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Dyslexia Still Matters

Dyslexia in our schools today:
Progress, challenges and
solutions
Dyslexia Still Matters



Dyslexia Still Matters:
progress, challenges and solutions
This Dyslexia Action report looks at the situation for children with dyslexia and literacy
difficulties in our schools today. It explores the progress that has been made and examines
what still needs to be done to ensure school is positive and rewarding. In the light of planned
reforms of the Special Educational Needs system and considering other key changes, we put
forward positive suggestions and solutions, based on our review of what is currently working
well in schools. This evidence of effective practice will be useful to all schools as they take on
more responsibility for delivering effective interventions and support for children with dyslexia
and literacy difficulties. The challenge of improving literacy standards in the UK is great, and
we believe that our input can make a big contribution. We are calling for a National Dyslexia
and Literacy Strategy to enable the best evidence and solutions to be brought forward to put
an end to the negative and unrewarding experiences of school that are still being reported by
the parents of dyslexic children.



Action is                                            manifestations of dyslexia but that it is equally
                                                     effective for children with ‘high-incidence, lower-

needed now                                           severity’ needs. The Report provides valuable
                                                     examples of effective practice in support of its
              A
               call for action -                    recommendations; these are worthy of serious
              Sir Jim Rose, former                   attention if we are to take further decisive action
              Chief Inspector                        on dyslexia.
              for Schools and                        Jim Rose (June, 2012)
              author of the
              Independent Review                                          The need for this
              on Identification and                                       report
              Support for Pupils with                                     Kevin Geeson, Chief
Dyslexia and Literacy Difficulties.                                       Executive of Dyslexia
True to its name and purpose, ‘Dyslexia Action’                           Action
has consistently focused on responding directly                            Have we done dyslexia
to the challenge of supporting children who need                           - been there and got the
to overcome the debilitating effects of dyslexia.     t-shirt? Are we ready to move on? Do we have
As it is not a singular condition, dyslexia has       all the answers and know exactly what dyslexia
to be tackled by skilled teaching designed to         is and how to identify it? Do we know what
counter the different degrees of its severity that    we should be doing so everyone with dyslexia
impact upon children’s learning.                      can enjoy school and succeed in life? Are we
In this timely report, Dyslexia Action rightly claims confident it is working?
that good progress has been made to meet the          Dyslexia Action has been around for 40 years
needs of children in these respects. In reforming and there is no doubt that progress has been
the Special Educational Needs system, the             made and dyslexia is now widely recognised.
report therefore urges policymakers to sustain        However, evidence tells us there is still a great
that momentum by making sure any new                  deal to be done to ensure all dyslexic children in
arrangements are sufficiently flexible, not only      schools have a better chance to succeed. The
for children with the most severe and complex         level of understanding of dyslexia in schools



2
Dyslexia Action, June 2012


varies considerably and we are a long way off        are far from making such high quality practice
embedding good practice in all parts of our          universal.
education system. This report sets the scene for
dyslexia and highlights that ‘Yes’, Dyslexia Still   The main focus of the proposed reforms is on
Matters, but there are still major challenges to     children with the most severe and complex
address to ensure every child with dyslexia and      needs. Obviously, securing the best possible,
other literacy difficulties can succeed.             affordable provision for these children is crucially
Dyslexia Action is calling for dyslexia to remain    important. However, the new system must also
at the top of the agenda, otherwise we will fail     secure equally effective provision for children
many children year on year. We need to draw          with high-incidence, lower-severity needs.
together the best expertise, materials and           Because of time constraints the ‘SEN pathfinders’
services to ensure what we know, as literacy         are struggling to work out how to implement the
and dyslexia specialists, can be transferred         reforms and there is a risk that reliable ways to
into consistently good practice to achieve           improve existing provision may not be found, thus
the best outcomes for all. In this report, we        leaving all those with special needs considerably
give the findings of two surveys that look at        worse off than they would have been had the
the experiences of adults, and of parents with       previous system been left in place.
children, who have dyslexia. We also look at the
experiences and views of teachers and what           In this report Dyslexia Action offers ways forward
interventions they find successful. We examine       to help to overcome these difficulties. The
the factors affecting children in the education      need to wait for pathfinders is questioned on
system and how proposed changes provide a            the grounds that a great deal is already known
mix of hope and concern. We explore the current      about how best to deliver effective support for
changes to exam access arrangements and why,         children with dyslexia and literacy difficulties and
we believe, special arrangements should remain       those with other specific learning and language
in place to allow people to demonstrate what         difficulties. We have given many examples of
they are capable of achieving.                       such practice in this report.
Kevin Geeson                                         Dyslexia Action fully appreciates that the
                                                     economic climate creates pressure to find low
                   A window of                       cost solutions for special educational needs and
                   opportunity -                     educational provision in general. The effective
                   John Rack, Head                   practice that we highlight in this report is not
                   of Research,                      costly, especially in relation to the high, long-
                   Development and                   term costs of failing to get it right for those with
                   Policy for Dyslexia               literacy difficulties. We also question the value of
                   Action                            ‘pathfinding’ routes that are already well-trodden.
The Government’s reform of the Special
Educational Needs system presents a not-to-          Our main message to Government is that:
be missed opportunity to build on the sound          we don’t have to wait - there are positive and
platform of evidence which shows how all kinds       affordable things that can be done now; so let’s
of schools deliver highly effective education        work together and put an end to the suffering
for learners who suffer from various aspects of      and sense of failure that is still felt by too many
dyslexia and stubborn problems with learning to      children with dyslexia and literacy difficulties in our
read and write. Much to their credit, work of high   schools today.
quality is being done in some local authorities,     John Rack
in some schools and in some projects but we




                                                                                                            3
Dyslexia Still Matters




Acknowledgements
Dyslexia Action would like to thank all the people who responded to the YouGov and
Dyslexia Action surveys, everyone who assisted with the research and all the teachers
and practitioners who provided case-study materials and information about effective
interventions and support. Thanks also to the many people who have been involved
in the writing and production of this report, especially to Stephanie Anderson, Kerry
Bennett and John Rack.




4
Dyslexia Action, June 2012




Contents
Report purpose                                                                             02
Dyslexia Still Matters - Summary of findings and recommendations	                          07
Positive and negative findings
Action needed
A call for action
A way forward

Section 1: Dyslexia                                                                        11
What is dyslexia?
Definition of dyslexia - Rose Review (2009)
Dyslexia and literacy
The dyslexia journey

Section 2: Where are we now?                                                               15
The views of parents
What parents think should be done
The views of adults and young people with dyslexia
Social media
Where are we now? Assessment and special arrangements
Examination access arrangements
Year 1 phonics screening check
Statutory KS2 grammar, punctuation and spelling test

Section 3: Literacy is a big issue for the UK                                              25
Literacy and dyslexia
The challenge
Consequences of poor literacy - the figures speak volumes
We ‘could do better’

Section 4: Interventions and models of good practice                                       29
What works: interventions and good practice
OFSTED (2010) ‘A Statement is Not Enough’
Models of good practice

Section 5: Government reform                                                               51
The current SEN system
Proposed reform
Pathfinders

Section 6: Conclusions and recommendations                                                 55
Conclusions
Recommendations and Dyslexia Still Matters report

Appendices:                                                                                60
http://www.dyslexiaaction.org.uk/dyslexia-still-matters-appendices




                                                                                             5
Dyslexia Still Matters




6
Dyslexia Action, June 2012




Dyslexia Still Matters –
Summary of findings and
recommendations
The main findings of this Dyslexia Action report are both positive
and negative.
Positive findings Include:                            4. Dyslexia is now clearly ‘on the map’. Although
1. Good, effective provision exists in a wide         there are still teachers (and others) who do
range of schools enabling children with dyslexia      not like to use the term, there is no longer
and literacy difficulties to thrive and succeed.      controversy about whether it exists and how to
This provision can be seen in some mainstream         define it.
schools as well as specialist and some
independent settings.                                 Negative findings Include:
                                                      1. Knowledge, understanding and expertise is
2. Teachers in some schools and specialist            patchy and Dyslexia Action too often still hears
dyslexia centres are doing a fantastic job for        accounts of parents struggling to have their
children with dyslexia. The characteristics of this   concerns recognised and addressed at school.
‘best practice’ are outlined in our report along
with links to further sources of information and      2. Parents continue to report that:
guidance.
                                                      a)  ifficulties in their children’s learning are not
                                                         D
3. The most effective practice involves a                picked up early enough.
combination of the four key elements of support       b)  he possibility of dyslexia is usually raised by
                                                         T
that we have identified from our survey of               them and not the school.
practice and from previous reports:                   c) Expertise and resources in schools are hard
                                                         
                                                         to access.
a) A whole school ethos that respects
                                                     d)  yslexic children’s experience of school is
                                                         D
   individuals’ differences, maintains high              often negative.
   expectations for all and promotes good
   communication between teachers, parents            3. Adults and young people with dyslexia
   and pupils.                                        confirm that:
b) Knowledgeable and sensitive teachers who
   
   understand the processes of learning and the       a)  ccessing help at school is difficult.
                                                         A
   impact that specific difficulties can have on      b)  lack of understanding of the nature of
                                                         A
   these.                                                dyslexia leads to unhelpful and damaging
c) Creative adaptations to classroom practice
                                                        comments from some teachers which have
   enabling children with special needs to learn         a long lasting detrimental effect.
   inclusively, but meaningfully, alongside their
   peers.
d) Access to additional learning programmes
   
   and resources to support the development
   of key skills and strategies for independent
   learning.



                                                                                                              7
Dyslexia Still Matters




4) The issue of dyslexia, as a disability, has
not been fully grasped across education and            Action needed
changes to systems for assessment and
examination are in danger of leaving those with        Training
dyslexia at a severe disadvantage. Dyslexia            All children with dyslexia need to have access
Action appreciates that no ‘reasonable                 to good teaching in all lessons. A co-ordinated
adjustment’ can take away the difficulties that        plan is needed to improve awareness and
dyslexic people will have – to varying degrees –       understanding of dyslexia for people in all roles
when they are required to read and write under         in education. This should include:
time pressure. But this disability, just like a more
obvious physical disability – should not condemn       •	  compulsory model on Special Educational
                                                          A
them to low achievement. Systems that are there           Needs to include dyslexia as part of initial
to assess ability and understanding should be             teacher training.
accessible to those with disabilities on equal
terms but we haven’t got to this stage yet.            •	  requirement for all teachers to access
                                                          A
                                                          Continuing Professional Development (CPD)
National Dyslexia Strategy                                in the area of SEN to include dyslexia.
Proposed changes to the SEN system are
welcome but we are concerned that the situation        •	  aking special needs a higher priority in the
                                                          M
will get worse for learners with dyslexia as the          training and professional development for
current mechanisms to support learners and                those in leadership and governance roles.
schools is changed or withdrawn.
                                                       •	  plan, with resources behind it, to ensure that
                                                          A
Dyslexia Action believes that the focus of the            all schools have access to a specialist teacher
SEN pathfinders is too narrow and the timescale           who has a postgraduate diploma in dyslexia
too tight to work out the details needed for the          and literacy.
SEN reforms. However, we have a solution for
this which is to use the information we already        •	  scheme to enable more teaching assistants
                                                          A
have about what works for children with dyslexia          to receive training in specific interventions
and other high-incidence low-severity needs.              and methods of support as well as a career
                                                          structure allowing them to undertake more
The knowledge and expertise is there, to                  specialist roles as their skills and knowledge
develop, advise and deliver on, a National                increase.
Dyslexia and Literacy Strategy to help roll
out effective practice throughout the country.         •	  roducing guidance and advice for use by
                                                          P
However, we cannot succeed with this unless               inspectors in relation to effective support and
we have the commitment and support of the                 interventions for those with dyslexia.
Government.




8
Dyslexia Action, June 2012




Identification and assessment                           Sharing best practice
This is an area of practice where improvements          Best practice can be delivered in practice (as
are badly needed. More information needs to             highlighted in this report’s Intervention Table
get to practitioners so they are more confident         p.38-49), but this needs to be shared and
about making the first observations of children         communicated more widely. We need to:
who may be having difficulties, assessing
the nature of those difficulties and making             •	  evelop and maintain forums for exchange of
                                                           D
an appropriate response. This could include                practice locally, nationally and virtually.
determining the need for special arrangements           •	  nsure that expertise from the voluntary sector
                                                           E
for formal examinations. Current discussions               and from those engaged in research is fully
around the use of the Phonics Check and exam               utilised.
access arrangements reveal worrying levels of           •	  evelop and evaluate new intervention models
                                                           D
ignorance about the use of assessment tools                in schools and specialist centres so they can
to support improved learning and achievement.              learn what works.
There needs to be:
                                                        School improvement
•	  etter tracking and monitoring of children
   B                                                    It is encouraging that OFSTED has been asked
   as they progress from pre-school through to          to focus now on what schools are doing for the
   adulthood.                                           pupils in the bottom 20% and that programs
•	  clear policy on where the responsibility
   A                                                    such as Achievement for All are being adopted
   for this monitoring and identification sits and      more widely. However, the pace of change here
   better use and co-ordination of centrally-held       must increase and further action and support is
   data along with individual observations to avoid     needed so that schools can produce credible
   the unacceptable delays in identifying those         Local Offers under the new SEN reforms.
   who need extra help.
•	  etter advice and guidance around the Year 1
   B                                                    •	  chools need to demonstrate, through the
                                                           S
   Phonics Check, especially about the actions             local offer and in other ways, what they are
   that should follow from low scores.                     doing to support children with dyslexia and
•	  etter access to easily-administered screening
   B                                                       literacy difficulties.
   assessments and a clearer policy about how           •	  chools need to show that they have engaged
                                                           S
   information is shared with colleagues and               with ‘best practice’ as highlighted in this
   parents.                                                report’s Intervention Table.
•	  raining for all teachers, at all levels, so that
   T                                                    •	  unding arrangements for schools need to
                                                           F
   they can identify signs of Dyslexia-SpLD                reflect that developing an effective local offer
   and know what to do in terms of further                 is a priority and they should be encouraged to
   assessment and advice.                                  draw widely on expertise, including that from
                                                           the voluntary sector to help develop and deliver
                                                           these plans.
                                                        •	  FSTED needs to require schools to include
                                                           O
                                                           these plans and their success in implementing
                                                           them as part of school inspections.




