This is thepresentation that I gave as part of the #OT24vx- the24 hour Virtual Exchange for OT in celebration of World OT day, which in 2011 was themed "Pay it Forward". It was hosted by the excellent OT4OT group, leaders in the use of Online Technology in the profession of Occupational Therapy. My biography: http://ot4ot.files.wordpress.com/2011/05/abstract-ot24vx-jones.pdf The link to the presentations with audio and video is here, please see presentation 18 http://ot4ot.com/world-ot-day-2011/ All content is copyright, please get my permission to use this for teaching purposes and group work.

1. Claire Jones

3. The Pubic
Symphasis
• “Lateral scissoring” can irritate a misaligned pubic symphasis.
• Many activities create lateral scissoring motion, e.g. walking,
running, climbing hills and stairs, carrying shopping or
children unevenly.
• Photo credit:

4.  “Volition, habituation and performance capacity are
maintained and changed through what one does and
what one thinks and feels about doing” p.27
 “A shift in volition, habituation, performance capacity
or the environment can alter the overall dynamics,
leading to the emergence of something new” p.28
Keilhofner, G. (2008) Model of Human Occupation, 4th
ed.

6.  Volition  Environment:
• Driven personality • Housing-
• High pain threshold  Steep hill with no vehicle
access
• Pride in Joint breadwinner role
 Carrying shopping up the
 Habituation hill
• Very busy lifestyle  Often carrying toddler up
the hill
• Long hours on feet
 Steep stairs in back-to-back
• Used to running/ lifting/ housing
carrying  House on three floors
• Work-
 Very busy M H Inpatient
Ward

7.  Poor advice from GP and Midwife
• outdated with reference to published research about PGP,
• services under re-organisation led to use of locums without specialist
expertise,
• administrative and communication problems,
• my pride- perhaps I didn’t state my case forcefully enough?
 Good advice from Doctor at work
• recognised the problems with my gait and insisted I pursue the physio.
referral, despite several unsuccessful attempts
 Finally, advice from Physio
• Physio couldn’t believe I was still working with the level of injury
 Started OT on Wheels blog
http://otonwheels.wordpress.com/2010/06/26/so-what-happened-to-you-anyway-why-you-in-that-chair /

8.  “Occupational deprivation is...a state in which
a person ...(is) unable to do what is
necessary and meaningful in their lives due to
external restrictions.
 Itis a state in which the opportunity to
perform those occupations that have social,
cultural and personal relevance is rendered
difficult if not impossible.”
(Whiteford, 2000)

9. •Side lying with knees
gripping pillow is most
comfortable position
•It is surprisingly difficult
to do things in this
position!
•Started to use
painkillers and
mindfulness to deal with
pain

10.  Using services gave me valuable insight into the service user
experience- things don’t always go the way we think they
should!
 Took delivery of a bed-stick, two urinal bottles from OT- at last
I can get out of bed independently!
 Blogged about attitudes of the staff and services I
encountered, including Patient Transport
 If I can’t work the system, what hope has anybody?
 http://otonwheels.wordpress.com/2010/06/30/disabled-people-arent-allowed-to-be-parents-
btw/
 http://otonwheels.wordpress.com/2010/06/27/a-few-examples-of-how-disabled-people-are-
treated/
 http://otonwheels.wordpress.com/2011/04/29/patient-transport-again/

11.  DLA- Disability Living Allowance
• Benefit in the UK for people to address the increased
cost of living with disability
• Very difficult process to claim, but necessary as a
gatekeeper to other disability services
http://otonwheels.wordpress.com/2011/02/14/valentines-day-my-dla-story-ombh/
http://otonwheels.wordpress.com/2011/04/22/still-waiting-to-be-awarded-dla/
http://otonwheels.wordpress.com/2011/04/22/i-finally-won-my-dla-tribunal/
http://otonwheels.wordpress.com/2011/04/23/higher-rate-mobility-dla-it-means-freedom-i-hope/
 Motability
• Scheme in UK where part of DLA is sacrificed to
provide independent transport
http://otonwheels.wordpress.com/2011/05/16/all-aboard-the-motability-scheme-renault-review/
http://otonwheels.wordpress.com/2011/05/22/motability-scheme-citroen-c4-grand-picasso-review/

