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Step	
  By	
  Step	
  Early	
  Intervention	
  Society	
  -­‐	
  History	
  
	
  
The	
  concept	
  for	
  our	
  Society	
  grew	
  as	
  Helen	
  Enns	
  (	
  Private	
  Physiotherapist)	
  worked	
  with	
  many	
  families	
  of	
  young	
  
children	
  with	
  developmental	
  delays.	
  Our	
  history	
  is	
  written	
  from	
  her	
  heart.	
  
	
  
"Over	
  the	
  last	
  2	
  years,	
  my	
  private	
  Physiotherapy	
  caseload	
  began	
  to	
  include	
  more	
  and	
  more	
  very	
  young	
  children,	
  
between	
  12-­‐24	
  months	
  of	
  age,	
  whose	
  parents	
  were	
  seeking	
  my	
  help,	
  often	
  because	
  they	
  knew	
  something	
  was	
  
"not	
  right"	
  with	
  their	
  child's	
  development	
  but	
  were	
  not	
  sure	
  what	
  was	
  going	
  on.	
  They	
  had	
  usually	
  already	
  sought	
  
the	
  opinion	
  of	
  their	
  family	
  doctor	
  or	
  public	
  health	
  nurses	
  but	
  were	
  often	
  told:	
  
"Let's	
  just	
  wait	
  and	
  see!	
  Every	
  child	
  develops	
  at	
  their	
  own	
  pace.	
  
Come	
  back	
  in	
  6	
  or	
  12	
  months	
  and	
  we	
  will	
  revisit	
  it	
  then!!"	
  
Although	
  the	
  professional	
  may	
  have	
  felt	
  they	
  were	
  trying	
  to	
  calm	
  the	
  parents	
  with	
  these	
  words,	
  so	
  as	
  not	
  to	
  add	
  
more	
  worry,	
  for	
  many	
  families	
  it	
  did	
  the	
  opposite	
  as	
  they	
  just	
  had	
  a	
  certain	
  feeling	
  something	
  was	
  not	
  right.	
  
	
  	
  
Coffee	
  &	
  Chat	
  groups:	
  
As	
  this	
  number	
  of	
  families	
  increased,	
  the	
  parents	
  of	
  these	
  children	
  gathered	
  together	
  in	
  my	
  basement	
  for	
  Coffee	
  
and	
  Chat	
  groups	
  on	
  Saturday	
  mornings.	
  We	
  had	
  done	
  this	
  somewhat	
  regularly,	
  often	
  with	
  one	
  family	
  bringing	
  
along	
  another	
  new	
  family	
  they	
  have	
  met	
  along	
  the	
  way.	
  Both	
  Moms	
  and	
  Dads	
  have	
  shared	
  their	
  stories	
  with	
  
each	
  other,	
  encouraged	
  and	
  supported	
  each	
  other	
  and	
  they	
  also	
  have	
  been	
  learning	
  about	
  available	
  services	
  and	
  
how	
  to	
  go	
  about	
  accessing	
  what	
  they	
  need.	
  It	
  has	
  been	
  a	
  joy	
  to	
  see	
  the	
  dynamics	
  as	
  friendships	
  blossomed	
  with	
  
the	
  sharing	
  of	
  both	
  happy	
  and	
  sad	
  news	
  between	
  friends.	
  	
  
Many	
  of	
  the	
  families	
  have	
  mixed,	
  vague	
  or	
  no	
  diagnoses	
  for	
  their	
  children's	
  delays	
  and	
  so	
  each	
  family	
  has	
  a	
  
unique	
  set	
  of	
  steps	
  to	
  follow	
  depending	
  on	
  their	
  child's	
  need.	
  
