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Protecting Vulnerable Pennsylvanians
                   by
  Preserving Services for People with
Mental Illness, Substance Use Disorder,
  Intellectual Disabilities and Autism
Funding for Community-based Behavioral Health and
    Intellectual Disability Services Has Already Been Cut,
                      and Cut, and Cut.

   Payment rates for these services have not kept pace with (a)
    inflation (CPI), (b) the Home Health Market Basket Index, or
    (c) the State General Fund over the past two decades. See
    Chart 1 attached.

   Over the past twenty years, payment rates for these services
    have been cut 40% compared to the cost of providing these
    services.

   Over the past eight years, the Governor proposed cost-of-
    living adjustments to these payment rates in only three of the
    last eight years. In both FY 2005 and FY 2009, the
    Legislature added funding for payment rate increases at less
    than inflation. See Chart 2 attached.


                                                                   2
Over the Past 20 Years, BH/ID/A Reimbursement Lags Far
                                         Behind Increases in the State General Fund and in Inflation
                                         160.00%



                                         140.00%
                                                                                                                                                                                                               State
                                                                                                                                                                                                              General
                                                                                                                                                                                                               Fund
                                         120.00%
Cumulative Percentage Change




                                         100.00%

                                                                                                                                                                                                              HHMBI
                                           80.00%

                                                                                                                                                                                                               CPI-U
                                                                                                                                                                                                            (Seasonally
                                           60.00%                                                                                                                                                               Adj)



                                           40.00%
                                                                                                                                                                                                             BH/ID/A
                                                                                                                                                                                                            Reimbursement



                                           20.00%



                                             0.00%
                                                        90-91 91-92 92-93 93-94 94-95 95-96 96-97 97-98 98-99 99-00 00-01 01-02 02-03 03-04 04-05 05-06 06-07 07-08 08-09 09-10 10-11
                               State General Fund       0.00% 12.89% 14.20% 21.10% 26.19% 30.58% 32.57% 39.03% 45.70% 55.21% 60.85% 67.21% 66.76% 72.78% 85.41% 97.25% 111.95 119.02 128.03 124.38 133.71
                               HHMBI                    0.00% 4.75% 7.82% 12.12% 15.34% 18.40% 21.47% 24.85% 28.68% 32.52% 37.42% 43.10% 48.01% 52.61% 57.67% 62.42% 67.48% 73.31% 79.14% 82.52% 87.12%
                               CPI-U (Seasonally Adj)   0.00% 3.01% 6.10% 8.75% 12.06% 15.22% 17.79% 19.71% 22.06% 26.62% 30.66% 32.06% 34.63% 38.90% 42.43% 48.46% 52.35% 59.76% 57.76% 59.51% 63.61%
                               BH/ID/A Reimbursement 0.00% 3.00% 5.06% 7.16% 9.30% 9.30% 9.30% 11.49% 13.72% 15.99% 18.31% 20.68% 20.68% 20.68% 23.09% 25.56% 28.07% 31.91% 33.23% 33.23% 33.23%




                                                                                                                                                                                                                        3
BH/ID COLAs by Fiscal Year
 Actual Compared to HHMBI
  Fiscal
            MH/MR COLA      HHMBI**       Difference
  Year
  93-94         0.00%         0.00%         0.00%
  94-95         2.00%         2.83%         -0.83%
  95-96         0.00%         2.75%         -3.66%
  96-97         0.00%         2.59%         -6.39%
  97-98         2.00%         3.15%         -7.77%
  98-99         2.00%         2.88%         -8.91%
  99-00         2.00%         3.73%        -11.08%
  00-01         2.00%         4.25%        -13.98%
  01-02         2.00%         3.45%        -16.06%
  02-03         0.00%         3.18%        -20.15%
  03-04         0.00%         3.31%        -24.55%
  04-05         2.00%         2.99%        -26.40%
  05-06         2.00%         3.45%        -28.97%
  06-07         2.00%         3.40%        -31.60%
  07-08         3.00%         3.30%        -33.01%
  08-09         1.00%         3.00%        -37.69%
  09-10         0.00%         2.00%        -39.67%
  10-11        0.00%          2.10%        -43.12%
           **Home Health Market Basket Index.
                Source: Global Insight.


