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Jan. K. Mokkenstorm M.D.,
            psychiatrist
            Director 113 Online
            j.mokkenstorm@113online.nl
            mokkenstorm@gmail.com
            info@113online.nl



www.113online.nl                         01-09-12
113Online
First two year results
        • Background: why online help may benefit suicide
          prevention

        • Outline of the online services

        • Preliminary results: help seeker characteristics, site
          use, service use, application of railway suicide
          prevention

        • Conclusion


Presentatie titel                      2                01-09-12
The problem
     • Netherlands: 16 million inhabitants
     • 1600 suicides per year
     • 96.000 attempts registered

     • > 500.000 individuals
       with death wish or suicidal ideation> 2 weeks
     • 40 % of attempters no treatment sought <1 year
     • 33% of attempters no treatment sought ever
     (Ten Have et al 2011 NEMESIS 2 Results of the Netherlands Mental Health
        Survey and Incidence Study)


www.113online.nl                           3                    01-09-12
Help seeking barriers
     (Pagura et al 2009, Bruffaerts et al 2011)

        •      Low perceived need
        •      Wish for autonomy, control
        •      Stigma
        •      Structural & financial barriers

        • Negative experiences with regular care?




Presentatie titel                             4   01-09-12
Unmet needs and
        expectations in regular care
        (Pirkis et al 2001, Taylor et al 2009)




                    – Specific competence & knowledge
                    – Empathy and respect
                    – Shared decision making
                    – Open communication




Presentatie titel                                5      01-09-12
Why online help may
       benefit suicide prevention
       • Reach: large scale dissemination
       • Low treshold and easy acces
       • Autonomy and control of the help seeker
       • Online disinhibition effects enhance therapeutic
         processes
       • Online interventions are effective




www.113online.nl
                                 6             01-09-12
Stage 1
       Website +telephone hotline
                              Education




                    Hotline                   Advice




Presentatie titel                         7    01-09-12
Pioneer online interactive
       SAHAR




                    Acute                   Peer
                     chat                 support
                            Hotline




Presentatie titel                     8         01-09-12
Stage 2:
       online interactive           Education




                                         Advice


              Acute
               chat
                                        Peer
                                      support

                      Hotline




Presentatie titel               9               01-09-12
Presentatie titel   10   01-09-12
Stage 3 Multi level
    online platform
                                       Education
                       Direct                              Self Test
                      Referral

                                                                       Advice
             Brief
            Online
           Therapy

                    Acute                                           Peer
                     chat                                         support
                                 Hotline           Self Help
                                                    Course



Presentatie titel                                   11                     01-09-12
Site stats
       Site usage    5 / 10 / 09-20 / 03 /12         Average per day
       Sitevisits                                             730
       Unique visitors                                        367
       Pageviews                                              6,2
       Visit Duration                                      00:03:053


       Visitors                Yough<18 yr     Adult 18+               Total
       Suicidal                        14,8%        53,8%              68,6%

       Concerned                        5,8%        17,6%              23,4%
       Bereaved                         1,4%        6,7%               8,0%

       Total                           21,9%        78.1%              100%



www.113online.n                                12                       01-09-12
Selftests & Autoreplies
      Selftest                Age< 23 SIQ J      Age 23+: BSI
                                 (0-72)             (0-39)
      Average tests per day           6                10
      Age                       19,2 (sd 6,7)     36,6 (sd 11,8)
      % Female                      72%               60%
      Average Score             40,7 (sd 20,7)    20,5 (sd 8,5)

      Autoreply Advice           Age<23            Age 23+

      Absent-Low                    10%               5%
      Mild                          5%                2%
      Suicidal                      8%                38%
      Severely Suicidal             78%               55%


www.113online.n                           13           01-09-12
Acute chat calls:
      use and satisfaction

  • DEMAND>> Supply
  •    Av. duration: 61 min (sd 39 min).
  •    48% female, 15 % male, 37% ?. Av. 25,6
  •    46% of callers in a form of mental health treatment
  •    Content: 41% psychiatric symptoms and treatment
  •    63 % of callers thanked the helper spontaneously
  •    15 % dissatisfied


www.113online.n                 14             01-09-12
Comparison Mishara silent monitoring study
       1-800-SUICIDE Telephone vs 113Online Chat
       Suicide and Life-Threatening Behavior 37(3) June 2007



