Presentation for CF at SCHOOL Webinar hosted by CFQ
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In July 2012, Channon Goodwin & David Allen, Co-Founders of CF at SCHOOL, were invited by Cystic Fibrosis Queensland to facilitate a Webinar discussion about managing Cystic Fibrosis at School. This is the outline presentation.
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Presentation for CF at SCHOOL Webinar hosted by CFQ
- 1. CF at School Webinar session hosted by Cystic Fibrosis Queensland - July 2012
- 2. • Introductions • About our business – CFatSchool.org.au • Some topics and resource ideas • For kids – How to educate classmates about CF • For parents – Strategies for dealing with teachers • For teachers – Nutrition education considerations Welcome
- 3. • A little bit about the presenters • Managing CF at School is stressful – CF-ers starting school, moving up classes, changing schools • Support and assistance is available: • School packs are available from CFQ to assist • Nurses are available • Online resources are available Introductions
- 4. CF at SCHOOL is a yet to be launched online CF resource for parents, kids and teachers involved with CF-ers We recognise a need for one single, simple, up-to-date resource to help parents with kids going to school, and we aim to provide: • The right resources • The right way • To the right people CFatSCHOOL.org.au
- 5. So what is important…
- 6. Fostering understanding with classmates is an important part of inclusion and acceptance in the class room. We encourage children talking openly about their CF and what it means to them. This has a couple of key benefits: • Understanding is a key contributor to preventing avoidance, isolation and bullying • Personalising the CF message and bringing it to life with examples is important to assist message uptake for all audiences, young and old • Refreshing understanding in different ways annually Kids educating kids
- 7. Trying to get teachers on-board with assisting delivery of the ongoing care and wellbeing CF-ers. Coming up against a resistant teacher is just plain frustrating. What we suggest is: • Keep it simple – teachers are time poor • Make it actionable – keep the involvement small and with only a single action at a time • Give them the tools to do their own online research • Be solutions-oriented • Be respectful of time and space Working with teachers
- 8. Teachers are skilled at delivering key messages, ideas and learning tools to help children reach educational outcomes. We need to make it easy for teachers to understand when and where CF-ers may need special attention. Such areas may be: • CF health and physical education • At lunch and learning nutrition – CF alternatives for the healthy eating pyramid • During class – fatigue, toilet, and all that coughing • Homework at hospital – what’s realistic Teachers need educating too
- 9. To find out more about CF at SCHOOL join us on Facebook or Twitter @CFatSCHOOL https://www.facebook.com/cfatschool or .. Contact Channon Goodwin or David Allen on 0402 538 992 e. channon@cfatschool.org.au e. david@cfatschool.org.au w. www.cfatschool.org.au (coming soon)
- 10. To find out more about CF at SCHOOL join us on Facebook or Twitter @CFatSCHOOL https://www.facebook.com/cfatschool or .. Contact Channon Goodwin or David Allen on 0402 538 992 e. channon@cfatschool.org.au e. david@cfatschool.org.au w. www.cfatschool.org.au (coming soon)
Notes de l'éditeur
- About the presenters, organisers and supporters Managing CF at School is stressful – how do we know that our kids are taking the right enzymes, they’re not being bullied, they’re learning the right things about their nutrition??
- Everyone is different, but the main issues can be the same – or you can take the resources and adapt things to suit your needs. The main topics that we’ll tackle through CF at School are: Enzymes Food and nutrition Hospital time Coughing, fatigue and toilet breaks Bullying
- Key topics for discussion: Importance of communicating positively & the right way Personalise the messages – use the child’s name and their experiences as it’s really all about them Bring it to life with examples of food, physio, hospital – remember it’s not all that bad Bullies are ignorant – it’s hard to bully someone when you know their story Communicate in different ways at different intervals New classes with new kids start every year – think of different ways for the child to introduce CF to new kids and refresh with old kids Celebrate 65 roses day – parents can get involved in the classroom Use technology when you’re in hospital – skype the class, send photos, make it fun Bullying is tough whether it’s happening or whether CF-ers are scared of it happening Bullying often occurs when there is a perceived power imbalance – because someone is different and can be marginalised It is difficult to bully someone when you know they are just the same as you
- Key topics for discussion: Teachers are not always easy to get on-board We have had times when teachers have been great and help Bailley with enzymes and nutritional education In other cases teachers aren’t so helpful – some reasons for this may be: General unwilling to assist Thoughts that it’s all too hard and it will take too much time to understand and help Not wanting to appear to give children preferential time or effort Perception that if they try to help but don’t get it right they’ll be held responsible for something It’s important to: Keep it simple – make the teachers effort minimal Keep it relevant – understand the teaching plan and where CF issues may come into plan Keep it easy – online resources are the easiest as they can be used when, where and how the teacher wants to (plus they can steal ideas and use in their teaching plans) Be solutions-oriented and Remember to be respectful of the classroom environment and the teacher’s time and space We don’t want CF-ers to be seen as high-dependence Teachers already have to deal with a lot during the day and we don’t know what’s going on with the other kids
- Key topics for disussion: