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Regional Action Plan for Region(s) ________   
   
                       The focus of the Regional Action Plans should be on collaboration between CAAI Programs. 
                                                                                      
                        1. Activities                          3. Collaborative                   4. Action Items               5. Target Dates &         6. Support Needs 
                                                             Product or Outcome                                                  Point Person(s) 
List the activities of the programs in the region.       List possible products or         Identify actions that will need    Identify when these        List ideas about how 
                                                         outcomes of the work of           to occur to produce the            action items will be       MCHB, AMCHP, or 
                                                         programs in the region. List      desired product or outcome         completed and identify     AUCD could provide 
                                                         opportunities for                 for each selected idea in 3.       a point person.            assistance in support 
                                                         collaboration.  The group will                                                                  of these tasks. 
                                                         select 1‐3 of the ideas for 
                                                         completion. 
Oklahoma:                                                1) Looking at how insurance       1) Pulling people from             1) Point person needs      1) *Regional 
‐State passed bill that has provided funding for:        companies/Medicaid/Depar          within the state/agents            to come from the           listserve  
‐Pediatrician training (STAT & ADI‐R to make children    tment of Education Services       (with federal backing) to          AUCD/CDC/                   
eligible for EI)                                         coordinate                        provide structure to get           ADD/MCHB/Departm           *Funding (possibly 
‐County coordinator training                             ‐Find a mechanism to share        people together                    ent of Education           from Autism Speaks) 
‐Putting in place Sooner Success Program (providers      this burden                       ‐Require that people from                                      
meet monthly with county coordinator)                                                      each state attend a meeting        Mark will contact           
‐Train school age teams (want to provide all                                               focused at problem solving         George Jesien to get        
evaluations needed to enroll in EI services from the                                       how to “Share the Burden”          this process started in     
county)                                                                                    ‐Find sponsor or target to         the next week and           
‐Replicating the Early Foundations project, across                                         make this regional summit          will provide an             
counties (which is an intensive intervention for                                           happen (AUCD?)                     update at the state         
toddlers) and establish a funded community effort                                                                             meeting                     
(Head Start, community churches, and numerous                                                                                                             
other organizations contributing to the effort)          2) Rural provision of                                                                           2) Need funding (or 
‐Have completed the Regional Summit                      services                          2) Have a group to share           2) At LEND directors       code changes?) to 
‐Form leadership teams for state to align their goals    ‐TeleHealth                       the knowledge,                     meeting, have this         improve the quality 
with the CAAI goals                                      ‐Training of parents &            experiences, and resources         topic covered with         of this infrastructure 
‐Mandatory 18 month screening has been                   providing parental support        related to TeleHealth              expert that has            ‐Would also benefit 
implemented across the state                                                               ‐could potentially be from         extensive experience       from a CAAI regional 
‐Mini‐grant from AUCD used to print materials with                                         outside of DD (someone             in the field sharing       listserve 
local information and point of contact to raise ASD      3) Train primary care             from Psychiatry)                   (Scott knows an            ‐Need a survey of 
awareness                                                prodivers to have a focus of      ‐use Telehealth to provide         expert to contact)         programs already 
‐Established a database to track who has been sent       using developmental               training                           ‐Cate will call Crystal    using it 

                                                                                                                              2009 CAAI Meeting –Regional Breakout       1 
   
Regional Action Plan for Region(s) ________   
    
the LSAE materials                                         screeners                         ‐HRSA has resource in the          next week to see if         
‐Include a family (parent of child with ASD) partner in    ‐Need good incentive              Office of Advancement of           this could be worked        
the evaluation process                                     ‐QI model as an incentive         TeleHealth                         in to the Spring            
‐Dept of Human Services developing a licensure             ‐Need to share info across        ‐Funds for instrastructure         meeting                     
process for ABA services                                   the region                        development (high speed 
                                                                                             internet needed) 
                       The focus of the Regional Action Plans should be on collaboration between CAAI Programs. 
                                                                                        
