The health crisis due to COVID-19 is shaping a new reality in which the exchange and access to health data in a secure way will be more and more necessary. In this complex challenge converge both the respect for the individual rights as well as the interests of the patients and the need to promote the research in pursuit of the public interest. To face this challenge, we can find different approaches across Europe. In this webinar, we will present the experiences of three EU-funded projects (BigMedilytics, BodyPass, and DeepHealth), besides an overview of the legal framework and recommendations to enforce both national regulations and GDPR by an expert in data privacy and security
11. Population Health & Chronic Diseases
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Critical patients
WHO. World Report on Ageing and Health 2015
Multimorbidity-
comorbidity is one of the
main challenges in the
healthcare sector.
Its prevalence is increasing
across Europe
12. Population Health & Chronic Disease
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Big Data Analytics to apply the personalized best therapeutic strategy
and reduce the burden on the healthcare system
High-risk
Primary
care
Secondary
care
Low-moderate risk
1. Retrospective
analysis
2. Technological
development
(ML)
3. Prospective
analysis to
validate the tool
4 M EHR
Valencian Community
Objective: to develop a
decision support system for GP
based on the stratification and
clustering of the population. In
order to assess the
hospitalization risk and
mortality.
13. Population Health & Chronic Disease Management Comorbidities
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Our approach. 3 pillars
Technology
Computational cluster + secure
channel
Legal
Bilateral agreement between
partners
Data anonymization
Anonymization + re-identification
risk assessment
14. Population Health & Chronic Disease Management Comorbidities
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Our approach. Anonymization
15. Population Health & Chronic Disease Management Comorbidities
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Our approach. Technology, visiting concept
17. Population Health & Chronic Disease Management Comorbidities
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Recommendations
Technology
Computational cluster + secure
channel
• Data should be in a secure server in-house.
• VPN. 2 steps authentication
• Traceability. One login per person. Important to track
all access.
• Virtualized environment implemented in Redundant
high performance servers (at least 2)
• Minimum requirements:
• SSD disk (fast access) + conventional disk (slow
access)
• 1TB RAM
• 10GB ethernet, interconnection between servers
• 24 cores
18. Population Health & Chronic Disease Management Comorbidities
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Recommendations
Legal
Bilateral agreement between
partners
Anonymization
Anonymization + re-identification
risk assessment
• A bilateral agreement
among partners that are
going to have access to
data is highly
recommended.
• Accountability principle.
Be able to document
everything and show that
you comply with all
regulations
• Double-anonymization
process
• Conduct a re-identification
risk assessment
• Check the
recommendation of your
national authority
19. Population Health & Chronic Disease Management Comorbidities
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Recommendations
Act as if fully anonymized data don’t exist
Reach the highest levels of security as possible
Prove that you apply all possible measures