 1-800: n=1431 tel.calls
 113: n=396 chats                            Worse                  No change      Better
                                         1-800       113       1-800      113   1-800       113
Apprehensive/ Confident                   11%        7%         49%       52%   38%         43%
Sad / Happy                                9%        5%         67%       51%   22%         44%
Helpless / Resourcefull                   10%        15%        41%       44%   49%         41%
Hopeless / Hopefull                       11%        8%         47%       46%   40%         46%
Confused/Decided                          10%        8%         36%       54%   52%         39%
Depressive mood                            7%        8%         74%       56%   18%         36%
Desperate                                  6%        7%         77%       55%   16%         38%
Sustain thoughts                                     8%                   56%               37%
Suicide ambivalence                        2%        8%         84%       69%   14%         23%
(n=121)




Presentatie titel                                              15                01-09-12
Online Psychotherapy by
       chat or e-mail
  •    Anonymous, free
  •    Solution Focused; CBT/DBT/ACT elements
  •    Treatment manual
  •    Trained & supervised psychologists
  •    Brief: max 8 sessions/exchanges
  •    Average number sessions = 5
  •    Av. number of completed therapies = 25/week




www.113online.nl              16            01-09-12
Routine Outcome Monitor
       Effect studies (RCT)

                                                              T2:
                                                            BSS/SIQ
                                                             CES-D
   T2 FOLLOW-UP


                                                  T1:
                                                BSS/SIQ
   T1 END                                        CES-D


                               Gould&         Therapy
   THERAPY PROCESS                                          SRS
                                ORS          Session or
                                             Exchange

                       T0:
   T0 START          BSS/SIQ
                      CES-D



www.113online.nl                        17                01-09-12
Presentatie titel   18   01-09-12
Railway related
        content acute chats
        •      260 of 2443 unique acute chat callers (10,6%) refer to
               the railways as a means of suicide. In 16 cases this
               related to someone else. There were 3 direct and
               positive references tot the “ I Listen” signs

            Situation                                   Number    % of 260

            On the railway now                          10        3,8%
            Today-yesterday                             19        7,3%
            This week                                   10        3,8%
            Ever                                        27        10,3%
            Urge or a plan now                          64        24,6%
            Decided against rail suicide                32        12,3%
            Ambivalent on rail suicide                  23        8,8%


Presentatie titel                                  19                     01-09-12
Adverse events

    • We know of 3 suicides, in 2 cases the client was
      in regular treatment as well.
    • Suicide attempts occur during calls or sessions
      and have been dealt with by emergency services
      if caller/client revealed location.
    • Management received 3 formal complaints
      regarding unmet expectations.



www.113online.nl             20             01-09-12
Conclusion
        • 113Online reaches a large number of (very)
          suicidal, concerned or bereaved individuals.
        • A substantial number did not seek help otherwise.

        • 113Online meets needs and expectations
          (partially) unmet in regular care.

        • Effectivity remains to be proven

        • Less than expected adverse events.
Presentatie titel                 21           01-09-12
Acknowledgments and thanks

     •      Professionals and Volunteers of 113Online and Ex6
     •      Management and volunteers of Sensoor Helpline
     •      Mady Samuels; Netherlands Ministry of Health Care (VWS)
     •      ProRail
     •      Prof. Ad Kerkhof
     •      Prof. Brian Mishara
     •      Prof. Jan Smit
     •      Dr. Annemiek Huisman
     •      Lucy Stut
     •      Anouk Romers
     •      Merijn Eikelenboom
     •      Dr. Bregje van Spijker
     •      Leo Wijnbelt
     •      Ed Claasens
     •      Age Nils Holstein

Presentatie titel                                22                   01-09-12
References
•   Bruffaerts,R., Demyttenaere, K., Hwang, I., Chiu, W.T. Sampson, N. ,Kessler, R.C.,
    Alonso, J., Borges, G., Girolamo, G de , Graaf, R. de, Florescu, S, Gureye, O., Hu,
    C., Karam, E.G., Kawakami, N., Kostyuchenko, S., Kovess-Mastety, V., Lee, S.,
    Levingson, D., Matschinger, H., Posada-Villa, J., Sagar, R., Scott, K.M., Stein, D.J.,
    Tomov, T., Viana, M.C., Nock, M.K. Treatment of suicidal people around the world
    BJP 2011; 199(1): 64–70.
•   Krysinska, K.E. and D. De Leo, Telecommunication and suicide prevention: hopes
    and challenges for the new century. Omega - Journal of Death & Dying, 2007. (3): p.
    237-53.
•   Mishara BL, Chagnon F, Daigle M, Balan B, Raymond S, Marcoux I, et al. Which
    helper behaviors and intervention styles are related to better short-term outcomes in
    telephone crisis intervention? Results from a silent monitoring study of calls to the
    U.S. 1-800- SUICIDE network. Suicide Life Threat Behav 2007a; 37: 291-307.
•   Pagura J, Fotti S, Katz LY, Sareen J. Help seeking and percieved need for mental
    health care among individuals in Canada with suicidal behaviors. Psychiatr Serv
    2009; 60: 943-49.
•   Pirkis J, Burgess P, Meadows G, Dunt D. Self-reported needs for care among
    persons who have suicidal ideation or who have attempted suicide. Psychiatr Serv
    2001; 52: 381-83.
•   Taylor, T.L., Hawton,K., Fortune, S., Kapur, N. Attitudes towards clinical services
    among people who self-harm: systematic review Br.J.Psych (2009) 194, 104–110.
Thank You
                   www.113online.nl




www.113online.nl                  24   01-09-12

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113 online suicide prevention: First two year results presented at the ESSSB14 Tel Aviv sept 2012