                                                                                                          9
Dyslexia Still Matters




A call for action                                    The very real risk that things will be made worse
                                                     arises because the main focus of current reforms
                                                     is on the smaller number of children with the
Sharing knowledge                                    most severe and complex needs and insufficient
The proposed Children and Families Bill,             time has been given to developing the practical
building on the SEN Green Paper, provides            details here. At the same time, the SEN
the opportunity to deliver comprehensive             pathfinders appear not to be fully addressing the
improvements in literacy throughout the system.      aspects of reform related to those with high-
Intervention strategies to improve literacy skills   incidence, lower-severity needs. The danger
are likely to fail however, unless the Government    is that the new system will leave all those with
incorporates specific provisions for those with      special needs considerably worse off than they
dyslexia and other specific learning difficulties.   would have been had the previous system been
                                                     left in place.
Building on reports and reviews such as those

                                                     A way forward
of Lamb (2010), Rose (2009) and OFSTED
(2010), the Government has signalled its
intention to create a system which is:
• less adversarial                                   In this report, Dyslexia Action is offering a way
• ess bureaucratic
  l                                                  forward that could help to avoid this disaster. We
•  ives parents a greater say in decision making
  g                                                  suggest that it is not necessary for pathfinders
• puts resources in the hands of practitioners       to work out how best to deliver effective support
                                                     for those dyslexia, literacy difficulties and specific
The goal is to find ways of sharing knowledge        learning and language difficulties. We are talking
and spreading effective practice of systems that     here about the vast majority of those, with the
work.                                                high-incidence, low-severity needs, for special
                                                     provision. Why do we say this? Simply, because
Few would argue with the Government’s                we believe we already have the answers, as
aspirations, but there is a very real danger         detailed in this report.
that proposed reforms will, at best, miss an
opportunity and at worst, make matters a great       Making this good practice more widespread will
deal worse. The opportunity is there to build on     require commitment and resources. In short, the
the very solid platform of evidence that shows       Government must put muscle and money into
how all kinds of schools can deliver effective       this aspect of special needs provision. Dyslexia
education for learners who have dyslexia and         Action is calling for individuals and organisations
struggle with literacy. This is already being done   to come together to help develop, advise on and
in some authorities, in some schools and in some     deliver a National Dyslexia and Literacy Strategy.
projects, but that effective practice is far from
universal.                                           We urge Government to take on board the
                                                     recommendations of this report and to work with
                                                     the NDLS team at this critical time - together we
                                                     can improve the UK’s literacy standards.




10
Dyslexia Action, June 2012




Section 1:
Dyslexia
                                    11
Dyslexia Still Matters




What is                                             Definition of dyslexia -
                                                    Rose Review (2009)
dyslexia?                                           Dyslexia is a learning difficulty that primarily
                                                    affects the skills involved in accurate and
Dyslexia has now been clearly defined, reflecting
                                                    fluent word reading and spelling.
a considerable growth in knowledge and
understanding over the past 40 years. The           Characteristic features of dyslexia are
definition was agreed by the Expert Advisory        difficulties in phonological awareness, verbal
Group for Sir Jim Rose’s independent review         memory and verbal processing speed.
commissioned by the Secretary of State for
                                                    Dyslexia occurs across the range of
Education as detailed (right). All the dyslexia
                                                    intellectual abilities.
organisations in the UK have endorsed this
definition.                                         It is best thought of as a continuum, not a
                                                    distinct category, and there are no clear cut-off
                                                    points.
                                                    Co-occurring difficulties may be seen in
                                                    aspects of language, motor co-ordination,
                                                    mental calculation, concentration and personal
                                                    organisation, but these are not, by themselves,
                                                    markers of dyslexia.
                                                    A good indication of the severity and
                                                    persistence of dyslexic difficulties can be
                                                    gained by examining how the individual
                                                    responds or has responded to well-founded
                                                    intervention.
                                                    This definition reflects our understanding that
                                                    dyslexia is a language-based difficulty which
                                                    makes it harder to learn to read and spell.
                                                    Other kinds of difficulties may accompany
                                                    dyslexia, but it is the difficulty in dealing with
                                                    word sounds (phonics) that hampers the
                                                    acquisition of literacy skills. As has been
                                                    known for some time, dyslexia is nothing to
                                                    do with general intelligence although other
                                                    abilities and difficulties affect the impact of
                                                    dyslexia which contributes to its severity.
                                                    Appendix 1, associated with this report,
                                                    provides more information about dyslexia and
                                                    how it might affect someone living with it (See
                                                    list of appendices available at
                                                    www.dyslexiaaction.org.uk).




12
Dyslexia Action, June 2012




Dyslexia and literacy
The information in Appendix 1
(www.dyslexiaaction.org.uk) shows dyslexia is
not just a problem with literacy. It can:

•	  ffect the ability to remember spoken
   A
   information within the short term memory
   system
•	  ake it harder to retrieve words from long term
   M
   memory
•	  ccur alongside other difficulties e.g.
   O
   concentration, arithmetic and motor co-
   ordination

However, the biggest challenge that dyslexia              The dyslexia journey
causes in education and in working life                   Dyslexia is a subject that has caused much
is with reading and writing. It is therefore              debate over the years. The first descriptions
understandable that the primary focus of                  – from over a hundred years ago – used the
interventions and support for people with                 term ‘word blindness’, reflecting the view that
dyslexia is on reading and that we all agree such         difficulties in reading were caused by problems
support is better provided as early as possible in        in visual perception. It was not until the 1970s
a child’s education.                                      that the role of language processing was
                                                          recognised and only in the last 20 years has that
How important is it that those with dyslexia              been accepted as the primary feature of dyslexia.
are identified from amongst those with general
literacy-learning difficulties? This is an issue          While controversy and debate continued, it
that has sparked much controversy with some               was easier for some in professional practice to
educators arguing passionately that there is              ignore the issue and harder to argue for specific
no need to make any distinctions and that all             approaches and methods. Instead, those living
those with literacy difficulties will respond to the      with dyslexia were often wrongly labelled as
same kind of support. Others have argued that             ‘slow’, ‘thick’ and/or ‘lazy’, with school reports
those with dyslexia must be identified because            warning parents not to expect much from their
they need a different kind of support. Dyslexia           son/daughter!
Action’s view on this issue is as follows:
                                                          Controversy has also given fuel to the fires of
•	  ot all children with literacy difficulties respond
   N                                                      alternative treatments and ‘miracle cures’. If
   to the same approaches equally well.                   mainstream/establishment services have nothing
•	  he kind of literacy support that is effective for
   T                                                      to offer, it is no surprise that people will turn to
   those with dyslexia is also likely to be effective     alternatives. Almost always, these alternatives
   for all children with literacy difficulties.           are untested and often based on dubious
•	  hen it comes to early reading support, it is
   W                                                      theories and claims. Whilst elements of some
   therefore NOT critical to identify those who           may be effective for some people, on the whole,
   show characteristics of dyslexia, provided all         they do not prove worthwhile.
   receive the form of teaching which we know
   works for people with dyslexia.




                                                                                                            13
Dyslexia Still Matters




The Rose Report (2009) reflected a high point
on the dyslexia journey and one motivation for
Dyslexia Action’s report now, is to ensure we do
not lose that ground.

Other significant milestones on the journey
are when:

•	  yslexia was recognised under the Disability
   D
   Discrimination Act in 1995 and is still
   specifically mentioned in the more recent
   Equalities Act (2010). This means that
   educational and workplace settings have
   a duty to make reasonable adjustments to
   ensure that those affected by dyslexia are not
   disadvantaged compared to their peers.
•	  yslexia became recognised as a Special
   D
   Educational Need (SEN) and was mentioned
   as an example in the 1997 Code of Practice.
•	  ecretaries of State for Education, notably
   S
   Kenneth Clarke, David Blunkett, Ed Balls and
   Michael Gove made public statements about
   the issue of dyslexia and its importance. In
   March this year (2012), Education Minister
   Michael Gove announced on Daybreak
   television that one in ten children are dyslexic.




14
Dyslexia Action, June 2012




Section 2:
Where are we now?
                                       15
Dyslexia Still Matters




The views of parents
                                                      Recognition
                                                      The survey showed there still appears to be
                                                      resistance to the concept of dyslexia and
                                                      an apparent unwillingness to take the issue
                                                      seriously. Parental quotes included:
                                                      •	Schools need to accept that children have
                                                        ‘
                                                        dyslexia instead of trying to ignore it’
                                                      •	‘The school refused to recognise dyslexia’
                                                      •	‘My child was constantly expelled from school’
                                                      •	My son had to go to a special school because
                                                        ‘
                                                        the school he went to would not help him or
                                                        accept he had any difficulties’

                                                      Parental concerns
                                                      The responses from the YouGov survey typify
                                                      comments that Dyslexia Action regularly receives
                                                      from parents who come to us for support. For
Dyslexia Action commissioned YouGov                   example, one told us that after making enquiries
to conduct an independent survey of a                 with the SENCO, the headteacher called the
representative sample of parents who had              parents in to reprimand them for bullying the
children with dyslexia (sample of 464). The           SENCO. Another parent in the YouGov survey
field samples were collected from the 5th-            said:
30th April, 2012. More detail can be found in
Appendix 3 (http://www.dyslexiaaction.org.uk/         •	Schools need to take notice of parental
                                                        ‘
dyslexia-still-matters-appendices) but some of          concerns and not become defensive when
the key findings from this independent survey are       parents do raise concerns. I had my child
detailed in the sections below. Note that these         assessed privately and when I took the report
results reflect a more optimistic view because          to her primary school to discuss if any extra
they are based on a sample where dyslexia has           support could be given the headteacher said
been identified. We know that there are many            very sarcastically: ‘What do you want me
more families where children are struggling with        to do with that and then proceeded to do
difficulties which have not been identified or          nothing until my daughter’s KS3 SATs, when
have been mis-identified as a behaviour problem         miraculously a teaching assistant read the
for example.                                            questions for her. I’m sure this was only done
                                                        to improve the school SAT results!’
Identification
•	  0% of parents surveyed said their child was
   6                                                  Another parent said that the school did not want
   diagnosed before secondary school                  to admit they had ‘the problem’ (dyslexia) in their
•	  6% said the school was the first to identify a
   2                                                  school. One parent commented:
   problem
•	  5% said teachers failed to recognise a
   5
   problem with their child’s development
•	  lmost two-thirds felt dyslexia was not
   A
   recognised across the system



16
Dyslexia Action, June 2012



•	They (the school) never listened to me
  ‘                                                    There were positive comments from the survey
  when I expressed anxiety that my child had           however, that mentioned things such as:
  dyslexia and actually told me that he didn’t,
  on numerous occasions, until I had to get him        •	 ritten text being given in advance of the
                                                         w
  diagnosed privately to prove it. I was told my         lesson
  son may have dyslexia but it was better not to       •	 etting support when needed
                                                         g
  get him tested as then he would be labelled for      •	extra time in exams
  the rest of his life and he would be better off      •	being given a laptop
  learning coping strategies. He has since been        •	 8% said that their dyslexic child had received
                                                         5
  tested and given extra help such as readers            help and support with their dyslexia
  and scribes and extra time in exams’.                •	 2% reported their child had received extra
                                                         5
                                                         help and made progress in reading and
In summary, parents today still report resistance        spelling
to the concept of dyslexia and often their             •	 5% of parents reported their child does
                                                         7
perception is that problems are acknowledged             well and feels proud of their achievements
very late.                                               in subjects and activities that don’t involve
                                                         reading and writing
                                                       •	  1% reported they had a good group of
                                                          7
                                                          friends
                                                       •	  5% said they had positive relationships with
                                                          7
                                                          particular teachers

                                                       Parents’ views appeared strongest when
                                                       they felt that schools and teachers failed to
                                                       understand the problem including:

                                                       •	My stepdaughter still believes she is thick
                                                         ‘
                                                         because of early experiences despite being
                                                         quite the reverse!’
                                                       •	 Sadly, as my son was not statemented, he
                                                           ‘
Help and support:                                          received no help’
While parents did highlight positive aspects of        •	The school didn’t seem to understand that a
                                                         ‘
practice, the overwhelming view is that schools          child with ‘Above Average IQ’ could also have a
offer ‘too little, too late’. Also:                      specific learning difficulty such as dyslexia’

•  1% of respondents said that their children did
  6                                                    A number of parents told YouGov that they had
  not receive any help and support until a whole       moved their child from state to private education
  year after they were diagnosed; with 14% of          because their child was not getting the right
  parents saying they are still waiting                support. Others were financing additional
•	  ome 50% of parents felt that the school did
   S                                                   support outside of school. One parent said:
   not recognise or develop individual pupil ability   ‘Nobody was qualified to teach him. I then
•	  nly 40% said that their school had an
   O                                                   paid for an independent tutor to help him
   appropriately trained teacher to support their      through school’.
   child’s needs
•	  4% felt that schools do not do enough to
   6
   help children with dyslexia




                                                                                                       17
Dyslexia Still Matters



Social impact                                          Case Study 1
Dyslexia Action knows from its work with dyslexic
adults, that it is the social and emotional impact
of dyslexia which can be hardest to deal with.
Sadly, the YouGov survey showed that children
with dyslexia today are still having a hard time at
school and sometimes feel isolated or bullied.
Survey results showed:

•	  ore than 50% of parents said there are times
   M
   when their child does not want to go to school
•	  7% of parents surveyed felt their child had a
   5
   negative experience at school because of their
                                                       Gavin (44) and Seanna (13)
   dyslexia
                                                       Both Gavin and his daughter Seanna are
•	  3% reported their child felt different to their
   5
                                                       dyslexic. Gavin was involved in a dyslexic
   peers
                                                       intervention project in Hackney, London, when
•	  7% said that their child had been bullied or
   4
                                                       he was 14 years old but apart from this, due to
   picked on at some point
                                                       financial constraints, the support he received
•	  7% of parents reported teachers made
   3
                                                       was very patchy. He has therefore fought hard
   unhelpful comments like ‘try harder’, which then
                                                       to get a Statement for his daughter to fund her
   had a negative impact on self-esteem
                                                       specialist one-to-one support alongside her
•	  5% of parents said that a teacher had made
   1
                                                       mainstream schooling.
   public comments about their child’s difficulties
   and 11% said that a teacher had made fun of
                                                       Gavin talks about his dyslexia and the support
   mistakes or wrong answers
                                                       he did receive: “Dyslexia isn’t just about
                                                       learning, it’s a part of everything I do. In our
While these unhelpful comments and reactions
                                                       society if you can’t read, you can’t thrive.
from teachers were not reported by all parents
                                                       When I was fourteen I was lucky enough to be
and clearly do not apply to all teachers, we
                                                       part of a project that was funded by Hackney
regard it as unacceptable that any teacher
                                                       Council and I used to go to Dyslexia Action
should conduct themselves in this way, which
                                                       once a week for support. But the funding ran
can only be the result of a lack of understanding
                                                       out once I started college. It was at this point
of the impact that a specific learning difficulty
                                                       that I lost my way. I knew I wasn’t stupid; I
such as dyslexia can have.
                                                       knew I wasn’t a low life; I loved education but
                                                       education didn’t love me; it just didn’t soak in
Other disturbing comments from respondents
                                                       for some reason.
included that a teacher ripped up a piece of
her child’s written work in front of the class and
                                                       “I did lots of jobs earning the minimum wage
put it in the bin; a parent said that the teacher
                                                       but it was when my daughter Seanna was
continued to make their child copy off the board
                                                       born that I had a wake-up call. My uncle is a
when this was difficult for them and another said
                                                       cabbie and he said to me: ‘Gavin you can do
her child was shouted at by a teacher because
                                                       anything you put your mind to’. He encouraged
they were unable to complete a task.
                                                       me to do ‘The Knowledge’ to become a
                                                       London cabbie. This was not something that I
                                                       thought I could do because of having to pass
                                                       exams so I put it off.




