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Autism Intervention Research for Behavioral
    Health Network


Connie Kasari, PhD   Bryan King   Rebecca Landa, PhD   Cathy Lord   Amy Wetherby
AIR-B Activities
• Research Protocols

• Guideline Development

• Dissemination and Tool Development
Research Protocols
• Protocol 1
 ▫ Joint Engagement Intervention for Parents and
   Young Children with Autism

• Protocol 2
 ▫ Social Skills Interventions at School

• Protocol 3
 ▫ Social Skills via Web Based Delivery
Common Features of Protocols
• All focused on underserved or under-represented
  populations

• Intervention focus on core deficits in autism

• Interventions carried out in natural environments

• Multi-site studies involving web-based online manuals
  for training purposes
Protocol 1: Joint Engagement
Intervention
• Problem:       Children from low income environments have much
 less access to evidence based interventions

• RCT comparing a parent education model to a parent
  mediated intervention
• Children between 2 and 5 years of age (n=200)
• Interventions 1x/wk for 12 weeks in the home
• Focus on joint attention/joint engagement across
  everyday activities and effects on social communication
  abilities
Protocol 2: Social skills at School
• Problem: Children included in general education are often
  without services, and have need for social skills interventions


• High functioning children with ASD who are fully
  included at school in elementary schools (under-
  represented) (n=150)

• ENGAGE group involves typical peers and involvement
  on the playground

• SKILLS group is standard practice
ONLINE TREATMENT MANUAL:
Peer Engagement Group (PEG)



Secure online treatment manual
                                    Secure online treatment manual
Accessible across sites             Accessible across sites
                                    Regularly updated
Regularly updated
                                    Online manual Includes:
Online manual Includes:

•Description of PEG treatment       •Description of PEG treatment
•Video Samples                      •Video Samples
•Description of Measures            •Description of Measures
•Troubleshooting and FAQ Sections   •Troubleshooting and FAQ Sections
Social Network Centrality                                                                       Second Grade –T2
     Second Grade - T1                                        I9 (7)               2.5
                                           G7 (1)                       A1 (2)                                                 H8 (8)
                                                                                         E5 (3)***     C3 (2)
                       F6 (1)          K11 (1)          6.5                                                          8
                                                                                                     D4 (6)
  B2 (3)                           2                                   I9 (3)        3                                            J10 (8)
                         3                                                                     N14 (3)
               6                 L12 (3)             N14 (6)                                             O15 (5)
                                                                            G7 (3)                                            Q17 (6)
M13 (1)                                                                                         R18 (6)
                             P16 (6)                 H8 (7)              P16 (7)
                   6                                                                           6.5    5    M13 (2)
                             R17 (5)                                                     6.5                                 K11 (1)
                                                 7       J10 (7)
               S18 (6)                                                   F6 (2)
                                                                                                                     2.5
                                 D4 (1)               O15 (4)                   1.5                  L12 (4)
Isolates: A1, C3, E5***                                                            B2 (1)

                   Second Grade -T3                                E5 (3)
                                                                                                          G7 (6)
                             R18 (5)                  A1 (3)                                                        H8 (3)
 Q17 (5)
                                          7                                               8
                        7                                                                                                    P16 (1)
                                          I9 (9)
  C3 (4)
                       3.5                               J10 (3)                                                                 1
          F6 (1)                       D4 (2)
                                                                                                          K11 (5)
Isolates: L12, M13, N14, S19                                           T20 (10)                                       O15 (1)
Protocol 3: Web based social skills
• Problem: Lack of available services for rural families

• Web based social skills intervention

• Focus on rural children with limited access to evidence
  based interventions
Protocol 3: Web-skills training
Leverage of AIR-B Collaboration
• ARRA funds

• Protocol 4: Teen Engage vs. Skills Groups
 ▫ High school students
 ▫ Under-served population of children

• Lead is UW-Felice Orlich
 ▫ UMACC
 ▫ UCLA
Guideline Development
RAND has lead on guideline development
• Literature searches complete

• Data abstraction and analyses in progress

• Evidence report due at year’s end

• Face to face guideline development meeting in
  Spring 2010
AIR-B Dissemination
                                         Online Knowledgebase
Public Website (ASDweb .org)




                   Web-skills training
Collaboration
• UCLA                       • KKI
  ▫ Connie Kasari              ▫ Rebecca Landa
  ▫ Jim McCracken              ▫ Brian Freedman
  ▫ Fred Frankel               ▫ Rondalyn Whitney
  ▫ Fred Saab                  ▫ Tyson Barker
  ▫ Catherine Sugar-SYSTAT   • RAND
  ▫ Jill Locke                 ▫ Margaret Maglione
  ▫ Mark Kretzmann           • UMACC
  ▫ Kathy Lawton               ▫ Catherine Lord
  ▫ Sara Levitt                ▫ Constanza Columbi
• FSU                        • UW
  ▫ Amy Wetherby               ▫ Bryan King
  ▫ Renee Holland              ▫ Felice Orlich

