1. Designing for Patients
Designing for Ourselves
Pat Mastors
President | Co-Founder
The Patient Voice Institute
Hx Refactored | May 14, 2014
PatientVoiceInstitute.org
Pat@PatientVoiceInstitute.org
Twitter: @Pmastors
@PatientVoices
Copyright © 2014,The Patient Voice Institute, All Rights Reserved.

2. Designing an Ecosystem
Focused on Care
…use our empathy to
identify and address
unmet needs…
Asking “What if”?

3. My plan today:
§ Success stories – “unmet needs”
§ A major announcement!
§ Q & A

4. Michael Graves
Architect & Designer
Copyright © 2014,The Patient Voice Institute, All Rights Reserved.

5. Michael Graves
Architect & Designer
Copyright © 2014,The Patient Voice Institute, All Rights Reserved.

6. Patty Skolnik
Corporate Executive, Wife, Mother

7. Patty Skolnik
Corporate Executive, Wife, Mother

8. Pat Mastors
TV News Reporter, Wife, Mother

9. Pat Mastors
TV News Reporter, Wife, Mother
Copyright © 2014,The Patient Voice Institute, All Rights Reserved.

10. Pat Mastors
TV News Reporter, Patient Advocate
Copyright © 2014,The Patient Voice Institute, All Rights Reserved.
• NQF
• PfP
• CU Safe Patient Project
• IPFCC
• IHI Forum
• QNet

11. …Patient advocates finally get a seat at the
table (but something’s not working…)
§ We’re often an afterthought
§ We have few resources (funding,
infrastructure)
§ We also have to make a living
(is our time valuable?)

12. …Patient advocates Finally Get a Seat
at the Table, but how effective can we be?
§ We have different, sometimes singular stories
§ No “database” of patients
§ We don’t all agree on approach
(“partnership” vs. more aggressive stance)
§ Those who are successful are SWAMPED!

13. …We Finally Get a Seat at the Table…
Patient Voices
Need a home

14. Pulling from PwP & IHI experiences…

15. WHAT IF…?
We Built a New Community for
Patient Voices…
Welcome
Newly
Activated
Training
Development
Support
Speakers
Advisors
Consultants

16. WHAT IF it was
a resource for any entity seeking
Authentic Patient Perspective ?
Surveys
Focus Groups
Geographically
Or by Topic
Speakers
Advisors
Consultants

17. WHAT IF all who joined embraced
Reliable, Consistent Principles…
Safety
Partnership
Compassionate
Interaction
Access to
Meaningful
Information
Continuity
in Care

18. WHAT IF
everyone
in this new
community
pledged to weave
their authentic
personal story into
those Reliable,
Consistent
Principles?

19. WHAT IF…we enlisted known
Patient Engagement Leaders to
show us the way?

20. Introducing
The Patient Voice Institute (PVI)
http://patientvoiceinstitute.org/

21. E-Patient Dave Alicia Cole Regina Holliday Patty Skolnik
Pat Mastors Jean Rexford Diane Stollenwerk Libby Hoy
Senior Advisors

22. “Patient Voice Principles”

23. We want “Frictionless”…

24. We want Interoperability…

25. “Frictionless Interoperability”
The missing piece

26. How it Translates (Why it Matters)

28. What about the next person?

29. Design an Ecosystem
Focused on Care…
For Yourself

30. PatientVoiceInstitute.org
Pat Mastors
President | Co-Founder
Pat@PatientVoiceInstitute.org
Twitter: @Pmastors
@PatientVoices
Copyright © 2014,The Patient Voice Institute, All Rights Reserved.