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Jean Hailes
Women’s Health Survey 2016
Understanding health information needs and
health behaviours of women in Australia
5-9 September 2016
jeanhailes.org.au
Jean Hailes
Women’s Health Survey 2016
Acknowledgements
Acknowledgement and thanks go to the following people and organisations: Baker IDI, BHC,
Bupa, Dairy Australia, GMHBA, Harris Scarfe, HealthDirect, Healthlogix, Kaya Health Clubs,
Medibank, Mishfit, Monash University (SPHPM), National Australia Bank, Oh My Goodness, Optus
and PwC for their involvement in survey dissemination and Hau Nguyen at Monash University,
Melbourne Australia for her contribution and research expertise.
If you would like further information on this report please email whw@jeanhailes.org.au or call (03)
9903 8999 or toll free 1800 532 642.
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Jean Hailes
Women’s Health Survey 2016
Table of Contents
Summary of key findings	 4
Health concerns and information needs........................................................................................4
Healthy living..................................................................................................................................5
Mental health.................................................................................................................................5
Health checks and screening..........................................................................................................5
Main report	 6
1.	Introduction............................................................................................................................6
	 1.1	 About Jean Hailes for Women’s Health.......................................................................6
	 1.2	Translation....................................................................................................................6
	 1.3	 Why the need for a national women’s health survey in Australia?...............................7
	 1.4	 Why focus on gaps?.....................................................................................................7
2.	 Survey methodology..............................................................................................................8
	 2.1	 The survey....................................................................................................................8
	 2.2	Ethics............................................................................................................................8
	 2.3	Recruitment..................................................................................................................8
	 2.4	 Survey participants.......................................................................................................9
3.	 Survey results.......................................................................................................................10
	 3.1	 Health concerns and information needs....................................................................10
		 3.1.1 Health concerns........................................................................................................ 10
		 3.1.2 Health information need.......................................................................................... 11
		 3.1.3 Ease of access and trustworthiness of health information.................................... 14
		 3.1.4 Provision of health information to women............................................................. 15
	 3.2	 Healthy living..............................................................................................................16
		 3.2.1 How do women rate their overall health?.............................................................. 16
		 3.2.2 Weight management............................................................................................... 16
		 3.2.3 Physical activity......................................................................................................... 17
		 3.2.4 Sedentary behaviour................................................................................................ 18
		 3.2.5 Healthy lifestyle barriers........................................................................................... 18
	 3.3	 Mental health.............................................................................................................18
		 3.3.1 Body image............................................................................................................... 18
		 3.3.2 Mental health statements........................................................................................ 21
	 3.4	 Health checks and screening......................................................................................22
		 3.4.1 Annual number of visits............................................................................................ 22
		 3.4.2 Discussing health with health professionals........................................................... 22
		 3.4.3 Health checks............................................................................................................ 23
Conclusion....................................................................................................................................23
References....................................................................................................................................24
Appendices..................................................................................................................................25
	 Appendix A: Summary statistics for specific groups	 25
	 Appendix B: Search strategy		 26
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Jean Hailes
Women’s Health Survey 2016
jeanhailes.org.au
Summary of key findings
In 2016, Jean Hailes for Women’s Health conducted the second annual Women’s Health Survey
to understand the health information needs and behaviours of women living in Australia. Both
women and health professionals were asked to complete an online survey. The survey set out to
explore the health information needs of women and also identify trends in health behaviours,
body image, mental health and health screening behaviours. The survey had three main
objectives:
nn to examine perceived gaps in women’s health information as identified by women and health
professionals
oo to understand future health needs of women living in Australia as identified by women and
health professionals
pp to explore and describe trends in women’s health behaviours focusing on diet, exercise,
mental health, body image and health screening behaviours identified by women
Women’s Health Week
The findings of this survey are launched as part of Jean Hailes Women’s Health Week 2016 and
have an important role in Jean Hailes’ commitment to improving physical and emotional health
and wellbeing in all women across Australia.
The Jean Hailes WHW, now in its fourth year, is a week dedicated to improving knowledge and
understanding of women’s health. Taking place in the first week of September each year, it is a
free online event where women can focus on their health, learn about different aspects of their
health and take action if they need to. Women’s health events are also held around Australia each
year as part of the week, supported by resources from Jean Hailes.
Key findings
The 2016 Jean Hailes Women’s Health Survey was a national survey of 3236 women and health
professionals of differing ages, cultural backgrounds and from a range of metropolitan, regional,
rural and remote locations across Australia. Key findings are outlined below.
Health concerns and information needs
•	 Women reported five main health concerns. These health concerns included weight
management, female-specific cancers, mental and emotional health, menopause and chronic
pain.
•	 Nearly half of all women reported that they wanted more information on healthy eating and
nutrition. Women also reported they wanted more information on mental health, weight
management and memory.
•	 Women residing in metropolitan locations reported different health information needs to
women in regional and rural Australia.
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Women’s Health Survey 2016
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Healthy living
•	 Women that responded to the survey appear to be in good health and are mostly invested in
doing the right thing for their health.
•	 Weight management was reported as the top health concern for women.
•	 Over half of all women self-reported their health as ‘good’ to ‘very good’.
•	 Over half of all women reported that they had not tried to lose weight by fasting or going on
crash diets in the last 12 months.
•	 On average, women reported that they engaged in moderate physical activity 3.5 days per
week. On these days women reported on average 1.3 hours per day of moderate physical
activity.
•	 Women reported on average 6.4 hours per day of sedentary behaviour.
•	 Health professionals believed lack of time and health not being a priority for women were the
biggest barriers to implementing positive health changes.
Mental health
•	 Over half of all women reported that they are most likely to compare their body to family
and friends as opposed to comparing their bodies to models, athletes, media figures and/or
actresses.
•	 Women were asked about the biggest influence on their body image. Over two thirds of
women stated that their own perception was the biggest influence.
•	 Over one third of women stated they felt ‘wound up’ and/or worried a lot of the time or most
of the time.
•	 Women aged 18-24 years were more likely to report feeling ‘wound up’ and worried
compared to those aged 65+ years.
Health checks and screening
•	 On average women visited the doctor 3-5 times per year, with only a small number of women
not visiting the doctor at all in the last 12 months.
•	 Most women felt confident to ask their doctor questions and discuss health issues that were
of concern. Only a small group reported that they were not confident to ask questions.
•	 Health professionals reported family violence, followed by painful sex and sexual health
problems as health topics that their female patients found difficult to discuss.
•	 Most women reported engaging in general health checks as well as pap screening, breast
screening and bowel screening. However, many women reported that they were not
engaging in sexual health screening for STIs.
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Jean Hailes
Women’s Health Survey 2016
Main report
1.Introduction
This year marks the second year that Jean Hailes has conducted the Jean Hailes Women’s Health
Survey to examine the health information needs of women and also identify trends in health
behaviours, mental health and health screening.
The findings of this survey are launched as part of the Jean Hailes Women’s Health Week 2016
and have an important role in Jean Hailes’ commitment to improving physical and emotional
health and wellbeing in all women across Australia. This includes understanding the gaps in
women’s health for women and their health professionals as well as being able to inform policy
and the conversation with multiple stakeholders around the important health issues for women.
1.1 About Jean Hailes for Women’s Health
Founded in 1992, Jean Hailes for Women’s Health reflects the enduring legacy that Dr Jean
Hailes made to women’s health. Jean had a far-sighted vision to improve the quality of women’s
lives and give them practical information based on the best available evidence. In 1971 Jean
established the first clinic in Australia dedicated to the management of women at midlife and
beyond. Following her death in 1988, her colleagues and friends established the Jean Hailes
Foundation to honour her memory.
Jean Hailes for Women’s Health is a national not-for-profit organisation based in Victoria. Jean
Hailes was created to provide women with information, knowledge and clinical care to assist them
to actively manage their own health and wellbeing throughout the whole of their life. Dedicated
to the prevention of illness and improving women’s knowledge and understanding of important
health issues from adolescence to midlife and beyond, Jean Hailes translates the latest scientific
and medical evidence in order to inspire positive change in women’s health and wellbeing. In
addition, the organisation has become a leading entity for the provision of evidence-based
women’s health knowledge for government, business and multiple health organisations.
We have a 23 year history of successfully working with women, their families, health professionals,
research groups and policy makers and are regarded throughout Australia as a leader in women’s
healthcare. Our mission is to be the go to place for women’s health.