                                                       4
Payment Rates for Community-based Behavioral Health
    and Intellectual Disability Services Have Lagged Behind
           Other Major Medicaid Service Providers
                  Over the Past Twenty Years.


    Annual payment rate increases for Medicaid MCO’s and Nursing
     Homes far exceeded payment rate increases for hospitals, which
     exceeded the payment rate increases for home and community-
     based behavioral health and intellectual disability services. See
     Chart 3 attached.




                                                                         5
BH/ID/A Reimbursement Lags Well Behind the Increases in
                                      Medicaid Payments Received by Other Major Medicaid
                                                   Providers in Pennsylvania
                           160.00%
                                                                                                                                                                      MCOs
                           145.00%
Cumulative COLA Increase


                           130.00%                                                                                                                                   Nursing
                                                                                                                                                                     Homes
    (Compounded)



                           115.00%

                           100.00%

                            85.00%                                                                                                                                  State
                                                                                                                                                                    General
                            70.00%                                                                                                                                      Fund

                            55.00%

                            40.00%                                                                                                                                  Hospitals

                            25.00%
                                                                                                                                                                       BH/ID/A
                                                                                                                                                                    Reimbursement
                            10.00%

                            -5.00%
                                      FY     FY     FY     FY     FY     FY     FY     FY     FY     FY     FY     FY     FY     FY     FY     FY     FY     FY
                                     1994   1995   1996   1997   1998   1999   2000   2001   2002   2003   2004   2005   2006   2007   2008   2009   2010   2011
              MCOs                   0.00% 7.40% 10.84% 7.29% 9.44% 13.81% 23.21% 33.02% 46.96% 62.44% 69.75% 81.63% 93.25% 100.98 107.01 119.31 130.28 144.09
              Nursing Homes          0.00% 10.20% 20.43% 29.04% 37.18% 45.36% 52.77% 64.96% 76.37% 88.79% 97.00% 108.04 113.86 122.42 126.86 126.86 129.13 133.26
              State General Fund
                                 0.00% 4.21% 7.45% 9.08% 14.41% 19.90% 27.73% 32.37% 37.61% 37.24% 42.19% 52.58% 62.33% 74.43% 80.25% 87.75% 66.81% 74.09%
                 (State $ Only)
              Hospitals              0.00% 3.70% -1.49% 0.49% 3.20% 5.26% 8.21% 11.46% 15.91% 20.70% 21.91% 24.96% 27.46% 32.55% 35.20% 35.20% 35.20% 35.20%
                 BH/ID/A
                                     0.00% 2.00% 2.00% 2.00% 4.04% 6.12% 8.24% 10.41% 12.62% 12.62% 12.62% 14.87% 17.17% 19.51% 23.09% 24.33% 24.33% 24.33%
              Reimbursement


                                                                                                                                   Source: Governor's Executive Budget




                                                                                                                                                                            6
The Cost of Community-based Behavioral Health and
       Intellectual Disability Services is Less than Half
                the Cost of State Institutions.

 The average cost per resident in state MR Centers is
  $256,622 compared to the average cost of residential and
  day program services in the community for people with
  intellectual disabilities of $112,000, or 44% of the cost of the
  mandatory Medicaid entitlement alternative. See Chart 4
  attached.
 The average cost per patient in State Mental Hospitals is
  $195,891 compared to the average cost of residential and
  day treatment services in the community for people with
  mental illness of $60,850, or 31% of the cost of care in state
  institutions. See Chart 4 attached.



                                                                     7
FY 11 Average Cost per Person
                                                        State Insitutions vs. Community Programs
                          $300,000




                          $250,000




                          $200,000
Average Cost per Person




                          $150,000


                                       $256,622


                          $100,000                                                           $195,891



                                                               $112,000
                           $50,000

                                                                                                                     $60,850


                               $0
                                     State MR Centers     Community ID Programs          State Mental Hospitals Community BH Programs


                                                                                                                                        8
The Cost of Direct Support Personnel is Twice as High in
     State Institutions as in Community Programs.


   Based on a Legislative Budget and Finance Committee
    report1, the average hourly wage for direct support
    personnel in community-based programs ($8.84), is less than
    half the wages paid ($17.78) in state institutions and the
    difference continues to widen.

