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NHS
CANCER
                     NHS Improvement
                                Stroke


DIAGNOSTICS




HEART




LUNG




STROKE
              MIND
              THE
                GAP
                           TO

              WAYS
              ENHANCE
              THERAPY
                           IN




              PROVISION
              STROKE
              REHABILITATION
Acknowledgements
Authors:                                         With additional thanks for their support,
                                                 contributions and comments to:
Jill Lockhart, National Improvement Lead,
NHS Improvement - Stroke                         Professor A Rudd, Stroke Physician, Guy’s and
                                                 St Thomas’ Hospital
Ina James, Team Leader Physiotherapist, Stroke
Services, York Hospitals NHS Foundation Trust    Professor V Pomeroy, Professor of
                                                 Neurorehabilitation, University of East Anglia
Gail Linstead, Stroke Service Improvement
Manager, North of England Cardiovascular         National rehabilitation projects 2009-10
Network                                          Therapy Teams from Medway Healthcare and
                                                 York NHS Foundation Trust
With considerable thanks to the NHS
Improvement - Stroke Increasing Access to        Brighton Paradza, Senior Clinical Specialist
Therapy National Project Teams:                  Physiotherapist, Cardiothoracic Acute
                                                 Services, The James Cook University Hospital
Sheffield Teaching Hospitals NHS Foundation
Trust, Stroke Therapy Service                    Fiona Lunn, Nurse Consultant Stroke and the
                                                 Stroke Team at University Hospital of North
Sheffield Primary Care Trust Speech and          Staffordshire NHS Trust
Language Therapy Service into Sheffield
Teaching Hospitals NHS Foundation Trust

The Stroke Unit at St Thomas’ Hospital, Guys
and St Thomas’ NHS Foundation Trust

Newton Abbot Hospital Teign Ward and
Torbay and Southern Devon Care Trust Stroke
Therapy Team and Community Neurology
Service Team, South Devon

NHS Camden - stroke REDs team

The community stroke team in Blackburn
with Darwen, part of Lancashire Care NHS
Foundation Trust

South Tyneside NHS Foundation Trust
Physiotherapy Stroke Team

Stroke Rehabilitation Unit, St Bartholomew’s
Hospital, Rochester, Kent, Medway
Community Healthcare

Chesterfield Royal Hospital NHS Foundation
Trust Acute Stroke Unit Team
Mind the Gap: Ways to enhance therapy provision in stroke rehabilitation




Contents
4    Foreword
5    Executive summary
6    Introduction
8    National guidelines
10   Who can deliver more rehabilitation?
14   When - a seven day service?
17   How long - getting more out of the whole week?
22   Where can more therapy make a difference?
24   How - bridging the gap?
28   Conclusions
30   References
31   Case studies
32   NHS Camden – stroke REDs
     Improving access to 45 minutes of therapy for stroke patients
36   The community stroke team in Blackburn with Darwen,
     part of Lancashire Care NHS Foundation Trust
     Retrospective evaluation of therapy need and provision
37   Medway Community Healthcare Stroke Rehabilitation Unit,
     St Bartholomew’s Hospital, Rochester, Kent
     Improving access to 45 minutes of therapy for stroke patients
39   South Tyneside NHS Foundation Trust
     Increased stroke physiotherapy provision on stroke wards
40   Sheffield Teaching Hospitals NHS Foundation Trust
     Implementing seven day occupational and physiotherapy services for stroke
42   Sheffield Primary Care Trust and Sheffield Teaching Hospitals NHS Foundation Trust
     Sheffield stroke unit seven day working pilot for speech and language therapy
43   Chesterfield Royal Hospital NHS Foundation Trust
     Developing a seven day physiotherapy service on the acute stroke unit
44   Newton Abbot Hospital stroke unit with Torbay and Southern Devon Care Trust
     South Devon Stroke Services: Seven day working and 45 minutes of therapies
46   Guys and St Thomas’ NHS Foundation Trust
     Seven day service: Weekend rehabilitation support worker model
48   Stoke-on-Trent: University Hospital of North Staffordshire NHS Trust
49   Stakeholders




                                                                                                           3
Mind the Gap: Ways to enhance therapy provision in stroke rehabilitation




     Foreword
     One thing we have learnt from
     implementation of the National Stroke
     Strategy is that the NHS cannot be a
     Monday to Friday service any more for
     people who have had a stroke. The
     faster you act, the more of the person
     you save is the mantra for the medical
     emergency response, and increasingly,
     we are seeing this is what is needed
     for therapy services too.

     The NICE Quality Standards for Stroke
     gives therapists a standard to work to
     for the first time. This report gives you
     lots of ideas and methods to get
     started to make those standards a
     reality. It’s going to require hard work
     and soul searching to think carefully
     about what you do now and what can
     be changed and improved. I urge you
     to embrace this as a way to describe
     what you do and ensure it is valued by
     everyone.

     In a stroke team, rehabilitation is
     everyone's business. The teams
     featured in this report have learnt to
     share skills and to make rehabilitation
     the basis of the patient’s day.

     And that’s the key message. We must
     make sure the service works to meet
     the needs of the patient, not the
     other way around.


     Professor Sir Roger Boyle CBE




 4
Mind the Gap: Ways to enhance therapy provision in stroke rehabilitation




Executive summary
It is accepted that rehabilitation is an
essential part of the management and
treatment for stroke survivors -

“Rehabilitation after
stroke works. Specialist
co-ordinated rehabilitation,
started early after stroke and
provided with sufficient
intensity, reduces mortality
and long-term disability.”
National Stroke Strategy 2007


There is much diversity across the
shape, content and delivery of
rehabilitation and therapy services
across England and this presents a
challenge for both service
improvement and research.
                                           All patients can have a rest day if it is   Well organised and structured
This project explored some of the          appropriate, but it doesn’t always          additional therapy services, delivered
different models adopted by therapy        need to be Saturday or Sunday for           over more days of the week impact
services to deliver more therapy/          every patient. Seven day therapy            positively on patients and therapy
rehabilitation in the context of major     services enable equity of access and        delivery (frequency and intensity)
change within the NHS nationally and       the opportunity for patients to begin       across the whole week.
locally.                                   their treatment as early as possible.
                                           They support swifter multidisciplinary      This work has, arguably, only
This publication discusses their effect    team engagement and speedier                scratched the surface of the issue of
on patients, services and organisations,   progress, thereby capitalising on other     therapy availability, yet hopefully,
provides some useful learning to           improvements to the front part of the       provides useful ideas and insights.
inform the debate with further detail      stroke pathway. Meanwhile, seven day        Project teams have shown the benefit
about 45 minutes, process and              community stroke services can have          of applying systematic service
outcomes and asks further questions        more influence on hospital length of        improvement analyses to their
for therapy services to consider.          stay than weekend therapy inpatient         functioning, processes and patient
                                           services.                                   outcomes. To support further
The commonly emerging themes were                                                      development, more scientific research
how important it is to understand          Access to, and delivery of, 45 minutes      in this area is also crucial. It is worth
existing services fully by using           therapy, improved when seven day            noting that improved and efficient
accurate data and relevant data            services were available and following       services create an environment in
analysis, that managing human              demand and capacity activity analysis       which research can be better
dimensions is paramount with making        across the pathway. This improvement        facilitated and enabled, and an
such huge cultural changes within          brought different benefits reflecting       effective research culture within
therapy services and the need to           the service needs, patient stage of         clinical services enhances their ability
continue optimising workforce              recovery and their goals. All models        to care for their
combinations and work collectively         received very positive qualitative          patients.
along the pathway is essential to          feedback from patients regardless of
delivering effective responsive and        who delivered it.
timely services.




                                                                                                                                   5
Mind the Gap: Ways to enhance therapy provision in stroke rehabilitation




     Introduction
     There are many policy drivers for this
     project including the National Stroke
     Strategy (1), Royal College of
     Physicians (RCP) National Clinical
     Guidelines for Stroke (2), National
     Institute for Clinical Excellence (NICE)
     quality standards for stroke (3), and
     Care Quality Commission (CQC)
     report on stroke services (4).

     In addition, the requirement to
     improve quality and productivity to
     ensure services continue to meet
     demand within existing resources
     requires all services to review and
     maximise the use of their workforce.
     Therapy stroke services are facing
     increasing pressure as research
     suggests that their services deliver
     poorer outcomes, yet are better
     resourced than some European
     counterparts. (14) There is increasing
     pressure from commissioners to
     demonstrate the added value of
     specialist services, in comparison with
     generic ones.                              National standards set out the            Project teams also wanted to
                                                expectations; however, services are       understand more clearly which
     This can be viewed by therapists as a      struggling to work out how to             patients receive most therapy and why
     challenge to their services, or as an      implement them. This publication          this happens. The projects did not aim
     opportunity to examine practice            summarises some practical service         to examine the questions around ad
     objectively and pragmatically, gain a      delivery solutions and the ways in        hoc or formalised organisation of
     fuller understanding of how they can       which these “Mind the Gap”.               therapy services, whether more
     improve patient contact time and                                                     therapy improved clinical functional
     deliver higher quality rehabilitation      Process of the projects                   outcomes, or the nature of the clinical
     across the stroke pathway. This would      Aim                                       approaches and modalities used.
     enhance the significant changes that       The aim of this work was to:
     have already taken place in stroke care    • Look at the impact of different
     and positively embrace the culture           models that stroke services are using
     change required to deliver a                 to increase access to therapy and
     responsive, flexible, timely and             rehabilitation
     relevant therapy service for stroke        • Understand how to affect delivery
     survivors.                                   of national quality standards,
                                                  guidelines and aspirations for stroke
                                                  services
                                                • See if there were any changes to
                                                  treatment intensity or frequency,
                                                  length of stay and other outcomes.




 6
Mind the Gap: Ways to enhance therapy provision in stroke rehabilitation




Methodology                                This publication builds on the learning    • South Devon - A combined team
There were two project streams:            from project sites in the national           of therapists on the stroke
1. Delivering 45 minutes of                rehabilitation projects 2009-10 (25) by      rehabilitation unit at Newton Abbot
   therapy                                 further work with the nine project           Hospital, and community
2. Providing a seven day service.          sites involved in delivering seven day       neurology service
                                           or 45 minutes of therapy services. It is   • The NHS Camden - stroke REDs
There were nine project sites who          not presented as scientific research,        team
participated in the project from both      but service improvement work, with         • Community stroke team in
hospital and community                     measurement and comment                      Blackburn with Darwen,
environments.                              accordingly.                                 part of Lancashire Care NHS
                                                                                        Foundation Trust
Each site provided information on:         Observations are included from other       • South Tyneside NHS Foundation
• Population                               sites across stroke and wider therapy        Trust physiotherapy stroke team
• Numbers of stroke patients               services in England, and stroke            • Medway Community Healthcare,
  referred                                 therapy services in USA, Canada and          the staff on the stroke rehabilitation
• Type of service                          New Zealand. The publication includes        unit at St Bartholomew’s Hospital,
• Bed numbers (if applicable)              some of the research evidence and            Rochester, Kent
• Staffing                                 the results of a consultation with a       • Chesterfield Royal Hospital NHS
• Length of stay and/or functional         wide range of relevant stakeholders.         Foundation Trust acute stroke
  outcomes.                                                                             unit team.
                                           Project teams
Each site also collected data on           The organisations taking part in the       For ease of reading, teams will be
approximately 30 patients. The             projects were as follows:                  referred to by the emboldened titles
samples were not comparable and are                                                   above in the rest of the document.
only a snapshot of each site. Only one     • Sheffield therapy team, from the
site managed to collect data before          Sheffield Teaching Hospitals NHS
and after a change in service delivery       Foundation Trust
took place. The data included some or      • Sheffield speech and language
all of the following:                        therapy, from the Sheffield Primary
                                             Care Trust speech and language
• Admission to treatment                     service into Sheffield Teaching
• Frequency of treatment (i.e. how           Hospitals NHS Foundation Trust
  often or on how many days therapy        • The stroke unit at St Thomas’
  was given)                                 Hospital, Guys and St Thomas’ NHS
• Intensity of treatment (how long the       Foundation Trust
  treatment session was for)
• Therapist opinion on frequency and
  intensity required
• Reason for 45 minutes of therapy
  not being received
• Staff, patient and carer satisfaction.




                                                                                                                             7
Mind the Gap: Ways to enhance therapy provision in stroke rehabilitation




     National guidelines

      NATIONAL STROKE STRATEGY -                      QUALITY STANDARDS FOR
      DEPARTMENT OF HEALTH                            STROKE - NICE

      “People who have had strokes access             Quality Standard - 5
      high-quality rehabilitation and, with their     Patients with stroke are assessed and
      carer, receive support from stroke-skilled      managed by stroke nursing staff and at
      services as soon as possible after they         least one member of the specialist
      have a stroke, available in hospital,           rehabilitation team within 24 hours of
      immediately after transfer from hospital        admission to hospital, and by all relevant
      and for as long as they need it.” (Quality      members of the specialist rehabilitation
      Marker 10: High quality specialist              team within 72 hours, with documented
      rehabilitation)                                 multidisciplinary goals agreed within five
                                                      days.
      “Survival is strongly associated with
      processes of care… such as early                Quality Standard - 6
      mobilisation, early feeding and measures        Patients who need ongoing inpatient
      to prevent aspiration. Speech and               rehabilitation after completion of their
      language therapists, physiotherapists,          acute diagnosis and treatment are
      occupational therapists and dietitians          treated in a specialist stroke
      have specific contributions to make in          rehabilitation unit.
      delivering these particular aspects of
      care. The probable explanation for              Quality Standard - 7
      higher survival and lower                       Patients with stroke are offered a
      institutionalisation rates (on stroke units)    minimum of 45 minutes of each active
      are the significant differences in both         therapy that is required, for a minimum
      multidisciplinary team working – such as        of five days a week, at a level that
      early assessment, goal setting and              enables the patient to meet their
      discharge planning.” (Quality Marker 9:         rehabilitation goals for as long as they
      Treatment)                                      are continuing to benefit from the
                                                      therapy and are able to tolerate it.
      “Existing staffing numbers and skill mix
      profiles are insufficient to deliver the        Quality Standard -10
      required input in stroke care pathways.         All patients discharged from hospital
      Workforce review is therefore needed,           who have residual stroke-related
      along with a workforce plan that defines        problems are followed up within 72
      the care pathway, lists the functions at        hours by specialist stroke rehabilitation
      each stage and the competencies                 services for assessment and ongoing
      required to perform the functions, and          management.
      then ensures training is put in place to
      support staff to acquire the
      competencies. “ It recommends that
      services “consider new and more flexible
      roles (i.e. expanding roles across
      professional boundaries)” (Quality
      Marker 18: Leadership and skills)




 8
Mind the Gap: Ways to enhance therapy provision in stroke rehabilitation




NATIONAL CLINICAL GUIDELINE FOR
STROKE, THIRD EDITION – ROYAL
COLLEGE OF PHYSICIANS

A) Patients should undergo as much
   therapy appropriate to their needs as
   they are willing and able to tolerate
   and in the early stages they should
   receive a minimum of 45 minutes
   daily of each therapy that is required.