	
  	
  
Step	
  By	
  Step:	
  
We	
  began	
  calling	
  it	
  "Step	
  by	
  Step"	
  group	
  at	
  that	
  time	
  as	
  often	
  we	
  were	
  hearing	
  of	
  "baby	
  steps"	
  of	
  progress	
  in	
  the	
  
right	
  direction,	
  which	
  we	
  could	
  celebrate	
  together.	
  The	
  families	
  eventually	
  became	
  connected	
  with	
  FSCD	
  (Family	
  
Support	
  for	
  Children	
  with	
  Disabilities)	
  programs	
  and	
  services,	
  often	
  starting	
  with	
  a	
  developmental	
  aide	
  contract	
  
so	
  that	
  an	
  aide	
  could	
  train	
  along	
  with	
  the	
  family	
  to	
  help	
  with	
  the	
  child's	
  development.	
  As	
  we	
  went	
  along,	
  after	
  
one	
  or	
  two	
  developmental	
  aide	
  contracts,	
  it	
  seemed	
  time	
  to	
  seek	
  a	
  larger	
  team	
  approach	
  so	
  we	
  could	
  include	
  an	
  
OT-­‐	
  Occupational	
  Therapist	
  (for	
  more	
  specific	
  training	
  regarding	
  Activities	
  of	
  Daily	
  Living,	
  play,	
  hand	
  use	
  etc.)	
  
and	
   a	
   Speech	
   Language	
   Pathologist(	
   SLP)	
   	
   for	
   aiding	
   communication	
   whether	
   through	
   enhanced	
   language	
  
learning,	
   teaching	
   signs,	
   development	
   of	
   a	
   variety	
   of	
   Aided	
   language	
   displays	
   or	
   working	
   towards	
   a	
  
communication	
  book.	
  Also	
  some	
  children	
  expressed	
  frustration	
  when	
  they	
  could	
  not	
  be	
  understood	
  and	
  so	
  we	
  are	
  
able	
  to	
  include	
  support	
  from	
  a	
  psychologist	
  to	
  add	
  	
  family	
  training	
  with	
  strategies	
  to	
  help	
  decrease	
  frustration	
  
and	
  develop	
  more	
  appropriate	
  ways	
  of	
  communication	
  as	
  taught	
  by	
  the	
  SLP.	
  
	
  	
  
At	
  this	
  time,	
  many	
  of	
  these	
  families	
  have	
  been	
  successful	
  with	
  acquiring	
  Specialized	
  Services	
  contracts	
  from	
  FSCD	
  
for	
   their	
   child's	
   program	
   which	
   I	
   am	
   able	
   to	
   coordinate	
   so	
   we	
   can	
   use	
   the	
   team	
   approach	
   to	
   offer	
   a	
   holistic	
  
development	
  approach	
  to	
  family	
  training."	
  	
   	
  
	
  
Helen	
  Enns	
  (	
  B.P.T.	
  )	
  
Physiotherapist	
  	
  
Manager	
  –	
  Step	
  by	
  Step	
  Early	
  Intervention	
  Society	
  	
  
	
  
	
  
	
  
	
  
	
  
	
  
Recognizing	
   that	
   there	
   is	
   a	
   gap	
   in	
   Calgary	
   for	
   services	
   for	
   identifying	
   and	
   supporting	
   very	
   young	
   children	
   with	
  
developmental	
   delays	
   and	
   their	
   families,	
   Step	
   By	
   Step	
   Early	
   Intervention	
   Society	
   was	
   formed	
   and	
   became	
  
incorporated	
  in	
  March	
  2015.	
  	
  
We	
   are	
   a	
   Not	
   for	
   Profit	
   organization	
   who	
   believe	
   that	
   Early	
   Intervention	
   for	
   babies	
   and	
   toddlers	
   with	
  
developmental	
  delays	
  needs	
  to	
  begin	
  as	
  early	
  as	
  possible	
  and	
  that	
  the	
  families	
  of	
  these	
  children	
  need	
  support	
  from	
  
and	
  links	
  with	
  a	
  community	
  of	
  caring	
  ,	
  like-­‐minded	
  people.	
  	
  
This	
  is	
  the	
  backbone	
  upon	
  which	
  all	
  our	
  programs	
  and	
  services	
  are	
  built.	
  	
  
	
  
Our	
  motto	
  is	
  “By	
  Families	
  for	
  families”.	
  
	
  
Our	
  programs	
  include:	
  
1. Early	
   Developmental	
  Screening/	
   Assessments	
   (if	
   needed)	
   :	
   -­‐	
   for	
   babies	
   and	
   toddlers	
   	
   who	
   may	
   not	
   be	
  
meeting	
  developmental	
  milestones.	
  