1.2 Translation
The best outcome for women and their families is when complex evidence and information
is converted into easy to understand practical resources and tools ensuring women have the
confidence to make decisions about their health in partnership with their doctor. We call this
‘translation’. Jean Hailes are experts in translation. The Jean Hailes Model of Translation is the
process of converting research, evidence, knowledge and clinical care into information and
education resources and programs to meet the needs of diverse audiences, including women,
health professionals, policy makers, other researchers and community groups. The first step in
this process of translation is to identify gaps that exist in women’s health research, clinical care
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Women’s Health Survey 2016
and education.
1.3 Why the need for a national women’s health survey in Australia?
In 2015, Jean Hailes identified a significant gap in Australian literature on women’s health
information needs. Many past studies of women’s health information were limited by their focus
on specific disease areas, specific sample groups and had been limited to certain age categories
or were conducted overseas. Surprisingly, few studies consulted with women and health
professionals at a national level about health concerns and health information needs of women
living in Australia, across the life course and from multiple regions across Australia.
For example, past studies of information needs have been conducted in women with cervical
cancer and human papillomavirus infection(1, 2)
polycystic ovary syndrome (PCOS)(3)
and breast
cancer(4, 5)
or have focused on the health of a particular cohort such as pregnant women(6)
,
widowed women(7)
, women in Australian mining towns(8)
, or focused on overseas experiences(9)
.
There was a significant gap in consulting Australian women across the life course and health
professionals at a national level.
This year marks the second year that Jean Hailes has conducted the Jean Hailes Women’s Health
Survey, forming part of our ongoing assessment and analysis of health information needs of
women and health professionals at a national level.
1.4 Why focus on gaps?
By focusing on gaps where limited effective information and/or resources currently exist in
Australia, Jean Hailes aims to give women, community organisations, health professionals,
government, and employers of women the knowledge and understanding of women’s health
needs in areas that are often little understood and potentially require strategy and resources.
At Jean Hailes we especially seek to quantify the ‘high impact gaps’ in the health and wellbeing
of Australian women; that is, the most important questions which have high clinical relevance.
We have a history of identifying gaps in women’s health knowledge and care across the lifespan
including menopause, premature menopause, PCOS, anxiety, women and heart health and
endometriosis.
The results of this survey will be used to inform the further understanding of gaps in women’
health in Australia and provide a focus for the next steps to improving knowledge, access and
health behaviours for women, their families and the community. We know that women are often
the educators and gatekeepers of health in the family so any work we do has far reaching impact
into the community as a whole as well.
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Women’s Health Survey 2016
2. Survey methodology
2.1 The survey
The 2016 Jean Hailes Women’s Health Survey had three main objectives:
nn Examine perceived gaps in women’s health information as identified by women and health
professionals.
oo Understand future health needs of women living in Australia as identified by women and
health professionals.
pp Explore and describe trends in women’s health behaviours focusing on diet, exercise, mental
health and health screening behaviours as identified by women.
To explore health information needs and trends in health behaviours, women and health
professionals across Australia were asked to complete a short online survey. Two separate online
surveys were designed for women and health professionals by the Jean Hailes Translation,
Education and Communication Unit consisting of experts in psychology, health behaviour
change, health promotion and public health. Questions were derived based on a literature
review, validated questionnaires(10-14)
and previous work conducted by Jean Hailes on health-
related behaviours(15-17)
. The draft surveys were then distributed for consultation and further
development to Jean Hailes clinicians and staff.
The two surveys invited women and health professionals to comment on unmet health
information needs, health concerns, trends in health behaviours, diet, exercise, body image,
mental health and health screening behaviours. This year’s online survey included 18 questions
for women and 5 questions for health professionals. While the majority of surveys were
completed online, survey material was also made available in hardcopy.
2.2 Ethics
The study was approved by Bellberry Human Research Ethics Committee. All women and health
professionals who participated gave consent by opting to click ‘next’ after reading the plain
language statement online.
2.3 Recruitment
Participants were recruited through established Jean Hailes communication channels and
community partners. Invitations to participate, accompanied by links to the survey, were
published through the Jean Hailes website, social media and email updates. A diverse range of
national community partners including airlines, banking, health, retail and mining corporations
promoted and disseminated the survey link Australia-wide.
Women were considered eligible for the study if they were aged 18 years or older, were able to
access the online survey or were able to sit with a translator and complete the survey. The survey
was designed to be accessible to participants with varying levels of health literacy.
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Women’s Health Survey 2016
2.4 Survey participants
A total of 3236 individuals, including consumers and health professionals, completed the online
surveys nationally over a three month period from February to early May 2016. The survey
reached all states and territories, as well as socio-economically diverse communities (See Figure
1).
3035 women nationally completed the online survey. Respondents were aged between 18-
88 years with an average age of 48 years. One third of respondents (31%) resided in regional
or remote Australia, 5% (n=172) identified as having a culturally and linguistically diverse
background and 2% (n=48) identified as Aboriginal or Torres Strait Islander.
In addition, 201 health professionals from across Australia completed the online survey for health
professionals. A diverse range of health professionals participated including: general practitioners
(25%), nurses (21%), naturopaths (12%), community and allied health services (14%). One third
(33%) of health professionals worked in regional or remote Australia.
Further demographics, including a breakdown of location of both women and health
professionals, can be found in Appendix A.
Figure 1. Location of survey participants across Australia (n=3236)
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Women’s Health Survey 2016
3. Survey results
3.1 Health concerns and information needs
Part 1 of the results section explores health concerns and health information needs reported by
women and health professionals.
3.1.1 Health concerns
As reported by all women
The top five health concerns women reported were:
1.	 weight management (23%), specifically weight gain
2.	 cancer (17%) such as breast cancer, ovarian cancer and skin cancer
3.	 mental and emotional health, in particular anxiety and depression (15%)
4.	 menopause (9%)
5.	 chronic pain (8%)
Figure 2. Top five health concerns of women
23%
17%
15%
9%
8%
Weight
management
Cancer
Mental &
emotional
health
Menopause
Chronic
pain
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Jean Hailes
Women’s Health Survey 2016
As reported by health professionals
Health professionals similarly reported that women worry about mental health, menopause,
weight and female specific cancers. Additionally, health professionals also reported that many
women worry about fertility.
The top five health concerns of women, as reported by health professionals, are:
1.	 mental and emotional health, in particular anxiety and depression (28%)
2.	 menopause (27%)
3.	 weight (25%)
4.	 breast cancer (17%)
5.	 fertility (16%)
3.1.2 Health information need
As reported by all women
Nearly half of all women across Australia reported that they wanted more information on healthy
eating and nutrition. Women also reported they wanted more information on mental health,
weight management and memory (refer to Figure 3).
Bowel health
Depression
Menopause
Natural therapies and supplements
Memory
Weight management
Anxiety and worry
Healthy eating and nutrition
46%
48%
45%
36%
34%
33%
30%
29%
Figure 3. Top eight health topics women indicated they want more information about
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Women’s Health Survey 2016
Metropolitan women compared to women residing in regional and rural Australia
The health information needs of women residing in metropolitan locations do differ from those in
regional and rural Australia. Women in metropolitan locations want more information on mental
health, menopause, periods, polycystic ovary syndrome and endometriosis, whilst women in
regional and rural areas want more information on bone health, memory and how to manage
blood pressure and cholesterol (refer to Table 1).
Health topics
% of metropolitan
women who want more
information
% of regional and rural
women who want more
information
1.	 Anxiety and worry 49 41
2.	 Bone health 25 31
3.	 Endometriosis 12 8
4.	 Blood pressure management 15 21
5.	 Cholesterol management 18 24
6.	 Memory 35 41
7.	 Menopause 36 30
8.	 Periods 13 9
9.	 Polycystic ovary syndrome 12 8
As reported by health professionals
Over 80% of health professionals reported that women in Australia needed more information on
vulval irritation and painful sex. Interestingly, only small numbers of women reported needing
more information on these health topics.
Health professionals also identified memory, endometriosis, polycystic ovary syndrome, family
violence, ovarian cancer and natural therapies as health topics which women need more
information on (refer to Figure 4).
Table 1.	 Metropolitan, regional and rural health information needs of women. All differences reported are
statistically significant with a pp value of <0.05
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Women’s Health Survey 2016
When looking at areas of health information that are currently being met, health professionals
believed women had adequate information on breast health, physical activity, periods,
contraception and healthy eating/nutrition.
Health topics health professionals want more information on
Health professionals also identified health topics they need more information. Over half reported
they need more information on natural therapies, family violence, painful sex and vulval irritation
(refer to Figure 5).