B) The team should promote the practice
   of skills gained in therapy into the
   patient’s daily routine in a consistent
   manner and patients should be
   enabled and encouraged to practice
   that activity as much as possible.

C) Therapy assistants may facilitate
   practice but should work under the
   guidance of a qualified therapist.

Further assessments can and should be
undertaken later, and this set of
recommendations focuses on those that
are important in the first 48 hours; to
identify major impairments that may not
be obvious but that may have an
influence on early management, guide
prognosis and draw attention to
immediate rehabilitation needs.

“All patients with any impairment at 24
hours should receive a full
multidisciplinary assessment using an
agreed procedure or protocol within five
working days, and this should be
documented in the notes”.




                                                                                                                  9
Mind the Gap: Ways to enhance therapy provision in stroke rehabilitation




  Who can deliver more rehabilitation?
  Flexibility and creativity about staffing   What the stakeholders say
                                                                                       KEY MESSAGES
  may be needed to deliver improved           The general consensus from the
  rehabilitation for stroke patients. This    stakeholders is that rehabilitation      • A flexible and creative
  section describes the different             assistants are a cost effective way of     approach to rostering can
  approaches the projects took, and the       ensuring that patients get a robust        gain support from a wider
  impact.                                     rehabilitation package, and may be         pool of appropriate staff to
                                              essential to meeting both 45 minutes       keep additional services
  What the evidence says                      and seven day therapy provision.           sustainable and enhance
  The NICE quality standards define           However services need to have              clinical skills for therapists
  therapy services as physiotherapy,          mechanisms in place to ensure that       • Weekend services that include
  occupational therapy, and speech and        these assistants have suitable             acute and community staff
  language therapy. Individual patients       supervision and support to maintain        can assist with a smoother
  may require treatment from other            the competencies required to follow        transfer of care experience for
  professionals such as clinical              professionally developed plans             patient and carers
  psychologists and dieticians. They are      effectively.                             • Additional rehabilitation
  relevant to all environments across the                                                provided by a therapy team
  pathway. (3) Royal College of               Other time consuming tasks such as         has more impact meeting
  Physician (RCP) Guidelines state that       completing outcome measures,               required standards than when
  therapy assistants may facilitate the       delivering equipment and some              it is delivered by suitably
  practice but should work under the          administrative tasks could be              trained nurses
  guidance of the qualified therapist. (2)    delegated to rehabilitation assistants   • Stroke skilled support workers
                                              to free up qualified therapists’ time.     can assist therapy services
  Practice outside the UK                                                                with achieving 45 minute
  In the US, state-funded Medicare            The stakeholders also suggest that to      therapy sessions and seven
  requires specifically physiotherapy,        achieve both the access to seven day       day services and are integral
  occupational therapy, and speech and        services and 45 minutes of therapy,        to achieving the NICE quality
  language therapy are delivered, but         teams should take a more integrated        standards
  services such as psychology are not         approach to rehabilitation. Therapists   • Joint working with nurses has
  included. Therapy services can be           should increase involvement with the       a positive effect on cohesion
  supported by rehabilitation                 patient and the wider team, and            and compliance and can be
  technicians for administrative who          where appropriate should include           achieved in addition to direct
  support work and are not directly           nursing staff and the family in            therapeutic clinical contact
  involved in the provision of therapy        promoting a continuous rehabilitation      time
  services. Qualified occupational            culture. This can also support the
  therapy assistants and physical             patient towards self-management in
  therapy assistants may provide              the longer term.
  therapy services directly to patients
  under the appropriate supervision of
  licensed therapists, and families are
  very engaged.




10
Mind the Gap: Ways to enhance therapy provision in stroke rehabilitation




Project findings                          The South Tyneside physiotherapy          This model enables the service to
The stroke unit at St Thomas’             stroke team provided a weekend            meet the NICE quality standards 5 and
Hospital offers an additional             service for the stroke unit, by           6, the National Stroke Strategy and
weekend rehabilitation service that is    recruiting an additional band 5           the RCP guidelines for physiotherapy.
provided by rehabilitation support        physiotherapist and band 4 technical      Their admission to assessment time
workers who work as healthcare            instructor to work five days              improved from 52% within 72 hours
assistants during the week. The           comprising three during the week and      (2008) to 93%.
content and structure of the weekend      two at the weekend. They solved the
programme is selected by the              recruitment challenge by including the    The South Devon team on the stroke
therapists from an ‘options menu’.        post within the existing band 5           rehabilitation unit at Newton Abbot
                                          rotation scheme, and gradually rolled     Hospital reallocated existing funding
Whilst the 20 minute sessions the         out the changes in contracts with         for the band 5 physiotherapy post to
rehabilitation support workers provide    each new member of staff.                 fund three band 3 rehabilitation
do not meet the NICE quality                                                        support assistants and four hours of a
standards or RCP guidelines               To ensure competence, supervision         band 6 occupational therapist or
specifically, they do demonstrate a       and support the band 5 therapist can      physiotherapist for Saturday. The
proactive multidisciplinary approach to   liaise with the on call therapy team at   additional rehabilitation support
rehabilitation, and support workforce     weekends, and is supported during         assistants are rostered from Saturday
flexibility. Patients have a greater      the rest of the week from within the      to Tuesday, and the qualified staff
number of rehabilitation contacts         stroke team. The stroke team act          from a rota of stroke skilled therapists
during admission, but not therapy         pragmatically and flexibly when there     from the team and community
direct contacts. Therapists feel that     is a vacant post to provide a six day     service.
patients who use this service maintain    service from within the existing staff.
better ‘carry over’ for Monday than                                                 Their new model demonstrated an
those who do not.                         Since the inception of the project,       improvement in admission to
                                          many more patients have received 45       treatment time, with 100% of
                                          minutes of physiotherapy, and therapy     patients being assessed within 72
                                          has been provided at the weekend.         hours compared to 80% in 2008. All
                                                                                    appropriate patients were able to
                                                                                    access 45 minute treatment sessions
Percentage of patients seen for 45 minutes of therapy                               compared to 92% in 2008. Feedback
before and after the changes in South Tyneside                                      from patients and carers was already
                                                                                    very good, but had highlighted a wish
                                                                                    for more therapy opportunities.
   Before introduction of   Since August 2009   Since August    Since Aug 2009
   project (week days)      (week days)         2009            average daily
                                                (weekends)      (seven day)         Staff felt that communication
                                                                                    between hospital and community
   33.8%                    75.6%               68%             68%                 services, and appreciation of the
                                                                                    transfer process for patients,
                                                                                    improved. It also meant that weekend
                                                                                    staff had a reasonable frequency of
                                                                                    shifts to maintain their work-life
                                                                                    balance, and enabled community
                                                                                    therapists to keep their acute
                                                                                    rehabilitation skills up to date.




                                                                                                                           11
Mind the Gap: Ways to enhance therapy provision in stroke rehabilitation




  The benefits for the patients, service     In Blackburn with Darwen, the                     Assistant support staff, backed up by
  and carers with the new model              community stroke team have                        competency based education, can
  outweighed the disadvantages of the        established support links with a pool             enable therapy services to improve
  loss of a band 5 rotational post on the    of rehabilitation support workers and             assessment time, and 45 minute
  service.                                   intermediate care support staff which             therapy sessions, more readily than
                                             enables them to provide 45 minutes                healthcare assistants (Blackburn with
  In Sheffield Teaching Hospitals NHS        of therapy, daily and for as long as              Darwen community stroke team).
  Foundation Trust the occupational          needed to meet NICE quality                       This is because of their contribution
  therapy and physiotherapy services,        standards. Their data showed that                 within the team across seven days.
  moved from five to seven day services      most of the 45 minute sessions were               Healthcare assistants can bring
  as part of a major change across           delivered by the rehabilitation                   different benefits, such as a greater
  therapy teams. The stroke service          assistants with varied support from               understanding of the rehabilitation
  included an ‘away team’ comprising         qualified therapists.                             process when delivering nursing
  therapists from neurosciences, spinal                                                        care.(St Thomas’ Hospital).
  injuries and neuro-rehabilitation          Summary
  services and a ‘home team’                 All the models demonstrated higher                The Sheffield therapy team project
  comprising staff from the stroke team.     patient and carer satisfaction, but only          demonstrated the challenges faced
                                             those that included additional                    when taking therapy staff with
  It was felt that although there were       qualified staff were able to impact on            common core neurology skills into a
  commonalities of clinical skills, the      assessment time and the NICE quality              different environment and the need to
  transposition of staff into a different    standards. Traditional concerns around            support and manage this carefully. In
  geographical location, with unfamiliar     using band 5 therapists and sufficient            South Devon a creative and inclusive
  equipment, protocols, documentation        supervision at weekends were avoided              approach to rostering meant weekend
  and profiles, required considerably        by the South Tyneside model and in                staff had the reasonable frequency of
  more adjustment and settling in time       South Devon the loss of the band 5                shifts to maintain a work/life balance
  than had been anticipated. With up to      was outweighed by the gains. No                   and enabled community therapists to
  28 staff within therapy services           model impacted negatively on                      keep their acute rehabilitation skills up
  working on a weekend a robust              recruitment, supervision, retention of            to date.
  support system was required which          staff, or length of stay.
  included the rostering of a duty
  manager for therapy services at
  weekends to support staff and deal           Sheffield Teaching Hospitals NHS Foundation Trust -
  with any staffing problems.                  Ability to deliver 45 minutes

  Before the seven day service,                                100
                                                                     Sheffield OT     Sheffield PT
  physiotherapy and occupational                                90
  therapy were able to provide access to                        80
  45 minutes of therapy for 76% of the
  time, on average, for appropriate                             70
  patients. Post implementation this
                                                  Percentage




                                                                60
  increased to 92% for physiotherapy                            50
  and 91% for occupational therapy.
  NICE quality standards 5 and 6 were                           40
  achieved. The recommendations of                              30
  the National Stroke Strategy around
                                                                20
  vital signs and early access to therapy,
  45 minute sessions and delivery of                            10
  RCP clinical guidelines improved.                              0
                                                                           Pre seven day               Post seven day




12
Mind the Gap: Ways to enhance therapy provision in stroke rehabilitation




Where teams instigated specific joint
working, there were initial
reservations from some therapy staff
that their skills would be diluted.
However, it was found to have
positive effects not only on the
patients and nursing staff directly, but
on compliance with therapy
timetabling, as therapists still had time
to undertake their specific and highly
complex therapy work. Joint working
may improve communication; by
working in tandem, information is
passed on and there is less time
wasted. In addition, there is greater
consistency with handling and moving
patients, an area often highlighted as
a concern by patients.




                                                                                                                13
Mind the Gap: Ways to enhance therapy provision in stroke rehabilitation




  When - a seven day service?
  This section looks at the frequency of                Practice outside the UK
                                                                                                   KEY MESSAGES
  rehabilitation required to meet NICE                  In the US, state funded Medicare
  quality standard 7 to offer therapy                   services adopt the ‘three hour rule’ -     • Weekend therapy services
  input ‘for a minimum of five days a                   three hours a day of physiotherapy,          impact on service delivery
  week’; and the potential alternatives                 occupational therapy and speech and          across the whole week
  for delivery of additional services.                  language therapy five to six days a          positively
                                                        week. The staffing ratio is 7:1 patient:   • Seven day services can have
  What the evidence says                                therapist each day, supplemented             greater impact than six day
  Studies in US rehabilitation centres                  with administrative rehabilitation           services
  found that factors such as function at                technicians.                               • Additional days of therapy
  admission, length of stay and intensity                                                            services have a positive effect
  of therapy collectively contributed to                In addition to this there are one to         on admission to treatment
  greater functional gains, but length of               two hours daily of occupational              times and 45 minutes of
  stay and intensity of therapy alone did               therapy or physiotherapy group               therapy
  not always [Chen et al] (20)                          sessions and weekly speech and             • Seven day therapy services
                                                        cognitive group therapy sessions.            enable patients to begin their
  A single study found moderate                                                                      treatment as early as possible
  evidence that the same therapies                      In Canada, the requirement is for a        • Seven day community stroke
  delivered more intensively, over a                    minimum of one hour of direct                services can influence hospital
  shorter period of time, resulted in                   therapy for each relevant core therapy,      length of stay and vital signs
  faster recovery and earlier discharge                 for a minimum of five days a week            positively and more
  from hospital [Teasell et al] (5).                    based on individual need and                 significantly than single
                                                        tolerance. (10)                              therapy weekend inpatient
  A trial conducted in Japan compared                                                                services
  outcomes for stroke patients admitted                 What the stakeholders say                  • Patients and carers welcome
  to a conventional stroke rehabilitation               Access to therapy, and therapy               additional rehabilitation
  programme five days per week and                      assessments, should be consistent and        opportunities at weekends
  patients admitted to a programme                      continuous within rehabilitation
  seven days per week. The intensity                    settings across seven days. In turn,
  and frequency of treatment varied                     patients are more likely to respond
  between the programmes and                            better to therapy, avoiding a loss of
  patients were encouraged to remain                    momentum over a weekend and
  active outside of the structured                      therapists could have more capacity to
  sessions. Additional weekend therapy                  offer 45 minutes of therapy. Some
  resulted in significant improvements in               stakeholders felt that patients need to
  FIM1 scores as well as a reduction in                 have a day of rest and reflection, and
  length of stay. [Sonoda et al] (21]                   they agreed that patients risk losing
  [Teasell] (5).                                        out if this happens on a week day and
                                                        no weekend service is available.




  1The Functional Independence Measure (FIM) scale assesses physical and
  cognitive disability, focussing on level of disability, the burden of care.