18
Dyslexia Action, June 2012



“My mum never let me give up and in the end           What parents think should
I got back in touch with Dyslexia Action. The         be done?
teachers remembered me. Margaret assessed             •	  2% of respondents said all schools should
                                                         9
me and worked with me to make sure I got                 have access to a specialist in dyslexia
the support I needed to get me through ‘The           •	  out of 10 parents of dyslexic children, who
                                                         9
Knowledge’.                                              were independently surveyed by YouGov,
                                                         said all teachers should have a basic level of
“It took me longer to get there but my way               training in dyslexia
of learning has now clicked in my head and I          •	  1% of respondents were in favour of school
                                                         8
have found my gift. I officially achieved ‘The           improvements to include measures to track
Knowledge’ in October 2010. I now have                   the progress a child is making in literacy
a London Cab. I have found my way; I am a                throughout their time at school
successful man and I am happy.”
                                                      From some of the additional comments made,
When Seanna was seven years old, Gavin was            respondents highlighted the transition of primary
told at a parent’s evening that her reading age       to secondary as being poor. One parent told
was very low. “I knew she was dyslexic but it         YouGov that their child had more help in primary
took until she was ten before she got the right       school than high school. Another said secondary
help,” said Gavin. “I took information into the       school: ‘Never followed up reports from primary
school from Dyslexia Action and have fought           school and, when advised, still did nothing – I
to get the funding for Seanna. Her Statement          was advised that they could have brought this
now pays for one lesson per week at Dyslexia          to the attention of the examining boards and
Action, which is great but I want her to have         as a result my child’s grades would have been
more, at least two lessons per week.”                 adjusted accordingly’.

Seanna said: “For me dyslexia is like I know          Many parents commented on the need for
what I want to say but I can’t write it down.         more 1:1 support or smaller group teaching.
I can see a word in my head and remember              There were also many anecdotal comments
exactly what letters are in it but I just can’t say   referring to teachers needing improved levels of
what that word is. When I used to write I used        understanding.
to find it hard as I could never spell the words
I wanted to use, but now I am able to use             Parents also commented that it was very
what I am learning at Dyslexia Action to use          important for them to be involved and
any word I want. The support is helping me to         there needed to be a much better level of
understand how I learn and I am growing in            communication between them and the school.
confidence. It is so good to come somewhere           Some said they felt ignored and that teachers
where they get me.”                                   needed to listen to parents and take their
                                                      concerns seriously.




                                                                                                          19
Dyslexia Still Matters



                                                     Among the comments relating to people’s
                                                     feelings on finally being diagnosed were: ‘I was
                                                     worried that I was different’; ‘I cried all day’; ‘I
                                                     was ashamed’; ‘my mum knew from the age of
                                                     8 but the doctors said it was just immaturity’; ‘I
                                                     was bullied by a teacher and was very confused’;
                                                     ‘I already knew so it just confirmed what my
                                                     parents had said since I was 6’; ‘I felt stupid,
                                                     angry, upset. It really knocked my confidence’;
                                                     ‘I felt mixed up; my emotions were all over the
                                                     place’.

                                                     Most of the 16+ dyslexic respondents reported
The views of adults and young
                                                     negative experiences from their time at school;
people with dyslexia                                 with over half saying they found being dyslexic
Dyslexia Action conducted an online survey of
                                                     frustrating. This was compounded by unhelpful
people over the age of 16 with dyslexia which
                                                     comments from their teachers such as:
asked about their experiences of being dyslexic
and of education. This was something that
                                                     •	 ‘try harder’ - reported by nearly 83% of
we asked our own specialist Dyslexia Action
                                                         respondents
Centres to promote to their learners. The sample
                                                     •	  0% said teachers only ever commented on
                                                        4
is therefore not an independent one, in contrast
                                                        spelling and never on the ideas and content
to the YouGov survey of parents which took a
                                                     •	  5% said teachers made them read aloud in
                                                        6
representative sample. While we are only talking
                                                        front of the whole class despite their difficulties
of a relatively small sample of 128 respondents,
                                                     •	  8.2% said their teachers made public
                                                        3
the information reflects comments we hear from
                                                        comments about their difficulties
learners on a daily basis.
                                                     •	  0% said they made fun of mistakes or wrong
                                                        3
                                                        answers
Like the parents of children with dyslexia, almost
all the respondents believed that teachers
                                                     One respondent reported being bullied all the
should have much better training in dyslexia and
                                                     time; another was told by their teacher that they
that there should be better access to specialists
                                                     would never amount to anything in life, saying: ‘I
and 1:1 support. Close behind in terms of
                                                     was lazy and a troublemaker’. Another reported
priorities, the respondents felt there should be
                                                     being told: ‘I was stupid and they [teachers]
more measures in schools to build confidence
                                                     made me stand and tell my classmates I was
(85%), good access to ICT (79%) and an
                                                     stupid’. Others reported being accused of
understanding/sympathetic school environment
                                                     cheating and of being lazy.
(77%).
                                                     When asked about their move to secondary
Among this sample of adults, 35% revealed
                                                     school after primary, nearly 62% said they
dyslexia was not diagnosed until after the
                                                     struggled with the work. Worryingly, when asked
age of 21.
                                                     what positive experiences they remembered
                                                     from their education, 20% of our respondents
                                                     reported ‘none’.




20
Dyslexia Action, June 2012



Despite all their negative experiences, over half    •	  ore support is needed at schools and
                                                        M
said the most positive thing about going through        colleges because when I was there, there was
education with dyslexia was that they felt proud        no support
of what they had achieved despite it. More than      •	  eachers need to understand what it is like for
                                                        T
half did say that dyslexia was better recognised        a child with dyslexia
now than 10 years ago but 22% believe much           •	  eachers need to actually spot when a child
                                                        T
more should be done to ensure people with               could be dyslexic at primary school age and
dyslexia can succeed at work. The majority              act with support and knowledge
(60%) believed they would have been more             •	  ll teachers need to know how to cope with
                                                        A
successful had they received better support             dyslexic children, it should be part of their
at school. 62% believed they were able to get           training
better jobs because of skills training or further    •	  ur head in our local super Ofsted school
                                                        O
education received after school and once their          says: ‘it’s not a disability!’
dyslexia was diagnosed.                              •	  ecognition in all schools that this is a learning
                                                        R
                                                        problem and with the right support and
                                                        programs it could change the lives of many
                                                        children/people who are suffering, myself and
                                                        my two boys included
                                                     •	 f my son had been diagnosed and at the
                                                        I
                                                        very least acknowledged more in his primary
                                                        setting, things would of never got so bad, and
                                                        the secondary school he entered would of not
                                                        had to pick up the pieces
                                                     •	  hroughout my daughter’s junior school she
                                                        T
                                                        felt stupid and would never ever put her hand
                                                        up in class
                                                     •	  have had to fight to get my son’s dyslexia
                                                        I
Social media                                            recognised, more needs to be done by the
Dyslexia Action is actively involved in various         teachers, they need to take more notice
forums on the web through which people               •	  think all children should be tested for dyslexia
                                                        I
express their views and exchange information.           as part of the school curriculum and not wait
The identification of dyslexia and getting the          until the child falls well behind in reading and
right support is a subject that generates very          writing
passionate opinions, particularly amongst            •	  chool kills 99% of dyslexics - it killed me!
                                                        S
parents of dyslexic children. While this evidence    •	  rain all teachers so they can stop saying:
                                                        T
is not part of either of the surveys detailed in        ‘there is something not quite right with your
this section, there are a number of views and           child’
opinions that we feel are important to highlight.    •	  wish all teachers studied dyslexia as part of
                                                        I
                                                        their credentialing
The consensus view expressed in social media is      •	  he ‘wait to fail’ mentality is absurd
                                                        T
that the system is bureaucratic and children are
being failed because of the lack of identification
and limited access to the right help and
support. Some comments we have recorded
from individuals posting on Dyslexia Action’s
Facebook wall include:




                                                                                                         21
Dyslexia Still Matters




Where are we now?
Assessment and special
arrangements




Highlighted below are three keys areas which           Changes to the current access arrangements
have had a significant impact on children with         for examinations were put forward last year
dyslexia.                                              by the Joint Council for Qualifications (JCQ)
                                                       with the publication of the annual: ‘Access
Examination access                                     Arrangements, Reasonable Adjustments and
arrangements                                           Special Consideration – General and Vocational
Under the Equality Act (2010), pupils with             Qualifications’, which has caused considerable
disabilities in England and Wales are entitled         concern to students, schools and parents.
to apply for special arrangements in exams to
give them the opportunity to demonstrate their         Confusion now exists as to whether candidates
knowledge and understanding despite problems           with dyslexia or other specific learning difficulties
with reading the questions, or writing the             will still receive up to 25% in extra time, more
answers, for example. For those with dyslexia          in some cases, and be entitled to other support
and literacy difficulties, such arrangements           such as a scribe and/or a reader. Dyslexia Action
typically mean extra time, but other support           is working with JCQ and with other stakeholders
may be allowed such as someone reading                 to resolve some key issues.
the questions aloud or writing the answers,
depending on the individual’s specific difficulties.   Dyslexia Action’s main concern is that the
                                                       changes will only allow for students who have
                                                       considerable difficulties, and adjustments will
                                                       only be made for those who are way below




22
Dyslexia Action, June 2012



the average in absolute terms. We know that               presented and about the actions that will result
Dyslexia ranges in severity and that many people          from its use.
can develop compensatory skills and strategies
so that they can achieve well. However, when              Children who fail to reach the necessary level
under pressure of time, it is often the case that         should not wait a whole year before the effects
use of these strategies breaks down. It is also           of additional actions are assessed - that will be
significant that a very able person with dyslexia         too late.
may have their career options limited because
they appear to be ‘within the average range’ in           Teachers should not rely only on the information
terms of literacy whereas without the impact              in the check - they will have other information
of their dyslexia they could perform well above           about what a child’s literacy levels are and
average. Should special arrangements be there             should already be taking action to support those
to level the playing field, to compensate for             who have been identified as struggling much
disability and to allow people to demonstrate             earlier than the end of Year 1.
what they are capable of achieving? Or are they
just to lift the lowest in literacy to the lowest level   The check may serve as a useful safety net to
needed to get through the exam?                           pick up children who appear to be progressing
                                                          well but who lack the foundations in phonic
Year 1 phonics screening check                            skills. Teachers need to be reassured that action
 A new, statutory phonics screening check                 to support children who seem to be doing ‘ok’ is
for all pupils will be introduced in 2012 for             worthwhile in terms of longer-term gains.
children aged six who are getting to the end
of Year 1 in primary school. The purpose of               Not a ‘catch-all’ solution
the phonics screening is to determine whether             We are also concerned that the response to a
individual pupils have mastered the basics of             low result on the check should not be ‘more of
phonic decoding. Pupils who have not reached              the same’. It is important that schools receive
this standard at the end of Year 1 should then            support on delivering additional intervention
receive support from their school to ensure they          models, with the accompanying training for
can improve their phonic decoding skills and              teaching staff and teaching materials.
they will be checked again a year later.
                                                          Our main concern about this check is that it
The check involves reading words and non-                 could be presented as a complete solution to
words. If a child has developed good phonic-              the challenge of identifying those who have
decoding skills they will be able to work out how         difficulties with literacy. Dyslexia Action believes
to pronounce the non-words because these                  that this is a step in the right direction but it is
words cannot be read ‘by sight’.                          not a ‘catch all’ solution. Some children with
                                                          dyslexia may do well enough to pass this check
The introduction of the phonics screening has             at this stage in their education, particularly
caused considerable debate with many teachers             those who are more able or have been taught
threatening to boycott it. Dyslexia Action has            exceptionally well. However, they may have
supported the use of the check because the                difficulties later down the line. Similarly,
difficulty in acquiring phonic decoding skills is         decoding is central to reading but it is not the
almost the ‘hallmark of dyslexia’. It is therefore        whole story so teachers need to be aware of
very helpful to identify children early who have          possible difficulties in other aspects of literacy
such difficulties. However, we have some                  and take action to develop wider literacy skills
concerns about the way this check is being                instead of focusing just on phonics.




                                                                                                              23
Dyslexia Still Matters



Statutory KS2 grammar,                              Summary
punctuation and spelling test                       This short review on current issues in
A new statutory test of grammar, punctuation        assessment highlights that the issue of dyslexia,
and spelling will be introduced for children at     as a disability, has not been fully grasped across
the end of Key Stage 2 from May 2013. This          education. Dyslexia Action appreciates that
follows the Government’s decision to improve        no ‘reasonable adjustment’ can take away the
the assessment of English writing. This decision    difficulties that dyslexic people will have – to
was informed by Lord Bew’s recommendation           varying degrees – when they are required to
(DfE, 2012) that writing composition should         read and write under time pressure. But this
be subject to teacher assessment only, with         disability, just like a more obvious physical
the more ‘technical’ aspects of English - such      disability – should not condemn them to low
as punctuation and spelling - assessed via an       achievement. Systems that are there to assess
externally marked test. The introduction of this    ability and understanding should be accessible
new test reflects the Government’s beliefs that     to those with disabilities on equal terms but we
children should have mastered these important       haven’t got to this stage yet.
aspects of English by the time they leave primary
school and that appropriate recognition should
be given to good use of English throughout their
schooling.

