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NCRIS and the health domain

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Presentation by Dr Merran Smith, PHRN, to the 'Unlocking value from publicly funded Clinical Research Data' workshop, cohosted by ARDC and CSIRO at ANU on 6 March 2019.

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NCRIS and the health domain

  1. 1. NCRIS and the health domain Merran Smith, Chief Executive, PHRN ARDC Forum, Canberra, 6 March 2019
  2. 2. NCRIS overview  Australian Government’s National Collaborative Research Infrastructure Strategy (NCRIS)  Managed by the Department of Education and Training, with input from governments, universities and institutes  Supports a wide range of national research infrastructure, including e-research/ARDC
  3. 3. NCRIS and health Recent NCRIS documents (2016 Roadmap; Research Infrastructure Investment Plan) highlight health in context of therapeutic development, through four capabilities:  Australian Phenomics Network (APN)  BioPlatforms Australia (BPA)  Therapeutic Innovation Australia (TIA)  Population Health Research Network (PHRN)
  4. 4. Focus of health capabilities  APN: Gene discovery; genomic medicine  BPA: Genomics; metabolomics; proteomics; bioinformatics (health and non-health)  TIA: Translational services, biologics, cell therapies, small molecules, pre-clinical testing and clinical trials; support the ANZ Clinical Trials Registry
  5. 5. Focus of PHRN PHRN’s focus is linked data:  Support national, state and territory data linkage units  Also secure file transfer, remote access and storage  We link administrative, clinical and other data, including data from clinical trials, registries and cohorts
  6. 6. Some health domain trends  Ongoing NCRIS investment via the four health domain capabilities  Expanding and emerging platforms for clinical research data  Opportunities eg for FAIR-er data