Presentation delivered by Sharon Jeffreys at the 'Transforming care for learning disabilities' event on 19 July, 2016.

1. www.england.nhs.uk
Building the Right
Support for
Learning Disabilities
Turning improvement ideas into
local action
Kia Oval, Surrey County
Cricket Club, London
SE11 5SS
19 July 2016

2. Transforming Care in Lincolnshire:
Coproduction, Coproduction,
Coproduction
Sharon Jeffreys – Head Commissioning
of Learning Disabilities and Autism
Jo Minchin - Expert by Experience

3. True Co-production with those
with a lived experience
- Engaging with people who use the
services and their families and
carers to find out what works well
and what we need to do better
- Partnership Boards
- Expert by Experience Workers

4. Engaging with people who use the services and
their families and carers to find out what works
well and what we need to do better
What we did
• Sent all invites in easy read
• Put our photos on the
invites
• Held events all around the
county
• Different times of the day
Feedback from Events
• People felt like we really
wanted them to attend
• High turn out compared to
other engagement events
• People felt listened to
• People liked that we
smiled on our pictures 

5. The Re-launch of the Autism
Partnership Board – 30th January 2015

6. The Re-launch of the Autism
Partnership Board – 30th January 2015

7. The Launch of Lincolnshire's All-age Autism
Strategy – 2nd April 2015.
The theme was
creativity of people
with ASD

8. Status Cards

9. Making bigger meetings
autism friendly
Also known as flapplause.
Flap, don’t Clap.

10. Display Cards

11. Other reasonable adjustments
• Maps to, and of the venue.
• Consider lighting and background noise.
• Ask participants if there are things that
might cause a problem before the
meeting.
• One page profiles.
• Making the adjustments individualised.
• Match people to their strengths.

12. Expert by Experience worker
I work with other autistic people, in one work stream I do this on the Autism
Partnership Board (APB). I chair the A-team, collaboration group of autists and
parent carers of autistic people, and I don’t think that the group would thrive as
it does if it were not being steered by an autistic person. I can also be seen by
the members to be a valued part of a bigger team within service shaping and
commissioning. I am paid to do my role, that is noteworthy and valued deeply
by the other A-team members. I don’t have to convince them that I am on their
side, and they see that I do bring their views and concerns to those deeper
within the commissioning team.
My involvement in Care and Treatment
Reviews (CTRs) has been both useful for
the team and for the individuals the CTR
has been for. In some cases, I am the
only member of the team the individual
has wanted to talk to. I have the
experience of a disability, there is already
a shared understanding between us.

13. Transforming Care Team Recruitment
The interview panel process and any other
activity that is conducive to enhancing
positive images, results, maintenance and
other such elements in relation to autistic
people and essentially the entire
community, is wholly endorsed by myself
and it was an absolute pleasure to be given
the opportunity to provide authentic input.
Authentic input is integral to all elements
mentioned above and beyond because
autistic people are not hopeless,
motionless, un-impactful beings and
deserve to be majorly if not completely
involved in everything that concerns them
and others which is not to imply 'them' and
'us' but to confidently communicate that this
approach is for everyone's benefit.
Callum, expert by experience
panel.

14. Transforming Care Team Recruitment
It was vital that we knew how the panellists felt about
working with autistic people. One of the best ways to
do that is to actually see how they interact with us, and
deal with our sometimes quirky behaviour.
One of the panellists conducted most of his part of the
interview whilst lying on the floor behind some filing
cabinets. I spent much of it spinning thread on my
spindle, and the other panellist had some pressing
questions on an issue that he is campaigning about.
We all had something different and unique to bring to
the process, and we made a good team
It was interesting to see how people responded to our
question about how they felt about working with us.
Most responded with a carer / patient scenario,
whereas a few more enlightened ones started talking
about us as work colleagues. That was the answer we
were looking for, though we admit, it’s a very forward
thinking model at the moment. I wish it wasn’t.Jo: Expert by experience panel

15. Transforming Care Team Recruitment
I feel that it was a good opportunity to see what
kinds of people wanted these jobs, and to see
how well they
could set aside the jargon and formality in
exchange for frank communication.
I will say that the technical qualifications went
over my head. I could not possibly judge
whether someone is capable of doing
something I cannot. However, seeing how an
applicant dealt with one of their interviewers
lying on the floor was a useful test, I think. It is
a very comfy floor.
And, of course, the obvious: It's good to have at
least one autistic person involved at in
selecting someone who will have significant
influence over many other autistic people.Joshua: Expert by experience
panel

16. Any Questions?
www.lincolnshire.gov.ukLAPB
Sharon.Jeffreys@SouthWestLincolnshireCCG.nhs.uk
Jo.Minchin@SouthWestLincolnshireCCG.nhs.uk