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Mal de Debarquement Syndrome
is a rare and chronic condition.
It is considered to be an Orphan
condition, the prevalence of which is
currently unknown.
MdDS is a neurological disorder when one
feels a persistant perception of rocking and
swaying.
It may last for months,years or be forever
present. It generally appears after being
exposed to passive motion- such as being
on a ship, an airplane or even a car
journey.
Together we can offer help, support and
understanding.
Together we can find how to better manage
our symptoms..
Together we can find a balance
MdDS is recognised as a
Disability by
 The Department of Human
Services Australia
 National Health Institute USA
 Wellcome Trust UK
Our Medical Board consists of
Dr Alan Pearce PhD
Swinburne University
Alan is responsible for providing
trial treatments in Australia using
repetitive Transcranial Magnetic
Stimulation
His results to date are promising,
These are detailed in his recent
paper published in the Journal of
Neuropsychology 2015.
Dr Shaun Watson
Dr Watson is an Australian-based
health professional. Shaun is
trained as a Neurologist and has
practices located in Blacktown
and , Randwick. NSW
Dr Luke Chen
Dr Chen is a highly qualified
neurologist with subspecialty
expertise in hearing and balance
disorders .He is located at the
Alfred Hospital , Melbourne
© mddsaustralia.org
OUR AIM
 To promote awareness both
within the medical world and
the wider Community
 To assist with clinical trials and
studies
 Encourage and embrace ways
of helping better manage our
symptoms
Please contact:
Mddsaussies@yahoo.com.au
alanpearce@swin.edu.au
Dr Shaun Watson
(02) 9622 7722
Dr Luke Chen
(03) 9076 2059
For further information visit
Vestibular Disorders Association
www.vestibular.org
National Organisation for Rare Diseases
www.rarediseases.org
MdDS Australia
Finding Balance
ABN 474756417
What is MdDS
Persistent Mal de Debarquement
Syndrome is a rare disorder
The individual experiences a
continuous sense of motion when
on stable ground. MdDS usually
occurs after the person has
travelled on a ship.
But may occur after exposure to
other motion such as a plane
journey.
It is thought that during this period
of travel the brain sensitises to the
rocking motion. Once back on solid
ground, the brain fails to readjust.
However, due to the rarity of the
condition, research is being
undertaken to find the underlying
mechanisms.
Other symptoms may include:
 Fatigue
 Difficulty concentrating
 Staggering gait
 Headaches
 Tinnitius
 Ear pain/fullness
Recent Survey Results
In December 2015, a survey of the
Australian MdDS community was
undertaken.
It revealed :
 Over 90% were women
 Cruising was the main cause
of onset
 Air travel more greatly
recognised as a cause of
onset
 Improved diagnosis rate -
up by 23%
The latter reinstates that awareness
is growing within the medical
community, together with better
understanding.
Exacerbating factors also included:
 Fatigue
 Stress/anxiety
 Bright lighting
 Low barometric pressure
 Confined spaces
 Hormonal changes
 Computer work
 Showering
 Supermarkets
 Shopping Centres
 Bending down
 Repetitive Movement
 Darkness
 Going Down Stairs
 Cold/flu
Cure and Treatments
To date there is is no cure for Mal de
Debarquement Syndrome
Treatments offered by your Dr will
depend on your personal circumstances.
Some have benefited from osteopathic
care.,Vestibular therapy and massage
as temporary relief from symptoms.
Relief is found whilst being back in
passive motion such as driving.This
is not found to be the case with other
balance disorders
MRI and CT scans appear normal
MdDS Australia does not endorse any
type of medication.
Please refer overleaf for more
information
MdDS Australia
Finding
Balance

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MdDS Australia brochure 2016

  • 1. Mal de Debarquement Syndrome is a rare and chronic condition. It is considered to be an Orphan condition, the prevalence of which is currently unknown. MdDS is a neurological disorder when one feels a persistant perception of rocking and swaying. It may last for months,years or be forever present. It generally appears after being exposed to passive motion- such as being on a ship, an airplane or even a car journey. Together we can offer help, support and understanding. Together we can find how to better manage our symptoms.. Together we can find a balance MdDS is recognised as a Disability by  The Department of Human Services Australia  National Health Institute USA  Wellcome Trust UK Our Medical Board consists of Dr Alan Pearce PhD Swinburne University Alan is responsible for providing trial treatments in Australia using repetitive Transcranial Magnetic Stimulation His results to date are promising, These are detailed in his recent paper published in the Journal of Neuropsychology 2015. Dr Shaun Watson Dr Watson is an Australian-based health professional. Shaun is trained as a Neurologist and has practices located in Blacktown and , Randwick. NSW Dr Luke Chen Dr Chen is a highly qualified neurologist with subspecialty expertise in hearing and balance disorders .He is located at the Alfred Hospital , Melbourne © mddsaustralia.org OUR AIM  To promote awareness both within the medical world and the wider Community  To assist with clinical trials and studies  Encourage and embrace ways of helping better manage our symptoms Please contact: Mddsaussies@yahoo.com.au alanpearce@swin.edu.au Dr Shaun Watson (02) 9622 7722 Dr Luke Chen (03) 9076 2059 For further information visit Vestibular Disorders Association www.vestibular.org National Organisation for Rare Diseases www.rarediseases.org MdDS Australia Finding Balance ABN 474756417
  • 2. What is MdDS Persistent Mal de Debarquement Syndrome is a rare disorder The individual experiences a continuous sense of motion when on stable ground. MdDS usually occurs after the person has travelled on a ship. But may occur after exposure to other motion such as a plane journey. It is thought that during this period of travel the brain sensitises to the rocking motion. Once back on solid ground, the brain fails to readjust. However, due to the rarity of the condition, research is being undertaken to find the underlying mechanisms. Other symptoms may include:  Fatigue  Difficulty concentrating  Staggering gait  Headaches  Tinnitius  Ear pain/fullness Recent Survey Results In December 2015, a survey of the Australian MdDS community was undertaken. It revealed :  Over 90% were women  Cruising was the main cause of onset  Air travel more greatly recognised as a cause of onset  Improved diagnosis rate - up by 23% The latter reinstates that awareness is growing within the medical community, together with better understanding. Exacerbating factors also included:  Fatigue  Stress/anxiety  Bright lighting  Low barometric pressure  Confined spaces  Hormonal changes  Computer work  Showering  Supermarkets  Shopping Centres  Bending down  Repetitive Movement  Darkness  Going Down Stairs  Cold/flu Cure and Treatments To date there is is no cure for Mal de Debarquement Syndrome Treatments offered by your Dr will depend on your personal circumstances. Some have benefited from osteopathic care.,Vestibular therapy and massage as temporary relief from symptoms. Relief is found whilst being back in passive motion such as driving.This is not found to be the case with other balance disorders MRI and CT scans appear normal MdDS Australia does not endorse any type of medication. Please refer overleaf for more information MdDS Australia Finding Balance