                        1. Activities                            3. Collaborative                   4. Action Items                  5. Target Dates &         6. Support Needs 
                                                               Product or Outcome                                                     Point Person(s) 
List the activities of the programs in the region.         List possible products or         Identify actions that will need    Identify when these        List ideas about how 
                                                           outcomes of the work of           to occur to produce the            action items will be       MCHB, AMCHP, or 
                                                           programs in the region. List      desired product or outcome         completed and identify     AUCD could provide 
                                                           opportunities for                 for each selected idea in 3.       a point person.            assistance in support 
                                                           collaboration.  The group will                                                                  of these tasks. 
                                                           select 1‐3 of the ideas for 
                                                           completion. 
New Mexico:                                                                                  3) Ran out of time to                                          
‐Large appropriation of funds at the state level has                                         address Action Items,                                          
led to:                                                                                      Target Dates, or Support                                       
‐Increasing the capacity of the ASD diagnostic clinic                                        Needs for Collaborative                                        
(which previously had a 4 year waiting list)                                                 Product #3                                                     
‐Development of a rural home parent training                                                                                                                
program                                                                                                                                                     
‐Professional training program on best practices                                                                                                            
‐Direct intensive services (ABA ect.) funded – only 5                                                                                                       
individuals in the state are BCBA and there is                                                                                                              
currently no state liscensure process                                                                                                                       
‐Begin development of ASD Navigation tool                                                                                                                   
‐EI training works closely with Parent training                                                                                                             
‐MCHAT training for EI providers                                                                                                                            
‐Insurance mandate recently passed (issue of ABA)                                                                                                           
                                                                                                                                                            
Missouri:                                                                                                                                                   
‐Insurance piece is in progress – want other kids with                                                                                                      

                                                                                                                                    2009 CAAI Meeting –Regional Breakout       2 
   
Regional Action Plan for Region(s) ________   
    
DD to be covered as well which is tricky but would be                                                                                                     
incredibly helpful                                                                                                                                        
‐Participated in Regional Summit                                                                                                                          
‐Allowed conversation and collaboration and meeting                                                                                                       
new people doing the same thing                                                                                                                           
‐Multiple diagnostic centers (3) create a care                                                                                                            
coordination model                                                                                                                                        
‐Family mentors provide support to this process                                                                                                           
‐“Sharing Our Strengths” program picked up                                                                                                                
(UCEDD) 
 
    

                        The focus of the Regional Action Plans should be on collaboration between CAAI Programs. 
                                                                                        
                         1. Activities                         3. Collaborative                   4. Action Items                  5. Target Dates &         6. Support Needs 
                                                             Product or Outcome                                                     Point Person(s) 
  List the activities of the programs in the region.     List possible products or         Identify actions that will need    Identify when these        List ideas about how 
                                                         outcomes of the work of           to occur to produce the            action items will be       MCHB, AMCHP, or 
                                                         programs in the region. List      desired product or outcome         completed and identify     AUCD could provide 
                                                         opportunities for                 for each selected idea in 3.       a point person.            assistance in support 
                                                         collaboration.  The group will                                                                  of these tasks. 
                                                         select 1‐3 of the ideas for 
                                                         completion. 
  Arkansas:                                                                                                                                               
  ‐Legislative mandate has been held up due to                                                                                                            
  technical difficulties                                                                                                                                  
  ‐Have an active and evolving Parent Support Group                                                                                                       
  – LEND faculty as an active leader in this process –                                                                                                    
  using the 100 day kit                                                                                                                                   
  ‐Tier 2 evlations                                                                                                                                       
  ‐Title V Needs Assessment involvement by the LEND                                                                                                       
  trainees and faculty (exciting collaboration)                                                                                                           
  ‐Have an active positive behavioral supports to give                                                                                                    
  supports for all DD/ASD children and adults                                                                                                             

                                                                                                                                  2009 CAAI Meeting –Regional Breakout       3 
   
Regional Action Plan for Region(s) ________   
 
(through the UCEDD)                                                                                                                                    
‐ABCD‐3 assuring Better Child Health and                                                                                                               
Development – formalizing linkages to the primary                                                                                                      
care providers and providing other services to                                                                                                         
families                                                                                                                                               
‐Program transitioning to electric medical records                                                                                                     
which poses problems due to the electronic                                                                                                             
signature process                                                                                                                                      
‐Working with Survey Monkey to get more                                                                                                                
information on other LEND programs that are using                                                                                                      
EMR                                                                                                                                                    
‐DBP have established contact with Louisiana and                                                                                                       
provide long distance consultation with them                                                                                                           
                                                                                                                                                       
                                                                                                                                                       
                                                                                                                                                       
 

 

 

