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Perspectives and insights into how
evidence and knowledge can inform
large scale change in health care
Alison Turner
June 2016
@ali_pals
@Strategy_Unit
2
The Strategy Unit
Midlands and Lancashire CSU
www.midlandsandlancashirecsu.nhs.uk
Purpose of presentation
To share with you the findings of a
small study exploring the use of
evidence and knowledge in large
scale change
To reflect on the implications for
library and information
professionals
Bud Ellison CC BY 2.0
https://www.flickr.com/photos/budellison/16220593436
3
The Strategy Unit
Midlands and Lancashire CSU
www.midlandsandlancashirecsu.nhs.uk
Acknowledgements
Funded by:
Health Education West Midlands, Research Fellows programme
With thanks to:
New Care Models programme, NHS England
New Care Model vanguard sites
Dr Robin Bell, Dr Lynn Nichol, Prof Eleanor Bradley, University of Worcester
Midlands and Lancashire Commissioning Support Unit
Colleagues on the Research Fellows programme
Ashashyou CC BY 3.0
https://commons.wikimedia.org/wiki/File:Thank-you-word-cloud.jpg
The Strategy Unit
Study design
5
The Strategy Unit
Midlands and Lancashire CSU
www.midlandsandlancashirecsu.nhs.uk
Why is this important?
The health service in England:
• is under increasing financial pressure
• is experiencing rising demand for healthcare
Solutions are needed to address these issues which involve transforming health and
social care:
• There is a growing recognition of the inherent complexity of healthcare transformation
• Transformation programmes are required to demonstrate a clear evidence base for change
BUT…
we know use of evidence is variable and inconsistent
SO….
we need a better understanding of how evidence is perceived and used
6
The Strategy Unit
Midlands and Lancashire CSU
www.midlandsandlancashirecsu.nhs.uk
Research questions
What
constitutes
evidence in the
context of large
scale change
in health care?
Which
evidence is
deemed to be
of value?
What
difference does
evidence
make?
How is
evidence
framed to
support
decisions?
What are the
barriers to
using
evidence?
Perspectives Processes
7
The Strategy Unit
Midlands and Lancashire CSU
www.midlandsandlancashirecsu.nhs.uk
Approach
Methodology:
Qualitative case study
Setting:
A national (England) programme to
develop and deliver new care models
Methods:
• Purposive sample of sites and
individuals (national and local level)
• Semi-structured interviews
• Document analysis
• Literature review
Analysis:
Framework analysis
Prepare
July -
September
Collect
October -
February
Analyse
December -
March
Share
April -
Design
May - JunePlan
Adapted from: Yin, R. K. (2014) Case study research: design and
methods. London: Sage.
The Strategy Unit
Study findings
9
The Strategy Unit
Midlands and Lancashire CSU
www.midlandsandlancashirecsu.nhs.uk
Perspectives
• Broad interpretations of what constitutes
evidence
• A need to integrate multiple sources and
types of evidence, to consider evidence “in
its totality"
• “Variance in value” with preferences
towards practice-based and patient-
generated evidence
• Context is important to help understand
how evidence may apply locally
“I suppose it’s possibly information that helps
support implementation of interventions to
show a good or bad, positive or negative
impact on a person, an individual or a
society.”
“You can vary this, you absolutely can’t vary
that because if you vary that it loses the
essence of what it was. And those are the kind
of tools I think people would find genuinely
useful, kind of assessment tools to allow them
to make an assessment of it”
10
The Strategy Unit
Midlands and Lancashire CSU
www.midlandsandlancashirecsu.nhs.uk
Processes
• Evidence typically used in earlier phases to
inform case for change and design
• Experiences of “information poverty” and
“information overload”
• Knowledge sharing across sites considered
important to “fail fast, learn fast”
• Time pressures suggested a “satisficing”
strategy (stopping when they feel the
information is “good enough“)
• Barriers at different levels:
• Evidence: e.g. hard to use
• Individual: e.g. skills/confidence
• Organisational: e.g. capacity
• National programme: e.g. support
not aligned with delivery
• Wider system: e.g. fragmented
support
“I suppose we didn’t go off and do formal
horizon scans and PICO [an approach to
devising a literature search strategy] things
and search for trials, we had a lot of the
information already there because this is
work that’s been built on.”