  • 1. Jan. K. Mokkenstorm M.D., psychiatrist Director 113 Online j.mokkenstorm@113online.nl mokkenstorm@gmail.com info@113online.nl www.113online.nl 01-09-12
  • 2. 113Online First two year results • Background: why online help may benefit suicide prevention • Outline of the online services • Preliminary results: help seeker characteristics, site use, service use, application of railway suicide prevention • Conclusion Presentatie titel 2 01-09-12
  • 3. The problem • Netherlands: 16 million inhabitants • 1600 suicides per year • 96.000 attempts registered • > 500.000 individuals with death wish or suicidal ideation> 2 weeks • 40 % of attempters no treatment sought <1 year • 33% of attempters no treatment sought ever (Ten Have et al 2011 NEMESIS 2 Results of the Netherlands Mental Health Survey and Incidence Study) www.113online.nl 3 01-09-12
  • 4. Help seeking barriers (Pagura et al 2009, Bruffaerts et al 2011) • Low perceived need • Wish for autonomy, control • Stigma • Structural & financial barriers • Negative experiences with regular care? Presentatie titel 4 01-09-12
  • 5. Unmet needs and expectations in regular care (Pirkis et al 2001, Taylor et al 2009) – Specific competence & knowledge – Empathy and respect – Shared decision making – Open communication Presentatie titel 5 01-09-12
  • 6. Why online help may benefit suicide prevention • Reach: large scale dissemination • Low treshold and easy acces • Autonomy and control of the help seeker • Online disinhibition effects enhance therapeutic processes • Online interventions are effective www.113online.nl 6 01-09-12
  • 7. Stage 1 Website +telephone hotline Education Hotline Advice Presentatie titel 7 01-09-12
  • 8. Pioneer online interactive SAHAR Acute Peer chat support Hotline Presentatie titel 8 01-09-12
  • 9. Stage 2: online interactive Education Advice Acute chat Peer support Hotline Presentatie titel 9 01-09-12
  • 10. Presentatie titel 10 01-09-12
  • 11. Stage 3 Multi level online platform Education Direct Self Test Referral Advice Brief Online Therapy Acute Peer chat support Hotline Self Help Course Presentatie titel 11 01-09-12
  • 12. Site stats Site usage 5 / 10 / 09-20 / 03 /12 Average per day Sitevisits 730 Unique visitors 367 Pageviews 6,2 Visit Duration 00:03:053 Visitors Yough<18 yr Adult 18+ Total Suicidal 14,8% 53,8% 68,6% Concerned 5,8% 17,6% 23,4% Bereaved 1,4% 6,7% 8,0% Total 21,9% 78.1% 100% www.113online.n 12 01-09-12
  • 13. Selftests & Autoreplies Selftest Age< 23 SIQ J Age 23+: BSI (0-72) (0-39) Average tests per day 6 10 Age 19,2 (sd 6,7) 36,6 (sd 11,8) % Female 72% 60% Average Score 40,7 (sd 20,7) 20,5 (sd 8,5) Autoreply Advice Age<23 Age 23+ Absent-Low 10% 5% Mild 5% 2% Suicidal 8% 38% Severely Suicidal 78% 55% www.113online.n 13 01-09-12
  • 14. Acute chat calls: use and satisfaction • DEMAND>> Supply • Av. duration: 61 min (sd 39 min). • 48% female, 15 % male, 37% ?. Av. 25,6 • 46% of callers in a form of mental health treatment • Content: 41% psychiatric symptoms and treatment • 63 % of callers thanked the helper spontaneously • 15 % dissatisfied www.113online.n 14 01-09-12
  • 15. Comparison Mishara silent monitoring study 1-800-SUICIDE Telephone vs 113Online Chat Suicide and Life-Threatening Behavior 37(3) June 2007 1-800: n=1431 tel.calls 113: n=396 chats Worse No change Better 1-800 113 1-800 113 1-800 113 Apprehensive/ Confident 11% 7% 49% 52% 38% 43% Sad / Happy 9% 5% 67% 51% 22% 44% Helpless / Resourcefull 10% 15% 41% 44% 49% 41% Hopeless / Hopefull 11% 8% 47% 46% 40% 46% Confused/Decided 10% 8% 36% 54% 52% 39% Depressive mood 7% 8% 74% 56% 18% 36% Desperate 6% 7% 77% 55% 16% 38% Sustain thoughts 8% 56% 37% Suicide ambivalence 2% 8% 84% 69% 14% 23% (n=121) Presentatie titel 15 01-09-12