                       1. Activities                        3. Collaborative                   4. Action Items                  5. Target Dates &         6. Support Needs 
                                                          Product or Outcome                                                     Point Person(s) 
List the activities of the programs in the region.    List possible products or         Identify actions that will need    Identify when these        List ideas about how 
                                                      outcomes of the work of           to occur to produce the            action items will be       MCHB, AMCHP, or 
                                                      programs in the region. List      desired product or outcome         completed and identify     AUCD could provide 
                                                      opportunities for                 for each selected idea in 3.       a point person.            assistance in support 
                                                      collaboration.  The group will                                                                  of these tasks. 
                                                      select 1‐3 of the ideas for 
                                                      completion. 
Nebraska:                                                                                                                                              
‐Summit team has stayed together and are working                                                                                                       
to move forward despite resistance from the state                                                                                                      
level (they have been very unsupportive and                                                                                                            
suspicious of efforts to improve care coordination)                                                                                                    
                                                                                                                               2009 CAAI Meeting –Regional Breakout       4 
 
Regional Action Plan for Region(s) ________   
 
‐Medicaid waiver was passed for 80 children and                                                                                                        
then denied                                                                                                                                            
‐Education has an ASD network that is a strength                                                                                                       
and is attempting to collaborate with the state                                                                                                        
ASD team                                                                                                                                               
‐AUCD mini‐grant $ was used to look at other                                                                                                           
states care coordination as a model                                                                                                                    
‐State team serves as an advisory board for ASD                                                                                                        
training                                                                                                                                               
‐Developed an ABA liscensure for providers which                                                                                                       
has been a big task due to the rural nature of the                                                                                                     
state (drive hundreds of miles to reach patients –                                                                                                     
rural health problem)                                                                                                                                  
‐Working to expand the SLP/Psychology diagnostic                                                                                                       
team in Lincoln to become more interdisciplinary                                                                                                       
‐LEND center has provided ASD and ADOS training                                                                                                        
                                                                                                                                                       
                                                                                                                                                       
 

 

 

                       1. Activities                        3. Collaborative                   4. Action Items                  5. Target Dates &         6. Support Needs 
                                                          Product or Outcome                                                     Point Person(s) 
List the activities of the programs in the region.    List possible products or         Identify actions that will need    Identify when these        List ideas about how 
                                                      outcomes of the work of           to occur to produce the            action items will be       MCHB, AMCHP, or 
                                                      programs in the region. List      desired product or outcome         completed and identify     AUCD could provide 
                                                      opportunities for                 for each selected idea in 3.       a point person.            assistance in support 
                                                      collaboration.  The group will                                                                  of these tasks. 
                                                      select 1‐3 of the ideas for 
                                                      completion. 
Iowa:                                                                                                                                                  
‐Made a policy document with highlighted priorities                                                                                                    
to be picked up by recently established ASD council                                                                                                    
                                                                                                                               2009 CAAI Meeting –Regional Breakout       5 
 
Regional Action Plan for Region(s) ________   
 
(a little less than 1 year ago now)                                          
‐3 main issues/subcommittees to look at and are                              
working on recommendations to the legislature                                
on these areas:                                                              
1) Early Identification                                                      
2) Seamless care spreading to surrounding areas                              
and rural state                                                              
3) Funding                                                                   
‐Controversial over whether to do ASD waiver in                              
the state                                                                    
‐Trying to get other services covered under AMS                              
(but unsure of what the outcome will be)                                     
‐Projects to enhance ECSE screening –                                        
developmental pediatrician/family physicians                                 
interested in early screening (MCHAT ect)                                    
‐Working on ways to spread further funds to rural                            
areas and get different agencies to work together                            
– want a UNIFIED system                                                      
‐NIMH grant – deliver functional communication                               
training through TeleHealth – could be a model to                            
use down the road                                                            
                                                                             
                                                                             
KEY: 
Italicized = Has stated since the Regional Summit 

Bold = Has increased since the Regional Summit 




                                                     2009 CAAI Meeting –Regional Breakout       6 
 

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Regional Breakout- Region 6 & 7

