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A Community Assessment Tool to
    Measure Syringe Access Readiness


                     H a r m R e d u c t i on Co a l i t i o n ( H R C)
                     N a r e l l e E l l e n d on, R N
1                    Katie Burk, MPH
   Overview of the Harm Reduction
        Coalition and CBA for SAS
        Mobilization team
       Reviewing Syringe Access Services
        (SAS) in the US
       Defining the A PLACE model
       Applying the A PLACE model to
        community assessment work


2
Harm Reduction Coalition
   Founded in 1994 to work with individuals and
    communities at risk for HIV infection due to drug
    use and high-risk sexual behaviors.

   The Harm Reduction Coalition is a national
    advocacy and capacity-building organization that
    promotes the health and dignity of individuals and
    communities impacted by drug use.




                                                         3
   The Institute @HRC
        ◦ Capacity Building for Syringe Access Services Mobilization
        ◦ HIV Prevention Capacity Building Initiative for CBOs
        ◦ Harm Reduction Training Institute
        ◦ Overdose Prevention Programs (SKOOP/DOPE)
        ◦ LGBT Project

       Policy Advocacy

       National and Regional Conferences
        ◦ Next National Conference: Portland, Oregon in Nov. 2012
        ◦ Harm Reduction in The South; NC Sept 2011




4
Provide technical assistance to Community
     Based Organizations, Health Departments and
     Communities to address IDU (Injecting Drug
     Users) Health Needs, including HIV
     Prevention.
    Provide expertise to:
           Establish, Expand & Improve
          Effectiveness of Syringe Access
                   Services (SAS)

5
 Syringe access programs are the most
     effective, evidence-based HIV prevention
     tool for people who use drugs.
     Seven federally funded research studies
     found that syringe exchange programs
     are a valuable resource.
     Incities across the nation, people who
     inject drugs have reversed the course of
     the AIDS epidemic by using sterile
     syringes and harm reduction practices.

6
   Every year 32,000 people get
            infected with HIV/AIDS and
            Hepatitis C in the US by sharing
            contaminated syringes(1).

           Nationally, injection drug users
            represent 12 % of annual HIV
            infections and 19 % of people
            living with HIV/AIDS.



    1) Drug Policy Alliance, http://www.drugpolicy.org/facts/drug-war-numbers



7
8
Significant shifts toward support of syringe access
    programs on a federal level:
     Lift of the federal ban in 2009
      ◦ Federal funds can now be used to directly support
        syringe access programs

     National HIV/AIDS Strategy (NHAS) 2010
      ◦ Calls for minimizing HIV infection among IDUs
      ◦ Specifically sites syringe exchange as an intervention
        that will reduce the HIV infection rate among IDUs
     National Hepatitis plan 2011
      ◦ Call to enhance IDU access to sterile syringes
      Sources: http://www.whitehouse.gov/sites/default/files/uploads/NHAS.pdf,
      http://www.hhs.gov/ash/initiatives/hepatitis/actionplan_viralhepatitis2011.pdf




9
• Mobilize community                                  • Mobilize communities
                                  • Intensify prevention
     National HIV/AIDS Strategy




                                                                                                                    CBA for SAS Mobilization
                                                             HHS hepatitis action plan
                                                                                           resources to prevent                                  to provide effective
                                    efforts in communities
                                                                                           viral hepatitis caused                                SAS (an evidence-
                                    where HIV is most
                                                                                           by IDU                                                based intervention)
                                    heavily concentrated
                                                                                         • Ensure that IDUs have
                                  • Expand efforts to                                                                                          • Establish/Expand SAPs
                                                                                           access to hepatitis
                                    prevent HIV using                                                                                            to provide HIV testing,
                                                                                           prevention services
                                    evidence based                                                                                               linkages to SA tx,
                                    approaches                                                                                                   hepatitis education
                                                                                         • Provide IDUs with
                                                                                                                                                 and screening,
                                                                                           access with access to
                                                                                                                                                 medical care
                                  • Promote a holistic                                     care and SA treatment
                                    approach to health                                     to prevent
                                    that addresses                                         transmission and                                    • Build leadership,
                                    comorbidities with                                     disease progression                                   alliances, community
                                    STDs and hepatitis C                                                                                         awareness




10
   Reducing new infections
         ◦ Main focus of CBA for SAS Mobilization

        Access to care and improving health outcomes
         ◦ Support people living with HIV with co-occurring health
           conditions and those who have challenges meeting their
           basic needs, such as housing.