   The Average annual wage of a direct support professional in
    a community setting ($18,390) is only slightly above the
    federal poverty guidelines for a family of three.2

1 LBFC   Report on Salary Levels and Their Impact on Quality of Care for Client Contact Workers in Community Based MH/MR
                                                                 Prorgams http://lbfc.legis.state.pa.us/reports/1999/204.PDF
           2 American   Network of Community Options and Resources (ANCOR) 2008 Direct Support Professional Wage Study

                                                                                                                           9
Opportunities for Cost-Shifting to Other Payers is Almost
                    Non-Existent.


   The state (with matching federal funds) is the single payer for
    community-based behavioral health and intellectual disability
    services.
   There is almost no private pay (less than 1%) for these
    services.




                                                                  10
The Almost Exclusively Non-Profit Providers of these
              Services are Financially Fragile.


   For 45 years, DPW payment policy and county MH/MR
    agency practice severely limited retained revenue.
   County contracts, DPW fiscal regulation, and ODP
    Instructions to Cost Reporting carefully limit allowable
    costs.
   Cash advances from counties, and now gross
    adjustments from DPW, continue to be necessary to
    ensure adequate cash flow for many of these
    community-based providers.




                                                               11
Cuts in these Services will Increase Costs Elsewhere in
                State and County Government.

   County jails and state prisons are among the default
    treatment option for people with autism and untreated
    behavioral health needs.
   Cuts that lead to program closures for people with
    intellectual disabilities will result in a re-
    institutionalization policy contrary to the Americans
    with Disabilities Act at greater expense to the state
    budget.
        The lack of adequate Waiting List funding for people with
         intellectual disabilities is resulting in Section 406 commitments
         to state MR institutions by county common pleas courts, at a
         cost of $256,622 per person per year, which will only
         accelerate if further cuts are made.

                                                                         12
Traditional Cost Cutting Measures (Serving Fewer People or
             Providing Fewer Services) are Not Available
                    in the Community ID Waivers.



    Existing waiver participants cannot be terminated from ID
     waivers, according to federal law, and there is almost no
     turnover of the people enrolled in these waivers.
    The amount and kinds of services provided to ID waiver
     participants cannot be cut back, according to federal rules.




                                                                    13
Medicaid Waiver Services for People with Autism
                    Must Be Preserved



   Two Medicaid waivers generate federal matching funds for
    services for 500 adults with autism spectrum disorders.
   The preservation of these services will help to reduce costly
    and inappropriate “care” for people with autism, including
    county jails and state prisons.




                                                                    14

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2011 BH/ID/A Coalition Pre-Budget Presentation