  • 1. Regional Action Plan for Region(s) ________      The focus of the Regional Action Plans should be on collaboration between CAAI Programs.    1. Activities  3. Collaborative   4. Action Items  5. Target Dates &   6. Support Needs  Product or Outcome  Point Person(s)  List the activities of the programs in the region.  List possible products or  Identify actions that will need  Identify when these  List ideas about how  outcomes of the work of  to occur to produce the  action items will be  MCHB, AMCHP, or  programs in the region. List  desired product or outcome  completed and identify  AUCD could provide  opportunities for  for each selected idea in 3.  a point person.  assistance in support  collaboration.  The group will  of these tasks.  select 1‐3 of the ideas for  completion.  Oklahoma:  1) Looking at how insurance  1) Pulling people from  1) Point person needs  1) *Regional  ‐State passed bill that has provided funding for:  companies/Medicaid/Depar within the state/agents   to come from the  listserve   ‐Pediatrician training (STAT & ADI‐R to make children  tment of Education Services  (with federal backing) to  AUCD/CDC/    eligible for EI)  coordinate  provide structure to get  ADD/MCHB/Departm *Funding (possibly  ‐County coordinator training  ‐Find a mechanism to share  people together   ent of Education  from Autism Speaks)  ‐Putting in place Sooner Success Program (providers  this burden  ‐Require that people from      meet monthly with county coordinator)    each state attend a meeting  Mark will contact    ‐Train school age teams (want to provide all    focused at problem solving  George Jesien to get    evaluations needed to enroll in EI services from the    how to “Share the Burden”  this process started in    county)    ‐Find sponsor or target to  the next week and    ‐Replicating the Early Foundations project, across    make this regional summit  will provide an    counties (which is an intensive intervention for    happen (AUCD?)  update at the state    toddlers) and establish a funded community effort       meeting    (Head Start, community churches, and numerous          other organizations contributing to the effort)  2) Rural provision of      2) Need funding (or  ‐Have completed the Regional Summit  services  2) Have a group to share  2) At LEND directors  code changes?) to  ‐Form leadership teams for state to align their goals  ‐TeleHealth  the knowledge,  meeting, have this  improve the quality  with the CAAI goals  ‐Training of parents &  experiences, and resources  topic covered with  of this infrastructure  ‐Mandatory 18 month screening has been  providing parental support  related to TeleHealth  expert that has  ‐Would also benefit  implemented across the state    ‐could potentially be from  extensive experience  from a CAAI regional  ‐Mini‐grant from AUCD used to print materials with    outside of DD (someone  in the field sharing  listserve  local information and point of contact to raise ASD  3) Train primary care  from Psychiatry)  (Scott knows an  ‐Need a survey of  awareness  prodivers to have a focus of  ‐use Telehealth to provide  expert to contact)  programs already  ‐Established a database to track who has been sent  using developmental  training  ‐Cate will call Crystal  using it  2009 CAAI Meeting –Regional Breakout       1   
  • 2. Regional Action Plan for Region(s) ________      the LSAE materials  screeners   ‐HRSA has resource in the  next week to see if    ‐Include a family (parent of child with ASD) partner in  ‐Need good incentive   Office of Advancement of  this could be worked    the evaluation process  ‐QI model as an incentive  TeleHealth  in to the Spring    ‐Dept of Human Services developing a licensure  ‐Need to share info across  ‐Funds for instrastructure  meeting    process for ABA services  the region  development (high speed  internet needed)  The focus of the Regional Action Plans should be on collaboration between CAAI Programs.    1. Activities  3. Collaborative   4. Action Items  5. Target Dates &   6. Support Needs  Product or Outcome  Point Person(s)  List the activities of the programs in the region.  List possible products or Identify actions that will need  Identify when these  List ideas about how  outcomes of the work of  to occur to produce the  action items will be  MCHB, AMCHP, or  programs in the region. List  desired product or outcome  completed and identify  AUCD could provide  opportunities for  for each selected idea in 3.  a point person.  assistance in support  collaboration.  The group will  of these tasks.  select 1‐3 of the ideas for  completion.  New Mexico:    3) Ran out of time to      ‐Large appropriation of funds at the state level has  address Action Items,    led to:  Target Dates, or Support    ‐Increasing the capacity of the ASD diagnostic clinic  Needs for Collaborative    (which previously had a 4 year waiting list)  Product #3    ‐Development of a rural home parent training    program    ‐Professional training program on best practices    ‐Direct intensive services (ABA ect.) funded – only 5    individuals in the state are BCBA and there is    currently no state liscensure process    ‐Begin development of ASD Navigation tool    ‐EI training works closely with Parent training    ‐MCHAT training for EI providers    ‐Insurance mandate recently passed (issue of ABA)        Missouri:    ‐Insurance piece is in progress – want other kids with    2009 CAAI Meeting –Regional Breakout       2   