Endometriosis
Ovarian cancer
Sex
Memory
Vulval irritation
Painful sex
Family violence
Natural therapies and supplements
58%
59%
56%
51%
49%
43%
38%
37%
Figure 5. Eight health topics health professionals want more information on
13
Natural therapies and supplements
Ovarian cancer
Family violence
Polycystic ovary syndrome
Endometriosis
Memory
Painful sex
Vulval irritation
82%
84%
78%
76%
75%
74%
74%
70%
Figure 4. Health topics health professionals perceive women need more information about
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Jean Hailes
Women’s Health Survey 2016
3.1.3 Ease of access and trustworthiness of health information
Women are most likely to access health information from health professionals and internet
searches and are least likely to access health information from social media and commercial
organisations (refer to Table 2).
Women reported that they are most likely to trust health information from health professionals
and independent health organisations (such as Jean Hailes and the Cancer Council). Social
media and commercial organisations were identified as the least trustworthy source of health
information by women (refer to Table 3).
Information source
Ranking
(1 = most likely,
7 = least likely)
Health professionals (GP, specialist, allied health, nurse) 1
Internet search (eg Google) 2
Government websites 3
Independent health organisation (Jean Hailes, Cancer Council, etc.) 4
Health information pamphlets 5
Commercial organisations 6
Social media (eg Facebook, Twitter, Instagram) 7
Information source
Ranking
(1 = most trustworthy
7 = least trustworthy)
Health professionals (GP, specialist, allied health, nurse) 1
Independent health organisation (Jean Hailes, Cancer Council, etc) 2
Government websites 3
Health information pamphlets 4
Internet search (Google) 5
Commercial organisations 6
Social media (eg Facebook, Twitter, Instagram) 7
Table 3.	 Ranking of health information sources from most trustworthy to least trustworthy, by women
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Table 2.	 Ranking of health information sources from most likely to least likely to access, by women
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Jean Hailes
Women’s Health Survey 2016
3.1.4 Provision of health information to women
Health professionals were asked a different question to women in relation to provision of health
information; health professionals were asked about the easiest way to get health information to
provide to their patients/clients. Health professionals reported getting information from internet
searches, other health professionals, independent health organisations (such as Jean Hailes and
the Cancer Council) as well as government health websites (refer to Table 4).
Similarly, they also reported that information from other health professionals, independent health
organisations (such as Jean Hailes and the Cancer Council) and government health websites
were all trustworthy and they believed these were good sources of information for their patients/
clients. Health professionals ranked the trustworthiness of information sources similar to that of
consumers (refer to Table 5).
Information source
Ranking
(1 = most likely,
7 = least likely)
Internet search (eg Google) 1
Health professionals (GP, specialist, allied health, nurse) 2
Independent health organisation (Jean Hailes, Cancer Council etc) 3
Government websites 4
Health information pamphlets 5
Social media (eg Facebook, Twitter, Instagram) 6
Corporate organisations 7
Information source
Ranking
(1 = most trustworthy
7 = least trustworthy)
Health professionals (GP, specialist, allied health, nurse) 1
Independent health organisation (Jean Hailes, Cancer Council etc) 2
Government websites 3
Health information pamphlets 4
Internet search (eg Google) 5
Corporate organisations 6
Social media (eg Facebook, Twitter, Instagram) 7
Table 5. Health information sources ranked by health professionals from most to least trustworthy
15
Table 4.	 Easiest way for health professionals to get health information to provide to patients/clients. Ranked from
most likely to least likely to access.
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Jean Hailes
Women’s Health Survey 2016
3.2 Healthy living
Part 2 of the results section explores healthy living
including weight, physical activity and sedentary
behaviour. Many of the respondents to the survey
appeared to value their health and practised many
positive health behaviours.
3.2.1 How do women rate their overall health?
When asked the question ‘how would you rate your
overall health?’ over 70% of women self-reported their
health as ‘good’ to ‘very good’.
Most women also agreed with the health statement
good health is an important aspect in their life and
many women made an effort to eat a balanced and
nutritious diet (refer to Table 6).
Health statement % agreement
Good health is one of the most important things in my life 93
I make an effort to eat a balanced and nutritious diet 88
I am aware of small changes in my physical health 83
Being physically active is a priority in my life 70
3.2.2 Weight management
Women were asked whether in the past 12 months they have tried to lose weight by fasting or
going on crash diets. It was interesting to note that more than half (59%) reported that they had
not tried to lose weight by fasting or crash dieting in the last 12 months (refer to Figure 7). A small
minority of women reported that they engaged in this behaviour ‘often’ or ‘very often’ (8%). This
was a trend across all age groups. As crash diets are not a healthy weight management practise,
it would be helpful to examine these women in further studies.
Table 6. Agreement with health statements
16
rated their health as
rated their health as
Figure 6. Percentage of women that
rated their health as good or very good
39%
31%
good
very good
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Jean Hailes
Women’s Health Survey 2016
3.2.3 Physical activity
Days per week
On average, women reported that they engaged in moderate physical activity 3.5 days per week.
Hours per day
On these days women reported on average 1.3 hours per day of moderate physical activity.
Interestingly, women aged over 65 reported the highest level of physical activity, and those aged
between 25-35 years, the lowest level of physical activity (refer to Table 7).
Age group Hours per day
18 - 24 years 1.4
25 - 35 years 1.1
36 - 64 years 1.3
65 years + 1.6
The days and hours of physical activity reported by women meet current guidelines. The current
Australian physical activity guidelines for adults between 16-64 years is to be active on most days
of the week and accumulate 2.5–5 hours of moderate intensity physical activity each week.
Table 7. Hours of physical activity be age group per day
17
0 10% 20% 30% 40% 50% 60%
Never
Rarely
Sometimes
Often
Very often
% of women
Figure 7. Reported diet behaviour in the last 12 months
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Jean Hailes
Women’s Health Survey 2016
3.2.4 Sedentary behaviour
Women were asked about their sedentary behaviours in the last 7 days. This included time
spent sitting, reading, or lying down. Current research highlights that long periods of sedentary
behaviour (over 5 hours) is associated with poorer health outcomes, including an increased risk of
type 2 diabetes.
Women reported on average 6.4 hours per day of sedentary behaviour. This puts the majority of
women who participated in the survey over the recommended number of hours for sedentary
behaviour.
3.2.5 Healthy lifestyle barriers
Health professionals’ perspective:
Health professionals were asked about barriers to women implementing positive health changes
and they believed lack of time (29%) and health not being a priority for women (22%) were the
biggest barriers. However, health professionals also believed a significant barrier to implementing
positive health changes was that women lacked motivation (refer to Table 8).
Barrier %
1.	 Lack of time 29
2.	 Health is not a priority 22
3.	 Lack of motivation 12
4.	 Lack of money 9
5.	 Health literacy 7
6.	 Lack of confidence 5
7.	 Unsupportive partner/family 3
8.	 Lack of childcare 2
3.3	 Mental health
Part 3 of the results section explores mental health which includes body image, and worry.
3.3.1 Body image
Body image statements
Women were asked about their agreement levels regarding statements about their body image
(refer to Figure 8). Interestingly, most women agreed with the statement ‘before going out in
public I always notice how I look’ less than half agreed with the statement ‘I like my looks just the
way they are’, indicating that many women were unhappy with an aspect of their appearance and
body image.
18
Table 8. Top eight barriers to women maintaining a healthy lifestyle as reported by health professionals
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Jean Hailes
Women’s Health Survey 2016
Who women compare their body to
Women were also asked about who they compare their body to. Over half the women (57%)
reported that they compare their body to family and friends. This was evident across all age
groups. Women also reported comparing their body to actresses, media figures, athletes and
models (refer to Figure 9).
Interestingly, significantly more women aged 65 years and older were least likely to compare their
body to others, with 54% of this age group reporting that they do not compare their body to
other people’s bodies (p<0.0001).
19
0 20% 40% 60% 80% 100%
Figure 8. Agreement with appearance statements
I like my looks just
the way they are
I don’t care what people think
about my appearance
83%
40%
21%
Before going out in public
I always notice how I look
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Jean Hailes
Women’s Health Survey 2016
Biggest influence on body image
Women were asked about the biggest influence on their body image. Over two thirds (77%) of
women stated that their own perception was the biggest influence (refer to Figure 10). This was
common across all age groups.
