Communications presentation 2013

•

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Santé & Médecine

SECTIONS
• WHAT IS SPINA BIFIDA?
• LIPO-MYELOMENINGOCELE (LMM)
• ABOUT CHLOE
• HER BOOK

What is Spina Bifida?
• Spina Bifida literally
means “split spine.”
• Spina Bifida happens
when a baby is in the
womb and the spinal
column does not close all
of the way.
• Spina Bifida is a relatively
common condition, which
affects about one in every
1000 children born per
year in Ireland.

LIPO-MYELOMENINGOCELE
• Lipomyelomeningocele (LMM) is the least
servere form of Myelomeningocele.
• LMM is an abnormal fat accumulation that starts
below the skin and extends through an opening
in the spine to the spinal cord.
• The attachment of the fat to the spinal cord
(tethering) may require surgery to release the
tethering to the fatty mass especially during
growth spurts will reduce the fatty mass.

ABOUT CHLOE
• Chloe Joanne O'Sullivan
was born on 1st of
September 2005.
• Doctors diagnosed her
with Spina Bifida and
indicated that she might
be confined to a
wheelchair and could
have diminished mental
capabilities.
• Chloe was crawling at 10
months.

HER BOOK
• “THE FAIRY WHO
WAS DIFFERENT”
• CLIPPED WING
• ENABLE IRELAND
• LISTOWEL
WRITERS WEEK
2012

• Each Saturday Eason's
have a book reading in
their shop in Tralee to
encourage reading.
• The Book Manager
organised for Chloe's
Book to feature.

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Spina bifida is a birth disorder that involves the incomplete development of the spine. In the first month of pregnancy, a special set of cells forms the “neural tube;” the top of the tube becomes the brain, and the remainder becomes the spinal cord and structures around it. In spina bifida, the neural tube doesn’t close completely and some of the bones of the spine do not close in the back. This can result in an opening anywhere along the spine and may cause damage to the spinal cord and nerves.There are four types of spina bifida: occulta, closed neural tube defects, meningocele, and myelomeningocele. The symptoms of spina bifida vary from person to person, depending on the type and level of involvement. Most cases are mild and do not require special treatment. The more serious cases involve nerve damage. Occulta is the mildest and most common form in which one or more bones of the spinal column (vertebrae) are malformed. The name “occulta,” which means “hidden,” indicates that a layer of skin covers the opening in the bones of the spine. It usually shows no symptoms and is often found by accident on an x-ray or similar test. Closed neural tube defects are a diverse group of disorders in which the spine may have malformations of fat, bone, or the membranes (the meninges) that cover the spinal cord. Many of these neural tube defects require surgery in childhood. People with this type of spina bifida may have weakness of the legs and trouble with bowel and bladder control. These issues may change or progress as children grow. It is important to have close communication with doctors to minimize these changes as much as possible. Meningocele occurs when the meninges protrude through the spine and cause a sac of spinal fluid on the back. This fluid is typically only around the brain and spine, but a problem with the bony covering over the spine allows it to poke out. The malformation contains no nerves and may or may not be covered by a layer of skin. Individuals with meningocele may have minor symptoms.Myelomeningocele is the most severe form of spina bifida. A portion of the spinal cord or nerves are exposed in a sac through an opening in the spine that may or may not be covered by the meninges. The opening can be closed surgically while the baby is in utero or shortly after the baby is born. Most people with myelomeningocele experience changes in brain structure, leg weakness, and bladder and bowel dysfunction. Myelomeningocele is often called a "snowflake condition" because no two people with the condition are the same. Typically, if the opening in the spine is lower down the back, the person will experience less symptoms. People with myelomeningocele require close follow-up with physicians throughout their childhood and lifespan to maximize their function and prevent complications like kidney failure.Complications of spina bifida may include: Abnormal sensation or paralysis, which mostly occurs with closed neural tube defects and myelomenin

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Newborn Birth Injuries: The Untold Story Introduction: As a result of the birth process some injuries occur that may be minor, whereas other may be more serious. Despite skilled midwifery and obstetric care in developed, birth trauma still occurs. Definition: An impairment of the infants body function or structure due to adverse influences that occur at birth. Risk factors: Primi parity, Small maternal stature Prolonged or usually rapid labor Malpresentation of the fetus Use of mid forceps or vaccum extraction Fetal macrosomia or large fetal head Classification: Based on areas involved: 1. trauma to skin and superficial tissues 2. muscle trauma 3. nerve trauma 4. fractures PREVENTION OF BIRTH INJURIES - To prevent or to detect early intrauterine fetal asphyxia. - To avoid premature delivery. - To avoid traumatic vaginal delivery. - To extend the use of caesarean section in abnormal & complicated presentation more liberally. - Improve the level of doctor and nurses THANK YOU.

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Myelomeningocele is a disorder of the nervous system particularly the spine and spinal cord, before we go further in this presentation there are some terms to know to aid understanding. ➢Neural tube; The neural tube forms the early brain and spine, As development progresses, the top of the neural tube becomes the brain, and the rest of the tube becomes the spinal cord. An NTD happens when this tube doesn't close completely somewhere along its length. Neural tube closure is completed 28 days (four weeks) from conception. ➢Alpha fetoprotein; AFP is a protein that the liver makes when its cells are growing and dividing to make new cells. AFP is normally high in unborn babies. After birth, AFP levels drop very low. Healthy children and adults who aren't pregnant have very little AFP in their blood. Maternal AFP serum level is used to screen for Down syndrome, neural tube defects, and other chromosomal abnormalities. ➢Spinal bifida; Spina bifida is a condition that affects the spine and is usually apparent at birth. It is a type of neural tube defect (NTD). Nursing management of myelomeningocele Types of spinal Bifida Pathophysiology of myelomeningocele

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