        Reducing HIV disparities and health inequities
         ◦ Adopt community level approaches to reduce HIV
           infection in high-risk communities

        More coordinated national response to the HIV
         epidemic
         ◦ Increase the coordination of HIV programs across
           federal, state, and local governments

11
Develop Community Mobilization Model
                   (A PLACE)


        Identify services to provide, recipients of
            services, process, and outcomes


               Provide trainings and TA to targeted
                           communities


                    Increased utilization of SAS should
                    emphasize other services related to
                                prevention
12
13
A   •AWARENESS
     P   •POLICY
     L   •LEADERSHIP
     A   •ALLIANCES
     C   •CULTURE
     E   •ESTABLISH/EXPAND
14
Build and/or Expand :
        Community AWARENESS of the need for SAS
        Understanding around POLICY issues that impact SAS
        LEADERSHIP to champion SAS
        ALLIANCES that support and aid the establishment &
         expansion of SAS
        IDU CULTURAL competency of SAS
        Capacity to ESTABLISH SAS
        SAS capacity to EXPAND to meet IDU health needs

15
A        • AWARENESS
     What is the existing level of
     community awareness around HIV &
     HCV transmission among IDUs?

      How does the community regard SAS
     as an intervention for their jurisdiction?
      How does the community obtain
     information about IDU health issues?


16
P           • POLICY

      What are the current policies that
     impact SAS?
     Are any advocates or groups working
     on SAS-related policy?
      How does the community perceive &
     implement these policies?

17
L      • LEADERSHIP
     Who are the leaders who work to
     address IDU health issues?

      What are the capacity needs of
     leadership to address the needs of
     new or existing SAS?


18
A        • ALLIANCES

      What alliances address HIV or HCV
     prevention, IDU issues, and/or SAS?

      Who are the constituents of the
     alliances?

      What are the capacity needs of alliances
     to address and/or champion SAS?

19
C      • CULTURAL COMPETENCY


     How do agencies or programs meet IDU
     health needs?

     In what ways do new or existing SAPs and
     other programs promote consumer
     involvement?

      What data/research/evaluation is available
     to assess IDU needs and effectiveness of
     services?

20
E     • ESTABLISH/EXPAND
      What are the capacity needs to
     establish SAS?

      In what ways do can existing SAS be
     improved to better meet the needs of
     IDUs?

21
Leveraging the
     strengths of…
        Communities
        Leaders
        Advocates
        Programs
        Alliances
     in order to address
     barriers to SAS.

22
State of SAP        Obstacles

        Aw            P    Aw.
         .                             P



             L




                                               GOAL
GOAL




                     Al.    L
                                 Al.

         C
                             E
                 E                         C

                                               23
   Key informant
         interviews
        Surveys
        Strategic planning
         processes
        Expansion of existing
         needs assessment
         processes
        Support for community
         coalitions
        Focus groups


24
Applying the needs assessment model to the
jurisdictions in the CBA for SAS Mobilization
team’s work plan




                                                25
   5 new pilot SAPs in the state

        Leadership in 5 programs to form an
         alliance, become HR experts in NJ

        CBA for SAS facilitating planning
         process for Harm Reduction
         Partnership of NJ (HRPNJ)
26
   Key informant interviews with 6 leaders
    of the 5 NJ-based SAPs
   Interviews transcribed
   Qualitative analysis of data by CBA for
    SAS Mobilization team
   SWOT analysis employed with results of
    qualitative data
   Report drafted on interviews and SWOT
    analysis, disseminated to HRPNJ
                                              27
Guiding HRPNJ’s strategic planning process:
        Solidify and expand alliance (HRPNJ)
        Increase awareness of law enforcement
        Improve IDU cultural competency of programs
         ◦ Create more avenues of consumer involvement at SAPs
         ◦ SAPs as leader/model of IDU cultural competency for
           other local programs

        Expand reach of existing programs
         ◦ Expand hours, other program models
         ◦ Providing OD Prevention, hepatitis education, food


28
   Improving drug user cultural competency—
         CBA activities
         ◦ Drug User Stigma training
         ◦ Syringe Access and Law Enforcement training
         ◦ Focus groups at 2 sites

