2. Working Together
What is Our Health Data Cooperative’s Definition
of a Learning Health System?
“We seek the development of a learning health
system in which science, informatics, incentives,
and culture are aligned for continuous
improvement and innovation—with best
practices seamlessly embedded in the delivery
process and new knowledge captured as an
integral by-product of the delivery experience.”
Institute of Medicine Roundtable Charter
Copyright 2013 Our Health Data Cooperative All Rights Reserved
3. Stumbling Block
“The biggest impediment to building a Learning
Health System is the organizational structure.”
* Learning Health System Summit, National Press Club May 2012
Copyright 2013 Our Health Data Cooperative All Rights Reserved
4. Our Health Data Cooperative
The LHS Platform Solution
• Create a patient-controlled health care cooperative,
that through incentives, will enable 50 million
members to improve treatments and lower health
care costs by:
– Building a transparent, inclusive and dynamic organization
– Creating a Learning Health System to tap the $80 billion market for
medical research that provides access to millions of records to
facilitate valid, non-biased non-confounded research to see what
treatments work best in each disease
– Leveraging purchasing power of a 50 Million member organization
to provide the members services that empower them as patients
Copyright 2013 Our Health Data Cooperative All Rights Reserved
5. How It Will Work
Our Health Data Cooperative is the organizational
solution for a transparent platform to build a patient
owned LHS- utilizing Electronic Health Records and
Self Generated Health Information. OHDC has:
1)Members (owners) – these are all patients/health
consumers that agree to allow their unique OHDC Stock
Number (PIN) to be placed by their record at their health care
information source provider. (Allows anonymous search for
outcomes)
2)Associate Members (non-owners - Various Classes) –
Companies that subscribe to access the aggregated data
Copyright 2013 Our Health Data Cooperative All Rights Reserved
6. OHDC Business Model
Patient-owned cooperative –
2 revenue streams
• Data Revenues (long term) and
• Service Revenues (immediate term -managed by
Our Health Data Coop Marketing Company, LLC):
– Subscription model for researchers’
access to OHDC data: education,
research, insurance evaluation,
business plan development
– 3% management fee against $80
billion market –controls costs
– Additional immediate revenue
sources to include
• Optional access to up-to-date ratings /
pricing of HC providers
• Members able to access paid webinars by
guest doctors
• Tele-medicine services
Our Health Data
Cooperative
- Patient-owned
1) Subscriptions
2)Third Party
Service Providers
-Contracts
Copyright 2013 Our Health Data Cooperative All Rights Reserved
7. OHDC Member Problems
• Patients, and their doctors, have
little access to the latest
information regarding their disease
or condition from the 800,000
medical research studies performed
annually
• Patients are unable to exert
purchasing power to improve their
healthcare experience.
Example of initial problem identifier:
– Must personally visit a provider for
even the most routine of healthcare
issues, at high cost
– Wait to get an appointment and then
wait again in the waiting room, taking
time off from work
– Incur significant expense for after
hours care
• The average emergency room visit is
$750
• The average urgent care visit is $150
Copyright 2013 Our Health Data Cooperative All Rights Reserved
8. Service
Example of Immediate Opportunities to Serve Members with Telemedicine
Telemedicine
Provider
OHDC
Existing
National
Cooperative
Leading provider of
24x7 tele-medicine
services
•Nurse consultations
at no additional
charge to
subscribers
•Captures co-
payments for doctor
consultations
Captures registration
data and
subscription
payments
•Generates OHDC
member number
•Captures payment
from members
•Authorizes
Fonemed to provide
services
•Generates payment
to Fonemed
47 million member
electric cooperative
•Markets OHDC and
tele-medicine service
to members
Service Service
Members
Copyright 2013 Our Health Data Cooperative All Rights Reserved
9. Benefits
Accumulation of Anonymous Health Information Using Search and Translation
• To individual OHDC Members
– Portable health records: data
available at all times – no
bureaucratic red tape
– Benchmark health profile against
others
– Share in any profits generated by
use of the community’s data
– Ensure accuracy & completeness
– Improved treatments
– Interact with others with similar
conditions
– Reduced health care premiums
– Guide how personal healthcare
used
– Full protection of identity and
privacy
– Safeguard information that could
save a child's or grandchild's lives
• To researchers
– Improved studies: Larger data sets;
Valid, non-biased, non-confounded,
longitudinal data
– Lower costs – one-stop shop
• To providers
– Discover which treatments
consistently provide the best
solution
– Identify harmful (Vioxx) treatments
• To life sciences companies
– Identify alternative (Viagra, Rogaine)
treatments
– Reduce of duplicate testing costs
– Faster time to market
• To the government
– Save $100s of billions yearly
through rapid sharing of effective
procedures
Copyright 2013 Our Health Data Cooperative All Rights Reserved
10. Underlying Technology
• Secure, cloud-based search and retrieval technology
– Unique non-SSN identifier
• Protects identity
• Turned in by estate upon death of patient, ensuring integrity of data
– Leverages Centers for Medicare & Medicaid Services (CMS)
“Meaningful Use” guidelines
– Accesses multiple databases, regardless of data format:
• General practitioners
• Specialists
• Pharmacies
• Healthcare Systems
• Insurance companies
Copyright 2013 Our Health Data Cooperative All Rights Reserved