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NHS
CANCER
                               NHS Improvement
                                          Stroke


DIAGNOSTICS




HEART




LUNG




STROKE




Psychological care after stroke:
Economic modelling of a clinical
psychology led team approach
Authors

Sarah Gillham - National Improvement Lead,
NHS Improvement - Stroke

Michael Carpenter - Associate, NHS
Improvement - Stroke

Dr Michael Leathley - Research Fellow
Clinical Practice Research Unit, University of
Central Lancashire

Acknowledgements

Grateful thanks to all who contributed to        Dr Peter Knapp, Senior Lecturer, Department
the discussions about the assumptions and        of Health Sciences and the Hull York Medical
evidence on which the model is based, and        School, University of York
to those who reviewed and commented on
the finished paper.                              Dr Ian Kneebone, Consultant Clinical
                                                 Psychologist and Visiting Reader, University
The Stroke Improvement Programme                 of Surrey, Haslemere and District Community
psychological care after stroke consensus        Hospital and Associate, NHS Improvement -
group                                            Stroke

Dr Jane Barton, Consultant Clinical              Professor Nadina Lincoln, Professor of
Psychologist, Michael Carlisle Centre, Nether    Clinical Psychology, University of
Edge Hospital, Sheffield                         Nottingham

Dr Roger Beech, Reader in Health Services        Jill Lockhart, National Improvement Lead,
Research / Director, Keele University Hub,       NHS Improvement - Stroke
West Midlands NIHR Research Design Service
                                                 Dr Jessica Read, Clinical Psychologist,
Dr Noelle Blake, Head of Neuropsychology,        Lancashire Care NHS Foundation Trust
Croydon Health Services NHS Trust
                                                 Professor Tom Robinson, Stroke Consultant,
Dr Bridget Carew, Clinical Psychologist, Royal   University Hospitals of Leicester NHS Trust
Free Hospital                                    and Clinical Lead for SIP

Dr Helen Hosker, Central Manchester Clinical     Dr Becky Simm, Principal Clinical
Commissioning Group, Lead for Urgent Care,       Psychologist, Southport and Ormskirk NHS
Clinical Commissioning Lead for Stroke and       Hospital Trust
Falls, NHS Manchester
                                                 Dr Kate Swinburn, Research and Policy
Professor Allan House, Director, Leeds           Manager, Connect - the communication
Institute of Health Sciences                     disability network
Psychological care after stroke: Economic modelling of a clinical psychology led team approach




Contents

       Endorsements                                                            4

       Summary                                                                 5

       Introduction                                                            6

       The pathway for psychological care after stroke                         8

       Modelling the impact of a service for                                 17
       psychological care after stroke

       Summary of results                                                    21

       Discussion                                                            22

       References                                                            24

       Appendix 1                                                            26




                                                                                                         3
Psychological care after stroke: Economic modelling of a clinical psychology led team approach




    Endorsements

    The physical effects of stroke are plain for               This document provides information that is
    all to see and much has been done, and                     vital to the improvement of psychological
    continues to be done, to improve services to               outcomes after stroke. There are strong
    meet these physical needs. The less easily seen            arguments to support the provision of
    psychological and social consequences, are                 psychological services to improve functional
    equally or even more important to people with              independence, mood, coping and quality of life
    stroke and their families and carers, but are more         after stroke from a clinical perspective. However,
    easily overlooked. The significant benefits of             the provision of such services in practice has been
    meeting these less tangible needs are almost               hampered by the lack of information on the costs
    impossible to quantify.                                    and savings for the NHS. Despite the lack of
                                                               randomised trials determining the cost-
    As many as forty per cent of people experience             effectiveness of psychological interventions after
    each of cognitive loss, behavioural problems and           stroke, having the information in this document
    disorder of mood, with as many as thirty per cent          will enable a far stronger case to be made for the
    of people experiencing a severe depressive illness         resources needed to deliver a quality service to
    after stroke. Comprehensively and systematically           stroke patients and their carers.
    meeting these needs will bring benefits not only
    to people with stroke and their carers, but will
    also improve productivity and financial                    Professor Nadina Lincoln
    sustainability of services. We thus need to                Professor of Clinical Psychology, University of
    continue to use all opportunities to develop               Nottingham
    services.

    The case for psychological interventions after             The psychological impacts of stroke have
    stroke is already well made but the health                 been well defined, but to date little work
    economic case – until this publication – has not           has been available to identify the fiscal
    been clear. Whilst the focus of this report is on          consequences of these sequelae. For the first
    the economic impact of psychological care, it is           time, the authors of this paper have attempted
    the individual and their family who are at the             to garner all the relevant evidence to make the
    heart of the services that will flow from it, and          financial case for early and comprehensive
    who may have a very real need for emotional and            intervention. We know stroke survivors want and
    psychological support to manage their stroke and           are deserving of psychological treatments, now
    its consequences.                                          we can lobby the fund holders where they live,
                                                               with evidence of the potential cost savings
                                                               of service provision. Hooray!
    Dr Damian Jenkinson
    National Clinical Director Stroke (interim)
                                                               Dr Ian Kneebone
                                                               Consultant Clinical Psychologist, Surrey
                                                               Community Health and Visiting Reader,
                                                               University of Surrey




4
Psychological care after stroke: Economic modelling of a clinical psychology led team approach




Summary

      This paper models the costs and potential cost savings of delivering a
      psychological support service for people with problems affecting their mood after
      stroke. A stroke service where psychological care is led by a clinical psychologist
      using a stepped approach has the potential to reduce the cost burden of stroke,
      with savings to the NHS and adult social care recovered in around two years. This
      modelling indicates that an investment of around £69,000 in psychological care
      through a clinical psychologist-led service, with clinical psychology assistant
      support and an appropriately trained multidisciplinary team, may deliver a benefit
      of around £108,300 to the NHS and social care in around two years.

      The outcomes of such a service for patients should also be positive and beyond
      those expected in terms of the criteria set by the National Institute for Health and
      Clinical Excellence (NICE) – yielding a five-fold benefit measured in terms of
      ‘Quality Adjusted Life Years’.

      To deliver these benefits the stroke service needs to operate within the National
      Stroke Strategy recommendations and evidence-based national guidance: that
      patients are routinely screened for mood several times after their stroke; that
      acute and community and social care services are well integrated, with access to
      six week and six month reviews; and a stepped approach to psychological care is
      used.

      The model used is essentially designed for the purposes of estimating the
      economic benefits of psychological care. The service described is of necessity a
      simplified one, and whilst it is based on best available evidence and consensus, it
      is not intended as a prescription for how psychological care should be delivered
      or as a service specification. The model is intended as a way to estimate the
      possible economic benefits of a service constructed in this way, and as a local
      decision making tool for services to calculate the potential economic implications
      of their psychological care provision. Where no clinical psychologist-led service
      currently exists, there is the potential to realise the full economic benefits of the
      model. Where a service currently exists, the model would have to be adapted to
      reflect that service, and this will have an impact on both costs and benefits.

      The model and help notes can be found at www.improvement.nhs.uk/stroke
      on the psychological care pages.




                                                                                                        5
Psychological care after stroke: Economic modelling of a clinical psychology led team approach




    Introduction

    A majority of           Services to manage physical health needs after stroke have been steadily
    long-term               improving since the publication of the National Stroke Strategy in 2007 [1]. This
                            increase in access to and availability of services has not been mirrored in the
    stroke survivors
                            provision of mental health services after stroke and there is still less than one
    with emotional          clinical psychologist for every 100 stroke unit beds [2]. A majority of long-term
    needs reported          stroke survivors with emotional needs reported that they did not receive
    that they did           adequate help to deal with them [3]. This is despite the fact that many people
    not receive             who have had a stroke also experience a mental health problem. For example,
    adequate help           around a third are affected by depression at some point post stroke [4], almost a
                            quarter experience generalised anxiety disorder [5], with post-traumatic stress
    to deal with            disorder affecting between 10% and 30% of stroke patients [6] [7] [8]. A significant
    them                    number of those affected by stroke, including family members, experience
                            problems in adapting to life after stroke, and can be considered to have an
                            ‘adjustment disorder’ [9]. Abnormal mood after stroke has been shown to hamper
                            rehabilitation [9] and there is a significant impact of other emotional disorders,
                            such as anxiety [9], on recovery after stroke.

                            Despite this clearly identified and well known mental health need, access to
                            emotional and psychological assessment and support is demonstrably limited.
                            Half of the patients and carers questioned in the National Audit Office review of
                            stroke services [10] rated psychological care as poor or very poor. This stroke
                            survivor feedback was supported by the Care Quality Commission’s review of
                            post hospital stroke care in 2011 [11]. The review found that the provision of even
                            generic services to support people with depression and anxiety and other
                            psychological issues after stroke was inadequate in terms of availability; most
                            Primary Care Trusts (PCTs) were unable to provide comprehensive access to
                            psychological care.

                            It is known that mental health problems can exacerbate other problems
                            associated with long term health conditions: these include worse recovery from
                            the stroke [12], lower quality of life and reduced ability to manage their physical
                            conditions effectively [13]. Patients with both physical and mental ill health show
                            an increased use of health services for their physical problems, increasing the
                            costs associated with their care [13]. In the USA for example, people who have had
                            a stroke and who also have mental health problems, have annual health care
                            costs 40% higher than those without a mental health problem [13].




6
Psychological care after stroke: Economic modelling of a clinical psychology led team approach




                  In England, the King’s Fund and Centre for Mental Health [13] have estimated that
                  between £8 and £13 billion of NHS spending is attributable to health needs of
                  people with long-term conditions who also have a mental health problem.
                  Integrating the management of psychological and mental health needs of people
                  with long-term conditions can reduce their use of hospital services, as well as
                  bringing other significant health effects. The King’s Fund suggests that the costs
                  of incorporating psychological or mental health management into rehabilitation
                  programmes for people with long term conditions and a co-morbid mental health
                  problem would more than likely be outweighed by the savings arising from
                  improved physical health and decreased service use.

Clinical          People with stroke should have access to support with mental health needs as
psychologists     part of their stroke rehabilitation. Clinical psychologists as essential members of
                  the stroke team [3] have unique specialist knowledge and skills. Clinical
as essential
                  psychologists can identify and manage stroke related problems with memory,
members of        understanding and reasoning; help patients and families adjust to the impact of
the stroke team   the stroke, and identify and manage problems with mood [9]. Evidence is available
have unique       to support the benefits to patients and families of access to clinical psychology
specialist        after stroke [9]; however, there is little evidence of the economic impact of
knowledge and     psychological care in a clinical psychologist-led stroke service.
skills            This paper aims to marshal available data and professional consensus about the
                  costs and benefits of a psychologist-led service for stroke to inform a model
                  that will quantify the impact of such a service. The paper describes the model
                  used to calculate the economic impact of a clinical psychologist-led service
                  for psychological care after stroke, and the results. A web-based
                  spreadsheet forms part of the model and is available with help notes at
                  www.improvement.nhs.uk/stroke. The spreadsheet can be used interactively
                  by adjusting the figures in the grey cells to reflect local circumstances and
                  test out different assumptions to calculate the local economic benefit of
                  a local service.




                                                                                                                   7
Psychological care after stroke: Economic modelling of a clinical psychology led team approach




    The pathway for psychological
    care after stroke
    The stepped care model (Figure 1) is            Stepped care manages patients using                  The model used to calculate the
    recommended by NICE [14] and is                 a hierarchical approach offering                     economic impact of psychological
    endorsed in the recent Intercollegiate          simpler interventions first,                         care after stroke follows the service
    Stroke Working Party (ICSWP)                    progressing to more complex                          design described in the NHS
    ‘National Clinical Guideline for                interventions if required. Patients can              Improvement – Stroke publication,
    Stroke’ (2012) [3].                             access care according to their level of              ‘Psychological care after stroke’ [15]. In
                                                    need at the time. Most stroke                        order to deliver best practice, it is
    “Stroke services should                         patients will require the simplest                   expected that the service will have
                                                    interventions which can be provided                  access to a clinical psychologist or
    adopt a ‘stepped care’                          by the stroke team (Level 1 [Step 1]);               neuropsychologist and that they are
    approach to delivering                          fewer patients will need additional                  supported by a clinical assistant [9].
                                                    clinical psychology-supervised support
    psychological care. The                         from the stroke team or clinical
    stepped care model is                           psychology assistant (Level 2 [Step
    intended to be dynamic;                         2]); still fewer patients will require
                                                    more complex care requiring
    a patient might, for                            specialist clinical (neuro) psychology
    example, progress straight                      or psychiatric intervention (Level 3
                                                    [Step 3]).
    from Step 1 to Step 3”
    (ICSWP, 2012)




        Figure 1: Stepped care model for psychological interventions after stroke.
        Adapted from IAPT model with input from Professor Allan House and Dr Posy Knights


                                                    LEVEL 3: Severe and persistent disorders of mood and/or cognition that
                                                      are diagnosable and require specialised intervention, pharmacological
                                                        treatment and suicide risk assessment and have proved resistant to
                                                          treatment at levels 1 and 2. These would require the intervention of
                                                            clinical psychology (with specialist expertise in stroke) or
                                                               neuropsychology and/or psychiatry.
                                           LEVEL 3
                                                                 LEVEL 2: Mild/Moderate symptoms of impaired mood and
                                                                   /or cognition that interfere with rehabilitation. These may be
                                                                     addressed by non psychology stroke specialist staff,
                                                                       supervised by clinical psychologists (with special expertise in
                                           LEVEL 2                       stroke) or neuropsychologists.

                                                                             LEVEL 1: ‘Sub-threshold problems’ at a level
                                                                               common to many or most people with stroke.
                                                                                 General difficulties coping and perceived
                                                                                  consequences for the person’s lifestyle and
                                           LEVEL 1
                                                                                    identity. Mild and transitory symptoms of
                                                                                      mood and/or cognitive disorders such as a
                                                                                        fatalistic attitude to the outcome of
                                                                                          stroke, and which have little impact on
                                                                                             engagement in rehabilitation.
                                                                                               Support could be provided by
                                                                                                  peers, and stroke specialist staff.