2. FSCD	
   Developmental	
   Aide:–	
   support	
   for	
   young	
   children	
   with	
   developmental	
   delays	
   accessing	
   Family	
  
Support	
  for	
  Children	
  Disabilities	
  (FSCD)	
  funding	
  for	
  an	
  in	
  home	
  	
  developmental	
  aide	
  program.	
  
3. FSCD	
   Specialized	
   Services:	
   –	
   support	
   for	
   young	
   children	
   with	
   developmental	
   delays	
   accessing	
   FSCD	
  
funding	
  for	
  Specialized	
  Services.	
  
4. Program	
   Unit	
   Funding	
   (PUF)	
  –	
  for	
  children	
  with	
  motor	
  or	
  speech	
  delays,	
  who	
  will	
  be	
  2.5	
  years	
  old	
  by	
  
September	
  1
st
	
  to	
  attend	
  a	
  community	
  pre-­‐school	
  and	
  families	
  seeking	
  a	
  community	
  based	
  program.	
  	
  
5. Common	
  Approach	
  –	
  Combined	
  programming	
  with	
  common	
  ISPP	
  (	
  Individualized	
  Services	
  Program	
  Plan)	
  
for	
  children	
  accessing	
  both	
  FSCD	
  &	
  PUF	
  Programming.	
  	
  
	
  
6. Training	
  Centre	
  :	
  
Another	
  significant	
  component	
  of	
  Step	
  By	
  Step	
  is	
  our	
  ability	
  to	
  provide	
  training	
  to	
  families,	
  therapists	
  and	
  
support	
  personnel	
  on	
  a	
  variety	
  of	
  topics	
  specific	
  to	
  Early	
  Intervention	
  methods	
  and	
  concepts.	
  	
  
It	
  is	
  our	
  plan	
  to	
  become	
  known	
  as	
  a	
  First	
  Class	
  Early	
  Intervention	
  Training	
  Centre	
  where	
  we	
  will	
  offer	
  multi-­‐
day	
  conferences	
  as	
  well	
  as	
  weekend	
  and	
  evening	
  training	
  sessions	
  for	
  parents,	
  therapists,	
  aides	
  and	
  others	
  
involved	
  with	
  the	
  Early	
  Intervention	
  community	
  in	
  Calgary.	
  We	
  will	
  use	
  local	
  and	
  global	
  trainers	
  depending	
  
on	
  the	
  topics	
  and	
  needs	
  expressed	
  by	
  staff	
  and	
  families.	
  	
  
	
  
7. Parent	
  Support	
  :	
  Underlying	
  all	
  of	
  our	
  programming	
  is	
  the	
  creation	
  of	
  a	
  community	
  of	
  supportive	
  parents.	
  
Step	
  By	
  Step	
  has	
  identified	
  a	
  need	
  for	
  families	
  to	
  have	
  access	
  to	
  emotional	
  support	
  from	
  people	
  who	
  have	
  
shared	
  similar	
  experiences.	
  A	
  sense	
  of	
  community	
  provides	
  an	
  opportunity	
  for	
  healing	
  and	
  mentorship	
  by	
  
offering	
   others	
   emotional	
   support,	
   sharing	
   of	
   best	
   practices	
   and	
   experiences,	
   which	
   helps	
   to	
   alleviate	
  
feelings	
  of	
  isolation	
  as	
  a	
  parent	
  of	
  a	
  child	
  with	
  special	
  needs.	
  Our	
  foundation	
  program,	
  Play	
  &	
  Chat	
  Group,	
  
is	
  testimony	
  to	
  that.	
  This	
  group	
  is	
  a	
  structured	
  biweekly,	
  2-­‐hour	
  parent/child	
  playgroup	
  with	
  an	
  emphasis	
  
on	
   training	
   the	
   parent	
   alongside	
   their	
   child	
   while	
   providing	
   opportunities	
   for	
   parents	
   to	
   celebrate	
  
successes	
  and	
  empathize	
  with	
  the	
  challenges.	
  
	
  
As	
  an	
  organization	
  with	
  parents	
  at	
  it’s	
  heart,	
  we	
  understand	
  when	
  families	
  feel	
  overwhelmed	
  and	
  frustrated	
  when	
  
all	
  each	
  parent	
  wants	
  is	
  what	
  is	
  best	
  for	
  their	
  child.	
  	