As with the Phonics Screening Check for 6-year-
olds, some have objected strongly, including the
NUT (2012) which says the ‘pass/fail test for six
year olds is wrong’ and the National Association
of Head Teachers which believes the new tests
were ‘a waste of taxpayers’ money’ (Sellgren,
2012).

Dyslexia Action has a more neutral view on
this. We would rather see an explicit test of
spelling punctuation and grammar than have an
assessment of other subjects ‘polluted’ by the
requirement to mark down candidates in these
subjects who have poor spelling and grammar.
We regard it as totally unacceptable that
someone who spells badly should be denied the
chance to gain top marks in, for example, history
or geography.




24
Dyslexia Action, June 2012




Section 3:
Literacy is a big issue
for the UK
                                           25
Dyslexia Still Matters




Literacy and dyslexia
Dyslexia may have only just got on the map in       It is well documented (Stewart, 2005) that
educational terms, but literacy has been there      there are huge social and financial costs as a
for a long time. Those who campaign for the         result of illiteracy. There are implications both
importance of literacy may have some different      for the individual that struggles to read and our
perspectives and terminology but they tend to       economy as the result of underemployment,
share the same overall goals as those who are       unemployment and crime. These are directly
concerned with dyslexia. Dyslexia Action has        related to literacy problems as the result of poor
worked closely and productively with various        academic achievement, vocational training and
organisations such as The National Literacy         reduced employment opportunities.
Trust (www.literacytrust.org.uk) and we have
found much common ground on issues such as          Appendix 2 (http://www.dyslexiaaction.org.uk/
engaging boys in reading, home reading habits,      dyslexia-still-matters-appendices) details the
mentoring and improving access to high quality      trends in literacy standards across the UK over
resources for teachers.                             the last 5-10 years based on SAT results and
                                                    GCSEs (DfE, 2011). On average there has been
Many, but not all, literacy organisations and       an improvement. In 1995 only 49% of children
specialists accept the issue of dyslexia and        at KS2 were meeting expected levels in literacy
recognise that specific training support and        (Level 4) but this has improved to 81% (KS2
adaptations are needed if the wider world of        results for 2011). But it is those with the poorest
literature is to be opened for them. At a more      skills that remain static. Approximately 20% of
fundamental level however, Dyslexia Action is       children are still not meeting expected levels in
arguing that no strategy to address the challenge reading.
of ‘universal literacy’ will succeed unless it
acknowledges dyslexia and incorporates specific According to the Department for Business,
measures for people with dyslexia.                  Innovation and Skills (BIS, 2010) ‘Skills for Life
                                                    Survey’ the number of people with relatively
Getting it right for those with dyslexia will       poor literacy skills has declined, whilst the
therefore do a great deal to lift overall standards number with the poorest skills has not changed
in English language and could help lift the         significantly.
UK from its lowly position in the international
comparison league-tables.                           Figures from the European Commission’s
                                                    Eurostat (2011) put the UK 19th out of 33
The challenge                                       countries ranked according to the proportion
Trends in literacy standards through SAT results of the population aged 25 - 64 with an ‘upper
(Jama  Dugdale, 2012) at the end of Key            secondary education’ (equivalent to A-levels).
Stage 2 (KS2) show us that approximately one        Just 76.1% of Britons are educated to A-level
in five school aged children are still not meeting  standard compared to 92% in Lithuania for
expected levels in literacy. This means that there example.
are approximately1.62 million children in English
schools who are prevented from accessing the
school curriculum because they are unable to
read well enough. These children are at a huge
disadvantage and are affectively excluded from
engaging in classroom activities.



26
Dyslexia Action, June 2012




Consequences of poor literacy –
the figures speak volumes
Department for Education                            Ministry of Justice
The latest figures from the Department              According to the Ministry of Justice (2011)
for Education (DfE, 2011) show that an              the prison population at 31 March 2012 was
estimated 5,740 children and young people are       87,531 offenders in England. Dyslexia Action’s
permanently excluded from primary, secondary        own research demonstrated that there is an
and all special schools. Pupils with SEN            overrepresentation within the prison population
statements are around eight times more likely to    compared to the UK population as a whole of
be permanently excluded than those pupils with      those with literacy difficulties and those who
no SEN. According to the DfE, 75% of all school     have dyslexia/SpLD. Around 50% of the prison
exclusions, some 4,260 children are permanently     population, which is 30% above the population
excluded.                                           norm, have poor literacy skills and 20% of
                                                    offenders were found to be dyslexic, which is
National Foundation of                              10% above the population norm. According to
Educational Research (NFER)                         the NOMS Annual Report and Accounts 2010-
The NFER (The Dyslexia Institute, 2006) noted       11 the cost on average per prisoner is just under
that the additional cost of provision for a child   £27,000 per year. The UK tax payer is therefore
that is permanently excluded is approximately       paying in excess of £710 million per annum just
£10,000 per annum. The cost of supporting           for the overrepresentation of those with poor
children with SEN who are excluded is therefore     literacy skills.
over £50 million per year. This funding would
have been better used to provide appropriate        Department for Work and
early support in school.                            Pensions
                                                    According to the Department for Work and
Youth Justice Board                                 Pensions (2012) the benefit expenditure for
As detailed in the Corporate and Business           England and Wales in 2009/10 on Income
Plan 2011-12 to 2014-15 (D133) of the Youth         Support was £7,558 million and on Jobseekers
Justice Board for England and Wales (2011),         Allowance was £4,276 million. In 2010/2011
the National Audit Office has estimated that        it was £7,073 million for Income Support and
the total cost to the UK economy of offending       £4,044 million for Jobseeker’s Allowance.
by young people could be up to £11 billion per
year, and the proportion of young people who
reoffend stands at around 37%.




                                                                                                   27
Dyslexia Still Matters



Institute of Economic Affairs                          Peter’s story
Professor Len Shackleton, a fellow of the              Case study 2:
Institute of Economic Affairs, comments: “Low
levels of literacy are associated with a higher
risk of unemployment in all countries. The
number of unskilled jobs requiring little or no
literacy (though still significant) has been falling
sharply in the UK. Perhaps, as importantly,
access to jobs increasingly depends on filling
in forms and writing CVs - impossible without
quite reasonable literacy. Another way in which
illiteracy makes people difficult to employ is
through prison experience. Of those in prison,
illiteracy is shockingly high. It’s probably the
case that prison sentences are themselves more         Peter (an adult learner)
likely if you are illiterate, for any given level of   Peter is an example of someone who is
offence. Once incarcerated, your employability in      getting his first chance of an education in his
future is dramatically reduced. Our literacy rates     50s. Here Peter discusses the impact of his
now compare rather badly with emerging Asian           difficulties on his career and how he tried to
economies as well as some (though not all)             keep his dyslexia a secret from his employer.
European economies.”
                                                       “At 52 years old I burst into tears when I
We ‘could do better’                                   had to tell my boss I was dyslexic. There
There are clear and well documented                    was pressure on me to get professional
long-term and significant social and economic          qualifications following a restructure. I went
costs associated with not taking a strategic           to pieces. I was on medication for depression
and comprehensive approach to educating                and was seeing a counsellor. I was terrified I
children with dyslexia and literacy difficulties.      would lose my job now that my secret was out.
Improvements in literacy standards have been
made and we are making progress but we ‘could          “I am now slowly coming to terms with my
do better’ at providing good literacy education        situation. I now realise that being dyslexic has
for all children and we need to do more to             nothing to do with my ability. I am good at my
support those in the lowest 20%. We could do           job. Thanks to the support I am now getting I
more for people like Peter - see case study 2          am having my first opportunity at an education
(right), if we help dyslexia sufferers when they       and qualifications. This has helped make me
are young.                                             accept things and has given me a greater
                                                       understanding about my dyslexia and about
                                                       me. In time, I hope to be able to progress my
                                                       career once I feel ready to sit those exams!”




28
Dyslexia Action, June 2012




Section 4:
Interventions and
models of good practice
                                         29
Dyslexia Still Matters




What works: interventions
and good practice
Recent reports such as Rose 2009 and                Children and young people’s learning
OFSTED 2010 have highlighted those features         was least successful when:
of practice that promote successful outcomes.      •	  xpectations of disabled children and young
                                                      E
OFSTED’s report was concerned with good               people and those who had SEN were low
learning outcomes in general, but the points       •	  ctivities and additional interventions were
                                                      A
made are relevant to literacy and dyslexia.           inappropriate and were not evaluated in terms
                                                      of their effect on children and young people’s
OFSTED (2010) ‘A Statement is                         learning
Not Enough’:                                       •	  esources were poor, with too little thought
                                                      R
                                                      having been given to their selection and use
Children and young people learnt                   •	  eachers did not spend enough time finding
                                                      T
best when:                                            out what children and young people already
•	  eachers presented information in different
   T                                                  knew or had understood
   ways to ensure all children and young people    •	  eachers were not clear about what they
                                                      T
   understood                                         expected children and young people to learn
•	  eachers adjusted the pace of the lesson to
   T                                                  as opposed to what they expected them to do
   reflect how children and young people were      •	  ommunication was poor: teachers spent
                                                      C
   learning                                           too much time talking, explanations were
•	  he effectiveness of specific types of support
   T                                                  confusing, feedback was inconsistent,
   was understood and the right support was put       language was too complex for all children
   in place at the right time.                        and young people to understand - the tone
•	  ssessment was secure, continuous and acted
   A                                                  and even body language used by adults was
   upon                                               confusing
•	  eachers’ subject knowledge was good, as
   T                                               •	  he roles of additional staff were not planned
                                                      T
   was their understanding of pupils’ needs and       well or additional staff were not trained well
   how to help them                                   and the support provided was not monitored
•	  he staff understood clearly the difference
   T                                                  sufficiently
   between ensuring children and young people      •	  hildren and young people had little
                                                      C
   were learning and keeping them occupied            engagement in what they were learning, usually
•	  espect for individuals was reflected in high
   R                                                  as a result of the above features
   expectations for their achievement
•	  esson structures were clear and familiar but
   L
   allowed for adaptation and flexibility
•	  ll aspects of a lesson were well thought
   A
   out and any adaptations needed were made
   without fuss to ensure that everyone in class
   had access




See table 1.1 at the end of this section for examples of interventions and good practice.



30
Dyslexia Action, June 2012



Features of good practice                             Effective learning
Sir Jim Rose’s review (2009) highlighted the          In summary, effective learning for children
importance of teachers having an understanding        with dyslexia depends on:
of the normal processes of development
in reading and spelling and, in particular,           1. A whole school ethos that respects
                                                         
the Simple Model of Reading. A survey of                 individuals’ differences, maintains high
practitioners who were consulted for this review         expectations for all and promotes good
identified the following features of good practice       communication between teachers,
as most important.                                       parents and pupils
                                                      2. Knowledgeable and sensitive teachers
                                                         
•	  sing multisensory methods for teaching 
   U                                                     who understand the processes of
   encouraging multisensory learning                     learning and the impact that specific
•	  lanning and delivering lessons so that pupils/
   P                                                     difficulties can have
   students experience success                        3. Creative adaptations to classroom
                                                         
•	  lanning and adapting the teaching
   P                                                     practice enabling children with
   programme to meet individual needs                    special needs to learn inclusively and
•	  eaching a structured programme of phonics
   T                                                     meaningfully, alongside their peers
•	  uilding in regular opportunities for
   B                                                  4. Access to additional learning
                                                         
   consolidation  reinforcement of teaching             programmes and resources to support
   points already covered                                development of key skills and strategies
•	  aintaining rapport with pupils/students
   M                                                     for independent learning
•	  lanning a purposeful and engaging balance of
   P
   activities in lessons                              In the next section of this report we look at
•	  eaching pupils/students to be aware of their
   T                                                  the realities of good practice in a selection of
   own learning strategies                            schools, local authorities and voluntary sector
•	  eaching pupils/students to develop effective
   T                                                  providers. We chose examples here simply
   learning strategies                                to illustrate a range of practices in a range
•	  howing sensitivity to the emotional needs of
   S                                                  of settings and we do not attempt to give an
   pupils/students                                    exhaustive list. There are other useful sources of
•	  eaching pupils/students to improve their
   T                                                  advice and information about good practice and
   working memory                                     we do not wish to duplicate what is found there.
•	  electing appropriate resources to support
   S                                                  See for example the Dyslexia-SpLD Trust’s
   particular learning needs                          ‘Interventions for Literacy’ website:
	                                                     www.interventionsforliteracy.org.uk. The common
The features of good practice identified by           thread in the examples chosen is that the best
OFSTED and by Rose show close agreement,              outcomes are achieved by provision that is not
and resonate well with the reports from               confined to one key area but encompasses many
parents about what they have found helpful            of the four features that were summarised above.
or unhelpful. It is interesting to see that good
practice for those with dyslexia is not just about
individualised learning programmes and the
specific content of these programs. The ethos
and organisation of learning within the classroom
and across the whole school also make a big
difference.




                                                                                                     31
Dyslexia Still Matters




Models of good practice
See Table 1.1 (p38-49) for interventions, results and case studies
for all of the following examples.
Achievement for All                                  that the CDA and the Local Authority decided
Achievement for All is a tailored school             to formulate its own accreditation process and
improvement framework, delivered in partnership      quality mark. The purpose was to incentivise
with leaders, teachers, parents, pupils and          schools to get additional training for its staff, in
support professionals. It aims to raise the          return for the kudos of the quality mark.
aspirations, access and achievement of pupils
identified with Special Educational Needs            Sarah Wright, CDA Chair, said: “We believe
and Disabilities (SEND). A two-year pilot            all qualified teachers should receive proper
has demonstrated unprecedented impact for            training in dyslexia and all schools should show
pupils with SEND, who progressed faster on           their understanding of this specific learning
average than all pupils nationally in English and    difficulty by achieving a quality mark. Strategies
maths. The programme is part of the charity          that help dyslexics help all of the class. Training
Achievement for All 3As which is led by its          in dyslexia has to be compulsory and delivered
Chair, Brian Lamb OBE, author of the influential     by initial teacher training providers or local
Lamb (2010) review on SEN, and Professor             authorities. Our award is called the ‘Inclusive
Sonia Blandford, CEO and National Director.          Dyslexia Friendly Schools (IDFS) Quality Mark’,
Achievement for All is about giving pupils           so it highlights its commitment to a dyslexia-
opportunities to develop their strengths in other    friendly approach in classrooms, which promotes
ways which gives them renewed confidence and         inclusion of all children regardless of their
self-esteem.                                         learning style.”

