Richard Corbridge, CIO at NIHR spoke at the CIO Event, March 2013

1. Open Data within Clinical Research
Richard Corbridge
Supporting research to make patients, and the NHS, better

2. Evolution & Creation of Research Capability
There are two types of creation myths:
those where life arises from mud, and those where life falls from the sky.
In our myth computers arose from the mud, and code fell from the sky.
George Dyson - Turing’s Cathedral
Successful clinical research outcomes happen in two ways: moments of
unplanned genius occurring under pressure and as a reaction to
environments, and those where organisational intelligence is applied to
ensure that delivery of a health outcome is probable and possible and
where evidence is overwhelming to prove the benefit.
Unattributed quote - Clinical Research Community

3. Evolution & Creation of Research Capability
Clinical research is most akin to a mine, a great deal of waste rock
requiring huge effort has to be removed before the rich seam of discovery
can be got at.
Sir Andrew Witty, CEO, GlaxoSmithKline
Three things we have to do with informatics to hit the rich seam
1 Innovate, INNOVATE, Innovate
2 Remove COMPLEXITY for researchers and participants
3 Increase TRANSPARENCY of inputs and outputs

5. The needle in the BIG DATA haystack
Higher Quality Lower Cost Quicker

6. The needle in the BIG DATA haystack
What is OPEN DATA?
The comedy answer is DATA that is OPEN…
But it is as simple as that…
Open data - data that can be made use of by anyone through
analysis, linkages, and evidence based delivery.
Real World Data – the Big Data of 2013!

7. The needle in the BIG DATA haystack
Numerous scientists have pointed out the irony that right at the historical
moment when we have the technologies to permit worldwide availability and
distributed process of scientific data, broadening collaboration and
accelerating the pace and depth of discovery we are busy locking up that data
and preventing the use of correspondingly advanced technologies on
knowledge
John Wilbanks, VP Science, Creative Commons
Until now…
UK PLC and a number of global Pharma all now have an Open Data
strategy and will, in 2013, move to facilitate the use of BIG DATA in an
OPEN way

8. Blackpool Rock
Data
Information
Insight
Intelligence

9. Open Data within Clinical Research
Richard Corbridge
Supporting research to make patients, and the NHS, better