  • 3. Regional Action Plan for Region(s) ________      DD to be covered as well which is tricky but would be    incredibly helpful    ‐Participated in Regional Summit    ‐Allowed conversation and collaboration and meeting    new people doing the same thing    ‐Multiple diagnostic centers (3) create a care    coordination model    ‐Family mentors provide support to this process    ‐“Sharing Our Strengths” program picked up    (UCEDD)      The focus of the Regional Action Plans should be on collaboration between CAAI Programs.    1. Activities  3. Collaborative   4. Action Items  5. Target Dates &   6. Support Needs  Product or Outcome  Point Person(s)  List the activities of the programs in the region.  List possible products or  Identify actions that will need  Identify when these  List ideas about how  outcomes of the work of  to occur to produce the  action items will be  MCHB, AMCHP, or  programs in the region. List  desired product or outcome  completed and identify  AUCD could provide  opportunities for  for each selected idea in 3.  a point person.  assistance in support  collaboration.  The group will  of these tasks.  select 1‐3 of the ideas for  completion.  Arkansas:          ‐Legislative mandate has been held up due to    technical difficulties    ‐Have an active and evolving Parent Support Group    – LEND faculty as an active leader in this process –    using the 100 day kit    ‐Tier 2 evlations    ‐Title V Needs Assessment involvement by the LEND    trainees and faculty (exciting collaboration)    ‐Have an active positive behavioral supports to give    supports for all DD/ASD children and adults    2009 CAAI Meeting –Regional Breakout       3   
  • 4. Regional Action Plan for Region(s) ________      (through the UCEDD)    ‐ABCD‐3 assuring Better Child Health and    Development – formalizing linkages to the primary    care providers and providing other services to    families    ‐Program transitioning to electric medical records    which poses problems due to the electronic    signature process    ‐Working with Survey Monkey to get more    information on other LEND programs that are using    EMR    ‐DBP have established contact with Louisiana and    provide long distance consultation with them                1. Activities  3. Collaborative   4. Action Items  5. Target Dates &   6. Support Needs  Product or Outcome  Point Person(s)  List the activities of the programs in the region.  List possible products or  Identify actions that will need  Identify when these  List ideas about how  outcomes of the work of  to occur to produce the  action items will be  MCHB, AMCHP, or  programs in the region. List  desired product or outcome  completed and identify  AUCD could provide  opportunities for  for each selected idea in 3.  a point person.  assistance in support  collaboration.  The group will  of these tasks.  select 1‐3 of the ideas for  completion.  Nebraska:          ‐Summit team has stayed together and are working    to move forward despite resistance from the state    level (they have been very unsupportive and    suspicious of efforts to improve care coordination)    2009 CAAI Meeting –Regional Breakout       4   
  • 5. Regional Action Plan for Region(s) ________      ‐Medicaid waiver was passed for 80 children and    then denied    ‐Education has an ASD network that is a strength    and is attempting to collaborate with the state    ASD team    ‐AUCD mini‐grant $ was used to look at other    states care coordination as a model    ‐State team serves as an advisory board for ASD    training    ‐Developed an ABA liscensure for providers which    has been a big task due to the rural nature of the    state (drive hundreds of miles to reach patients –    rural health problem)    ‐Working to expand the SLP/Psychology diagnostic    team in Lincoln to become more interdisciplinary    ‐LEND center has provided ASD and ADOS training               1. Activities  3. Collaborative   4. Action Items  5. Target Dates &   6. Support Needs  Product or Outcome  Point Person(s)  List the activities of the programs in the region.  List possible products or  Identify actions that will need  Identify when these  List ideas about how  outcomes of the work of  to occur to produce the  action items will be  MCHB, AMCHP, or  programs in the region. List  desired product or outcome  completed and identify  AUCD could provide  opportunities for  for each selected idea in 3.  a point person.  assistance in support  collaboration.  The group will  of these tasks.  select 1‐3 of the ideas for  completion.  Iowa:          ‐Made a policy document with highlighted priorities    to be picked up by recently established ASD council    2009 CAAI Meeting –Regional Breakout       5   
  • 6. Regional Action Plan for Region(s) ________      (a little less than 1 year ago now)    ‐3 main issues/subcommittees to look at and are    working on recommendations to the legislature    on these areas:    1) Early Identification    2) Seamless care spreading to surrounding areas    and rural state     3) Funding    ‐Controversial over whether to do ASD waiver in    the state    ‐Trying to get other services covered under AMS    (but unsure of what the outcome will be)    ‐Projects to enhance ECSE screening –    developmental pediatrician/family physicians    interested in early screening (MCHAT ect)    ‐Working on ways to spread further funds to rural    areas and get different agencies to work together    – want a UNIFIED system    ‐NIMH grant – deliver functional communication    training through TeleHealth – could be a model to    use down the road        KEY:  Italicized = Has stated since the Regional Summit  Bold = Has increased since the Regional Summit  2009 CAAI Meeting –Regional Breakout       6