20
Figure 9. Women compare their body to
0 10 20 30 40 50 60
Friends/family
Actresses
Media figures
(including social media)
Athletes
Models
% of women
Figure 10. Biggest influence on body image
0 10 20 30 40 50 60 70 80
My own perception
Media (including social media)
No influence
Pressure from partner
% of women
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Jean Hailes
Women’s Health Survey 2016
Younger women aged between 18-24 years also identified that the media (including social
media, magazines and television) was a big influence on their body image. This influence
decreased as women aged (refer to Figure 11).
3.3.2 Mental health statements
Women were asked about their agreement levels regarding statements about mental health
(refer to Table 9). More than one third of women nominated they felt ‘wound up’ and/or worried
a lot of the time or most of the time. With younger women, those aged 18-24 years were more
likely to report feeling ‘wound up’ and worried compared to those aged 65 years and older.
Mental health statement Not at all
From time
to time,
occasionally
A lot of
the time
Most of
the time
I feel tense or wound up 6% 58% 29% 7%
Worrying thoughts go
through my mind
6% 55% 29% 10%
I worry about what people
think of me
23% 56% 15% 6%
21
Table 9. Agreement level with mental health statements
65 years +
36 - 64 years
25 - 35 years
18 - 24 years
21% 16%
6% 6%
Figure 11. Media influence on body image
jeanhailes.org.au
Jean Hailes
Women’s Health Survey 2016
3.4	 Health checks and screening
Part 4 of the results section explores health checks and screening.
3.4.1	 Annual number of visits
On average women reported visiting the doctor 3-5 times per year. With only a small amount (4%)
not visiting the doctor at all in the last 12 months.
The most common reasons why women visited their doctor was for health checks, including pap
smears (28%), prescriptions (10%) and for treating chronic pain (8%).
3.4.2	 Discussing health with health professionals
Confidence levels of women
Overall most women (80%) felt confident to ask their doctor questions and discuss health issues
that were of concern. Only a small group (8%) reported that they were not confident to ask
questions.
When asked whether they had spoken to their doctor about a range of health issues a small
group of women reported that they had ‘wanted to, however had not’ for issues including
memory (16%), bowel health (14%), weight management (13%), mental health (13%) and diet/
nutrition (13%).
Difficult health topics to discuss
Health professionals were asked to identify health topics that their female patients found difficult
to discuss. The majority of health professionals reported family violence (87%), followed by painful
sex (78%) and sexual health problems (69%) as health topics that their female patients found
difficult to discuss.
22
Sexually transmitted infections (STIs)
Anxiety and worry
Depression
Vulval irritation
Sex
Painful sex
Family violence87%
78%
69%
59%
55%
53%
45%
Figure 12. Health topics women find difficult to discuss as reported by health professionals
jeanhailes.org.au
Jean Hailes
Women’s Health Survey 2016
3.4.3	 Health checks
Most women reported engaging in general health checks as well as pap screening, breast
screening and bowel screening. However, many women reported that they were not engaging in
sexual health screening.
Conclusion
This second annual survey reports on data that provide high level understanding of women’s
health information needs and gaps for both women and health professionals. Further analysis and
more detailed understanding of these results is currently underway to inform future resources and
programs to be developed by Jean Hailes for Women’s Health.
23
0 20 40 60 80 100
Don't know or NANoYes
Sexual health screen
Faecal occult blood test
Cervical cancer screening
Bowel cancer screening
Breast cancer screening
Skin checks
Mammogram
Blood sugars
Cholesterol
Pap smear
Blood pressure 90%
82%
70%
61%
60%
52%
49%
38%
29%
27%
20%
Figure 13. Engagement with health checks over the past five years
jeanhailes.org.au
Jean Hailes
Women’s Health Survey 2016
References
1.	 Dieng M, Trevena L, Turner RM, Wadolowski M, McCaffery K. What Australian women want and when
they want it: cervical screening testing preferences, decision-making styles and information needs.
Health Expectations. 2013;16(2):177-88.
2.	 McCaffery K, Irwig L. Australian women’s needs and preferences for information about human
papillomavirus in cervical screening. Journal of Medical Screening. 2005;12(3):134-41.
3.	 Avery JC, Braunack-Mayer AJ. The information needs of women diagnosed with Polycystic Ovarian
Syndrome--implications for treatment and health outcomes. BMC Women’s Health. 2007;7:9.
4.	 Harrison DE, Galloway S, Graydon JE, Palmer-Wickham S, Rich-van der Bij L. Information needs and
preference for information of women with breast cancer over a first course of radiation therapy. Patient
Education And Counseling. 1999;38(3):217-25.
5.	 Paisley J, Brown CM, Greenberg M. Information needs of women at risk of breast cancer. Canadian
Journal Of Dietetic Practice And Research: A Publication Of Dietitians Of Canada = Revue Canadienne
De La Pratique Et De La Recherche En Diététique: Une Publication Des Diététistes Du Canada.
2008;69(2):59-64.
6.	 Prandl KJ, Rooney R, Bishop BJ. Mental health of Australian Aboriginal women during pregnancy:
identifying the gaps. Arch Womens Ment Health. 2012;15(3):149-54.
7.	 Feldman S, Byles J, Mishra G, Powers J. The health and social needs of recently widowed older women
in Australia. Australasian Journal on Ageing. 2002;21(3):135.
8.	 Ellis IK, Skinner TC, Bhana A, Voon N, Longley K. Health priorities in an Australian mining town: an
intercept survey. Rural Remote Health. 2014;14:2788.
9.	 Weisman CS, Henderson JT. Managed care and women’s health: access, preventive services and
satisfaction. Women’s Health Issues. 2001;11(3):201-215.
10.	 Osborne RH, Batterham RW, Elsworth GR, Hawkins M, Buchbinder R 2013 ‘The grounded psychometric
development and initial validation of the Health Literacy Questionnaire (HLQ)’, BMC Public Health, Vol.
13 No. 658
11.	 Craig CL, Marshall AL, Sjostrom M, Bauman AE, Booth ML, Ainsworth BE, Pratt M, Ekelund U, Yngve A,
Sallis JF, Oja P 2003 ‘International Physical Activity Questionnaire: 12-Country Reliability and Validity’,
Med. Sci. Sports Exerc., Vol. 35, No. 8, pp. 1381–1395,
12.	 Zigmond AS, Snaith RP 1983 ‘The hospital anxiety and depression scale’, Acta Psychiatr Scand, Vol.6,
pp. 361–370.
13.	 Cash TF 1994 ‘Multidimensional Body Self relations Questionnaire: User’s Mannual. Norfolk Virginia’
Old Dominion University
14.	 Cash TF, Henry PE 1995 ‘Women’s body images: The results of a national survey in the USA’ Sex Roles,
Vol.33 pp. 19-28
15.	 Deeks A, Gibson-Helm, Paul E, Teede H 2011 ‘Is having polycystic ovary syndrome (PCOS) a predictor
of poor psychological function including anxiety and depression?’, Human Reproduction, Vol. 26, No.6
pp.1399-407.
16.	 Lombard C, Deeks A, Jolley D, Ball K, Teede H 2010 ‘A low intensity, community based lifestyle
programme to prevent weight gain in women with young children: a cluster randomised controlled
trial’, British Medical Journal, Vol. 13, No. 341, doi:10.1136/bmj.c3215.
17.	 Deeks A, Lombard C, Michelmore J, & Teede H 2009 ‘The effects of gender and age on health related
behaviour’, BMC: Public Health, Vol. 9, No.213.