  • 1. Protecting Vulnerable Pennsylvanians by Preserving Services for People with Mental Illness, Substance Use Disorder, Intellectual Disabilities and Autism
  • 2. Funding for Community-based Behavioral Health and Intellectual Disability Services Has Already Been Cut, and Cut, and Cut.  Payment rates for these services have not kept pace with (a) inflation (CPI), (b) the Home Health Market Basket Index, or (c) the State General Fund over the past two decades. See Chart 1 attached.  Over the past twenty years, payment rates for these services have been cut 40% compared to the cost of providing these services.  Over the past eight years, the Governor proposed cost-of- living adjustments to these payment rates in only three of the last eight years. In both FY 2005 and FY 2009, the Legislature added funding for payment rate increases at less than inflation. See Chart 2 attached. 2
  • 3. Over the Past 20 Years, BH/ID/A Reimbursement Lags Far Behind Increases in the State General Fund and in Inflation 160.00% 140.00% State General Fund 120.00% Cumulative Percentage Change 100.00% HHMBI 80.00% CPI-U (Seasonally 60.00% Adj) 40.00% BH/ID/A Reimbursement 20.00% 0.00% 90-91 91-92 92-93 93-94 94-95 95-96 96-97 97-98 98-99 99-00 00-01 01-02 02-03 03-04 04-05 05-06 06-07 07-08 08-09 09-10 10-11 State General Fund 0.00% 12.89% 14.20% 21.10% 26.19% 30.58% 32.57% 39.03% 45.70% 55.21% 60.85% 67.21% 66.76% 72.78% 85.41% 97.25% 111.95 119.02 128.03 124.38 133.71 HHMBI 0.00% 4.75% 7.82% 12.12% 15.34% 18.40% 21.47% 24.85% 28.68% 32.52% 37.42% 43.10% 48.01% 52.61% 57.67% 62.42% 67.48% 73.31% 79.14% 82.52% 87.12% CPI-U (Seasonally Adj) 0.00% 3.01% 6.10% 8.75% 12.06% 15.22% 17.79% 19.71% 22.06% 26.62% 30.66% 32.06% 34.63% 38.90% 42.43% 48.46% 52.35% 59.76% 57.76% 59.51% 63.61% BH/ID/A Reimbursement 0.00% 3.00% 5.06% 7.16% 9.30% 9.30% 9.30% 11.49% 13.72% 15.99% 18.31% 20.68% 20.68% 20.68% 23.09% 25.56% 28.07% 31.91% 33.23% 33.23% 33.23% 3
  • 4. BH/ID COLAs by Fiscal Year Actual Compared to HHMBI Fiscal MH/MR COLA HHMBI** Difference Year 93-94 0.00% 0.00% 0.00% 94-95 2.00% 2.83% -0.83% 95-96 0.00% 2.75% -3.66% 96-97 0.00% 2.59% -6.39% 97-98 2.00% 3.15% -7.77% 98-99 2.00% 2.88% -8.91% 99-00 2.00% 3.73% -11.08% 00-01 2.00% 4.25% -13.98% 01-02 2.00% 3.45% -16.06% 02-03 0.00% 3.18% -20.15% 03-04 0.00% 3.31% -24.55% 04-05 2.00% 2.99% -26.40% 05-06 2.00% 3.45% -28.97% 06-07 2.00% 3.40% -31.60% 07-08 3.00% 3.30% -33.01% 08-09 1.00% 3.00% -37.69% 09-10 0.00% 2.00% -39.67% 10-11 0.00% 2.10% -43.12% **Home Health Market Basket Index. Source: Global Insight. 4
  • 5. Payment Rates for Community-based Behavioral Health and Intellectual Disability Services Have Lagged Behind Other Major Medicaid Service Providers Over the Past Twenty Years.  Annual payment rate increases for Medicaid MCO’s and Nursing Homes far exceeded payment rate increases for hospitals, which exceeded the payment rate increases for home and community- based behavioral health and intellectual disability services. See Chart 3 attached. 5
  • 6. BH/ID/A Reimbursement Lags Well Behind the Increases in Medicaid Payments Received by Other Major Medicaid Providers in Pennsylvania 160.00% MCOs 145.00% Cumulative COLA Increase 130.00% Nursing Homes (Compounded) 115.00% 100.00% 85.00% State General 70.00% Fund 55.00% 40.00% Hospitals 25.00% BH/ID/A Reimbursement 10.00% -5.00% FY FY FY FY FY FY FY FY FY FY FY FY FY FY FY FY FY FY 1994 1995 1996 1997 1998 1999 2000 2001 2002 2003 2004 2005 2006 2007 2008 2009 2010 2011 MCOs 0.00% 7.40% 10.84% 7.29% 9.44% 13.81% 23.21% 33.02% 46.96% 62.44% 69.75% 81.63% 93.25% 100.98 107.01 119.31 130.28 144.09 Nursing Homes 0.00% 10.20% 20.43% 29.04% 37.18% 45.36% 52.77% 64.96% 76.37% 88.79% 97.00% 108.04 113.86 122.42 126.86 126.86 129.13 133.26 State General Fund 0.00% 4.21% 7.45% 9.08% 14.41% 19.90% 27.73% 32.37% 37.61% 37.24% 42.19% 52.58% 62.33% 74.43% 80.25% 87.75% 66.81% 74.09% (State $ Only) Hospitals 0.00% 3.70% -1.49% 0.49% 3.20% 5.26% 8.21% 11.46% 15.91% 20.70% 21.91% 24.96% 27.46% 32.55% 35.20% 35.20% 35.20% 35.20% BH/ID/A 0.00% 2.00% 2.00% 2.00% 4.04% 6.12% 8.24% 10.41% 12.62% 12.62% 12.62% 14.87% 17.17% 19.51% 23.09% 24.33% 24.33% 24.33% Reimbursement Source: Governor's Executive Budget 6