8
Psychological care after stroke: Economic modelling of a clinical psychology led team approach




Routine screening of                       Third screen is timed at about six         Level 1 psychological care
psychological need                         months after stroke. At this stage         Psychological care will be delivered at
The route to psychological care after      much physical and social recovery has      Level 1 by the multidisciplinary stroke
stroke is through appropriate              stabilised and it is possible to get a     team to any patient with problems
assessment. The term screening is          picture of likely longer-term problems.    identified at screening. For the
used in this paper to describe a brief     Notwithstanding these                      purposes of the model the
assessment using a validated tool in       recommendations it is acknowledged         multidisciplinary stroke team members
conjunction with clinical judgement to     that anxiety and depression can occur      are considered to be at the top of
decide if a person needs to be further     at any time after stroke and it follows    Agenda for Change (AfC) band 5. This
assessed, monitored, or to gain access     screening may be indicated at any          first level of psychological care is
to psychological care. In the model,       time in actual clinical practice. Within   anticipated to be carried out alongside
the multidisciplinary team are             the model, the multidisciplinary stroke    current therapy or nursing
assumed to carry out routine mood          team (MDT), mainly physiotherapists,       interventions. For the purposes of the
screens for all patients as                occupational therapists, speech and        model the amount of time the patient
recommended in national clinical           language therapists, and qualified         receives psychological care at Level 1
guidance [3] [16]; the cost of screening   nurses, carry out routine screening of     is equivalent to six sessions of 20
time and staff training by the clinical    patients for problems with mood and        minutes. Training and supervision
psychologist to carry out screening is     cognition (the latter is not addressed     costs by a clinical psychologist for
included in the model. MDT training        within this paper because it is not the    these staff are included in the model.
and competencies should align with         focus of the model).                       Level 1 psychological care comprises
the UK Stroke Forum Education and                                                     active listening, helping with
Training standards (www.ukfst.org).        A range of validated mood (and             adjustment, exploring and supporting
Screening time points fit with the         cognition) screening tools are             the impact of the stroke, information
recommended guidance for general           available and are described                giving, goal setting and identifying
review of stroke patients [17] and are     elsewhere [15] [17]. It should be noted    psychological difficulties.
consistent with the recommendations        that, while such tools should guide        Befriending and peer support and
in the report ‘Psychological care after    access to psychological care, stroke       services provided by the voluntary
stroke’ [15]:                              teams should aim to adopt a holistic       sector are effective ways to deliver
                                           approach to assessment of                  Level 1 support. These services have
First screen is timed at about one         psychological need: they should draw       not been included in the modelling.
month after stroke or just before          on other sources of evidence such as
hospital discharge, if that is sooner.     concerns expressed by family
                                           members, staff providing other
Second screen is timed around the          elements of care, or information from
six week post discharge review or at       GPs regarding pre-existing mental
about three months after stroke, at        health needs.
which point most people will have
been discharged from hospital and
the assessment will be able to judge
both persistence of early-onset
problems and emergence of new
problems after discharge.




                                                                                                                             9
Psychological care after stroke: Economic modelling of a clinical psychology led team approach




     Level 2 psychological care                 Level 3 psychological care                    Model assumptions
     Level 2 care may be provided by            A proportion of patients with more            When designing the economic
     stroke team staff (AfC band 5)             complex needs will require further            model, certain assumptions and
     additionally trained by the clinical       psychological support at Level 3.             simplifications were made to reduce
     psychologist, or by a clinical             Level 3 psychological care is delivered       its complexity and account for lack of
     psychology assistant (CPA) (AfC band       in this model by a clinical psychologist      available evidence (Table 1). All the
     5) following assessment of the             (mid AfC band 8a). Level 3 care will          assumptions and simplifications have
     patient by a clinical psychologist (see    comprise more detailed assessment             been tested and developed through
     Figure 2a). Level 2 psychological care     and use of a number of therapies, for         discussion with clinical psychologists
     may comprise brief psychological           example cognitive behavioural                 and peer reviewed by a range of
     interventions, advice and information,     therapy (CBT), solution-focused               health care professionals.
     help with adjustment, goal setting         therapy, or motivational interviewing.
     and problem solving, motivational                                                        The model operates in the context of
     interviewing or group work using           The time allocated for a patient              the National Stroke Strategy [1]
     psychosocial education or relaxation       requiring this level of psychological         recommendations that key elements
     groups.                                    care is six sessions of 90 minutes            of the stroke pathway are in place:
                                                including time to prepare and write
     Level 2 care may also be provided by       up the sessions.                              • Transfer of care processes fully
     Improving Access to Psychological                                                          involve the individual and their
     Therapies (IAPT) services, which are       Further referral to community mental            family, and consider physical,
     often based in primary care. Provision     health services or psychiatry has not           communicative, cognitive,
     of these services is not separately        been included in the scope of this              psychological and financial
     costed.                                    model.                                          circumstances;




         Figure 2a: Structure of Level 2/3 support
                                                                                                No further support
             The MDT decide how level 2 care
               will be provided depending on
                                                                                        Level 2 support provided by MDT
             screening outcomes and response
                to level 1 psychological care



                                                                                        Level 2 support provided by CPA
                                                  Assessment by
                                               clinical psychologist
                                                                                           Level 3 support provided by CP




10
Psychological care after stroke: Economic modelling of a clinical psychology led team approach




Table 1: Summary of assumptions and justifications

 ASSUMPTION                                                        JUSTIFICATION
 A process is in place for review of psychological need at about   National Stroke Strategy (2007) recommendations for general
 one month or just prior to discharge if sooner, and at three      assessment and review of stroke patients
 and six months post-stroke

 Screening for mood and cognition is carried out alongside         ICSWP National Clinical Guideline for Stroke (2012)
 current assessments by existing staff

 Level 1 psychological care is provided by the multidisciplinary   Based on the stepped care model and recommended by NICE
 stroke team                                                       and in the ICSWP National Clinical Guideline for Stroke (2012)

 The amount of time of Level 1 psychological care is provided      Based on peer review
 for each patient is equivalent to six sessions of 20 minutes.

 Level 2 psychological care is provided by additionally trained    Based on the stepped care model and recommended by NICE
 stroke team staff or supervised clinical psychology assistants    and in the ICSWP National Clinical Guideline for Stroke (2012)
 following clinical psychology assessment

 The amount of time of Level 2 psychological care is provided      Based on peer review
 for each patient is equivalent to six sessions of 90 minutes

 Level 3 psychological care is provided wholly by a clinical       Based on the stepped care model recommended by NICE and
 psychologist                                                      in the ICSWP National Clinical Guideline for Stroke (2012)

 The amount of time Level 3 psychological care is provided for     Based on peer review
 each patient is equivalent to six sessions of 90 minutes




                                                                                                                                    11
Psychological care after stroke: Economic modelling of a clinical psychology led team approach




     • There is a strong relationship          This paper should still be of use in       of people are assessed as needing
       between the stroke unit and             areas where these elements are not         Level 1 care at/around transfer home
       community (including social care)       fully established but, for costs to be     or one month, and of these 67% are
       teams, and agreements covering          minimised and benefits fully realised      assessed as needing further
       the quality and timeliness of           implementation of psychological care       psychological care at the second
       information transfer and maximum        should be planned as part of wider         screen. Figure 2b also shows show
       waiting times for provision of          implementation of these elements of        the proportions of people who have
       community services;                     the strategy.                              received services following the staged
     • Reviews at six weeks and six                                                       screens.
       months.                                 Pathway of care
                                               The overall pathway for psychological      These figures are based on advice
     These elements provide the                care and the assumptions made              from the national project sites
     framework on which the economic           about the proportion of people             highlighted in the NHS Improvement
     model for psychological care is built.    assessed as needing psychological          - Stroke report ‘Psychological care
                                               care at each stage is shown in Figure      after stroke’ [15], as well as further
                                               2b. For example, it is assumed 33%         consensus from peer review.




        Figure 2b: The psychological care pathway

                                                                      Level 2&3 support   No third screen for people who
                                                                             67%          have had level 1 &2/3 support
                                      Level 1 support
                                                                                                     Level 2&3 support
                                            33%
                                                                       No intervention                      73%
                                                                            33%
                                                                                                       No intervention
                                                                                                            27%
               ALL PATIENTS
                                                                                                     Level 2&3 support
                                                                       Level 1 support                      67%
                                                                            18%
                                                                                                       No intervention
                                      No intervention                                                       33%
                                           67%
                                                                                                       Level 1 support
                                                                       No intervention                       7%
                                                                            82%
                                                                                                       No intervention
                                                                                                            93%


                   Screening 1                     Screening 2                      Screening 3
                (@2 weeks/1month)                  (@3months)                       (@6months)




12
Psychological care after stroke: Economic modelling of a clinical psychology led team approach




The need for Level 2 and 3                                       Figure 3 shows that by the end of 12   In reality, this process will not be as
psychological care is defined after                              months 51% of people will have had     neat as this model implies. For
screening or after a period of Level 1                           no psychological care, but will have   example, some lower level support
psychological care. Level 2 care is                              been screened at one, three, and six   may be triggered by concerns raised
provided by additionally trained MDT                             months; 11% will have had Level 1      by the person who has had a stroke,
members or a supervised clinical                                 care and 38% will have received        or their family; alternatively, some
psychology assistant.                                            Level 2 or 3 care. In the model, all   people may be referred directly for
                                                                 people receiving Level 2/3 care will   Level 2/3 support. Hence the pathway
                                                                 have had Level 1 care previously.      set out above should be seen as a
                                                                                                        description of a psychology service
                                                                                                        for stroke, which can be used to
                                                                                                        inform the model’s parameters and
                                                                                                        not as a service specification.
    Figure 3: Summary                       100
    of services received                          90                                                    Similarly, the percentages of people
    by the end of each
                                                  80                                                    assessed as needing services at
    period
                                                  70                                                    different stages will vary from these
                                                  60
                                                                                                        assumptions. The accompanying
                                                                                                        spreadsheet can be used to test
                                                  50
                                     Percentage




                                                                                                        different assumptions and recalculate
                                                  40
                                                                                                        costs and benefits, as described in the
                                                  30                                                    remaining chapters of this paper.
                                                  20

                                                  10

                                                   0
                                                       month 1      month 3   month 6   month 12

                     Level 3 (CP)                       0.0%         0.0%      4.4%       7.7%

                     Level 2 (CPA)                      0.0%         0.0%      8.9%      15.3%

                     Level 2 (MDT)                      0.0%         0.0%      8.9%      15.3%

                     Level 1 supt only                  0.0%         33.3%     23.1%     10.8%

                     % screened                         100%          67%      66%        0%




                                                                                                                                              13
Psychological care after stroke: Economic modelling of a clinical psychology led team approach




     Estimating demand for                     From this initial cohort of 500 stroke     significantly since 1996 so
     psychological care                        patients an estimation was made of         adjustments to the data have been
     The size of the population chosen in      the proportion who would be alive          made to reflect this. Adjustments for
     this paper is 250,000. This figure was    (and able to benefit from) the             30 day mortality, length of hospital
     used because it is the size of the        psychology service at different stages     stay, readmission rate and
     catchment population in the Stroke        in the pathway (Figure 4).                 proportions of people in residential
     Interface Audit (SIA) [18] on which       The main source for these estimates        care have been made in order to
     some of the estimates in this paper       is the SIA [18], which identified          make them more representative of
     are based. An assumed annual stroke       patients admitted consecutively to         current stroke care and outcomes.
     incidence rate of 2/1000 makes the        two hospitals in Liverpool from
     model’s stroke population                 January to June 1996 and followed          Detail of the adjustments made can
     approximately 500 strokes per year        them up in person at 3, 6 and 12           be found in both Appendix 1 of the
     (first-ever and recurring). The model     months post stroke, and then               spreadsheet and Appendix 1 of this
     assumes that all of these patients are    annually via postal questionnaire until    paper.
     admitted to hospital.                     5 years. Stroke care has developed

     The model does not include
     assumptions about (or dis-economies)
     of scale and hence it is                      Figure 4: Overview of stroke survivors at
     straightforward to scale these results        different points post-stroke
     to different population sizes and
     incidence rates.                                500
                                                     450
     It is recognised that many people
                                                     400
     with stroke will also have problems
     with cognition [3], the management of           350
     which by clinical psychology could              300
     have potential economic benefit.                250
     However, in order to keep this model
     simple, it has not included an analysis         200
     of the management of people with                150
     cognitive problems in the service               100
     described.
                                                        5
                                                       0
                                                     0 months       6 months      12 months       18 months    24 months

                                                            Alive        Alive benefitting from          Alive benefitting
                                                                         level 1+2/3 support             from level 1 support




14
Psychological care after stroke: Economic modelling of a clinical psychology led team approach




The model combines the data on                 Estimating costs                         average was taken from the cost of
status and psychological care input,           Direct NHS and adult social care costs   consultations: surgery; clinic; phone;
described in the Pathway of care               have been used. The costs used to        home visits; prorated according to
section above, to make the following           inform the model are summarised in       the proportion of time spent by GPs
estimates of the demand for                    Table 2. Basic salary costs were taken   on those activities. A list of
psychological services within the              from Agenda for Change Pay Circular      antidepressant medications that
model’s population:                            (24 March 2011) [19], pay bands from     might be used for stroke patients
                                               1 April 2010, and inflated to include    was identified from the
• A total of 834 screens will take             oncosts and overheads. MDT training      literature [21] [22] [23] [24] and can be seen
  place                                        costs were taken from the SIP case       in the spreadsheet (Table 2.1,
• 182 people will be offered Level 1           studies. The Unit Costs of Health [20]   Appendix 2). The cost of each
  support as part of their                     were used to inform costs of:            medication was calculated, based on
  rehabilitation                               inpatient bed nights (for hospital       suggested dose [25] and pack price [26].
• Of these 56 will receive this service        readmissions); outpatient procedures;    These costs were then averaged to
  alone, while 126 will also be                GP contacts; care home packages          provide an estimate of the average
  offered additional psychological             and residential care. The inpatient      one year cost of antidepressant
  care (100 at Level 2 and 26                  bed nights were taken as non-            medication.
  Level 3).                                    elective, short stay. For GP costs an


