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Demenshate ken clemens
1. A partnership between
Cheshire East Council, Age UK Cheshire,
Central and Eastern Cheshire Primary Care Trust
and Zero
2. Cheshire East is the third largest unitary authority
in the North West next to Manchester and Liverpool
In Cheshire East there are estimated to be
almost 5,000 people over the age of 65
living with Dementia:
• 65% are likely to be women
• One in five people over 80 has a form
of Dementia
• One in 20 people over 65 has a form
of Dementia
• 18% of Cheshire East’s
population is over the age of 65 –
the highest percentage in England
compared to 16% nationally, and
2.4%, or 8,200 people, are over the
age of 85 compared to 2.2% nationally
3. 821,884 people in the UK live with Dementia
Dementia costs the UK economy £23 billion per year.
This is more than cancer (£12 billion per year) and heart disease (£8 billion per year) combined.
How the £23 billion cost of dementia is met
Long term institutional social care and informal care costs make up the majority of the £23 billion figure.
Most of the cost of dementia - £12.4 billion per year - is met by unpaid carers.
Social care costs are £9 billion, health care £1.2 billion and productivity losses £29 million
820,000 in the UK - The total number of people with Dementia in the UK is forecast to increase to 940,110 by
2021 and 1,735,087 by 2051, an increase of 38% over the next 15 years and 154% over the next 45 years.
Diagram courtesy of the Alzheimer’s Research Trust report ‘Dementia 2010’
4. Aims.
Local, explore and
test.
Raise awareness.
Grow peer support.
Citizen led
solutions.
Blend in.
Live customer
insight.
5. The site had to be:
Welcoming.
Super simple.
Comfortable/accessi
ble.
Well
designed...aimed
primarily at women?
Informal &
trustworthy.
11. Site statistics
• We currently have 438 people registered with the site
• Since the launch on 14 October 2010 www.DemenShare.com
has had 5,373 unique visitors, and 8,808 total visits
• A high proportion of visits come directly to
www.demenshare.com
(32.5% of visits) 51.5% are from Google and other search
engines, and 16% from referring sites
• The 2,371 page titles (each heading within a discussion group
links to a separate page) have been viewed a total of 51,160
times
• Visitors spend an average of 6 minutes browsing the site and
view approximately 6 pages in that time
• The site has had 8,808 visits from 71 countries/territories and
has been read in 57 languages.
12. The Benefits
• easy access to timely, relevant information..24/7
• potential to form social support networks offline
in their own communities
• having online friends and Diane who understand and can
empathize with their situation and signpost them to help/others
who share their situation and can advise from experience
• stress reduction – they are listened to and engaged with.
• raising awareness...including decision takers!
• finding and keeping on pathways, social care outcomes.
• improved coordination & building resilience.
• increase in volunteering!
• diversity
• beyond “engagement”.
13. The Benefits for GPs
• opportunity to be associated with a cutting edge, innovative
initiative which is delivering results for people living with dementia
• free up GP time by providing an alternative support service
to refer patients/carers to
• potential to improve patient outcomes
• potential to improve quality of life for patients and carers
• an opportunity to shape the service that DemenShare delivers to
the GPs own community e.g. via involvement of dementia advisors
• connect to the “social”!
14. Efficiencies
• Insight leading to redesign/recalibration.
• Peer support and dementia.
• Partnership working/fresh resource.
• Better outcomes are more efficient outcomes.
• Prevention of the need for acute services.
• Increase take up of DP.
• CCG`s.
• Improving diagnosis and referral times.
• Connection to commissioners.
15. If you would like to know more about DemenShare
please contact:
• Jill Greenwood Cheshire East Council
• Ken Clemens Age UK Cheshire
• Sue Benson Cheshire East Council
Editor's Notes
Local..national stuff..ineffective, loose those in most need, put people off, local knowledge, build on sense of the local. Explore potential of hyper local sites, capture customer insight, improve outcomes/generate efficiencies. Raise awareness, decision makers/public. Grow and nurture peer support...virtual/24/7. Kindness of strangers, crowd source solutions. Connect decision takers...real issues...support the market.
Focus groups with AS /Age UK networks, test, feedback/refine...assumptions older people...how to blend with our other local community based dementia resources..including F2F.
Social media experience in target group/ settle down with a cuppa to catch up with friends, those who may be living with dementia or have a caring role..may be a short period, feel that you a part of a local community..share issues/problems and good things. A place to return to, feel comfortable to receive and also give support..amongst your local friends. Geographic boundaries...! Launch and marketing...
Groups...issues..recommendations...criticism..letting go...serious issues...access to specialist support...somebody knows.
Analytics...and qualitative...feed into JSNA Connecting commissioners....council...health....emerging structures.CCGs Cheshire context, support from CEO & Cabinet Members...raising awareness of the impact of dementia locally. Gossip...translated for commissioners..feed into to NDS steering group, influence...on statutory services. Examples of crisis averted...and more efficient pathways...increase in peer support, increase in use of non traditional services via demenshare. More appropriate use of council resources..opening times, use of leisure/cultural services/creating dementia friendly environments...capturing wider issues of ageing in Cheshire East...its the ageing demographic stupid! High spot...ageing being taken up on big strats such as our spatial strats. CE now taking part in Young Foundation (customer pathways) and now the LG group Ageing Well work stream. Shifting local agenda on web 2.0
Move to utilise /link into health..local context.
Example of Dorothy...lawns. David local pubs. Local citizen led solutions, building social networks...(health & well being as important as smoking cessation for life expectancy etc) Garden centre visiting group...increase take up of F2F vol sector services. Social care outcomes..preventing/delaying res care/hospital, increase take up personalisation. avoiding duplication/reducing public services visits. Diversity...different groups..anecdotal..learning dis...ethnic groups. Talking to people..not usually talk to?
Want are dementia friendly environments..used to redesign acute settings. Used on what is relevant research with AS. Cost analysis of peer support in NDS...£1 to £5 Direct payments/personalisation/support brokerage. CFRS dementia advisors...private sector. Referral rates/interventions at right time. Used to redesign services so as to release 50K for more community based services.