  • 7. The Cost of Community-based Behavioral Health and Intellectual Disability Services is Less than Half the Cost of State Institutions.  The average cost per resident in state MR Centers is $256,622 compared to the average cost of residential and day program services in the community for people with intellectual disabilities of $112,000, or 44% of the cost of the mandatory Medicaid entitlement alternative. See Chart 4 attached.  The average cost per patient in State Mental Hospitals is $195,891 compared to the average cost of residential and day treatment services in the community for people with mental illness of $60,850, or 31% of the cost of care in state institutions. See Chart 4 attached. 7
  • 8. FY 11 Average Cost per Person State Insitutions vs. Community Programs $300,000 $250,000 $200,000 Average Cost per Person $150,000 $256,622 $100,000 $195,891 $112,000 $50,000 $60,850 $0 State MR Centers Community ID Programs State Mental Hospitals Community BH Programs 8
  • 9. The Cost of Direct Support Personnel is Twice as High in State Institutions as in Community Programs.  Based on a Legislative Budget and Finance Committee report1, the average hourly wage for direct support personnel in community-based programs ($8.84), is less than half the wages paid ($17.78) in state institutions and the difference continues to widen.  The Average annual wage of a direct support professional in a community setting ($18,390) is only slightly above the federal poverty guidelines for a family of three.2 1 LBFC Report on Salary Levels and Their Impact on Quality of Care for Client Contact Workers in Community Based MH/MR Prorgams http://lbfc.legis.state.pa.us/reports/1999/204.PDF 2 American Network of Community Options and Resources (ANCOR) 2008 Direct Support Professional Wage Study 9
  • 10. Opportunities for Cost-Shifting to Other Payers is Almost Non-Existent.  The state (with matching federal funds) is the single payer for community-based behavioral health and intellectual disability services.  There is almost no private pay (less than 1%) for these services. 10
  • 11. The Almost Exclusively Non-Profit Providers of these Services are Financially Fragile.  For 45 years, DPW payment policy and county MH/MR agency practice severely limited retained revenue.  County contracts, DPW fiscal regulation, and ODP Instructions to Cost Reporting carefully limit allowable costs.  Cash advances from counties, and now gross adjustments from DPW, continue to be necessary to ensure adequate cash flow for many of these community-based providers. 11
  • 12. Cuts in these Services will Increase Costs Elsewhere in State and County Government.  County jails and state prisons are among the default treatment option for people with autism and untreated behavioral health needs.  Cuts that lead to program closures for people with intellectual disabilities will result in a re- institutionalization policy contrary to the Americans with Disabilities Act at greater expense to the state budget.  The lack of adequate Waiting List funding for people with intellectual disabilities is resulting in Section 406 commitments to state MR institutions by county common pleas courts, at a cost of $256,622 per person per year, which will only accelerate if further cuts are made. 12
  • 13. Traditional Cost Cutting Measures (Serving Fewer People or Providing Fewer Services) are Not Available in the Community ID Waivers.  Existing waiver participants cannot be terminated from ID waivers, according to federal law, and there is almost no turnover of the people enrolled in these waivers.  The amount and kinds of services provided to ID waiver participants cannot be cut back, according to federal rules. 13
  • 14. Medicaid Waiver Services for People with Autism Must Be Preserved  Two Medicaid waivers generate federal matching funds for services for 500 adults with autism spectrum disorders.  The preservation of these services will help to reduce costly and inappropriate “care” for people with autism, including county jails and state prisons. 14