14
Mind the Gap: Ways to enhance therapy provision in stroke rehabilitation




Project findings                          Qualitative data indicated that all        In Chesterfield Royal Hospital, the
In South Devon, the additional            speech and language therapists             seven day physiotherapy service on
service over the weekend enabled          involved in the pilot felt that they had   the acute stroke unit found that
patients to have an increase in           impacted positively on patients by         although they did not reduce length
number of sessions. This also             having this service, and 50% felt          of stay significantly, there was a
impacted positively on the team’s         happy to be working at a weekend.          gradual process of setting discharges
ability to deliver 45 minute sessions.    The team noted that there seemed to        for earlier in the week than before.
Patients’ length of stay was already      be more clinical need for dysphagia        They commented on an improved feel
improving and could not solely be         assessment than dysphasia treatment.       to Mondays due to the reduced
attributed to the additional weekend                                                 pressure to catch up with the backlog
service.                                  In the Sheffield therapy team, funds       from the weekend.
                                          were provided for seven day working
For the South Tyneside team, the          across orthopaedics, stroke, ‘front of     Blackburn with Darwen community
seven day physiotherapy service           door’ and respiratory services. The        stroke team and NHS Camden -
assessed all patients within 24 hours     additional service for stroke comprised    stroke REDs community stroke
and delivered 45 minute sessions          an occupational therapist, a               teams both operate through a
where appropriate, although length of     physiotherapist and two assistants         multidisciplinary ‘in reach’ model and
stay was not significantly altered. The   who took their time back from              provide occupational therapy,
team agreed that to do that a similar     existing services in the week.             physiotherapy, speech and language
service from occupational therapy                                                    therapy five days a week and
would be needed.                          At the weekend patients were               ‘enabling care’ (rehabilitation support
                                          prioritised according to four criteria:    through suitably trained social care
The Sheffield speech and language                                                    staff) seven days a week. They meet
therapy team piloted Saturday             1.   To facilitate discharge               NICE quality standards 7 and 10, the
morning working over three months         2.   Eligibility for existing ESD          RCP guidelines and quality marker 10
on the acute stoke unit. The service      3.   New patients                          (rehabilitation) quality marker 12
was provided by band 6 and 7 speech       4.   Other rehabilitation patients         (transfer of care and health and social
and language therapists, from a roster                                               care joint working) and quality marker
of paid volunteers. In the pilot they     The team noted that the effect of          19 (workforce) of the National Stroke
found, from a small sample size, that     seven day working within stroke            Strategy. NHS Camden - stroke
80% of patients referred to speech        seemed to be stronger for facilitating     REDs data showed a significant
and language therapy were seen            discharge. Their data showed a             contribution to reducing length of
within 24 hours, 25% of patients          positive impact on admission to            stay in the acute hospital, now down
required daily speech and language        assessment times from 62 hrs               to 10 days, and demonstrated to local
therapy at some point in their stay,      (occupational therapy) and 47.4 hours      organisations the contribution of
but not consistently across their whole   (physiotherapy) pre change, to 25.6        comprehensive and responsive
inpatient spell, and more than 50%        hours for occupational therapy and         community stroke services to
required 45 minutes on some days.         30.4 hours for physiotherapy post          resolution of acute challenges.
                                          change.




                                                                                                                           15
Mind the Gap: Ways to enhance therapy provision in stroke rehabilitation




  Summary                                   through whole pathway change,
  The project teams reported that the       when all services operate across seven
  biggest impact of a seven day service     days. Single professional changes, in
  was on admission to treatment time        one part of the pathway only, are
  and the ability to provide an equitable   unlikely to have a significant impact
  service. Once this had occurred, they     on length of stay or cost benefits for
  found that the whole working week         an organisation. (South Tyneside).
  began to change too, and therapists       However, they do have a positive
  could offer more contact time.            effect on satisfaction levels, speedier
                                            access to assessment and frequency
  Services across seven days moved          and intensity of sessions for those
  closer to achieving the NICE quality      patients who can tolerate it.
  standard than six day services.
  Findings of teams from Medway             Patients also value opportunities for
  Community Healthcare and York             more therapy across the pathway.
  Hospital NHS Foundation Trust in the      Therapy services may consider
  national projects 2009 - 2010 who         developing seven day services as a first
  delivered a six day therapy service       step towards achieving 45 minute
  improved admission to treatment           therapy sessions, because of its impact
  time, but could not achieve 100%          on intensity as well as frequency.
  (25). Seven day services in South
  Tyneside and Chesterfield Royal           However, any opportunity to enhance
  Hospital achieved this standard. This     rehabilitation, by weekend sessions
  is likely to be due to a removal of the   from suitably trained healthcare
  weekend backlog of outstanding            assistants (St Thomas’ Hospital) or,
  assessments on Mondays, freeing up        by joint working (Medway
  more time each day to allocate for        Community Healthcare and South
  direct treatment and the effect of a      Devon) or by having an additional
  seven day presence on                     presence (Sheffield speech and
  communication between the                 language therapy) can bring benefit;
  multidisciplinary team, and with          either for multidisciplinary team
  patients and carers. Models that used     cohesion, mutual support, and
  existing therapy staff differently or     education or simply improving
  over more hours in the week found         communication and reducing the
  more opportunities to deliver a greater   need for additional documentation.
  proportion of 45 minute sessions and
  for joint working than in five days.

  The findings of the projects show
  that, once established, the culture
  of a seven day service facilitates
  more timely decision making.
  (Chesterfield Royal Hospital) It has
  the potential to shorten length of stay




16
Mind the Gap: Ways to enhance therapy provision in stroke rehabilitation




How long - getting more out
of the whole week?
This section deals with the intensity of   For example, one survey observed that     What the stakeholders say
a patient’s therapy, meeting the NICE      a significant treatment effect was        Stakeholders indicated that therapy
quality standard of 45 minutes.            achieved among studies which              should be available to patients as early
                                           provided a mean of 8.8 hours of           as possible once they are medically
What the evidence says                     therapy per week for 11.2 weeks           stable, and commented that
There is evidence to show that higher      compared to trials that only provided     psychology should be included
intensities of treatment can impact        approximately two hours per week for      because if problems are left
significantly on outcomes, activities      22.9 weeks. [Bhogal et al] (24). One      unattended, they can become worse
for daily living and reduce                study that looked into the benefits of    over time. Some suggested that if in
impairments. [Langhorne et al] (7)         aphasia therapy reported problems         the early stages some patients are
[Kwakkel et al] (11) Patients may not      with patients’ tolerance of intensive     unable to tolerate a single 45 minutes
benefit equally, which makes specific      therapy. However, patients who            session, services can deliver multiple
guidance about intensity of                received an average of 1.6 hours of       shorter sessions over the course of
rehabilitation therapy harder to           therapy per week had significantly        one day.
provide. [Duncan et al] (9).               higher scores than those who received
Many therapists express concern            only 0.57 hours of therapy. [Bakheit et   If two therapy staff are involved in a
about how many patients can tolerate       al] (23).                                 joint session and are working on
45 minutes of therapy. However,                                                      different aspects of therapy, and the
physiotherapists have been shown to        Practice outside the UK                   session is goal directed, then this can
overestimate the duration of therapy,      Canadian guidelines state that            be counted as two sessions.
and that intensity of treatment is also    “Patients should receive the intensity
dependent on the ability and the           and duration of clinically relevant       Stakeholders don’t yet agree what
willingness on the part of the patient.    therapy defined in their individualised   constitutes 45 minutes of ‘contact’
[Teasell et al] (5).                       rehabilitation plan and appropriate to    time. For the first time therapists have
                                           their needs and tolerance levels.”        been given a treatment time
Greater benefit may be achieved if                                                   (intensity) guide of 45 minutes but
high-intensity therapies are provided      In the US, a patient must be able to      need to maintain a level of flexibility
in the early stages of rehabilitation.     safely tolerate the level of              within this to accommodate patient
[Teasell et al] (5).                       rehabilitation therapy programme          individual needs. Some therapeutic
                                           provided in an inpatient rehabilitation   interventions, such as psychology, may
There is not conclusive evidence that      unit. The intensity of therapy provided   not fit well with a rigid time frame.
more intensive speech and language         must further the patient’s progress in    Some academic stakeholders
therapy is better than less intensive      meeting goals, rather than setting the    commented that services should be
therapy, although for patients who         patient back by overtaxing them.          offering ‘up to’ 45 minutes. However,
can tolerate it, more intensive therapy    Publicly funded stroke rehabilitation     other front line stakeholders felt that
appears to result in improved              facilities do not receive payment         anything less than 45 minutes might
outcomes. [Teasell et al] (5). On          unless they provide at least three        be limiting and therefore less
average, positive studies provided a       hours a day of therapy, 55 minutes of     effective. This may be due to the
total of 98.4 hours of therapy while       one-on-one therapy sessions with          differences in definition of what
negative studies provided a total of       physiotherapy, occupational therapy       counts towards ’45 minutes of
43.6 hours of therapy.                     and speech and language therapy. If       therapy’ and the debate around
                                           the patient is unable to tolerate this,   direct/non-direct therapy.
                                           then it should be given in two 30
                                           minute sessions. (6)




                                                                                                                               17
Mind the Gap: Ways to enhance therapy provision in stroke rehabilitation




                                           Some people have started to refer to          therapy, yet the same patient group
     KEY MESSAGES
                                           the amount of time a patient has for          had least success as recorded by the
     • Patients do not all benefit         therapy as the ‘dose’, to start to            goal attainment scale. They
       equally from access to 45           formalise the requirement for a set           recommend that therapy services
       minute therapy sessions             amount of therapy time to be                  should adopt a menu of outcomes, to
     • In the community, patients          available per patient, per day.               inform service development.
       with more severe disability
       improved most with access to        Stakeholders felt that access to both         Using the NICE clinical standard of 45
       45 minute therapy sessions          45 minutes of each therapy and seven          minutes of therapy per day, five days a
     • Patients’ need for, and             day services should reduce length of          week, each patient should get 990
       tolerance of, 45 minutes can        stay through faster completion of             minutes of therapy over the six weeks
       fluctuate, so services need         assessments, more time for discharge          they are with the team. The team
       to be sufficiently flexible and     planning, faster improvements in              found 17.5% of patients achieved the
       responsive to meet this             mobility, activities of daily living, and     required amount of therapy from
     • Joint working with nurses has       patients managing at home more                physiotherapy, 21.5% from
       a positive effect on cohesion       quickly.                                      occupational therapy and 11.1% from
       and compliance and can be                                                         speech and language therapy. Those
       achieved in addition to direct      Project findings                              patients who received 990 minutes of
       therapeutic clinical contact        NHS Camden - stroke REDs agreed               occupational therapy and
       time                                local definitions and clarified contact       physiotherapy had an average
     • Multiple 45 minute episodes         and non contact activities for their          increase in their Barthel scores of 6.4
       by individual disciplines during    service and the team reviewed data            points, compared to an average
       a day may be difficult for a        for 91 patients across six weeks of           increase of 3.4 points by those who
       patient to manage; combined,        rehabilitation, comparing the intensity       didn’t and an average increase in their
       goal orientated visits work         of therapy received using valid clinical      Nottingham Extended Activities of
     • Staff may need to collect data      outcome measures. The data showed             Daily Living (NEADL) scores of 12
       to challenge their own              that patients with lowest Barthel             points, compared to 10 points for
       assumptions about why               scores had the greatest need of, and          those who didn't.
       services are not being              benefited most, from access to
       provided, to be sure it is
       because patients cannot
       tolerate it, and not because of        NHS Camden - stroke REDs -
       the ability of the service to          45 minutes - impact on Barthel score points gained
       provide it
     • Services that operated over                          35
                                                                                              Met           Not met
       seven days had more success
                                                            30
       in meeting the 45 minute
       guideline                                            25
                                               Percentage




                                                            20

                                                            15

                                                            10

                                                             5

                                                             0
                                                                 0-2   2-4   4-6   6-8      8-10    10-12    12-14    14+




18
Mind the Gap: Ways to enhance therapy provision in stroke rehabilitation




There is a significant difference with
the Barthel outcome measures, when          NHS Camden - stroke REDs- Reasons for not receiving 45 minutes of therapy
compared with the sample of patients
                                                      Declined daily therapy
who get least therapy in terms of time                 Clinically not required
(intensity) and number of visits                             No SLT required
(frequency). At the start of                No occupational therapy required
intervention the Barthel for this group           No physiotherapy required
                                                            No staff capacity
with most amount of therapy is lower.
                                                         Patient unavailable
This suggests that people, who                              Patient fatigued
received the most therapy in terms of                         Patient refused
intensity, were functioning at a lower                         Patient poorly

level, based on the Barthel (average                                         0%   10%   20%     30%     40%      50%     60%
score of 11.8)

Regarding progress and change in the
Barthel scores, this group of patients
made significantly larger gains           ‘Continuing to benefit’ and ‘able to tolerate’ should be
(average of 6.3) when compared to
those who received the least amount       defined jointly by both patient/carer and MDT.
of therapy.

The team make joint decisions with        ‘Therapy time’ is anything related to person focussed
the patient about what level of           rehabilitation facilitated by a specialist stroke practitioner
intensity is appropriate for them. They   and evaluated using clinical outcome measures.
collected data to determine the
reasons why 45 minutes of therapy         NHS Camden - stroke REDs
was or was not achieved for each
patient. Thirty percent of patients
reported fatigue as a major factor
affecting ability to participate in an    3. Non-manageable at home –                   ranging from 14 – 49 days of 45
intensive therapy programme at               residential intermediate care bed          minutes of therapy, two to three times
home. For many patients there were           with CST therapist support                 each day, over seven days. Patients on
multiple reasons why 45 minutes of        4. Residential/nursing care – CST core        pathway one with mild and minimal
therapy was not achieved.                    team visit on discharge to check           disability required much less intensive
                                             correct patient management.                therapy. People in care homes may
Blackburn with Darwen community                                                         need 45 minute sessions of therapy
stroke team focuses on meeting            They defined therapy for their service        each day to improve a particular task.
patient need rather than just early       locally, and analysed a database of 20
discharge for people in both hospital     patients to determine which patients          On the whole, there were more 45
and community through four                needed or benefited from 45 minute            minutes of therapy contacts from
pathways of support.                      sessions, and from which therapies,           rehabilitation assistants with varied
                                          and examined the range from each              input from therapists. Patients with
1. High functioning – home with core      therapy and the service.                      moderate to total dependency
   team support only                                                                    (Barthel) received most input from
2. Lower functioning but manageable       They found that not all patients              support workers and intermediate
   at home – home with community          needed 45 minutes of therapy each             care support staff, enabling the
   stroke team (CST)therapists and        day, and that the need varied greatly.        community stroke team to provide 45
   domiciliary rehab team support         Patients with moderate to severe              minutes of therapy daily for as long as
                                          levels of disability (pathways two to         needed.
                                          four) needed a level of support




                                                                                                                               19
Mind the Gap: Ways to enhance therapy provision in stroke rehabilitation




  Local definition of therapy

  Any assessment or treatment provided by the qualified
  therapist from the community stroke team (CST)
  including physiotherapy, occupational therapy or speech
  and language therapy.
  Any therapy intervention which is part of the programme
  set by CST qualified staff and carried out by our
  rehabilitation support workers, on one of our pathways.
  Blackburn with Darwen community stroke team



  Blackburn with Darwen community stroke team - retrospective data on therapy need and provision


                     Average            Range          Average days 45      Range        Average other      Range
                     length of stay                    minutes therapy                   45 minutes days
                     in service                        from core stroke                  from support
                                                       team                              service

     Pathway 1       131                22 - 265       50                   1 -149
     Pathway 2       175                110-243        68                   52-97        43                 40 -49
     Pathway 3       141                84 -195        42                   41-69        29                 14 -42
     Pathway 4       220                43 - 574       86                   9-225        38                 38




  The Sheffield speech and language         The South Devon team, as part of a       against the percentage that received
  therapy team initially questioned         demand and capacity exercise,            45 minutes per therapy group across
  whether 45 minutes would be right         showed that they had only small          all project teams.
  for each patient and whether their        numbers of patients who could
  service needed to be more flexible to     tolerate 45 minutes of each active       Those who were assessed as needing
  deliver it. The project enabled them to   therapy for five days a week and that    45 minutes of therapy, tended to get
  identify that 25% of patients required    they had a surprising number of          it when the services were increased.
  daily speech and language therapy         refusals due to fatigue.                 Within the therapies, speech and
  intervention and over 50% needed 45                                                language therapy is suggested as the
  minutes on certain days. The pilot was    The issue of judging whether a patient   area where it is hardest to meet
  not long enough to demonstrate            continues to benefit and/or is able to   assessed need.
  whether daily availability of speech      tolerate remains a subjective
  and language therapy could impact         assessment on the part of the
  on adverse effects for patients, e.g.     therapists. The scatter plot, taken
  incidence of aspiration pneumonia,        from data from the projects, shows
  but staff found that being available on   the percentage of patients thought to
  a Saturday had a positive effect on       benefit from or tolerate 45 minutes
  patients.