24
jeanhailes.org.au
Jean Hailes
Women’s Health Survey 2016
Appendices
Appendix A: Summary statistics for specific groups
Summary statistics of women
Demographic descriptive statistics for women (age 18-88, n=3035)
Age (years) % State or Territory %
18 - 28 9 Australian Capital Territory 4
29 - 39 16 New South Wales 16
40 - 50 22 Northern Territory 1
51 - 61 29 Queensland 9
62 - 72 14 South Australia 4
73 - 88 2 Tasmania 3
No response 8 Victoria 57
Western Australia 5
No response 1
Summary statistics of health professionals
Demographic descriptive statistics of health professionals (n=201)
Health professional type % State or Territory %
General practitioner 25 Australian Capital Territory 3
Nurse 21 New South Wales 16
Naturopath 12 Northern Territory 3
Allied health 11 Queensland 12
Community health service 7 South Australia 1
Gynaecologist 1 Tasmania 2
Dietician 1 Victoria 33
Pscychologist 1 Western Australia 6
No response 23 No response 24
25
Table A1. Age of women
Table A3. Type of health professional
Table A2. Location of women by state/territory
Table A4. Location of health professional by state/territory
jeanhailes.org.au
Jean Hailes
Women’s Health Survey 2016
Appendix B: Search strategy
Search strategy for literature review
Search terms
Australia women “health needs”
“health information” need(s)
“health information” need(s) women
“health information” gap
“health information” gap women
health concerns women
health worries women
women health want
“health professional “ or “health provider” knowledge patient need
understand patient barriers
understand patient health need
Databases searched
MEDLINE complete, ScienceDirect, Masterfile Premier, Academic
Table B1. Groups of terms used during database searches
26

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JeanHailes_WomensHealthSurvey2016_Report

  • 1. Jean Hailes Women’s Health Survey 2016 Understanding health information needs and health behaviours of women in Australia 5-9 September 2016
  • 2. jeanhailes.org.au Jean Hailes Women’s Health Survey 2016 Acknowledgements Acknowledgement and thanks go to the following people and organisations: Baker IDI, BHC, Bupa, Dairy Australia, GMHBA, Harris Scarfe, HealthDirect, Healthlogix, Kaya Health Clubs, Medibank, Mishfit, Monash University (SPHPM), National Australia Bank, Oh My Goodness, Optus and PwC for their involvement in survey dissemination and Hau Nguyen at Monash University, Melbourne Australia for her contribution and research expertise. If you would like further information on this report please email whw@jeanhailes.org.au or call (03) 9903 8999 or toll free 1800 532 642. 2
  • 3. jeanhailes.org.au Jean Hailes Women’s Health Survey 2016 Table of Contents Summary of key findings 4 Health concerns and information needs........................................................................................4 Healthy living..................................................................................................................................5 Mental health.................................................................................................................................5 Health checks and screening..........................................................................................................5 Main report 6 1. Introduction............................................................................................................................6 1.1 About Jean Hailes for Women’s Health.......................................................................6 1.2 Translation....................................................................................................................6 1.3 Why the need for a national women’s health survey in Australia?...............................7 1.4 Why focus on gaps?.....................................................................................................7 2. Survey methodology..............................................................................................................8 2.1 The survey....................................................................................................................8 2.2 Ethics............................................................................................................................8 2.3 Recruitment..................................................................................................................8 2.4 Survey participants.......................................................................................................9 3. Survey results.......................................................................................................................10 3.1 Health concerns and information needs....................................................................10 3.1.1 Health concerns........................................................................................................ 10 3.1.2 Health information need.......................................................................................... 11 3.1.3 Ease of access and trustworthiness of health information.................................... 14 3.1.4 Provision of health information to women............................................................. 15 3.2 Healthy living..............................................................................................................16 3.2.1 How do women rate their overall health?.............................................................. 16 3.2.2 Weight management............................................................................................... 16 3.2.3 Physical activity......................................................................................................... 17 3.2.4 Sedentary behaviour................................................................................................ 18 3.2.5 Healthy lifestyle barriers........................................................................................... 18 3.3 Mental health.............................................................................................................18 3.3.1 Body image............................................................................................................... 18 3.3.2 Mental health statements........................................................................................ 21 3.4 Health checks and screening......................................................................................22 3.4.1 Annual number of visits............................................................................................ 22 3.4.2 Discussing health with health professionals........................................................... 22 3.4.3 Health checks............................................................................................................ 23 Conclusion....................................................................................................................................23 References....................................................................................................................................24 Appendices..................................................................................................................................25 Appendix A: Summary statistics for specific groups 25 Appendix B: Search strategy 26 3
  • 4. Jean Hailes Women’s Health Survey 2016 jeanhailes.org.au Summary of key findings In 2016, Jean Hailes for Women’s Health conducted the second annual Women’s Health Survey to understand the health information needs and behaviours of women living in Australia. Both women and health professionals were asked to complete an online survey. The survey set out to explore the health information needs of women and also identify trends in health behaviours, body image, mental health and health screening behaviours. The survey had three main objectives: nn to examine perceived gaps in women’s health information as identified by women and health professionals oo to understand future health needs of women living in Australia as identified by women and health professionals pp to explore and describe trends in women’s health behaviours focusing on diet, exercise, mental health, body image and health screening behaviours identified by women Women’s Health Week The findings of this survey are launched as part of Jean Hailes Women’s Health Week 2016 and have an important role in Jean Hailes’ commitment to improving physical and emotional health and wellbeing in all women across Australia. The Jean Hailes WHW, now in its fourth year, is a week dedicated to improving knowledge and understanding of women’s health. Taking place in the first week of September each year, it is a free online event where women can focus on their health, learn about different aspects of their health and take action if they need to. Women’s health events are also held around Australia each year as part of the week, supported by resources from Jean Hailes. Key findings The 2016 Jean Hailes Women’s Health Survey was a national survey of 3236 women and health professionals of differing ages, cultural backgrounds and from a range of metropolitan, regional, rural and remote locations across Australia. Key findings are outlined below. Health concerns and information needs • Women reported five main health concerns. These health concerns included weight management, female-specific cancers, mental and emotional health, menopause and chronic pain. • Nearly half of all women reported that they wanted more information on healthy eating and nutrition. Women also reported they wanted more information on mental health, weight management and memory. • Women residing in metropolitan locations reported different health information needs to women in regional and rural Australia. 4
  • 5. Jean Hailes Women’s Health Survey 2016 jeanhailes.org.au Healthy living • Women that responded to the survey appear to be in good health and are mostly invested in doing the right thing for their health. • Weight management was reported as the top health concern for women. • Over half of all women self-reported their health as ‘good’ to ‘very good’. • Over half of all women reported that they had not tried to lose weight by fasting or going on crash diets in the last 12 months. • On average, women reported that they engaged in moderate physical activity 3.5 days per week. On these days women reported on average 1.3 hours per day of moderate physical activity. • Women reported on average 6.4 hours per day of sedentary behaviour. • Health professionals believed lack of time and health not being a priority for women were the biggest barriers to implementing positive health changes. Mental health • Over half of all women reported that they are most likely to compare their body to family and friends as opposed to comparing their bodies to models, athletes, media figures and/or actresses. • Women were asked about the biggest influence on their body image. Over two thirds of women stated that their own perception was the biggest influence. • Over one third of women stated they felt ‘wound up’ and/or worried a lot of the time or most of the time. • Women aged 18-24 years were more likely to report feeling ‘wound up’ and worried compared to those aged 65+ years. Health checks and screening • On average women visited the doctor 3-5 times per year, with only a small number of women not visiting the doctor at all in the last 12 months. • Most women felt confident to ask their doctor questions and discuss health issues that were of concern. Only a small group reported that they were not confident to ask questions. • Health professionals reported family violence, followed by painful sex and sexual health problems as health topics that their female patients found difficult to discuss. • Most women reported engaging in general health checks as well as pap screening, breast screening and bowel screening. However, many women reported that they were not engaging in sexual health screening for STIs. 5