  • 16. Online Psychotherapy by chat or e-mail • Anonymous, free • Solution Focused; CBT/DBT/ACT elements • Treatment manual • Trained & supervised psychologists • Brief: max 8 sessions/exchanges • Average number sessions = 5 • Av. number of completed therapies = 25/week www.113online.nl 16 01-09-12
  • 17. Routine Outcome Monitor Effect studies (RCT) T2: BSS/SIQ CES-D T2 FOLLOW-UP T1: BSS/SIQ T1 END CES-D Gould& Therapy THERAPY PROCESS SRS ORS Session or Exchange T0: T0 START BSS/SIQ CES-D www.113online.nl 17 01-09-12
  • 18. Presentatie titel 18 01-09-12
  • 19. Railway related content acute chats • 260 of 2443 unique acute chat callers (10,6%) refer to the railways as a means of suicide. In 16 cases this related to someone else. There were 3 direct and positive references tot the “ I Listen” signs Situation Number % of 260 On the railway now 10 3,8% Today-yesterday 19 7,3% This week 10 3,8% Ever 27 10,3% Urge or a plan now 64 24,6% Decided against rail suicide 32 12,3% Ambivalent on rail suicide 23 8,8% Presentatie titel 19 01-09-12
  • 20. Adverse events • We know of 3 suicides, in 2 cases the client was in regular treatment as well. • Suicide attempts occur during calls or sessions and have been dealt with by emergency services if caller/client revealed location. • Management received 3 formal complaints regarding unmet expectations. www.113online.nl 20 01-09-12
  • 21. Conclusion • 113Online reaches a large number of (very) suicidal, concerned or bereaved individuals. • A substantial number did not seek help otherwise. • 113Online meets needs and expectations (partially) unmet in regular care. • Effectivity remains to be proven • Less than expected adverse events. Presentatie titel 21 01-09-12
  • 22. Acknowledgments and thanks • Professionals and Volunteers of 113Online and Ex6 • Management and volunteers of Sensoor Helpline • Mady Samuels; Netherlands Ministry of Health Care (VWS) • ProRail • Prof. Ad Kerkhof • Prof. Brian Mishara • Prof. Jan Smit • Dr. Annemiek Huisman • Lucy Stut • Anouk Romers • Merijn Eikelenboom • Dr. Bregje van Spijker • Leo Wijnbelt • Ed Claasens • Age Nils Holstein Presentatie titel 22 01-09-12
  • 23. References • Bruffaerts,R., Demyttenaere, K., Hwang, I., Chiu, W.T. Sampson, N. ,Kessler, R.C., Alonso, J., Borges, G., Girolamo, G de , Graaf, R. de, Florescu, S, Gureye, O., Hu, C., Karam, E.G., Kawakami, N., Kostyuchenko, S., Kovess-Mastety, V., Lee, S., Levingson, D., Matschinger, H., Posada-Villa, J., Sagar, R., Scott, K.M., Stein, D.J., Tomov, T., Viana, M.C., Nock, M.K. Treatment of suicidal people around the world BJP 2011; 199(1): 64–70. • Krysinska, K.E. and D. De Leo, Telecommunication and suicide prevention: hopes and challenges for the new century. Omega - Journal of Death & Dying, 2007. (3): p. 237-53. • Mishara BL, Chagnon F, Daigle M, Balan B, Raymond S, Marcoux I, et al. Which helper behaviors and intervention styles are related to better short-term outcomes in telephone crisis intervention? Results from a silent monitoring study of calls to the U.S. 1-800- SUICIDE network. Suicide Life Threat Behav 2007a; 37: 291-307. • Pagura J, Fotti S, Katz LY, Sareen J. Help seeking and percieved need for mental health care among individuals in Canada with suicidal behaviors. Psychiatr Serv 2009; 60: 943-49. • Pirkis J, Burgess P, Meadows G, Dunt D. Self-reported needs for care among persons who have suicidal ideation or who have attempted suicide. Psychiatr Serv 2001; 52: 381-83. • Taylor, T.L., Hawton,K., Fortune, S., Kapur, N. Attitudes towards clinical services among people who self-harm: systematic review Br.J.Psych (2009) 194, 104–110.
  • 24. Thank You www.113online.nl www.113online.nl 24 01-09-12