Table 2: Cost of resources used in the model

  COST ITEM                             LEVEL DESCRIPTOR                  COST          REFERENCE
  MDT staff member                      Annual salary with oncosts        £39,821       Pay Circular AfC-2-2011 (Annex B)
                                        and overheads
                                        AfC band 5 (point 23)

  Clinical Psychology Assistant         Annual salary with oncosts        £39,821       Pay Circular AfC-2-2011 (Annex B)
                                        and overheads
                                        AfC band 5 (point 23)

  Clinical Psychologist                 Annual salary with oncosts        £62,961       Pay Circular AfC-2-2011 (Annex B)
                                        and overheads
                                        AfC band 8a (point 36)

  Training for MDT member               Per person                        £192          Data from SIP case studies [15]

  Inpatient bed night                   Per night                         £549          PSSRU [20]

  Outpatient procedures                 Average per procedure             £147          PSSRU [20]

  GP contact                            Average of surgery, clinic,       £39           PSSRU [20]
                                        telephone, and home visits

  Care home package                     Per week                          £304          PSSRU [20]

  Residential care                      Per week                          £983          PSSRU [20]

  Antidepressants                       One year cost                     £52           Table 2.1, Appendix 2 (spreadsheet)




                                                                                                                                     15
Psychological care after stroke: Economic modelling of a clinical psychology led team approach




     Combining demands and costs               Table 3: Costs of service delivery in this
     Based on the figures reported above       pathway for the chosen population
     and the other assumptions on the
     cost of services the provision of          SERVICE                         COST        AVERAGE INPUT PER WEEK
     psychological care for this population
     can be costed (Table 3). The table also    Screening & Level 1 support     £23,201     16 screens
     shows the average weekly workload,         by MDT members                              21 Level 1 sessions
     to give a more practical description of                                                6 Level 2 sessions
     the size of the service. The
                                                Training for MDT members        £1,471
     accompanying spreadsheet enables
     individual adjustment of any of these      Clinical Psychology Assistant   £16,438     6 Level 2 sessions (.41 FTE)
     assumptions (including population
     size, stroke incidence and people’s        Clinical Psychologist           £27,952     1.5 assessments (after Level 1
     location at different stages of the                                                    support)
     pathway) and recalculates this total                                                   2.9 Level 3 support sessions
     cost.                                                                                  3 hours supervision (0.44 FTE)

                                                Total                           £68,969




16
Psychological care after stroke: Economic modelling of a clinical psychology led team approach




Modelling the impact of a service
for psychological care after stroke
This section focuses on the impacts       Impact on the NHS                          In addition, an assumption was
that such a psychological service for     Significant investment has been made       made, based on peer review and the
people with stroke can have on both       in recent years in community-based         SIP national projects, that the
the demand for other local health         mental health services as part of the      approach described in the model
and social care services and on the       Improving Access to Psychological          would lead to less frequent use of
individuals who receive them. These       Therapies (IAPT) programme. A              antidepressant medication.
are considered over a period of two       number of studies about the impact         Anecdotally it appears that anti-
years.                                    of emotional and psychological             depressants may be regularly used as
                                          support on health service activity         a first line approach in services where
Measuring these impacts is difficult,     were reviewed. There are little data       there is considered to be an absence
partly because of a lack of empirical     on the impact of psychological             of alternatives.
data, particularly with respect to        services on resource use that are both
stroke-specific services. Additional      specific to stroke and UK-based. Two       In order to combine the figures with
difficulties arise because of the         studies from the USA have shown            those of the psychological care
complex nature of emotional and           that depression following stroke           service provided by this model it is
psychological issues and the difficulty   resulted in an increase in the length      necessary to:
in tracking the impact of specific        of stay for subsequent hospital
elements of a multidisciplinary           admissions, and more outpatient            1. Calculate the total time for which
service.                                  procedures [23] [27]. Because of the          each person benefits from the
                                          population under study and the                Level 1 or Level 2/3 support, which
This section aims to gather together      different health care system, it is           they receive (Box 1)
the limited available data on these       difficult to quantify these impacts in a   2. Estimate what proportion of the
impacts. Where possible it draws on       UK population. However, such                  savings (GP, inpatient bed night,
stroke-specific information, but in       impacts are consistent with a UK-             outpatient procedures and
general it uses broader research on       based review, although not stroke-            medication) are realised by
the impact of support for people with     specific, which has quantified the            providing Level 1 and Level 2/3
low/moderate mental health needs.         benefits of reducing depression on            support.
Where such data are not available it      resources such as GP consultations,
uses assumptions which have been          nights spent in hospital, and numbers      It is necessary to make estimates of
tested with clinical psychologists, and   of outpatient procedures [28].             the realisation of benefits because it
peer reviewed by a range of health                                                   is unrealistic to assume that these
care professionals and analysts.          Recovery from a common mental              benefits will be fully realised. For
                                          health problem was estimated to lead       example, people receiving just Level 1
In the following three sections,          to average annual reductions in            support are likely to have relatively
impacts are described on individuals,     healthcare usage per person as             mild mental health issues, so this
in terms of: the NHS; adult social care   follows:                                   intervention will release a lower
services; and quality-adjusted life                                                  overall saving. Even for people
years (QALYs). Finally there is a         • 1.59 GP consultations;                   receiving Level 2/3 support, the
discussion about the areas where          • 0.73 inpatient bed nights.               recovery rate will be less than 100%.
emotional and psychological support       • 0.36 outpatient procedures.
is likely to have an impact, but which
were not included in the analysis.




                                                                                                                            17
Psychological care after stroke: Economic modelling of a clinical psychology led team approach




          Box 1: Calculating the total time over which people who receive psychological support benefit
          Benefits from the service are calculated by estimating how long each person benefits from each intervention
          they receive.

          For example, Figure 5 below shows the timescales over which a person who receives Level 1 support after the
          first screening and then Level 2/3 support after the third screening benefits from these services:


           Figure 5: Pathway of care for an individual receiving psychological support
                                                                              Months

              0      1    2      3      4      5      6       7    8      9   10   11    12      13   14    15      ...      22   23    24


                  Screen 1 Screen 2                Screen 3

                     Level 1 support                 Level 2&3 support

                                       Benefitting from level 1 support                 Benefitting from level 2/3 support



          Hence this individual will benefit for 5 months from the Level 1 support, and then benefit for a further 16
          months from Level 2/3 support (in the 24 months following stroke).

          The costing model can be used to total the “time for which each person benefits from psychological care”
          across the subset of the cohort of 500 who receive either Level 1 or Level 2/3 support. In total, based on the
          assumptions outlined in the previous section.

          • The total benefit from Level 1 support is 1068 “person months”
          • The total benefit from Level 2/3 support is 2328 “person months”




     The accompanying spreadsheet costs                   • Level 2/3 support is assumed to                  on demand and cost to calculate the
     the benefits of these services                         deliver 80% of the estimated cost                estimated savings for emotional and
     separately for each of the two years                   savings in the first year after stroke           psychological support across four
     following stroke. In line with this, it                and 50% of these savings in the                  areas of health service spending (GP,
     assumes that the impact of services                    second year.                                     inpatient bed night, outpatient
     lessens over this time and includes a                                                                   procedures and medication)
     factor to discount benefits in year                  These data can then be combined                    discussed above (Table 4).
     two. As limited data are available on                with data from the previous section
     the longer term impacts of these
     services this paper focuses on impacts               Table 4: Savings to NHS from provision of
     up to 24 months after stroke. In                     psychological care over two years
     particular:
                                                                                        From Level 1       From Level 2 & 3            TOTAL
     • Level 1 support is assumed to
       deliver 60% of the estimated cost                   GP consultations             £2,453             £6,020                      £8,473
       savings in the first year after stroke
       and 40% of these savings in the                     Inpatient bed nights         £7,789             £19,118                     £26,907
       second year                                         Outpatient procedures        £5,927             £14,546                     £20,473

                                                           Anti-depressants             £2,094             £5,140                      £7,234

                                                           Total                        £18,263            £44,824                     £63,087



18
Psychological care after stroke: Economic modelling of a clinical psychology led team approach




Avoiding nights in hospital beds and      It has been estimated that around        These assumptions could then be
GP consultations may not realise          12.5% of people who have had a           combined with data on the average
direct cash savings as the bed and        stroke and survive to transfer home      cost of residential care and the
appointment will inevitably be filled     require some home care [30] services.    number of admissions to residential
by other patients. These                                                           care (taken from the SIA) to estimate
calculations demonstrate the              The assumptions about the impact on      the total value of this saving at
saving from reducing the cost of          take up of these services from           £14,060 over the first two years after
the burden of stroke on health            psychological support are:               stroke. Potential savings from nursing
care resources.                                                                    home care were not included in the
                                          • That people who have had Level 1       model.
Impact on Adult Social Care                 support need 5% less home care in
Services                                    year 1 and 2.5% less in year 2         Quality adjusted life years
A similar analysis to that presented        following stroke                       (QALYs)
above is also possible for some costs     • That people who have had Level         The main driver for commissioning
related to Local Authority funded           2/3 support need 10% less home         health and social care services is to
adult social care. However, there is a      care in year 1 and 5% less in year 2   get the best possible outcomes for
lack of quantitative research in this       following stroke.                      the population at large. However,
area and hence this part of the                                                    outcomes can be difficult to measure,
analysis is exploratory. Where there      These assumptions can be combined        making it difficult to compare services
were no research-based data to            with data on the average cost of         and hence inform commissioning
support the model assumptions,            home care packages to estimate the       decisions. One tool that can help with
these assumptions have instead been       total savings of £31,151 (£17,918 in     this process is ‘quality adjusted life
tested through peer review.               year 1 and £13,233 in year 2).           years’ (QALYs) [32]. The QALY is used
                                                                                   to quantify the benefits of a medical
One such area is formal personal care     There is also anecdotal evidence that    intervention and takes into account
provided at the stroke survivor’s own     psychological support has an impact      both quality and quantity of life
home (assistance with activities such     on the likelihood of someone moving      generated by healthcare. The QALY is
as washing and dressing). Untreated       into residential care [31]. Because      based on the amount of years of life
depression has a negative impact on       admission to a care home is generally    that would be added by the
function, independent of level of         a one-off event, rather than on-going    intervention. Each year in perfect
physical disability [12]. Psychological   activity, it cannot be modelled in the   health is assigned the value of 100%
care has been shown to be effective       savings discussed above. Instead we      down to a value of 0% for death. A
for depression-related disorders,         developed a model based on the           monetary amount is used to estimate
anxiety and behavioural problems          assumptions that psychological           the value of the extra life year. The
[29] and can improve people’s mood,       support could delay the need for         impact of a particular intervention is
confidence and ability to cope.           admission to residential care for a      quantified by estimating how much it
                                          small proportion (20%) of people –       improved people’s quality of life on
                                          by four weeks for people who had         this scale and then multiplying by the
                                          had Level 1 support and 12 weeks for     value of the “extra life year”.
                                          people who were provided with Level
                                          2/3 support.




                                                                                                                        19
Psychological care after stroke: Economic modelling of a clinical psychology led team approach




     This exercise has been carried out for       Table 5: Estimated proportions benefitting
     treatment for moderate depression or         and QALY benefit for psychological care
     anxiety and the resulting value was
     £6,600 [28]. To calculate the total
                                                                          % of maximum benefits    Value of benefits
     QALY benefit of the stroke-specific
                                                                          delivered
     psychological care service an
     estimation was made of how much                                      Year 1          Year 2
     of this total benefit is realised by each
                                                   Level 1 care           25%             12%      £102,535
     intervention. The QALY benefit
     calculated is £462,807. The                   Level 2/3 care         50%             25%      £360,272
     assumptions and results of the QALY
     calculations are show in Table 5.             TOTAL                                           £462,807

     Other impacts
     There are a number of additional
     benefits likely from these services
     which could not be included in the
     analysis. These include:

     • Benefits from the screening process        • Savings related to people returning
       alone for people who are not                 to work, these are indirect costs,
       referred for Level 1 support (e.g.           which have not been measured in
       some people may be signposted                this model. However 25% of
       after the initial screening for              people with stroke are of working
       informal support via local stroke            age; calculation of the impact of
       groups).                                     psychological care on return to
     • Avoidance of ‘crisis management’             work could yield some potential
       of people with stroke and                    economic benefits.
       psychological issues who feel              • Benefits to the carers of people
       unsupported or uninformed and                with stroke who have psychological
       who attend emergency                         needs: addressing a patient’s
       departments or access community              psychological need may reduce the
       mental health crisis teams when              carers utilisation of health and
       unable to cope. This could be a              social care resources; carers may
       significant benefit, but is difficult to     also have a greater opportunity to
       quantify using current evidence.             return to work.