        Strengthening alliances—Creation of policy
         and procedures, bylaws for HRNJP
        Focusing on awareness of program and its
         usefulness (working with law enforcement)


29
   Boulder has 3rd oldest program in US,
         had been operating under the radar
         before legislation passed
        Recent SAS legislation passed statewide,
         called for local buy-in
        Restrictive city ordinance in Denver
         posing barriers to establishment of SAP

30
   Syringe access affinity session during APHA
         conference in Denver, Nov 2010
        Key informant interviews with 6 key
         informants who are involved with IDU-
         related serviced in CO
        Interviews transcribed
        Qualitative analysis of data by CBA for SAS
         Mobilization team


31
   Political and legislative barriers
   Limited cross-jurisdictional support among
    programs working with IDUs
   Strong leadership in harm reduction field
    and IDU health
   Impressive IDU cultural competency of
    programs



                                                 32
   City ordinance in Denver amended, RFP
         released
        Building capacity of leaders
        Boulder to advocate for Narcan availability
        Strong cross-jurisdictional alliance between
         Boulder, Denver, Fort Collins
        Trainings on Drug User Stigma, Building
         Alliances between SAPs and Law Enforcement,
         Improving Health with Drug Users


33
   Interest in initiating SAS
         among county health
         department staff in Washoe
         County
        NV-based needs assessment
         processes pointing to need for
         SAS
        No legal or underground SAPs,
         no enabling legislation
        CBA for SAS working to
         support IDU CC, community
         awareness, leadership

34
   Syringe access
         legislation did not pass
         in 2011
        Before next political
         process an
         establishment of the
         program, need to build
         up…
         ◦   SAS leadership
         ◦   Alliances
         ◦   IDU cultural competency
         ◦   Awareness of the
             effectiveness of SAS


35
   Limited SAS, high rates of HIV incidence and
         prevalence
        Legislation restricting SAS in many states
        Lack of awareness, IDU cultural competency,
         alliances & leadership on drug user health
         issues
        Pockets of effective harm reduction advocates
         and providers in different parts of the region.

36
Focus on building awareness, alliances, and
     IDU cultural competency:
      ◦ Southern Network google group
      ◦ Southern HR Conference Sept 2011
      ◦ Collaborating with agencies also doing work in the
        South (LCOA, ACRIA)
      ◦ Supporting & showcasing working models of SAS in
        the South (NCHRC, AHRC)
      ◦ Building our understanding of Southern drug user
        community issues to provide specific SAS CBA
        jurisdiction work


37
38
Syringe Access Community Mobilization
     http://www.harmreduction.org/article.php?id=1146

     Narelle Ellendon (NYC)
     ellendon@harmreduction.org
     212 213 6376 x16

     Katie Burk (Oakland)
     burk@harmreduction.org
     510 444 6969 x13


39

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A Community Assessment Tool to Measure Syringe Access Readiness