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Autism Intervention Research for Behavioral Health Network

  • 1. Autism Intervention Research for Behavioral Health Network Connie Kasari, PhD Bryan King Rebecca Landa, PhD Cathy Lord Amy Wetherby
  • 2. AIR-B Activities • Research Protocols • Guideline Development • Dissemination and Tool Development
  • 3. Research Protocols • Protocol 1 ▫ Joint Engagement Intervention for Parents and Young Children with Autism • Protocol 2 ▫ Social Skills Interventions at School • Protocol 3 ▫ Social Skills via Web Based Delivery
  • 4. Common Features of Protocols • All focused on underserved or under-represented populations • Intervention focus on core deficits in autism • Interventions carried out in natural environments • Multi-site studies involving web-based online manuals for training purposes
  • 5. Protocol 1: Joint Engagement Intervention • Problem: Children from low income environments have much less access to evidence based interventions • RCT comparing a parent education model to a parent mediated intervention • Children between 2 and 5 years of age (n=200) • Interventions 1x/wk for 12 weeks in the home • Focus on joint attention/joint engagement across everyday activities and effects on social communication abilities
  • 6. Protocol 2: Social skills at School • Problem: Children included in general education are often without services, and have need for social skills interventions • High functioning children with ASD who are fully included at school in elementary schools (under- represented) (n=150) • ENGAGE group involves typical peers and involvement on the playground • SKILLS group is standard practice
  • 7. ONLINE TREATMENT MANUAL: Peer Engagement Group (PEG) Secure online treatment manual Secure online treatment manual Accessible across sites Accessible across sites Regularly updated Regularly updated Online manual Includes: Online manual Includes: •Description of PEG treatment •Description of PEG treatment •Video Samples •Video Samples •Description of Measures •Description of Measures •Troubleshooting and FAQ Sections •Troubleshooting and FAQ Sections
  • 8. Social Network Centrality Second Grade –T2 Second Grade - T1 I9 (7) 2.5 G7 (1) A1 (2) H8 (8) E5 (3)*** C3 (2) F6 (1) K11 (1) 6.5 8 D4 (6) B2 (3) 2 I9 (3) 3 J10 (8) 3 N14 (3) 6 L12 (3) N14 (6) O15 (5) G7 (3) Q17 (6) M13 (1) R18 (6) P16 (6) H8 (7) P16 (7) 6 6.5 5 M13 (2) R17 (5) 6.5 K11 (1) 7 J10 (7) S18 (6) F6 (2) 2.5 D4 (1) O15 (4) 1.5 L12 (4) Isolates: A1, C3, E5*** B2 (1) Second Grade -T3 E5 (3) G7 (6) R18 (5) A1 (3) H8 (3) Q17 (5) 7 8 7 P16 (1) I9 (9) C3 (4) 3.5 J10 (3) 1 F6 (1) D4 (2) K11 (5) Isolates: L12, M13, N14, S19 T20 (10) O15 (1)
  • 9. Protocol 3: Web based social skills • Problem: Lack of available services for rural families • Web based social skills intervention • Focus on rural children with limited access to evidence based interventions
  • 11. Leverage of AIR-B Collaboration • ARRA funds • Protocol 4: Teen Engage vs. Skills Groups ▫ High school students ▫ Under-served population of children • Lead is UW-Felice Orlich ▫ UMACC ▫ UCLA
  • 12. Guideline Development RAND has lead on guideline development • Literature searches complete • Data abstraction and analyses in progress • Evidence report due at year’s end • Face to face guideline development meeting in Spring 2010
  • 13. AIR-B Dissemination Online Knowledgebase Public Website (ASDweb .org) Web-skills training
  • 14. Collaboration • UCLA • KKI ▫ Connie Kasari ▫ Rebecca Landa ▫ Jim McCracken ▫ Brian Freedman ▫ Fred Frankel ▫ Rondalyn Whitney ▫ Fred Saab ▫ Tyson Barker ▫ Catherine Sugar-SYSTAT • RAND ▫ Jill Locke ▫ Margaret Maglione ▫ Mark Kretzmann • UMACC ▫ Kathy Lawton ▫ Catherine Lord ▫ Sara Levitt ▫ Constanza Columbi • FSU • UW ▫ Amy Wetherby ▫ Bryan King ▫ Renee Holland ▫ Felice Orlich