Presented by Florencia Nochetto, MPH, PMP, on March 13, 2015 at the fifth Center for Health Literacy Conference: Plain Talk in Complex Times.

1. 25,000 Words and More:
Applying the President’s Digital Government Strategy to
Extend the Digital Reach of HIV-Related Drug Information
Plain Talk Conference
March 13, 2015

2. Presenters
Gale Dutcher, MS, MLS (HHS, NIH, NLM, SIS)
Florencia Nochetto, MPH, PMP (ICF International)
Christopher McCary, PMP, SCM (ICF International)
Special thanks to Diane Ben-Senia, MPH (ICF International) for assistance
with abstract and slide development
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3. Agenda
1. The HIV Challenge
2. Background on the AIDSinfo program
3. What is the President’s Digital Government Strategy?
Why is it important?
4. How AIDSinfo implemented the Strategy
5. AIDSinfo lessons learned, tips, and pointers
6. Interactive exercises to demonstrate application of the
Strategy
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4. The HIV Challenge
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5. The HIV Challenge
• Approximately 1.2 million Americans are living with
HIV.
• Daily medications can suppress, but not cure HIV.
• More than 100 FDA-approved drugs are available to
prevent and treat HIV and related infections.
• Drug information is updated frequently, new drugs
are approved regularly, and clinical trials of
promising drugs are ongoing.
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6. The HIV Challenge
• Resources (staffing and funds) to maintain drug
information are limited.
• Users depend on access to HIV drug information
“anywhere, anytime, and on any device.”
• How does AIDSinfo meet users’ increasing
expectations while remaining on budget?
 The President’s Digital Government Strategy!
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7. Overview of the AIDSinfo
Program

8. AIDSinfo Mission
• Federal HIV information
service for health
professionals and English and
Spanish-speaking consumers
• HIV-related offerings include
medical practice guidelines,
clinical trials, and drug
information
• The AIDSinfo challenge:
To use finite resources wisely
to expand digital delivery of
HIV-related information
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HIV
Treatment
Information
Web Site
Mobile
Apps
Call Center
Social
Media
Videos
Printed
Materials
Trainings/
Outreach
Conference
and
Exhibits
New
Technology

9. AIDSinfo Drug Database
• Information on more than 150 FDA-approved and
investigational drugs
• Technical summaries (English only): For FDA-approved
drugs and drugs being studied in clinical trials
• Consumer summaries (English and Spanish): Plain
language companion summaries
• Important: Resource provides access to investigational
drug information (fills gap in information dissemination)
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10. Digital Delivery of HIV Drug
Information
• Goal: Cost-effectively and efficiently deliver accurate and
up-to-date drug information
• The Dissemination Road Map: The President’s Digital
Government Strategy
• Four Strategy Principles:
I. Information-Centric Approach
II. Shared Platform Approach
III. Customer-Centric Approach
IV. A Platform of Security and Privacy
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11. The President’s Digital
Government Strategy
Why is it important?
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12. Strategy I: Information-Centric
Approach
• Centrally store content in
database and push it out via
multiple channels
• Publically share content (using
APIs) so others can use the
information
• Design with interoperability and
openness
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Create with Everyone in Mind!
• Think “Push Content Out”

13. Strategy I: Information-Centric
Approach
• All drug data is stored in database
• AIDSinfo APIs push content to websites and mobile app
• AIDSinfo APIs available to organizations to integrate
AIDSinfo drug content on their websites
• Strategy works best when many organizations are willing
to share their content openly and freely
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AIDSinfo Example

14. Strategy II: Shared Platform Approach
• Collaborate to reduce costs and
avoid duplication
• Pull content from already
existing sources (e.g., APIs, file
transfers, e-mail dumps)
• Invest savings to fulfill unmet
needs
• Share lessons learned to benefit
everyone
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Partner, Don’t Reinvent!
• Think “Pull Content In”

15. Strategy II: Shared Platform Approach
• Pull content from HHS sources
to populate the drug database:
 DailyMed: FDA labels
 ChemIDplus: Chemical
images/structures
 NIAID: Basic
investigational data points
• Fill government information gap
by developing HIV
investigational drug summaries
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AIDSinfo Example
• Automating drug database
led to impressive savings
 101 FDA-approved drugs
 30 hours/summary for
annual maintenance
 $100/hour for labor costs
 $404,000 in annual
savings
• Savings were reinvested to
develop more investigational
drug summaries and produce a
mobile drug app.

16. Strategy III: Customer-Centric
Approach
• Focus on user needs
• Make information accessible
and easy to use
• Design for mobile use
• Give users control of their
information
• Get user feedback to improve
information delivery
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Let the User Drive!

17. Strategy III: Customer-Centric
Approach
• Develop customizable drug
app:
 Bookmarks
 Pill reminders
 Notes
• Assemble a diverse team:
Include SMEs who understand
audience needs & experts in
mobile dissemination
• Collect feedback: ACSI
survey, user testing of app
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AIDSinfo Example

18. Strategy IV: A Platform of Security and
Privacy
• Build in security, privacy, and data protection throughout
the entire product development life cycle
• Consider the “do once, use many times” principle when
developing security processes and practices
• Continually evaluate and improve your security
safeguards
• Keep abreast of new solutions in data security
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Safeguard your Information Highway!

19. Strategy IV: Platform of Security and
Privacy
• Adhere to PMO/IT standards:
 Use SSL (secure socket layer) protocol to authenticate the
drug API
 Conduct server and code vulnerability scans regularly before
deploying fixes to the drug database or app
 Prioritize updates (patches) to AIDSinfo servers and drug
database based on the severity of bugs
 Backup the drug database daily
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AIDSinfo Example

20. AIDSinfo Lessons
Learned, Tips, and
Pointers
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21. Lessons Learned, Tips, and Pointers
1. Understand the quality and structure of data coming
through partner APIs
2. Plan to store/save partner content as a backup
3. Evaluate frequency of content updates and architect
system appropriately
4. Involve your IT team at the onset of content
development
5. Allocate sufficient resources for testing (manual testing)
6. Invest in automated testing tools and error tracking
systems (e.g., Bugsnag, Crashlytics, Crittercism)
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22. Interactive Exercises
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23. Interactive Exercise #1
• Download the AIDSinfo drug app by searching for
“AIDSinfo drugs.”
• Review the app’s features and content.
• How does the app apply the principles of the Digital
Government Strategy?
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AIDSinfo Drug App Demo

24. Interactive Exercise #2
• Go to MedlinePlus.gov and search for “Aspirin.”
• Click on the first search result. How does the entry
demonstrate that MedlinePlus is implementing the Digital
Government Strategy?
• Are there other examples of how MedlinePlus implements
the Digital Government Strategy?
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MedlinePlus

25. Interactive Exercise #3
• Divide into groups to discuss how you could use the
Digital Government Strategy as a guide to update or
change your own information resources.
1. What changes could you make to your information
delivery processes?
2. What organization could you partner with?
3. What existing content could you “pull”?
4. How could you customize your information resource?
5. Who would you involve in your planning discussions?
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Group Discussion

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Questions?

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Thank You!