  • 1. A Community Assessment Tool to Measure Syringe Access Readiness H a r m R e d u c t i on Co a l i t i o n ( H R C) N a r e l l e E l l e n d on, R N 1 Katie Burk, MPH
  • 2. Overview of the Harm Reduction Coalition and CBA for SAS Mobilization team  Reviewing Syringe Access Services (SAS) in the US  Defining the A PLACE model  Applying the A PLACE model to community assessment work 2
  • 3. Harm Reduction Coalition  Founded in 1994 to work with individuals and communities at risk for HIV infection due to drug use and high-risk sexual behaviors.  The Harm Reduction Coalition is a national advocacy and capacity-building organization that promotes the health and dignity of individuals and communities impacted by drug use. 3
  • 4. The Institute @HRC ◦ Capacity Building for Syringe Access Services Mobilization ◦ HIV Prevention Capacity Building Initiative for CBOs ◦ Harm Reduction Training Institute ◦ Overdose Prevention Programs (SKOOP/DOPE) ◦ LGBT Project  Policy Advocacy  National and Regional Conferences ◦ Next National Conference: Portland, Oregon in Nov. 2012 ◦ Harm Reduction in The South; NC Sept 2011 4
  • 5. Provide technical assistance to Community Based Organizations, Health Departments and Communities to address IDU (Injecting Drug Users) Health Needs, including HIV Prevention. Provide expertise to: Establish, Expand & Improve Effectiveness of Syringe Access Services (SAS) 5
  • 6.  Syringe access programs are the most effective, evidence-based HIV prevention tool for people who use drugs.  Seven federally funded research studies found that syringe exchange programs are a valuable resource.  Incities across the nation, people who inject drugs have reversed the course of the AIDS epidemic by using sterile syringes and harm reduction practices. 6
  • 7. Every year 32,000 people get infected with HIV/AIDS and Hepatitis C in the US by sharing contaminated syringes(1).  Nationally, injection drug users represent 12 % of annual HIV infections and 19 % of people living with HIV/AIDS. 1) Drug Policy Alliance, http://www.drugpolicy.org/facts/drug-war-numbers 7
  • 8. 8
  • 9. Significant shifts toward support of syringe access programs on a federal level: Lift of the federal ban in 2009 ◦ Federal funds can now be used to directly support syringe access programs National HIV/AIDS Strategy (NHAS) 2010 ◦ Calls for minimizing HIV infection among IDUs ◦ Specifically sites syringe exchange as an intervention that will reduce the HIV infection rate among IDUs National Hepatitis plan 2011 ◦ Call to enhance IDU access to sterile syringes Sources: http://www.whitehouse.gov/sites/default/files/uploads/NHAS.pdf, http://www.hhs.gov/ash/initiatives/hepatitis/actionplan_viralhepatitis2011.pdf 9
  • 10. • Mobilize community • Mobilize communities • Intensify prevention National HIV/AIDS Strategy CBA for SAS Mobilization HHS hepatitis action plan resources to prevent to provide effective efforts in communities viral hepatitis caused SAS (an evidence- where HIV is most by IDU based intervention) heavily concentrated • Ensure that IDUs have • Expand efforts to • Establish/Expand SAPs access to hepatitis prevent HIV using to provide HIV testing, prevention services evidence based linkages to SA tx, approaches hepatitis education • Provide IDUs with and screening, access with access to medical care • Promote a holistic care and SA treatment approach to health to prevent that addresses transmission and • Build leadership, comorbidities with disease progression alliances, community STDs and hepatitis C awareness 10
  • 11. Reducing new infections ◦ Main focus of CBA for SAS Mobilization  Access to care and improving health outcomes ◦ Support people living with HIV with co-occurring health conditions and those who have challenges meeting their basic needs, such as housing.  Reducing HIV disparities and health inequities ◦ Adopt community level approaches to reduce HIV infection in high-risk communities  More coordinated national response to the HIV epidemic ◦ Increase the coordination of HIV programs across federal, state, and local governments 11
  • 12. Develop Community Mobilization Model (A PLACE) Identify services to provide, recipients of services, process, and outcomes Provide trainings and TA to targeted communities Increased utilization of SAS should emphasize other services related to prevention 12
  • 13. 13
  • 14. A •AWARENESS P •POLICY L •LEADERSHIP A •ALLIANCES C •CULTURE E •ESTABLISH/EXPAND 14
  • 15. Build and/or Expand :  Community AWARENESS of the need for SAS  Understanding around POLICY issues that impact SAS  LEADERSHIP to champion SAS  ALLIANCES that support and aid the establishment & expansion of SAS  IDU CULTURAL competency of SAS  Capacity to ESTABLISH SAS  SAS capacity to EXPAND to meet IDU health needs 15
  • 16. A • AWARENESS What is the existing level of community awareness around HIV & HCV transmission among IDUs?  How does the community regard SAS as an intervention for their jurisdiction?  How does the community obtain information about IDU health issues? 16
  • 17. P • POLICY  What are the current policies that impact SAS? Are any advocates or groups working on SAS-related policy?  How does the community perceive & implement these policies? 17