20
Mind the Gap: Ways to enhance therapy provision in stroke rehabilitation




                                                                                                         Seven day working enabled the work
  Numbers of patients who could tolerate 45 minutes of therapy                                           to be more equitably spread across a
                                                                                                         week, which meant there were more
                              100
                                                                                                         opportunities to achieve 45 minute
     % 45 minutes delivered




                                                                                                         therapy sessions (Chesterfield Royal
                               80                                                                        Hospital, South Tyneside, and
                                                                                                         South Devon).
                               60
                                                                                                         Some of the teams’ initial
                               40                                                                        preoccupation with attempting to
                                                                                                         define the detail around 45 minutes
                               20                                                                        issues translated into attention to
                                                                                                         methods of changing the shape of
                                0                                                                        their service, and the ways in which
                                    0       20           40         60            80         100         they worked, so that they could
                                        % assessed as needing 45 minutes of therapy                      deliver:

                                                   SLT         OT         PT                             • More hands on treatment each day
                                                                                                         • A flexible response to patient need
                                                                                                         • More opportunities for therapy in a
                                                                                                           variety of forms.
Summary                                                       In the community, patients with more
The project teams’ findings mirrored                          severe disability improved most with       Focussing more on improving service
international guidance around                                 access to 45 minute therapy sessions.      delivery may better enable therapy
tolerance and therapy. NHS Camden                                                                        services to provide a service that
- stroke REDs and Blackburn with                              Where therapy services collected data      meets national guidelines and be able
Darwen community stroke team data                             for when a 45 minute treatment             to offer the right therapy at the right
allowed detailed analysis of allocation                       session occurred, and if not, why not,     time, for the right reasons to the right
and uptake of the 45 minute sessions.                         it offered them valuable insight into      patients as and when they can
It supported the research findings that                       their reasoning processes and fixed        tolerate it and need it.
one size does not fit all and of the                          assumptions that may be derived from
complexities created by organisations                         practice or working to prioritisation      The project findings demonstrated
and priorities.                                               protocols. Some teams at each stage        that ‘therapy’ relates to allied health
                                                              of rehabilitation reported that more       professions, including assistants, but
Their pragmatic approach based                                patients could tolerate 45 minutes if      that any opportunity to enhance
on thorough assessment, good                                  it was available and the data showed       rehabilitation, either by weekend
multidisciplinary team communication,                         that where it was not possible to          sessions from suitably trained
shared skills and competencies,                               deliver it, it was often due to the        healthcare assistants (St Thomas’
involving the patient and carers and                          service organisation. This suggests        Hospital), by joint working (Medway
SMART (Specific, Measurable,                                  that services might learn from             Community Healthcare and South
Attainable, Relevant and Timely)                              undertaking demand and capacity            Devon) or by having an additional
multidisciplinary team goals enabled                          exercises and reviewing their practice     presence (Sheffield speech and
them to avoid unnecessary                                     and processes, before making               language therapy) can bring
45 minute sessions without                                    changes in staffing, or requesting         benefit.
compromising outcome and                                      additional resources, endorsed by the
preventing fatigue for people at                              findings of Medway Community
home. This information is also                                Healthcare.
valuable to inform the commissioning
services, and developing resources.




                                                                                                                                                 21
Mind the Gap: Ways to enhance therapy provision in stroke rehabilitation




  Where can more therapy make a difference?
  Projects were drawn from across the        Project findings
                                                                                           KEY MESSAGES
  stroke pathway and demonstrated            The Chesterfield Royal Hospital
  that seven day services had a benefit      team provided a seven day                     • Patients can benefit from
  in all settings.                           physiotherapy service on an acute               access to seven day therapy
                                             stroke unit. Data showed                        services in all settings across
  What the evidence says                     improvements in NICE quality                    the pathway
  The Collaborative Evaluation in Stroke     standards 5 and 6 and the RCP                 • The benefits and opportunities
  across Europe (CERISE) studies             guidelines for physiotherapy                    from seven day therapy
  conclude that whilst there is evidence     assessment times. There was no                  services vary along the
  for the positive effect of intensive       significant effect on length of stay, but       pathway, reflecting the
  task-specific exercise on the functional   some individual reductions, which               different needs of the patient
  recovery of stroke patients, stroke        suggested planning discharges earlier         • Individual requirements for 45
  rehabilitation units in the UK are not     in the week was having an effect.               minutes of therapy can vary
  organised to optimise the amount of                                                        during the course of their
  therapy given to patients. Included        The South Tyneside, Medway,                     journey along the pathway,
  within this are aspects of environment     South Devon and Sheffield therapy               not just depending on their
  and culture, organisational priorities,    teams delivered their additional                medical status, but also on
  different healthcare systems with their    service on a stroke rehabilitation unit.        their goals
  different barriers and incentives to       The South Tyneside unit is now able           • Therapy support workers can
  change, case mix and admission             to achieve the NICE quality standards           assist with successful delivery
  criteria. [Putman et al] (13,15)           5, 6 and 7 and RCP guidelines for               of 45 minutes and a seven day
                                             physiotherapy and have identified that          service at all stages
  However, it may also be worth noting       the next stage is to develop the
  that although in international             occupational therapy service. In South
  comparisons, UK stroke units had the       Devon and Medway Community
  lowest therapy contact time and best       Healthcare, the teams are working to        The Blackburn with Darwen and
  staffing, they also had rehabilitation     identify how to improve the service         NHS Camden - stroke REDs
  units with the least exclusion criteria    further to be able to offer additional      community teams both have robust
  and decisions about therapy for            opportunities for therapy, by               data collection systems. This supports
  patients were more often made by           reviewing their use of non contact          extensive analysis which enables them
  clinicians.                                time, and developing sustainable            to identify the effect of 45 minutes of
                                             group work.                                 therapy on clinical and service
  What the stakeholders say                                                              outcomes. This has resulted in
  Stakeholders felt that seven day           The Sheffield therapy team reflected        improved multidisciplinary team goal
  services should be available across the    on the experience and their data and        setting, predicting outcomes and
  pathway from hyperacute to early           identified some questions for further       devising effective packages of
  supported discharge teams in the           discussion locally about organisation       intervention on an individual basis,
  community, where patients continue         and distribution of therapy resources       maximising the use of their skill mix.
  to benefit.                                along the stroke pathway.                   They are both able to demonstrate a
                                                                                         positive financial impact on the acute
                                             Patient feedback in the Sheffield           service through reducing length of
                                             speech and language therapy                 stay, and for social care by reducing
                                             project indicated that during the acute     final packages of care. Blackburn
                                             stage of the pathway they want to           with Darwen community stroke
                                             receive a seven day service, but are        team (2010) reduced final packages
                                             less keen when they are back at home        of care per week by 240 hours of
                                             as they welcome a break at                  care/week, equating to £93,600
                                             weekends.                                   savings per year.




22
Mind the Gap: Ways to enhance therapy provision in stroke rehabilitation




Summary                                 In the community, therapists were
The project teams crossed the           able to look at resolving the challenge
pathway from hyperacute stroke unit     of overloading the patients with
to community teams, and in all cases    excessive visits through developing
they made a difference.                 shared competencies and multiskilled
                                        staff delivering goal orientated
However, in each setting, additional    sessions (NHS Camden - stroke
services bought other, slightly         REDs and Blackburn with Darwen
different gains too, reflecting the     community stroke team).
stage of recovery and different needs
of the patients from each               Feedback from carers, and other staff
environment.                            was positive regardless of location.

In South Devon and Medway               Seven day therapy services have a
Community Healthcare, the teams         value in all settings across the
had developed joint working with        pathway; specifically to deliver equity
nursing staff and were considering      of access to assessment and, where
group work. This is probably more       these exist, the project teams found a
viable and sustainable on a stroke      positive effect on direct contact time
rehabilitation unit than in an acute    and 45 minutes of therapy.
stroke unit where the focus was more
on developing an equitable service
across the week, and facilitating
speedier and smoother transfer on
(Chesterfield Royal Hospital, South
Tyneside and Sheffield therapy).



                                                                                                                     23
Mind the Gap: Ways to enhance therapy provision in stroke rehabilitation




  How - bridging the gap?
  ”The gap”- themes from the
  research
  Collaborative Evaluation in Stroke
  across Europe (CERISE) studies have
  shown that stroke patients in the UK
  spend much less time engaged in
  therapy than in European
  rehabilitation units. Findings for the
  UK suggest one hour a day, compared
  with three in Switzerland. In all
  centres, physiotherapy comprised
  nearly 40% of therapeutic time, but
  occupational therapy comprised 20%
  - 30%, except in the UK unit where it
  was 11.6%. In the UK, 35% of
  therapy time consisted of nursing
  care. After correction for case-mix,
  overall therapy time in the UK unit
  was significantly less than the other
  countries, and the differences in
  therapy time were not attributable to
  differences in staffing. [De Witt] (14)
  (16) (17)

  In a more recent study, therapy           some significant difference in content.   However, stakeholders and some
  staffing levels were comparable with      They refer to the ‘black box’ of          therapy services reported challenges
  existing literature, yet there was wide   challenges around understanding and       embedding group work within stroke
  unexplained variation in contact time     measuring what therapists do; such as     unit routines for various reasons,
  with the patient. Seventy five percent    lack of reporting the detailed            including lack of time, staff availability
  of patients received less than an hour    characteristics of the interventions,     to transport patients and difficulty
  of therapy, and 25% less than half an     the complexity and diversity of           gaining sustained nursing support.
  hour of any therapy each day. The         interventions and the potential range
  lowest levels of therapy input were       of different approaches used, along       Develop a seven day
  from speech and language therapists,      with the practice adopted by              rehabilitation culture
  with only 25% of patients having any      therapists of reliance on clinical        Project teams in the community
  contact with a therapist, and a           experience rather than on theoretical     (NHS Camden - stroke REDs and
  median contact time of 30 minutes.        frameworks, and the overlap and           Blackburn with Darwen community
  [Rudd et al] (19)                         blurring associated with joint working.   stroke team) and on stroke
                                            [De Witt] (12)                            rehabilitation units (South Devon
  Part of the CERISE study explored the                                               and Medway Community
  relationship between the content of       One possibility for increasing contact    Healthcare) have undertaken work
  therapy and the level of patient motor    time is through group work. Recent        specifically to develop their
  impairment, expecting the content of      studies have also shown that the          rehabilitation culture.
  therapy to differ in patients with        efficiency of limited therapeutic
  different levels of motor impairment.     resources can be increased by using
  They found significant differences in     circuit training programmes in which a
  duration of physiotherapy and             group of patients is allowed to
  occupational therapy sessions and         practice at different workstations at
                                            the same time, under the supervision
                                            of a therapist. [Kwakkel et al] (8)




24
Mind the Gap: Ways to enhance therapy provision in stroke rehabilitation




                                                                                   Understand the data
  KEY MESSAGES
                                                                                   Both Blackburn with Darwen and
  • Develop a rehabilitation culture in your team                                  NHS Camden - stroke REDs
  • Visit a successful site prior to making change to improve understanding        community stroke teams have
    and support for the process locally                                            established comprehensive databases
  • Consider a single management system for nursing and therapy which              which enabled them to thoroughly
    can improve line management consistency, provide better coordination           understand their services and
    and enhance stroke specialist clinical governance                              outcomes, especially around access to
  • Involve and include staff and establish good communication processes           and delivery of 45 minute therapy
  • Be prepared for staff objections and manage these through good                 sessions. Their systems work
    communication processes                                                        alongside, and in addition to, local
  • Understand the team’s true demand and real capacity to improve                 databases which have limited ability to
    understanding, planning and control of the work, enabling more                 provide useful qualitative and
    therapy time to be offered.                                                    quantative information about therapy
                                                                                   services. The initial additional effort
                                                                                   required for data entry is outweighed
                                                                                   by the benefits derived from
The Medway Community                     The stroke service in the United          comprehensive analysis of a person’s
Healthcare team felt that the therapy    Hospital of North Staffordshire           progress through a pathway or
culture should form the basis of the     (UHNS) redesigned their services          service.
patient’s day. One way of achieving      along the lines of the Trondheim
this was by partnering members of        model in Norway following a visit to      Manage the human dimensions
the nursing and therapy staff during     the unit. (26) They have a                The Sheffield therapy project team
morning washing and dressing, and at     rehabilitation ward with joint working    was part of a bigger initiative
lunchtimes. This integrated approach     between nurses and therapists, with       delivering a seven day therapy service
also meant moving the therapy team       joint ward rounds and assessments.        across five clinical domains, with 26
to a base on the stroke rehabilitation   All the patient activities have a         staff to cover the weekend stroke
unit alongside the nursing staff.        rehabilitation focus and treatment is     service. It involved a major
                                         goal orientated rather than process       consultation process including
Project teams in South Devon,            orientated. Some tasks remain nursing     meetings with stewards and human
Medway Community Healthcare              tasks, and the therapists contribute      resources staff to ensure clarity and
and Sheffield therapy services           towards these.                            equitable decision making.
changed the start time for therapists                                              Communication systems were put in
to enable them to work more              To achieve this they reviewed therapist   place, including a reference group
inclusively with nursing staff, and      and nursing roles on the unit to          with a collection of staff across all
more effectively support the patients’   promote blurring of boundaries,           grades and all areas, which proved to
routine, fostering the rehabilitation    focusing on the needs of the patient      be a good barometer for staff
culture.                                 with family participation. Therapists     experience and gave the manager
                                         now work solely on the stroke unit        opportunities for regular and direct
Whilst not part of the original NHS      and are managed by the stroke unit        contact.
Improvement - Stroke project, the        manager. They have introduced new
team from the stroke service in Stoke-   roles that do not have profession
on-Trent undertook their own change      related titles, but are focused on
programme, addressing many of the        rehabilitation. All staff work shifts,
areas of interest to those looking to    nurses 24 hours and therapists seven
enhance access to therapy.               days, with band 2 staff alternating
                                         therapy and nursing rotas.