Cornwall Dyslexia Association                        Currently, schools in Cornwall apply to the
The Cornwall Dyslexia Association (CDA) was          LA if they want quality mark accreditation and
established in 1991 by a group of parents            undertake one-day training run by its dyslexia
who were concerned about their own children          advisers in association with the CDA and an
because of the little support and provision          educational psychologist. So far IDFS Quality
available. With five years funding from the          Mark awards have been given to 42 of 234
Government through the Parenting Fund, and           primary and 10 of 31 secondary schools in the
three years from the Lottery, the CDA provided       county.
free support for dyslexic families in Cornwall.
This included free screening and assessment          Croydon Literacy Centre
for adult dyslexics and young people; a free         Croydon Literacy Centre teaches children with
drop-in advice centre; awareness training            literacy difficulties including dyslexia. Children
for businesses, organisations and education          are referred by their schools and attend the
providers; support courses for parents and           Centre once or twice a week for 90 minute
school training. Now government funding has          sessions. Schools or parents pay, sometimes the
ceased, schools have to pay for the service.         cost is shared. The Centre works closely with
                                                     both parents and schools. They also carry out
Cornwall was one of the first to pilot the British   training for teachers and teaching assistants in
Dyslexia Association’s ‘Dyslexia Friendly Schools    schools and at the Centre to increase their skills
Quality Mark’ (2012). It was such a success          in supporting children with literacy difficulties.




32
Dyslexia Action, June 2012



The Centre strongly believes that the children       practical skills such as interview preparation and
that are referred to them would not achieve          writing applications. The specific aspects of the
in the same way if they had not received             programme depend on the needs and priorities
additional support. Normally they see a dramatic     of the learner but will usually have a core of
improvement in self-confidence and self-esteem       skills development with the aim of producing
because many of the children had already failed      independent and confident learners.
in their school and felt bad about themselves.
Their work with parents and the child helps to       Dyslexia Action also delivers training for teachers
change this perception over time. The Centre         and teaching assistants from initial awareness
says that many of the children make such             sessions for classroom teachers and up to
excellent progress that they are within the norms    postgraduate qualifications for specialists.
for their year group after having ‘support’ in
school.                                              Dyslexia Action has a track record of providing
                                                     expert and effective support to individuals as
A Croydon Literacy Centre spokesperson said:         shown in the twice-yearly progress testing that
“Teachers need special training in dyslexia. A       pupils are given when following the Dyslexia
combination of initial teacher training and local    Institute Literacy Programme or its Units of
specialist courses would work best. Until you        Sound Programme. Typical gains by poor
have experience in the classroom, the reality of     readers, in the 2010 results, were five standard
the difficulty you might have moving a child on is   score points on comprehension and three points
unimaginable.”                                       on word identification over a six-month period.
                                                     Improvements in standard scores indicate ‘catch
Dyslexia Action’s Centres                            up’ to the average level. These typical findings
Dyslexia Action (DA) has 26 main Centres,            agree with the results of the SPELL-IT study
47 teaching outposts and over 100 units              (Rack 2005) where a sample of seven-year-olds
in maintained and independent schools                with very poor reading skills made two standard
throughout the United Kingdom. We provide a          score gains over a 24-week intervention using
comprehensive service for children and adults        the DILP programme, whereas a comparison
with dyslexia and literacy difficulties including    group monitored over the same time fell back by
diagnostic assessments, advice sessions for          two standard score points.
parents, workplace consultations and advice
on adaptations and use of technology, as well
as group and individual tutoring in teaching
centres and partner schools and colleges. We
also provide early intervention for primary aged
children; study skills for teenagers; programmes
for those with maths difficulties; workplace
coaching for adults and tailor-made programmes
for all. Much of our work focuses on developing
the sound-symbol relationship in written and
spoken language using highly-structured
multisensory teaching programmes. It also
involves a focus on the individual special needs
of learners, whether that be with organisational
and memory skills, developing vocabulary or




                                                                                                     33
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Dyslexia Action Report
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Dyslexia Action Report
Dyslexia Action Report
Dyslexia Action Report
Dyslexia Action Report
Dyslexia Action Report
Dyslexia Action Report
Dyslexia Action Report
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Dyslexia Action Report
Dyslexia Action Report
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Dyslexia Action Report
Dyslexia Action Report
Dyslexia Action Report
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Dyslexia Action Report
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Dyslexia Action Report
Dyslexia Action Report
Dyslexia Action Report
Dyslexia Action Report
Dyslexia Action Report
Dyslexia Action Report

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Plus de Dyslexia_Action (10)

Seminar 1
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Seminar 2
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Seminar 3
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Seminar 4
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Seminar 5
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Dyslexia Action Report

