzheimer’s by Age
% Change Number of Total Hours of Total Value of
YEAR 65-74 75-84 85+ Total from 2000 YEAR Caregivers Unpaid Care Unpaid Care
2000 7,100 56,000 41,000 100,000 2008 250,025 215,821,226 2,395,615,613
2010 6,600 59,000 61,000 130,000 30%
2009 280,043 318,912,890 3,667,298,236
2020 8,900 64,000 67,000 140,000 40%
2025 10,000 77,000 71,000 160,000 60% 2010 422,116 480,706,197 5,734,824,927

3. How We Got Here?
The Commonwealth of Virginia's Alzheimer's
Disease and Related Disorders Commission
was created in 1982.
Since then, Commission has served as an advisory vehicle and
information hub across the Commonwealth.
In 2009, the Commission began reviewing other
The Commission conducted
existing state plans for dementia with the intent
Public Listening sessions in five
of more formally creating a plan for action to
locations across the
improve the lives of Virginians affected by
Commonwealth.
Alzheimer's disease and related disorders.
These sessions were followed by
extensive review by Commission members Once input was gathered, the
and community stakeholders. Commission, guided by optimal aging theory
and stress and coping theory, drafted the plan.
The Commission partnered with stakeholders throughout Virginia who
contributed to the development and who ultimately will work with the
Commission to implement the plan.

4. GOALS
GOAL I: Coordinate Quality Dementia Services in the
Commonwealth to Ensure Dementia Capability
GOAL II: Use Dementia Related Data to Improve Public
Health Outcomes
GOAL III: Increase Awareness and Create Dementia
Specific Training
GOAL IV: Provide Access to Quality Coordinated Care for
Individuals with Dementia in the Most
Integrated Setting
GOAL V: Expand Resources for Dementia Specific
Translational Research and Evidence-Based
Practices

5. GOAL I
GOAL I: Coordinate Quality Dementia Services in the
Commonwealth to Ensure Dementia Capability
A. Create a dementia services coordinator.
B. Expand availability and access of dementia capable
Medicaid and other state-level services.
C. Create a statewide network of memory disorders clinics
to assess and treat persons with dementia.
Audience poll will be launched shortly:
Can B) and C) be made possible without A)?
Feel free to provide additional feedback/questions through the Questions tab.

6. GOAL II
GOAL II: Use Dementia Related Data to Improve Public
Health Outcomes
A: Collect and monitor data related to dementia’s impact on
the people of the Commonwealth.
B: Remove barriers for community integration for persons
with dementia.
C: Collaborate with related public health efforts to
encourage possible risk-reduction strategies.
Audience poll will be launched shortly:
How would you prioritize the three points, A), B), C)?
Feel free to provide additional feedback/questions through the Questions tab.

7. GOAL III
GOAL III: Increase Awareness and Create Dementia
Specific Training
A: Provide standardized dementia specific training to
individuals in the health-related field and require
demonstrated competency.
B: Provide dementia specific training to professional first
responders, financial services personnel, and the legal
profession.
C: Link caregivers, family members and individuals with
dementia to information about dementia services.
Audience poll will be launched shortly:
How would you prioritize the three points, A), B), C)?
Feel free to provide additional feedback/questions through the Questions tab.

8. GOAL IV
GOAL IV: Provide Access to Quality Coordinated Care for
Individuals with Dementia in the Most Integrated
Setting
A: Advocate for and increase awareness of integrated
systems of care coordination that effectively support
improved health outcomes for individuals with dementias
and their families and loved ones.
B: Explore tax incentives for family caregiving, respite care,
long term care insurance purchases, locator devices, and
additional long term care services.
C: Advocate for accessible transportation systems.
Audience poll will be launched shortly:
How would you prioritize the three points, A), B), C)?
Feel free to provide additional feedback/questions through the Questions tab.

9. GOAL V
GOAL V: Expand Resources for Dementia Specific
Translational Research and Evidence-Based
Practices
A: Increase funding for the Alzheimer’s and Related
Diseases Research Award Fund.
B: Provide support to researchers across the
Commonwealth through data sources and
networking opportunities.
C: Promote research participation in Virginia.
Audience poll will be launched shortly:
How would you prioritize the three points, A), B), C)?
Feel free to provide additional feedback/questions through the Questions tab.

10. INITIAL QUESTION
Which of the five goals should be the top priority in implementation?
1. GOAL I: Coordinate Quality Dementia Services in the Commonwealth to
Ensure Dementia Capability
2. GOAL II: Use Dementia Related Data to Improve Public Health
Outcomes
3. GOAL III: Increase Awareness and Create Dementia Specific Training
4. GOAL IV: Provide Access to Quality Coordinated Care for Individuals
with Dementia in the Most Integrated Setting
5. GOAL V: Expand Resources for Dementia Specific Translational
Research and Evidence-Based Practices

11. Moving Forward
1. The Commission specifically recommends and urges the creation of a
Dementia Services Coordinator, as described in the Dementia State
Plan. This position could be created within the new agency, proposed by the
Governor to include the functions of the Department for the Aging. (Goal
I, Recommendation A)
2. The Commission supports a requirement that the Virginia Public
Guardian and Conservator Program include person-centered practices
to empower and support the person receiving guardianship
services. Such a requirement would support access to dementia capable
state-level services. (Goal I, Recommendation B)
3. The Commission supports the inclusion of the Cognitive Impairment
Module in the Virginia Behavioral Risk Factor Surveillance System
(BRFSS). The inclusion would enhance collaboration with public health
efforts to encourage possible risk-reduction strategies. (Goal
II, Recommendation C)