“I see my role as a clinical leader, to get on
and do what is blindingly obvious and I really
don’t want to spend a lot of my actual
personal time, or that of my team, building up
the evidence base which is out there anyway.
Somebody else can do that and put it in a
nice pack if they wish but I really need to just
get on and do what I need to do“
The Strategy Unit
Study conclusions
12
The Strategy Unit
Midlands and Lancashire CSU
www.midlandsandlancashirecsu.nhs.uk
General conclusions
• Evidence is important particularly for informing design, building consensus and challenging
assumptions
• Whilst evidence is used to support the design of large scale change, there is little to suggest
this is sustained through the lifecycle of the programme
• Iterative change advocated by systems thinking is changing users’ requirements (demand
side) but the way we all work has yet to catch up!
Highways Agency CC BY 2.0
https://en.wikipedia.org/wiki/Gravelly_Hill_Interchange
13
The Strategy Unit
Midlands and Lancashire CSU
www.midlandsandlancashirecsu.nhs.uk
Opportunities to improve evidence use
• Helping decision makers to apply evidence
locally by being more explicit about the
context of research and evaluation studies
• Balancing rigour and timeliness by identifying
which questions warrant rapid review or in-
depth research
• Embedding evidence and knowledge
mobilisation throughout the life of a
programme, aligning with formative
evaluation, through pragmatic products such
as “living reviews” and “evidence maps”
• Researchers and practitioners working
together to prioritise research questions
using methods which support iterative
change
• More collaboration in evidence support to
reduce duplication
“I think it’s the timeliness – it’s a key issue,
because for me I’d rather have something that
was 90% accurate quickly than 100%
accurate in 6 months time because the pace
at which we are expected to work doesn’t
allow for that, if that makes sense.”
The Strategy Unit
Some reflections on our role as
information professionals
15
The Strategy Unit
Midlands and Lancashire CSU
www.midlandsandlancashirecsu.nhs.uk
An extended role for information professionals?
Moving beyond a “support service” towards an
embedded role?
• Design
• Implementation – iterative experimentation
• Evaluation
Skills we can bring:
• Complex searching
• Qualitative synthesis
• Knowledge mobilisation
• Knowledge management
Are you involved in supporting large scale
change/transformation of health and care
services?
• Please get in touch
NHS Change Model
http://www.nhsiq.nhs.uk/capacity-capability/change-model.aspx
The Strategy Unit
Thank you
alison.turner14@nhs.net
@ali_pals
@Strategy_Unit
17
The Strategy Unit
Midlands and Lancashire CSU
www.midlandsandlancashirecsu.nhs.uk
References
Best, A., et al. (2012) Large-system transformation in health care : a realist review. Milbank Quarterly, 90, 421-456.
Best, A and Holmes, B (2010) Systems thinking, knowledge and action: towards better models and methods. Evidence and Policy, 6 (2),
145-159.
Briner, R. B., et al. (2009) Evidence-Based Management: Concept Cleanup Time? Academy of Management Perspectives, 19-32.
Cady, S. H. and Fleshman, K. J. (2012) Amazing change: stories from around the world, OD Practitioner, (44) 1, 4-10.
Dobrow, J. (2006) The impact of context on evidence utilization: a framework for expert groups developing health policy recommendations.
Social Science and Medicine, 63 (7).
Dopson, S. and Fitzgerald, L. (2005) Knowledge to action? Evidence-based health care in context, Oxford, Oxford University Press.