20
Psychological care after stroke: Economic modelling of a clinical psychology led team approach




Summary of results

Table 6: Sensitivity analysis

                                              Estimated Savings

                                 1 Year                                   Year 1 and 2

                   Base case    10% less    10% more         Base case      10% less      10% more
                                effective   effective                       effective     effective

  NHS              £33,410      £30,069     £36,751          £63,087        £56,778       £69,396
                                                                                                            Costs
  Social Care      £29,101      £26,191     £32,011          £45,211        £40,690       £45,211            £62,075     10% less

  TOTAL


  QALY Benefits
                   £62,510


                   £266,764
                                £56,259     £68,761


                                £240,087 £293,440
                                                             £108,298


                                                             £462,807
                                                                            £97,468       £114,607


                                                                            £416,526 £509,088
                                                                                                        {    £68,972

                                                                                                             £75,869
                                                                                                                         Base case

                                                                                                                         10% more




Sensitivity analysis                        This sensitivity analysis found that,
The model’s results were tested in a        psychological care produces an
sensitivity analysis with different         overall cost saving after two years if
assumptions about the effectiveness         social care savings are included. If
and cost of psychological care (Table       social care savings are not included
6). Due to a lack of empirical data         then psychological care is (just about)
around measures of effectiveness, a         cost neutral for the NHS in two years
pragmatic approach to the sensitivity       of the initial investment in all but the
analysis was adopted. Therefore,            ‘10% less effective’ scenario (Figure 6).
assumptions were made that the
interventions were either 10% more,
or 10% less effective; which resulted
                                                Figure 6: NHS and adult social care savings in relation to cost
in concomitant impacts on the overall
savings generated i.e. 10% more or              £140,000
10% less. As more information about
psychological care after stroke                 £120,000
becomes available it will be possible           £100,000
to make more informed decisions
about which variables to include in a            £80,000
sensitivity analysis and the range of            £60,000
levels that they can realistically take.
This would allow a more robust                   £40,000
sensitivity analysis of the model.
                                                 £20,000

                                                        £0
                                                               Base case 10% less 10% more            Base case 10% less 10% more
                                                                         effective effective                    effective effective
                                                                         Savings year 1                      Savings year 1 & 2

                                                      Social care          NHS            Cost         Cost -10%          Cost +10%




                                                                                                                                      21
Psychological care after stroke: Economic modelling of a clinical psychology led team approach




     Discussion

     This paper has modelled the costs         Potential cost benefits to the health       There were substantial additional
     and potential cost savings of             economy were estimated as well as           treatment costs in year one of more
     delivering a psychological care service   suggested quality of life benefits to       than £4.5 million, however in year
     for people with problems affecting        individuals in having their mental          two, £450,000 savings to health and
     their mood after stroke. It has           health needs assessed regularly and         social care were made due to lower
     estimated the potential cost savings      met by a stroke team who are aware          costs associated with depression and
     of a clinical psychologist-led service    of psychological issues and are able        benefits from reduced productivity
     that funds clinical psychology and        to manage them appropriately. The           losses. A Hillingdon study
     clinical psychology assistant posts to    modelling indicates that an                 demonstrated savings of £837 per
     support the development of good           investment of £68,972 to deliver a          person with depression and Chronic
     psychological care after stroke.          stroke-specific psychological care          Obstructive Pulmonary Disease
                                               service in the first year after stroke to   (COPD) who attended the
     The modelling has from necessity          a stroke population of 500 people           breathlessness clinic in the six months
     been based on a number of                 may be virtually realised by the NHS        after treatment. This is around four
     assumptions about a service in order      over a two year period with the             times the upfront cost. A Liverpool
     to define the economic benefits.          benefit being £63,087. If economic          study of 433 people with angina who
     Where possible the assumptions have       benefits to both the NHS and adult          attended a cognitive behavioural
     been based on best practice or            social care are considered then a           chronic disease management
     evidence for psychological care after     more significant benefit of £39,326         programme demonstrated reductions
     stroke, or on evidence for people         may be realised in the second year.         in healthcare usage of approximately
     with long term conditions. Where this                                                 £2,000 per person in the year after
     has not been possible clinical opinion    In terms of outcomes, the total             treatment, ‘well in excess of the cost
     has underpinned the assumption. The       benefit of this service measured in         of psychological intervention.’
     context of the service described is       terms of quality adjusted life years are
     one led by a clinical psychologist who    significant and well beyond those           There is further work to be done to
     trains and supports a multidisciplinary   expected in terms of the criteria set       define the economic impact of
     team to provide Level 1 and some          by NICE. The total QALY value for           psychological care specifically for
     Level 2 psychological care and has        people receiving Level 1 and 2/3 care       stroke. In particular there was little
     clinical psychology assistant support.    is £462,807.                                available evidence to define the
     The service is compliant with the                                                     extent of crisis management of
     National Stroke Strategy                  Studies exploring the benefits of           psychological need of this group by
     recommendations that patients are         psychological services in other             mental health services and
     reviewed at six weeks and six months      conditions have aimed to estimate           emergency departments and primary
     and that there is good integration        the wider benefits to services and          care. There is evidence to show that
     between acute and community               society and large substantial               functional recovery is impeded by
     services and social care.                 additional amounts have been                depression [12], but the economic
                                               identified [33]. Six months of              implications of this are not yet well
                                               collaborative care of people with type      defined in terms of impact on length
                                               2 diabetes and depression resulted in       of hospital stay, continued
                                               an additional 115 depression-free           involvement with rehabilitation
                                               days per individual.                        services and additional support
                                                                                           needs, although this evidence is
                                                                                           available for other long term
                                                                                           conditions.




22
Psychological care after stroke: Economic modelling of a clinical psychology led team approach




Provision of psychological care after      The assumption in this paper that              The assumption about the impact of
stroke in England has been shown to        psychotherapy is of benefit to stroke          psychotherapy on costs was not as
be at best variable and at worst           patients was not unreasonable. There           strong because it had to be drawn
inadequate [10] [2]. The national focus    is evidence from two Cochrane                  from either the stroke literature,
of attention on psychological care has     reviews [35] [36] to suggest that              which was not trial-based (e.g. [23]) or
raised awareness of the need for           psychotherapy can prevent the                  was non-stroke data (e.g. [28]). This
services to improve. Inclusion of          development of depression, though              means that the model is not as robust
national measures of psychological         little evidence of the benefit of              as would be ideal, but because the
care in the national stroke audit, and     psychotherapy on treating                      model has been developed on mixed
their consideration for inclusion in the   depression; two trials not included in         levels of evidence, assumptions made
Commissioning Outcomes                     this latter review have shown a small          are conservative. Whilst this model is
Framework is welcomed as potential         benefit of psychotherapy on treating           considered by the authors to be of
drivers for continued improvement          depression [22] [24]. Of particular            value, further research into the
in services.                               promise however is the potential of            benefit of psychotherapy after stroke
                                           patients to be assisted by                     in a multi-centre trial is
                                           psychological treatments modified to           recommended. Such trials will need
  A proportion of stroke services
                                           suit those with stroke [17]. Empirical         to consider the type of psychotherapy
  have made improvements in their
                                           support has established stroke                 delivered, the timing of the therapy
  services based on reconfiguration
                                           patients with low mood and aphasia             (aligning it to current guidance) a
  of stroke pathways and by linking
                                           benefitted from behaviour therapy              range of outcome measures (mood,
  with adjacent services and the
                                           modified for their communication               function and resources) and recording
  voluntary sector; however, the
                                           disability [37].                               of outcomes up to one year, if not
  significant shortfall in stroke
                                                                                          longer.
  specific clinical psychologists will
  only be addressed through the
  provision of these posts where                                            Recommendations
  they currently do not exist.
                                            NHS Commissioning   National data about the provision of psychological care is regularly
                                            Board               published and is publically available.
Whilst the focus of this paper has been
on the economic impact of                   Royal College of    Specific audits of community and long term stroke services include
                                            Physicians          examination of psychological, cognitive and emotional care.
psychological care, it is the individual
and their family who are at the heart of    Academics and       Further research into the economic benefits of psychological
these services, and who may have a          researchers         therapy after stroke is undertaken in a multi-centre study.
very real need for emotional and
                                            Commissioners       The model is used to establish the local economic benefits of a
psychological support to manage the                             clinical psychologist-led service for psychological care based on a
stroke and its consequences. The                                review of current provision of psychological care.
significant benefits of meeting this
                                                                Stroke-specific psychological care is commissioned through the
need are almost impossible to quantify.                         engagement of adult social care, acute and community stroke
                                                                services, voluntary sector and mental health services.
One of the difficulties in developing                           Data and information are used to monitor access to and the
this model was a lack of empirical                              impact of psychological care for people with stroke.
evidence of the cost-effectiveness, or
even cost-utility of treating               Providers           Psychological care pathways are developed using a stepped
                                                                approach.
depression after stroke [34]. It would
have been better if this modelling                              Views of patients and families about the quality of psychological
work could have been informed by a                              care they received in the stroke service are elicited to support
                                                                development of these services.
large multi-centre trial exploring the
effectiveness and cost-effectiveness                            Consistent and routine mood and cognition screening is carried
(or utility) of psychotherapy delivered                         out in line with national evidence based guidance.
early after stroke.


                                                                                                                                       23
Psychological care after stroke: Economic modelling of a clinical psychology led team approach




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[25]   WHO Collaborating Centre for Drug Statistics Methodology, [Online]. Available:
       http://www.whocc.no [Accessed 24th May 2012].
[26]   BNF online, [Online]. Available: http://www.bnf.org/bnf/index.htm.
       [Accessed 24th May 2012].
[27]   Ghose, S.S.. Williams, L.S., Swindle, R.W.,, “Depression and other mental health
       diagnoses after stroke increases inpatient and outpatient medical utilisation three
       years poststroke,” Medical Care, vol. 43, pp. 1259-1264, 2005.
[28]   Department of Health, “Impact assessment of the expansion of talking therapies
       services as set out in the Mental Health Strategy,” Department of Health, 2011.
[29]   Kneebone, I. I., Lincoln, N.B, “Psychological Problems after Stroke and Their
       Management: State of Knowledge,” Neuroscience and Medicine, vol. 3,
       pp. 83-89, 2012.
[30]   Saka O, McGuire A, Wolfe C. , “Cost of stroke in the United Kingdom,” Age and
       Ageing, vol. 38, pp. 27-32, 2009.
[31]   NHS Improvement, “Care Homes,” [Online]. Available:
       http://www.improvement.nhs.uk/stroke/Carehomes/tabid/201/Default.aspx.
       [Accessed 30th August 2012].
[32]   National Institute for Health and Clinical Excellence, “Measuring effectiveness and
       cost effectiveness: the QALY,” 20th April 2010. [Online]. Available:
       http://www.nice.org.uk/newsroom/features/measuringeffectivenessandcost
       effectivenesstheqaly.jsp. [Accessed 8th August 2012].
[33]   NHS Confederation and Mental Health Network, “Investing in emotional and
       psychological wellbeing in people with long term conditions,” 2012.
[34]   R. Marsh, “Evidence Adoption Centre NHS East of England- Reviews in progress,”
       The cost and cost-effectiveness of psychological therapies for post stroke
       management: a rapid evidence assessment, 2012. [Online]. Available:
       http://www.eac.cpft.nhs.uk/reviewsinprogress.aspx.
       [Accessed 10th September 2012].
[35]   Hackett ML, Anderson CS, House A et al, “Interventions for preventing depression after
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[36]   Hackett ML, Anderson CS, House A, et al, “Interventions for treating depression after
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                                                                                                 25
Psychological care after stroke: Economic modelling of a clinical psychology led team approach




     Appendix 1

                          Adjustments made to the Stroke Interface Audit data
                          Stroke care has taken considerable strides forward since 1996 and so adjustments have been
                          made to the data in order to make it more representative of modern stroke care and
                          outcomes.

                          In the original cohort the level of mortality was high compared with other cohorts and more
                          modern data; for example, the 30-day mortality in the cohort was 34%, which is much higher
                          than the 17% cited in the National Sentinel Audit (2011)1. The mortality data was reviewed
                          from a series of studies2, 3, 4, 5, 6, 7, 8, 9, 10, 11, 12 and increased the number alive at the different time
                          points by a factor of 18%. Similarly, the length of hospital stay for the index stroke is much
                          longer [mean 35.3 days] than the mean 19.5 days cited in the National Sentinel Audit (2011)1.
                          Consequently we reduced the length of stay data by 40%.

                          The proportion of readmissions during each month up to 12 months was available from the
                          cohort, but there were limited data on readmissions beyond 12 months. Consequently, an
                          estimate was made of the likely proportion of readmissions per month, for months 13 through
                          24, based on the data up to 12-months (readmissions per month were on average 6.3% of
                          the patients alive in the community) and data reported elsewhere2. Using these figures it was
                          estimated that for each of months 13 through 24, the number of readmissions is equivalent to
                          approximately 5.0% of the number of patients alive. Data on the exact time of entry to
                          residential care was not known – residence was recorded using point estimates at the time of
                          assessments (i.e. 3, 6, 12 and 24 months) and so a rounded estimate has been used, based on
                          the known proportion at the time of assessment. For each of months 13 through 24 we have
                          estimated that 25% of patients in the community were in residential care.




                          1
                             Intercollegiate Stroke Working Party, “National Sentinel Stroke Clinical Audit 2010: Round 7. Public report for England,
                             Wales and Northern Ireland,” Royal College of Physicians, London, 2011.
                          2
                             Bravata Dm, Shih-Yieh H, Meehan TP, et al, “Readmission and death after hopitalisation for acute ischaemic stroke:
                             5 year follow up in the Medicare population,” Stroke, vol. 38, pp. 1899-904, 2007.
                          3
                             Brønnum-Hansen H, Davidsen M, Thorvaldsen P, “Long term survival and causes of death
                          4
                             Dennis MS, Burn JP, Sandercock PA et al, “Long term survivalafter first-ever stroke: the Oxfordshire community stroke
                             project,” Stroke, vol. 24, pp. 976-800, 1993.
                          5
                             Eriksson SE, Olsson JE, Broadhurst RJ et al, “Five year survival after first-ever stroke and related prognostic factorsin the
                             Perth community stroke study,” Stroke, vol. 34, pp. 1842-6, 2000.
                          6
                             Hardie K, Hankey GJ, Jamrozik K, et al, “Ten-year survival after first ever stroke in the Perth community stroke study,”
                             Stroke, vol. 34, pp. 1842-6, 2003.
                          7
                             Turaj W, Slowik A, Dziedzic T et al, “Increased plasma fibrinogen predicts one year mortality in patients with acute
                             ischaemic stroke,” Journal of Neurological Sciences, vol. 246, pp. 13-19, 2005.
                          8
                             Stavem, K, Rønning OM, “Survival of unselected stroke patients in a stroke unit compared with conventional care,”
                             QJ Med, vol. 95, pp. 143-152, 2002
                          9
                             Wang y, Lim LL-Y, Heller RF et al, “A prediction model of 1-year mortality for acute ischaemic stroke patients,”
                             Arch phys Med Rehab, vol. 84, pp. 1006-11, 2003.
                          10
                             Hankey GJ, Jamrozik K, Broadhurst RJ, et al, Five-year survival after first-ever stroke and related prognostic factors in
                             the Perth community stroke study. Stroke;31: 2080-6. 2000
                          11
                             Eriksson SE, Olsson JE. Survival and recurrent strokes in patients with different subtypes of stroke: a fourteen-year
                             follow-up. Cerebrovascular Diseases;12:171-80. 2001
                          12
                             Saposnik G, Hill MD, O’Donnell M, Fang J, Hachinski V, Kapral MK. Variables associated with 7-day, 30-day,
                             and 1-year fatality after ischemic stroke. Stroke;39:2318–2324. 2008




26
NHS
                                                                                                NHS Improvement




CANCER




DIAGNOSTICS




HEART




LUNG




STROKE




NHS Improvement
NHS Improvement’s strength and expertise lies in practical service improvement. It has over a
decade of experience in clinical patient pathway redesign in cancer, diagnostics, heart, lung
and stroke and demonstrates some of the most leading edge improvement work in England
which supports improved patient experience and outcomes.

