Presentation by Dr Merran Smith, PHRN, to the 'Unlocking value from publicly funded Clinical Research Data' workshop, cohosted by ARDC and CSIRO at ANU on 6 March 2019.
A Critique of the Proposed National Education Policy Reform
NCRIS and the health domain
1. NCRIS and the health domain
Merran Smith, Chief Executive, PHRN
ARDC Forum, Canberra, 6 March 2019
2. NCRIS overview
Australian Government’s National Collaborative Research
Infrastructure Strategy (NCRIS)
Managed by the Department of Education and Training,
with input from governments, universities and institutes
Supports a wide range of national research
infrastructure, including e-research/ARDC
3. NCRIS and health
Recent NCRIS documents (2016 Roadmap; Research Infrastructure Investment Plan)
highlight health in context of therapeutic development, through four capabilities:
Australian Phenomics Network (APN)
BioPlatforms Australia (BPA)
Therapeutic Innovation Australia (TIA)
Population Health Research Network (PHRN)
4. Focus of health capabilities
APN: Gene discovery; genomic medicine
BPA: Genomics; metabolomics; proteomics;
bioinformatics (health and non-health)
TIA: Translational services, biologics, cell therapies,
small molecules, pre-clinical testing and clinical trials;
support the ANZ Clinical Trials Registry
5. Focus of PHRN
PHRN’s focus is linked data:
Support national, state and territory data linkage units
Also secure file transfer, remote access and storage
We link administrative, clinical and other data,
including data from clinical trials, registries
and cohorts
6. Some health domain trends
Ongoing NCRIS investment via the four health
domain capabilities
Expanding and emerging platforms for clinical
research data
Opportunities eg for FAIR-er data