Edwards, C. et al (2013) Explaining Health Managers' Information Seeking Behaviour and Use. National Institute for Health Research.
Elliott, J.H. et al. (2014) Living systematic reviews: an emerging opportunity to narrow the evidence-practice gap. PLOS Medicine, 11 (2),
e1001603.
The Evidence Centre. (2010) Complex adaptive systems: research scan. Health Foundation.
Ghate, D., et al. (2013) Systems leadership: exceptional leadership for exceptional times: synthesis paper. The Virtual Staff College.
Grint, K. (2008) Wicked Problems and Clumsy Solutions: the Role of Leadership. Clinical Leader. British Association of Medical Managers.
Hardwick, R. et al. (2015) How do third sector organisations use research and other knowledge? A systematic scoping review.
Implementation Science, 10, 84.
Howick, J. (2011) The philosophy of evidence-based medicine, Oxford, Wiley-Blackwell.
Humphries, S et al. (2014) Barriers and facilitators to evidence-use in program management: a systematic review of the literature. BMC
Health Services Research, 14, 171.
Imison, C. et al. (2015) Insights from the clinical assurance of service reconfiguration in the NHS: the drivers of reconfiguration and the
evidence that underpins it - a mixed-methods study, Health Services and Delivery Research, 3 (9).
Kovner, A.R. and Rundall, T.G. (2006) Evidence-Based Management reconsidered. Frontiers of Health Services Management, 22 (3), 3-22.
Langer, L. et al. (2016) The science of using science: researching the use of research evidence in decision-making. London: EPPI-Centre, UCL
Institute of Education.
MacDonald, J. et al. (2011) Information overload and information poverty: challenges for healthcare services managers? Journal of
Documentation, 67 (2), 238-263.
McPake, B. and Mills, A. (2000) ‘What can we learn from international comparisons of health systems and health system reform?’ Bulletin of
the World Health Organization, 78: 811-820.
Miake-Lye, I.M. et al. (2016) What is an evidence map? A systematic review of published evidence maps and their definitions, methods and
products. Systematic Reviews, 5, 28.
18
The Strategy Unit
Midlands and Lancashire CSU
www.midlandsandlancashirecsu.nhs.uk
References
Naylor, C., et al. (2015) Transforming our health care system: ten priorities for commissioners. King's Fund.
NHS England. (2014) Five Year Forward View. NHS England. URL: http://www.england.nhs.uk/wp-content/uploads/2014/10/5yfv-
web.pdf (Accessed 16 April 2016).
Nicholson D. NHS Reconfiguration Guidance. London: Department of Health; 2010. URL:
www.gov.uk/government/uploads/system/uploads/attachment_data/file/216051/dh_118085.pdf (accessed 14 April 2016).
Shaxson, L. (2005) Is your evidence robust enough? Evidence and Policy, 1 (1), 101-11.
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Snowden, D., J. and Boone, M., E. (2007) A leaders framework for decision making. Harvard Business Review, 69-76.
Sosnowy, C.D. et al. (2013) Factors affecting evidence-based decision making in local health departments. American Journal of
Preventative Medicine, 45 (6), 763-68.
Swan, J. et al. (2012) Evidence in management decisions (EMD): advancing knowledge utilization in healthcare management, NIHR
Health Services and Delivery Research programme.
Timmins, N. (2015) The practice of systems leadership: being comfortable with chaos. King's Fund.
Walshe, K. and Rundall, T. G. (2001) Evidence-based Management: From Theory to Practice in Health Care. Milbank Quarterly, 79,
429-457.
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Policy and Society, 29, 95-102.
Weber, E. P. and Khademian, A.M. (2008) Wicked Problems, Knowledge Challenges, and Collaborative Capacity Builders in
Network Settings. Public Administration Review, March/April, 334-349.
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and public sector agencies, 2011–14, Health Services and Delivery Research, 3 (19), 1-144.