Working closely with the Department of Health, trusts, clinical networks, other health sector
partners, professional bodies and charities, over the past year it has tested, implemented,
sustained and spread quantifiable improvements with over 250 sites across the country as
well as providing an improvement tool to over 2,000 GP practices.



NHS Improvement
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Telephone: 0116 222 5184 | Fax: 0116 222 5101

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                                                                                                                  Publication Ref: NHSIMP/Stroke0003 - November 2012
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Psychological care after stroke: Economic modelling of a clinical psychology led team approach

  • 1. NHS CANCER NHS Improvement Stroke DIAGNOSTICS HEART LUNG STROKE Psychological care after stroke: Economic modelling of a clinical psychology led team approach
  • 2. Authors Sarah Gillham - National Improvement Lead, NHS Improvement - Stroke Michael Carpenter - Associate, NHS Improvement - Stroke Dr Michael Leathley - Research Fellow Clinical Practice Research Unit, University of Central Lancashire Acknowledgements Grateful thanks to all who contributed to Dr Peter Knapp, Senior Lecturer, Department the discussions about the assumptions and of Health Sciences and the Hull York Medical evidence on which the model is based, and School, University of York to those who reviewed and commented on the finished paper. Dr Ian Kneebone, Consultant Clinical Psychologist and Visiting Reader, University The Stroke Improvement Programme of Surrey, Haslemere and District Community psychological care after stroke consensus Hospital and Associate, NHS Improvement - group Stroke Dr Jane Barton, Consultant Clinical Professor Nadina Lincoln, Professor of Psychologist, Michael Carlisle Centre, Nether Clinical Psychology, University of Edge Hospital, Sheffield Nottingham Dr Roger Beech, Reader in Health Services Jill Lockhart, National Improvement Lead, Research / Director, Keele University Hub, NHS Improvement - Stroke West Midlands NIHR Research Design Service Dr Jessica Read, Clinical Psychologist, Dr Noelle Blake, Head of Neuropsychology, Lancashire Care NHS Foundation Trust Croydon Health Services NHS Trust Professor Tom Robinson, Stroke Consultant, Dr Bridget Carew, Clinical Psychologist, Royal University Hospitals of Leicester NHS Trust Free Hospital and Clinical Lead for SIP Dr Helen Hosker, Central Manchester Clinical Dr Becky Simm, Principal Clinical Commissioning Group, Lead for Urgent Care, Psychologist, Southport and Ormskirk NHS Clinical Commissioning Lead for Stroke and Hospital Trust Falls, NHS Manchester Dr Kate Swinburn, Research and Policy Professor Allan House, Director, Leeds Manager, Connect - the communication Institute of Health Sciences disability network
  • 3. Psychological care after stroke: Economic modelling of a clinical psychology led team approach Contents Endorsements 4 Summary 5 Introduction 6 The pathway for psychological care after stroke 8 Modelling the impact of a service for 17 psychological care after stroke Summary of results 21 Discussion 22 References 24 Appendix 1 26 3
  • 4. Psychological care after stroke: Economic modelling of a clinical psychology led team approach Endorsements The physical effects of stroke are plain for This document provides information that is all to see and much has been done, and vital to the improvement of psychological continues to be done, to improve services to outcomes after stroke. There are strong meet these physical needs. The less easily seen arguments to support the provision of psychological and social consequences, are psychological services to improve functional equally or even more important to people with independence, mood, coping and quality of life stroke and their families and carers, but are more after stroke from a clinical perspective. However, easily overlooked. The significant benefits of the provision of such services in practice has been meeting these less tangible needs are almost hampered by the lack of information on the costs impossible to quantify. and savings for the NHS. Despite the lack of randomised trials determining the cost- As many as forty per cent of people experience effectiveness of psychological interventions after each of cognitive loss, behavioural problems and stroke, having the information in this document disorder of mood, with as many as thirty per cent will enable a far stronger case to be made for the of people experiencing a severe depressive illness resources needed to deliver a quality service to after stroke. Comprehensively and systematically stroke patients and their carers. meeting these needs will bring benefits not only to people with stroke and their carers, but will also improve productivity and financial Professor Nadina Lincoln sustainability of services. We thus need to Professor of Clinical Psychology, University of continue to use all opportunities to develop Nottingham services. The case for psychological interventions after The psychological impacts of stroke have stroke is already well made but the health been well defined, but to date little work economic case – until this publication – has not has been available to identify the fiscal been clear. Whilst the focus of this report is on consequences of these sequelae. For the first the economic impact of psychological care, it is time, the authors of this paper have attempted the individual and their family who are at the to garner all the relevant evidence to make the heart of the services that will flow from it, and financial case for early and comprehensive who may have a very real need for emotional and intervention. We know stroke survivors want and psychological support to manage their stroke and are deserving of psychological treatments, now its consequences. we can lobby the fund holders where they live, with evidence of the potential cost savings of service provision. Hooray! Dr Damian Jenkinson National Clinical Director Stroke (interim) Dr Ian Kneebone Consultant Clinical Psychologist, Surrey Community Health and Visiting Reader, University of Surrey 4
  • 5. Psychological care after stroke: Economic modelling of a clinical psychology led team approach Summary This paper models the costs and potential cost savings of delivering a psychological support service for people with problems affecting their mood after stroke. A stroke service where psychological care is led by a clinical psychologist using a stepped approach has the potential to reduce the cost burden of stroke, with savings to the NHS and adult social care recovered in around two years. This modelling indicates that an investment of around £69,000 in psychological care through a clinical psychologist-led service, with clinical psychology assistant support and an appropriately trained multidisciplinary team, may deliver a benefit of around £108,300 to the NHS and social care in around two years. The outcomes of such a service for patients should also be positive and beyond those expected in terms of the criteria set by the National Institute for Health and Clinical Excellence (NICE) – yielding a five-fold benefit measured in terms of ‘Quality Adjusted Life Years’. To deliver these benefits the stroke service needs to operate within the National Stroke Strategy recommendations and evidence-based national guidance: that patients are routinely screened for mood several times after their stroke; that acute and community and social care services are well integrated, with access to six week and six month reviews; and a stepped approach to psychological care is used. The model used is essentially designed for the purposes of estimating the economic benefits of psychological care. The service described is of necessity a simplified one, and whilst it is based on best available evidence and consensus, it is not intended as a prescription for how psychological care should be delivered or as a service specification. The model is intended as a way to estimate the possible economic benefits of a service constructed in this way, and as a local decision making tool for services to calculate the potential economic implications of their psychological care provision. Where no clinical psychologist-led service currently exists, there is the potential to realise the full economic benefits of the model. Where a service currently exists, the model would have to be adapted to reflect that service, and this will have an impact on both costs and benefits. The model and help notes can be found at www.improvement.nhs.uk/stroke on the psychological care pages. 5
  • 6. Psychological care after stroke: Economic modelling of a clinical psychology led team approach Introduction A majority of Services to manage physical health needs after stroke have been steadily long-term improving since the publication of the National Stroke Strategy in 2007 [1]. This increase in access to and availability of services has not been mirrored in the stroke survivors provision of mental health services after stroke and there is still less than one with emotional clinical psychologist for every 100 stroke unit beds [2]. A majority of long-term needs reported stroke survivors with emotional needs reported that they did not receive that they did adequate help to deal with them [3]. This is despite the fact that many people not receive who have had a stroke also experience a mental health problem. For example, adequate help around a third are affected by depression at some point post stroke [4], almost a quarter experience generalised anxiety disorder [5], with post-traumatic stress to deal with disorder affecting between 10% and 30% of stroke patients [6] [7] [8]. A significant them number of those affected by stroke, including family members, experience problems in adapting to life after stroke, and can be considered to have an ‘adjustment disorder’ [9]. Abnormal mood after stroke has been shown to hamper rehabilitation [9] and there is a significant impact of other emotional disorders, such as anxiety [9], on recovery after stroke. Despite this clearly identified and well known mental health need, access to emotional and psychological assessment and support is demonstrably limited. Half of the patients and carers questioned in the National Audit Office review of stroke services [10] rated psychological care as poor or very poor. This stroke survivor feedback was supported by the Care Quality Commission’s review of post hospital stroke care in 2011 [11]. The review found that the provision of even generic services to support people with depression and anxiety and other psychological issues after stroke was inadequate in terms of availability; most Primary Care Trusts (PCTs) were unable to provide comprehensive access to psychological care. It is known that mental health problems can exacerbate other problems associated with long term health conditions: these include worse recovery from the stroke [12], lower quality of life and reduced ability to manage their physical conditions effectively [13]. Patients with both physical and mental ill health show an increased use of health services for their physical problems, increasing the costs associated with their care [13]. In the USA for example, people who have had a stroke and who also have mental health problems, have annual health care costs 40% higher than those without a mental health problem [13]. 6
  • 7. Psychological care after stroke: Economic modelling of a clinical psychology led team approach In England, the King’s Fund and Centre for Mental Health [13] have estimated that between £8 and £13 billion of NHS spending is attributable to health needs of people with long-term conditions who also have a mental health problem. Integrating the management of psychological and mental health needs of people with long-term conditions can reduce their use of hospital services, as well as bringing other significant health effects. The King’s Fund suggests that the costs of incorporating psychological or mental health management into rehabilitation programmes for people with long term conditions and a co-morbid mental health problem would more than likely be outweighed by the savings arising from improved physical health and decreased service use. Clinical People with stroke should have access to support with mental health needs as psychologists part of their stroke rehabilitation. Clinical psychologists as essential members of the stroke team [3] have unique specialist knowledge and skills. Clinical as essential psychologists can identify and manage stroke related problems with memory, members of understanding and reasoning; help patients and families adjust to the impact of the stroke team the stroke, and identify and manage problems with mood [9]. Evidence is available have unique to support the benefits to patients and families of access to clinical psychology specialist after stroke [9]; however, there is little evidence of the economic impact of knowledge and psychological care in a clinical psychologist-led stroke service. skills This paper aims to marshal available data and professional consensus about the costs and benefits of a psychologist-led service for stroke to inform a model that will quantify the impact of such a service. The paper describes the model used to calculate the economic impact of a clinical psychologist-led service for psychological care after stroke, and the results. A web-based spreadsheet forms part of the model and is available with help notes at www.improvement.nhs.uk/stroke. The spreadsheet can be used interactively by adjusting the figures in the grey cells to reflect local circumstances and test out different assumptions to calculate the local economic benefit of a local service. 7
  • 8. Psychological care after stroke: Economic modelling of a clinical psychology led team approach The pathway for psychological care after stroke The stepped care model (Figure 1) is Stepped care manages patients using The model used to calculate the recommended by NICE [14] and is a hierarchical approach offering economic impact of psychological endorsed in the recent Intercollegiate simpler interventions first, care after stroke follows the service Stroke Working Party (ICSWP) progressing to more complex design described in the NHS ‘National Clinical Guideline for interventions if required. Patients can Improvement – Stroke publication, Stroke’ (2012) [3]. access care according to their level of ‘Psychological care after stroke’ [15]. In need at the time. Most stroke order to deliver best practice, it is “Stroke services should patients will require the simplest expected that the service will have interventions which can be provided access to a clinical psychologist or adopt a ‘stepped care’ by the stroke team (Level 1 [Step 1]); neuropsychologist and that they are approach to delivering fewer patients will need additional supported by a clinical assistant [9]. clinical psychology-supervised support psychological care. The from the stroke team or clinical stepped care model is psychology assistant (Level 2 [Step intended to be dynamic; 2]); still fewer patients will require more complex care requiring a patient might, for specialist clinical (neuro) psychology example, progress straight or psychiatric intervention (Level 3 [Step 3]). from Step 1 to Step 3” (ICSWP, 2012) Figure 1: Stepped care model for psychological interventions after stroke. Adapted from IAPT model with input from Professor Allan House and Dr Posy Knights LEVEL 3: Severe and persistent disorders of mood and/or cognition that are diagnosable and require specialised intervention, pharmacological treatment and suicide risk assessment and have proved resistant to treatment at levels 1 and 2. These would require the intervention of clinical psychology (with specialist expertise in stroke) or neuropsychology and/or psychiatry. LEVEL 3 LEVEL 2: Mild/Moderate symptoms of impaired mood and /or cognition that interfere with rehabilitation. These may be addressed by non psychology stroke specialist staff, supervised by clinical psychologists (with special expertise in LEVEL 2 stroke) or neuropsychologists. LEVEL 1: ‘Sub-threshold problems’ at a level common to many or most people with stroke. General difficulties coping and perceived consequences for the person’s lifestyle and LEVEL 1 identity. Mild and transitory symptoms of mood and/or cognitive disorders such as a fatalistic attitude to the outcome of stroke, and which have little impact on engagement in rehabilitation. Support could be provided by peers, and stroke specialist staff. 8
