A061 Supporting people with Autism

1. Presented in
RI WORLD CONGRESS • 25–27 October 2O16
Edinburgh International Conference Centre, Scotland

2. • Indonesia, an archipelago country that extends from Sabang at the tip of northern Sumatra
Island to Merauke in Papua, with 17,504 islands, where only about 6,000 are inhabited.
• Culturally diverse: more than 300 ethnic groups
• A large populated country: 234 million people
• It lies geographically on the crossroad between the Pacific and the Indian oceans, and
bridges two continents, Asia and Australia.
• There are five main islands: Sumatra; Java; Kalimantan, two thirds of Borneo; Sulawesi; and
Papua
INTRODUCTION

3. 3
Constitution 1945
Act No 39/199 to protect the entire
Indonesian nation/
to secure the human rights
of all Indonesian citizens (nation)
same rights to obtain an education
Those who have any kind of
disabilities are eligible
for special education
everyone has the right to obtain
safe, quality & affordable
health services.
1
2
3
Disabilities/
non disabilities
Act No. 20 of 2003 on
National Education System
Act No. 36 of 2009 on Health
5
4
INTRODUCTION
Act No.8 of 2016 on
PwDs
General for the rights of PwDs

4. 4
Autism children
Complex
developmental
disorder
Communication
Social interaction
behavior
independent
Accurate
diagnosis
Appropriateeducation
treatment
Strongsupport
Autism School
Autism Clinic
Family and community
inclusiveness

5. 5
STEP OF APPROPRIATE EDUCATION
Individual
treatment
One On One
Early
Intervention
Transition
school
Special
school
Inclusion
School
• Ajusted curricula
• With or without shadow

6. 6
 Early Intervention
 Continously, Gradually & in accordance with the
child's development
A wide range of governance treatment
• Medical therapy
• Biomedical Intervention
• Applied Behaviour Analysis / ABA
• Sensory Integration Therapy
• Occupational Therapy
• Speech Therapy
• Physiotherapy
Principles of treatment

7. 7
Medical Therapy
To suppress certain symptoms: hyperactivity &
aggressiveness, improve communication, to respond to
the environment,
Eliminating the strange behavior and repeated.
Biomedical Therapy
To improve metabolism of children
; to clean the child's body from materials; to interfere
with the metabolism and the nervous system work
There are 3 parts biomedical therapy
• CFGF diet (casein free and gluten free)
• Make a food diary accompanied by laboratory
examination
• Reconstruction with the aim of a child to consume the
food as normal as possible with supplementation is
recommended based on the results of laboratory tests.

8. 8
BEHAVIOR THERAPY
The aims of behavior therapy is to reduce behavior
of the child that is unacceptable and replace it with
behavior which is acceptable by community
Behavior therapy is made by using applied behavior
analysis (ABA) that investigated by Ivar Lovaas and
the result published in 1987; that is:
• early intervention for 40 hours/week before
children reaching age 4 years
• goal of ABA system is for readiness of children in
learning with the concept of understanding
consequential, heed, comply with instructions and
copying

9. 9
Increasimg of
autism
Prevalence
Availability of
education &
health services
The rise
autism clinic &
school
the implementations are
different in wide range.
in accordance with the
perception & availability
of their resources,
including funds
Public demand
no policy
governing
education & the
health care for
autism
specifically.
Mitra
Ananda
Many request
to YPAC

10. 10
Rumah Autis
Anak Mandiri

11. Mitra Ananda
With limited funds, 2005
It has gradually developed towards an Education and Health
Care Center for children with autism so they can live
independently and productively.

12. 12
• We aspire that Mitra Ananda will
be able to contribute to help the
government in formulating policies
that are specific to the education
and care of children with autism, to
provide an opportunity for
researchers to do important
research which is needed and is a
reference for Autism schools and
clinics that exist in Indonesia.

13. 2015
VISION
To be an Autism Education and Health Service Center by the Year 2020
MISION
1. To improve Mitra Anda Capability to be an Autism Education Center
2. To improve Mitra Anda Capability to be an Autism Health Care Center
3. To improve Mitra Anda Capability to be a Research
and Develoment Autism Center

14. 1. Financial Management Improvement Strategy :
Goal: Implementation of the one gate financial management
system
2. Structure Organizational Improvement Strategy
Goal : Establishment of the organizational structure in
accordance with the expansion plan
3. Strategy of Management personnel fulfillment, Early stage
Goal: available manpower who have the ability according to
criteria
4. Strategy of Meeting the Needs of Education and health
personnel, Early stage
Goal: Availability of education and health personnel according
to the standard, Early stage
Strategy plan
Short-Term 2016

15. 5. Recruitment of prospective students & prospective
users of health care Srategy
Goal : increasing the number of students and users of
health care to 50%
6. Strategy Improvement Quality of Education and
Health Care, Early stage
Goal: Implementation of Education and Health Care
SOP
7. Fulfillment Strategy in amount, type and quality of
Education and Health Equipment, early stage
8. Monitoring and evaluation
Goal : the existence of Monitoring and Evaluation
Tool

16. 16
Medium-term
1. Fulfillment of work force management strategy, Advanced stage
Goal : Being filled all the positions in the organizational structure
according to the criteria
2. Strategy Meeting the Needs of Education personnel and health
personnel Sustainable
Goal: Availability of education and health personnel sustainable
3. Recruitment of prospective students and prospective users of
health services Srategy
Goal : an increasing number of students and users of health
services to 200%
4. Quality improvement of Education and health services, Early
stages
Goal: The application of SOP Education and Health services

17. 5. Partnership and Networking Strategy
Goal : MOU of cooperation with educational
institutions and Research institutions and
businesses inside and outside the country
6. Monitoring and evaluation Strategy
Goal : All activities monitored
7. Guidance and supervision Strategy
- Supervision of administration order
- Financial Supervision
Long-term
1. Maintenance of existing services
2. Development

18. • No matter how excellent the education & health
care facilities of the institution, an individual with
autism will not show a positive development, if
their family does not support and provide an
appropriate education for the their special family
member.

19. • This statement is proved by the case studies of Zaky and
Abhy, where the whole family, both parents and siblings
support all education efforts, at all time for independence

21. Support from Abhy family
• Applying the rules at home that should be followed by all
members of the family, so Abhy understand norms &
regulations
• Giving Abhy daily tasks that become obligations
• Help find a way if he finds difficulty in performing tasks of
social, academic by giving an example or divert to things
that are visual
• The provision of support also gives a challenge to acquire
the skills preferred
• Focus on his strengths and do not exaggerate on
shortcomings
• Involving in any family event and other social activities to
learn to deal with sensitivity to the crowd and encouraging
him to find ways to cope with their own business

23. • Support for Zaki will be presented by his mother
and his sibling
Thank You