  • 18. L • LEADERSHIP Who are the leaders who work to address IDU health issues?  What are the capacity needs of leadership to address the needs of new or existing SAS? 18
  • 19. A • ALLIANCES  What alliances address HIV or HCV prevention, IDU issues, and/or SAS?  Who are the constituents of the alliances?  What are the capacity needs of alliances to address and/or champion SAS? 19
  • 20. C • CULTURAL COMPETENCY How do agencies or programs meet IDU health needs? In what ways do new or existing SAPs and other programs promote consumer involvement?  What data/research/evaluation is available to assess IDU needs and effectiveness of services? 20
  • 21. E • ESTABLISH/EXPAND  What are the capacity needs to establish SAS?  In what ways do can existing SAS be improved to better meet the needs of IDUs? 21
  • 22. Leveraging the strengths of…  Communities  Leaders  Advocates  Programs  Alliances in order to address barriers to SAS. 22
  • 23. State of SAP Obstacles Aw P Aw. . P L GOAL GOAL Al. L Al. C E E C 23
  • 24. Key informant interviews  Surveys  Strategic planning processes  Expansion of existing needs assessment processes  Support for community coalitions  Focus groups 24
  • 25. Applying the needs assessment model to the jurisdictions in the CBA for SAS Mobilization team’s work plan 25
  • 26. 5 new pilot SAPs in the state  Leadership in 5 programs to form an alliance, become HR experts in NJ  CBA for SAS facilitating planning process for Harm Reduction Partnership of NJ (HRPNJ) 26
  • 27. Key informant interviews with 6 leaders of the 5 NJ-based SAPs  Interviews transcribed  Qualitative analysis of data by CBA for SAS Mobilization team  SWOT analysis employed with results of qualitative data  Report drafted on interviews and SWOT analysis, disseminated to HRPNJ 27
  • 28. Guiding HRPNJ’s strategic planning process:  Solidify and expand alliance (HRPNJ)  Increase awareness of law enforcement  Improve IDU cultural competency of programs ◦ Create more avenues of consumer involvement at SAPs ◦ SAPs as leader/model of IDU cultural competency for other local programs  Expand reach of existing programs ◦ Expand hours, other program models ◦ Providing OD Prevention, hepatitis education, food 28
  • 29. Improving drug user cultural competency— CBA activities ◦ Drug User Stigma training ◦ Syringe Access and Law Enforcement training ◦ Focus groups at 2 sites  Strengthening alliances—Creation of policy and procedures, bylaws for HRNJP  Focusing on awareness of program and its usefulness (working with law enforcement) 29
  • 30. Boulder has 3rd oldest program in US, had been operating under the radar before legislation passed  Recent SAS legislation passed statewide, called for local buy-in  Restrictive city ordinance in Denver posing barriers to establishment of SAP 30
  • 31. Syringe access affinity session during APHA conference in Denver, Nov 2010  Key informant interviews with 6 key informants who are involved with IDU- related serviced in CO  Interviews transcribed  Qualitative analysis of data by CBA for SAS Mobilization team 31
  • 32. Political and legislative barriers  Limited cross-jurisdictional support among programs working with IDUs  Strong leadership in harm reduction field and IDU health  Impressive IDU cultural competency of programs 32
  • 33. City ordinance in Denver amended, RFP released  Building capacity of leaders  Boulder to advocate for Narcan availability  Strong cross-jurisdictional alliance between Boulder, Denver, Fort Collins  Trainings on Drug User Stigma, Building Alliances between SAPs and Law Enforcement, Improving Health with Drug Users 33
  • 34. Interest in initiating SAS among county health department staff in Washoe County  NV-based needs assessment processes pointing to need for SAS  No legal or underground SAPs, no enabling legislation  CBA for SAS working to support IDU CC, community awareness, leadership 34
  • 35. Syringe access legislation did not pass in 2011  Before next political process an establishment of the program, need to build up… ◦ SAS leadership ◦ Alliances ◦ IDU cultural competency ◦ Awareness of the effectiveness of SAS 35
  • 36. Limited SAS, high rates of HIV incidence and prevalence  Legislation restricting SAS in many states  Lack of awareness, IDU cultural competency, alliances & leadership on drug user health issues  Pockets of effective harm reduction advocates and providers in different parts of the region. 36
  • 37. Focus on building awareness, alliances, and IDU cultural competency: ◦ Southern Network google group ◦ Southern HR Conference Sept 2011 ◦ Collaborating with agencies also doing work in the South (LCOA, ACRIA) ◦ Supporting & showcasing working models of SAS in the South (NCHRC, AHRC) ◦ Building our understanding of Southern drug user community issues to provide specific SAS CBA jurisdiction work 37
  • 38. 38
  • 39. Syringe Access Community Mobilization http://www.harmreduction.org/article.php?id=1146 Narelle Ellendon (NYC) ellendon@harmreduction.org 212 213 6376 x16 Katie Burk (Oakland) burk@harmreduction.org 510 444 6969 x13 39