12.  Cried each night before
going back up the stairs- it
hurt so much
 Despairing about the future
 Hoping that after the birth I
would recover quickly
 Blogged about problems in
the home
http://otonwheels.wordpress.com/2010/06/26/wh
ats-the-access-to-my-house-like-rubbish-and-
heres-too-much-information-about-how-it-is-in-
the-house-too/

14.  Successful elective c-
section
 Celebration shared
through Social Media-
#clairesbaby is born!
 Baby develops anaemia
within first few hours of
birth- soon becomes
critically ill

15.  What is it?
• Haemolysis leads to elevated bilirubin levels. After
delivery, bilirubin is no longer cleared (via the
placenta) from the neonate's blood
 Symptoms
• Jaundice increase within 24 hours after birth.
 Treatment is
• Phototherapy
• Exchange blood transfusion
 http://en.wikipedia.org/wiki/Hemolytic_disease_of_the_
newborn

16.  #clairesbaby Tweets
became huge source
of support
 Agreed treatment:
• Triple phototherapy
• Fed baby
expressed milk
under phototherapy
lamps

17. So happy she was going
to make it!!
Allowed to resume
breastfeeding
And to pick her up for
cuddles

18. Bathing baby in hospital
breastfeeding room-
partner needed to carry
filled bath to table in order
for me to participate in
bathing
Looking after baby from my
bed- all dressing, nappy
changing and feeding done
in the same way.

19. PROBLEM SOLUTION
 Couldn’t open  Make friends with the
heavy fire doors housekeepers, who
from wheelchair- brought me meals and
need access for tea!
• Meals  Plan loo visits during
• Toilet visiting hours when
• Shower many people around to
hold doors
 Have daily shower
when I have my own
visitors

20. I want to go home, but  Handy grab
don’t know how I’ll  Toilet frame
manage!  Urinals (downstairs
and bedroom)
 Bath seat
 Shower seat
 Perching stool
(bathroom)
 Bedstick
 Trolley
 Zimmer Frame

21.  Home Care helped to:  Blogs
 http://otonwheels.wordpress.com/2011/0
 Carry baby downstairs 1/23/the-woman-who-would-not-take-
 PADL off-her-shoes-in-which-i-discuss-my-
disappointment-with-home-carers-lack-
• Showering of-respect/
http://otonwheels.wordpress.com/2011/
• Dressing bottom half 
01/23/social-care-the-forgotten-public-
• Emptying urinals service-in-which-i-discuss-the-lack-of-
education-of-the-role-of-the-helping-
 DADL professions-in-our-primary-schools-at-
key-stage-1/
• Hoovering  http://otonwheels.wordpress.com/2011/
• Pegging out washing 09/23/a-funny-story-about-psychosis-
in-which-i-discuss-occams-razor/
• Making a cup of tea  http://otonwheels.wordpress.com/2011/
01/23/social-care-the-forgotten-public-
• Ironing service-in-which-i-discuss-the-lack-of-
education-of-the-role-of-the-helping-
• Making bed professions-in-our-primary-schools-at-
• Washing up key-stage-1/

22.  Still in pain, but healing
from the birth now
 Still find side lying to be
best relief from pain
 Parenting tasks very
difficult-
 Nappy changing
 Couldn’t carry baby
 Couldn’t bathe baby
 Couldn’t use oven