  
We	
   hear	
   parents	
   concerns	
   about	
   their	
   child’s	
   development,	
   we	
   educate	
   and	
   encourage	
   parents	
   as	
   they	
   access	
  
existing	
  funding	
  and	
  we	
  offer	
  a	
  caring	
  community	
  of	
  support	
  as	
  families’	
  grow	
  with	
  their	
  child	
  in	
  the	
  early	
  years.	
  	
  
By	
  offering	
  a	
  variety	
  of	
  training,	
  Step	
  By	
  Step	
  will	
  empower	
  parents	
  to	
  be	
  the	
  best	
  advocates	
  for	
  their	
  child	
  and	
  
create	
  a	
  collaborative	
  environment	
  for	
  all	
  early	
  intervention	
  professionals.	
  

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General SSEI Society History March 2015

  • 1.   Step  By  Step  Early  Intervention  Society  -­‐  History     The  concept  for  our  Society  grew  as  Helen  Enns  (  Private  Physiotherapist)  worked  with  many  families  of  young   children  with  developmental  delays.  Our  history  is  written  from  her  heart.     "Over  the  last  2  years,  my  private  Physiotherapy  caseload  began  to  include  more  and  more  very  young  children,   between  12-­‐24  months  of  age,  whose  parents  were  seeking  my  help,  often  because  they  knew  something  was   "not  right"  with  their  child's  development  but  were  not  sure  what  was  going  on.  They  had  usually  already  sought   the  opinion  of  their  family  doctor  or  public  health  nurses  but  were  often  told:   "Let's  just  wait  and  see!  Every  child  develops  at  their  own  pace.   Come  back  in  6  or  12  months  and  we  will  revisit  it  then!!"   Although  the  professional  may  have  felt  they  were  trying  to  calm  the  parents  with  these  words,  so  as  not  to  add   more  worry,  for  many  families  it  did  the  opposite  as  they  just  had  a  certain  feeling  something  was  not  right.       Coffee  &  Chat  groups:   As  this  number  of  families  increased,  the  parents  of  these  children  gathered  together  in  my  basement  for  Coffee   and  Chat  groups  on  Saturday  mornings.  We  had  done  this  somewhat  regularly,  often  with  one  family  bringing   along  another  new  family  they  have  met  along  the  way.  Both  Moms  and  Dads  have  shared  their  stories  with   each  other,  encouraged  and  supported  each  other  and  they  also  have  been  learning  about  available  services  and   how  to  go  about  accessing  what  they  need.  It  has  been  a  joy  to  see  the  dynamics  as  friendships  blossomed  with   the  sharing  of  both  happy  and  sad  news  between  friends.     Many  of  the  families  have  mixed,  vague  or  no  diagnoses  for  their  children's  delays  and  so  each  family  has  a   unique  set  of  steps  to  follow  depending  on  their  child's  need.       Step  By  Step:   We  began  calling  it  "Step  by  Step"  group  at  that  time  as  often  we  were  hearing  of  "baby  steps"  of  progress  in  the   right  direction,  which  we  could  celebrate  together.  The  families  eventually  became  connected  with  FSCD  (Family   Support  for  Children  with  Disabilities)  programs  and  services,  often  starting  with  a  developmental  aide  contract   so  that  an  aide  could  train  along  with  the  family  to  help  with  the  child's  development.  As  we  went  along,  after   one  or  two  developmental  aide  contracts,  it  seemed  time  to  seek  a  larger  team  approach  so  we  could  include  an   OT-­‐  Occupational  Therapist  (for  more  specific  training  regarding  Activities  of  Daily  Living,  play,  hand  use  etc.)   and   a   Speech   Language   Pathologist(   SLP)     for   aiding   communication   whether   through   enhanced   language   learning,   teaching   signs,   development   of   a   variety   of   Aided   language   displays   or   working   towards   a   communication  book.  Also  some  children  expressed  frustration  when  they  could  not  be  understood  and  so  we  are   able  to  include  support  from  a  psychologist  to  add    family  training  with  strategies  to  help  decrease  frustration   and  develop  more  appropriate  ways  of  communication  as  taught  by  the  SLP.       At  this  time,  many  of  these  families  have  been  successful  with  acquiring  Specialized  Services  contracts  from  FSCD   for   their   child's   program   which   I   am   able   to   coordinate   so   we   can   use   the   team   approach   to   offer   a   holistic   development  approach  to  family  training."         Helen  Enns  (  B.P.T.  )   Physiotherapist     Manager  –  Step  by  Step  Early  Intervention  Society                