  • 6. jeanhailes.org.au Jean Hailes Women’s Health Survey 2016 Main report 1.Introduction This year marks the second year that Jean Hailes has conducted the Jean Hailes Women’s Health Survey to examine the health information needs of women and also identify trends in health behaviours, mental health and health screening. The findings of this survey are launched as part of the Jean Hailes Women’s Health Week 2016 and have an important role in Jean Hailes’ commitment to improving physical and emotional health and wellbeing in all women across Australia. This includes understanding the gaps in women’s health for women and their health professionals as well as being able to inform policy and the conversation with multiple stakeholders around the important health issues for women. 1.1 About Jean Hailes for Women’s Health Founded in 1992, Jean Hailes for Women’s Health reflects the enduring legacy that Dr Jean Hailes made to women’s health. Jean had a far-sighted vision to improve the quality of women’s lives and give them practical information based on the best available evidence. In 1971 Jean established the first clinic in Australia dedicated to the management of women at midlife and beyond. Following her death in 1988, her colleagues and friends established the Jean Hailes Foundation to honour her memory. Jean Hailes for Women’s Health is a national not-for-profit organisation based in Victoria. Jean Hailes was created to provide women with information, knowledge and clinical care to assist them to actively manage their own health and wellbeing throughout the whole of their life. Dedicated to the prevention of illness and improving women’s knowledge and understanding of important health issues from adolescence to midlife and beyond, Jean Hailes translates the latest scientific and medical evidence in order to inspire positive change in women’s health and wellbeing. In addition, the organisation has become a leading entity for the provision of evidence-based women’s health knowledge for government, business and multiple health organisations. We have a 23 year history of successfully working with women, their families, health professionals, research groups and policy makers and are regarded throughout Australia as a leader in women’s healthcare. Our mission is to be the go to place for women’s health. 1.2 Translation The best outcome for women and their families is when complex evidence and information is converted into easy to understand practical resources and tools ensuring women have the confidence to make decisions about their health in partnership with their doctor. We call this ‘translation’. Jean Hailes are experts in translation. The Jean Hailes Model of Translation is the process of converting research, evidence, knowledge and clinical care into information and education resources and programs to meet the needs of diverse audiences, including women, health professionals, policy makers, other researchers and community groups. The first step in this process of translation is to identify gaps that exist in women’s health research, clinical care 6
  • 7. jeanhailes.org.au Jean Hailes Women’s Health Survey 2016 and education. 1.3 Why the need for a national women’s health survey in Australia? In 2015, Jean Hailes identified a significant gap in Australian literature on women’s health information needs. Many past studies of women’s health information were limited by their focus on specific disease areas, specific sample groups and had been limited to certain age categories or were conducted overseas. Surprisingly, few studies consulted with women and health professionals at a national level about health concerns and health information needs of women living in Australia, across the life course and from multiple regions across Australia. For example, past studies of information needs have been conducted in women with cervical cancer and human papillomavirus infection(1, 2) polycystic ovary syndrome (PCOS)(3) and breast cancer(4, 5) or have focused on the health of a particular cohort such as pregnant women(6) , widowed women(7) , women in Australian mining towns(8) , or focused on overseas experiences(9) . There was a significant gap in consulting Australian women across the life course and health professionals at a national level. This year marks the second year that Jean Hailes has conducted the Jean Hailes Women’s Health Survey, forming part of our ongoing assessment and analysis of health information needs of women and health professionals at a national level. 1.4 Why focus on gaps? By focusing on gaps where limited effective information and/or resources currently exist in Australia, Jean Hailes aims to give women, community organisations, health professionals, government, and employers of women the knowledge and understanding of women’s health needs in areas that are often little understood and potentially require strategy and resources. At Jean Hailes we especially seek to quantify the ‘high impact gaps’ in the health and wellbeing of Australian women; that is, the most important questions which have high clinical relevance. We have a history of identifying gaps in women’s health knowledge and care across the lifespan including menopause, premature menopause, PCOS, anxiety, women and heart health and endometriosis. The results of this survey will be used to inform the further understanding of gaps in women’ health in Australia and provide a focus for the next steps to improving knowledge, access and health behaviours for women, their families and the community. We know that women are often the educators and gatekeepers of health in the family so any work we do has far reaching impact into the community as a whole as well. 7
  • 8. jeanhailes.org.au Jean Hailes Women’s Health Survey 2016 2. Survey methodology 2.1 The survey The 2016 Jean Hailes Women’s Health Survey had three main objectives: nn Examine perceived gaps in women’s health information as identified by women and health professionals. oo Understand future health needs of women living in Australia as identified by women and health professionals. pp Explore and describe trends in women’s health behaviours focusing on diet, exercise, mental health and health screening behaviours as identified by women. To explore health information needs and trends in health behaviours, women and health professionals across Australia were asked to complete a short online survey. Two separate online surveys were designed for women and health professionals by the Jean Hailes Translation, Education and Communication Unit consisting of experts in psychology, health behaviour change, health promotion and public health. Questions were derived based on a literature review, validated questionnaires(10-14) and previous work conducted by Jean Hailes on health- related behaviours(15-17) . The draft surveys were then distributed for consultation and further development to Jean Hailes clinicians and staff. The two surveys invited women and health professionals to comment on unmet health information needs, health concerns, trends in health behaviours, diet, exercise, body image, mental health and health screening behaviours. This year’s online survey included 18 questions for women and 5 questions for health professionals. While the majority of surveys were completed online, survey material was also made available in hardcopy. 2.2 Ethics The study was approved by Bellberry Human Research Ethics Committee. All women and health professionals who participated gave consent by opting to click ‘next’ after reading the plain language statement online. 2.3 Recruitment Participants were recruited through established Jean Hailes communication channels and community partners. Invitations to participate, accompanied by links to the survey, were published through the Jean Hailes website, social media and email updates. A diverse range of national community partners including airlines, banking, health, retail and mining corporations promoted and disseminated the survey link Australia-wide. Women were considered eligible for the study if they were aged 18 years or older, were able to access the online survey or were able to sit with a translator and complete the survey. The survey was designed to be accessible to participants with varying levels of health literacy. 8
  • 9. jeanhailes.org.au Jean Hailes Women’s Health Survey 2016 2.4 Survey participants A total of 3236 individuals, including consumers and health professionals, completed the online surveys nationally over a three month period from February to early May 2016. The survey reached all states and territories, as well as socio-economically diverse communities (See Figure 1). 3035 women nationally completed the online survey. Respondents were aged between 18- 88 years with an average age of 48 years. One third of respondents (31%) resided in regional or remote Australia, 5% (n=172) identified as having a culturally and linguistically diverse background and 2% (n=48) identified as Aboriginal or Torres Strait Islander. In addition, 201 health professionals from across Australia completed the online survey for health professionals. A diverse range of health professionals participated including: general practitioners (25%), nurses (21%), naturopaths (12%), community and allied health services (14%). One third (33%) of health professionals worked in regional or remote Australia. Further demographics, including a breakdown of location of both women and health professionals, can be found in Appendix A. Figure 1. Location of survey participants across Australia (n=3236) 9
  • 10. jeanhailes.org.au Jean Hailes Women’s Health Survey 2016 3. Survey results 3.1 Health concerns and information needs Part 1 of the results section explores health concerns and health information needs reported by women and health professionals. 3.1.1 Health concerns As reported by all women The top five health concerns women reported were: 1. weight management (23%), specifically weight gain 2. cancer (17%) such as breast cancer, ovarian cancer and skin cancer 3. mental and emotional health, in particular anxiety and depression (15%) 4. menopause (9%) 5. chronic pain (8%) Figure 2. Top five health concerns of women 23% 17% 15% 9% 8% Weight management Cancer Mental & emotional health Menopause Chronic pain 10