  • 1. Dyslexia Still Matters Dyslexia in our schools today: Progress, challenges and solutions
  • 2. Dyslexia Still Matters Dyslexia Still Matters: progress, challenges and solutions This Dyslexia Action report looks at the situation for children with dyslexia and literacy difficulties in our schools today. It explores the progress that has been made and examines what still needs to be done to ensure school is positive and rewarding. In the light of planned reforms of the Special Educational Needs system and considering other key changes, we put forward positive suggestions and solutions, based on our review of what is currently working well in schools. This evidence of effective practice will be useful to all schools as they take on more responsibility for delivering effective interventions and support for children with dyslexia and literacy difficulties. The challenge of improving literacy standards in the UK is great, and we believe that our input can make a big contribution. We are calling for a National Dyslexia and Literacy Strategy to enable the best evidence and solutions to be brought forward to put an end to the negative and unrewarding experiences of school that are still being reported by the parents of dyslexic children. Action is manifestations of dyslexia but that it is equally effective for children with ‘high-incidence, lower- needed now severity’ needs. The Report provides valuable examples of effective practice in support of its A call for action - recommendations; these are worthy of serious Sir Jim Rose, former attention if we are to take further decisive action Chief Inspector on dyslexia. for Schools and Jim Rose (June, 2012) author of the Independent Review The need for this on Identification and report Support for Pupils with Kevin Geeson, Chief Dyslexia and Literacy Difficulties. Executive of Dyslexia True to its name and purpose, ‘Dyslexia Action’ Action has consistently focused on responding directly Have we done dyslexia to the challenge of supporting children who need - been there and got the to overcome the debilitating effects of dyslexia. t-shirt? Are we ready to move on? Do we have As it is not a singular condition, dyslexia has all the answers and know exactly what dyslexia to be tackled by skilled teaching designed to is and how to identify it? Do we know what counter the different degrees of its severity that we should be doing so everyone with dyslexia impact upon children’s learning. can enjoy school and succeed in life? Are we In this timely report, Dyslexia Action rightly claims confident it is working? that good progress has been made to meet the Dyslexia Action has been around for 40 years needs of children in these respects. In reforming and there is no doubt that progress has been the Special Educational Needs system, the made and dyslexia is now widely recognised. report therefore urges policymakers to sustain However, evidence tells us there is still a great that momentum by making sure any new deal to be done to ensure all dyslexic children in arrangements are sufficiently flexible, not only schools have a better chance to succeed. The for children with the most severe and complex level of understanding of dyslexia in schools 2
  • 3. Dyslexia Action, June 2012 varies considerably and we are a long way off are far from making such high quality practice embedding good practice in all parts of our universal. education system. This report sets the scene for dyslexia and highlights that ‘Yes’, Dyslexia Still The main focus of the proposed reforms is on Matters, but there are still major challenges to children with the most severe and complex address to ensure every child with dyslexia and needs. Obviously, securing the best possible, other literacy difficulties can succeed. affordable provision for these children is crucially Dyslexia Action is calling for dyslexia to remain important. However, the new system must also at the top of the agenda, otherwise we will fail secure equally effective provision for children many children year on year. We need to draw with high-incidence, lower-severity needs. together the best expertise, materials and Because of time constraints the ‘SEN pathfinders’ services to ensure what we know, as literacy are struggling to work out how to implement the and dyslexia specialists, can be transferred reforms and there is a risk that reliable ways to into consistently good practice to achieve improve existing provision may not be found, thus the best outcomes for all. In this report, we leaving all those with special needs considerably give the findings of two surveys that look at worse off than they would have been had the the experiences of adults, and of parents with previous system been left in place. children, who have dyslexia. We also look at the experiences and views of teachers and what In this report Dyslexia Action offers ways forward interventions they find successful. We examine to help to overcome these difficulties. The the factors affecting children in the education need to wait for pathfinders is questioned on system and how proposed changes provide a the grounds that a great deal is already known mix of hope and concern. We explore the current about how best to deliver effective support for changes to exam access arrangements and why, children with dyslexia and literacy difficulties and we believe, special arrangements should remain those with other specific learning and language in place to allow people to demonstrate what difficulties. We have given many examples of they are capable of achieving. such practice in this report. Kevin Geeson Dyslexia Action fully appreciates that the economic climate creates pressure to find low A window of cost solutions for special educational needs and opportunity - educational provision in general. The effective John Rack, Head practice that we highlight in this report is not of Research, costly, especially in relation to the high, long- Development and term costs of failing to get it right for those with Policy for Dyslexia literacy difficulties. We also question the value of Action ‘pathfinding’ routes that are already well-trodden. The Government’s reform of the Special Educational Needs system presents a not-to- Our main message to Government is that: be missed opportunity to build on the sound we don’t have to wait - there are positive and platform of evidence which shows how all kinds affordable things that can be done now; so let’s of schools deliver highly effective education work together and put an end to the suffering for learners who suffer from various aspects of and sense of failure that is still felt by too many dyslexia and stubborn problems with learning to children with dyslexia and literacy difficulties in our read and write. Much to their credit, work of high schools today. quality is being done in some local authorities, John Rack in some schools and in some projects but we 3
  • 4. Dyslexia Still Matters Acknowledgements Dyslexia Action would like to thank all the people who responded to the YouGov and Dyslexia Action surveys, everyone who assisted with the research and all the teachers and practitioners who provided case-study materials and information about effective interventions and support. Thanks also to the many people who have been involved in the writing and production of this report, especially to Stephanie Anderson, Kerry Bennett and John Rack. 4
  • 5. Dyslexia Action, June 2012 Contents Report purpose 02 Dyslexia Still Matters - Summary of findings and recommendations 07 Positive and negative findings Action needed A call for action A way forward Section 1: Dyslexia 11 What is dyslexia? Definition of dyslexia - Rose Review (2009) Dyslexia and literacy The dyslexia journey Section 2: Where are we now? 15 The views of parents What parents think should be done The views of adults and young people with dyslexia Social media Where are we now? Assessment and special arrangements Examination access arrangements Year 1 phonics screening check Statutory KS2 grammar, punctuation and spelling test Section 3: Literacy is a big issue for the UK 25 Literacy and dyslexia The challenge Consequences of poor literacy - the figures speak volumes We ‘could do better’ Section 4: Interventions and models of good practice 29 What works: interventions and good practice OFSTED (2010) ‘A Statement is Not Enough’ Models of good practice Section 5: Government reform 51 The current SEN system Proposed reform Pathfinders Section 6: Conclusions and recommendations 55 Conclusions Recommendations and Dyslexia Still Matters report Appendices: 60 http://www.dyslexiaaction.org.uk/dyslexia-still-matters-appendices 5
  • 7. Dyslexia Action, June 2012 Dyslexia Still Matters – Summary of findings and recommendations The main findings of this Dyslexia Action report are both positive and negative. Positive findings Include: 4. Dyslexia is now clearly ‘on the map’. Although 1. Good, effective provision exists in a wide there are still teachers (and others) who do range of schools enabling children with dyslexia not like to use the term, there is no longer and literacy difficulties to thrive and succeed. controversy about whether it exists and how to This provision can be seen in some mainstream define it. schools as well as specialist and some independent settings. Negative findings Include: 1. Knowledge, understanding and expertise is 2. Teachers in some schools and specialist patchy and Dyslexia Action too often still hears dyslexia centres are doing a fantastic job for accounts of parents struggling to have their children with dyslexia. The characteristics of this concerns recognised and addressed at school. ‘best practice’ are outlined in our report along with links to further sources of information and 2. Parents continue to report that: guidance. a) ifficulties in their children’s learning are not D 3. The most effective practice involves a picked up early enough. combination of the four key elements of support b) he possibility of dyslexia is usually raised by T that we have identified from our survey of them and not the school. practice and from previous reports: c) Expertise and resources in schools are hard to access. a) A whole school ethos that respects d) yslexic children’s experience of school is D individuals’ differences, maintains high often negative. expectations for all and promotes good communication between teachers, parents 3. Adults and young people with dyslexia and pupils. confirm that: b) Knowledgeable and sensitive teachers who understand the processes of learning and the a) ccessing help at school is difficult. A impact that specific difficulties can have on b) lack of understanding of the nature of A these. dyslexia leads to unhelpful and damaging c) Creative adaptations to classroom practice comments from some teachers which have enabling children with special needs to learn a long lasting detrimental effect. inclusively, but meaningfully, alongside their peers. d) Access to additional learning programmes and resources to support the development of key skills and strategies for independent learning. 7
  • 8. Dyslexia Still Matters 4) The issue of dyslexia, as a disability, has not been fully grasped across education and Action needed changes to systems for assessment and examination are in danger of leaving those with Training dyslexia at a severe disadvantage. Dyslexia All children with dyslexia need to have access Action appreciates that no ‘reasonable to good teaching in all lessons. A co-ordinated adjustment’ can take away the difficulties that plan is needed to improve awareness and dyslexic people will have – to varying degrees – understanding of dyslexia for people in all roles when they are required to read and write under in education. This should include: time pressure. But this disability, just like a more obvious physical disability – should not condemn • compulsory model on Special Educational A them to low achievement. Systems that are there Needs to include dyslexia as part of initial to assess ability and understanding should be teacher training. accessible to those with disabilities on equal terms but we haven’t got to this stage yet. • requirement for all teachers to access A Continuing Professional Development (CPD) National Dyslexia Strategy in the area of SEN to include dyslexia. Proposed changes to the SEN system are welcome but we are concerned that the situation • aking special needs a higher priority in the M will get worse for learners with dyslexia as the training and professional development for current mechanisms to support learners and those in leadership and governance roles. schools is changed or withdrawn. • plan, with resources behind it, to ensure that A Dyslexia Action believes that the focus of the all schools have access to a specialist teacher SEN pathfinders is too narrow and the timescale who has a postgraduate diploma in dyslexia too tight to work out the details needed for the and literacy. SEN reforms. However, we have a solution for this which is to use the information we already • scheme to enable more teaching assistants A have about what works for children with dyslexia to receive training in specific interventions and other high-incidence low-severity needs. and methods of support as well as a career structure allowing them to undertake more The knowledge and expertise is there, to specialist roles as their skills and knowledge develop, advise and deliver on, a National increase. Dyslexia and Literacy Strategy to help roll out effective practice throughout the country. • roducing guidance and advice for use by P However, we cannot succeed with this unless inspectors in relation to effective support and we have the commitment and support of the interventions for those with dyslexia. Government. 8
  • 9. Dyslexia Action, June 2012 Identification and assessment Sharing best practice This is an area of practice where improvements Best practice can be delivered in practice (as are badly needed. More information needs to highlighted in this report’s Intervention Table get to practitioners so they are more confident p.38-49), but this needs to be shared and about making the first observations of children communicated more widely. We need to: who may be having difficulties, assessing the nature of those difficulties and making • evelop and maintain forums for exchange of D an appropriate response. This could include practice locally, nationally and virtually. determining the need for special arrangements • nsure that expertise from the voluntary sector E for formal examinations. Current discussions and from those engaged in research is fully around the use of the Phonics Check and exam utilised. access arrangements reveal worrying levels of • evelop and evaluate new intervention models D ignorance about the use of assessment tools in schools and specialist centres so they can to support improved learning and achievement. learn what works. There needs to be: School improvement • etter tracking and monitoring of children B It is encouraging that OFSTED has been asked as they progress from pre-school through to to focus now on what schools are doing for the adulthood. pupils in the bottom 20% and that programs • clear policy on where the responsibility A such as Achievement for All are being adopted for this monitoring and identification sits and more widely. However, the pace of change here better use and co-ordination of centrally-held must increase and further action and support is data along with individual observations to avoid needed so that schools can produce credible the unacceptable delays in identifying those Local Offers under the new SEN reforms. who need extra help. • etter advice and guidance around the Year 1 B • chools need to demonstrate, through the S Phonics Check, especially about the actions local offer and in other ways, what they are that should follow from low scores. doing to support children with dyslexia and • etter access to easily-administered screening B literacy difficulties. assessments and a clearer policy about how • chools need to show that they have engaged S information is shared with colleagues and with ‘best practice’ as highlighted in this parents. report’s Intervention Table. • raining for all teachers, at all levels, so that T • unding arrangements for schools need to F they can identify signs of Dyslexia-SpLD reflect that developing an effective local offer and know what to do in terms of further is a priority and they should be encouraged to assessment and advice. draw widely on expertise, including that from the voluntary sector to help develop and deliver these plans. • FSTED needs to require schools to include O these plans and their success in implementing them as part of school inspections. 9
  • 10. Dyslexia Still Matters A call for action The very real risk that things will be made worse arises because the main focus of current reforms is on the smaller number of children with the Sharing knowledge most severe and complex needs and insufficient The proposed Children and Families Bill, time has been given to developing the practical building on the SEN Green Paper, provides details here. At the same time, the SEN the opportunity to deliver comprehensive pathfinders appear not to be fully addressing the improvements in literacy throughout the system. aspects of reform related to those with high- Intervention strategies to improve literacy skills incidence, lower-severity needs. The danger are likely to fail however, unless the Government is that the new system will leave all those with incorporates specific provisions for those with special needs considerably worse off than they dyslexia and other specific learning difficulties. would have been had the previous system been left in place. Building on reports and reviews such as those A way forward of Lamb (2010), Rose (2009) and OFSTED (2010), the Government has signalled its intention to create a system which is: • less adversarial In this report, Dyslexia Action is offering a way • ess bureaucratic l forward that could help to avoid this disaster. We • ives parents a greater say in decision making g suggest that it is not necessary for pathfinders • puts resources in the hands of practitioners to work out how best to deliver effective support for those dyslexia, literacy difficulties and specific The goal is to find ways of sharing knowledge learning and language difficulties. We are talking and spreading effective practice of systems that here about the vast majority of those, with the work. high-incidence, low-severity needs, for special provision. Why do we say this? Simply, because Few would argue with the Government’s we believe we already have the answers, as aspirations, but there is a very real danger detailed in this report. that proposed reforms will, at best, miss an opportunity and at worst, make matters a great Making this good practice more widespread will deal worse. The opportunity is there to build on require commitment and resources. In short, the the very solid platform of evidence that shows Government must put muscle and money into how all kinds of schools can deliver effective this aspect of special needs provision. Dyslexia education for learners who have dyslexia and Action is calling for individuals and organisations struggle with literacy. This is already being done to come together to help develop, advise on and in some authorities, in some schools and in some deliver a National Dyslexia and Literacy Strategy. projects, but that effective practice is far from universal. We urge Government to take on board the recommendations of this report and to work with the NDLS team at this critical time - together we can improve the UK’s literacy standards. 10
  • 11. Dyslexia Action, June 2012 Section 1: Dyslexia 11
  • 12. Dyslexia Still Matters What is Definition of dyslexia - Rose Review (2009) dyslexia? Dyslexia is a learning difficulty that primarily affects the skills involved in accurate and Dyslexia has now been clearly defined, reflecting fluent word reading and spelling. a considerable growth in knowledge and understanding over the past 40 years. The Characteristic features of dyslexia are definition was agreed by the Expert Advisory difficulties in phonological awareness, verbal Group for Sir Jim Rose’s independent review memory and verbal processing speed. commissioned by the Secretary of State for Dyslexia occurs across the range of Education as detailed (right). All the dyslexia intellectual abilities. organisations in the UK have endorsed this definition. It is best thought of as a continuum, not a distinct category, and there are no clear cut-off points. Co-occurring difficulties may be seen in aspects of language, motor co-ordination, mental calculation, concentration and personal organisation, but these are not, by themselves, markers of dyslexia. A good indication of the severity and persistence of dyslexic difficulties can be gained by examining how the individual responds or has responded to well-founded intervention. This definition reflects our understanding that dyslexia is a language-based difficulty which makes it harder to learn to read and spell. Other kinds of difficulties may accompany dyslexia, but it is the difficulty in dealing with word sounds (phonics) that hampers the acquisition of literacy skills. As has been known for some time, dyslexia is nothing to do with general intelligence although other abilities and difficulties affect the impact of dyslexia which contributes to its severity. Appendix 1, associated with this report, provides more information about dyslexia and how it might affect someone living with it (See list of appendices available at www.dyslexiaaction.org.uk). 12
  • 13. Dyslexia Action, June 2012 Dyslexia and literacy The information in Appendix 1 (www.dyslexiaaction.org.uk) shows dyslexia is not just a problem with literacy. It can: • ffect the ability to remember spoken A information within the short term memory system • ake it harder to retrieve words from long term M memory • ccur alongside other difficulties e.g. O concentration, arithmetic and motor co- ordination However, the biggest challenge that dyslexia The dyslexia journey causes in education and in working life Dyslexia is a subject that has caused much is with reading and writing. It is therefore debate over the years. The first descriptions understandable that the primary focus of – from over a hundred years ago – used the interventions and support for people with term ‘word blindness’, reflecting the view that dyslexia is on reading and that we all agree such difficulties in reading were caused by problems support is better provided as early as possible in in visual perception. It was not until the 1970s a child’s education. that the role of language processing was recognised and only in the last 20 years has that How important is it that those with dyslexia been accepted as the primary feature of dyslexia. are identified from amongst those with general literacy-learning difficulties? This is an issue While controversy and debate continued, it that has sparked much controversy with some was easier for some in professional practice to educators arguing passionately that there is ignore the issue and harder to argue for specific no need to make any distinctions and that all approaches and methods. Instead, those living those with literacy difficulties will respond to the with dyslexia were often wrongly labelled as same kind of support. Others have argued that ‘slow’, ‘thick’ and/or ‘lazy’, with school reports those with dyslexia must be identified because warning parents not to expect much from their they need a different kind of support. Dyslexia son/daughter! Action’s view on this issue is as follows: Controversy has also given fuel to the fires of • ot all children with literacy difficulties respond N alternative treatments and ‘miracle cures’. If to the same approaches equally well. mainstream/establishment services have nothing • he kind of literacy support that is effective for T to offer, it is no surprise that people will turn to those with dyslexia is also likely to be effective alternatives. Almost always, these alternatives for all children with literacy difficulties. are untested and often based on dubious • hen it comes to early reading support, it is W theories and claims. Whilst elements of some therefore NOT critical to identify those who may be effective for some people, on the whole, show characteristics of dyslexia, provided all they do not prove worthwhile. receive the form of teaching which we know works for people with dyslexia. 13