  • 9. Psychological care after stroke: Economic modelling of a clinical psychology led team approach Routine screening of Third screen is timed at about six Level 1 psychological care psychological need months after stroke. At this stage Psychological care will be delivered at The route to psychological care after much physical and social recovery has Level 1 by the multidisciplinary stroke stroke is through appropriate stabilised and it is possible to get a team to any patient with problems assessment. The term screening is picture of likely longer-term problems. identified at screening. For the used in this paper to describe a brief Notwithstanding these purposes of the model the assessment using a validated tool in recommendations it is acknowledged multidisciplinary stroke team members conjunction with clinical judgement to that anxiety and depression can occur are considered to be at the top of decide if a person needs to be further at any time after stroke and it follows Agenda for Change (AfC) band 5. This assessed, monitored, or to gain access screening may be indicated at any first level of psychological care is to psychological care. In the model, time in actual clinical practice. Within anticipated to be carried out alongside the multidisciplinary team are the model, the multidisciplinary stroke current therapy or nursing assumed to carry out routine mood team (MDT), mainly physiotherapists, interventions. For the purposes of the screens for all patients as occupational therapists, speech and model the amount of time the patient recommended in national clinical language therapists, and qualified receives psychological care at Level 1 guidance [3] [16]; the cost of screening nurses, carry out routine screening of is equivalent to six sessions of 20 time and staff training by the clinical patients for problems with mood and minutes. Training and supervision psychologist to carry out screening is cognition (the latter is not addressed costs by a clinical psychologist for included in the model. MDT training within this paper because it is not the these staff are included in the model. and competencies should align with focus of the model). Level 1 psychological care comprises the UK Stroke Forum Education and active listening, helping with Training standards (www.ukfst.org). A range of validated mood (and adjustment, exploring and supporting Screening time points fit with the cognition) screening tools are the impact of the stroke, information recommended guidance for general available and are described giving, goal setting and identifying review of stroke patients [17] and are elsewhere [15] [17]. It should be noted psychological difficulties. consistent with the recommendations that, while such tools should guide Befriending and peer support and in the report ‘Psychological care after access to psychological care, stroke services provided by the voluntary stroke’ [15]: teams should aim to adopt a holistic sector are effective ways to deliver approach to assessment of Level 1 support. These services have First screen is timed at about one psychological need: they should draw not been included in the modelling. month after stroke or just before on other sources of evidence such as hospital discharge, if that is sooner. concerns expressed by family members, staff providing other Second screen is timed around the elements of care, or information from six week post discharge review or at GPs regarding pre-existing mental about three months after stroke, at health needs. which point most people will have been discharged from hospital and the assessment will be able to judge both persistence of early-onset problems and emergence of new problems after discharge. 9
  • 10. Psychological care after stroke: Economic modelling of a clinical psychology led team approach Level 2 psychological care Level 3 psychological care Model assumptions Level 2 care may be provided by A proportion of patients with more When designing the economic stroke team staff (AfC band 5) complex needs will require further model, certain assumptions and additionally trained by the clinical psychological support at Level 3. simplifications were made to reduce psychologist, or by a clinical Level 3 psychological care is delivered its complexity and account for lack of psychology assistant (CPA) (AfC band in this model by a clinical psychologist available evidence (Table 1). All the 5) following assessment of the (mid AfC band 8a). Level 3 care will assumptions and simplifications have patient by a clinical psychologist (see comprise more detailed assessment been tested and developed through Figure 2a). Level 2 psychological care and use of a number of therapies, for discussion with clinical psychologists may comprise brief psychological example cognitive behavioural and peer reviewed by a range of interventions, advice and information, therapy (CBT), solution-focused health care professionals. help with adjustment, goal setting therapy, or motivational interviewing. and problem solving, motivational The model operates in the context of interviewing or group work using The time allocated for a patient the National Stroke Strategy [1] psychosocial education or relaxation requiring this level of psychological recommendations that key elements groups. care is six sessions of 90 minutes of the stroke pathway are in place: including time to prepare and write Level 2 care may also be provided by up the sessions. • Transfer of care processes fully Improving Access to Psychological involve the individual and their Therapies (IAPT) services, which are Further referral to community mental family, and consider physical, often based in primary care. Provision health services or psychiatry has not communicative, cognitive, of these services is not separately been included in the scope of this psychological and financial costed. model. circumstances; Figure 2a: Structure of Level 2/3 support No further support The MDT decide how level 2 care will be provided depending on Level 2 support provided by MDT screening outcomes and response to level 1 psychological care Level 2 support provided by CPA Assessment by clinical psychologist Level 3 support provided by CP 10
  • 11. Psychological care after stroke: Economic modelling of a clinical psychology led team approach Table 1: Summary of assumptions and justifications ASSUMPTION JUSTIFICATION A process is in place for review of psychological need at about National Stroke Strategy (2007) recommendations for general one month or just prior to discharge if sooner, and at three assessment and review of stroke patients and six months post-stroke Screening for mood and cognition is carried out alongside ICSWP National Clinical Guideline for Stroke (2012) current assessments by existing staff Level 1 psychological care is provided by the multidisciplinary Based on the stepped care model and recommended by NICE stroke team and in the ICSWP National Clinical Guideline for Stroke (2012) The amount of time of Level 1 psychological care is provided Based on peer review for each patient is equivalent to six sessions of 20 minutes. Level 2 psychological care is provided by additionally trained Based on the stepped care model and recommended by NICE stroke team staff or supervised clinical psychology assistants and in the ICSWP National Clinical Guideline for Stroke (2012) following clinical psychology assessment The amount of time of Level 2 psychological care is provided Based on peer review for each patient is equivalent to six sessions of 90 minutes Level 3 psychological care is provided wholly by a clinical Based on the stepped care model recommended by NICE and psychologist in the ICSWP National Clinical Guideline for Stroke (2012) The amount of time Level 3 psychological care is provided for Based on peer review each patient is equivalent to six sessions of 90 minutes 11
  • 12. Psychological care after stroke: Economic modelling of a clinical psychology led team approach • There is a strong relationship This paper should still be of use in of people are assessed as needing between the stroke unit and areas where these elements are not Level 1 care at/around transfer home community (including social care) fully established but, for costs to be or one month, and of these 67% are teams, and agreements covering minimised and benefits fully realised assessed as needing further the quality and timeliness of implementation of psychological care psychological care at the second information transfer and maximum should be planned as part of wider screen. Figure 2b also shows show waiting times for provision of implementation of these elements of the proportions of people who have community services; the strategy. received services following the staged • Reviews at six weeks and six screens. months. Pathway of care The overall pathway for psychological These figures are based on advice These elements provide the care and the assumptions made from the national project sites framework on which the economic about the proportion of people highlighted in the NHS Improvement model for psychological care is built. assessed as needing psychological - Stroke report ‘Psychological care care at each stage is shown in Figure after stroke’ [15], as well as further 2b. For example, it is assumed 33% consensus from peer review. Figure 2b: The psychological care pathway Level 2&3 support No third screen for people who 67% have had level 1 &2/3 support Level 1 support Level 2&3 support 33% No intervention 73% 33% No intervention 27% ALL PATIENTS Level 2&3 support Level 1 support 67% 18% No intervention No intervention 33% 67% Level 1 support No intervention 7% 82% No intervention 93% Screening 1 Screening 2 Screening 3 (@2 weeks/1month) (@3months) (@6months) 12
  • 13. Psychological care after stroke: Economic modelling of a clinical psychology led team approach The need for Level 2 and 3 Figure 3 shows that by the end of 12 In reality, this process will not be as psychological care is defined after months 51% of people will have had neat as this model implies. For screening or after a period of Level 1 no psychological care, but will have example, some lower level support psychological care. Level 2 care is been screened at one, three, and six may be triggered by concerns raised provided by additionally trained MDT months; 11% will have had Level 1 by the person who has had a stroke, members or a supervised clinical care and 38% will have received or their family; alternatively, some psychology assistant. Level 2 or 3 care. In the model, all people may be referred directly for people receiving Level 2/3 care will Level 2/3 support. Hence the pathway have had Level 1 care previously. set out above should be seen as a description of a psychology service for stroke, which can be used to inform the model’s parameters and not as a service specification. Figure 3: Summary 100 of services received 90 Similarly, the percentages of people by the end of each 80 assessed as needing services at period 70 different stages will vary from these 60 assumptions. The accompanying spreadsheet can be used to test 50 Percentage different assumptions and recalculate 40 costs and benefits, as described in the 30 remaining chapters of this paper. 20 10 0 month 1 month 3 month 6 month 12 Level 3 (CP) 0.0% 0.0% 4.4% 7.7% Level 2 (CPA) 0.0% 0.0% 8.9% 15.3% Level 2 (MDT) 0.0% 0.0% 8.9% 15.3% Level 1 supt only 0.0% 33.3% 23.1% 10.8% % screened 100% 67% 66% 0% 13
  • 14. Psychological care after stroke: Economic modelling of a clinical psychology led team approach Estimating demand for From this initial cohort of 500 stroke significantly since 1996 so psychological care patients an estimation was made of adjustments to the data have been The size of the population chosen in the proportion who would be alive made to reflect this. Adjustments for this paper is 250,000. This figure was (and able to benefit from) the 30 day mortality, length of hospital used because it is the size of the psychology service at different stages stay, readmission rate and catchment population in the Stroke in the pathway (Figure 4). proportions of people in residential Interface Audit (SIA) [18] on which The main source for these estimates care have been made in order to some of the estimates in this paper is the SIA [18], which identified make them more representative of are based. An assumed annual stroke patients admitted consecutively to current stroke care and outcomes. incidence rate of 2/1000 makes the two hospitals in Liverpool from model’s stroke population January to June 1996 and followed Detail of the adjustments made can approximately 500 strokes per year them up in person at 3, 6 and 12 be found in both Appendix 1 of the (first-ever and recurring). The model months post stroke, and then spreadsheet and Appendix 1 of this assumes that all of these patients are annually via postal questionnaire until paper. admitted to hospital. 5 years. Stroke care has developed The model does not include assumptions about (or dis-economies) of scale and hence it is Figure 4: Overview of stroke survivors at straightforward to scale these results different points post-stroke to different population sizes and incidence rates. 500 450 It is recognised that many people 400 with stroke will also have problems with cognition [3], the management of 350 which by clinical psychology could 300 have potential economic benefit. 250 However, in order to keep this model simple, it has not included an analysis 200 of the management of people with 150 cognitive problems in the service 100 described. 5 0 0 months 6 months 12 months 18 months 24 months Alive Alive benefitting from Alive benefitting level 1+2/3 support from level 1 support 14
  • 15. Psychological care after stroke: Economic modelling of a clinical psychology led team approach The model combines the data on Estimating costs average was taken from the cost of status and psychological care input, Direct NHS and adult social care costs consultations: surgery; clinic; phone; described in the Pathway of care have been used. The costs used to home visits; prorated according to section above, to make the following inform the model are summarised in the proportion of time spent by GPs estimates of the demand for Table 2. Basic salary costs were taken on those activities. A list of psychological services within the from Agenda for Change Pay Circular antidepressant medications that model’s population: (24 March 2011) [19], pay bands from might be used for stroke patients 1 April 2010, and inflated to include was identified from the • A total of 834 screens will take oncosts and overheads. MDT training literature [21] [22] [23] [24] and can be seen place costs were taken from the SIP case in the spreadsheet (Table 2.1, • 182 people will be offered Level 1 studies. The Unit Costs of Health [20] Appendix 2). The cost of each support as part of their were used to inform costs of: medication was calculated, based on rehabilitation inpatient bed nights (for hospital suggested dose [25] and pack price [26]. • Of these 56 will receive this service readmissions); outpatient procedures; These costs were then averaged to alone, while 126 will also be GP contacts; care home packages provide an estimate of the average offered additional psychological and residential care. The inpatient one year cost of antidepressant care (100 at Level 2 and 26 bed nights were taken as non- medication. Level 3). elective, short stay. For GP costs an Table 2: Cost of resources used in the model COST ITEM LEVEL DESCRIPTOR COST REFERENCE MDT staff member Annual salary with oncosts £39,821 Pay Circular AfC-2-2011 (Annex B) and overheads AfC band 5 (point 23) Clinical Psychology Assistant Annual salary with oncosts £39,821 Pay Circular AfC-2-2011 (Annex B) and overheads AfC band 5 (point 23) Clinical Psychologist Annual salary with oncosts £62,961 Pay Circular AfC-2-2011 (Annex B) and overheads AfC band 8a (point 36) Training for MDT member Per person £192 Data from SIP case studies [15] Inpatient bed night Per night £549 PSSRU [20] Outpatient procedures Average per procedure £147 PSSRU [20] GP contact Average of surgery, clinic, £39 PSSRU [20] telephone, and home visits Care home package Per week £304 PSSRU [20] Residential care Per week £983 PSSRU [20] Antidepressants One year cost £52 Table 2.1, Appendix 2 (spreadsheet) 15
  • 16. Psychological care after stroke: Economic modelling of a clinical psychology led team approach Combining demands and costs Table 3: Costs of service delivery in this Based on the figures reported above pathway for the chosen population and the other assumptions on the cost of services the provision of SERVICE COST AVERAGE INPUT PER WEEK psychological care for this population can be costed (Table 3). The table also Screening & Level 1 support £23,201 16 screens shows the average weekly workload, by MDT members 21 Level 1 sessions to give a more practical description of 6 Level 2 sessions the size of the service. The Training for MDT members £1,471 accompanying spreadsheet enables individual adjustment of any of these Clinical Psychology Assistant £16,438 6 Level 2 sessions (.41 FTE) assumptions (including population size, stroke incidence and people’s Clinical Psychologist £27,952 1.5 assessments (after Level 1 location at different stages of the support) pathway) and recalculates this total 2.9 Level 3 support sessions cost. 3 hours supervision (0.44 FTE) Total £68,969 16