Yin, R. K. (2014) Case study research: design and methods. London: Sage.

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160525 EAHIL presentation

  • 1. Perspectives and insights into how evidence and knowledge can inform large scale change in health care Alison Turner June 2016 @ali_pals @Strategy_Unit
  • 2. 2 The Strategy Unit Midlands and Lancashire CSU www.midlandsandlancashirecsu.nhs.uk Purpose of presentation To share with you the findings of a small study exploring the use of evidence and knowledge in large scale change To reflect on the implications for library and information professionals Bud Ellison CC BY 2.0 https://www.flickr.com/photos/budellison/16220593436
  • 3. 3 The Strategy Unit Midlands and Lancashire CSU www.midlandsandlancashirecsu.nhs.uk Acknowledgements Funded by: Health Education West Midlands, Research Fellows programme With thanks to: New Care Models programme, NHS England New Care Model vanguard sites Dr Robin Bell, Dr Lynn Nichol, Prof Eleanor Bradley, University of Worcester Midlands and Lancashire Commissioning Support Unit Colleagues on the Research Fellows programme Ashashyou CC BY 3.0 https://commons.wikimedia.org/wiki/File:Thank-you-word-cloud.jpg
  • 5. 5 The Strategy Unit Midlands and Lancashire CSU www.midlandsandlancashirecsu.nhs.uk Why is this important? The health service in England: • is under increasing financial pressure • is experiencing rising demand for healthcare Solutions are needed to address these issues which involve transforming health and social care: • There is a growing recognition of the inherent complexity of healthcare transformation • Transformation programmes are required to demonstrate a clear evidence base for change BUT… we know use of evidence is variable and inconsistent SO…. we need a better understanding of how evidence is perceived and used
  • 6. 6 The Strategy Unit Midlands and Lancashire CSU www.midlandsandlancashirecsu.nhs.uk Research questions What constitutes evidence in the context of large scale change in health care? Which evidence is deemed to be of value? What difference does evidence make? How is evidence framed to support decisions? What are the barriers to using evidence? Perspectives Processes
  • 7. 7 The Strategy Unit Midlands and Lancashire CSU www.midlandsandlancashirecsu.nhs.uk Approach Methodology: Qualitative case study Setting: A national (England) programme to develop and deliver new care models Methods: • Purposive sample of sites and individuals (national and local level) • Semi-structured interviews • Document analysis • Literature review Analysis: Framework analysis Prepare July - September Collect October - February Analyse December - March Share April - Design May - JunePlan Adapted from: Yin, R. K. (2014) Case study research: design and methods. London: Sage.
  • 9. 9 The Strategy Unit Midlands and Lancashire CSU www.midlandsandlancashirecsu.nhs.uk Perspectives • Broad interpretations of what constitutes evidence • A need to integrate multiple sources and types of evidence, to consider evidence “in its totality" • “Variance in value” with preferences towards practice-based and patient- generated evidence • Context is important to help understand how evidence may apply locally “I suppose it’s possibly information that helps support implementation of interventions to show a good or bad, positive or negative impact on a person, an individual or a society.” “You can vary this, you absolutely can’t vary that because if you vary that it loses the essence of what it was. And those are the kind of tools I think people would find genuinely useful, kind of assessment tools to allow them to make an assessment of it”