  • 14. Dyslexia Still Matters The Rose Report (2009) reflected a high point on the dyslexia journey and one motivation for Dyslexia Action’s report now, is to ensure we do not lose that ground. Other significant milestones on the journey are when: • yslexia was recognised under the Disability D Discrimination Act in 1995 and is still specifically mentioned in the more recent Equalities Act (2010). This means that educational and workplace settings have a duty to make reasonable adjustments to ensure that those affected by dyslexia are not disadvantaged compared to their peers. • yslexia became recognised as a Special D Educational Need (SEN) and was mentioned as an example in the 1997 Code of Practice. • ecretaries of State for Education, notably S Kenneth Clarke, David Blunkett, Ed Balls and Michael Gove made public statements about the issue of dyslexia and its importance. In March this year (2012), Education Minister Michael Gove announced on Daybreak television that one in ten children are dyslexic. 14
  • 15. Dyslexia Action, June 2012 Section 2: Where are we now? 15
  • 16. Dyslexia Still Matters The views of parents Recognition The survey showed there still appears to be resistance to the concept of dyslexia and an apparent unwillingness to take the issue seriously. Parental quotes included: • Schools need to accept that children have ‘ dyslexia instead of trying to ignore it’ • ‘The school refused to recognise dyslexia’ • ‘My child was constantly expelled from school’ • My son had to go to a special school because ‘ the school he went to would not help him or accept he had any difficulties’ Parental concerns The responses from the YouGov survey typify comments that Dyslexia Action regularly receives from parents who come to us for support. For Dyslexia Action commissioned YouGov example, one told us that after making enquiries to conduct an independent survey of a with the SENCO, the headteacher called the representative sample of parents who had parents in to reprimand them for bullying the children with dyslexia (sample of 464). The SENCO. Another parent in the YouGov survey field samples were collected from the 5th- said: 30th April, 2012. More detail can be found in Appendix 3 (http://www.dyslexiaaction.org.uk/ • Schools need to take notice of parental ‘ dyslexia-still-matters-appendices) but some of concerns and not become defensive when the key findings from this independent survey are parents do raise concerns. I had my child detailed in the sections below. Note that these assessed privately and when I took the report results reflect a more optimistic view because to her primary school to discuss if any extra they are based on a sample where dyslexia has support could be given the headteacher said been identified. We know that there are many very sarcastically: ‘What do you want me more families where children are struggling with to do with that and then proceeded to do difficulties which have not been identified or nothing until my daughter’s KS3 SATs, when have been mis-identified as a behaviour problem miraculously a teaching assistant read the for example. questions for her. I’m sure this was only done to improve the school SAT results!’ Identification • 0% of parents surveyed said their child was 6 Another parent said that the school did not want diagnosed before secondary school to admit they had ‘the problem’ (dyslexia) in their • 6% said the school was the first to identify a 2 school. One parent commented: problem • 5% said teachers failed to recognise a 5 problem with their child’s development • lmost two-thirds felt dyslexia was not A recognised across the system 16
  • 17. Dyslexia Action, June 2012 • They (the school) never listened to me ‘ There were positive comments from the survey when I expressed anxiety that my child had however, that mentioned things such as: dyslexia and actually told me that he didn’t, on numerous occasions, until I had to get him • ritten text being given in advance of the w diagnosed privately to prove it. I was told my lesson son may have dyslexia but it was better not to • etting support when needed g get him tested as then he would be labelled for • extra time in exams the rest of his life and he would be better off • being given a laptop learning coping strategies. He has since been • 8% said that their dyslexic child had received 5 tested and given extra help such as readers help and support with their dyslexia and scribes and extra time in exams’. • 2% reported their child had received extra 5 help and made progress in reading and In summary, parents today still report resistance spelling to the concept of dyslexia and often their • 5% of parents reported their child does 7 perception is that problems are acknowledged well and feels proud of their achievements very late. in subjects and activities that don’t involve reading and writing • 1% reported they had a good group of 7 friends • 5% said they had positive relationships with 7 particular teachers Parents’ views appeared strongest when they felt that schools and teachers failed to understand the problem including: • My stepdaughter still believes she is thick ‘ because of early experiences despite being quite the reverse!’ • Sadly, as my son was not statemented, he ‘ Help and support: received no help’ While parents did highlight positive aspects of • The school didn’t seem to understand that a ‘ practice, the overwhelming view is that schools child with ‘Above Average IQ’ could also have a offer ‘too little, too late’. Also: specific learning difficulty such as dyslexia’ • 1% of respondents said that their children did 6 A number of parents told YouGov that they had not receive any help and support until a whole moved their child from state to private education year after they were diagnosed; with 14% of because their child was not getting the right parents saying they are still waiting support. Others were financing additional • ome 50% of parents felt that the school did S support outside of school. One parent said: not recognise or develop individual pupil ability ‘Nobody was qualified to teach him. I then • nly 40% said that their school had an O paid for an independent tutor to help him appropriately trained teacher to support their through school’. child’s needs • 4% felt that schools do not do enough to 6 help children with dyslexia 17
  • 18. Dyslexia Still Matters Social impact Case Study 1 Dyslexia Action knows from its work with dyslexic adults, that it is the social and emotional impact of dyslexia which can be hardest to deal with. Sadly, the YouGov survey showed that children with dyslexia today are still having a hard time at school and sometimes feel isolated or bullied. Survey results showed: • ore than 50% of parents said there are times M when their child does not want to go to school • 7% of parents surveyed felt their child had a 5 negative experience at school because of their Gavin (44) and Seanna (13) dyslexia Both Gavin and his daughter Seanna are • 3% reported their child felt different to their 5 dyslexic. Gavin was involved in a dyslexic peers intervention project in Hackney, London, when • 7% said that their child had been bullied or 4 he was 14 years old but apart from this, due to picked on at some point financial constraints, the support he received • 7% of parents reported teachers made 3 was very patchy. He has therefore fought hard unhelpful comments like ‘try harder’, which then to get a Statement for his daughter to fund her had a negative impact on self-esteem specialist one-to-one support alongside her • 5% of parents said that a teacher had made 1 mainstream schooling. public comments about their child’s difficulties and 11% said that a teacher had made fun of Gavin talks about his dyslexia and the support mistakes or wrong answers he did receive: “Dyslexia isn’t just about learning, it’s a part of everything I do. In our While these unhelpful comments and reactions society if you can’t read, you can’t thrive. from teachers were not reported by all parents When I was fourteen I was lucky enough to be and clearly do not apply to all teachers, we part of a project that was funded by Hackney regard it as unacceptable that any teacher Council and I used to go to Dyslexia Action should conduct themselves in this way, which once a week for support. But the funding ran can only be the result of a lack of understanding out once I started college. It was at this point of the impact that a specific learning difficulty that I lost my way. I knew I wasn’t stupid; I such as dyslexia can have. knew I wasn’t a low life; I loved education but education didn’t love me; it just didn’t soak in Other disturbing comments from respondents for some reason. included that a teacher ripped up a piece of her child’s written work in front of the class and “I did lots of jobs earning the minimum wage put it in the bin; a parent said that the teacher but it was when my daughter Seanna was continued to make their child copy off the board born that I had a wake-up call. My uncle is a when this was difficult for them and another said cabbie and he said to me: ‘Gavin you can do her child was shouted at by a teacher because anything you put your mind to’. He encouraged they were unable to complete a task. me to do ‘The Knowledge’ to become a London cabbie. This was not something that I thought I could do because of having to pass exams so I put it off. 18
  • 19. Dyslexia Action, June 2012 “My mum never let me give up and in the end What parents think should I got back in touch with Dyslexia Action. The be done? teachers remembered me. Margaret assessed • 2% of respondents said all schools should 9 me and worked with me to make sure I got have access to a specialist in dyslexia the support I needed to get me through ‘The • out of 10 parents of dyslexic children, who 9 Knowledge’. were independently surveyed by YouGov, said all teachers should have a basic level of “It took me longer to get there but my way training in dyslexia of learning has now clicked in my head and I • 1% of respondents were in favour of school 8 have found my gift. I officially achieved ‘The improvements to include measures to track Knowledge’ in October 2010. I now have the progress a child is making in literacy a London Cab. I have found my way; I am a throughout their time at school successful man and I am happy.” From some of the additional comments made, When Seanna was seven years old, Gavin was respondents highlighted the transition of primary told at a parent’s evening that her reading age to secondary as being poor. One parent told was very low. “I knew she was dyslexic but it YouGov that their child had more help in primary took until she was ten before she got the right school than high school. Another said secondary help,” said Gavin. “I took information into the school: ‘Never followed up reports from primary school from Dyslexia Action and have fought school and, when advised, still did nothing – I to get the funding for Seanna. Her Statement was advised that they could have brought this now pays for one lesson per week at Dyslexia to the attention of the examining boards and Action, which is great but I want her to have as a result my child’s grades would have been more, at least two lessons per week.” adjusted accordingly’. Seanna said: “For me dyslexia is like I know Many parents commented on the need for what I want to say but I can’t write it down. more 1:1 support or smaller group teaching. I can see a word in my head and remember There were also many anecdotal comments exactly what letters are in it but I just can’t say referring to teachers needing improved levels of what that word is. When I used to write I used understanding. to find it hard as I could never spell the words I wanted to use, but now I am able to use Parents also commented that it was very what I am learning at Dyslexia Action to use important for them to be involved and any word I want. The support is helping me to there needed to be a much better level of understand how I learn and I am growing in communication between them and the school. confidence. It is so good to come somewhere Some said they felt ignored and that teachers where they get me.” needed to listen to parents and take their concerns seriously. 19
  • 20. Dyslexia Still Matters Among the comments relating to people’s feelings on finally being diagnosed were: ‘I was worried that I was different’; ‘I cried all day’; ‘I was ashamed’; ‘my mum knew from the age of 8 but the doctors said it was just immaturity’; ‘I was bullied by a teacher and was very confused’; ‘I already knew so it just confirmed what my parents had said since I was 6’; ‘I felt stupid, angry, upset. It really knocked my confidence’; ‘I felt mixed up; my emotions were all over the place’. Most of the 16+ dyslexic respondents reported The views of adults and young negative experiences from their time at school; people with dyslexia with over half saying they found being dyslexic Dyslexia Action conducted an online survey of frustrating. This was compounded by unhelpful people over the age of 16 with dyslexia which comments from their teachers such as: asked about their experiences of being dyslexic and of education. This was something that • ‘try harder’ - reported by nearly 83% of we asked our own specialist Dyslexia Action respondents Centres to promote to their learners. The sample • 0% said teachers only ever commented on 4 is therefore not an independent one, in contrast spelling and never on the ideas and content to the YouGov survey of parents which took a • 5% said teachers made them read aloud in 6 representative sample. While we are only talking front of the whole class despite their difficulties of a relatively small sample of 128 respondents, • 8.2% said their teachers made public 3 the information reflects comments we hear from comments about their difficulties learners on a daily basis. • 0% said they made fun of mistakes or wrong 3 answers Like the parents of children with dyslexia, almost all the respondents believed that teachers One respondent reported being bullied all the should have much better training in dyslexia and time; another was told by their teacher that they that there should be better access to specialists would never amount to anything in life, saying: ‘I and 1:1 support. Close behind in terms of was lazy and a troublemaker’. Another reported priorities, the respondents felt there should be being told: ‘I was stupid and they [teachers] more measures in schools to build confidence made me stand and tell my classmates I was (85%), good access to ICT (79%) and an stupid’. Others reported being accused of understanding/sympathetic school environment cheating and of being lazy. (77%). When asked about their move to secondary Among this sample of adults, 35% revealed school after primary, nearly 62% said they dyslexia was not diagnosed until after the struggled with the work. Worryingly, when asked age of 21. what positive experiences they remembered from their education, 20% of our respondents reported ‘none’. 20
  • 21. Dyslexia Action, June 2012 Despite all their negative experiences, over half • ore support is needed at schools and M said the most positive thing about going through colleges because when I was there, there was education with dyslexia was that they felt proud no support of what they had achieved despite it. More than • eachers need to understand what it is like for T half did say that dyslexia was better recognised a child with dyslexia now than 10 years ago but 22% believe much • eachers need to actually spot when a child T more should be done to ensure people with could be dyslexic at primary school age and dyslexia can succeed at work. The majority act with support and knowledge (60%) believed they would have been more • ll teachers need to know how to cope with A successful had they received better support dyslexic children, it should be part of their at school. 62% believed they were able to get training better jobs because of skills training or further • ur head in our local super Ofsted school O education received after school and once their says: ‘it’s not a disability!’ dyslexia was diagnosed. • ecognition in all schools that this is a learning R problem and with the right support and programs it could change the lives of many children/people who are suffering, myself and my two boys included • f my son had been diagnosed and at the I very least acknowledged more in his primary setting, things would of never got so bad, and the secondary school he entered would of not had to pick up the pieces • hroughout my daughter’s junior school she T felt stupid and would never ever put her hand up in class • have had to fight to get my son’s dyslexia I Social media recognised, more needs to be done by the Dyslexia Action is actively involved in various teachers, they need to take more notice forums on the web through which people • think all children should be tested for dyslexia I express their views and exchange information. as part of the school curriculum and not wait The identification of dyslexia and getting the until the child falls well behind in reading and right support is a subject that generates very writing passionate opinions, particularly amongst • chool kills 99% of dyslexics - it killed me! S parents of dyslexic children. While this evidence • rain all teachers so they can stop saying: T is not part of either of the surveys detailed in ‘there is something not quite right with your this section, there are a number of views and child’ opinions that we feel are important to highlight. • wish all teachers studied dyslexia as part of I their credentialing The consensus view expressed in social media is • he ‘wait to fail’ mentality is absurd T that the system is bureaucratic and children are being failed because of the lack of identification and limited access to the right help and support. Some comments we have recorded from individuals posting on Dyslexia Action’s Facebook wall include: 21
  • 22. Dyslexia Still Matters Where are we now? Assessment and special arrangements Highlighted below are three keys areas which Changes to the current access arrangements have had a significant impact on children with for examinations were put forward last year dyslexia. by the Joint Council for Qualifications (JCQ) with the publication of the annual: ‘Access Examination access Arrangements, Reasonable Adjustments and arrangements Special Consideration – General and Vocational Under the Equality Act (2010), pupils with Qualifications’, which has caused considerable disabilities in England and Wales are entitled concern to students, schools and parents. to apply for special arrangements in exams to give them the opportunity to demonstrate their Confusion now exists as to whether candidates knowledge and understanding despite problems with dyslexia or other specific learning difficulties with reading the questions, or writing the will still receive up to 25% in extra time, more answers, for example. For those with dyslexia in some cases, and be entitled to other support and literacy difficulties, such arrangements such as a scribe and/or a reader. Dyslexia Action typically mean extra time, but other support is working with JCQ and with other stakeholders may be allowed such as someone reading to resolve some key issues. the questions aloud or writing the answers, depending on the individual’s specific difficulties. Dyslexia Action’s main concern is that the changes will only allow for students who have considerable difficulties, and adjustments will only be made for those who are way below 22
  • 23. Dyslexia Action, June 2012 the average in absolute terms. We know that presented and about the actions that will result Dyslexia ranges in severity and that many people from its use. can develop compensatory skills and strategies so that they can achieve well. However, when Children who fail to reach the necessary level under pressure of time, it is often the case that should not wait a whole year before the effects use of these strategies breaks down. It is also of additional actions are assessed - that will be significant that a very able person with dyslexia too late. may have their career options limited because they appear to be ‘within the average range’ in Teachers should not rely only on the information terms of literacy whereas without the impact in the check - they will have other information of their dyslexia they could perform well above about what a child’s literacy levels are and average. Should special arrangements be there should already be taking action to support those to level the playing field, to compensate for who have been identified as struggling much disability and to allow people to demonstrate earlier than the end of Year 1. what they are capable of achieving? Or are they just to lift the lowest in literacy to the lowest level The check may serve as a useful safety net to needed to get through the exam? pick up children who appear to be progressing well but who lack the foundations in phonic Year 1 phonics screening check skills. Teachers need to be reassured that action A new, statutory phonics screening check to support children who seem to be doing ‘ok’ is for all pupils will be introduced in 2012 for worthwhile in terms of longer-term gains. children aged six who are getting to the end of Year 1 in primary school. The purpose of Not a ‘catch-all’ solution the phonics screening is to determine whether We are also concerned that the response to a individual pupils have mastered the basics of low result on the check should not be ‘more of phonic decoding. Pupils who have not reached the same’. It is important that schools receive this standard at the end of Year 1 should then support on delivering additional intervention receive support from their school to ensure they models, with the accompanying training for can improve their phonic decoding skills and teaching staff and teaching materials. they will be checked again a year later. Our main concern about this check is that it The check involves reading words and non- could be presented as a complete solution to words. If a child has developed good phonic- the challenge of identifying those who have decoding skills they will be able to work out how difficulties with literacy. Dyslexia Action believes to pronounce the non-words because these that this is a step in the right direction but it is words cannot be read ‘by sight’. not a ‘catch all’ solution. Some children with dyslexia may do well enough to pass this check The introduction of the phonics screening has at this stage in their education, particularly caused considerable debate with many teachers those who are more able or have been taught threatening to boycott it. Dyslexia Action has exceptionally well. However, they may have supported the use of the check because the difficulties later down the line. Similarly, difficulty in acquiring phonic decoding skills is decoding is central to reading but it is not the almost the ‘hallmark of dyslexia’. It is therefore whole story so teachers need to be aware of very helpful to identify children early who have possible difficulties in other aspects of literacy such difficulties. However, we have some and take action to develop wider literacy skills concerns about the way this check is being instead of focusing just on phonics. 23