23.  My set-up each
morning- reducing
trips up and down
stairs- keep
everything handy!

24.  Receiving services- not
providing services!
• Daily Home Care
• Family aide 3x weekly
• Social Services transport
• Wheelchair Taxi
 http://otonwheels.wordpress.com/2011/02/28/
going-out-maybe-or-maybe-not-in-which-i-
discuss-problems-booking-out-the-
wheelchair-taxi-service/
 http://otonwheels.wordpress.com/2011/04/22/
access-to-my-house-from-car/
• Physiotherapy
• Perinatal Mental Health
Support
• GP
• Pharmacy delivery

25.  Found online support
networks to be
invaluable
 Couldn’t get out to
meet friends
 Couldn’t get to school
 Housebound, except
when partner /
wheelchair taxi took
me for medical appts

26. Kubler-Ross  Impact on friendships:
Cycle of grief  http://otonwheels.wordpress.co
m/2011/09/19/so-good-to-see-
you-back-on-your-feet-again-in-
Denial-Anger-Bargaining-Grief- which-i-discuss-the-well-
Acceptance meaning-but-misinformed-
friend/
 http://otonwheels.wordpress.co
m/2011/01/23/life-changing-  http://otonwheels.wordpress.co
injury-in-which-i-start-using-the- m/2011/02/14/a-little-
kubler-ross-stages-of-grief- knowledge-is-a-dangerous-
model/ thing-in-which-i-discuss-
medical-student-syndrome/
 http://otonwheels.wordpress.co
m/2011/06/02/feeling-rotten-
sucks/

27.  Starting to accept my
situation- assessing
how I lived my life
before and after
disability
I didn’t miss my daughter’s
Nativity- first Family outing!

28. Spirituality
 http://otonwheels.wordpress.com/2011/09/24/
faith-and-healing-in-which-i-discuss-faith-
healing-prayer-and-christianity/
Family
 http://otonwheels.wordpress.com/2011/03/13/
a-weekend-away/
 http://otonwheels.wordpress.com/2011/05/15/
childcare/
 http://otonwheels.wordpress.com/2011/05/17/
childcare-2-time-to-start-letting-go/

29.  Fit for work?
 http://otonwheels.wordpress.com/2011/04/29/fit-for-work/
 http://otonwheels.wordpress.com/2011/06/09/telecommuting/
 Personalisation
 http://otonwheels.wordpress.com/2011/04/23/a-tale-of-
personalisation-in-adult-social-care-personal-budgets-and-how-i-still-
cant-access-them/
 Disablism
 http://otonwheels.wordpress.com/2011/09/17/disabled-or-just-lazy-
scroungers-in-which-i-discuss-the-home-care-ladys-disablism/

30.  Pelvic Instability Network Scotland
• http://www.pelvicinstability.org.uk/pregnancy.asp
 Pelvic Partnership
• http://www.pelvicpartnership.org.uk/
 Wikipedia
• http://en.wikipedia.org/wiki/Pelvic_girdle_pain

31.  Kielhofner, G. (2008). Model of Human Occupation (4th ed.)
Lippincott Williams and Wilkins. Baltimore.
 Kübler-Ross, E. (1969) On Death and Dying, Routledge. Cited
on Wikipedia. Accessed 17.35 25/10/11
[http://en.wikipedia.org/wiki/K%C3%BCbler-Ross_model]
 Whiteford, G. E. (2000). Occupational deprivation: Global
challenges in the new millennium. British Journal of
Occupational Therapy, 63(5), 200–204.
 Haemolytic Disease of the Newborn. Wikipedia. Accessed
15.05 07/09/11
[ http://en.wikipedia.org/wiki/Hemolytic_disease_of_the_newborn]
 Nhs local (2011)Women with pelvic girdle pain left in agony
unnecessarily. Thursday 31st March. Accessed 15.05 07/09/11
[http://nhslocal.nhs.uk/story/women-pelvic-girdle-pain-left-agony-unnecessarily]

32. Contact details can be instantly
uploaded to your phone by
scanning the QR code
opposite.
E: tech4health@gmail.com
Blogs:
Claireot.wordpress.com
Otonwheels.wordpress.com
T: @claireot
G: +claireot