  • 10. 10 The Strategy Unit Midlands and Lancashire CSU www.midlandsandlancashirecsu.nhs.uk Processes • Evidence typically used in earlier phases to inform case for change and design • Experiences of “information poverty” and “information overload” • Knowledge sharing across sites considered important to “fail fast, learn fast” • Time pressures suggested a “satisficing” strategy (stopping when they feel the information is “good enough“) • Barriers at different levels: • Evidence: e.g. hard to use • Individual: e.g. skills/confidence • Organisational: e.g. capacity • National programme: e.g. support not aligned with delivery • Wider system: e.g. fragmented support “I suppose we didn’t go off and do formal horizon scans and PICO [an approach to devising a literature search strategy] things and search for trials, we had a lot of the information already there because this is work that’s been built on.” “I see my role as a clinical leader, to get on and do what is blindingly obvious and I really don’t want to spend a lot of my actual personal time, or that of my team, building up the evidence base which is out there anyway. Somebody else can do that and put it in a nice pack if they wish but I really need to just get on and do what I need to do“
  • 11. The Strategy Unit Study conclusions
  • 12. 12 The Strategy Unit Midlands and Lancashire CSU www.midlandsandlancashirecsu.nhs.uk General conclusions • Evidence is important particularly for informing design, building consensus and challenging assumptions • Whilst evidence is used to support the design of large scale change, there is little to suggest this is sustained through the lifecycle of the programme • Iterative change advocated by systems thinking is changing users’ requirements (demand side) but the way we all work has yet to catch up! Highways Agency CC BY 2.0 https://en.wikipedia.org/wiki/Gravelly_Hill_Interchange
  • 13. 13 The Strategy Unit Midlands and Lancashire CSU www.midlandsandlancashirecsu.nhs.uk Opportunities to improve evidence use • Helping decision makers to apply evidence locally by being more explicit about the context of research and evaluation studies • Balancing rigour and timeliness by identifying which questions warrant rapid review or in- depth research • Embedding evidence and knowledge mobilisation throughout the life of a programme, aligning with formative evaluation, through pragmatic products such as “living reviews” and “evidence maps” • Researchers and practitioners working together to prioritise research questions using methods which support iterative change • More collaboration in evidence support to reduce duplication “I think it’s the timeliness – it’s a key issue, because for me I’d rather have something that was 90% accurate quickly than 100% accurate in 6 months time because the pace at which we are expected to work doesn’t allow for that, if that makes sense.”
  • 14. The Strategy Unit Some reflections on our role as information professionals
  • 15. 15 The Strategy Unit Midlands and Lancashire CSU www.midlandsandlancashirecsu.nhs.uk An extended role for information professionals? Moving beyond a “support service” towards an embedded role? • Design • Implementation – iterative experimentation • Evaluation Skills we can bring: • Complex searching • Qualitative synthesis • Knowledge mobilisation • Knowledge management Are you involved in supporting large scale change/transformation of health and care services? • Please get in touch NHS Change Model http://www.nhsiq.nhs.uk/capacity-capability/change-model.aspx
  • 16. The Strategy Unit Thank you alison.turner14@nhs.net @ali_pals @Strategy_Unit
  • 17. 17 The Strategy Unit Midlands and Lancashire CSU www.midlandsandlancashirecsu.nhs.uk References Best, A., et al. (2012) Large-system transformation in health care : a realist review. Milbank Quarterly, 90, 421-456. Best, A and Holmes, B (2010) Systems thinking, knowledge and action: towards better models and methods. Evidence and Policy, 6 (2), 145-159. Briner, R. B., et al. (2009) Evidence-Based Management: Concept Cleanup Time? Academy of Management Perspectives, 19-32. Cady, S. H. and Fleshman, K. J. (2012) Amazing change: stories from around the world, OD Practitioner, (44) 1, 4-10. Dobrow, J. (2006) The impact of context on evidence utilization: a framework for expert groups developing health policy recommendations. Social Science and Medicine, 63 (7). Dopson, S. and Fitzgerald, L. (2005) Knowledge to action? Evidence-based health care in context, Oxford, Oxford University Press. Edwards, C. et al (2013) Explaining Health Managers' Information Seeking Behaviour and Use. National Institute