2. Patients representation
Patients are represented:
In law debates regarding health system
In hospitals ethical committees
Patients are not represented:
Romanian Drug Agency ethical
committees (medicines and clinical studies)
HTA meetings
Other needs:
National Clinical Trial Register
National Registers for Chronic
Diseases
3. National Liaison Teams first step to
create EUPATI National Platform
1. EUPATI trainees: Violeta ASTRATINEI,
Rozalina LAPADATU, Cosmina UNGUREANU
2. Academia representatives: Prof. Dr. Ruxandra
IONESCU
3. Media partners: Marius GEANTA, Delia
BUDURCA
4. Industry representatives: still need internal
approvals
5. Healthcare professional bodies: in progress
EUPATI meeting,
Barcelona April 2015
4. Our activity
Promoting EUPATI values within
radio programs, conferences,
meetings with local stakeholders
Presenting EUPATI Course during
Melanoma Congress, Brussels,
24-26 April 2015
5. Project benefits in Romania
For patients and patients advocates:
The importance of health education in having
an informed decision
Understanding medical terminology and
participation in clinical trials
Facilitating participations to ethic committees,
health documents revision , reimbursement
process
For patients partners:
Both way communication doctor - patient
Patients- qualified partners in the decisions
regarding medication, clinical studies and
health politics
