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Understanding dementia among
UK Bangladeshi
NICE clinical guideline 42
PhD Student: Muhammad Hossain
Supervisors: Dr Ann Dewey,
Dr Yohai Hakak, Dr Karan Jutlla
Outline of talk
• Aims and objectives
• Research questions
• Background and context
• Gap in the literature
• Research design
• Qualitative synthesis
• Semi-structured in-depth interviews
• Progress so far
• Things still to do
Aims and objectives
Part one:
• Qualitative research synthesis
• Explore South Asian people’s experience
• Explore informal and formal carers views
Part two:
• Explore Bangladeshi people’s experience
• Explore the cultural and religious issues
Research questions
• What are the understanding of dementia among
Bangladeshi people with and without dementia?
• Attitudes among families and carers
• Barriers to diagnosis
• Barriers to communication
• Improving practice
Background and context
Number of people with dementia in the UK
At present 821,884 people
By 2025 1 million people
By 2051 1,735,087 people
• 11, 000 to 15, 000 estimated people with
dementia from BME groups
• No estimated numbers from South Asian groups
• Predicted the numbers will rise quickly
Gap in the literature
• More US based studies than UK
• A hidden problem for a hidden population
• Few UK based studies among South Asian
• Generalization
• No studies among Bangladeshis
Research design
Part one overview:
Meta-aggregation: A pragmatic approach
• Comprehensive search of the literature
• QARI appraisal tool
• Gaps in the literature
• Lines of action
Research design
Part one overview (continued):
• Focussed research question using the acronym PICO
• Develop Search Strategy
• Searching for the Evidence
• Selecting Studies
• Critically Appraising Studies
• Data Extraction
• Data Synthesis
Research design
(continued)
Part two overview:
Primary research- Qualitative research
• Data collection: Semi-structure interviews
• Sampling
• Recruitment
• Data analysis
Progress so far
• Review protocol written
• Comprehensive literature search
• EPPI-Reviewer 4 database setup
• Made contacts with potential collaborators
• Presented research poster in several seminars
and conferences including ESRC in the UK
Things still to do
• Ethics approval
• Qualitative interviewing training
If you would like to take part, please contact us:
Muhammad.Hossain@port.ac.uk
Tel: +44 (0)23 9284 4461
This Project will finish by 2016.
Thank you!

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Understanding dementia among UK Bangladeshi

  • 1. Understanding dementia among UK Bangladeshi NICE clinical guideline 42 PhD Student: Muhammad Hossain Supervisors: Dr Ann Dewey, Dr Yohai Hakak, Dr Karan Jutlla
  • 2. Outline of talk • Aims and objectives • Research questions • Background and context • Gap in the literature • Research design • Qualitative synthesis • Semi-structured in-depth interviews • Progress so far • Things still to do
  • 3. Aims and objectives Part one: • Qualitative research synthesis • Explore South Asian people’s experience • Explore informal and formal carers views Part two: • Explore Bangladeshi people’s experience • Explore the cultural and religious issues
  • 4. Research questions • What are the understanding of dementia among Bangladeshi people with and without dementia? • Attitudes among families and carers • Barriers to diagnosis • Barriers to communication • Improving practice
  • 5. Background and context Number of people with dementia in the UK At present 821,884 people By 2025 1 million people By 2051 1,735,087 people • 11, 000 to 15, 000 estimated people with dementia from BME groups • No estimated numbers from South Asian groups • Predicted the numbers will rise quickly
  • 6. Gap in the literature • More US based studies than UK • A hidden problem for a hidden population • Few UK based studies among South Asian • Generalization • No studies among Bangladeshis
  • 7. Research design Part one overview: Meta-aggregation: A pragmatic approach • Comprehensive search of the literature • QARI appraisal tool • Gaps in the literature • Lines of action
  • 8. Research design Part one overview (continued): • Focussed research question using the acronym PICO • Develop Search Strategy • Searching for the Evidence • Selecting Studies • Critically Appraising Studies • Data Extraction • Data Synthesis
  • 9. Research design (continued) Part two overview: Primary research- Qualitative research • Data collection: Semi-structure interviews • Sampling • Recruitment • Data analysis
  • 10. Progress so far • Review protocol written • Comprehensive literature search • EPPI-Reviewer 4 database setup • Made contacts with potential collaborators • Presented research poster in several seminars and conferences including ESRC in the UK
  • 11. Things still to do • Ethics approval • Qualitative interviewing training
  • 12. If you would like to take part, please contact us: Muhammad.Hossain@port.ac.uk Tel: +44 (0)23 9284 4461 This Project will finish by 2016. Thank you!