  • 17. Psychological care after stroke: Economic modelling of a clinical psychology led team approach Modelling the impact of a service for psychological care after stroke This section focuses on the impacts Impact on the NHS In addition, an assumption was that such a psychological service for Significant investment has been made made, based on peer review and the people with stroke can have on both in recent years in community-based SIP national projects, that the the demand for other local health mental health services as part of the approach described in the model and social care services and on the Improving Access to Psychological would lead to less frequent use of individuals who receive them. These Therapies (IAPT) programme. A antidepressant medication. are considered over a period of two number of studies about the impact Anecdotally it appears that anti- years. of emotional and psychological depressants may be regularly used as support on health service activity a first line approach in services where Measuring these impacts is difficult, were reviewed. There are little data there is considered to be an absence partly because of a lack of empirical on the impact of psychological of alternatives. data, particularly with respect to services on resource use that are both stroke-specific services. Additional specific to stroke and UK-based. Two In order to combine the figures with difficulties arise because of the studies from the USA have shown those of the psychological care complex nature of emotional and that depression following stroke service provided by this model it is psychological issues and the difficulty resulted in an increase in the length necessary to: in tracking the impact of specific of stay for subsequent hospital elements of a multidisciplinary admissions, and more outpatient 1. Calculate the total time for which service. procedures [23] [27]. Because of the each person benefits from the population under study and the Level 1 or Level 2/3 support, which This section aims to gather together different health care system, it is they receive (Box 1) the limited available data on these difficult to quantify these impacts in a 2. Estimate what proportion of the impacts. Where possible it draws on UK population. However, such savings (GP, inpatient bed night, stroke-specific information, but in impacts are consistent with a UK- outpatient procedures and general it uses broader research on based review, although not stroke- medication) are realised by the impact of support for people with specific, which has quantified the providing Level 1 and Level 2/3 low/moderate mental health needs. benefits of reducing depression on support. Where such data are not available it resources such as GP consultations, uses assumptions which have been nights spent in hospital, and numbers It is necessary to make estimates of tested with clinical psychologists, and of outpatient procedures [28]. the realisation of benefits because it peer reviewed by a range of health is unrealistic to assume that these care professionals and analysts. Recovery from a common mental benefits will be fully realised. For health problem was estimated to lead example, people receiving just Level 1 In the following three sections, to average annual reductions in support are likely to have relatively impacts are described on individuals, healthcare usage per person as mild mental health issues, so this in terms of: the NHS; adult social care follows: intervention will release a lower services; and quality-adjusted life overall saving. Even for people years (QALYs). Finally there is a • 1.59 GP consultations; receiving Level 2/3 support, the discussion about the areas where • 0.73 inpatient bed nights. recovery rate will be less than 100%. emotional and psychological support • 0.36 outpatient procedures. is likely to have an impact, but which were not included in the analysis. 17
  • 18. Psychological care after stroke: Economic modelling of a clinical psychology led team approach Box 1: Calculating the total time over which people who receive psychological support benefit Benefits from the service are calculated by estimating how long each person benefits from each intervention they receive. For example, Figure 5 below shows the timescales over which a person who receives Level 1 support after the first screening and then Level 2/3 support after the third screening benefits from these services: Figure 5: Pathway of care for an individual receiving psychological support Months 0 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 ... 22 23 24 Screen 1 Screen 2 Screen 3 Level 1 support Level 2&3 support Benefitting from level 1 support Benefitting from level 2/3 support Hence this individual will benefit for 5 months from the Level 1 support, and then benefit for a further 16 months from Level 2/3 support (in the 24 months following stroke). The costing model can be used to total the “time for which each person benefits from psychological care” across the subset of the cohort of 500 who receive either Level 1 or Level 2/3 support. In total, based on the assumptions outlined in the previous section. • The total benefit from Level 1 support is 1068 “person months” • The total benefit from Level 2/3 support is 2328 “person months” The accompanying spreadsheet costs • Level 2/3 support is assumed to on demand and cost to calculate the the benefits of these services deliver 80% of the estimated cost estimated savings for emotional and separately for each of the two years savings in the first year after stroke psychological support across four following stroke. In line with this, it and 50% of these savings in the areas of health service spending (GP, assumes that the impact of services second year. inpatient bed night, outpatient lessens over this time and includes a procedures and medication) factor to discount benefits in year These data can then be combined discussed above (Table 4). two. As limited data are available on with data from the previous section the longer term impacts of these services this paper focuses on impacts Table 4: Savings to NHS from provision of up to 24 months after stroke. In psychological care over two years particular: From Level 1 From Level 2 & 3 TOTAL • Level 1 support is assumed to deliver 60% of the estimated cost GP consultations £2,453 £6,020 £8,473 savings in the first year after stroke and 40% of these savings in the Inpatient bed nights £7,789 £19,118 £26,907 second year Outpatient procedures £5,927 £14,546 £20,473 Anti-depressants £2,094 £5,140 £7,234 Total £18,263 £44,824 £63,087 18
  • 19. Psychological care after stroke: Economic modelling of a clinical psychology led team approach Avoiding nights in hospital beds and It has been estimated that around These assumptions could then be GP consultations may not realise 12.5% of people who have had a combined with data on the average direct cash savings as the bed and stroke and survive to transfer home cost of residential care and the appointment will inevitably be filled require some home care [30] services. number of admissions to residential by other patients. These care (taken from the SIA) to estimate calculations demonstrate the The assumptions about the impact on the total value of this saving at saving from reducing the cost of take up of these services from £14,060 over the first two years after the burden of stroke on health psychological support are: stroke. Potential savings from nursing care resources. home care were not included in the • That people who have had Level 1 model. Impact on Adult Social Care support need 5% less home care in Services year 1 and 2.5% less in year 2 Quality adjusted life years A similar analysis to that presented following stroke (QALYs) above is also possible for some costs • That people who have had Level The main driver for commissioning related to Local Authority funded 2/3 support need 10% less home health and social care services is to adult social care. However, there is a care in year 1 and 5% less in year 2 get the best possible outcomes for lack of quantitative research in this following stroke. the population at large. However, area and hence this part of the outcomes can be difficult to measure, analysis is exploratory. Where there These assumptions can be combined making it difficult to compare services were no research-based data to with data on the average cost of and hence inform commissioning support the model assumptions, home care packages to estimate the decisions. One tool that can help with these assumptions have instead been total savings of £31,151 (£17,918 in this process is ‘quality adjusted life tested through peer review. year 1 and £13,233 in year 2). years’ (QALYs) [32]. The QALY is used to quantify the benefits of a medical One such area is formal personal care There is also anecdotal evidence that intervention and takes into account provided at the stroke survivor’s own psychological support has an impact both quality and quantity of life home (assistance with activities such on the likelihood of someone moving generated by healthcare. The QALY is as washing and dressing). Untreated into residential care [31]. Because based on the amount of years of life depression has a negative impact on admission to a care home is generally that would be added by the function, independent of level of a one-off event, rather than on-going intervention. Each year in perfect physical disability [12]. Psychological activity, it cannot be modelled in the health is assigned the value of 100% care has been shown to be effective savings discussed above. Instead we down to a value of 0% for death. A for depression-related disorders, developed a model based on the monetary amount is used to estimate anxiety and behavioural problems assumptions that psychological the value of the extra life year. The [29] and can improve people’s mood, support could delay the need for impact of a particular intervention is confidence and ability to cope. admission to residential care for a quantified by estimating how much it small proportion (20%) of people – improved people’s quality of life on by four weeks for people who had this scale and then multiplying by the had Level 1 support and 12 weeks for value of the “extra life year”. people who were provided with Level 2/3 support. 19
  • 20. Psychological care after stroke: Economic modelling of a clinical psychology led team approach This exercise has been carried out for Table 5: Estimated proportions benefitting treatment for moderate depression or and QALY benefit for psychological care anxiety and the resulting value was £6,600 [28]. To calculate the total % of maximum benefits Value of benefits QALY benefit of the stroke-specific delivered psychological care service an estimation was made of how much Year 1 Year 2 of this total benefit is realised by each Level 1 care 25% 12% £102,535 intervention. The QALY benefit calculated is £462,807. The Level 2/3 care 50% 25% £360,272 assumptions and results of the QALY calculations are show in Table 5. TOTAL £462,807 Other impacts There are a number of additional benefits likely from these services which could not be included in the analysis. These include: • Benefits from the screening process • Savings related to people returning alone for people who are not to work, these are indirect costs, referred for Level 1 support (e.g. which have not been measured in some people may be signposted this model. However 25% of after the initial screening for people with stroke are of working informal support via local stroke age; calculation of the impact of groups). psychological care on return to • Avoidance of ‘crisis management’ work could yield some potential of people with stroke and economic benefits. psychological issues who feel • Benefits to the carers of people unsupported or uninformed and with stroke who have psychological who attend emergency needs: addressing a patient’s departments or access community psychological need may reduce the mental health crisis teams when carers utilisation of health and unable to cope. This could be a social care resources; carers may significant benefit, but is difficult to also have a greater opportunity to quantify using current evidence. return to work. 20
  • 21. Psychological care after stroke: Economic modelling of a clinical psychology led team approach Summary of results Table 6: Sensitivity analysis Estimated Savings 1 Year Year 1 and 2 Base case 10% less 10% more Base case 10% less 10% more effective effective effective effective NHS £33,410 £30,069 £36,751 £63,087 £56,778 £69,396 Costs Social Care £29,101 £26,191 £32,011 £45,211 £40,690 £45,211 £62,075 10% less TOTAL QALY Benefits £62,510 £266,764 £56,259 £68,761 £240,087 £293,440 £108,298 £462,807 £97,468 £114,607 £416,526 £509,088 { £68,972 £75,869 Base case 10% more Sensitivity analysis This sensitivity analysis found that, The model’s results were tested in a psychological care produces an sensitivity analysis with different overall cost saving after two years if assumptions about the effectiveness social care savings are included. If and cost of psychological care (Table social care savings are not included 6). Due to a lack of empirical data then psychological care is (just about) around measures of effectiveness, a cost neutral for the NHS in two years pragmatic approach to the sensitivity of the initial investment in all but the analysis was adopted. Therefore, ‘10% less effective’ scenario (Figure 6). assumptions were made that the interventions were either 10% more, or 10% less effective; which resulted Figure 6: NHS and adult social care savings in relation to cost in concomitant impacts on the overall savings generated i.e. 10% more or £140,000 10% less. As more information about psychological care after stroke £120,000 becomes available it will be possible £100,000 to make more informed decisions about which variables to include in a £80,000 sensitivity analysis and the range of £60,000 levels that they can realistically take. This would allow a more robust £40,000 sensitivity analysis of the model. £20,000 £0 Base case 10% less 10% more Base case 10% less 10% more effective effective effective effective Savings year 1 Savings year 1 & 2 Social care NHS Cost Cost -10% Cost +10% 21
  • 22. Psychological care after stroke: Economic modelling of a clinical psychology led team approach Discussion This paper has modelled the costs Potential cost benefits to the health There were substantial additional and potential cost savings of economy were estimated as well as treatment costs in year one of more delivering a psychological care service suggested quality of life benefits to than £4.5 million, however in year for people with problems affecting individuals in having their mental two, £450,000 savings to health and their mood after stroke. It has health needs assessed regularly and social care were made due to lower estimated the potential cost savings met by a stroke team who are aware costs associated with depression and of a clinical psychologist-led service of psychological issues and are able benefits from reduced productivity that funds clinical psychology and to manage them appropriately. The losses. A Hillingdon study clinical psychology assistant posts to modelling indicates that an demonstrated savings of £837 per support the development of good investment of £68,972 to deliver a person with depression and Chronic psychological care after stroke. stroke-specific psychological care Obstructive Pulmonary Disease service in the first year after stroke to (COPD) who attended the The modelling has from necessity a stroke population of 500 people breathlessness clinic in the six months been based on a number of may be virtually realised by the NHS after treatment. This is around four assumptions about a service in order over a two year period with the times the upfront cost. A Liverpool to define the economic benefits. benefit being £63,087. If economic study of 433 people with angina who Where possible the assumptions have benefits to both the NHS and adult attended a cognitive behavioural been based on best practice or social care are considered then a chronic disease management evidence for psychological care after more significant benefit of £39,326 programme demonstrated reductions stroke, or on evidence for people may be realised in the second year. in healthcare usage of approximately with long term conditions. Where this £2,000 per person in the year after has not been possible clinical opinion In terms of outcomes, the total treatment, ‘well in excess of the cost has underpinned the assumption. The benefit of this service measured in of psychological intervention.’ context of the service described is terms of quality adjusted life years are one led by a clinical psychologist who significant and well beyond those There is further work to be done to trains and supports a multidisciplinary expected in terms of the criteria set define the economic impact of team to provide Level 1 and some by NICE. The total QALY value for psychological care specifically for Level 2 psychological care and has people receiving Level 1 and 2/3 care stroke. In particular there was little clinical psychology assistant support. is £462,807. available evidence to define the The service is compliant with the extent of crisis management of National Stroke Strategy Studies exploring the benefits of psychological need of this group by recommendations that patients are psychological services in other mental health services and reviewed at six weeks and six months conditions have aimed to estimate emergency departments and primary and that there is good integration the wider benefits to services and care. There is evidence to show that between acute and community society and large substantial functional recovery is impeded by services and social care. additional amounts have been depression [12], but the economic identified [33]. Six months of implications of this are not yet well collaborative care of people with type defined in terms of impact on length 2 diabetes and depression resulted in of hospital stay, continued an additional 115 depression-free involvement with rehabilitation days per individual. services and additional support needs, although this evidence is available for other long term conditions. 22