                                                                                                                            25
Mind the Gap: Ways to enhance therapy provision in stroke rehabilitation




  Staff fed back comments during the
                                               Challenges and solutions in Sheffield
  process that were reviewed
                                               Teaching Hospitals NHS Foundation Trust
  immediately. Actions were planned
  and communicated to the teams
                                               Moving and handling: non stroke-skilled staff need time to develop
  through the team leads, then
                                               confidence and familiarity with the handing procedures, protocols and
  published so that everybody was
                                               issues for stroke.
  aware of the responses made. Training
  and in-service training sessions were        Data collection and paperwork: simplify administration and
  provided as issues and concerns were         measurement. Be clear about data collection systems and how the service
  raised.                                      will be evaluated.

  The short time frame for                     Variation in assistants’ skills: capitalise on the enthusiasm and good
  implementation prevented the delivery        will of those working most frequently in the service, and be prepared to
  of the thorough training plan that had       support peripatetic and part-time staff.
  been envisaged, but orientations were
                                               Time and rosters for staff: establish a consistent start-time for
  provided, including tours of the unit,
                                               occupational therapy to better support nursing staff, enabling longer term
  clinical information and opportunities
                                               flexibility and consistency across all staff. Do this in stages, over the
  to ask questions and for shadowing.
                                               longer term.
  A duty manager worked each                   Staff engagement: Proper consultation is essential. It is particularly
  weekend to support the 26 staff              important to focus on the benefits for the patients.
  across two sites. This enabled staff to
  have on the spot support, and
  showed a management commitment
  to weekend working. Some duty             St Thomas’ Hospital team needed to             Analyse your workforce and
  managers also contributed to the          ensure that the rehabilitation support         design for the future
  clinical workload at the weekend. This    workers could be supported with the            The NHS Camden - stroke REDs
  was a valuable learning experience to     complexities of a dual role at                 service carried out a demand and
  help understand and manage the            weekends, and recognised their                 capacity exercise to develop a realistic
  process of change and support staff       perceptions of split loyalties as part of      and appropriate business case for an
  but did have cost implications.           both the rehabilitation and nursing            early supported discharge service,
  Possible alternatives are to provide an   staff. Initially all staff were trained, but   which suggested a ratio of patient
  on-call phone support, or to allocate     with turnover and staff migration, a           contact and non-contact time of
  the responsibility of a site lead to a    gap emerged. This was managed by               50:50. By using this ratio, supported
  band 7 or band 6 member of staff          taking a shared responsibility                 by other crucial data, they could
  working at the weekend.                   approach within the multidisciplinary          accurately identify the correct skill mix
                                            team, through incorporating the                of staff and the model required.
                                            rehabilitation skills into the
                                            competency documents for all nursing           Medway Community Healthcare
                                            and health care assistant staff. They          undertook a demand and capacity
                                            gained the sign up to the concept              exercise on the stroke rehabilitation
                                            from the team, adopting a different            unit. Challenges they faced were
                                            uniform for rehabilitation support             getting the staff to appreciate the
                                            workers at weekends and devolving              concept of ‘true demand’, and
                                            responsibility to the band 6 nurse for         understanding that the basic premise
                                            supervision and support for the                behind the data collection was that all
                                            rehabilitation support workers during          patients should get 45 minutes of
                                            their shifts.                                  each therapy daily. By carrying out the
                                                                                           exercise the team were able to




26
Mind the Gap: Ways to enhance therapy provision in stroke rehabilitation




re-examine their service objectively
and find time within the schedule to
allow the occupational therapist to
run a weekly carer clinic. They were
also able to introduce therapy
timetables on the ward with improved
compliance and support from the
nursing staff. The insights they gained
from the exercise were so useful that
it has been rolled out across their
entire stroke pathway.

The South Devon team completed a
demand and capacity exercise and as
a result implemented group sessions
in the gym three times a week,
timetabled to coincide with maximum
staff availability. They have allocated a
senior member of staff on each day
with dedicated time to update ‘the
big pieces of paperwork’, including
discharge summaries, overview
assessments and the continuing
healthcare screens. The remaining
staff can continue with the clinical
work, confident that the paperwork is
under control.