  • 24. Dyslexia Still Matters Statutory KS2 grammar, Summary punctuation and spelling test This short review on current issues in A new statutory test of grammar, punctuation assessment highlights that the issue of dyslexia, and spelling will be introduced for children at as a disability, has not been fully grasped across the end of Key Stage 2 from May 2013. This education. Dyslexia Action appreciates that follows the Government’s decision to improve no ‘reasonable adjustment’ can take away the the assessment of English writing. This decision difficulties that dyslexic people will have – to was informed by Lord Bew’s recommendation varying degrees – when they are required to (DfE, 2012) that writing composition should read and write under time pressure. But this be subject to teacher assessment only, with disability, just like a more obvious physical the more ‘technical’ aspects of English - such disability – should not condemn them to low as punctuation and spelling - assessed via an achievement. Systems that are there to assess externally marked test. The introduction of this ability and understanding should be accessible new test reflects the Government’s beliefs that to those with disabilities on equal terms but we children should have mastered these important haven’t got to this stage yet. aspects of English by the time they leave primary school and that appropriate recognition should be given to good use of English throughout their schooling. As with the Phonics Screening Check for 6-year- olds, some have objected strongly, including the NUT (2012) which says the ‘pass/fail test for six year olds is wrong’ and the National Association of Head Teachers which believes the new tests were ‘a waste of taxpayers’ money’ (Sellgren, 2012). Dyslexia Action has a more neutral view on this. We would rather see an explicit test of spelling punctuation and grammar than have an assessment of other subjects ‘polluted’ by the requirement to mark down candidates in these subjects who have poor spelling and grammar. We regard it as totally unacceptable that someone who spells badly should be denied the chance to gain top marks in, for example, history or geography. 24
  • 25. Dyslexia Action, June 2012 Section 3: Literacy is a big issue for the UK 25
  • 26. Dyslexia Still Matters Literacy and dyslexia Dyslexia may have only just got on the map in It is well documented (Stewart, 2005) that educational terms, but literacy has been there there are huge social and financial costs as a for a long time. Those who campaign for the result of illiteracy. There are implications both importance of literacy may have some different for the individual that struggles to read and our perspectives and terminology but they tend to economy as the result of underemployment, share the same overall goals as those who are unemployment and crime. These are directly concerned with dyslexia. Dyslexia Action has related to literacy problems as the result of poor worked closely and productively with various academic achievement, vocational training and organisations such as The National Literacy reduced employment opportunities. Trust (www.literacytrust.org.uk) and we have found much common ground on issues such as Appendix 2 (http://www.dyslexiaaction.org.uk/ engaging boys in reading, home reading habits, dyslexia-still-matters-appendices) details the mentoring and improving access to high quality trends in literacy standards across the UK over resources for teachers. the last 5-10 years based on SAT results and GCSEs (DfE, 2011). On average there has been Many, but not all, literacy organisations and an improvement. In 1995 only 49% of children specialists accept the issue of dyslexia and at KS2 were meeting expected levels in literacy recognise that specific training support and (Level 4) but this has improved to 81% (KS2 adaptations are needed if the wider world of results for 2011). But it is those with the poorest literature is to be opened for them. At a more skills that remain static. Approximately 20% of fundamental level however, Dyslexia Action is children are still not meeting expected levels in arguing that no strategy to address the challenge reading. of ‘universal literacy’ will succeed unless it acknowledges dyslexia and incorporates specific According to the Department for Business, measures for people with dyslexia. Innovation and Skills (BIS, 2010) ‘Skills for Life Survey’ the number of people with relatively Getting it right for those with dyslexia will poor literacy skills has declined, whilst the therefore do a great deal to lift overall standards number with the poorest skills has not changed in English language and could help lift the significantly. UK from its lowly position in the international comparison league-tables. Figures from the European Commission’s Eurostat (2011) put the UK 19th out of 33 The challenge countries ranked according to the proportion Trends in literacy standards through SAT results of the population aged 25 - 64 with an ‘upper (Jama Dugdale, 2012) at the end of Key secondary education’ (equivalent to A-levels). Stage 2 (KS2) show us that approximately one Just 76.1% of Britons are educated to A-level in five school aged children are still not meeting standard compared to 92% in Lithuania for expected levels in literacy. This means that there example. are approximately1.62 million children in English schools who are prevented from accessing the school curriculum because they are unable to read well enough. These children are at a huge disadvantage and are affectively excluded from engaging in classroom activities. 26
  • 27. Dyslexia Action, June 2012 Consequences of poor literacy – the figures speak volumes Department for Education Ministry of Justice The latest figures from the Department According to the Ministry of Justice (2011) for Education (DfE, 2011) show that an the prison population at 31 March 2012 was estimated 5,740 children and young people are 87,531 offenders in England. Dyslexia Action’s permanently excluded from primary, secondary own research demonstrated that there is an and all special schools. Pupils with SEN overrepresentation within the prison population statements are around eight times more likely to compared to the UK population as a whole of be permanently excluded than those pupils with those with literacy difficulties and those who no SEN. According to the DfE, 75% of all school have dyslexia/SpLD. Around 50% of the prison exclusions, some 4,260 children are permanently population, which is 30% above the population excluded. norm, have poor literacy skills and 20% of offenders were found to be dyslexic, which is National Foundation of 10% above the population norm. According to Educational Research (NFER) the NOMS Annual Report and Accounts 2010- The NFER (The Dyslexia Institute, 2006) noted 11 the cost on average per prisoner is just under that the additional cost of provision for a child £27,000 per year. The UK tax payer is therefore that is permanently excluded is approximately paying in excess of £710 million per annum just £10,000 per annum. The cost of supporting for the overrepresentation of those with poor children with SEN who are excluded is therefore literacy skills. over £50 million per year. This funding would have been better used to provide appropriate Department for Work and early support in school. Pensions According to the Department for Work and Youth Justice Board Pensions (2012) the benefit expenditure for As detailed in the Corporate and Business England and Wales in 2009/10 on Income Plan 2011-12 to 2014-15 (D133) of the Youth Support was £7,558 million and on Jobseekers Justice Board for England and Wales (2011), Allowance was £4,276 million. In 2010/2011 the National Audit Office has estimated that it was £7,073 million for Income Support and the total cost to the UK economy of offending £4,044 million for Jobseeker’s Allowance. by young people could be up to £11 billion per year, and the proportion of young people who reoffend stands at around 37%. 27
  • 28. Dyslexia Still Matters Institute of Economic Affairs Peter’s story Professor Len Shackleton, a fellow of the Case study 2: Institute of Economic Affairs, comments: “Low levels of literacy are associated with a higher risk of unemployment in all countries. The number of unskilled jobs requiring little or no literacy (though still significant) has been falling sharply in the UK. Perhaps, as importantly, access to jobs increasingly depends on filling in forms and writing CVs - impossible without quite reasonable literacy. Another way in which illiteracy makes people difficult to employ is through prison experience. Of those in prison, illiteracy is shockingly high. It’s probably the case that prison sentences are themselves more Peter (an adult learner) likely if you are illiterate, for any given level of Peter is an example of someone who is offence. Once incarcerated, your employability in getting his first chance of an education in his future is dramatically reduced. Our literacy rates 50s. Here Peter discusses the impact of his now compare rather badly with emerging Asian difficulties on his career and how he tried to economies as well as some (though not all) keep his dyslexia a secret from his employer. European economies.” “At 52 years old I burst into tears when I We ‘could do better’ had to tell my boss I was dyslexic. There There are clear and well documented was pressure on me to get professional long-term and significant social and economic qualifications following a restructure. I went costs associated with not taking a strategic to pieces. I was on medication for depression and comprehensive approach to educating and was seeing a counsellor. I was terrified I children with dyslexia and literacy difficulties. would lose my job now that my secret was out. Improvements in literacy standards have been made and we are making progress but we ‘could “I am now slowly coming to terms with my do better’ at providing good literacy education situation. I now realise that being dyslexic has for all children and we need to do more to nothing to do with my ability. I am good at my support those in the lowest 20%. We could do job. Thanks to the support I am now getting I more for people like Peter - see case study 2 am having my first opportunity at an education (right), if we help dyslexia sufferers when they and qualifications. This has helped make me are young. accept things and has given me a greater understanding about my dyslexia and about me. In time, I hope to be able to progress my career once I feel ready to sit those exams!” 28
  • 29. Dyslexia Action, June 2012 Section 4: Interventions and models of good practice 29
  • 30. Dyslexia Still Matters What works: interventions and good practice Recent reports such as Rose 2009 and Children and young people’s learning OFSTED 2010 have highlighted those features was least successful when: of practice that promote successful outcomes. • xpectations of disabled children and young E OFSTED’s report was concerned with good people and those who had SEN were low learning outcomes in general, but the points • ctivities and additional interventions were A made are relevant to literacy and dyslexia. inappropriate and were not evaluated in terms of their effect on children and young people’s OFSTED (2010) ‘A Statement is learning Not Enough’: • esources were poor, with too little thought R having been given to their selection and use Children and young people learnt • eachers did not spend enough time finding T best when: out what children and young people already • eachers presented information in different T knew or had understood ways to ensure all children and young people • eachers were not clear about what they T understood expected children and young people to learn • eachers adjusted the pace of the lesson to T as opposed to what they expected them to do reflect how children and young people were • ommunication was poor: teachers spent C learning too much time talking, explanations were • he effectiveness of specific types of support T confusing, feedback was inconsistent, was understood and the right support was put language was too complex for all children in place at the right time. and young people to understand - the tone • ssessment was secure, continuous and acted A and even body language used by adults was upon confusing • eachers’ subject knowledge was good, as T • he roles of additional staff were not planned T was their understanding of pupils’ needs and well or additional staff were not trained well how to help them and the support provided was not monitored • he staff understood clearly the difference T sufficiently between ensuring children and young people • hildren and young people had little C were learning and keeping them occupied engagement in what they were learning, usually • espect for individuals was reflected in high R as a result of the above features expectations for their achievement • esson structures were clear and familiar but L allowed for adaptation and flexibility • ll aspects of a lesson were well thought A out and any adaptations needed were made without fuss to ensure that everyone in class had access See table 1.1 at the end of this section for examples of interventions and good practice. 30
  • 31. Dyslexia Action, June 2012 Features of good practice Effective learning Sir Jim Rose’s review (2009) highlighted the In summary, effective learning for children importance of teachers having an understanding with dyslexia depends on: of the normal processes of development in reading and spelling and, in particular, 1. A whole school ethos that respects the Simple Model of Reading. A survey of individuals’ differences, maintains high practitioners who were consulted for this review expectations for all and promotes good identified the following features of good practice communication between teachers, as most important. parents and pupils 2. Knowledgeable and sensitive teachers • sing multisensory methods for teaching U who understand the processes of encouraging multisensory learning learning and the impact that specific • lanning and delivering lessons so that pupils/ P difficulties can have students experience success 3. Creative adaptations to classroom • lanning and adapting the teaching P practice enabling children with programme to meet individual needs special needs to learn inclusively and • eaching a structured programme of phonics T meaningfully, alongside their peers • uilding in regular opportunities for B 4. Access to additional learning consolidation reinforcement of teaching programmes and resources to support points already covered development of key skills and strategies • aintaining rapport with pupils/students M for independent learning • lanning a purposeful and engaging balance of P activities in lessons In the next section of this report we look at • eaching pupils/students to be aware of their T the realities of good practice in a selection of own learning strategies schools, local authorities and voluntary sector • eaching pupils/students to develop effective T providers. We chose examples here simply learning strategies to illustrate a range of practices in a range • howing sensitivity to the emotional needs of S of settings and we do not attempt to give an pupils/students exhaustive list. There are other useful sources of • eaching pupils/students to improve their T advice and information about good practice and working memory we do not wish to duplicate what is found there. • electing appropriate resources to support S See for example the Dyslexia-SpLD Trust’s particular learning needs ‘Interventions for Literacy’ website: www.interventionsforliteracy.org.uk. The common The features of good practice identified by thread in the examples chosen is that the best OFSTED and by Rose show close agreement, outcomes are achieved by provision that is not and resonate well with the reports from confined to one key area but encompasses many parents about what they have found helpful of the four features that were summarised above. or unhelpful. It is interesting to see that good practice for those with dyslexia is not just about individualised learning programmes and the specific content of these programs. The ethos and organisation of learning within the classroom and across the whole school also make a big difference. 31
  • 32. Dyslexia Still Matters Models of good practice See Table 1.1 (p38-49) for interventions, results and case studies for all of the following examples. Achievement for All that the CDA and the Local Authority decided Achievement for All is a tailored school to formulate its own accreditation process and improvement framework, delivered in partnership quality mark. The purpose was to incentivise with leaders, teachers, parents, pupils and schools to get additional training for its staff, in support professionals. It aims to raise the return for the kudos of the quality mark. aspirations, access and achievement of pupils identified with Special Educational Needs Sarah Wright, CDA Chair, said: “We believe and Disabilities (SEND). A two-year pilot all qualified teachers should receive proper has demonstrated unprecedented impact for training in dyslexia and all schools should show pupils with SEND, who progressed faster on their understanding of this specific learning average than all pupils nationally in English and difficulty by achieving a quality mark. Strategies maths. The programme is part of the charity that help dyslexics help all of the class. Training Achievement for All 3As which is led by its in dyslexia has to be compulsory and delivered Chair, Brian Lamb OBE, author of the influential by initial teacher training providers or local Lamb (2010) review on SEN, and Professor authorities. Our award is called the ‘Inclusive Sonia Blandford, CEO and National Director. Dyslexia Friendly Schools (IDFS) Quality Mark’, Achievement for All is about giving pupils so it highlights its commitment to a dyslexia- opportunities to develop their strengths in other friendly approach in classrooms, which promotes ways which gives them renewed confidence and inclusion of all children regardless of their self-esteem. learning style.” Cornwall Dyslexia Association Currently, schools in Cornwall apply to the The Cornwall Dyslexia Association (CDA) was LA if they want quality mark accreditation and established in 1991 by a group of parents undertake one-day training run by its dyslexia who were concerned about their own children advisers in association with the CDA and an because of the little support and provision educational psychologist. So far IDFS Quality available. With five years funding from the Mark awards have been given to 42 of 234 Government through the Parenting Fund, and primary and 10 of 31 secondary schools in the three years from the Lottery, the CDA provided county. free support for dyslexic families in Cornwall. This included free screening and assessment Croydon Literacy Centre for adult dyslexics and young people; a free Croydon Literacy Centre teaches children with drop-in advice centre; awareness training literacy difficulties including dyslexia. Children for businesses, organisations and education are referred by their schools and attend the providers; support courses for parents and Centre once or twice a week for 90 minute school training. Now government funding has sessions. Schools or parents pay, sometimes the ceased, schools have to pay for the service. cost is shared. The Centre works closely with both parents and schools. They also carry out Cornwall was one of the first to pilot the British training for teachers and teaching assistants in Dyslexia Association’s ‘Dyslexia Friendly Schools schools and at the Centre to increase their skills Quality Mark’ (2012). It was such a success in supporting children with literacy difficulties. 32
  • 33. Dyslexia Action, June 2012 The Centre strongly believes that the children practical skills such as interview preparation and that are referred to them would not achieve writing applications. The specific aspects of the in the same way if they had not received programme depend on the needs and priorities additional support. Normally they see a dramatic of the learner but will usually have a core of improvement in self-confidence and self-esteem skills development with the aim of producing because many of the children had already failed independent and confident learners. in their school and felt bad about themselves. Their work with parents and the child helps to Dyslexia Action also delivers training for teachers change this perception over time. The Centre and teaching assistants from initial awareness says that many of the children make such sessions for classroom teachers and up to excellent progress that they are within the norms postgraduate qualifications for specialists. for their year group after having ‘support’ in school. Dyslexia Action has a track record of providing expert and effective support to individuals as A Croydon Literacy Centre spokesperson said: shown in the twice-yearly progress testing that “Teachers need special training in dyslexia. A pupils are given when following the Dyslexia combination of initial teacher training and local Institute Literacy Programme or its Units of specialist courses would work best. Until you Sound Programme. Typical gains by poor have experience in the classroom, the reality of readers, in the 2010 results, were five standard the difficulty you might have moving a child on is score points on comprehension and three points unimaginable.” on word identification over a six-month period. Improvements in standard scores indicate ‘catch Dyslexia Action’s Centres up’ to the average level. These typical findings Dyslexia Action (DA) has 26 main Centres, agree with the results of the SPELL-IT study 47 teaching outposts and over 100 units (Rack 2005) where a sample of seven-year-olds in maintained and independent schools with very poor reading skills made two standard throughout the United Kingdom. We provide a score gains over a 24-week intervention using comprehensive service for children and adults the DILP programme, whereas a comparison with dyslexia and literacy difficulties including group monitored over the same time fell back by diagnostic assessments, advice sessions for two standard score points. parents, workplace consultations and advice on adaptations and use of technology, as well as group and individual tutoring in teaching centres and partner schools and colleges. We also provide early intervention for primary aged children; study skills for teenagers; programmes for those with maths difficulties; workplace coaching for adults and tailor-made programmes for all. Much of our work focuses on developing the sound-symbol relationship in written and spoken language using highly-structured multisensory teaching programmes. It also involves a focus on the individual special needs of learners, whether that be with organisational and memory skills, developing vocabulary or 33