  • 23. Psychological care after stroke: Economic modelling of a clinical psychology led team approach Provision of psychological care after The assumption in this paper that The assumption about the impact of stroke in England has been shown to psychotherapy is of benefit to stroke psychotherapy on costs was not as be at best variable and at worst patients was not unreasonable. There strong because it had to be drawn inadequate [10] [2]. The national focus is evidence from two Cochrane from either the stroke literature, of attention on psychological care has reviews [35] [36] to suggest that which was not trial-based (e.g. [23]) or raised awareness of the need for psychotherapy can prevent the was non-stroke data (e.g. [28]). This services to improve. Inclusion of development of depression, though means that the model is not as robust national measures of psychological little evidence of the benefit of as would be ideal, but because the care in the national stroke audit, and psychotherapy on treating model has been developed on mixed their consideration for inclusion in the depression; two trials not included in levels of evidence, assumptions made Commissioning Outcomes this latter review have shown a small are conservative. Whilst this model is Framework is welcomed as potential benefit of psychotherapy on treating considered by the authors to be of drivers for continued improvement depression [22] [24]. Of particular value, further research into the in services. promise however is the potential of benefit of psychotherapy after stroke patients to be assisted by in a multi-centre trial is psychological treatments modified to recommended. Such trials will need A proportion of stroke services suit those with stroke [17]. Empirical to consider the type of psychotherapy have made improvements in their support has established stroke delivered, the timing of the therapy services based on reconfiguration patients with low mood and aphasia (aligning it to current guidance) a of stroke pathways and by linking benefitted from behaviour therapy range of outcome measures (mood, with adjacent services and the modified for their communication function and resources) and recording voluntary sector; however, the disability [37]. of outcomes up to one year, if not significant shortfall in stroke longer. specific clinical psychologists will only be addressed through the provision of these posts where Recommendations they currently do not exist. NHS Commissioning National data about the provision of psychological care is regularly Board published and is publically available. Whilst the focus of this paper has been on the economic impact of Royal College of Specific audits of community and long term stroke services include Physicians examination of psychological, cognitive and emotional care. psychological care, it is the individual and their family who are at the heart of Academics and Further research into the economic benefits of psychological these services, and who may have a researchers therapy after stroke is undertaken in a multi-centre study. very real need for emotional and Commissioners The model is used to establish the local economic benefits of a psychological support to manage the clinical psychologist-led service for psychological care based on a stroke and its consequences. The review of current provision of psychological care. significant benefits of meeting this Stroke-specific psychological care is commissioned through the need are almost impossible to quantify. engagement of adult social care, acute and community stroke services, voluntary sector and mental health services. One of the difficulties in developing Data and information are used to monitor access to and the this model was a lack of empirical impact of psychological care for people with stroke. evidence of the cost-effectiveness, or even cost-utility of treating Providers Psychological care pathways are developed using a stepped approach. depression after stroke [34]. It would have been better if this modelling Views of patients and families about the quality of psychological work could have been informed by a care they received in the stroke service are elicited to support development of these services. large multi-centre trial exploring the effectiveness and cost-effectiveness Consistent and routine mood and cognition screening is carried (or utility) of psychotherapy delivered out in line with national evidence based guidance. early after stroke. 23
  • 24. Psychological care after stroke: Economic modelling of a clinical psychology led team approach References [1] Department of Health, “National Stroke Strategy,” Department of Health, London, 2007. [2] Intercollegiate Stroke Working Party, “National Sentinel Stroke Clinical Audit 2010: Round 7. Public report for England, Wales and Northern Ireland,” Royal College of Physicians, London, 2011. [3] Intercollegiate Stroke Working Party, “National Clinical Guidelines for Stroke,” Royal College of Physicians, London, 2012. [4] Hackett et al, “Frequency of depression after stroke; a systematic review of observational studies,” Stroke, vol. 36, p. 1330, 2005. [5] Campbell-Burton CA, Murray J, Holmes J et al, “Frequency of anxiety after stroke: A systematic review and meta-analysis of observational studies,” DOI:10.1111/j.1747-4949.2012.00906.2012. [6] Sembi S, Tarrier N, O'Neil P et al, “Does post-traumatic stress disorder occur after stroke: A preliminary study,” International Journal of Geriatric Psychiatry, vol. 13, pp. 315-322, 1998. [7] Bruggimann L, Annon, J M, Staub F et al, “Chronic posttraumatic stress symptoms after nonsevere stroke,” Neurology, vol. 66, pp. 513-16, 2006. [8] Field E L, Norman P, Barton J. et al, “Cross-sectional and prospective associations between cognitive appraisals and posttraumatic stress disorder symptoms following stroke,” Behaviour Research and Therapy, vol. 46, pp. 62-70, 2008. [9] British Psychological Society, “Psychological services for stroke survivors and their families - Briefing paper 19,” 2010. [10] National Audit Office, “Progress in improving stroke care,” Department of Health, London , 2010. [11] Care Quality Commission, “A review of services for people who have had a stroke and their carers,” Care Quality Commission, London, 2011. [12] West, R., Hill, K., Hewison, J., Knapp, P. House, A., “Psychological disorders after stroke are an important influence on functional outcomes; a prospective cohort study,” Stroke, vol. 41, pp. 1723-1727, 2010. [13] The Kings Fund and Centre for Mental Health, “Long term conditions and mental health - the cost of comorbidities.,” London, 2012. [14] National Institute for Health and Clinical Excellence, “Depression in adults with a chronic physical health problem . Clinical guideline 91,” 2009. [15] NHS Improvement, “Psychological care after stroke; Improving services for people with mood and cognitive disorders,” NHS Improvement, 2011. [16] National Institute for Health and Clinical Excellence, “Stroke Quality Standard,” 2012. [17] Lincoln, N.B. Kneebone, I.I. Macniven, J.A.B. and Morris, R., Psychological management of stroke, Chichester: Wiley, 2012. [18] Watkins et al, “Stroke Interface Audit: pre/post discharge audit of stroke services and care in Liverpool and Sefton: Delivery timeliness and targeting. 36 month report,” March 2002. [19] Department of Health, “Agenda for Change Pay Circular,” Department of Health, 2011. [20] Personal Social Services Research Unit (PSSRU), “Unit Costs of Health and Social Care 2011,” 2011. [Online]. Available: http://www.pssru.ac.uk/project-pages/unit- costs/2011/index.php. [Accessed 7th August 2012]. [21] Turner-Stokes L, Hassan N, “Depression after stroke: A review of the evidence base to inform the development of an integrated care pathway. Part 2: Treatment alternatives,” Clinical Rehabilitation, vol. 16, pp. 248-60, 2001. 24
  • 25. Psychological care after stroke: Economic modelling of a clinical psychology led team approach [22] Williams LS, Kroenke K, Bakas T et al, “Care management of post stroke depression: A randomised controlled trial,” Stroke, vol. 38, pp. 998-1003, 2007. [23] Jia, H., Damush, T.M., Qin, H. et al, “The impact of poststroke depression on healthcare use by veterans with acute stroke,” Stroke, vol. 37, pp. 27996-2801, 2006. [24] Mitchell PH, Veith RC, Becker KJ et al, “Brief psychological behavioural with antidepressant reduces poststroke depression significantly more than usual care with antidepressant: living well with stroke: randomised controlled trial.,” Stroke, vol. 40, pp. 3073-8, 2009. [25] WHO Collaborating Centre for Drug Statistics Methodology, [Online]. Available: http://www.whocc.no [Accessed 24th May 2012]. [26] BNF online, [Online]. Available: http://www.bnf.org/bnf/index.htm. [Accessed 24th May 2012]. [27] Ghose, S.S.. Williams, L.S., Swindle, R.W.,, “Depression and other mental health diagnoses after stroke increases inpatient and outpatient medical utilisation three years poststroke,” Medical Care, vol. 43, pp. 1259-1264, 2005. [28] Department of Health, “Impact assessment of the expansion of talking therapies services as set out in the Mental Health Strategy,” Department of Health, 2011. [29] Kneebone, I. I., Lincoln, N.B, “Psychological Problems after Stroke and Their Management: State of Knowledge,” Neuroscience and Medicine, vol. 3, pp. 83-89, 2012. [30] Saka O, McGuire A, Wolfe C. , “Cost of stroke in the United Kingdom,” Age and Ageing, vol. 38, pp. 27-32, 2009. [31] NHS Improvement, “Care Homes,” [Online]. Available: http://www.improvement.nhs.uk/stroke/Carehomes/tabid/201/Default.aspx. [Accessed 30th August 2012]. [32] National Institute for Health and Clinical Excellence, “Measuring effectiveness and cost effectiveness: the QALY,” 20th April 2010. [Online]. Available: http://www.nice.org.uk/newsroom/features/measuringeffectivenessandcost effectivenesstheqaly.jsp. [Accessed 8th August 2012]. [33] NHS Confederation and Mental Health Network, “Investing in emotional and psychological wellbeing in people with long term conditions,” 2012. [34] R. Marsh, “Evidence Adoption Centre NHS East of England- Reviews in progress,” The cost and cost-effectiveness of psychological therapies for post stroke management: a rapid evidence assessment, 2012. [Online]. Available: http://www.eac.cpft.nhs.uk/reviewsinprogress.aspx. [Accessed 10th September 2012]. [35] Hackett ML, Anderson CS, House A et al, “Interventions for preventing depression after stroke,” Cochrane Database of Systematic Reviews, no. 3, 2008a. [36] Hackett ML, Anderson CS, House A, et al, “Interventions for treating depression after stroke,” Cochrane Database of Systematic reviews, no. 4, 2008b. [37] Thomas SA, Walker MF, Macniven JA, Haworth H, Lincoln N,, “Communication and Low Mood (CALM): a randomized controlled trial of behavioural therapy for stroke patients with aphasia.,” Clinical Rehabilitation, In Press. 25
  • 26. Psychological care after stroke: Economic modelling of a clinical psychology led team approach Appendix 1 Adjustments made to the Stroke Interface Audit data Stroke care has taken considerable strides forward since 1996 and so adjustments have been made to the data in order to make it more representative of modern stroke care and outcomes. In the original cohort the level of mortality was high compared with other cohorts and more modern data; for example, the 30-day mortality in the cohort was 34%, which is much higher than the 17% cited in the National Sentinel Audit (2011)1. The mortality data was reviewed from a series of studies2, 3, 4, 5, 6, 7, 8, 9, 10, 11, 12 and increased the number alive at the different time points by a factor of 18%. Similarly, the length of hospital stay for the index stroke is much longer [mean 35.3 days] than the mean 19.5 days cited in the National Sentinel Audit (2011)1. Consequently we reduced the length of stay data by 40%. The proportion of readmissions during each month up to 12 months was available from the cohort, but there were limited data on readmissions beyond 12 months. Consequently, an estimate was made of the likely proportion of readmissions per month, for months 13 through 24, based on the data up to 12-months (readmissions per month were on average 6.3% of the patients alive in the community) and data reported elsewhere2. Using these figures it was estimated that for each of months 13 through 24, the number of readmissions is equivalent to approximately 5.0% of the number of patients alive. Data on the exact time of entry to residential care was not known – residence was recorded using point estimates at the time of assessments (i.e. 3, 6, 12 and 24 months) and so a rounded estimate has been used, based on the known proportion at the time of assessment. For each of months 13 through 24 we have estimated that 25% of patients in the community were in residential care. 1 Intercollegiate Stroke Working Party, “National Sentinel Stroke Clinical Audit 2010: Round 7. Public report for England, Wales and Northern Ireland,” Royal College of Physicians, London, 2011. 2 Bravata Dm, Shih-Yieh H, Meehan TP, et al, “Readmission and death after hopitalisation for acute ischaemic stroke: 5 year follow up in the Medicare population,” Stroke, vol. 38, pp. 1899-904, 2007. 3 Brønnum-Hansen H, Davidsen M, Thorvaldsen P, “Long term survival and causes of death 4 Dennis MS, Burn JP, Sandercock PA et al, “Long term survivalafter first-ever stroke: the Oxfordshire community stroke project,” Stroke, vol. 24, pp. 976-800, 1993. 5 Eriksson SE, Olsson JE, Broadhurst RJ et al, “Five year survival after first-ever stroke and related prognostic factorsin the Perth community stroke study,” Stroke, vol. 34, pp. 1842-6, 2000. 6 Hardie K, Hankey GJ, Jamrozik K, et al, “Ten-year survival after first ever stroke in the Perth community stroke study,” Stroke, vol. 34, pp. 1842-6, 2003. 7 Turaj W, Slowik A, Dziedzic T et al, “Increased plasma fibrinogen predicts one year mortality in patients with acute ischaemic stroke,” Journal of Neurological Sciences, vol. 246, pp. 13-19, 2005. 8 Stavem, K, Rønning OM, “Survival of unselected stroke patients in a stroke unit compared with conventional care,” QJ Med, vol. 95, pp. 143-152, 2002 9 Wang y, Lim LL-Y, Heller RF et al, “A prediction model of 1-year mortality for acute ischaemic stroke patients,” Arch phys Med Rehab, vol. 84, pp. 1006-11, 2003. 10 Hankey GJ, Jamrozik K, Broadhurst RJ, et al, Five-year survival after first-ever stroke and related prognostic factors in the Perth community stroke study. Stroke;31: 2080-6. 2000 11 Eriksson SE, Olsson JE. Survival and recurrent strokes in patients with different subtypes of stroke: a fourteen-year follow-up. Cerebrovascular Diseases;12:171-80. 2001 12 Saposnik G, Hill MD, O’Donnell M, Fang J, Hachinski V, Kapral MK. Variables associated with 7-day, 30-day, and 1-year fatality after ischemic stroke. Stroke;39:2318–2324. 2008 26
  • 27.
  • 28. NHS NHS Improvement CANCER DIAGNOSTICS HEART LUNG STROKE NHS Improvement NHS Improvement’s strength and expertise lies in practical service improvement. It has over a decade of experience in clinical patient pathway redesign in cancer, diagnostics, heart, lung and stroke and demonstrates some of the most leading edge improvement work in England which supports improved patient experience and outcomes. Working closely with the Department of Health, trusts, clinical networks, other health sector partners, professional bodies and charities, over the past year it has tested, implemented, sustained and spread quantifiable improvements with over 250 sites across the country as well as providing an improvement tool to over 2,000 GP practices. NHS Improvement 3rd Floor | St John’s House | East Street | Leicester | LE1 6NB Telephone: 0116 222 5184 | Fax: 0116 222 5101 www.improvement.nhs.uk Publication Ref: NHSIMP/Stroke0003 - November 2012 ©NHS Improvement 2012 | All Rights Reserved Delivering tomorrow’s improvement agenda for the NHS