                                                                                                                27
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Mind the gap

  • 1. NHS CANCER NHS Improvement Stroke DIAGNOSTICS HEART LUNG STROKE MIND THE GAP TO WAYS ENHANCE THERAPY IN PROVISION STROKE REHABILITATION
  • 2. Acknowledgements Authors: With additional thanks for their support, contributions and comments to: Jill Lockhart, National Improvement Lead, NHS Improvement - Stroke Professor A Rudd, Stroke Physician, Guy’s and St Thomas’ Hospital Ina James, Team Leader Physiotherapist, Stroke Services, York Hospitals NHS Foundation Trust Professor V Pomeroy, Professor of Neurorehabilitation, University of East Anglia Gail Linstead, Stroke Service Improvement Manager, North of England Cardiovascular National rehabilitation projects 2009-10 Network Therapy Teams from Medway Healthcare and York NHS Foundation Trust With considerable thanks to the NHS Improvement - Stroke Increasing Access to Brighton Paradza, Senior Clinical Specialist Therapy National Project Teams: Physiotherapist, Cardiothoracic Acute Services, The James Cook University Hospital Sheffield Teaching Hospitals NHS Foundation Trust, Stroke Therapy Service Fiona Lunn, Nurse Consultant Stroke and the Stroke Team at University Hospital of North Sheffield Primary Care Trust Speech and Staffordshire NHS Trust Language Therapy Service into Sheffield Teaching Hospitals NHS Foundation Trust The Stroke Unit at St Thomas’ Hospital, Guys and St Thomas’ NHS Foundation Trust Newton Abbot Hospital Teign Ward and Torbay and Southern Devon Care Trust Stroke Therapy Team and Community Neurology Service Team, South Devon NHS Camden - stroke REDs team The community stroke team in Blackburn with Darwen, part of Lancashire Care NHS Foundation Trust South Tyneside NHS Foundation Trust Physiotherapy Stroke Team Stroke Rehabilitation Unit, St Bartholomew’s Hospital, Rochester, Kent, Medway Community Healthcare Chesterfield Royal Hospital NHS Foundation Trust Acute Stroke Unit Team
  • 3. Mind the Gap: Ways to enhance therapy provision in stroke rehabilitation Contents 4 Foreword 5 Executive summary 6 Introduction 8 National guidelines 10 Who can deliver more rehabilitation? 14 When - a seven day service? 17 How long - getting more out of the whole week? 22 Where can more therapy make a difference? 24 How - bridging the gap? 28 Conclusions 30 References 31 Case studies 32 NHS Camden – stroke REDs Improving access to 45 minutes of therapy for stroke patients 36 The community stroke team in Blackburn with Darwen, part of Lancashire Care NHS Foundation Trust Retrospective evaluation of therapy need and provision 37 Medway Community Healthcare Stroke Rehabilitation Unit, St Bartholomew’s Hospital, Rochester, Kent Improving access to 45 minutes of therapy for stroke patients 39 South Tyneside NHS Foundation Trust Increased stroke physiotherapy provision on stroke wards 40 Sheffield Teaching Hospitals NHS Foundation Trust Implementing seven day occupational and physiotherapy services for stroke 42 Sheffield Primary Care Trust and Sheffield Teaching Hospitals NHS Foundation Trust Sheffield stroke unit seven day working pilot for speech and language therapy 43 Chesterfield Royal Hospital NHS Foundation Trust Developing a seven day physiotherapy service on the acute stroke unit 44 Newton Abbot Hospital stroke unit with Torbay and Southern Devon Care Trust South Devon Stroke Services: Seven day working and 45 minutes of therapies 46 Guys and St Thomas’ NHS Foundation Trust Seven day service: Weekend rehabilitation support worker model 48 Stoke-on-Trent: University Hospital of North Staffordshire NHS Trust 49 Stakeholders 3
  • 4. Mind the Gap: Ways to enhance therapy provision in stroke rehabilitation Foreword One thing we have learnt from implementation of the National Stroke Strategy is that the NHS cannot be a Monday to Friday service any more for people who have had a stroke. The faster you act, the more of the person you save is the mantra for the medical emergency response, and increasingly, we are seeing this is what is needed for therapy services too. The NICE Quality Standards for Stroke gives therapists a standard to work to for the first time. This report gives you lots of ideas and methods to get started to make those standards a reality. It’s going to require hard work and soul searching to think carefully about what you do now and what can be changed and improved. I urge you to embrace this as a way to describe what you do and ensure it is valued by everyone. In a stroke team, rehabilitation is everyone's business. The teams featured in this report have learnt to share skills and to make rehabilitation the basis of the patient’s day. And that’s the key message. We must make sure the service works to meet the needs of the patient, not the other way around. Professor Sir Roger Boyle CBE 4
  • 5. Mind the Gap: Ways to enhance therapy provision in stroke rehabilitation Executive summary It is accepted that rehabilitation is an essential part of the management and treatment for stroke survivors - “Rehabilitation after stroke works. Specialist co-ordinated rehabilitation, started early after stroke and provided with sufficient intensity, reduces mortality and long-term disability.” National Stroke Strategy 2007 There is much diversity across the shape, content and delivery of rehabilitation and therapy services across England and this presents a challenge for both service improvement and research. All patients can have a rest day if it is Well organised and structured This project explored some of the appropriate, but it doesn’t always additional therapy services, delivered different models adopted by therapy need to be Saturday or Sunday for over more days of the week impact services to deliver more therapy/ every patient. Seven day therapy positively on patients and therapy rehabilitation in the context of major services enable equity of access and delivery (frequency and intensity) change within the NHS nationally and the opportunity for patients to begin across the whole week. locally. their treatment as early as possible. They support swifter multidisciplinary This work has, arguably, only This publication discusses their effect team engagement and speedier scratched the surface of the issue of on patients, services and organisations, progress, thereby capitalising on other therapy availability, yet hopefully, provides some useful learning to improvements to the front part of the provides useful ideas and insights. inform the debate with further detail stroke pathway. Meanwhile, seven day Project teams have shown the benefit about 45 minutes, process and community stroke services can have of applying systematic service outcomes and asks further questions more influence on hospital length of improvement analyses to their for therapy services to consider. stay than weekend therapy inpatient functioning, processes and patient services. outcomes. To support further The commonly emerging themes were development, more scientific research how important it is to understand Access to, and delivery of, 45 minutes in this area is also crucial. It is worth existing services fully by using therapy, improved when seven day noting that improved and efficient accurate data and relevant data services were available and following services create an environment in analysis, that managing human demand and capacity activity analysis which research can be better dimensions is paramount with making across the pathway. This improvement facilitated and enabled, and an such huge cultural changes within brought different benefits reflecting effective research culture within therapy services and the need to the service needs, patient stage of clinical services enhances their ability continue optimising workforce recovery and their goals. All models to care for their combinations and work collectively received very positive qualitative patients. along the pathway is essential to feedback from patients regardless of delivering effective responsive and who delivered it. timely services. 5
  • 6. Mind the Gap: Ways to enhance therapy provision in stroke rehabilitation Introduction There are many policy drivers for this project including the National Stroke Strategy (1), Royal College of Physicians (RCP) National Clinical Guidelines for Stroke (2), National Institute for Clinical Excellence (NICE) quality standards for stroke (3), and Care Quality Commission (CQC) report on stroke services (4). In addition, the requirement to improve quality and productivity to ensure services continue to meet demand within existing resources requires all services to review and maximise the use of their workforce. Therapy stroke services are facing increasing pressure as research suggests that their services deliver poorer outcomes, yet are better resourced than some European counterparts. (14) There is increasing pressure from commissioners to demonstrate the added value of specialist services, in comparison with generic ones. National standards set out the Project teams also wanted to expectations; however, services are understand more clearly which This can be viewed by therapists as a struggling to work out how to patients receive most therapy and why challenge to their services, or as an implement them. This publication this happens. The projects did not aim opportunity to examine practice summarises some practical service to examine the questions around ad objectively and pragmatically, gain a delivery solutions and the ways in hoc or formalised organisation of fuller understanding of how they can which these “Mind the Gap”. therapy services, whether more improve patient contact time and therapy improved clinical functional deliver higher quality rehabilitation Process of the projects outcomes, or the nature of the clinical across the stroke pathway. This would Aim approaches and modalities used. enhance the significant changes that The aim of this work was to: have already taken place in stroke care • Look at the impact of different and positively embrace the culture models that stroke services are using change required to deliver a to increase access to therapy and responsive, flexible, timely and rehabilitation relevant therapy service for stroke • Understand how to affect delivery survivors. of national quality standards, guidelines and aspirations for stroke services • See if there were any changes to treatment intensity or frequency, length of stay and other outcomes. 6
  • 7. Mind the Gap: Ways to enhance therapy provision in stroke rehabilitation Methodology This publication builds on the learning • South Devon - A combined team There were two project streams: from project sites in the national of therapists on the stroke 1. Delivering 45 minutes of rehabilitation projects 2009-10 (25) by rehabilitation unit at Newton Abbot therapy further work with the nine project Hospital, and community 2. Providing a seven day service. sites involved in delivering seven day neurology service or 45 minutes of therapy services. It is • The NHS Camden - stroke REDs There were nine project sites who not presented as scientific research, team participated in the project from both but service improvement work, with • Community stroke team in hospital and community measurement and comment Blackburn with Darwen, environments. accordingly. part of Lancashire Care NHS Foundation Trust Each site provided information on: Observations are included from other • South Tyneside NHS Foundation • Population sites across stroke and wider therapy Trust physiotherapy stroke team • Numbers of stroke patients services in England, and stroke • Medway Community Healthcare, referred therapy services in USA, Canada and the staff on the stroke rehabilitation • Type of service New Zealand. The publication includes unit at St Bartholomew’s Hospital, • Bed numbers (if applicable) some of the research evidence and Rochester, Kent • Staffing the results of a consultation with a • Chesterfield Royal Hospital NHS • Length of stay and/or functional wide range of relevant stakeholders. Foundation Trust acute stroke outcomes. unit team. Project teams Each site also collected data on The organisations taking part in the For ease of reading, teams will be approximately 30 patients. The projects were as follows: referred to by the emboldened titles samples were not comparable and are above in the rest of the document. only a snapshot of each site. Only one • Sheffield therapy team, from the site managed to collect data before Sheffield Teaching Hospitals NHS and after a change in service delivery Foundation Trust took place. The data included some or • Sheffield speech and language all of the following: therapy, from the Sheffield Primary Care Trust speech and language • Admission to treatment service into Sheffield Teaching • Frequency of treatment (i.e. how Hospitals NHS Foundation Trust often or on how many days therapy • The stroke unit at St Thomas’ was given) Hospital, Guys and St Thomas’ NHS • Intensity of treatment (how long the Foundation Trust treatment session was for) • Therapist opinion on frequency and intensity required • Reason for 45 minutes of therapy not being received • Staff, patient and carer satisfaction. 7
  • 8. Mind the Gap: Ways to enhance therapy provision in stroke rehabilitation National guidelines NATIONAL STROKE STRATEGY - QUALITY STANDARDS FOR DEPARTMENT OF HEALTH STROKE - NICE “People who have had strokes access Quality Standard - 5 high-quality rehabilitation and, with their Patients with stroke are assessed and carer, receive support from stroke-skilled managed by stroke nursing staff and at services as soon as possible after they least one member of the specialist have a stroke, available in hospital, rehabilitation team within 24 hours of immediately after transfer from hospital admission to hospital, and by all relevant and for as long as they need it.” (Quality members of the specialist rehabilitation Marker 10: High quality specialist team within 72 hours, with documented rehabilitation) multidisciplinary goals agreed within five days. “Survival is strongly associated with processes of care… such as early Quality Standard - 6 mobilisation, early feeding and measures Patients who need ongoing inpatient to prevent aspiration. Speech and rehabilitation after completion of their language therapists, physiotherapists, acute diagnosis and treatment are occupational therapists and dietitians treated in a specialist stroke have specific contributions to make in rehabilitation unit. delivering these particular aspects of care. The probable explanation for Quality Standard - 7 higher survival and lower Patients with stroke are offered a institutionalisation rates (on stroke units) minimum of 45 minutes of each active are the significant differences in both therapy that is required, for a minimum multidisciplinary team working – such as of five days a week, at a level that early assessment, goal setting and enables the patient to meet their discharge planning.” (Quality Marker 9: rehabilitation goals for as long as they Treatment) are continuing to benefit from the therapy and are able to tolerate it. “Existing staffing numbers and skill mix profiles are insufficient to deliver the Quality Standard -10 required input in stroke care pathways. All patients discharged from hospital Workforce review is therefore needed, who have residual stroke-related along with a workforce plan that defines problems are followed up within 72 the care pathway, lists the functions at hours by specialist stroke rehabilitation each stage and the competencies services for assessment and ongoing required to perform the functions, and management. then ensures training is put in place to support staff to acquire the competencies. “ It recommends that services “consider new and more flexible roles (i.e. expanding roles across professional boundaries)” (Quality Marker 18: Leadership and skills) 8
  • 9. Mind the Gap: Ways to enhance therapy provision in stroke rehabilitation NATIONAL CLINICAL GUIDELINE FOR STROKE, THIRD EDITION – ROYAL COLLEGE OF PHYSICIANS A) Patients should undergo as much therapy appropriate to their needs as they are willing and able to tolerate and in the early stages they should receive a minimum of 45 minutes daily of each therapy that is required. B) The team should promote the practice of skills gained in therapy into the patient’s daily routine in a consistent manner and patients should be enabled and encouraged to practice that activity as much as possible. C) Therapy assistants may facilitate practice but should work under the guidance of a qualified therapist. Further assessments can and should be undertaken later, and this set of recommendations focuses on those that are important in the first 48 hours; to identify major impairments that may not be obvious but that may have an influence on early management, guide prognosis and draw attention to immediate rehabilitation needs. “All patients with any impairment at 24 hours should receive a full multidisciplinary assessment using an agreed procedure or protocol within five working days, and this should be documented in the notes”. 9
  • 10. Mind the Gap: Ways to enhance therapy provision in stroke rehabilitation Who can deliver more rehabilitation? Flexibility and creativity about staffing What the stakeholders say KEY MESSAGES may be needed to deliver improved The general consensus from the rehabilitation for stroke patients. This stakeholders is that rehabilitation • A flexible and creative section describes the different assistants are a cost effective way of approach to rostering can approaches the projects took, and the ensuring that patients get a robust gain support from a wider impact. rehabilitation package, and may be pool of appropriate staff to essential to meeting both 45 minutes keep additional services What the evidence says and seven day therapy provision. sustainable and enhance The NICE quality standards define However services need to have clinical skills for therapists therapy services as physiotherapy, mechanisms in place to ensure that • Weekend services that include occupational therapy, and speech and these assistants have suitable acute and community staff language therapy. Individual patients supervision and support to maintain can assist with a smoother may require treatment from other the competencies required to follow transfer of care experience for professionals such as clinical professionally developed plans patient and carers psychologists and dieticians. They are effectively. • Additional rehabilitation relevant to all environments across the provided by a therapy team pathway. (3) Royal College of Other time consuming tasks such as has more impact meeting Physician (RCP) Guidelines state that completing outcome measures, required standards than when therapy assistants may facilitate the delivering equipment and some it is delivered by suitably practice but should work under the administrative tasks could be trained nurses guidance of the qualified therapist. (2) delegated to rehabilitation assistants • Stroke skilled support workers to free up qualified therapists’ time. can assist therapy services Practice outside the UK with achieving 45 minute In the US, state-funded Medicare The stakeholders also suggest that to therapy sessions and seven requires specifically physiotherapy, achieve both the access to seven day day services and are integral occupational therapy, and speech and services and 45 minutes of therapy, to achieving the NICE quality language therapy are delivered, but teams should take a more integrated standards services such as psychology are not approach to rehabilitation. Therapists • Joint working with nurses has included. Therapy services can be should increase involvement with the a positive effect on cohesion supported by rehabilitation patient and the wider team, and and compliance and can be technicians for administrative who where appropriate should include achieved in addition to direct support work and are not directly nursing staff and the family in therapeutic clinical contact involved in the provision of therapy promoting a continuous rehabilitation time services. Qualified occupational culture. This can also support the therapy assistants and physical patient towards self-management in therapy assistants may provide the longer term. therapy services directly to patients under the appropriate supervision of licensed therapists, and families are very engaged. 10
  • 11. Mind the Gap: Ways to enhance therapy provision in stroke rehabilitation Project findings The South Tyneside physiotherapy This model enables the service to The stroke unit at St Thomas’ stroke team provided a weekend meet the NICE quality standards 5 and Hospital offers an additional service for the stroke unit, by 6, the National Stroke Strategy and weekend rehabilitation service that is recruiting an additional band 5 the RCP guidelines for physiotherapy. provided by rehabilitation support physiotherapist and band 4 technical Their admission to assessment time workers who work as healthcare instructor to work five days improved from 52% within 72 hours assistants during the week. The comprising three during the week and (2008) to 93%. content and structure of the weekend two at the weekend. They solved the programme is selected by the recruitment challenge by including the The South Devon team on the stroke therapists from an ‘options menu’. post within the existing band 5 rehabilitation unit at Newton Abbot rotation scheme, and gradually rolled Hospital reallocated existing funding Whilst the 20 minute sessions the out the changes in contracts with for the band 5 physiotherapy post to rehabilitation support workers provide each new member of staff. fund three band 3 rehabilitation do not meet the NICE quality support assistants and four hours of a standards or RCP guidelines To ensure competence, supervision band 6 occupational therapist or specifically, they do demonstrate a and support the band 5 therapist can physiotherapist for Saturday. The proactive multidisciplinary approach to liaise with the on call therapy team at additional rehabilitation support rehabilitation, and support workforce weekends, and is supported during assistants are rostered from Saturday flexibility. Patients have a greater the rest of the week from within the to Tuesday, and the qualified staff number of rehabilitation contacts stroke team. The stroke team act from a rota of stroke skilled therapists during admission, but not therapy pragmatically and flexibly when there from the team and community direct contacts. Therapists feel that is a vacant post to provide a six day service. patients who use this service maintain service from within the existing staff. better ‘carry over’ for Monday than Their new model demonstrated an those who do not. Since the inception of the project, improvement in admission to many more patients have received 45 treatment time, with 100% of minutes of physiotherapy, and therapy patients being assessed within 72 has been provided at the weekend. hours compared to 80% in 2008. All appropriate patients were able to access 45 minute treatment sessions Percentage of patients seen for 45 minutes of therapy compared to 92% in 2008. Feedback before and after the changes in South Tyneside from patients and carers was already very good, but had highlighted a wish for more therapy opportunities. Before introduction of Since August 2009 Since August Since Aug 2009 project (week days) (week days) 2009 average daily (weekends) (seven day) Staff felt that communication between hospital and community 33.8% 75.6% 68% 68% services, and appreciation of the transfer process for patients, improved. It also meant that weekend staff had a reasonable frequency of shifts to maintain their work-life balance, and enabled community therapists to keep their acute rehabilitation skills up to date. 11