  • 2. Recognizing   that   there   is   a   gap   in   Calgary   for   services   for   identifying   and   supporting   very   young   children   with   developmental   delays   and   their   families,   Step   By   Step   Early   Intervention   Society   was   formed   and   became   incorporated  in  March  2015.     We   are   a   Not   for   Profit   organization   who   believe   that   Early   Intervention   for   babies   and   toddlers   with   developmental  delays  needs  to  begin  as  early  as  possible  and  that  the  families  of  these  children  need  support  from   and  links  with  a  community  of  caring  ,  like-­‐minded  people.     This  is  the  backbone  upon  which  all  our  programs  and  services  are  built.       Our  motto  is  “By  Families  for  families”.     Our  programs  include:   1. Early   Developmental  Screening/   Assessments   (if   needed)   :   -­‐   for   babies   and   toddlers     who   may   not   be   meeting  developmental  milestones.   2. FSCD   Developmental   Aide:–   support   for   young   children   with   developmental   delays   accessing   Family   Support  for  Children  Disabilities  (FSCD)  funding  for  an  in  home    developmental  aide  program.   3. FSCD   Specialized   Services:   –   support   for   young   children   with   developmental   delays   accessing   FSCD   funding  for  Specialized  Services.   4. Program   Unit   Funding   (PUF)  –  for  children  with  motor  or  speech  delays,  who  will  be  2.5  years  old  by   September  1 st  to  attend  a  community  pre-­‐school  and  families  seeking  a  community  based  program.     5. Common  Approach  –  Combined  programming  with  common  ISPP  (  Individualized  Services  Program  Plan)   for  children  accessing  both  FSCD  &  PUF  Programming.       6. Training  Centre  :   Another  significant  component  of  Step  By  Step  is  our  ability  to  provide  training  to  families,  therapists  and   support  personnel  on  a  variety  of  topics  specific  to  Early  Intervention  methods  and  concepts.     It  is  our  plan  to  become  known  as  a  First  Class  Early  Intervention  Training  Centre  where  we  will  offer  multi-­‐ day  conferences  as  well  as  weekend  and  evening  training  sessions  for  parents,  therapists,  aides  and  others   involved  with  the  Early  Intervention  community  in  Calgary.  We  will  use  local  and  global  trainers  depending   on  the  topics  and  needs  expressed  by  staff  and  families.       7. Parent  Support  :  Underlying  all  of  our  programming  is  the  creation  of  a  community  of  supportive  parents.   Step  By  Step  has  identified  a  need  for  families  to  have  access  to  emotional  support  from  people  who  have   shared  similar  experiences.  A  sense  of  community  provides  an  opportunity  for  healing  and  mentorship  by   offering   others   emotional   support,   sharing   of   best   practices   and   experiences,   which   helps   to   alleviate   feelings  of  isolation  as  a  parent  of  a  child  with  special  needs.  Our  foundation  program,  Play  &  Chat  Group,   is  testimony  to  that.  This  group  is  a  structured  biweekly,  2-­‐hour  parent/child  playgroup  with  an  emphasis   on   training   the   parent   alongside   their   child   while   providing   opportunities   for   parents   to   celebrate   successes  and  empathize  with  the  challenges.     As  an  organization  with  parents  at  it’s  heart,  we  understand  when  families  feel  overwhelmed  and  frustrated  when   all  each  parent  wants  is  what  is  best  for  their  child.     We   hear   parents   concerns   about   their   child’s   development,   we   educate   and   encourage   parents   as   they   access   existing  funding  and  we  offer  a  caring  community  of  support  as  families’  grow  with  their  child  in  the  early  years.     By  offering  a  variety  of  training,  Step  By  Step  will  empower  parents  to  be  the  best  advocates  for  their  child  and   create  a  collaborative  environment  for  all  early  intervention  professionals.