  • 11. jeanhailes.org.au Jean Hailes Women’s Health Survey 2016 As reported by health professionals Health professionals similarly reported that women worry about mental health, menopause, weight and female specific cancers. Additionally, health professionals also reported that many women worry about fertility. The top five health concerns of women, as reported by health professionals, are: 1. mental and emotional health, in particular anxiety and depression (28%) 2. menopause (27%) 3. weight (25%) 4. breast cancer (17%) 5. fertility (16%) 3.1.2 Health information need As reported by all women Nearly half of all women across Australia reported that they wanted more information on healthy eating and nutrition. Women also reported they wanted more information on mental health, weight management and memory (refer to Figure 3). Bowel health Depression Menopause Natural therapies and supplements Memory Weight management Anxiety and worry Healthy eating and nutrition 46% 48% 45% 36% 34% 33% 30% 29% Figure 3. Top eight health topics women indicated they want more information about 11
  • 12. jeanhailes.org.au Jean Hailes Women’s Health Survey 2016 Metropolitan women compared to women residing in regional and rural Australia The health information needs of women residing in metropolitan locations do differ from those in regional and rural Australia. Women in metropolitan locations want more information on mental health, menopause, periods, polycystic ovary syndrome and endometriosis, whilst women in regional and rural areas want more information on bone health, memory and how to manage blood pressure and cholesterol (refer to Table 1). Health topics % of metropolitan women who want more information % of regional and rural women who want more information 1. Anxiety and worry 49 41 2. Bone health 25 31 3. Endometriosis 12 8 4. Blood pressure management 15 21 5. Cholesterol management 18 24 6. Memory 35 41 7. Menopause 36 30 8. Periods 13 9 9. Polycystic ovary syndrome 12 8 As reported by health professionals Over 80% of health professionals reported that women in Australia needed more information on vulval irritation and painful sex. Interestingly, only small numbers of women reported needing more information on these health topics. Health professionals also identified memory, endometriosis, polycystic ovary syndrome, family violence, ovarian cancer and natural therapies as health topics which women need more information on (refer to Figure 4). Table 1. Metropolitan, regional and rural health information needs of women. All differences reported are statistically significant with a pp value of <0.05 12
  • 13. jeanhailes.org.au Jean Hailes Women’s Health Survey 2016 When looking at areas of health information that are currently being met, health professionals believed women had adequate information on breast health, physical activity, periods, contraception and healthy eating/nutrition. Health topics health professionals want more information on Health professionals also identified health topics they need more information. Over half reported they need more information on natural therapies, family violence, painful sex and vulval irritation (refer to Figure 5). Endometriosis Ovarian cancer Sex Memory Vulval irritation Painful sex Family violence Natural therapies and supplements 58% 59% 56% 51% 49% 43% 38% 37% Figure 5. Eight health topics health professionals want more information on 13 Natural therapies and supplements Ovarian cancer Family violence Polycystic ovary syndrome Endometriosis Memory Painful sex Vulval irritation 82% 84% 78% 76% 75% 74% 74% 70% Figure 4. Health topics health professionals perceive women need more information about
  • 14. jeanhailes.org.au Jean Hailes Women’s Health Survey 2016 3.1.3 Ease of access and trustworthiness of health information Women are most likely to access health information from health professionals and internet searches and are least likely to access health information from social media and commercial organisations (refer to Table 2). Women reported that they are most likely to trust health information from health professionals and independent health organisations (such as Jean Hailes and the Cancer Council). Social media and commercial organisations were identified as the least trustworthy source of health information by women (refer to Table 3). Information source Ranking (1 = most likely, 7 = least likely) Health professionals (GP, specialist, allied health, nurse) 1 Internet search (eg Google) 2 Government websites 3 Independent health organisation (Jean Hailes, Cancer Council, etc.) 4 Health information pamphlets 5 Commercial organisations 6 Social media (eg Facebook, Twitter, Instagram) 7 Information source Ranking (1 = most trustworthy 7 = least trustworthy) Health professionals (GP, specialist, allied health, nurse) 1 Independent health organisation (Jean Hailes, Cancer Council, etc) 2 Government websites 3 Health information pamphlets 4 Internet search (Google) 5 Commercial organisations 6 Social media (eg Facebook, Twitter, Instagram) 7 Table 3. Ranking of health information sources from most trustworthy to least trustworthy, by women 14 Table 2. Ranking of health information sources from most likely to least likely to access, by women
  • 15. jeanhailes.org.au Jean Hailes Women’s Health Survey 2016 3.1.4 Provision of health information to women Health professionals were asked a different question to women in relation to provision of health information; health professionals were asked about the easiest way to get health information to provide to their patients/clients. Health professionals reported getting information from internet searches, other health professionals, independent health organisations (such as Jean Hailes and the Cancer Council) as well as government health websites (refer to Table 4). Similarly, they also reported that information from other health professionals, independent health organisations (such as Jean Hailes and the Cancer Council) and government health websites were all trustworthy and they believed these were good sources of information for their patients/ clients. Health professionals ranked the trustworthiness of information sources similar to that of consumers (refer to Table 5). Information source Ranking (1 = most likely, 7 = least likely) Internet search (eg Google) 1 Health professionals (GP, specialist, allied health, nurse) 2 Independent health organisation (Jean Hailes, Cancer Council etc) 3 Government websites 4 Health information pamphlets 5 Social media (eg Facebook, Twitter, Instagram) 6 Corporate organisations 7 Information source Ranking (1 = most trustworthy 7 = least trustworthy) Health professionals (GP, specialist, allied health, nurse) 1 Independent health organisation (Jean Hailes, Cancer Council etc) 2 Government websites 3 Health information pamphlets 4 Internet search (eg Google) 5 Corporate organisations 6 Social media (eg Facebook, Twitter, Instagram) 7 Table 5. Health information sources ranked by health professionals from most to least trustworthy 15 Table 4. Easiest way for health professionals to get health information to provide to patients/clients. Ranked from most likely to least likely to access.
  • 16. jeanhailes.org.au Jean Hailes Women’s Health Survey 2016 3.2 Healthy living Part 2 of the results section explores healthy living including weight, physical activity and sedentary behaviour. Many of the respondents to the survey appeared to value their health and practised many positive health behaviours. 3.2.1 How do women rate their overall health? When asked the question ‘how would you rate your overall health?’ over 70% of women self-reported their health as ‘good’ to ‘very good’. Most women also agreed with the health statement good health is an important aspect in their life and many women made an effort to eat a balanced and nutritious diet (refer to Table 6). Health statement % agreement Good health is one of the most important things in my life 93 I make an effort to eat a balanced and nutritious diet 88 I am aware of small changes in my physical health 83 Being physically active is a priority in my life 70 3.2.2 Weight management Women were asked whether in the past 12 months they have tried to lose weight by fasting or going on crash diets. It was interesting to note that more than half (59%) reported that they had not tried to lose weight by fasting or crash dieting in the last 12 months (refer to Figure 7). A small minority of women reported that they engaged in this behaviour ‘often’ or ‘very often’ (8%). This was a trend across all age groups. As crash diets are not a healthy weight management practise, it would be helpful to examine these women in further studies. Table 6. Agreement with health statements 16 rated their health as rated their health as Figure 6. Percentage of women that rated their health as good or very good 39% 31% good very good
  • 17. jeanhailes.org.au Jean Hailes Women’s Health Survey 2016 3.2.3 Physical activity Days per week On average, women reported that they engaged in moderate physical activity 3.5 days per week. Hours per day On these days women reported on average 1.3 hours per day of moderate physical activity. Interestingly, women aged over 65 reported the highest level of physical activity, and those aged between 25-35 years, the lowest level of physical activity (refer to Table 7). Age group Hours per day 18 - 24 years 1.4 25 - 35 years 1.1 36 - 64 years 1.3 65 years + 1.6 The days and hours of physical activity reported by women meet current guidelines. The current Australian physical activity guidelines for adults between 16-64 years is to be active on most days of the week and accumulate 2.5–5 hours of moderate intensity physical activity each week. Table 7. Hours of physical activity be age group per day 17 0 10% 20% 30% 40% 50% 60% Never Rarely Sometimes Often Very often % of women Figure 7. Reported diet behaviour in the last 12 months
  • 18. jeanhailes.org.au Jean Hailes Women’s Health Survey 2016 3.2.4 Sedentary behaviour Women were asked about their sedentary behaviours in the last 7 days. This included time spent sitting, reading, or lying down. Current research highlights that long periods of sedentary behaviour (over 5 hours) is associated with poorer health outcomes, including an increased risk of type 2 diabetes. Women reported on average 6.4 hours per day of sedentary behaviour. This puts the majority of women who participated in the survey over the recommended number of hours for sedentary behaviour. 3.2.5 Healthy lifestyle barriers Health professionals’ perspective: Health professionals were asked about barriers to women implementing positive health changes and they believed lack of time (29%) and health not being a priority for women (22%) were the biggest barriers. However, health professionals also believed a significant barrier to implementing positive health changes was that women lacked motivation (refer to Table 8). Barrier % 1. Lack of time 29 2. Health is not a priority 22 3. Lack of motivation 12 4. Lack of money 9 5. Health literacy 7 6. Lack of confidence 5 7. Unsupportive partner/family 3 8. Lack of childcare 2 3.3 Mental health Part 3 of the results section explores mental health which includes body image, and worry. 3.3.1 Body image Body image statements Women were asked about their agreement levels regarding statements about their body image (refer to Figure 8). Interestingly, most women agreed with the statement ‘before going out in public I always notice how I look’ less than half agreed with the statement ‘I like my looks just the way they are’, indicating that many women were unhappy with an aspect of their appearance and body image. 18 Table 8. Top eight barriers to women maintaining a healthy lifestyle as reported by health professionals