  • 12. Mind the Gap: Ways to enhance therapy provision in stroke rehabilitation The benefits for the patients, service In Blackburn with Darwen, the Assistant support staff, backed up by and carers with the new model community stroke team have competency based education, can outweighed the disadvantages of the established support links with a pool enable therapy services to improve loss of a band 5 rotational post on the of rehabilitation support workers and assessment time, and 45 minute service. intermediate care support staff which therapy sessions, more readily than enables them to provide 45 minutes healthcare assistants (Blackburn with In Sheffield Teaching Hospitals NHS of therapy, daily and for as long as Darwen community stroke team). Foundation Trust the occupational needed to meet NICE quality This is because of their contribution therapy and physiotherapy services, standards. Their data showed that within the team across seven days. moved from five to seven day services most of the 45 minute sessions were Healthcare assistants can bring as part of a major change across delivered by the rehabilitation different benefits, such as a greater therapy teams. The stroke service assistants with varied support from understanding of the rehabilitation included an ‘away team’ comprising qualified therapists. process when delivering nursing therapists from neurosciences, spinal care.(St Thomas’ Hospital). injuries and neuro-rehabilitation Summary services and a ‘home team’ All the models demonstrated higher The Sheffield therapy team project comprising staff from the stroke team. patient and carer satisfaction, but only demonstrated the challenges faced those that included additional when taking therapy staff with It was felt that although there were qualified staff were able to impact on common core neurology skills into a commonalities of clinical skills, the assessment time and the NICE quality different environment and the need to transposition of staff into a different standards. Traditional concerns around support and manage this carefully. In geographical location, with unfamiliar using band 5 therapists and sufficient South Devon a creative and inclusive equipment, protocols, documentation supervision at weekends were avoided approach to rostering meant weekend and profiles, required considerably by the South Tyneside model and in staff had the reasonable frequency of more adjustment and settling in time South Devon the loss of the band 5 shifts to maintain a work/life balance than had been anticipated. With up to was outweighed by the gains. No and enabled community therapists to 28 staff within therapy services model impacted negatively on keep their acute rehabilitation skills up working on a weekend a robust recruitment, supervision, retention of to date. support system was required which staff, or length of stay. included the rostering of a duty manager for therapy services at weekends to support staff and deal Sheffield Teaching Hospitals NHS Foundation Trust - with any staffing problems. Ability to deliver 45 minutes Before the seven day service, 100 Sheffield OT Sheffield PT physiotherapy and occupational 90 therapy were able to provide access to 80 45 minutes of therapy for 76% of the time, on average, for appropriate 70 patients. Post implementation this Percentage 60 increased to 92% for physiotherapy 50 and 91% for occupational therapy. NICE quality standards 5 and 6 were 40 achieved. The recommendations of 30 the National Stroke Strategy around 20 vital signs and early access to therapy, 45 minute sessions and delivery of 10 RCP clinical guidelines improved. 0 Pre seven day Post seven day 12
  • 13. Mind the Gap: Ways to enhance therapy provision in stroke rehabilitation Where teams instigated specific joint working, there were initial reservations from some therapy staff that their skills would be diluted. However, it was found to have positive effects not only on the patients and nursing staff directly, but on compliance with therapy timetabling, as therapists still had time to undertake their specific and highly complex therapy work. Joint working may improve communication; by working in tandem, information is passed on and there is less time wasted. In addition, there is greater consistency with handling and moving patients, an area often highlighted as a concern by patients. 13
  • 14. Mind the Gap: Ways to enhance therapy provision in stroke rehabilitation When - a seven day service? This section looks at the frequency of Practice outside the UK KEY MESSAGES rehabilitation required to meet NICE In the US, state funded Medicare quality standard 7 to offer therapy services adopt the ‘three hour rule’ - • Weekend therapy services input ‘for a minimum of five days a three hours a day of physiotherapy, impact on service delivery week’; and the potential alternatives occupational therapy and speech and across the whole week for delivery of additional services. language therapy five to six days a positively week. The staffing ratio is 7:1 patient: • Seven day services can have What the evidence says therapist each day, supplemented greater impact than six day Studies in US rehabilitation centres with administrative rehabilitation services found that factors such as function at technicians. • Additional days of therapy admission, length of stay and intensity services have a positive effect of therapy collectively contributed to In addition to this there are one to on admission to treatment greater functional gains, but length of two hours daily of occupational times and 45 minutes of stay and intensity of therapy alone did therapy or physiotherapy group therapy not always [Chen et al] (20) sessions and weekly speech and • Seven day therapy services cognitive group therapy sessions. enable patients to begin their A single study found moderate treatment as early as possible evidence that the same therapies In Canada, the requirement is for a • Seven day community stroke delivered more intensively, over a minimum of one hour of direct services can influence hospital shorter period of time, resulted in therapy for each relevant core therapy, length of stay and vital signs faster recovery and earlier discharge for a minimum of five days a week positively and more from hospital [Teasell et al] (5). based on individual need and significantly than single tolerance. (10) therapy weekend inpatient A trial conducted in Japan compared services outcomes for stroke patients admitted What the stakeholders say • Patients and carers welcome to a conventional stroke rehabilitation Access to therapy, and therapy additional rehabilitation programme five days per week and assessments, should be consistent and opportunities at weekends patients admitted to a programme continuous within rehabilitation seven days per week. The intensity settings across seven days. In turn, and frequency of treatment varied patients are more likely to respond between the programmes and better to therapy, avoiding a loss of patients were encouraged to remain momentum over a weekend and active outside of the structured therapists could have more capacity to sessions. Additional weekend therapy offer 45 minutes of therapy. Some resulted in significant improvements in stakeholders felt that patients need to FIM1 scores as well as a reduction in have a day of rest and reflection, and length of stay. [Sonoda et al] (21] they agreed that patients risk losing [Teasell] (5). out if this happens on a week day and no weekend service is available. 1The Functional Independence Measure (FIM) scale assesses physical and cognitive disability, focussing on level of disability, the burden of care. 14
  • 15. Mind the Gap: Ways to enhance therapy provision in stroke rehabilitation Project findings Qualitative data indicated that all In Chesterfield Royal Hospital, the In South Devon, the additional speech and language therapists seven day physiotherapy service on service over the weekend enabled involved in the pilot felt that they had the acute stroke unit found that patients to have an increase in impacted positively on patients by although they did not reduce length number of sessions. This also having this service, and 50% felt of stay significantly, there was a impacted positively on the team’s happy to be working at a weekend. gradual process of setting discharges ability to deliver 45 minute sessions. The team noted that there seemed to for earlier in the week than before. Patients’ length of stay was already be more clinical need for dysphagia They commented on an improved feel improving and could not solely be assessment than dysphasia treatment. to Mondays due to the reduced attributed to the additional weekend pressure to catch up with the backlog service. In the Sheffield therapy team, funds from the weekend. were provided for seven day working For the South Tyneside team, the across orthopaedics, stroke, ‘front of Blackburn with Darwen community seven day physiotherapy service door’ and respiratory services. The stroke team and NHS Camden - assessed all patients within 24 hours additional service for stroke comprised stroke REDs community stroke and delivered 45 minute sessions an occupational therapist, a teams both operate through a where appropriate, although length of physiotherapist and two assistants multidisciplinary ‘in reach’ model and stay was not significantly altered. The who took their time back from provide occupational therapy, team agreed that to do that a similar existing services in the week. physiotherapy, speech and language service from occupational therapy therapy five days a week and would be needed. At the weekend patients were ‘enabling care’ (rehabilitation support prioritised according to four criteria: through suitably trained social care The Sheffield speech and language staff) seven days a week. They meet therapy team piloted Saturday 1. To facilitate discharge NICE quality standards 7 and 10, the morning working over three months 2. Eligibility for existing ESD RCP guidelines and quality marker 10 on the acute stoke unit. The service 3. New patients (rehabilitation) quality marker 12 was provided by band 6 and 7 speech 4. Other rehabilitation patients (transfer of care and health and social and language therapists, from a roster care joint working) and quality marker of paid volunteers. In the pilot they The team noted that the effect of 19 (workforce) of the National Stroke found, from a small sample size, that seven day working within stroke Strategy. NHS Camden - stroke 80% of patients referred to speech seemed to be stronger for facilitating REDs data showed a significant and language therapy were seen discharge. Their data showed a contribution to reducing length of within 24 hours, 25% of patients positive impact on admission to stay in the acute hospital, now down required daily speech and language assessment times from 62 hrs to 10 days, and demonstrated to local therapy at some point in their stay, (occupational therapy) and 47.4 hours organisations the contribution of but not consistently across their whole (physiotherapy) pre change, to 25.6 comprehensive and responsive inpatient spell, and more than 50% hours for occupational therapy and community stroke services to required 45 minutes on some days. 30.4 hours for physiotherapy post resolution of acute challenges. change. 15
  • 16. Mind the Gap: Ways to enhance therapy provision in stroke rehabilitation Summary through whole pathway change, The project teams reported that the when all services operate across seven biggest impact of a seven day service days. Single professional changes, in was on admission to treatment time one part of the pathway only, are and the ability to provide an equitable unlikely to have a significant impact service. Once this had occurred, they on length of stay or cost benefits for found that the whole working week an organisation. (South Tyneside). began to change too, and therapists However, they do have a positive could offer more contact time. effect on satisfaction levels, speedier access to assessment and frequency Services across seven days moved and intensity of sessions for those closer to achieving the NICE quality patients who can tolerate it. standard than six day services. Findings of teams from Medway Patients also value opportunities for Community Healthcare and York more therapy across the pathway. Hospital NHS Foundation Trust in the Therapy services may consider national projects 2009 - 2010 who developing seven day services as a first delivered a six day therapy service step towards achieving 45 minute improved admission to treatment therapy sessions, because of its impact time, but could not achieve 100% on intensity as well as frequency. (25). Seven day services in South Tyneside and Chesterfield Royal However, any opportunity to enhance Hospital achieved this standard. This rehabilitation, by weekend sessions is likely to be due to a removal of the from suitably trained healthcare weekend backlog of outstanding assistants (St Thomas’ Hospital) or, assessments on Mondays, freeing up by joint working (Medway more time each day to allocate for Community Healthcare and South direct treatment and the effect of a Devon) or by having an additional seven day presence on presence (Sheffield speech and communication between the language therapy) can bring benefit; multidisciplinary team, and with either for multidisciplinary team patients and carers. Models that used cohesion, mutual support, and existing therapy staff differently or education or simply improving over more hours in the week found communication and reducing the more opportunities to deliver a greater need for additional documentation. proportion of 45 minute sessions and for joint working than in five days. The findings of the projects show that, once established, the culture of a seven day service facilitates more timely decision making. (Chesterfield Royal Hospital) It has the potential to shorten length of stay 16
  • 17. Mind the Gap: Ways to enhance therapy provision in stroke rehabilitation How long - getting more out of the whole week? This section deals with the intensity of For example, one survey observed that What the stakeholders say a patient’s therapy, meeting the NICE a significant treatment effect was Stakeholders indicated that therapy quality standard of 45 minutes. achieved among studies which should be available to patients as early provided a mean of 8.8 hours of as possible once they are medically What the evidence says therapy per week for 11.2 weeks stable, and commented that There is evidence to show that higher compared to trials that only provided psychology should be included intensities of treatment can impact approximately two hours per week for because if problems are left significantly on outcomes, activities 22.9 weeks. [Bhogal et al] (24). One unattended, they can become worse for daily living and reduce study that looked into the benefits of over time. Some suggested that if in impairments. [Langhorne et al] (7) aphasia therapy reported problems the early stages some patients are [Kwakkel et al] (11) Patients may not with patients’ tolerance of intensive unable to tolerate a single 45 minutes benefit equally, which makes specific therapy. However, patients who session, services can deliver multiple guidance about intensity of received an average of 1.6 hours of shorter sessions over the course of rehabilitation therapy harder to therapy per week had significantly one day. provide. [Duncan et al] (9). higher scores than those who received Many therapists express concern only 0.57 hours of therapy. [Bakheit et If two therapy staff are involved in a about how many patients can tolerate al] (23). joint session and are working on 45 minutes of therapy. However, different aspects of therapy, and the physiotherapists have been shown to Practice outside the UK session is goal directed, then this can overestimate the duration of therapy, Canadian guidelines state that be counted as two sessions. and that intensity of treatment is also “Patients should receive the intensity dependent on the ability and the and duration of clinically relevant Stakeholders don’t yet agree what willingness on the part of the patient. therapy defined in their individualised constitutes 45 minutes of ‘contact’ [Teasell et al] (5). rehabilitation plan and appropriate to time. For the first time therapists have their needs and tolerance levels.” been given a treatment time Greater benefit may be achieved if (intensity) guide of 45 minutes but high-intensity therapies are provided In the US, a patient must be able to need to maintain a level of flexibility in the early stages of rehabilitation. safely tolerate the level of within this to accommodate patient [Teasell et al] (5). rehabilitation therapy programme individual needs. Some therapeutic provided in an inpatient rehabilitation interventions, such as psychology, may There is not conclusive evidence that unit. The intensity of therapy provided not fit well with a rigid time frame. more intensive speech and language must further the patient’s progress in Some academic stakeholders therapy is better than less intensive meeting goals, rather than setting the commented that services should be therapy, although for patients who patient back by overtaxing them. offering ‘up to’ 45 minutes. However, can tolerate it, more intensive therapy Publicly funded stroke rehabilitation other front line stakeholders felt that appears to result in improved facilities do not receive payment anything less than 45 minutes might outcomes. [Teasell et al] (5). On unless they provide at least three be limiting and therefore less average, positive studies provided a hours a day of therapy, 55 minutes of effective. This may be due to the total of 98.4 hours of therapy while one-on-one therapy sessions with differences in definition of what negative studies provided a total of physiotherapy, occupational therapy counts towards ’45 minutes of 43.6 hours of therapy. and speech and language therapy. If therapy’ and the debate around the patient is unable to tolerate this, direct/non-direct therapy. then it should be given in two 30 minute sessions. (6) 17
  • 18. Mind the Gap: Ways to enhance therapy provision in stroke rehabilitation Some people have started to refer to therapy, yet the same patient group KEY MESSAGES the amount of time a patient has for had least success as recorded by the • Patients do not all benefit therapy as the ‘dose’, to start to goal attainment scale. They equally from access to 45 formalise the requirement for a set recommend that therapy services minute therapy sessions amount of therapy time to be should adopt a menu of outcomes, to • In the community, patients available per patient, per day. inform service development. with more severe disability improved most with access to Stakeholders felt that access to both Using the NICE clinical standard of 45 45 minute therapy sessions 45 minutes of each therapy and seven minutes of therapy per day, five days a • Patients’ need for, and day services should reduce length of week, each patient should get 990 tolerance of, 45 minutes can stay through faster completion of minutes of therapy over the six weeks fluctuate, so services need assessments, more time for discharge they are with the team. The team to be sufficiently flexible and planning, faster improvements in found 17.5% of patients achieved the responsive to meet this mobility, activities of daily living, and required amount of therapy from • Joint working with nurses has patients managing at home more physiotherapy, 21.5% from a positive effect on cohesion quickly. occupational therapy and 11.1% from and compliance and can be speech and language therapy. Those achieved in addition to direct Project findings patients who received 990 minutes of therapeutic clinical contact NHS Camden - stroke REDs agreed occupational therapy and time local definitions and clarified contact physiotherapy had an average • Multiple 45 minute episodes and non contact activities for their increase in their Barthel scores of 6.4 by individual disciplines during service and the team reviewed data points, compared to an average a day may be difficult for a for 91 patients across six weeks of increase of 3.4 points by those who patient to manage; combined, rehabilitation, comparing the intensity didn’t and an average increase in their goal orientated visits work of therapy received using valid clinical Nottingham Extended Activities of • Staff may need to collect data outcome measures. The data showed Daily Living (NEADL) scores of 12 to challenge their own that patients with lowest Barthel points, compared to 10 points for assumptions about why scores had the greatest need of, and those who didn't. services are not being benefited most, from access to provided, to be sure it is because patients cannot tolerate it, and not because of NHS Camden - stroke REDs - the ability of the service to 45 minutes - impact on Barthel score points gained provide it • Services that operated over 35 Met Not met seven days had more success 30 in meeting the 45 minute guideline 25 Percentage 20 15 10 5 0 0-2 2-4 4-6 6-8 8-10 10-12 12-14 14+ 18
  • 19. Mind the Gap: Ways to enhance therapy provision in stroke rehabilitation There is a significant difference with the Barthel outcome measures, when NHS Camden - stroke REDs- Reasons for not receiving 45 minutes of therapy compared with the sample of patients Declined daily therapy who get least therapy in terms of time Clinically not required (intensity) and number of visits No SLT required (frequency). At the start of No occupational therapy required intervention the Barthel for this group No physiotherapy required No staff capacity with most amount of therapy is lower. Patient unavailable This suggests that people, who Patient fatigued received the most therapy in terms of Patient refused intensity, were functioning at a lower Patient poorly level, based on the Barthel (average 0% 10% 20% 30% 40% 50% 60% score of 11.8) Regarding progress and change in the Barthel scores, this group of patients made significantly larger gains ‘Continuing to benefit’ and ‘able to tolerate’ should be (average of 6.3) when compared to those who received the least amount defined jointly by both patient/carer and MDT. of therapy. The team make joint decisions with ‘Therapy time’ is anything related to person focussed the patient about what level of rehabilitation facilitated by a specialist stroke practitioner intensity is appropriate for them. They and evaluated using clinical outcome measures. collected data to determine the reasons why 45 minutes of therapy NHS Camden - stroke REDs was or was not achieved for each patient. Thirty percent of patients reported fatigue as a major factor affecting ability to participate in an 3. Non-manageable at home – ranging from 14 – 49 days of 45 intensive therapy programme at residential intermediate care bed minutes of therapy, two to three times home. For many patients there were with CST therapist support each day, over seven days. Patients on multiple reasons why 45 minutes of 4. Residential/nursing care – CST core pathway one with mild and minimal therapy was not achieved. team visit on discharge to check disability required much less intensive correct patient management. therapy. People in care homes may Blackburn with Darwen community need 45 minute sessions of therapy stroke team focuses on meeting They defined therapy for their service each day to improve a particular task. patient need rather than just early locally, and analysed a database of 20 discharge for people in both hospital patients to determine which patients On the whole, there were more 45 and community through four needed or benefited from 45 minute minutes of therapy contacts from pathways of support. sessions, and from which therapies, rehabilitation assistants with varied and examined the range from each input from therapists. Patients with 1. High functioning – home with core therapy and the service. moderate to total dependency team support only (Barthel) received most input from 2. Lower functioning but manageable They found that not all patients support workers and intermediate at home – home with community needed 45 minutes of therapy each care support staff, enabling the stroke team (CST)therapists and day, and that the need varied greatly. community stroke team to provide 45 domiciliary rehab team support Patients with moderate to severe minutes of therapy daily for as long as levels of disability (pathways two to needed. four) needed a level of support 19