for Health Research. Elliott, J.H. et al. (2014) Living systematic reviews: an emerging opportunity to narrow the evidence-practice gap. PLOS Medicine, 11 (2), e1001603. The Evidence Centre. (2010) Complex adaptive systems: research scan. Health Foundation. Ghate, D., et al. (2013) Systems leadership: exceptional leadership for exceptional times: synthesis paper. The Virtual Staff College. Grint, K. (2008) Wicked Problems and Clumsy Solutions: the Role of Leadership. Clinical Leader. British Association of Medical Managers. Hardwick, R. et al. (2015) How do third sector organisations use research and other knowledge? A systematic scoping review. Implementation Science, 10, 84. Howick, J. (2011) The philosophy of evidence-based medicine, Oxford, Wiley-Blackwell. Humphries, S et al. (2014) Barriers and facilitators to evidence-use in program management: a systematic review of the literature. BMC Health Services Research, 14, 171. Imison, C. et al. (2015) Insights from the clinical assurance of service reconfiguration in the NHS: the drivers of reconfiguration and the evidence that underpins it - a mixed-methods study, Health Services and Delivery Research, 3 (9). Kovner, A.R. and Rundall, T.G. (2006) Evidence-Based Management reconsidered. Frontiers of Health Services Management, 22 (3), 3-22. Langer, L. et al. (2016) The science of using science: researching the use of research evidence in decision-making. London: EPPI-Centre, UCL Institute of Education. MacDonald, J. et al. (2011) Information overload and information poverty: challenges for healthcare services managers? Journal of Documentation, 67 (2), 238-263. McPake, B. and Mills, A. (2000) ‘What can we learn from international comparisons of health systems and health system reform?’ Bulletin of the World Health Organization, 78: 811-820. Miake-Lye, I.M. et al. (2016) What is an evidence map? A systematic review of published evidence maps and their definitions, methods and products. Systematic Reviews, 5, 28.
  • 18. 18 The Strategy Unit Midlands and Lancashire CSU www.midlandsandlancashirecsu.nhs.uk References Naylor, C., et al. (2015) Transforming our health care system: ten priorities for commissioners. King's Fund. NHS England. (2014) Five Year Forward View. NHS England. URL: http://www.england.nhs.uk/wp-content/uploads/2014/10/5yfv- web.pdf (Accessed 16 April 2016). Nicholson D. NHS Reconfiguration Guidance. London: Department of Health; 2010. URL: www.gov.uk/government/uploads/system/uploads/attachment_data/file/216051/dh_118085.pdf (accessed 14 April 2016). Shaxson, L. (2005) Is your evidence robust enough? Evidence and Policy, 1 (1), 101-11. Shepperd, S. et al (2013) Challenges to using evidence from systematic reviews to stop ineffective practice: an interview study. Journal of Health Services Research and Policy, 18 (3), 160-66. Snowden, D., J. and Boone, M., E. (2007) A leaders framework for decision making. Harvard Business Review, 69-76. Sosnowy, C.D. et al. (2013) Factors affecting evidence-based decision making in local health departments. American Journal of Preventative Medicine, 45 (6), 763-68. Swan, J. et al. (2012) Evidence in management decisions (EMD): advancing knowledge utilization in healthcare management, NIHR Health Services and Delivery Research programme. Timmins, N. (2015) The practice of systems leadership: being comfortable with chaos. King's Fund. Walshe, K. and Rundall, T. G. (2001) Evidence-based Management: From Theory to Practice in Health Care. Milbank Quarterly, 79, 429-457. Williams, I. and Glasby, J. (2010) Making ‘what works’ work: The use of knowledge in UK health and social care decision-making. Policy and Society, 29, 95-102. Weber, E. P. and Khademian, A.M. (2008) Wicked Problems, Knowledge Challenges, and Collaborative Capacity Builders in Network Settings. Public Administration Review, March/April, 334-349. Wye, L. et al. (2015) Knowledge exchange in health-care commissioning: case studies of the use of commercial, not-for-profit and public sector agencies, 2011–14, Health Services and Delivery Research, 3 (19), 1-144. Yin, R. K. (2014) Case study research: design and methods. London: Sage.