  • 19. jeanhailes.org.au Jean Hailes Women’s Health Survey 2016 Who women compare their body to Women were also asked about who they compare their body to. Over half the women (57%) reported that they compare their body to family and friends. This was evident across all age groups. Women also reported comparing their body to actresses, media figures, athletes and models (refer to Figure 9). Interestingly, significantly more women aged 65 years and older were least likely to compare their body to others, with 54% of this age group reporting that they do not compare their body to other people’s bodies (p<0.0001). 19 0 20% 40% 60% 80% 100% Figure 8. Agreement with appearance statements I like my looks just the way they are I don’t care what people think about my appearance 83% 40% 21% Before going out in public I always notice how I look
  • 20. jeanhailes.org.au Jean Hailes Women’s Health Survey 2016 Biggest influence on body image Women were asked about the biggest influence on their body image. Over two thirds (77%) of women stated that their own perception was the biggest influence (refer to Figure 10). This was common across all age groups. 20 Figure 9. Women compare their body to 0 10 20 30 40 50 60 Friends/family Actresses Media figures (including social media) Athletes Models % of women Figure 10. Biggest influence on body image 0 10 20 30 40 50 60 70 80 My own perception Media (including social media) No influence Pressure from partner % of women
  • 21. jeanhailes.org.au Jean Hailes Women’s Health Survey 2016 Younger women aged between 18-24 years also identified that the media (including social media, magazines and television) was a big influence on their body image. This influence decreased as women aged (refer to Figure 11). 3.3.2 Mental health statements Women were asked about their agreement levels regarding statements about mental health (refer to Table 9). More than one third of women nominated they felt ‘wound up’ and/or worried a lot of the time or most of the time. With younger women, those aged 18-24 years were more likely to report feeling ‘wound up’ and worried compared to those aged 65 years and older. Mental health statement Not at all From time to time, occasionally A lot of the time Most of the time I feel tense or wound up 6% 58% 29% 7% Worrying thoughts go through my mind 6% 55% 29% 10% I worry about what people think of me 23% 56% 15% 6% 21 Table 9. Agreement level with mental health statements 65 years + 36 - 64 years 25 - 35 years 18 - 24 years 21% 16% 6% 6% Figure 11. Media influence on body image
  • 22. jeanhailes.org.au Jean Hailes Women’s Health Survey 2016 3.4 Health checks and screening Part 4 of the results section explores health checks and screening. 3.4.1 Annual number of visits On average women reported visiting the doctor 3-5 times per year. With only a small amount (4%) not visiting the doctor at all in the last 12 months. The most common reasons why women visited their doctor was for health checks, including pap smears (28%), prescriptions (10%) and for treating chronic pain (8%). 3.4.2 Discussing health with health professionals Confidence levels of women Overall most women (80%) felt confident to ask their doctor questions and discuss health issues that were of concern. Only a small group (8%) reported that they were not confident to ask questions. When asked whether they had spoken to their doctor about a range of health issues a small group of women reported that they had ‘wanted to, however had not’ for issues including memory (16%), bowel health (14%), weight management (13%), mental health (13%) and diet/ nutrition (13%). Difficult health topics to discuss Health professionals were asked to identify health topics that their female patients found difficult to discuss. The majority of health professionals reported family violence (87%), followed by painful sex (78%) and sexual health problems (69%) as health topics that their female patients found difficult to discuss. 22 Sexually transmitted infections (STIs) Anxiety and worry Depression Vulval irritation Sex Painful sex Family violence87% 78% 69% 59% 55% 53% 45% Figure 12. Health topics women find difficult to discuss as reported by health professionals
  • 23. jeanhailes.org.au Jean Hailes Women’s Health Survey 2016 3.4.3 Health checks Most women reported engaging in general health checks as well as pap screening, breast screening and bowel screening. However, many women reported that they were not engaging in sexual health screening. Conclusion This second annual survey reports on data that provide high level understanding of women’s health information needs and gaps for both women and health professionals. Further analysis and more detailed understanding of these results is currently underway to inform future resources and programs to be developed by Jean Hailes for Women’s Health. 23 0 20 40 60 80 100 Don't know or NANoYes Sexual health screen Faecal occult blood test Cervical cancer screening Bowel cancer screening Breast cancer screening Skin checks Mammogram Blood sugars Cholesterol Pap smear Blood pressure 90% 82% 70% 61% 60% 52% 49% 38% 29% 27% 20% Figure 13. Engagement with health checks over the past five years
  • 24. jeanhailes.org.au Jean Hailes Women’s Health Survey 2016 References 1. Dieng M, Trevena L, Turner RM, Wadolowski M, McCaffery K. What Australian women want and when they want it: cervical screening testing preferences, decision-making styles and information needs. Health Expectations. 2013;16(2):177-88. 2. McCaffery K, Irwig L. Australian women’s needs and preferences for information about human papillomavirus in cervical screening. Journal of Medical Screening. 2005;12(3):134-41. 3. Avery JC, Braunack-Mayer AJ. The information needs of women diagnosed with Polycystic Ovarian Syndrome--implications for treatment and health outcomes. BMC Women’s Health. 2007;7:9. 4. Harrison DE, Galloway S, Graydon JE, Palmer-Wickham S, Rich-van der Bij L. Information needs and preference for information of women with breast cancer over a first course of radiation therapy. Patient Education And Counseling. 1999;38(3):217-25. 5. Paisley J, Brown CM, Greenberg M. Information needs of women at risk of breast cancer. Canadian Journal Of Dietetic Practice And Research: A Publication Of Dietitians Of Canada = Revue Canadienne De La Pratique Et De La Recherche En Diététique: Une Publication Des Diététistes Du Canada. 2008;69(2):59-64. 6. Prandl KJ, Rooney R, Bishop BJ. Mental health of Australian Aboriginal women during pregnancy: identifying the gaps. Arch Womens Ment Health. 2012;15(3):149-54. 7. Feldman S, Byles J, Mishra G, Powers J. The health and social needs of recently widowed older women in Australia. Australasian Journal on Ageing. 2002;21(3):135. 8. Ellis IK, Skinner TC, Bhana A, Voon N, Longley K. Health priorities in an Australian mining town: an intercept survey. Rural Remote Health. 2014;14:2788. 9. Weisman CS, Henderson JT. Managed care and women’s health: access, preventive services and satisfaction. Women’s Health Issues. 2001;11(3):201-215. 10. Osborne RH, Batterham RW, Elsworth GR, Hawkins M, Buchbinder R 2013 ‘The grounded psychometric development and initial validation of the Health Literacy Questionnaire (HLQ)’, BMC Public Health, Vol. 13 No. 658 11. Craig CL, Marshall AL, Sjostrom M, Bauman AE, Booth ML, Ainsworth BE, Pratt M, Ekelund U, Yngve A, Sallis JF, Oja P 2003 ‘International Physical Activity Questionnaire: 12-Country Reliability and Validity’, Med. Sci. Sports Exerc., Vol. 35, No. 8, pp. 1381–1395, 12. Zigmond AS, Snaith RP 1983 ‘The hospital anxiety and depression scale’, Acta Psychiatr Scand, Vol.6, pp. 361–370. 13. Cash TF 1994 ‘Multidimensional Body Self relations Questionnaire: User’s Mannual. Norfolk Virginia’ Old Dominion University 14. Cash TF, Henry PE 1995 ‘Women’s body images: The results of a national survey in the USA’ Sex Roles, Vol.33 pp. 19-28 15. Deeks A, Gibson-Helm, Paul E, Teede H 2011 ‘Is having polycystic ovary syndrome (PCOS) a predictor of poor psychological function including anxiety and depression?’, Human Reproduction, Vol. 26, No.6 pp.1399-407. 16. Lombard C, Deeks A, Jolley D, Ball K, Teede H 2010 ‘A low intensity, community based lifestyle programme to prevent weight gain in women with young children: a cluster randomised controlled trial’, British Medical Journal, Vol. 13, No. 341, doi:10.1136/bmj.c3215. 17. Deeks A, Lombard C, Michelmore J, & Teede H 2009 ‘The effects of gender and age on health related behaviour’, BMC: Public Health, Vol. 9, No.213. 24
  • 25. jeanhailes.org.au Jean Hailes Women’s Health Survey 2016 Appendices Appendix A: Summary statistics for specific groups Summary statistics of women Demographic descriptive statistics for women (age 18-88, n=3035) Age (years) % State or Territory % 18 - 28 9 Australian Capital Territory 4 29 - 39 16 New South Wales 16 40 - 50 22 Northern Territory 1 51 - 61 29 Queensland 9 62 - 72 14 South Australia 4 73 - 88 2 Tasmania 3 No response 8 Victoria 57 Western Australia 5 No response 1 Summary statistics of health professionals Demographic descriptive statistics of health professionals (n=201) Health professional type % State or Territory % General practitioner 25 Australian Capital Territory 3 Nurse 21 New South Wales 16 Naturopath 12 Northern Territory 3 Allied health 11 Queensland 12 Community health service 7 South Australia 1 Gynaecologist 1 Tasmania 2 Dietician 1 Victoria 33 Pscychologist 1 Western Australia 6 No response 23 No response 24 25 Table A1. Age of women Table A3. Type of health professional Table A2. Location of women by state/territory Table A4. Location of health professional by state/territory
  • 26. jeanhailes.org.au Jean Hailes Women’s Health Survey 2016 Appendix B: Search strategy Search strategy for literature review Search terms Australia women “health needs” “health information” need(s) “health information” need(s) women “health information” gap “health information” gap women health concerns women health worries women women health want “health professional “ or “health provider” knowledge patient need understand patient barriers understand patient health need Databases searched MEDLINE complete, ScienceDirect, Masterfile Premier, Academic Table B1. Groups of terms used during database searches 26