  • 20. Mind the Gap: Ways to enhance therapy provision in stroke rehabilitation Local definition of therapy Any assessment or treatment provided by the qualified therapist from the community stroke team (CST) including physiotherapy, occupational therapy or speech and language therapy. Any therapy intervention which is part of the programme set by CST qualified staff and carried out by our rehabilitation support workers, on one of our pathways. Blackburn with Darwen community stroke team Blackburn with Darwen community stroke team - retrospective data on therapy need and provision Average Range Average days 45 Range Average other Range length of stay minutes therapy 45 minutes days in service from core stroke from support team service Pathway 1 131 22 - 265 50 1 -149 Pathway 2 175 110-243 68 52-97 43 40 -49 Pathway 3 141 84 -195 42 41-69 29 14 -42 Pathway 4 220 43 - 574 86 9-225 38 38 The Sheffield speech and language The South Devon team, as part of a against the percentage that received therapy team initially questioned demand and capacity exercise, 45 minutes per therapy group across whether 45 minutes would be right showed that they had only small all project teams. for each patient and whether their numbers of patients who could service needed to be more flexible to tolerate 45 minutes of each active Those who were assessed as needing deliver it. The project enabled them to therapy for five days a week and that 45 minutes of therapy, tended to get identify that 25% of patients required they had a surprising number of it when the services were increased. daily speech and language therapy refusals due to fatigue. Within the therapies, speech and intervention and over 50% needed 45 language therapy is suggested as the minutes on certain days. The pilot was The issue of judging whether a patient area where it is hardest to meet not long enough to demonstrate continues to benefit and/or is able to assessed need. whether daily availability of speech tolerate remains a subjective and language therapy could impact assessment on the part of the on adverse effects for patients, e.g. therapists. The scatter plot, taken incidence of aspiration pneumonia, from data from the projects, shows but staff found that being available on the percentage of patients thought to a Saturday had a positive effect on benefit from or tolerate 45 minutes patients. 20
  • 21. Mind the Gap: Ways to enhance therapy provision in stroke rehabilitation Seven day working enabled the work Numbers of patients who could tolerate 45 minutes of therapy to be more equitably spread across a week, which meant there were more 100 opportunities to achieve 45 minute % 45 minutes delivered therapy sessions (Chesterfield Royal 80 Hospital, South Tyneside, and South Devon). 60 Some of the teams’ initial 40 preoccupation with attempting to define the detail around 45 minutes 20 issues translated into attention to methods of changing the shape of 0 their service, and the ways in which 0 20 40 60 80 100 they worked, so that they could % assessed as needing 45 minutes of therapy deliver: SLT OT PT • More hands on treatment each day • A flexible response to patient need • More opportunities for therapy in a variety of forms. Summary In the community, patients with more The project teams’ findings mirrored severe disability improved most with Focussing more on improving service international guidance around access to 45 minute therapy sessions. delivery may better enable therapy tolerance and therapy. NHS Camden services to provide a service that - stroke REDs and Blackburn with Where therapy services collected data meets national guidelines and be able Darwen community stroke team data for when a 45 minute treatment to offer the right therapy at the right allowed detailed analysis of allocation session occurred, and if not, why not, time, for the right reasons to the right and uptake of the 45 minute sessions. it offered them valuable insight into patients as and when they can It supported the research findings that their reasoning processes and fixed tolerate it and need it. one size does not fit all and of the assumptions that may be derived from complexities created by organisations practice or working to prioritisation The project findings demonstrated and priorities. protocols. Some teams at each stage that ‘therapy’ relates to allied health of rehabilitation reported that more professions, including assistants, but Their pragmatic approach based patients could tolerate 45 minutes if that any opportunity to enhance on thorough assessment, good it was available and the data showed rehabilitation, either by weekend multidisciplinary team communication, that where it was not possible to sessions from suitably trained shared skills and competencies, deliver it, it was often due to the healthcare assistants (St Thomas’ involving the patient and carers and service organisation. This suggests Hospital), by joint working (Medway SMART (Specific, Measurable, that services might learn from Community Healthcare and South Attainable, Relevant and Timely) undertaking demand and capacity Devon) or by having an additional multidisciplinary team goals enabled exercises and reviewing their practice presence (Sheffield speech and them to avoid unnecessary and processes, before making language therapy) can bring 45 minute sessions without changes in staffing, or requesting benefit. compromising outcome and additional resources, endorsed by the preventing fatigue for people at findings of Medway Community home. This information is also Healthcare. valuable to inform the commissioning services, and developing resources. 21
  • 22. Mind the Gap: Ways to enhance therapy provision in stroke rehabilitation Where can more therapy make a difference? Projects were drawn from across the Project findings KEY MESSAGES stroke pathway and demonstrated The Chesterfield Royal Hospital that seven day services had a benefit team provided a seven day • Patients can benefit from in all settings. physiotherapy service on an acute access to seven day therapy stroke unit. Data showed services in all settings across What the evidence says improvements in NICE quality the pathway The Collaborative Evaluation in Stroke standards 5 and 6 and the RCP • The benefits and opportunities across Europe (CERISE) studies guidelines for physiotherapy from seven day therapy conclude that whilst there is evidence assessment times. There was no services vary along the for the positive effect of intensive significant effect on length of stay, but pathway, reflecting the task-specific exercise on the functional some individual reductions, which different needs of the patient recovery of stroke patients, stroke suggested planning discharges earlier • Individual requirements for 45 rehabilitation units in the UK are not in the week was having an effect. minutes of therapy can vary organised to optimise the amount of during the course of their therapy given to patients. Included The South Tyneside, Medway, journey along the pathway, within this are aspects of environment South Devon and Sheffield therapy not just depending on their and culture, organisational priorities, teams delivered their additional medical status, but also on different healthcare systems with their service on a stroke rehabilitation unit. their goals different barriers and incentives to The South Tyneside unit is now able • Therapy support workers can change, case mix and admission to achieve the NICE quality standards assist with successful delivery criteria. [Putman et al] (13,15) 5, 6 and 7 and RCP guidelines for of 45 minutes and a seven day physiotherapy and have identified that service at all stages However, it may also be worth noting the next stage is to develop the that although in international occupational therapy service. In South comparisons, UK stroke units had the Devon and Medway Community lowest therapy contact time and best Healthcare, the teams are working to The Blackburn with Darwen and staffing, they also had rehabilitation identify how to improve the service NHS Camden - stroke REDs units with the least exclusion criteria further to be able to offer additional community teams both have robust and decisions about therapy for opportunities for therapy, by data collection systems. This supports patients were more often made by reviewing their use of non contact extensive analysis which enables them clinicians. time, and developing sustainable to identify the effect of 45 minutes of group work. therapy on clinical and service What the stakeholders say outcomes. This has resulted in Stakeholders felt that seven day The Sheffield therapy team reflected improved multidisciplinary team goal services should be available across the on the experience and their data and setting, predicting outcomes and pathway from hyperacute to early identified some questions for further devising effective packages of supported discharge teams in the discussion locally about organisation intervention on an individual basis, community, where patients continue and distribution of therapy resources maximising the use of their skill mix. to benefit. along the stroke pathway. They are both able to demonstrate a positive financial impact on the acute Patient feedback in the Sheffield service through reducing length of speech and language therapy stay, and for social care by reducing project indicated that during the acute final packages of care. Blackburn stage of the pathway they want to with Darwen community stroke receive a seven day service, but are team (2010) reduced final packages less keen when they are back at home of care per week by 240 hours of as they welcome a break at care/week, equating to £93,600 weekends. savings per year. 22
  • 23. Mind the Gap: Ways to enhance therapy provision in stroke rehabilitation Summary In the community, therapists were The project teams crossed the able to look at resolving the challenge pathway from hyperacute stroke unit of overloading the patients with to community teams, and in all cases excessive visits through developing they made a difference. shared competencies and multiskilled staff delivering goal orientated However, in each setting, additional sessions (NHS Camden - stroke services bought other, slightly REDs and Blackburn with Darwen different gains too, reflecting the community stroke team). stage of recovery and different needs of the patients from each Feedback from carers, and other staff environment. was positive regardless of location. In South Devon and Medway Seven day therapy services have a Community Healthcare, the teams value in all settings across the had developed joint working with pathway; specifically to deliver equity nursing staff and were considering of access to assessment and, where group work. This is probably more these exist, the project teams found a viable and sustainable on a stroke positive effect on direct contact time rehabilitation unit than in an acute and 45 minutes of therapy. stroke unit where the focus was more on developing an equitable service across the week, and facilitating speedier and smoother transfer on (Chesterfield Royal Hospital, South Tyneside and Sheffield therapy). 23
  • 24. Mind the Gap: Ways to enhance therapy provision in stroke rehabilitation How - bridging the gap? ”The gap”- themes from the research Collaborative Evaluation in Stroke across Europe (CERISE) studies have shown that stroke patients in the UK spend much less time engaged in therapy than in European rehabilitation units. Findings for the UK suggest one hour a day, compared with three in Switzerland. In all centres, physiotherapy comprised nearly 40% of therapeutic time, but occupational therapy comprised 20% - 30%, except in the UK unit where it was 11.6%. In the UK, 35% of therapy time consisted of nursing care. After correction for case-mix, overall therapy time in the UK unit was significantly less than the other countries, and the differences in therapy time were not attributable to differences in staffing. [De Witt] (14) (16) (17) In a more recent study, therapy some significant difference in content. However, stakeholders and some staffing levels were comparable with They refer to the ‘black box’ of therapy services reported challenges existing literature, yet there was wide challenges around understanding and embedding group work within stroke unexplained variation in contact time measuring what therapists do; such as unit routines for various reasons, with the patient. Seventy five percent lack of reporting the detailed including lack of time, staff availability of patients received less than an hour characteristics of the interventions, to transport patients and difficulty of therapy, and 25% less than half an the complexity and diversity of gaining sustained nursing support. hour of any therapy each day. The interventions and the potential range lowest levels of therapy input were of different approaches used, along Develop a seven day from speech and language therapists, with the practice adopted by rehabilitation culture with only 25% of patients having any therapists of reliance on clinical Project teams in the community contact with a therapist, and a experience rather than on theoretical (NHS Camden - stroke REDs and median contact time of 30 minutes. frameworks, and the overlap and Blackburn with Darwen community [Rudd et al] (19) blurring associated with joint working. stroke team) and on stroke [De Witt] (12) rehabilitation units (South Devon Part of the CERISE study explored the and Medway Community relationship between the content of One possibility for increasing contact Healthcare) have undertaken work therapy and the level of patient motor time is through group work. Recent specifically to develop their impairment, expecting the content of studies have also shown that the rehabilitation culture. therapy to differ in patients with efficiency of limited therapeutic different levels of motor impairment. resources can be increased by using They found significant differences in circuit training programmes in which a duration of physiotherapy and group of patients is allowed to occupational therapy sessions and practice at different workstations at the same time, under the supervision of a therapist. [Kwakkel et al] (8) 24
  • 25. Mind the Gap: Ways to enhance therapy provision in stroke rehabilitation Understand the data KEY MESSAGES Both Blackburn with Darwen and • Develop a rehabilitation culture in your team NHS Camden - stroke REDs • Visit a successful site prior to making change to improve understanding community stroke teams have and support for the process locally established comprehensive databases • Consider a single management system for nursing and therapy which which enabled them to thoroughly can improve line management consistency, provide better coordination understand their services and and enhance stroke specialist clinical governance outcomes, especially around access to • Involve and include staff and establish good communication processes and delivery of 45 minute therapy • Be prepared for staff objections and manage these through good sessions. Their systems work communication processes alongside, and in addition to, local • Understand the team’s true demand and real capacity to improve databases which have limited ability to understanding, planning and control of the work, enabling more provide useful qualitative and therapy time to be offered. quantative information about therapy services. The initial additional effort required for data entry is outweighed by the benefits derived from The Medway Community The stroke service in the United comprehensive analysis of a person’s Healthcare team felt that the therapy Hospital of North Staffordshire progress through a pathway or culture should form the basis of the (UHNS) redesigned their services service. patient’s day. One way of achieving along the lines of the Trondheim this was by partnering members of model in Norway following a visit to Manage the human dimensions the nursing and therapy staff during the unit. (26) They have a The Sheffield therapy project team morning washing and dressing, and at rehabilitation ward with joint working was part of a bigger initiative lunchtimes. This integrated approach between nurses and therapists, with delivering a seven day therapy service also meant moving the therapy team joint ward rounds and assessments. across five clinical domains, with 26 to a base on the stroke rehabilitation All the patient activities have a staff to cover the weekend stroke unit alongside the nursing staff. rehabilitation focus and treatment is service. It involved a major goal orientated rather than process consultation process including Project teams in South Devon, orientated. Some tasks remain nursing meetings with stewards and human Medway Community Healthcare tasks, and the therapists contribute resources staff to ensure clarity and and Sheffield therapy services towards these. equitable decision making. changed the start time for therapists Communication systems were put in to enable them to work more To achieve this they reviewed therapist place, including a reference group inclusively with nursing staff, and and nursing roles on the unit to with a collection of staff across all more effectively support the patients’ promote blurring of boundaries, grades and all areas, which proved to routine, fostering the rehabilitation focusing on the needs of the patient be a good barometer for staff culture. with family participation. Therapists experience and gave the manager now work solely on the stroke unit opportunities for regular and direct Whilst not part of the original NHS and are managed by the stroke unit contact. Improvement - Stroke project, the manager. They have introduced new team from the stroke service in Stoke- roles that do not have profession on-Trent undertook their own change related titles, but are focused on programme, addressing many of the rehabilitation. All staff work shifts, areas of interest to those looking to nurses 24 hours and therapists seven enhance access to therapy. days, with band 2 staff alternating therapy and nursing rotas. 25
  • 26. Mind the Gap: Ways to enhance therapy provision in stroke rehabilitation Staff fed back comments during the Challenges and solutions in Sheffield process that were reviewed Teaching Hospitals NHS Foundation Trust immediately. Actions were planned and communicated to the teams Moving and handling: non stroke-skilled staff need time to develop through the team leads, then confidence and familiarity with the handing procedures, protocols and published so that everybody was issues for stroke. aware of the responses made. Training and in-service training sessions were Data collection and paperwork: simplify administration and provided as issues and concerns were measurement. Be clear about data collection systems and how the service raised. will be evaluated. The short time frame for Variation in assistants’ skills: capitalise on the enthusiasm and good implementation prevented the delivery will of those working most frequently in the service, and be prepared to of the thorough training plan that had support peripatetic and part-time staff. been envisaged, but orientations were Time and rosters for staff: establish a consistent start-time for provided, including tours of the unit, occupational therapy to better support nursing staff, enabling longer term clinical information and opportunities flexibility and consistency across all staff. Do this in stages, over the to ask questions and for shadowing. longer term. A duty manager worked each Staff engagement: Proper consultation is essential. It is particularly weekend to support the 26 staff important to focus on the benefits for the patients. across two sites. This enabled staff to have on the spot support, and showed a management commitment to weekend working. Some duty St Thomas’ Hospital team needed to Analyse your workforce and managers also contributed to the ensure that the rehabilitation support design for the future clinical workload at the weekend. This workers could be supported with the The NHS Camden - stroke REDs was a valuable learning experience to complexities of a dual role at service carried out a demand and help understand and manage the weekends, and recognised their capacity exercise to develop a realistic process of change and support staff perceptions of split loyalties as part of and appropriate business case for an but did have cost implications. both the rehabilitation and nursing early supported discharge service, Possible alternatives are to provide an staff. Initially all staff were trained, but which suggested a ratio of patient on-call phone support, or to allocate with turnover and staff migration, a contact and non-contact time of the responsibility of a site lead to a gap emerged. This was managed by 50:50. By using this ratio, supported band 7 or band 6 member of staff taking a shared responsibility by other crucial data, they could working at the weekend. approach within the multidisciplinary accurately identify the correct skill mix team, through incorporating the of staff and the model required. rehabilitation skills into the competency documents for all nursing Medway Community Healthcare and health care assistant staff. They undertook a demand and capacity gained the sign up to the concept exercise on the stroke rehabilitation from the team, adopting a different unit. Challenges they faced were uniform for rehabilitation support getting the staff to appreciate the workers at weekends and devolving concept of ‘true demand’, and responsibility to the band 6 nurse for understanding that the basic premise supervision and support for the behind the data collection was that all rehabilitation support workers during patients should get 45 minutes of their shifts. each therapy daily. By carrying out the exercise the team were able to 26
  • 27. Mind the Gap: Ways to enhance therapy provision in stroke rehabilitation re-examine their service objectively and find time within the schedule to allow the occupational therapist to run a weekly carer clinic. They were also able to introduce therapy timetables on the ward with improved compliance and support from the nursing staff. The insights they gained from the exercise were so useful that it has been rolled out across their entire stroke pathway. The South Devon team completed a demand and capacity exercise and as a result implemented group sessions in the gym three times a week, timetabled to coincide with maximum staff availability. They have allocated a senior member of staff on each day with dedicated time to update ‘the big pieces of paperwork’, including discharge summaries, overview assessments and the continuing healthcare screens. The remaining staff can continue with the clinical work, confident that the paperwork is under control. 27